INTERNATIONAL WAGR SYNDROME ASSOCIATION: Form 990EZ, tax year 2023
View the entire original 990 at ProPublica ↗
- Organization
- INTERNATIONAL WAGR SYNDROME ASSOCIATION (EIN 20-1947169)
- Tax period
- 2023-01-01 to 2023-12-31
- Filed
- 2024-05-14
- IRS object ID
- 202441359349205164
- Schema version
- 2023v5.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2024-05-14T14:45:18-05:00 | ReturnTs |
| Tax Period End | 2023-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 232846715 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | STAMBAUGH NESS INC | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 220 ST CHARLES WAY STE 150 | AddressLine1Txt |
| City | YORK | CityNm |
| State Abbreviation | PA | StateAbbreviationCd |
| ZIP | 174024663 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990EZ | ReturnTypeCd |
| Tax Period Begin | 2023-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 201947169 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | INTERNATIONAL WAGR SYNDROME ASSOCIATION | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | INTE | BusinessNameControlTxt |
| Phone | 7179687703 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | PO BOX 2875 | AddressLine1Txt |
| City | MONTGOMERY VILLAGE | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 20886 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | NIKKI HOFFMAN | PersonNm |
| Person Title | TREASURER | PersonTitleTxt |
| Phone | 7179687703 | PhoneNum |
| Signature | 2024-05-09 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
Signing Officer SigningOfficerGrp
Person Full Name PersonFullName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person First | NIKKI | PersonFirstNm |
| Person Last | HOFFMAN | PersonLastNm |
| Field | Value | IRS element (for citing) |
|---|---|---|
| SSN | XXX-XX-XXXX | SSN |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IRS Responsible Prty Info Curr | 0 | IRSResponsiblePrtyInfoCurrInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | NIKKI L BARDIN CPA | PreparerPersonNm |
| PTIN | P01256649 | PTIN |
| Phone | 7177576999 | PhoneNum |
| Preparation | 2024-05-09 | PreparationDt |
Additional Filer Information AdditionalFilerInformation
Trusted Customer TrustedCustomerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Trusted Customer | 2 | TrustedCustomerCd |
| Authentication Assurance Level | AAL1 | AuthenticationAssuranceLevelCd |
| Identity Assurance Level | IAL1 | IdentityAssuranceLevelCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2023 | TaxYr |
| Build TS | 2023-04-26 12:10:37Z | BuildTS |
Form 990-EZ IRS990EZ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Method Of Accounting Cash | Yes (X) | MethodOfAccountingCashInd |
| Website Address | WWW.WAGR.ORG | WebsiteAddressTxt |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Gross Receipts | $64,556 | GrossReceiptsAmt |
| Info In Schedule O Part I | Yes (X) | InfoInScheduleOPartIInd |
| Contributions Gifts Grants Etc | $63,256 | ContributionsGiftsGrantsEtcAmt |
| Investment Income | $8 | InvestmentIncomeAmt |
| Special Events Direct Expenses | $75 | SpecialEventsDirectExpensesAmt |
| Special Events Net Income Loss | -$75 | SpecialEventsNetIncomeLossAmt |
| Other Revenue Total | $1,292 | OtherRevenueTotalAmt |
| Total Revenue | $64,481 | TotalRevenueAmt |
| Grants And Similar Amounts Paid | $11,000 | GrantsAndSimilarAmountsPaidAmt |
| Salaries Other Comp Empl Bnft | $23,243 | SalariesOtherCompEmplBnftAmt |
| Fees And Other Pymt To Ind Cntrct | $1,325 | FeesAndOtherPymtToIndCntrctAmt |
| Other Expenses Total | $28,021 | OtherExpensesTotalAmt |
| Total Expenses | $63,589 | TotalExpensesAmt |
| Excess Or Deficit For Year | $892 | ExcessOrDeficitForYearAmt |
| Net Assets Or Fund Balances BOY | $82,687 | NetAssetsOrFundBalancesBOYAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Net Assets Or Fund Balances EOY | $83,579 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part II | Yes (X) | InfoInScheduleOPartIIInd |
Cash Savings And Investments CashSavingsAndInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $79,441 | BOYAmt |
| EOY | $81,058 | EOYAmt |
Other Assets Total Detail OtherAssetsTotalDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,499 | BOYAmt |
| EOY | $3,499 | EOYAmt |
Form990 Total Assets Form990TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $82,940 | BOYAmt |
| EOY | $84,557 | EOYAmt |
Sum Of Total Liabilities SumOfTotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $253 | BOYAmt |
| EOY | $978 | EOYAmt |
Net Assets Or Fund Balances NetAssetsOrFundBalancesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $82,687 | BOYAmt |
| EOY | $83,579 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Primary Exempt Purpose | THE INTERNATIONAL WAGR SYNDROME ASSOCIATION (IWSA) IS A PATIENT ADVOCACY ORGANIZATION WITH APPROXIMATELY 225 MEMBER FAMILIES, ENGAGED VIA A VARIETY OF SUPPORT AND INFORMATION-SHARING ACTIVITIES. THE MISSION OF THE IWSA IS TO PROMOTE AWARENESS, STIMULATE RESEARCH, AND SUPPORT FAMILIES AFFECTED BY WAGR SYNDROME. THE IWSA BELIEVES IN PLACING PATIENTS AND FAMILIES IN THE FOREFRONT OF ALL ACTIVITIES OF THE ORGANIZATION. THE IWSA HOSTS GATHERINGS OF FAMILIES TO SHARE GENERAL INFORMATION ABOUT WAGR SYNDROME AND TO PROVIDE EMOTIONAL SUPPORT. BOARD MEMBERS AND OTHER LEADERS OF THE ORGANIZATION ATTEND CONFERENCES PERTAINING TO RARE DISEASE RESEARCH AND PATIENT ADVOCACY. | PrimaryExemptPurposeTxt |
Program Srvc Accomplishment ProgramSrvcAccomplishmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Description Program Srvc Accom | TO PROMOTE AWARENESS, STIMULATE RESEARCH AND SUPPORT FAMILIES AFFECTED BY WAGR SYNDROME. | DescriptionProgramSrvcAccomTxt |
| Grants And Allocations | $11,000 | GrantsAndAllocationsAmt |
| Program Service Expenses | $51,203 | ProgramServiceExpensesAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $51,203 | TotalProgramServiceExpensesAmt |
Officer Director Trustee Empl OfficerDirectorTrusteeEmplGrp (7 entries)
| TitleTitleTxt | Average Hrs Per Wk Devoted To PosAverageHrsPerWkDevotedToPosRt | CompensationCompensationAmt | Employee Benefit ProgramEmployeeBenefitProgramAmt | Expense Account Other AllwncExpenseAccountOtherAllwncAmt |
|---|---|---|---|---|
| LINDA VAN DE SANDE | ||||
| DIRECTOR | 1.00 | $0 | $0 | $0 |
| ANDREA HARRIS | ||||
| DIRECTOR (BEGINNING MAY 2023) | 1.00 | $0 | $0 | $0 |
| TOM COX | ||||
| DIRECTOR | 1.00 | $0 | $0 | $0 |
| JOHN MORRIS | ||||
| CHAIRMAN | 5.00 | $0 | $0 | $0 |
| KELLY TROUT | ||||
| SECRETARY | 1.00 | $0 | $0 | $0 |
| NIKKI HOFFMAN | ||||
| TREASURER | 2.00 | $0 | $0 | $0 |
| SHARI KRANTZ | ||||
| EXECUTIVE DIRECTOR | 17.00 | $20,995 | $0 | $0 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part V | Yes (X) | InfoInScheduleOPartVInd |
| Activities Not Previously Rpt | 0 | ActivitiesNotPreviouslyRptInd |
| Chg Made To Orgnzng Doc Not Rpt | 0 | ChgMadeToOrgnzngDocNotRptInd |
| Organization Had UBI | 0 | OrganizationHadUBIInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Organization Dissolved Etc | 0 | OrganizationDissolvedEtcInd |
| Direct Indirect Pltcl Expend | $0 | DirectIndirectPltclExpendAmt |
| Made Loans To From Officers | 0 | MadeLoansToFromOfficersInd |
| Tax Imposed Under IRC4911 | $0 | TaxImposedUnderIRC4911Amt |
| Tax Imposed Under IRC4912 | $0 | TaxImposedUnderIRC4912Amt |
| Tax Imposed Under IRC4955 | $0 | TaxImposedUnderIRC4955Amt |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| Tax Imposed On Organization Mgr | $0 | TaxImposedOnOrganizationMgrAmt |
| Tax Reimbursed By Organization | $0 | TaxReimbursedByOrganizationAmt |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | NIKKI HOFFMAN | PersonNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | PO BOX 2875 | AddressLine1Txt |
| City | MONTGOMERY VILLAGE | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 20886 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 7179687703 | PhoneNum |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Donor Advised Fnds | 0 | DonorAdvisedFndsInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Tanning Services Provided | 0 | TanningServicesProvidedInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | 0 | LobbyingActivitiesInd |
| School Operating | 0 | SchoolOperatingInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Part VI Of Comp Of Hghst Pd Empl | NONE | PartVIOfCompOfHghstPdEmplTxt |
| Part VI Hghst Pd Cntrct Prof Srvc | NONE | PartVIHghstPdCntrctProfSrvcTxt |
| Filed Schedule A | Yes (1) | FiledScheduleAInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $63,639 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $57,273 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $74,018 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $53,769 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $63,256 | CurrentTaxYearAmt |
| Total | $311,955 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $63,639 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $57,273 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $74,018 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $53,769 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $63,256 | CurrentTaxYearAmt |
| Total | $311,955 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $32,436 | SubstantialContributorsTotAmt |
| Public Support Total170 | $279,519 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $19 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $17 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $66 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $48 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $8 | CurrentTaxYearAmt |
| Total | $158 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $761 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $6,109 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $16,514 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,535 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,292 | CurrentTaxYearAmt |
| Total | $26,211 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $338,324 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $14,904 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.82620 | PublicSupportCY170Pct |
| Public Support PY170 | 0.89090 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (7 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990-EZ, PART I, LINE 4 - OTHER INVESTMENT INCOME | DESCRIPTION: INTEREST INCOME. AMOUNT: 8. |
| FORM 990-EZ, PART I, LINE 8 - OTHER REVENUE | DESCRIPTION: OTHER INCOME. AMOUNT: 1,292. |
| FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID | ACTIVITY CLASSIFICATION: RESEARCH GRANT. GRANTEE NAME: CHILDREN'S HOSPITAL OF PHILADELPHIA (CHOP). GRANTEE ADDRESS: 3401 CIVIC CENTER BLVD PHILADELPHIA , PA 19104. DATE OF GIFT: 10/30/23. AMOUNT GIVEN: 10,000. |
| FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID | ACTIVITY CLASSIFICATION: EVENT SPONSORSHIP. GRANTEE NAME: ANIRIDIA NORTH AMERICA. GRANTEE ADDRESS: 106 W CALENDAR AVE, STE 122 LAGRANGE, IL 60525. DATE OF GIFT: 04/21/23. AMOUNT GIVEN: 1,000. TOTAL INCLUDED ON FORM 990-EZ, LINE 10: 11,000. |
| FORM 990-EZ, PART I, LINE 16 - OTHER EXPENSES | DESCRIPTION: ADVERTISING. AMOUNT: 897. DESCRIPTION: COMMISSIONS AND FEES. AMOUNT: 871. DESCRIPTION: CONFERENCES AND MEETINGS. AMOUNT: 13,510. DESCRIPTION: DUES AND SUBSCRIPTIONS. AMOUNT: 258. DESCRIPTION: FAMILY SUPPORT EXPENSES. AMOUNT: 338. DESCRIPTION: INSURANCE. AMOUNT: 1,760. DESCRIPTION: OFFICE EXPENSES. AMOUNT: 7,291. DESCRIPTION: ORGANIZATIONAL EXPENSES. AMOUNT: 175. DESCRIPTION: TRAVEL AND MEALS. AMOUNT: 2,921. TOTAL TO FORM 990-EZ, LINE 16: 28,021. |
| FORM 990-EZ, PART II, LINE 24 - OTHER ASSETS | DESCRIPTION: ERTC RECEIVABLE. BEG. OF YEAR AMOUNT: 3,499. END OF YEAR AMOUNT: 3,499. |
| FORM 990-EZ, PART II, LINE 26 - OTHER LIABILITIES | DESCRIPTION: CREDIT CARD PAYABLE. BEG. OF YEAR AMOUNT: 253. END OF YEAR AMOUNT: 978. |
Transfer Prsnl Bnft Contracts Decl TransferPrsnlBnftContractsDecl
| Field | Value | IRS element (for citing) |
|---|---|---|
| Declaration | THE ORGANIZATION DID NOT, DURING THE YEAR, RECEIVE ANY FUNDS, DIRECTLY,OR INDIRECTLY, TO PAY PREMIUMS ON A PERSONAL BENEFIT CONTRACT.THE ORGANIZATION, DID NOT, DURING THE YEAR, PAY ANY PREMIUMS, DIRECTLY,OR INDIRECTLY, ON A PERSONAL BENEFIT CONTRACT. | DeclarationDesc |