INTERNATIONAL WAGR SYNDROME ASSOCIATION

2025 · Form 990EZ · revenue $74K · expenses $74K · assets $78K

EIN

20-1947169

Address

PO BOX 2875, MONTGOMRY VLG, MD 20886-2875

Website

WWW.WAGR.ORG

NTEE code

G20

Subsection

501(c)(3)

Ruling year

2005

Cross-check

ProPublica Nonprofit Explorer

Mission

THE INTERNATIONAL WAGR SYNDROME ASSOCIATION (IWSA) IS A PATIENT ADVOCACY ORGANIZATION WITH APPROXIMATELY 225 MEMBER FAMILIES, ENGAGED VIA A VARIETY OF SUPPORT AND INFORMATION-SHARING ACTIVITIES. THE MISSION OF THE IWSA IS TO PROMOTE AWARENESS, STIMULATE RESEARCH, AND SUPPORT FAMILIES AFFECTED BY WAGR SYNDROME. THE IWSA BELIEVES IN PLACING PATIENTS AND FAMILIES IN THE FOREFRONT OF ALL ACTIVITIES OF THE ORGANIZATION. THE IWSA HOSTS GATHERINGS OF FAMILIES TO SHARE GENERAL INFORMATION ABOUT WAGR SYNDROME AND TO PROVIDE EMOTIONAL SUPPORT. BOARD MEMBERS AND OTHER LEADERS OF THE ORGANIZATION ATTEND CONFERENCES PERTAINING TO RARE DISEASE RESEARCH AND PATIENT ADVOCACY.

Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).

People paid by the organization

1 person paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.

Officers and directors, no compensation reported

14 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.

People by year

Highest-paid independent contractors

No independent contractors reported.

Who gave

Contributor names are not public for this form type.

Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.

Finances

Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.

Funders of this organization

5 grantors reported grants to this organization, $52,114 in all, tax years 2016 to 2025. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV

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Who funds organizations like this

Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).

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Where the money went

Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.