EHE FOUNDATION: Form 990, tax year 2023
View the entire original 990 at ProPublica ↗
- Organization
- EHE FOUNDATION (EIN 47-3238441)
- Tax period
- 2023-01-01 to 2023-12-31
- Filed
- 2024-05-14
- IRS object ID
- 202411359349304156
- Schema version
- 2023v5.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2024-05-14T11:07:30-04:00 | ReturnTs |
| Tax Period End | 2023-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 203746583 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | TAYLOR ROTH AND COMPANY | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 800 GRANT ST STE 205 | AddressLine1Txt |
| City | DENVER | CityNm |
| State Abbreviation | CO | StateAbbreviationCd |
| ZIP | 802032944 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2023-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 473238441 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | THE EHE FOUNDATION | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | EHEF | BusinessNameControlTxt |
| Phone | 9062806432 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1561 HOPI COURT | AddressLine1Txt |
| City | HOBART | CityNm |
| State Abbreviation | WI | StateAbbreviationCd |
| ZIP | 54313 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | SARAH BRIGHT | PersonNm |
| Person Title | TREASURER | PersonTitleTxt |
| Phone | 9062806432 | PhoneNum |
| Signature | 2024-05-13 | SignatureDt |
| Discuss With Paid Preparer | Yes (true) | DiscussWithPaidPreparerInd |
Signing Officer SigningOfficerGrp
Person Full Name PersonFullName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person First | SARAH | PersonFirstNm |
| Person Last | BRIGHT | PersonLastNm |
| Field | Value | IRS element (for citing) |
|---|---|---|
| SSN | 999009999 | SSN |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IRS Responsible Prty Info Curr | false | IRSResponsiblePrtyInfoCurrInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | KEN ROTH | PreparerPersonNm |
| PTIN | P01389203 | PTIN |
| Phone | 3038308109 | PhoneNum |
| Preparation | 2024-05-14 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2023 | TaxYr |
| Build TS | 2023-04-26 12:10:37Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | JULIA WAHL | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1561 HOPI COURT | AddressLine1Txt |
| City | HOBART | CityNm |
| State Abbreviation | WI | StateAbbreviationCd |
| ZIP | 54313 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $414,593 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | FIGHTEHE.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 2015 | FormationYr |
| Legal Domicile State | AK | LegalDomicileStateCd |
| Activity Or Mission | TO FIND TREATMENTS AND A CURE FOR THE RARE CANCER, EPITHELIOID HEMANGIOENDOTHELIOMA (EHE), BY ADVANCING RESEARCH AND DRIVING COLLABORATION BETWEEN PATIENTS, RESEARCHERS, AND CLINICIANS. | ActivityOrMissionDesc |
| Voting Members Governing Body | 6 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 5 | VotingMembersIndependentCnt |
| Total Employee | 2 | TotalEmployeeCnt |
| Total Volunteers | 12 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| PY Contributions Grants | $870,093 | PYContributionsGrantsAmt |
| CY Contributions Grants | $359,411 | CYContributionsGrantsAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | $22,402 | PYInvestmentIncomeAmt |
| CY Investment Income | $55,182 | CYInvestmentIncomeAmt |
| PY Other Revenue | $1,333 | PYOtherRevenueAmt |
| CY Other Revenue | $0 | CYOtherRevenueAmt |
| PY Total Revenue | $893,828 | PYTotalRevenueAmt |
| CY Total Revenue | $414,593 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $580,402 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $217,320 | CYGrantsAndSimilarPaidAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| CY Salaries Comp Emp Bnft Paid | $18,783 | CYSalariesCompEmpBnftPaidAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $35,256 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $361,899 | PYOtherExpensesAmt |
| CY Other Expenses | $326,246 | CYOtherExpensesAmt |
| PY Total Expenses | $942,301 | PYTotalExpensesAmt |
| CY Total Expenses | $562,349 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | -$48,473 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$147,756 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $2,099,078 | TotalAssetsBOYAmt |
| Total Assets EOY | $1,902,421 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $287,882 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $176,830 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $1,811,196 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $1,725,591 | NetAssetsOrFundBalancesEOYAmt |
| Mission | TO FIND TREATMENTS AND A CURE FOR THE RARE CANCER, EPITHELIOID HEMANGIOENDOTHELIOMA (EHE), BY ADVANCING RESEARCH AND DRIVING COLLABORATION BETWEEN PATIENTS, RESEARCHERS, AND CLINICIANS. | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $437,128 | ExpenseAmt |
| Grant | $217,320 | GrantAmt |
| Desc | RESEARCH: THE EHE FOUNDATION FUNDED RESEARCH PROJECTS IN BASIC AND TRANSLATIONAL SCIENCE AIMED TO ADVANCE KNOWLEDGE IN THE DISEASE, ENABLING THE IDENTIFICATION OF EFFECTIVE TREATMENTS FOR EHE. IN ADDITION TO FUNDING EXTERNAL RESEARCH, THE FOUNDATION FUNDED AND ADVANCED PATIENT-LED RESEARCH INITIATIVES INCLUDING BIOBANKING OF EHE BIOSPECIMENS, DEVELPMENT OF A GLOBAL PATIENT REGISTRY, AND EXPANDING EHE CELL-LINE DEVELOPMENT. THE FOUNDATION CONTINUED ITS GROWTH OF A GLOBAL PATIENT-LED RESEARCH NETWORK, INCLUDING CLINICIAN-SCIENTISTS, RESEARCHERS, AND ADVOCATES IN A SCIENTIFIC SYMPOSIUM. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $48,251 | ExpenseAmt |
| Desc | PATIENT SERVICES: THE EHE FOUNDATION HELPED PATIENTS AND THEIR FAMILIES FIND ACCURATE INFORMATION ABOUT EHE, INCLUDING PHYSICIANS EXPERIENCED IN TREATING EHE, AND TREATMENT OPTIONS BY DEVELOPING AND PUBLISHING EDUCATIONAL CONTENT, HOSTING EDUCATIONAL CONFERENCES, AND PROVIDING ONLINE AND 1:1 PEER SUPPORT. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $485,379 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (true) | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | false | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | false | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | false | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | false | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | false | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | false | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (true) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | false | ForeignOfficeInd |
| Foreign Activities | Yes (true) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (true) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | false | ProfessionalFundraisingInd |
| Fundraising Activities | false | FundraisingActivitiesInd |
| Gaming Activities | false | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | Yes (true) | GrantsToOrganizationsInd |
| Grants To Individuals | false | GrantsToIndividualsInd |
| Schedule J Required | false | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | Yes (true) | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | Yes (true) | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | false | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | false | DisregardedEntityInd |
| Related Entity | false | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 5 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (true) | BackupWthldComplianceInd |
| Employee | 2 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (true) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | false | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | false | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | false | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | false | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | false | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | false | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 6 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 5 | IndependentVotingMemberCnt |
| Family Or Business Rln | false | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (true) | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | false | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (true) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (true) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | false | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (true) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (true) | DocumentRetentionPolicyInd |
| Compensation Process CEO | false | CompensationProcessCEOInd |
| Compensation Process Other | false | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | JULIE WAHL | PersonNm |
| Phone | 9062806432 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1561 HOPI COURT | AddressLine1Txt |
| City | HOBART | CityNm |
| State Abbreviation | WI | StateAbbreviationCd |
| ZIP | 54313 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (9 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd |
|---|---|---|---|---|---|---|
| TAMMY SILVERTHORNE | ||||||
| EXECUTIVE DI | 40.00 | Yes (X) | $11,342 | $0 | $1,946 | |
| DENISE ROBINSON | ||||||
| BOARD MEM./R | 40.00 | Yes (X) | $70,400 | $0 | $0 | Yes (X) |
| JULIA WAHL | ||||||
| BOARD VP/FIN | 45.00 | Yes (X) | $41,100 | $0 | $0 | Yes (X) |
| JENNI KOVACH | ||||||
| PRESIDENT | 7.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| SARAH BRIGHT | ||||||
| TREASURER | 3.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| LEEANN CONNER | ||||||
| BOARD MEMBER | 25.00 | $22,500 | $0 | $0 | Yes (X) | |
| AMY BAGHDADI | ||||||
| BOARD MEMBER | 3.00 | $0 | $0 | $0 | Yes (X) | |
| JOHN MCFADDEN | ||||||
| BOARD MEMBER | 3.00 | $0 | $0 | $0 | Yes (X) | |
| DAVID CASIMIR | ||||||
| BOARD MEMBER | 3.00 | $0 | $0 | $0 | Yes (X) | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $145,342 | TotalReportableCompFromOrgAmt |
| Total Other Compensation | $1,946 | TotalOtherCompensationAmt |
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | false | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
| All Other Contributions | $359,411 | AllOtherContributionsAmt |
| Total Contributions | $359,411 | TotalContributionsAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $55,182 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $1,376 | RelatedOrExemptFuncIncomeAmt |
| Exclusion | $53,806 | ExclusionAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $414,593 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $1,376 | RelatedOrExemptFuncIncomeAmt |
| Exclusion | $53,806 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part IX | Yes (X) | InfoInScheduleOPartIXInd |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $114,728 | TotalAmt |
| Program Services | $114,728 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,000 | TotalAmt |
| Program Services | $2,000 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $100,592 | TotalAmt |
| Program Services | $100,592 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $13,288 | TotalAmt |
| Program Services | $10,897 | ProgramServicesAmt |
| Management And General | $1,063 | ManagementAndGeneralAmt |
| Fundraising | $1,328 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,412 | TotalAmt |
| Program Services | $2,798 | ProgramServicesAmt |
| Management And General | $273 | ManagementAndGeneralAmt |
| Fundraising | $341 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $136 | TotalAmt |
| Program Services | $111 | ProgramServicesAmt |
| Management And General | $12 | ManagementAndGeneralAmt |
| Fundraising | $13 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,947 | TotalAmt |
| Program Services | $1,597 | ProgramServicesAmt |
| Management And General | $155 | ManagementAndGeneralAmt |
| Fundraising | $195 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $8,856 | TotalAmt |
| Management And General | $8,856 | ManagementAndGeneralAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $6,955 | TotalAmt |
| Management And General | $6,955 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $275,942 | TotalAmt |
| Program Services | $223,573 | ProgramServicesAmt |
| Management And General | $20,635 | ManagementAndGeneralAmt |
| Fundraising | $31,734 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $237 | TotalAmt |
| Program Services | $194 | ProgramServicesAmt |
| Fundraising | $43 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $20,501 | TotalAmt |
| Program Services | $17,550 | ProgramServicesAmt |
| Management And General | $1,366 | ManagementAndGeneralAmt |
| Fundraising | $1,585 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $11,594 | TotalAmt |
| Program Services | $9,507 | ProgramServicesAmt |
| Management And General | $2,087 | ManagementAndGeneralAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,496 | TotalAmt |
| Program Services | $1,197 | ProgramServicesAmt |
| Management And General | $299 | ManagementAndGeneralAmt |
Other Expenses OtherExpensesGrp (2 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| DUES & SUBSCRIPTIONS | $500 | $500 | ||
| ALL OTHER | $165 | $135 | $13 | $17 |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $562,349 | TotalAmt |
| Program Services | $485,379 | ProgramServicesAmt |
| Management And General | $41,714 | ManagementAndGeneralAmt |
| Fundraising | $35,256 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $328,997 | BOYAmt |
| EOY | $105,814 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $766,143 | BOYAmt |
| EOY | $865,160 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $125,000 | BOYAmt |
| EOY | $50,000 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $116 | BOYAmt |
| EOY | $28,579 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $878,822 | BOYAmt |
| EOY | $852,868 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,099,078 | BOYAmt |
| EOY | $1,902,421 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $12,882 | BOYAmt |
| EOY | $76,830 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $275,000 | BOYAmt |
| EOY | $100,000 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $287,882 | BOYAmt |
| EOY | $176,830 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,489,096 | BOYAmt |
| EOY | $1,478,491 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $322,100 | BOYAmt |
| EOY | $247,100 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,811,196 | BOYAmt |
| EOY | $1,725,591 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,099,078 | BOYAmt |
| EOY | $1,902,421 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$147,756 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $62,151 | NetUnrlzdGainsLossesInvstAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | false | AccountantCompileOrReviewInd |
| FS Audited | Yes (true) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (true) | AuditCommitteeInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $525,033 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,064,376 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,555,159 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $870,093 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $359,411 | CurrentTaxYearAmt |
| Total | $4,374,072 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $525,033 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,064,376 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,555,159 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $870,093 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $359,411 | CurrentTaxYearAmt |
| Total | $4,374,072 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $1,419,441 | SubstantialContributorsTotAmt |
| Public Support Total170 | $2,954,631 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $5,733 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $825 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $17,782 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $20,471 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $53,806 | CurrentTaxYearAmt |
| Total | $98,617 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $48,576 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $6,695 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $63,368 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,333 | CurrentTaxYearMinus1YearAmt |
| Total | $119,972 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $4,592,661 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $61,228 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.64330 | PublicSupportCY170Pct |
| Public Support PY170 | 0.60970 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Form990 Schedule A Part VI Form990ScheduleAPartVIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART II, LINE 10 | FormAndLineReferenceDesc |
| Explanation | NET FUNDRAISING 118,639 REIMBURSEMENTS 1,333 | ExplanationTxt |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Rev Etc Audited Fincl Stmt | $469,789 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $62,151 | NetUnrealizedGainsInvstAmt |
| Revenue Not Reported | $62,151 | RevenueNotReportedAmt |
| Revenue Subtotal | $407,638 | RevenueSubtotalAmt |
| Investment Expenses Not Incld | $6,955 | InvestmentExpensesNotIncldAmt |
| Revenue Not Reported Fincl Stmt | $6,955 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $414,593 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $555,394 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Subtotal | $555,394 | ExpensesSubtotalAmt |
| Investment Expenses Not Incld2 | $6,955 | InvestmentExpensesNotIncld2Amt |
| Expenses Not Rpt Fincl Stmt | $6,955 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $562,349 | TotalExpensesPerForm990Amt |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Region | EUROPE | RegionTxt |
| Type Of Activities Conducted | PROGRAM SERVICE | TypeOfActivitiesConductedTxt |
| Specific Services Provided | RESEARCH GRANTS | SpecificServicesProvidedTxt |
| Region Total Expenditures | $100,592 | RegionTotalExpendituresAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Spent | $100,592 | SubtotalSpentAmt |
| Total Spent | $100,592 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (2 entries)
| Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt |
|---|---|---|
| RESEARCH FUNDS | $73,992 | WIRE TRANSFER |
| RESEARCH FUNDS | $26,600 | WIRE TRANSFER |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Org | 2 | TotalOtherOrgCnt |
| Transfer To Foreign Corp | false | TransferToForeignCorpInd |
| Interest In Foreign Trust | false | InterestInForeignTrustInd |
| Foreign Corp Ownership | false | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | false | PassiveForeignInvestmestCoInd |
| Foreign Partnership | false | ForeignPartnershipInd |
| Boycott Countries | false | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE F, PAGE 1, PART I, LINE 3 | FormAndLineReferenceDesc |
| Explanation | EUROPE 100,592 0 | ExplanationTxt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (3 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|
| ALBANY MEDICAL COLLEGE MS-231 | ||||||
| 47 NEW SCOTLAND AVE MC-151 | ALBANY | NY | 12208 | 141338307 | $40,000 | RESEARCH/DEVELOPMENT |
| THE CLEVELAND CLINIC | ||||||
| 9500 EUCLID AVE | CLEVELAND | OH | 44195 | 912153073 | $30,000 | RESEARCH/DEVELOPMENT |
| THE UNIVERSITY OF IOWA | ||||||
| 501 NEWTON ROAD | IOWA CITY | IA | 52242 | 426004813 | $36,800 | RESEARCH/DEVELOPMENT |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Org | 3 | TotalOtherOrgCnt |
Schedule L IRS990ScheduleL
Bus Tr Involve Interested Prsn BusTrInvolveInterestedPrsnGrp (4 entries)
| Relationship DescriptionRelationshipDescriptionTxt | TransactionTransactionAmt | TransactionTransactionDesc | Sharing Of RevenuesSharingOfRevenuesInd |
|---|---|---|---|
| DENISE ROBINSON | |||
| BD MEM/RES DIR | $70,400 | CONTRACTOR PAY | false |
| JULIA WAHL | |||
| BD VP/FIN MGR | $41,100 | CONTRACTOR PAY | false |
| LEEANN CONNER | |||
| BD MEM/MKTG | $22,500 | CONTRACTOR PAY | false |
| CHORDOMA FOUNDATION | |||
| EXECUTIVE DIR. | $53,499 | CONTRACTOR PAY | false |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE L, PART V | FormAndLineReferenceDesc |
| Explanation | THREE MEMBERS OF THE BOARD OF DIRECTORS ARE ALSO EMPLOYED BY THE ORGANIZATION AS CONTRACT EMPLOYEES. THEIR COMPENSATION IS FOR WORK PERFORMED AS CONTRACTORS, NOT FOR THEIR DUTIES AS BOARD MEMBERS. THE EXECUTIVE DIRECTOR WAS ALSO EMPLOYED BY THE CHORDOMA FOUNDATION AND THE ADDITIONAL SERVICES SHE PROVIDED IN THAT CAPACITY WERE REIMBURSED BY THE EHE FOUNDATION. HER COMPENSATION WAS FOR WORK PERFORMED AS A CONTRACTOR, NOT FOR HER DUTIES AS EXECUTIVE DIRECTOR. | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (3 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PAGE 6, PART VI, LINE 11B | THE 990 IS REVIEWED AND APPROVED BY MANAGEMENT AND THE FULL BOARD OF DIRECTORS PRIOR TO FILING ELECTRONICALLY WITH THE IRS. |
| FORM 990, PAGE 6, PART VI, LINE 19 | GOVERNING AND FINANCIAL DOCUMENTS ARE AVAILABLE UPON REQUEST. |
| FORM 990, PART IX, LINE 11G | CONTRACT PERSONNEL 211,513 20,635 25,794 WEBSITE/SOCIAL MEDIA 12,060 0 5,940 TOTAL 223,573 20,635 31,734 |