MUSCULAR DYSTROPHY ASSOCIATION: Form 990, tax year 2023

View the entire original 990 at ProPublica ↗

Organization: MUSCULAR DYSTROPHY ASSOCIATION (EIN 13-1665552)
Tax period: 2023-01-01 to 2023-12-31
Filed: 2024-05-01
IRS object ID: 202411229349302006
Schema version: 2023v5.0
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule M
Schedule O

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2024-05-01T11:36:20-05:00	ReturnTs
Tax Period End	2023-12-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Field	Value	IRS element (for citing)
Preparer Firm EIN	221478099	PreparerFirmEIN

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	COHNREZNICK LLP	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	14 SYLVAN WAY	AddressLine1Txt
City	PARSIPPANY	CityNm
State Abbreviation	NJ	StateAbbreviationCd
ZIP	070543801	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2023-01-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	131665552	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	MUSCULAR DYSTROPHY ASSOCIATION	BusinessNameLine1Txt
Business Name Line2	INC	BusinessNameLine2Txt

Field	Value	IRS element (for citing)
Business Name Control	MUSC	BusinessNameControlTxt
Phone	3122605900	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1016 W JACKSON BLVD 1073	AddressLine1Txt
City	CHICAGO	CityNm
State Abbreviation	IL	StateAbbreviationCd
ZIP	60607	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	MICHAEL J KENNEDY	PersonNm
Person Title	CFO	PersonTitleTxt
Phone	3122605900	PhoneNum
Signature	2024-05-01	SignatureDt
Discuss With Paid Preparer	Yes (1)	DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

Field	Value	IRS element (for citing)
Person First	MICHAEL	PersonFirstNm
Person Last	KENNEDY	PersonLastNm

Field	Value	IRS element (for citing)
SSN	999009999	SSN

Field	Value	IRS element (for citing)
IRS Responsible Prty Info Curr	0	IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	LORI ROTHE YOKOBOSKY CPA	PreparerPersonNm
PTIN	P01273422	PTIN
Phone	9732283500	PhoneNum
Preparation	2024-04-22	PreparationDt

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

Field	Value	IRS element (for citing)
Trusted Customer	3	TrustedCustomerCd
Authentication Assurance Level	AAL1	AuthenticationAssuranceLevelCd
Identity Assurance Level	IAL1	IdentityAssuranceLevelCd

Field	Value	IRS element (for citing)
Tax	2023	TaxYr
Build TS	2023-04-26 12:10:37Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Address Change	Yes (X)	AddressChangeInd
Principal Officer	DR DONALD S WOOD	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1016 W JACKSON BLVD 1073	AddressLine1Txt
City	CHICAGO	CityNm
State Abbreviation	IL	StateAbbreviationCd
ZIP	60607	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$73,496,390	GrossReceiptsAmt
Group Return For Affiliates	0	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	WWW.MDA.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1950	FormationYr
Legal Domicile State	NY	LegalDomicileStateCd
Activity Or Mission	SEE SCHEDULE O	ActivityOrMissionDesc
Voting Members Governing Body	19	VotingMembersGoverningBodyCnt
Voting Members Independent	19	VotingMembersIndependentCnt
Total Employee	242	TotalEmployeeCnt
Total Volunteers	855	TotalVolunteersCnt
Total Gross UBI	$593,965	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	$0	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$59,144,929	PYContributionsGrantsAmt
CY Contributions Grants	$56,761,618	CYContributionsGrantsAmt
PY Program Service Revenue	$0	PYProgramServiceRevenueAmt
CY Program Service Revenue	$0	CYProgramServiceRevenueAmt
PY Investment Income	$3,244,992	PYInvestmentIncomeAmt
CY Investment Income	$2,236,376	CYInvestmentIncomeAmt
PY Other Revenue	$837,916	PYOtherRevenueAmt
CY Other Revenue	$439,898	CYOtherRevenueAmt
PY Total Revenue	$63,227,837	PYTotalRevenueAmt
CY Total Revenue	$59,437,892	CYTotalRevenueAmt
PY Grants And Similar Paid	$13,032,682	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$14,912,477	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$24,019,882	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$26,112,512	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$0	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$0	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$14,812,103	CYTotalFundraisingExpenseAmt
PY Other Expenses	$21,917,743	PYOtherExpensesAmt
CY Other Expenses	$21,102,781	CYOtherExpensesAmt
PY Total Expenses	$58,970,307	PYTotalExpensesAmt
CY Total Expenses	$62,127,770	CYTotalExpensesAmt
PY Revenues Less Expenses	$4,257,530	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	-$2,689,878	CYRevenuesLessExpensesAmt
Total Assets BOY	$64,403,820	TotalAssetsBOYAmt
Total Assets EOY	$66,561,388	TotalAssetsEOYAmt
Total Liabilities BOY	$57,595,156	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$58,167,552	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$6,808,664	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$8,393,836	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS THE #1 VOLUNTARY HEALTH ORGANIZATION IN THE UNITED STATES FOR PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. (CONT. SCHEDULE O) FOR OVER 70 YEARS, MDA HAS LED THE WAY IN ACCELERATING RESEARCH, ADVANCING CARE, AND ADVOCATING FOR THE SUPPORT OF OUR FAMILIES. MDA'S MISSION IS TO EMPOWER THE PEOPLE WE SERVE TO LIVE LONGER, MORE INDEPENDENT LIVES.	MissionDesc
Significant New Program Srvc	0	SignificantNewProgramSrvcInd
Significant Change	0	SignificantChangeInd
Expense	$20,276,854	ExpenseAmt
Grant	$7,278,043	GrantAmt
Desc	PLEASE SEE SCHEDULE O FOR FURTHER DISCUSSION OF PPP LOAN FORGIVENESS AS IT PERTAINS TO TOTAL CONTRIBUTION REVENUE.HEALTH CARE AND COMMUNITY SERVICES:MDA IS COMMITTED TO EMPOWERING PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS AND RELATED NEUROMUSCULAR DISEASES THROUGH RESEARCH, CARE, AND ADVOCACY. AS THE LARGEST SOURCE OF FUNDING FOR NEUROMUSCULAR DISEASE RESEARCH OUTSIDE OF THE FEDERAL GOVERNMENT MDA HAS COMMITTED MORE THAN $1 BILLION TO ACCELERATE THE DISCOVERY OF THERAPIES AND CURES. WE SUPPORT THE LARGEST NETWORK OF MULTIDISCIPLINARY CLINICS AT MORE THAN 150 TOP MEDICAL INSTITUTIONS, SERVE THE COMMUNITY WITH ONE-ON-ONE SPECIALIZED SUPPORT, AND OFFER EDUCATIONAL CONFERENCES, EVENTS, AND MATERIALS FOR FAMILIES AND HEALTHCARE PROVIDERS. (CONT. SCHEDULE O) EACH OF OUR MDA CARE CENTERS OFFERS INDIVIDUALS AND FAMILIES BEST-IN-CLASS, COMPREHENSIVE CARE FROM AN INTEGRATED MULTIDISCIPLINARY TEAM OF HEALTHCARE SPECIALISTS CONVENIENTLY SITED AT ONE LOCATION. IN A SINGLE DAY, PATIENTS CAN SEE MULTIPLE HEALTHCARE PROVIDERS WHO WORK TOGETHER TO ENSURE COORDINATED INDIVIDUAL CARE FOR EVERY PATIENT TO BEST FIT THEIR SPECIFIC NEEDS. HIGHLY TRAINED MDA CARE SPECIALISTS SERVE AS AN IMPORTANT PART OF THE CARE TEAM, HELPING FAMILIES NAVIGATE THE HEALTH SYSTEM, ANSWERING QUESTIONS, DISTRIBUTING MDA EDUCATIONAL MATERIALS, COORDINATING MDA SERVICES, AND ASSISTING WITH COMMUNITY RESOURCE REFERRALS. EACH YEAR THOUSANDS OF CHILDREN/YOUNG ADULTS LEARN VITAL LIFE SKILLS AND GAIN INDEPENDENCE AT SUMMER CAMP AND THROUGH RECREATIONAL PROGRAMS, AT NO COST TO FAMILIES. EACH CAMP IS STAFFED WITH DEDICATED HEALTH PROFESSIONALS AND TRAINED CAMP VOLUNTEERS WHO MEET THE MEDICAL AND PHYSICAL NEEDS OF EACH CAMPER ALL AT NO COST TO FAMILIES.	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$9,824,296	ExpenseAmt
Grant	$7,539,608	GrantAmt
Desc	RESEARCH: MDA IS THE LARGEST NON-GOVERNMENTAL FUNDER OF NEUROMUSCULAR DISEASE RESEARCH IN THE COUNTRY, SUPPORTING STRATEGIC RESEARCH FOR MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. SINCE ITS INCEPTION IN 1950, MDA HAS INVESTED MORE THAN $1 BILLION IN NEUROMUSCULAR DISEASE RESEARCH TO UNCOVER NEW TREATMENTS. A SINGLE BREAKTHROUGH CAN LEAD TO A CURE. OUR FUNDING RESEARCH ACROSS MANY NEUROMUSCULAR DISEASES MEANS FINDINGS FROM ONE DISEASE OFTEN ENABLE PROGRESS IN OTHERS, MAXIMIZING THE SPEED AT WHICH WE CAN MAKE PROGRESS. SUPPORT FOR MDA'S RESEARCH ENABLES MDA TO FUND LEADING RESEARCH TEAMS WORKING TOWARD BREAKTHROUGH THERAPIES, WHICH CAN HAVE A LIFE-CHANGING IMPACT ON PATIENTS. (CONT. SCHEDULE O)MDA-FUNDED BREAKTHROUGHS INCLUDE DRUGS FOR AMYOTROPHIC LATERAL SCLEROSIS (ALS), DUCHENNE MUSCULAR DYSTROPHY (DMD), PERIODIC PARALYSIS, POMPE DISEASE, AND SPINAL MUSCULAR ATROPHY (SMA). MDA LAUNCHED THE MOVR (NEUROMUSCULAR OBSERVATIONAL RESEARCH) DATA HUB AS A TRANSFORMATIVE PLATFORM, COMBINING MDA'S CARE CENTER NETWORK WITH A STATE-OF-THE-ART INFORMATION-MANAGEMENT SYSTEM. AS THE LARGEST CENTRALIZED DATA HUB FOR MULTIPLE NEUROMUSCULAR DISEASES, MOVR AGGREGATES CLINICAL, GENETIC, AND PATIENT-REPORTED DATA ACROSS BROAD COMMUNITIES OF HEALTHCARE PROVIDERS, RESEARCHERS, AND INDUSTRY PARTNERS THAT WILL LEAD TO RAPID DEVELOPMENTS IN PATIENT CARE, TREATMENTS, AND CURES.	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$13,150,106	ExpenseAmt
Grant	$94,826	GrantAmt
Desc	PROFESSIONAL AND PUBLIC HEALTH EDUCATION:MDA OFFERS A BROAD AND EXPANDING ARRAY OF RESOURCES AND EVENTS EXPERTLY DEVELOPED TO RESPOND TO THE RAPIDLY CHANGING TREATMENT LANDSCAPE. OUR RESOURCES FOR PROVIDING RELEVANT MEDICAL EDUCATION TO PROFESSIONALS ARE UNPARALLELED AND OUR SERVICES AND INITIATIVES REFLECT OUR LEADERSHIP IN THIS AREA. WE PROVIDE BOTH ACCREDITED CONTINUING MEDICAL EDUCATION (CME) AND NON-CME PROGRAMS. AS THE MOST COMPREHENSIVE NEUROMUSCULAR DISEASE MEETING IN THE WORLD, OUR ANNUAL MDA CLINICAL & SCIENTIFIC CONFERENCE PROVIDES A UNIQUE OPPORTUNITY TO LEARN FROM, BE INSPIRED BY, AND SHARE IDEAS WITH EXPERTS FROM ACADEMIA, GOVERNMENT, AND INDUSTRY. (CONT. SCHEDULE O)AT THE COMMUNITY LEVEL, WE ESTABLISHED MDA ENGAGE AND MDA ACCESS EDUCATIONAL EVENT SERIES THAT BRINGS LOCAL HIGH-IMPACT EDUCATIONAL PROGRAMS TO THE NEUROMUSCULARCOMMUNITY IN-PERSON AND VIRTUALLY. EACH OF THE ENGAGE PROGRAMS INCORPORATES MULTIPLE MODULES OF INTEREST, FROM THERAPY DEVELOPMENT ROUNDTABLES TO DISEASE MANAGEMENT TO GENETIC TESTING, DESIGNED SPECIFICALLY FOR COMMUNITY AUDIENCES. EACH EVENT ALSO INCLUDES A SOCIAL ELEMENT FOR FAMILIES AND PARTICIPANTS WITH THE AIM OF STRENGTHENING THE COMMUNITY AND HELPING ATTENDEES MAKE PERSONAL CONNECTIONS.	Desc

Field	Value	IRS element (for citing)
Total Program Service Expenses	$43,251,256	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (1)	DescribedInSection501c3Ind
Schedule B Required	Yes (1)	ScheduleBRequiredInd
Political Campaign Acty	0	PoliticalCampaignActyInd
Lobbying Activities	Yes (1)	LobbyingActivitiesInd
Subject To Proxy Tax	0	SubjectToProxyTaxInd
Donor Advised Fund	0	DonorAdvisedFundInd
Conservation Easements	0	ConservationEasementsInd
Collections Of Art	0	CollectionsOfArtInd
Credit Counseling	0	CreditCounselingInd
Donor Rstr Or Quasi Endowments	Yes (1)	DonorRstrOrQuasiEndowmentsInd
Report Land Building Equipment	Yes (1)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	0	ReportInvestmentsOtherSecInd
Report Program Related Invst	0	ReportProgramRelatedInvstInd
Report Other Assets	0	ReportOtherAssetsInd
Report Other Liabilities	Yes (1)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	Yes (1)	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	Yes (1)	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	0	ConsolidatedAuditFinclStmtInd
School Operating	0	SchoolOperatingInd
Foreign Office	0	ForeignOfficeInd
Foreign Activities	Yes (1)	ForeignActivitiesInd
More Than5000 K To Org	Yes (1)	MoreThan5000KToOrgInd
More Than5000 K To Individuals	0	MoreThan5000KToIndividualsInd
Professional Fundraising	Yes (1)	ProfessionalFundraisingInd
Fundraising Activities	Yes (1)	FundraisingActivitiesInd
Gaming Activities	0	GamingActivitiesInd
Operate Hospital	0	OperateHospitalInd
Grants To Organizations	Yes (1)	GrantsToOrganizationsInd
Grants To Individuals	0	GrantsToIndividualsInd
Schedule J Required	Yes (1)	ScheduleJRequiredInd
Tax Exempt Bonds	0	TaxExemptBondsInd
Engaged In Excess Benefit Trans	0	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	0	PYExcessBenefitTransInd
Loan Outstanding	0	LoanOutstandingInd
Grant To Related Person	0	GrantToRelatedPersonInd
Business Rln With Org Mem	0	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	0	BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent	0	BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri	Yes (1)	DeductibleNonCashContriInd
Deductible Art Contribution	0	DeductibleArtContributionInd
Terminate Operations	0	TerminateOperationsInd
Partial Liquidation	0	PartialLiquidationInd
Disregarded Entity	0	DisregardedEntityInd
Related Entity	0	RelatedEntityInd
Related Organization Ctrl Ent	0	RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	0	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	0	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (1)	ScheduleORequiredInd
IRP Document	87	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (1)	BackupWthldComplianceInd
Employee	242	EmployeeCnt
Employment Tax Returns Filed	Yes (1)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	Yes (1)	UnrelatedBusIncmOverLimitInd
Form990 T Filed	Yes (1)	Form990TFiledInd
Foreign Financial Account	0	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	0	ProhibitedTaxShelterTransInd
Taxable Party Notification	0	TaxablePartyNotificationInd
Nondeductible Contributions	0	NondeductibleContributionsInd
Quid Pro Quo Contributions	Yes (1)	QuidProQuoContributionsInd
Quid Pro Quo Contri Discl	Yes (1)	QuidProQuoContriDisclInd
Form8282 Property Disposed Of	0	Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct	0	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	0	PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services	0	IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt	0	SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc	0	SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	19	GoverningBodyVotingMembersCnt
Independent Voting Member	19	IndependentVotingMemberCnt
Family Or Business Rln	0	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	0	DelegationOfMgmtDutiesInd
Change To Org Documents	0	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	0	MaterialDiversionOrMisuseInd
Members Or Stockholders	0	MembersOrStockholdersInd
Election Of Board Members	0	ElectionOfBoardMembersInd
Decisions Subject To Approva	0	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (1)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (1)	MinutesOfCommitteesInd
Officer Mailing Address	0	OfficerMailingAddressInd
Local Chapters	0	LocalChaptersInd
Form990 Provided To Gvrn Body	Yes (1)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (1)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (1)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (1)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (1)	WhistleblowerPolicyInd
Document Retention Policy	Yes (1)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (1)	CompensationProcessCEOInd
Compensation Process Other	Yes (1)	CompensationProcessOtherInd
Investment In Joint Venture	0	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	AL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AZ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	DE	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	GA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	HI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ID	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	LA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ME	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NE	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NM	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ND	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	RI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	UT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	VA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WY	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	JON VAN COTT VP OF FINANCE CONTROLLER	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Phone	6467132020	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1016 W JACKSON BLVD 1073	AddressLine1Txt
City	CHICAGO	CityNm
State Abbreviation	IL	StateAbbreviationCd
ZIP	60607	ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (29 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	OfficerOfficerInd	Highest Compensated EmployeeHighestCompensatedEmployeeInd
ANJAN ARALIHALLI
DIRECTOR	1.00	Yes (X)	$0	$0	$0
ANKUR GHIA
OUTGOING DIRECTOR	1.00	Yes (X)	$0	$0	$0
BENJAMIN CUMBO III
DIRECTOR	1.00	Yes (X)	$0	$0	$0
CHARLES D SCHOOR ESQ
DIRECTOR	1.00	Yes (X)	$0	$0	$0
CHRIS ROSA
VICE CHAIRMAN	5.00	Yes (X)	$0	$0	$0	Yes (X)
DAN FRIES
DIRECTOR	1.00	Yes (X)	$0	$0	$0
ELIZABETH MCNALLY MD PHD
DIRECTOR	1.00	Yes (X)	$0	$0	$0
EUGENE WILLIAMS
OUTGOING DIRECTOR	1.00	Yes (X)	$0	$0	$0
GOVERNOR BRAD HENRY
CHAIRMAN	5.00	Yes (X)	$0	$0	$0	Yes (X)
HON ROBERT E PIPIA
DIRECTOR	1.00	Yes (X)	$0	$0	$0
JENNIFER GOTTLIEB
DIRECTOR	1.00	Yes (X)	$0	$0	$0
JOHN COSTANTINO
DIRECTOR	1.00	Yes (X)	$0	$0	$0
JOHN E HOWELL
DIRECTOR	1.00	Yes (X)	$0	$0	$0
LILIAN WU PHD
DIRECTOR	1.00	Yes (X)	$0	$0	$0
LOUIS KUNKEL PHD
DIRECTOR	1.00	Yes (X)	$0	$0	$0
MARK SMITH
DIRECTOR	1.00	Yes (X)	$0	$0	$0
MATT PLUMMER
DIRECTOR	1.00	Yes (X)	$0	$0	$0
MIKE ROWLETT
DIRECTOR	1.00	Yes (X)	$0	$0	$0
NANCY KINDELAN
DIRECTOR	1.00	Yes (X)	$0	$0	$0
STEVE FURNARY
DIRECTOR	1.00	Yes (X)	$0	$0	$0
TOM SIMON
DIRECTOR	1.00	Yes (X)	$0	$0	$0
DONALD WOOD
PRESIDENT & CEO	50.00		$490,624	$0	$33,322	Yes (X)
HENRY LANMAN
SEC. & CHIEF LEGAL OFFICER	50.00		$357,404	$0	$10,494	Yes (X)
MICHAEL KENNEDY
TREASURER & CFO	50.00		$334,979	$0	$44,280	Yes (X)
ANGELA LEK
VP, RESEARCH	50.00		$194,037	$0	$6,392		Yes (X)
MONICA PAPPAS
VP, TECHNOLOGY	50.00		$195,958	$0	$5,091		Yes (X)
NORA CAPOCCI
VP, HEALTHCARE SERVICES	50.00		$198,041	$0	$6,577		Yes (X)
PERIPEDES GONDIM
VP, HUMAN RESOURCES & VOLUNTEERS	50.00		$223,723	$0	$7,136		Yes (X)
SHARON HESTERLEE
CHIEF RESEARCH OFFICER	50.00		$237,040	$0	$40,391		Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$2,231,806	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$0	TotReportableCompRltdOrgAmt
Total Other Compensation	$153,683	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	53	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	0	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (1)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	0	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1Txt	CityContractorAddress/USAddress/CityNm	State AbbreviationContractorAddress/USAddress/StateAbbreviationCd	ZIPContractorAddress/USAddress/ZIPCd	ServicesServicesDesc	CompensationCompensationAmt
GLC PART OF SPM GROUP
15 WEST HARRIS AVENUE SUITE 300	LA GRANGE	IL	60525	CONTENT MARKETING AGENCY	$687,825
DATA AXLE INC
PO BOX 959819	ST LOUIS	MO	631959819	MARKETING SERVICES	$358,741
PURSUANT GROUP
PO BOX 120519	DALLAS	TX	753120519	FUNDRAISING CONSULTANT	$349,000
1ST DEGREE LLC
755 GRAND BOULEVARD SUITE B-105 25	MIRAMAR BEACH	FL	32550	MARKETING SERVICES	$143,925
MORGAN LEWIS & BOCKIUS LLP
P O BOX 8500 S-6050	PHILADELPHIA	PA	191786050	LEGAL ADVICE	$129,070

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	6	CntrctRcvdGreaterThan100KCnt
Info In Schedule O Part VIII	Yes (X)	InfoInScheduleOPartVIIIInd
Federated Campaigns	$275,063	FederatedCampaignsAmt
Fundraising	$34,604,910	FundraisingAmt
Government Grants	$357,144	GovernmentGrantsAmt
All Other Contributions	$21,524,501	AllOtherContributionsAmt
Noncash Contributions	$71,822	NoncashContributionsAmt
Total Contributions	$56,761,618	TotalContributionsAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$1,443,870	TotalRevenueColumnAmt
Exclusion	$1,443,870	ExclusionAmt

Royalties Revenue RoyaltiesRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$1,141,007	TotalRevenueColumnAmt
Exclusion	$1,141,007	ExclusionAmt

Gross Rents GrossRentsGrp

Field	Value	IRS element (for citing)
Real	$45,000	RealAmt

Less Rental Expenses LessRentalExpensesGrp

Field	Value	IRS element (for citing)
Real	$0	RealAmt

Rental Income Or Loss RentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Real	$45,000	RealAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$45,000	TotalRevenueColumnAmt
Exclusion	$45,000	ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$11,453,099	SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$10,632,633	SecuritiesAmt
Other	$27,960	OtherAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	$820,466	SecuritiesAmt
Other	-$27,960	OtherAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$792,506	TotalRevenueColumnAmt
Exclusion	$792,506	ExclusionAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$1,679,130	FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event	$34,604,910	ContriRptFundraisingEventAmt
Fundraising Direct Expenses	$3,397,905	FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	-$1,718,775	TotalRevenueColumnAmt
Exclusion	-$1,718,775	ExclusionAmt

Other Revenue Misc OtherRevenueMiscGrp (2 entries)

DescDesc	BusinessBusinessCd	Total Revenue ColumnTotalRevenueColumnAmt	Unrelated Business RevenueUnrelatedBusinessRevenueAmt	Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
QUEST ADVERTISING	541800	$593,965	$593,965
GRANT RECOVERY	900099	$378,701		$378,701

Field	Value	IRS element (for citing)
Other Revenue Total	$972,666	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$59,437,892	TotalRevenueColumnAmt
Related Or Exempt Func Income	$378,701	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	$593,965	UnrelatedBusinessRevenueAmt
Exclusion	$1,703,608	ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$13,079,331	TotalAmt
Program Services	$13,079,331	ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$1,833,146	TotalAmt
Program Services	$1,833,146	ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$1,271,104	TotalAmt
Program Services	$807,838	ProgramServicesAmt
Management And General	$67,893	ManagementAndGeneralAmt
Fundraising	$395,373	FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$18,726,172	TotalAmt
Program Services	$11,901,237	ProgramServicesAmt
Management And General	$1,000,206	ManagementAndGeneralAmt
Fundraising	$5,824,729	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$346,139	TotalAmt
Program Services	$219,985	ProgramServicesAmt
Management And General	$18,488	ManagementAndGeneralAmt
Fundraising	$107,666	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$4,289,865	TotalAmt
Program Services	$2,726,382	ProgramServicesAmt
Management And General	$229,130	ManagementAndGeneralAmt
Fundraising	$1,334,353	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$1,479,232	TotalAmt
Program Services	$940,112	ProgramServicesAmt
Management And General	$79,009	ManagementAndGeneralAmt
Fundraising	$460,111	FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$349,667	TotalAmt
Program Services	$76,297	ProgramServicesAmt
Management And General	$95,262	ManagementAndGeneralAmt
Fundraising	$178,108	FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$181,481	TotalAmt
Program Services	$72,426	ProgramServicesAmt
Management And General	$30,802	ManagementAndGeneralAmt
Fundraising	$78,253	FundraisingAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

Field	Value	IRS element (for citing)
Total	$847,575	TotalAmt
Program Services	$847,575	ProgramServicesAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

Field	Value	IRS element (for citing)
Total	$214,421	TotalAmt
Management And General	$214,421	ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$2,638,271	TotalAmt
Program Services	$2,324,746	ProgramServicesAmt
Management And General	$161,242	ManagementAndGeneralAmt
Fundraising	$152,283	FundraisingAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$2,810,141	TotalAmt
Program Services	$1,644,919	ProgramServicesAmt
Management And General	$80,426	ManagementAndGeneralAmt
Fundraising	$1,084,796	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$2,918,444	TotalAmt
Program Services	$1,224,103	ProgramServicesAmt
Management And General	$84,733	ManagementAndGeneralAmt
Fundraising	$1,609,608	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$2,848,748	TotalAmt
Program Services	$1,571,680	ProgramServicesAmt
Management And General	$360,699	ManagementAndGeneralAmt
Fundraising	$916,369	FundraisingAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$810,787	TotalAmt
Program Services	$215,259	ProgramServicesAmt
Management And General	$565,823	ManagementAndGeneralAmt
Fundraising	$29,705	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$1,441,173	TotalAmt
Program Services	$668,066	ProgramServicesAmt
Management And General	$225,259	ManagementAndGeneralAmt
Fundraising	$547,848	FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$79,840	TotalAmt
Program Services	$79,370	ProgramServicesAmt
Management And General	$470	ManagementAndGeneralAmt

Interest InterestGrp

Field	Value	IRS element (for citing)
Total	$717,096	TotalAmt
Program Services	$286,181	ProgramServicesAmt
Management And General	$121,709	ManagementAndGeneralAmt
Fundraising	$309,206	FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$1,030,408	TotalAmt
Program Services	$535,102	ProgramServicesAmt
Management And General	$495,306	ManagementAndGeneralAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$497,483	TotalAmt
Program Services	$198,537	ProgramServicesAmt
Management And General	$84,435	ManagementAndGeneralAmt
Fundraising	$214,511	FundraisingAmt

Other Expenses OtherExpensesGrp (2 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	FundraisingFundraisingAmt
EVENT EXPENSES	$2,656,326	$1,125,478	$1,530,848
PRODUCTION COSTS	$817,329	$817,329

All Other Expenses AllOtherExpensesGrp

Field	Value	IRS element (for citing)
Total	$243,591	TotalAmt
Program Services	$56,157	ProgramServicesAmt
Management And General	$149,098	ManagementAndGeneralAmt
Fundraising	$38,336	FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$62,127,770	TotalAmt
Program Services	$43,251,256	ProgramServicesAmt
Management And General	$4,064,411	ManagementAndGeneralAmt
Fundraising	$14,812,103	FundraisingAmt

Field	Value	IRS element (for citing)
Joint Costs	Yes (X)	JointCostsInd

Total Joint Costs TotalJointCostsGrp

Field	Value	IRS element (for citing)
Total	$2,593,156	TotalAmt
Program Services	$1,037,262	ProgramServicesAmt
Management And General	$0	ManagementAndGeneralAmt
Fundraising	$1,555,894	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$6,490,910	BOYAmt
EOY	$3,683,724	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$3,592,054	BOYAmt
EOY	$5,439,147	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$3,820,381	BOYAmt
EOY	$4,099,385	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$2,514,895	BOYAmt
EOY	$1,783,069	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$5,288,518	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$3,903,161	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$2,833,812	BOYAmt
EOY	$1,385,357	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$45,050,644	BOYAmt
EOY	$49,996,486	EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

Field	Value	IRS element (for citing)
BOY	$76,213	BOYAmt
EOY	$76,213	EOYAmt

Intangible Assets IntangibleAssetsGrp

Field	Value	IRS element (for citing)
EOY	$73,096	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$24,911	BOYAmt
EOY	$24,911	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$64,403,820	BOYAmt
EOY	$66,561,388	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$6,841,579	BOYAmt
EOY	$7,034,528	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$2,897,572	BOYAmt
EOY	$2,040,021	EOYAmt

Deferred Revenue DeferredRevenueGrp

Field	Value	IRS element (for citing)
BOY	$3,023,278	BOYAmt
EOY	$3,550,230	EOYAmt

Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp

Field	Value	IRS element (for citing)
BOY	$7,969,067	BOYAmt
EOY	$9,375,467	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$36,863,660	BOYAmt
EOY	$36,167,306	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$57,595,156	BOYAmt
EOY	$58,167,552	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows FASB117	Yes (X)	OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$3,229,419	BOYAmt
EOY	$4,593,741	EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$3,579,245	BOYAmt
EOY	$3,800,095	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$6,808,664	BOYAmt
EOY	$8,393,836	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$64,403,820	BOYAmt
EOY	$66,561,388	EOYAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part XI	Yes (X)	InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss	-$2,689,878	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	$5,223,012	NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets	-$947,962	OtherChangesInNetAssetsAmt
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	0	AccountantCompileOrReviewInd
FS Audited	Yes (1)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Separate Basis Fincl Stmt	Yes (X)	SeparateBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (1)	AuditCommitteeInd
Federal Grant Audit Required	0	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$99,904,218	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$51,829,703	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$60,181,680	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$59,144,929	CurrentTaxYearMinus1YearAmt
Current Tax Year	$56,761,618	CurrentTaxYearAmt
Total	$327,822,148	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$99,904,218	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$51,829,703	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$60,181,680	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$59,144,929	CurrentTaxYearMinus1YearAmt
Current Tax Year	$56,761,618	CurrentTaxYearAmt
Total	$327,822,148	TotalAmt

Field	Value	IRS element (for citing)
Substantial Contributors Tot	$1,377,316	SubstantialContributorsTotAmt
Public Support Total170	$326,444,832	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$1,552,285	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$1,042,846	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$968,429	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$1,684,474	CurrentTaxYearMinus1YearAmt
Current Tax Year	$2,629,877	CurrentTaxYearAmt
Total	$7,877,911	TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus1 Year	$10,004	CurrentTaxYearMinus1YearAmt
Total	$10,004	TotalAmt

Other Income170 OtherIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$7,499	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$2,950	CurrentTaxYearMinus3YearsAmt
Total	$10,449	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$335,720,512	TotalSupportAmt
Public Support CY170	0.97240	PublicSupportCY170Pct
Public Support PY170	0.97470	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:	FormAndLineReferenceDesc
Explanation	GAMING EVENTS - 2019 AMOUNT: $ 7,499. 2020 AMOUNT: $ 2,950.	ExplanationTxt

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule C IRS990ScheduleC

Total Direct Lobbying TotalDirectLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$847,575	FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$847,575	FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$42,024,980	FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$42,872,555	FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$1,000,000	FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$250,000	FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$1,000,000	CurrentYearMinus3Amt
Current Year Minus2	$1,000,000	CurrentYearMinus2Amt
Current Year Minus1	$1,000,000	CurrentYearMinus1Amt
Current Year	$1,000,000	CurrentYearAmt
Total	$4,000,000	TotalAmt

Field	Value	IRS element (for citing)
Lobbying Ceiling	$6,000,000	LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$628,981	CurrentYearMinus3Amt
Current Year Minus2	$486,336	CurrentYearMinus2Amt
Current Year Minus1	$869,855	CurrentYearMinus1Amt
Current Year	$847,575	CurrentYearAmt
Total	$2,832,747	TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$250,000	CurrentYearMinus3Amt
Current Year Minus2	$250,000	CurrentYearMinus2Amt
Current Year Minus1	$250,000	CurrentYearMinus1Amt
Current Year	$250,000	CurrentYearAmt
Total	$1,000,000	TotalAmt

Field	Value	IRS element (for citing)
Grassroots Ceiling	$1,500,000	GrassrootsCeilingAmt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$982,396	BeginningYearBalanceAmt
Contributions	$24,380	ContributionsAmt
Investment Earnings Or Losses	$133,867	InvestmentEarningsOrLossesAmt
Other Expenditures	$312,379	OtherExpendituresAmt
Administrative Expenses	$11,462	AdministrativeExpensesAmt
End Year Balance	$816,802	EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$1,191,057	BeginningYearBalanceAmt
Investment Earnings Or Losses	-$195,884	InvestmentEarningsOrLossesAmt
Administrative Expenses	$12,777	AdministrativeExpensesAmt
End Year Balance	$982,396	EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$1,077,753	BeginningYearBalanceAmt
Investment Earnings Or Losses	$126,644	InvestmentEarningsOrLossesAmt
Administrative Expenses	$13,340	AdministrativeExpensesAmt
End Year Balance	$1,191,057	EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$929,020	BeginningYearBalanceAmt
Investment Earnings Or Losses	$160,235	InvestmentEarningsOrLossesAmt
Administrative Expenses	$11,502	AdministrativeExpensesAmt
End Year Balance	$1,077,753	EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$778,813	BeginningYearBalanceAmt
Investment Earnings Or Losses	$161,908	InvestmentEarningsOrLossesAmt
Administrative Expenses	$11,701	AdministrativeExpensesAmt
End Year Balance	$929,020	EndYearBalanceAmt

Field	Value	IRS element (for citing)
Prmnnt Endowment Balance EOY	1.00000	PrmnntEndowmentBalanceEOYPct
Endowments Held Unrelated Org	0	EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org	0	EndowmentsHeldRelatedOrgInd

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$5,288,518	OtherCostOrOtherBasisAmt
Depreciation	$3,903,161	DepreciationAmt
Book Value	$1,385,357	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$1,385,357	TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)

DescDesc	AmtAmt
ACCRUED PENSION COST	$36,089,553
OPERATING LEASE LIABILITY	$77,753

Field	Value	IRS element (for citing)
Total Liability	$36,167,306	TotalLiabilityAmt
Footnote Text	Yes (X)	FootnoteTextInd
Total Rev Etc Audited Fincl Stmt	$63,023,267	TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst	$5,223,012	NetUnrealizedGainsInvstAmt
Other Revenue	-$1,027,475	OtherRevenueAmt
Revenue Not Reported	$4,195,537	RevenueNotReportedAmt
Revenue Subtotal	$58,827,730	RevenueSubtotalAmt
Investment Expenses Not Incld	$214,421	InvestmentExpensesNotIncldAmt
Other Revenues Not Included	$395,741	OtherRevenuesNotIncludedAmt
Revenue Not Reported Fincl Stmt	$610,162	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$59,437,892	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$61,438,095	TotExpnsEtcAuditedFinclStmtAmt
Other Expenses Included	-$395,741	OtherExpensesIncludedAmt
Expenses Not Reported	-$395,741	ExpensesNotReportedAmt
Expenses Subtotal	$61,833,836	ExpensesSubtotalAmt
Investment Expenses Not Incld2	$214,421	InvestmentExpensesNotIncld2Amt
Other Expenses Not Included	$79,513	OtherExpensesNotIncludedAmt
Expenses Not Rpt Fincl Stmt	$293,934	ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990	$62,127,770	TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART V, LINE 4:	THE ASSOCIATION'S ENDOWMENT CONSISTS OF ONE INDIVIDUAL FUND ESTABLISHED FOR THE ADVANCEMENT OF RESEARCH, PROGRAMS AND SERVICES FOR THOSE WITH MUSCULAR DYSTROPHY. THE GLEN E. & DAVID K. GUTTORMSEN ENDOWED FUND FOR DUCHENNE MUSCULAR DYSTROPHY RESEARCH WAS ESTABLISHED IN AN AGREEMENT, EFFECTIVE MAY 25, 2010, WHEREBY THE ASSOCIATION IS TO MAINTAIN AND ADMINISTER THE FUND IN ACCORDANCE WITH THE DONOR'S DESIRES.
PART X, LINE 2:	U.S. GAAP PROVIDES ACCOUNTING AND DISCLOSURE GUIDANCE ABOUT POSITIONS TAKEN BY AN ORGANIZATION IN ITS TAX RETURNS THAT MIGHT BE UNCERTAIN. MANAGEMENT HAS CONSIDERED ITS TAX POSITIONS AND BELIEVES THAT ALL OF THE POSITIONS TAKEN BY THE ASSOCIATION IN ITS FEDERAL AND STATE EXEMPT ORGANIZATION TAX RETURNS ARE MORE LIKELY THAN NOT TO BE SUSTAINED UPON EXAMINATION. THE ASSOCIATION'S RETURNS FOR YEARS ENDED DECEMBER 31, 2023, 2022, 2021, 2020 ARE OPEN FOR EXAMINATION BY FEDERAL AND STATE TAXING AUTHORITIES, WHICH GENERALLY IS FOR THREE YEARS AFTER THEY ARE FILED. IF APPLICABLE, THE ASSOCIATION WOULD RECOGNIZE INTEREST AND PENALTIES ASSOCIATED WITH TAX MATTERS AS PART OF GENERAL AND ADMINISTRATIVE EXPENSES AND WOULD INCLUDE ACCRUED INTEREST AND PENALTIES IN ACCRUED EXPENSES. MANAGEMENT HAS ANALYZED THE TAX POSITIONS TAKEN BY THE ASSOCIATION AND HAS CONCLUDED THAT, AS OF DECEMBER 31, 2023, THERE ARE NO UNCERTAIN TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN THAT WOULD REQUIRE RECOGNITION OF A LIABILITY (OR ASSET) OR DISCLOSURE IN THE FINANCIAL STATEMENTS.
PART XI, LINE 2D - OTHER ADJUSTMENTS:	CHANGES IN UNRECOGNIZED BENEFIT PLAN COSTS -947,962. FUNDRAISING EXPENSES -79,513.
PART XI, LINE 4B - OTHER ADJUSTMENTS:	LOSS ON DISPOSAL OF FIXED ASSETS -27,960. SUBLEASE RENTAL 45,000. GRANT RECOVERY 378,701.
PART XII, LINE 2D - OTHER ADJUSTMENTS:	LOSS ON DISPOSAL OF FIXED ASSETS 27,960. SUBLEASE RENTAL -45,000. GRANT RECOVERY -378,701.
PART XII, LINE 4B - OTHER ADJUSTMENTS:	FUNDRAISING EXPENSES 79,513.

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	0	GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (3 entries)

RegionRegionTxt	Type Of Activities ConductedTypeOfActivitiesConductedTxt	Specific Services ProvidedSpecificServicesProvidedTxt	Region Total ExpendituresRegionTotalExpendituresAmt
EAST ASIA AND THE PACIFIC	PROGRAM SERVICES	RESEARCH GRANT	$454,256
EUROPE	PROGRAM SERVICES	RESEARCH GRANT	$843,315
NORTH AMERICA	PROGRAM SERVICES	RESEARCH GRANT	$535,075

Field	Value	IRS element (for citing)
Subtotal Offices	0	SubtotalOfficesCnt
Subtotal Employees	0	SubtotalEmployeesCnt
Continuation Total Office	0	ContinuationTotalOfficeCnt
Continuation Total Employee	0	ContinuationTotalEmployeeCnt
Total Office	0	TotalOfficeCnt
Total Employee	0	TotalEmployeeCnt
Subtotal Spent	$1,832,646	SubtotalSpentAmt
Continuation Spent	$0	ContinuationSpentAmt
Total Spent	$1,832,646	TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (3 entries)

RegionRegionTxt	Purpose Of GrantPurposeOfGrantTxt	Cash GrantCashGrantAmt	Manner Of Cash DisbursementMannerOfCashDisbursementTxt	Non Cash AssistanceNonCashAssistanceAmt
EAST ASIA AND THE PACIFIC	RESEARCH	$454,256	CHECK/WIRE	$0
EUROPE	RESEARCH	$843,815	CHECK/WIRE	$0
NORTH AMERICA	RESEARCH	$535,075	CHECK/WIRE	$0

Field	Value	IRS element (for citing)
Total501c3 Org	0	Total501c3OrgCnt
Total Other Org	24	TotalOtherOrgCnt
Transfer To Foreign Corp	0	TransferToForeignCorpInd
Interest In Foreign Trust	0	InterestInForeignTrustInd
Foreign Corp Ownership	0	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	0	PassiveForeignInvestmestCoInd
Foreign Partnership	0	ForeignPartnershipInd
Boycott Countries	0	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES.	ExplanationTxt

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Mail Solicitations	Yes (X)	MailSolicitationsInd
Email Solicitations	Yes (X)	EmailSolicitationsInd
Phone Solicitations	Yes (X)	PhoneSolicitationsInd
Special Fundraising Events	Yes (X)	SpecialFundraisingEventsInd
Agrmt Prof Fundraising Acty	0	AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp

Organization Business Name OrganizationBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	PURSUANT GROUP	BusinessNameLine1Txt

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	PO BOX 120519	AddressLine1Txt
City	DALLAS	CityNm
State Abbreviation	TX	StateAbbreviationCd
ZIP	75312	ZIPCd

Field	Value	IRS element (for citing)
Activity	CONSULTANT FOR FUNDRAISING STRATEGIES	ActivityTxt
Fundraiser Control Of Funds	0	FundraiserControlOfFundsInd
Gross Receipts	$0	GrossReceiptsAmt
Retained By Contractor	$349,000	RetainedByContractorAmt
Net To Organization	$0	NetToOrganizationAmt

Field	Value	IRS element (for citing)
Total Retained By Contractors	$349,000	TotalRetainedByContractorsAmt
Licensed States	AL	LicensedStatesCd
Licensed States	AK	LicensedStatesCd
Licensed States	AZ	LicensedStatesCd
Licensed States	CA	LicensedStatesCd
Licensed States	CO	LicensedStatesCd
Licensed States	CT	LicensedStatesCd
Licensed States	DE	LicensedStatesCd
Licensed States	FL	LicensedStatesCd
Licensed States	GA	LicensedStatesCd
Licensed States	HI	LicensedStatesCd
Licensed States	ID	LicensedStatesCd
Licensed States	IL	LicensedStatesCd
Licensed States	IN	LicensedStatesCd
Licensed States	IA	LicensedStatesCd
Licensed States	KS	LicensedStatesCd
Licensed States	KY	LicensedStatesCd
Licensed States	LA	LicensedStatesCd
Licensed States	ME	LicensedStatesCd
Licensed States	MD	LicensedStatesCd
Licensed States	MA	LicensedStatesCd
Licensed States	MI	LicensedStatesCd
Licensed States	MN	LicensedStatesCd
Licensed States	MO	LicensedStatesCd
Licensed States	MT	LicensedStatesCd
Licensed States	NE	LicensedStatesCd
Licensed States	NV	LicensedStatesCd
Licensed States	NJ	LicensedStatesCd
Licensed States	NM	LicensedStatesCd
Licensed States	NY	LicensedStatesCd
Licensed States	NC	LicensedStatesCd
Licensed States	ND	LicensedStatesCd
Licensed States	OH	LicensedStatesCd
Licensed States	OK	LicensedStatesCd
Licensed States	OR	LicensedStatesCd
Licensed States	PA	LicensedStatesCd
Licensed States	RI	LicensedStatesCd
Licensed States	SC	LicensedStatesCd
Licensed States	SD	LicensedStatesCd
Licensed States	TN	LicensedStatesCd
Licensed States	UT	LicensedStatesCd
Licensed States	VA	LicensedStatesCd
Licensed States	WA	LicensedStatesCd
Licensed States	WV	LicensedStatesCd
Licensed States	WI	LicensedStatesCd
Licensed States	WY	LicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Event1	SPECIAL EVENTS	Event1Nm
Gross Receipts Event1	$17,002,749	GrossReceiptsEvent1Amt
Charitable Contri Event1	$15,664,611	CharitableContriEvent1Amt
Gross Revenue Event1	$1,338,138	GrossRevenueEvent1Amt
Non Cash Prizes Event1	$85,558	NonCashPrizesEvent1Amt
Rent Facility Costs Event1	$103,772	RentFacilityCostsEvent1Amt
Food And Beverage Event1	$48,057	FoodAndBeverageEvent1Amt
Entertainment Event1	$75,744	EntertainmentEvent1Amt
Other Direct Expenses Event1	$122,340	OtherDirectExpensesEvent1Amt
Event2	DISTINGUISHED EVENTS	Event2Nm
Gross Receipts Event2	$10,285,562	GrossReceiptsEvent2Amt
Charitable Contri Event2	$10,187,171	CharitableContriEvent2Amt
Gross Revenue Event2	$98,391	GrossRevenueEvent2Amt
Non Cash Prizes Event2	$699,187	NonCashPrizesEvent2Amt
Rent Facility Costs Event2	$786,258	RentFacilityCostsEvent2Amt
Food And Beverage Event2	$505,866	FoodAndBeverageEvent2Amt
Entertainment Event2	$214,445	EntertainmentEvent2Amt
Other Direct Expenses Event2	$33,458	OtherDirectExpensesEvent2Amt
Other Events Total	139	OtherEventsTotalCnt
Gross Receipts Other Events	$8,995,729	GrossReceiptsOtherEventsAmt
Charitable Contri Other Events	$8,753,128	CharitableContriOtherEventsAmt
Gross Revenue Other Events	$242,601	GrossRevenueOtherEventsAmt
Non Cash Prizes Other Events	$79,906	NonCashPrizesOtherEventsAmt
Rent Fclty Costs Other Events	$276,843	RentFcltyCostsOtherEventsAmt
Food And Beverage Other Events	$33,463	FoodAndBeverageOtherEventsAmt
Entertainment Other Events	$73,769	EntertainmentOtherEventsAmt
Oth Direct Expnss Other Events	$259,239	OthDirectExpnssOtherEventsAmt
Gross Receipts Total	$36,284,040	GrossReceiptsTotalAmt
Charitable Contributions Tot	$34,604,910	CharitableContributionsTotAmt
Gross Revenue Total Events	$1,679,130	GrossRevenueTotalEventsAmt
Non Cash Prizes Total Events	$864,651	NonCashPrizesTotalEventsAmt
Rent Fclty Costs Total Events	$1,166,873	RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events	$587,386	FoodAndBeverageTotalEventsAmt
Entertainment Total Events	$363,958	EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events	$415,037	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$3,397,905	DirectExpenseSummaryEventsAmt
Net Income Summary	-$1,718,775	NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (205 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Non Cash AssistanceNonCashAssistanceAmt	Purpose Of GrantPurposeOfGrantTxt	Address Line2USAddress/AddressLine2Txt
RESEARCH TRIANGLE INSTITUTE
PO BOX 896945	RALEIGH	NC	272659000	560686338	501(C)(3)	$37,500	$0	ADVOCACY
OPMD ASSOCIATION
13117 STONELEIGH TERRACE DRIVE	HOUSTON	TX	77077	881258710	501(C)(3)	$19,065	$0	ADVOCACY
CURE RARE DISEASE INC
4 RESEARCH DRIVE	WOODBRIDGE	CT	06525	822473513	501(C)(3)	$30,000	$0	ADVOCACY
ALL WHEELS UP INC
5575 LA JOLLA DRIVE	FRISCO	TX	75036	452492761	501(C)(3)	$35,000	$0	ADVOCACY
TUFTS MEDICAL CENTER INC
800 WASHINGTON STREET	BOSTON	MA	021111526	043400617	501(C)(3)	$25,000	$0	ADVOCACY
PORTFOLIO MEDIA INC
111 WEST 19TH STREET FLOOR 5	NEW YORK	NY	10011	841660943		$7,360	$0	ADVOCACY
CURE CMD
3217 E CARSON ST 1014	LAKEWOOD	CA	90712	262640975	501(C)(3)	$10,000	$0	ADVOCACY
TRUSTEES OF TUFTS COLLEGE
136 HARRISON AVE	BOSTON	MA	02111	042103634	501(C)(3)	$49,963	$0	RESEARCH
DANA FARBER CANCER INSTITUTE
450 BROOKLINE AVENUE	BOSTON	MA	022155450	042263040	501(C)(3)	$50,000	$0	RESEARCH
MASSACHUSETTS GENERAL HOSPITAL MASS GENERAL
55 FRUIT STREET	BOSTON	MA	02114	042697983	501(C)(3)	$403,593	$0	RESEARCH
BOSTON CHILDREN'S HOSPITAL
1295 BOYLSTON ST 4TH FLOOR	BOSTON	MA	033265724	042774441	501(C)(3)	$219,991	$0	RESEARCH
WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY
1300 YORK AVENUE BOX 89	NEW YORK	NY	10065	131623978	501(C)(3)	$115,789	$0	RESEARCH
COLUMBIA UNIVERSITY MEDICAL CENTER
COLUMBIA UNIVERSITY 630 WEST 168TH	NEW YORK	NY	10032	135598093	501(C)(3)	$189,996	$0	RESEARCH	STREET BOX 49
RESEARCH FOUNDATION OF SUNY
1400 WASHINGTON AVENUE MSC 100A	ALBANY	NY	12222	141368361	501(C)(3)	$24,437	$0	RESEARCH
UNIVERSITY OF ROCHESTER
910 GENESEE STREET SUITE 200	ROCHESTER	NY	146113847	160743209	501(C)(3)	$285,968	$0	RESEARCH
THE TRUSTEES OF THE STEVENS INSTITUTE OF TECHNOLOGY
ROOM 310 CASTLE POINT	HUDSONHOBOKEN	NJ	07030	221487354	501(C)(3)	$7,143	$0	RESEARCH
THOMAS JEFFERSON UNIVERSITY
1101 MARKET STREET 29TH FLOOR	PHILADELPHIA	PA	191072934	231352651	501(C)(3)	$35,000	$0	RESEARCH
THE TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET FRANKLIN	PHILADELPHIA	PA	19104	231352685	501(C)(3)	$157,279	$0	RESEARCH	BUILDING 5TH FLOOR
UNIVERSITY OF PITTSBURGH
PO BOX 640458	PITTSBURGH	PA	152640458	250965591	501(C)(3)	$69,400	$0	RESEARCH
BROAD INSTITUTE (ELI AND EDYTHE L BROAD INSTITUTE OF MIT AND HARVARD)
415 MAIN STREET	CAMBRIDGE	MA	02142	263428781	501(C)(3)	$69,420	$0	RESEARCH
NATIONWIDE CHILDREN'S HOSPITAL FOUNDATION
700 CHILDRENS DRIVE	COLUMBUS	OH	43205	311036370	501(C)(3)	$8,000	$0	RESEARCH
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL
700 CHILDRENS DRIVE	COLUMBUS	OH	43205	316056230	501(C)(3)	$58,496	$0	RESEARCH
THE BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS
28395 NETWORK PLACE	CHICAGO	IL	606731283	376000511	501(C)(3)	$123,266	$0	RESEARCH
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 S STATE STREET 5TH FLOOR	ANN ARBOR	MI	481091274	386006309	501(C)(3)	$49,869	$0	RESEARCH
REGENTS OF THE UNIVERSITY OF MINNESOTA
464-3 MCNAMARA CTR 200 OAK ST SE	MINNEAPOLIS	MN	55455	416007513	501(C)(3)	$66,000	$0	RESEARCH
THE UNIVERSITY OF IOWA
2410 UCC 201 ST CLINTON	STIOWA CITY	IA	522424034	426004813	501(C)(3)	$298,052	$0	RESEARCH
WASHINGTON UNIVERSITY IN STLOUIS
700 ROSEDALE AVENUE CAMPUS BOX 1034	ST LOUIS	MO	631121408	430653611	501(C)(3)	$69,836	$0	RESEARCH
HUDSONALPHA INSTITUTE FOR BIOTECHNOLOGY
601 GENOME WAY	HUNTSVILLE	AL	35806	432059317	501(C)(3)	$99,167	$0	RESEARCH
UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC
3901 RAINBOW BOULEVARD MS 1039	KANSAS CITY	KS	66160	481108830	501(C)(3)	$505,832	$0	RESEARCH
SANFORD BURNHAM PREBYS MEDICAL DISCOVERY INSTITUTE
10901 NORTH TORREY PINES RD	LA JOLLA	CA	920371005	510197108	501(C)(3)	$70,000	$0	RESEARCH
JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE
3910 KESWICK ROAD 5TH FLOOR	BALTIMORE	MD	21211	520595110	501(C)(3)	$508,290	$0	RESEARCH
CHILDREN'S RESEARCH INSTITUTE (CNMC)
111 MICHIGAN AVENUE NW	WASHINGTON	DC	20010	521654453	501(C)(3)	$130,188	$0	RESEARCH
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DR SUITE 2200 CAMPUS	CHAPEL HILL	NC	275991350	566001393	501(C)(3)	$6,882	$0	RESEARCH	BOX 1350
ATRIUM HEALTH FOUNDATION
208 EAST BOULEVARD	CHARLOTTE	NC	28203	566060481	501(C)(3)	$9,025	$0	RESEARCH
EMORY UNIVERSITY
1599 CLIFTON ROAD NE 4TH FLOOR	ATLANTA	GA	30322	580566256	501(C)(3)	$151,098	$0	RESEARCH	MAILSTOP
MILLER SCHOOL OF MEDICINE OF THE UNIVERSITY OF MIAMI
PO BOX 405803	ATLANTA	GA	303845803	590624458	501(C)(3)	$457,145	$0	RESEARCH
UNIVERSITY OF FLORIDA
33 TIGERT HALL	GAINESVILLE	FL	32611	596002052	STATE OF FLORIDA	$255,000	$0	RESEARCH
BAYLOR COLLEGE OF MEDICINE
ONE BAYLOR PLAZA	HOUSTON	TX	77030	741613878		$169,996	$0	RESEARCH
SOCIETY FOR MUSCLE BIOLOGY
6120 EXECUTIVE BLVD SUITE 725	ROCKVILLE	MD	20852	753027179	501(C)(3)	$7,000	$0	RESEARCH
BOARD OF REGENTS - NSHE
1664 N VIRGINIA ST 204 ROSS HALL/MS	RENO	NV	895570325	886000024	STATE OF NV	$7,895	$0	RESEARCH	325
UNIVERSITY OF WASHINGTON
4333 BROOKLYN AVE NE BOX 359472	SEATTLE	WA	98195	916001537	STATE OF WA	$485,202	$0	RESEARCH
OREGON HEALTH & SCIENCE UNIVERSITY - OHSU
3181 SW SAM JACKSON PARK RD MAIL	PORTLAND	OR	97239	931176109	STATE OF OR	$49,996	$0	RESEARCH	CODE L106OPAM
THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY
485 BROADWAY STREET UNIVERSITY HALL	REDWOOD CITY	CA	940633136	941156365	501(C)(3)	$39,716	$0	RESEARCH	THIRD FLOOR
DIGNITY HEALTH DBA ST JOSEPH'S HOSPITAL & MEDICAL CENTER
350 W THOMAS RD	PHOENIX	AZ	85013	941196203	501(C)(3)	$50,000	$0	RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA
1608 FOURTH STREET SUITE	BERKELEY	CA	947105940	946002123	501(C)(3)	$35,714	$0	RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA -OFFICE OF SPONSORED RESEARCH
490 ILLINOIS STREET 4TH FLOOR	SAN FRANCISCO	CA	94143	946036493	501(C)(3)	$100,000	$0	RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA -UNIVERSITY OF CALIFORNIA DAVIS
1850 RESEARCH PARK DRIVE SUITE 300	DAVIS	CA	95618	946036494	501(C)(3)	$168,539	$0	RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA (IRVINE)
228 ALDRICH	HALLIRVINE	CA	926971050	952226406	501(C)(3)	$216,113	$0	RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA-CONTRACT AND GRANT ADMINISTRATI
10889 WILSHIRE BOULEVARD SUITE 700	LOS ANGELES	CA	900951406	956006143	501(C)(3)	$197,660	$0	RESEARCH
MILLER SCHOOL OF MEDICINE
PO BOX 405803	ATLANTA	GA	303845803	590624458	501(C)(3)	$54,640	$0	RESEARCH
MYOGENE BIO LLC
7098 MIRATECH DR SUITE 120	SAN DIEGO	CA	92121	831507489		$8,323	$0	RESEARCH
UNIVERSITY OF PENNSYLVANIA SCHOOL OF MEDICINE
201 CHICAGO AVE	MINNEAPOLIS	MN	55415		STATE OF PA	$81,250	$0	RESEARCH
ADVENTHEALTH ORLANDO ATTN RESEARCH ACCOUNTING (#1591442)
601 E ROLLINS STREET BOX 37	ORLANDO	FL	328031248	590724459	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS
ANN & ROBERT H LURIE CHILDRENS HOSPITAL OF CHICAGO ATTN
KEVIN BRADEN 225 E CHICAGO BOX 4	CHICAGO	IL	60611	362170833	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
ARKANSAS CHILDREN'S HOSPITAL
1 CHILDRENS WAY	LITTLE ROCK	AR	72202	710236857	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
ASCENSION SETON ATTN JENN DAVIS
4900 MUELLER BLVD	AUSTIN	TX	78735	741109643	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
ATRIUM HEALTH FOUNDATION
208 EAST BOULEVARD	CHARLOTTE	NC	28203	593140335	501(C)(3)	$90,000	$0	MEDICAL DIAGNOSIS
ATRIUM HEALTH WFB OFFICE OF SPONSORED PROGRAMS
PO BOX 604096	CHARLOTTE	NC	282604096	223849199	501(C)(3)	$30,000	$0	RESEARCH
BAYCARE MEDICAL GROUP ATTN MATTHEW DURST
2985 DREW STREET MS 1027	CLEARWATER	FL	33759	593140335	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS
BAYLOR COLLEGE OF MEDICINE
PO BOX 30120 7	DALLAS	TX	753031207	741100555		$60,000	$0	MEDICAL DIAGNOSIS
BEAUMONT HEALTH SYSTEM
3535 WEST 13 MILE ROAD PEDIATRIC	ROYAL OAK	MI	48073	381459362	501(C)(3)	$25,000	$0	MOVR REGISTRY SUPPORT	ADMINISTRATION SUITE 709
BILLINGS CLINIC FOUNDATION
PO BOX 31031	BILLINGS	MT	591071031	810407289	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
BOARD OF TRUSTEES OF SOUTHERN ILLINOIS UNIVERSITY SIU SCHOOL OF MEDICINE
PO BOX 19616	SPRINGFIELD	IL	627949616	376005961	STATE OF IL	$10,000	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
BOSTON CHILDREN'S HOSPITAL BOSTON CHILDRENS HOSPITAL ATTN RESEARCH FINANC
PO BOX 414413	BOSTON	MA	022414413	042774441	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS
BRIGHAM AND WOMENS HOSPITAL RESEARCH BANK OF AMERICA NA
PO BOX 3149	BOSTON	MA	022413149	042312909	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS
CADENT MEDICAL COMMUNICATIONS LLC
200 VESEY STREET 40TH FL	NEW YORK	NY	10281	311736308		$57,275	$0	MEDICAL DIAGNOSIS
CALIFORNIA PACIFIC MEDICAL CENTER FOUNDATION
PO BOX 160045	SACRAMENTO	CA	95816	371119538	501(C)(3)	$80,025	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
CARLE FOUNDATION HOSPITAL
611 WEST	PARKURBANA	IL	618012512	371119538	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
CEDARS-SINAI MEDICAL CENTER OFFICE OF RESEARCH ADMINISTRATION
6500 WILSHIRE BLVD STE 1150	LOS ANGELES	CA	90048	951644600	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS AND RESEARCH
CENTRAL TEXAS NEUROLOGY CONSULTANTS
16040 PARK VALLEY DR B 100	ROUND ROCK	TX	78681	742710396	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
CHILDRENS CLINICS FOR REHABILITATIVE SERVICES
2600 NORTH WYATT DRIVE	TUCSON	AZ	85712	860667510	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
CHILDREN'S HEALTHCARE OF ATLANTA
PO BOX 101012	ATLANTA	GA	303921012	581710601	501(C)(3)	$35,000	$0	MEDICAL DIAGNOSIS
CHILDRENS HOSPITAL COLORADO MUSCLE CLINIC
13123 E 16TH AVENUE BOX 285	AURORA	CO	80045	840166760	501(C)(3)	$55,000	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
CHILDRENS HOSPITAL LOS ANGELES SPONSORED PROJECTS
4650 SUNSET BLVD MAILSTOP 97	LOS ANGELES	CA	90027	951690977	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
CHILDRENS HOSPITAL MEDICAL CENTER
3333 BURNET AVE	CINCINNATI	OH	452293039	310833963	501(C)(3)	$65,000	$0	MEDICAL DIAGNOSIS
CHILDREN'S HOSPITAL OF MICHIGAN RDM ASSOCIATES
7457 M E CAD BLVD SUITE 200	CLARKSTON	MI	48348	272845064	501(C)(3)	$15,000	$0	MEDICAL DIAGNOSIS
CHILDREN'S HOSPITAL OF ORANGE COUNTY ATTENTION KATHY KOLODGE DIRECTOR
1201 W LA VETA AVE	ORANGE	CA	928683874	952321786	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
CHILDREN'S HOSPITAL OF PHILADELPHIA DIVISION OF NEUROLOGY
3401 CIVIC CENTER BLVD	PHILADELPHIA	PA	19104	231352166	501(C)(3)	$75,000	$0	MEDICAL DIAGNOSIS
CHILDRENS HOSPITAL OF PITTSBURGH FOUNDATION
4401 PENN AVENUE CENTRAL PLANT	PITTSBURGH	PA	15224	251865744	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS	FLOOR 3
CHILDRENS HOSPITAL OF THE KINGS DAUGHTERS INC
601 CHILDRENS LANE	NORFOLK	VA	23507	540506321	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
CHILDRENS HOSPITAL
200 HENRY CLAY AVENUE	NEW ORLEANS	LA	70118	720467503	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
CHILDRENS NATIONAL MEDICAL CENTER
111 MICHIGAN AVENUE NW	WASHINGTON	DC	20010	521640403	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS
CLINICAL NEUROLOGY
PC 4221 S WESTERN SUITE 5010	OKLAHOMA CITY	OK	73109	412141136	501(C)(3)	$75,000	$0	MEDICAL DIAGNOSIS
INDIANA UNIVERSITY
1024 EAST 3RD STREET ROOM 132	BLOOMINGTON	IN	47405	356001673	501(C)(3)	$46,707	$0	MEDICAL DIAGNOSIS AND RESEARCH
CONNECTICUT CHILDREN'S MEDICAL CENTER ATTN OFFICE OF SPONSORED PROGRAMS
282 WASHINGTON STREET	HARTFORD	CT	061063322	060646755	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
COOK CHILDRENS MEDICAL CENTER RESEARCH ADMINISTRATION OFFICE
801 SEVENTH AVENUE	FORTWORTH	TX	76104	752051646	501(C)(3)	$25,000	$0	MOVR REGISTRY SUPPORT
COXHEALTH FOUNDATION
3525 S NATIONAL AVE SUITE 204	SPRINGFIELD	MO	65807	436810485	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
CURATORS OF THE UNIVERSITY OF MISSOURI
AR PO BOX 807012	KANSAS CITY	MO	641807012	436003859	STATE OF MO	$20,000	$0	MEDICAL DIAGNOSIS
DARTMOUTH-HITCHCOCK MEDICAL CENTER
ONE MEDICAL CENTER DRIVE	LEBANON	NH	03756	020222140	501(C)(3)	$15,000	$0	MEDICAL DIAGNOSIS
DENT NEUROLOGIC INSTITUTE
3980 SHERIDAN DRIVE 5TH FLOOR	AMHERST	NY	14226	161582336	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
DIGNITY HEALTH ST JOSEPHS HOSPITAL AZ
MISC A/R CASE FILE 57431	LOS ANGELES	CA	900748781	860096787	501(C)(3)	$60,000	$0	MEDICAL DIAGNOSIS
DRISCOLL CHILDREN'S HOSPITAL
3533 SOUTH ALAMEDA STREET C/O	CORPUS CHRISTI	TX	78411	742577746	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS	CYNTHIA CARDIEL
DUKE UNIVERSITY MEDICAL CENTER DUKE UNIVERSITY ACCOUNTS RECEIVABLE LOCKBOX
PO BOX 602651	CHARLOTTE	NC	282602651	562070036	501(C)(3)	$100,000	$0	RESEARCH
EMORY UNIVERSITY ATTN REID WILLINGHAM
12 EXECUTIVE PARK DR NE RM 433	ATLANTA	GA	30329	582030692	501(C)(3)	$100,000	$0	RESEARCH
GEISINGER CLINIC ATTN SHANNON WOOD
100 N ACADEMY AVE	DANVILLE	PA	178223057	236291113	501(C)(3)	$20,000	$0	MOVR REGISTRY SUPPORT
GILLETTE CHILDRENS SPECIALTY HEALTHCARE FINANCE 455110
200 EAST UNIVERSITY AVENUE	ST PAUL	MN	55101	363379150	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
GOOD SHEPHERD REHABILITATION HOSPITAL
850 SOUTH 5TH STREET	ALLENTOWN	PA	18103	231371947	501(C)(3)	$33,333	$0	MEDICAL DIAGNOSIS
HOSPITAL FOR SPECIAL CARE
2150 CORBIN AVENUE	NEW BRITAIN	CT	06053	060646766	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
IDAHO PHYSICAL MEDICINE AND REHABILITATION
P O BOX 1128 ATTN	IDAHO	ID	83701	820435241		$15,000	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
INDIANA UNIVERSITY HEALTH INC
IU HEALTH 2227 RELIABLE PARKWAY	CHICAGO	IL	606860022	351955872	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS
INSTITUTO REHABILITACION DEL CARIB
PO BOX 363792	SAN JUAN	PR	00936	583880529		$20,000	$0	MEDICAL DIAGNOSIS
JOHNS HOPKINS ALL CHILDREN'S HOSPITAL
601 5TH STREET SOUTH SUITE 302	ST PETERSBURG	FL	34655	590683252	501(C)(3)	$15,000	$0	MEDICAL DIAGNOSIS
JOHNS HOPKINS UNIVERSITY- CG JOHNS HOPKINS UNIVERSITY CENTRAL LOCKBOX
BANK OF AMERICA 12529 COLLECTIONS	CHICAGO	IL	60693	520595110	501(C)(3)	$200,000	$0	MEDICAL DIAGNOSIS	CENTER DRIVE
KUMC RESEARCH INSTITUTE INC
3901 RAINBOW BOULEVARD MS 1039	KANSAS CITY	KS	66160	481108830	501(C)(3)	$75,000	$0	RESEARCH
LOMA LINDA UNIVERSITY ATTN RESEARCH AFFAIRS FINANCIAL MANAGEMENT
24887 TAYLOR STREET SUITE 202	LOMA LINDA	CA	92350	951816009	501(C)(3)	$60,000	$0	MEDICAL DIAGNOSIS
LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER-NEW ORLEANS
1542 TULANE AVE ROOM 763A	NEW ORLEANS	LA	70112	726087770	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
LSUHSC-SHREVEPORT NEUROLOGY ATTN JESSICA COTE
1501 KINGS HWY ROOM 3-408 C	SHREVEPORT	LA	71103	720702002	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
MAINE MEDICAL CENTER 92 CAMPUS DRIVE ATTN MURIEL MICHAUD
2ND FLOOR SUITE	BSCARBOROUGH	ME	04074	010238552	501(C)(3)	$15,000	$0	MEDICAL DIAGNOSIS
MASSACHUSETTS GENERAL HOSPITAL- RESEARCH BANK OF AMERICA NA
PO BOX 414876	BOSTON	MA	022414876	042697983	501(C)(3)	$155,000	$0	MEDICAL DIAGNOSIS
MAYO CLINIC JACKSONVILLE
4500 SAN PABLO ROAD	JACKSONVILLE	FL	32224	593337028	501(C)(3)	$45,000	$0	RESEARCH
MAYO CLINIC MAYO CLINIC RESEARCH
PO BOX 860334	MINNEAPOLIS	MN	554860334	416011702	501(C)(3)	$30,000	$0	RESEARCH
MCV ASSOCIATED PHYSICIANS
1101 EAST MARSHALL STREET RM6-015	RICHMOND	VA	232980599	541581185	501(C)(3)	$40,000	$0	MEDICAL DIAGNOSIS	BOX 980599
MEDICAL COLLEGE OF WISCONSIN CONTROLLERS OFFICE
8701 WATERTOWN PLANK RD	MILWAUKEE	WI	53226	390806261	501(C)(3)	$27,500	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
MEDICAL UNIVERSITY OF SOUTH CAROLINA RESEARCH & SPONSORED PROGRAMS
19 HAGOOD AVENUE SUITE 606 MSC 808	CHARLESTON	SC	294258080	576000722	501(C)(3)	$20,000	$0	MOVR REGISTRY SUPPORT
MEDSTAR GEORGETOWN UNIVERSITY HOSPITAL NEUROLOGY DEPARTMENT ATTN RYAN DOU
3800 RESERVOIR RD NW 7TH FLOOR PHC	WASHINGTON	DC	20007	522218584	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS
METHODIST LE BONHEUR COMMUNITY OUTREACH ATTN GRANT ADMINSTRATOR
GARY COOK 600 JEFFERSON AVE	MEMPHIS	TN	38105	621251288	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
MICHIGAN STATE UNIVERSITY CONTRACT & GRANT ADMINISTRATION HANNAH ADMINISTR
426 AUDITORIUM ROAD ROOM 2 EAST	LANSING	MI	48824	386005984	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS
MONTEFIORE MEDICAL CENTER ATTN KRISTOPHER VON STEENBURG
555 S BROADWAY BLDG A 1ST FL RM	BRONX	NY	10467	131740114	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS	A1-R61
NEMOURS CHILDREN'S HOSPITAL
10140 CENTURION PARKWAY N	JACKSONVILLE	FL	32256	590634433	501(C)(3)	$35,000	$0	MEDICAL DIAGNOSIS
NEMOURS FOUNDATION
10140 CENTURION PARKWAY N ATTN	JACKSONVILLE	FL	32256	590634433	501(C)(3)	$65,000	$0	MEDICAL DIAGNOSIS	ACCOUNTING 3 EAST
NEUROLOGY LLPC
1919 S WHEELING AVENUE SUITE 707	TULSA	OK	74104	731502318		$25,000	$0	MEDICAL DIAGNOSIS
NEW YORK UNIVERSITY SCHOOL OF MEDICINE
PO BOX 415026	BOSTON	MA	022415026	135562308	STATE OF NY	$50,000	$0	MEDICAL DIAGNOSIS
NORTHWESTERN MEDICAL GROUP DEPARTMENT OF NEUROLOGY
259 E ERIE ST SUITE 1900	CHICAGO	IL	60611	363097297	501(C)(3)	$37,500	$0	MEDICAL DIAGNOSIS
NORTON HEALTHCARE ACCOUNTING ATTN CASH AUDIT MARY BETH ZINIUS
224 E BROADWAY 5TH FLOOR	LOUISVILLE	KY	402021959	611276316	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
OLIVE VIEW-UCLA EDUCATION & RESEARCH INSTITUTE
14445 OLIVE VIEW DRIVE RESEARCH	SYLMAR	CA	913421495	952249539	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS	ADMINISTRATION OFFICE
OREGON HEALTH AND SCIENCE UNIVERSITY
0690 SW BANCROFT ST L106O PAM	PORTLAND	OR	97239	931176109	STATE OF OR	$25,000	$0	MEDICAL DIAGNOSIS
OSF MULTI-SPECIALTY GROUP DBA ILLINOIS NEUROLOGICAL INSTITUTE INSTITUTE
800 NE GLEN OAK AVE	PEORIA	IL	61603	383852646	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
PHOENIX CHILDRENS HOSPITAL
1919 EAST THOMAS RD	PHOENIX	AZ	85016	860422559	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
PONCE HEALTH SCIENCES UNIVERSITYWELLNESS CENTER
PO BOX 7004	PONCE	PR	007327004	660379122	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
PRISMA HEALTH GRANTS AND TRIALS
PO BOX 748580	ATLANTA	GA	303748580	811723202		$40,000	$0	MEDICAL DIAGNOSIS
PROVIDENCE MEDICAL GROUP (DBA)
101 W 8TH AVE	SPOKANE	WA	99204	510216586	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
RADY CHILDRENS HOSPITAL FOUNDATION - SAN DIEGO
3020 CHILDRENS WAY MC 5005	SAN DIEGO	CA	921234282	330170626	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS
REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS
4860 Y STREET SUITE 3850	SACRAMENTO	CA	95817	946036494	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS AND RESEARCH
REGENTS OF THE UNIVERSITY OF MINNESOTA
NW 5957 PO BOX 1450	MINNEAPOLIS	MN	554855957	416007513	501(C)(3)	$95,000	$0	MEDICAL DIAGNOSIS AND RESEARCH
RHODE ISLAND HOSPITAL RESEARCH ADMINISTRATION GRANTS AND CONTRACTS
PO BOX H	PROVIDENCE	RI	02901	050468736	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
RUSH UNIVERSITY MEDICAL CENTER
1700 W VAN BUREN STREET SUITE 250	CHICAGO	IL	60612	362174823	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
RUTGERS THE STATE UNIVERSITY OF NEW JERSEY-RBHS-NJMS
33 KNIGHTSBRIDGE ROAD 2ND FLOOR	PISCATAWAY	NJ	08854	462354111	501(C)(3)	$50,000	$0	RESEARCH	EAST
SANFORD CHILDREN'S SPECIALTY CLINIC
1305 W 18TH STREET ROUTE 2145	SIOUX FALLS	SD	57105	460227855	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
SANFORD MEDICAL CENTER FARGO ATTN MAXINE BRINKMAN
415 NORTH 3RD AVENUE	FARGO	ND	58102	450226909	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
SARASOTA MEMORIAL HOSPITAL
1700 TAMIAMI TRAIL ATTN PAT BURKE	SARASOTA	FL	34239	596012500	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
SEATTLE CHILDRENS HOSPITAL ATTN JAMES HAWKINS
4300 ROOSEVELT WAY NE M/S RC 507	SEATTLE	WA	98105	910564748	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
SEMMES-MURPHEY CLINIC ATTN BRENT PATTERSON
PO BOX 1000 DEPT 575	MEMPHIS	TN	38148	911770750	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
SHRINERS HOSPITAL FOR CHILDREN PORTLAND
3101 SW SAM JACKSON PARK RD	PORTLAND	OR	97239	362193608	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
SHRINERS HOSPITALS FOR CHILDREN CHICAGO
2211 NORTH OAK PARK AVE	CHICAGO	IL	60707	362193608	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
SPECTRUM HEALTH FOUNDATION
100 MICHIGAN NE MC 004	GRAND RAPIDS	MI	49503	382752328	501(C)(3)	$15,000	$0	MEDICAL DIAGNOSIS
ST CHARLES HOSPITAL FOUNDATION
200 BELLE TERRE ROAD	PORT JEFFERSON	NY	11777	412076312	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
ST LUKES HEALTH SYSTEM
PO BOX 1663	IDAHO	ID	837011663	452716222	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
ST PETERS HOSPITAL ST PETERS HEALTH PARTNERS CENTER FOR PHILANTHROPY
310 S MANNING BLVD	ALBANY	NY	12208	222262982	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
ST VINCENT HOSPITAL DBA PREVEA HEALTH PREVEA HEALTH
2710 EXECUTIVE DRIVE	GREEN BAY	WI	54304	390817529	501(C)(3)	$10,000	$0	MOVR REGISTRY SUPPORT
STANFORD CHILD HEALTH RESEARCH INSTITUTE
4100 BOHANNON ROAD MAIL CODE 5894	MENLO PARK	CA	94025	770003859	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
STANFORD CHILD HEALTH RESEARCH INSTITUTE
4100 BOHANNON RD MAIL CODE 5894	MENLO PARK	CA	94025	911770752	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
TEMPLE UNIVERSITY TEMPLE UNIVERSITY RESEARCH ACCOUNTING SERVICES
PO BOX 22432	NEW YORK	NY	100872432	231365971	501(C)(3)	$50,000	$0	MOVR REGISTRY SUPPORT
TEXAS NEUROLOGY PA ATTN DARAGH HEITZMAN
MD 6080 NORTH CENTRAL EXPRESSWAY	DALLAS	TX	75206	752654757	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT	SUITE 100
FLORIDA ELKS YOUTH CAMP INC
24175 SE HIGHWAY 450	UMATILLA	FL	32784	593415374	501(C)(3)	$36,743	$0	MEDICAL DIAGNOSIS AND RESEARCH
HAPPINESS IS CAMPING INC
62 SUNSET LAKE RD	HARDWICK	NJ	07825	132556242	501(C)(3)	$36,525	$0	MEDICAL DIAGNOSIS AND RESEARCH
VICTORY JUNCTION GANG CAMP
4500 ADAMS WAY	RANDLEMAN	NC	27317	562215292	501(C)(3)	$30,627	$0	MEDICAL DIAGNOSIS AND RESEARCH
WHISPERING HOPE RANCH FOUNDATIONS
9045 E PIMA CENTER PKWY	SCOTTSDALE	AZ	85258	860887696	501(C)(3)	$32,128	$0	MEDICAL DIAGNOSIS AND RESEARCH
THE BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM
UW-MADISON GAR ACCOUNT OFFICE FOR	MILWAUKEE	WI	532780538	396006492	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS	RESEARCH SPONSORED PROGRAMS DRAWER
THE HOSPITAL FOR SPECIAL SURGERY
535 EAST 70TH STREET	NEW YORK	NY	100214872	131624135	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
THE METHODIST HOSPITAL FOUNDATION METHODIST NEUROLOGICAL INSTITUTE
6560 FANNIN STREET 802	HOUSTON	TX	77030	571201170	501(C)(3)	$100,000	$0	MEDICAL DIAGNOSIS
THE METROHEALTH SYSTEM
PO BOX 73308	CLEVELAND	OH	44193	346004382	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS
THE OHIO STATE UNIVERSITY OFFICE OF SPONSORED PROGRAMS ATTN RICHARD BRADB
1960 KENNY ROAD 4TH FLOOR	COLUMBUS	OH	43210	316025986	501(C)(3)	$100,000	$0	MOVR REGISTRY SUPPORT
THE PENNSYLVANIA STATE UNIVERSITY COLLEGE OF MEDICINE ATTN CONTROLLERS OF
MAIL CODE H157 500 UNIVERSITY DRIVE	HERSHEY	PA	17033	246000376	STATE OF PA	$35,000	$0	RESEARCH
THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGINIA
PO BOX 400195	CHARLOTTESVILLE	VA	229044195	546001796	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA (IRVINE)
120 THEORY SUITE 200	IRVINE	CA	926971050	952226406	501(C)(3)	$75,000	$0	RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES
1125 MURPHY HALL 405 HILGARD AVENUE	LOS ANGELES	CA	900959000	956006143	501(C)(3)	$125,000	$0	RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DRIVE DEPT 0934 USCD	LA JOLLA	CA	920930934	956006144	501(C)(3)	$30,000	$0	RESEARCH	FUND 8987EA
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
PO BOX 748872	LOS ANGELES	CA	900744872	946036493	501(C)(3)	$90,000	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
THE REGENTS OF THE UNIVERSITY OF MICHIGAN CO BNY MELLON
BOX 223131 PAF 17-PAF00659	PITTSBURGH	PA	152512131	386006309	501(C)(3)	$50,000	$0	RESEARCH
THE RESEARCH FOUNDATION ON BEHALF OF SUNY ATTN GINA MCMAHON
CAB209 750 EAST ADAMS STREET	SYRACUSE	NY	13210	141368361	501(C)(3)	$30,000	$0	RESEARCH
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL DEPT 781653
PO BOX 78000	DETROIT	MI	482781653	316056230	501(C)(3)	$50,000	$0	RESEARCH
THE TOLEDO HOSPITAL DBA PROMEDICA TOLEDO CHILDRENS HOSPITAL
100 MADISON AVENUE	TOLEDO	OH	43604	344428256	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
THE TRUSTEES OF COLUMBIA UNIVERSITY SPONSORED PROJECTS FINANCE
PO BOX 29789 GENERAL POST OFFICE	NEW YORK	NY	100879789	135598093	501(C)(3)	$175,000	$0	MEDICAL DIAGNOSIS
THE TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA REFPD #10058870
PO BOX 785541	PHILADELPHIA	PA	191785541	231352685	501(C)(3)	$50,000	$0	RESEARCH
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1600 7TH AVENUE S LOWDER 608 ATTN	BIRMINGHAM	AL	35233	636005396	STATE OF AL	$30,000	$0	MEDICAL DIAGNOSIS	TRINA IRBY
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
PO BOX 402420	ATLANTA	GA	303842420	566001393	501(C)(3)	$35,000	$0	RESEARCH
TRINITY HEALTH DBA MERCY HEALTH SAINT MARYS ATTN SUSAN HOPPOUGH
200 JEFFERSON SE	GRAND RAPIDS	MI	49503	272491974	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY HOSPITAL BROOOKLYN SUNY DOWNSTATE MED CTR
450 CLARKSON AVENUE BOX 35	BROOKLYN	NY	11203	146013200	501(C)(3)	$70,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY NEUROLOGY INC ATTN TERRY KIEL
77 GOODELL ST SUITE 310	BUFFALO	NY	14203	161359213	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF ALABAMA AT BIRMINGHAM ATTN RANDALL FIELDS
1720 7TH AVENUE SOUTH SC 460A	BIRMINGHAM	AL	35233	636005396	STATE OF AL	$30,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF ARKANSAS FOR MEDICAL SCIENCES
4301 WEST MARKHAM STREET 812	LITTLE ROCK	AR	72205	716046242	STATE OF AR	$30,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF CINCINNATI PHYSICIANS
260 STETSON STREET SUITE 2300 ML	CINCINNATI	OH	45219	273850988	501(C)(3)	$35,000	$0	MEDICAL DIAGNOSIS	0525
UNIVERSITY OF COLORADO DENVER GRANTS AND CONTRACTS
170801-SR PO BOX 910238	DENVER	CO	802910238	846000555	STATE OF CO	$100,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF FLORIDA ATTN CONTRACTS & GRANTS- REVENUE TEAM
33 TIGERT HALL PO BOX 113001	GAINESVILLE	FL	32611	596002052	STATE OF FLORIDA	$80,000	$0	RESEARCH
UNIVERSITY OF IOWA GRANT ACCOUNTING OFFICE
118 S CLINTON STREET	IOWA CITY	IA	52242	426004813	501(C)(3)	$100,000	$0	MOVR REGISTRY SUPPORT
UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC
300 E MARKET STREET SUITE 300	LOUISVILLE	KY	402021959	611029626	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL GRANT AWARD 503709
55 LAKE AVENUE	NORTH WORCESTER	MA	016550002	590624458	501(C)(3)	$30,000	$0	RESEARCH
UNIVERSITY OF MIAMI OFFICE OF RESEARCH ADMINISTRATION
PO BOX 405803	ATLANTA	GA	303845803	590624458	501(C)(3)	$125,000	$0	RESEARCH
UNIVERSITY OF MISSISSIPPI MEDICAL CENTER ATTN SUSAN CAMPBELL
POST-AWARD 2500 NORTH STATE STREET	JACKSON	MS	392164505	646008520	STATE OF MS	$20,000	$0	MEDICAL DIAGNOSIS RESEARCH AND REGISTRY SUPPORT
UNIVERSITY OF NEBRASKA MEDICAL CENTER
988435 NEBRASKA MEDICAL CENTER	OMAHA	NE	681988435	470049123	STATE OF NE	$35,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF NEW MEXICO HSC
1 UNIVERSITY OF NEW MEXICO MSC09	ALBUQUERQUE	NM	871310001	856000642	STATE OF NM	$35,000	$0	MEDICAL DIAGNOSIS	5225
UNIVERSITY OF PITTSBURGH DEPARTMENT OF NEUROLOGY S547 BIOMEDICAL SCIENCE T
200 LATHROP STREET	PITTSBURGH	PA	15261	232919472	STATE OF PA	$50,000	$0	RESEARCH
UNIVERSITY OF PUERTO RICO MEDICAL SCIENCES ATTN DR JOSE CARLO
SUITE 402 CLINICA LAS AMERICAS 400	SAN JUAN	PR	009182162	660433762	501(C)(3)	$40,000	$0	MEDICAL DIAGNOSIS	FD ROOSEVELT AVE
UNIVERSITY OF ROCHESTER ATTN TRACY FORRESTER
601 ELMWOOD AVENUE BOX 673	ROCHESTER	NY	146428673	160743209	501(C)(3)	$100,000	$0	RESEARCH
UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO
7703 FLOYD CURL DRIVE MSC 7828	SAN ANTONIO	TX	782293900	741586031	STATE OF TX	$75,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF UTAH ATTN PEDIATRIC NEUROLOGY
PO BOX 581374	SALT LAKE CITY	UT	84158	876000525	STATE OF UT	$85,000	$0	MEDICAL DIAGNOSIS AND RESEARCH
UNIVERSITY OF VERMONT MEDICAL CENTER GRANTS MANAGEMENT FINANCE
PO BOX 1902	BURLINGTON	VT	054011902	030219309	STATE OF VT	$20,000	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
UNIVERSITY OF WASHINGTON MEDICAL CENTER
BOX 356143 1959 NE PACIFIC	SEATTLE	WA	981956143	916001537	STATE OF WA	$50,000	$0	MEDICAL DIAGNOSIS
UT SOUTHWESTERN MEDICAL CENTER ATTN SUSAN IANNACCONE AND JENNIFER KNIGHT
PO BOX 841765 1950 N STEMMONS	DALLAS	TX	75207	756002868	STATE OF TX	$190,000	$0	MEDICAL DIAGNOSIS	FREEWAY STE 5010
UW HOSPITAL & CLINICS AUTHORITY
DRAWER 853	MILWAUKEE	WI	53278	391835630	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
VALLEY CHILDRENS HOSPITAL
9300 VALLEY CHILDRENS PLACE	MADERA	CA	93636	941294954	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
VANDERBILT UNIVERSITY MEDICAL CENTER DEPT OF FINANCE ATTN STEVE TODD
PO BOX 121236	DALLAS	TX	753121236	352528741	501(C)(3)	$125,000	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
WASHINGTON UNIVERSITY IN ST LOUIS
700 ROSEDALE AVE CAMPUS BOX 1034	ST LOUIS	MO	63112	430653611	501(C)(3)	$125,000	$0	RESEARCH
WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION OFFICE OF SPONSORED PROGRAMS
886 CHESTNUT RIDGE ROAD	MORGANTOWN	WV	26506	550665758	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS
YALE UNIVERSITY OFFICE OF SPONSORED PROJECTS
PO BOX 1873	NEW HAVEN	CT	065081873	060646973	501(C)(3)	$35,000	$0	MEDICAL DIAGNOSIS AND RESEARCH

Field	Value	IRS element (for citing)
Total501c3 Org	196	Total501c3OrgCnt
Total Other Org	9	TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES.	ExplanationTxt

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Compensation Committee	Yes (X)	CompensationCommitteeInd
Independent Consultant	Yes (X)	IndependentConsultantInd
Written Employment Contract	Yes (X)	WrittenEmploymentContractInd
Compensation Survey	Yes (X)	CompensationSurveyInd
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	0	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	0	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	0	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	0	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	0	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	0	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	0	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	0	AnyNonFixedPaymentsInd
Initial Contract Exception	0	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (8 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Bonus Related OrganizationsBonusRelatedOrganizationsAmt	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
DONALD WOOD
PRESIDENT & CEO	$490,624	$0	$0	$0	$0	$0	$0	$0	$33,322	$0	$523,946	$0	$0	$0
MICHAEL KENNEDY
TREASURER & CFO	$334,979	$0	$0	$0	$0	$0	$9,900	$0	$34,380	$0	$379,259	$0	$0	$0
HENRY LANMAN
SEC. & CHIEF LEGAL OFFICER	$357,404	$0	$0	$0	$0	$0	$9,900	$0	$594	$0	$367,898	$0	$0	$0
SHARON HESTERLEE
CHIEF RESEARCH OFFICER	$237,040	$0	$0	$0	$0	$0	$7,452	$0	$32,939	$0	$277,431	$0	$0	$0
PERIPEDES GONDIM
VP, HUMAN RESOURCES & VOLUNTEERS	$223,723	$0	$0	$0	$0	$0	$6,565	$0	$571	$0	$230,859	$0	$0	$0
NORA CAPOCCI
VP, HEALTHCARE SERVICES	$198,041	$0	$0	$0	$0	$0	$4,402	$0	$2,175	$0	$204,618	$0	$0	$0
MONICA PAPPAS
VP, TECHNOLOGY	$195,958	$0	$0	$0	$0	$0	$4,520	$0	$571	$0	$201,049	$0	$0	$0
ANGELA LEK
VP, RESEARCH	$194,037	$0	$0	$0	$0	$0	$5,821	$0	$571	$0	$200,429	$0	$0	$0

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	709	ContributionCnt
Noncash Contributions Rpt F990	$71,822	NoncashContributionsRptF990Amt
Method Of Determining Revenues	FMV	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Any Property That Must Be Held	0	AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts	0	ReviewProcessUnusualNCGiftsInd
Third Parties Used	0	ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, COLUMN (B):	FormAndLineReferenceDesc
Explanation	COLUMN B REPRESENTS NUMBER OF CONTRIBUTIONS.	ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (7 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
FORM 990, PART I, LINE 1	MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS THE #1 VOLUNTARY HEALTH ORGANIZATION IN THE UNITED STATES FOR PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. FOR OVER 70 YEARS, MDA HAS LED THE WAY IN ACCELERATING RESEARCH, ADVANCING CARE, AND ADVOCATING FOR THE SUPPORT OF OUR FAMILIES. MDA'S MISSION IS TO EMPOWER THE PEOPLE WE SERVE TO LIVE LONGER, MORE INDEPENDENT LIVES.
FORM 990, PART VI, SECTION B, LINE 11B	ALL BOARD MEMBERS WERE PROVIDED A COPY OF THE FEDERAL FORM 990 BEFORE FILING WITH THE IRS.
FORM 990, PART VI, SECTION B, LINE 12C	THE CONFLICT OF INTEREST POLICY IS MONITORED BY THE HUMAN RESOURCES DEPARTMENT IN CONJUNCTION WITH LEGAL. BOARD MEMBERS ARE REQUIRED TO SIGN AN CONFLICT OF INTEREST DISCLOSURE ANNUALLY. WHEN A CONFLICT OF INTEREST ARISES, THE PERSON WITH THE CONFLICT IS REQUIRED TO RECUSE HIS/HERSELF FROM THE MATTER AND DISCUSSION INVOLVED.
FORM 990, PART VI, SECTION B, LINE 15	MDA HAS A COMPENSATION COMMITTEE OF THE GOVERNING BOARD THAT REVIEWS THE CEO AND EXECUTIVE TEAM COMPENSATION. A COMPENSATION STUDY IS COMPLETED BY AN INDEPENDENT CONSULTANT AND REVIEWED WITH THE COMPENSATION COMMITTEE. ANNUAL REVIEWS ARE COMPLETED AND CONTRACTS ARE AMENDED AS THEY EXPIRE.
FORM 990, PART VI, SECTION C, LINE 19	GOVERNING DOCUMENTS AND THE CONFLICT OF INTEREST POLICIES ARE INTERNAL DOCUMENTS. COPIES OF THE AUDITED FINANCIAL STATEMENTS ARE AVAILABLE ON MDA'S WEBSITE.
FORM 990, PART VIII, LINE 1E:	TAX YEAR 2022 TOTAL CONTRIBUTIONS INCLUDED AMOUNTS RELATED TO FORGIVENESS OF PPP LOAN, IN ACCORDANCE WITH THE IRS 990 INSTRUCTIONS, $2,000,000. NOT INCLUDING THESE AMOUNTS THE TOTAL CONTRIBUTIONS WERE LARGELY FLAT GOING FROM $57,144,929 TO $56,761,618.
FORM 990, PART XI, LINE 9:	CHANGE IN UNRECOGNIZED BENEFIT PLAN COSTS -947,962.