MUSCULAR DYSTROPHY ASSOCIATION: Form 990, tax year 2024

View the entire original 990 at ProPublica ↗

Organization: MUSCULAR DYSTROPHY ASSOCIATION (EIN 13-1665552)
Tax period: 2024-01-01 to 2024-12-31
Filed: 2025-04-25
IRS object ID: 202541159349301319
Schema version: 2024v5.1
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule M
Schedule O

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2025-04-25T09:41:16-05:00	ReturnTs
Tax Period End	2024-12-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Field	Value	IRS element (for citing)
Preparer Firm EIN	333709623	PreparerFirmEIN

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	COHNREZNICK ADVISORY LLC	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	14 SYLVAN WAY	AddressLine1Txt
City	PARSIPPANY	CityNm
State Abbreviation	NJ	StateAbbreviationCd
ZIP	070543801	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2024-01-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	131665552	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	MUSCULAR DYSTROPHY ASSOCIATION	BusinessNameLine1Txt
Business Name Line2	INC	BusinessNameLine2Txt

Field	Value	IRS element (for citing)
Business Name Control	MUSC	BusinessNameControlTxt
Phone	3122605900	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1016 W JACKSON BLVD 1073	AddressLine1Txt
City	CHICAGO	CityNm
State Abbreviation	IL	StateAbbreviationCd
ZIP	60607	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	JON VAN COTT	PersonNm
Person Title	VP OF FINANCE/CONTROLLER	PersonTitleTxt
Phone	3122605900	PhoneNum
Signature	2025-04-24	SignatureDt
Discuss With Paid Preparer	Yes (1)	DiscussWithPaidPreparerInd

Field	Value	IRS element (for citing)
IRS Responsible Prty Info Curr	Yes (1)	IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	LORI ROTHE YOKOBOSKY	PreparerPersonNm
PTIN	P01273422	PTIN
Phone	9732283500	PhoneNum
Preparation	2025-04-23	PreparationDt

Field	Value	IRS element (for citing)
Tax	2024	TaxYr
Build TS	2025-03-06 01:10:19Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Principal Officer	DR DONALD S WOOD	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1016 W JACKSON BLVD 1073	AddressLine1Txt
City	CHICAGO	CityNm
State Abbreviation	IL	StateAbbreviationCd
ZIP	60607	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$87,469,956	GrossReceiptsAmt
Group Return For Affiliates	0	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	WWW.MDA.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1950	FormationYr
Legal Domicile State	NY	LegalDomicileStateCd
Activity Or Mission	SEE SCHEDULE O	ActivityOrMissionDesc
Voting Members Governing Body	20	VotingMembersGoverningBodyCnt
Voting Members Independent	20	VotingMembersIndependentCnt
Total Employee	269	TotalEmployeeCnt
Total Volunteers	1696	TotalVolunteersCnt
Total Gross UBI	$621,545	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	$0	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$56,761,618	PYContributionsGrantsAmt
CY Contributions Grants	$54,195,181	CYContributionsGrantsAmt
PY Program Service Revenue	$0	PYProgramServiceRevenueAmt
CY Program Service Revenue	$0	CYProgramServiceRevenueAmt
PY Investment Income	$2,236,376	PYInvestmentIncomeAmt
CY Investment Income	$5,248,735	CYInvestmentIncomeAmt
PY Other Revenue	$439,898	PYOtherRevenueAmt
CY Other Revenue	$912,328	CYOtherRevenueAmt
PY Total Revenue	$59,437,892	PYTotalRevenueAmt
CY Total Revenue	$60,356,244	CYTotalRevenueAmt
PY Grants And Similar Paid	$14,912,477	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$16,658,993	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$26,112,512	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$29,117,549	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$349,000	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$33,625	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$14,339,511	CYTotalFundraisingExpenseAmt
PY Other Expenses	$20,753,781	PYOtherExpensesAmt
CY Other Expenses	$20,155,219	CYOtherExpensesAmt
PY Total Expenses	$62,127,770	PYTotalExpensesAmt
CY Total Expenses	$65,965,386	CYTotalExpensesAmt
PY Revenues Less Expenses	-$2,689,878	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	-$5,609,142	CYRevenuesLessExpensesAmt
Total Assets BOY	$66,561,388	TotalAssetsBOYAmt
Total Assets EOY	$57,971,496	TotalAssetsEOYAmt
Total Liabilities BOY	$58,167,552	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$54,536,026	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$8,393,836	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$3,435,470	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS THE #1 VOLUNTARY HEALTH ORGANIZATION IN THE UNITED STATES FOR PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. (CONT. SCHEDULE O) FOR OVER 70 YEARS, MDA HAS LED THE WAY IN ACCELERATING RESEARCH, ADVANCING CARE, AND ADVOCATING FOR THE SUPPORT OF OUR FAMILIES. MDA'S MISSION IS TO EMPOWER THE PEOPLE WE SERVE TO LIVE LONGER, MORE INDEPENDENT LIVES.	MissionDesc
Significant New Program Srvc	0	SignificantNewProgramSrvcInd
Significant Change	0	SignificantChangeInd
Expense	$22,891,350	ExpenseAmt
Grant	$7,822,907	GrantAmt
Desc	PLEASE SEE SCHEDULE O FOR FURTHER DISCUSSION OF PPP LOAN FORGIVENESS AS IT PERTAINS TO TOTAL CONTRIBUTION REVENUE.HEALTH CARE AND COMMUNITY SERVICES:MDA IS COMMITTED TO EMPOWERING PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS AND RELATED NEUROMUSCULAR DISEASES THROUGH RESEARCH, CARE, AND ADVOCACY. AS THE LARGEST SOURCE OF FUNDING FOR NEUROMUSCULAR DISEASE RESEARCH OUTSIDE OF THE FEDERAL GOVERNMENT MDA HAS COMMITTED MORE THAN $1 BILLION TO ACCELERATE THE DISCOVERY OF THERAPIES AND CURES. WE SUPPORT THE LARGEST NETWORK OF MULTIDISCIPLINARY CLINICS AT MORE THAN 150 TOP MEDICAL INSTITUTIONS, SERVE THE COMMUNITY WITH ONE-ON-ONE SPECIALIZED SUPPORT, AND OFFER EDUCATIONAL CONFERENCES, EVENTS, AND MATERIALS FOR FAMILIES AND HEALTHCARE PROVIDERS. (CONT. SCHEDULE O) EACH OF OUR MDA CARE CENTERS OFFERS INDIVIDUALS AND FAMILIES BEST-IN-CLASS, COMPREHENSIVE CARE FROM AN INTEGRATED MULTIDISCIPLINARY TEAM OF HEALTHCARE SPECIALISTS CONVENIENTLY SITED AT ONE LOCATION. IN A SINGLE DAY, PATIENTS CAN SEE MULTIPLE HEALTHCARE PROVIDERS WHO WORK TOGETHER TO ENSURE COORDINATED INDIVIDUAL CARE FOR EVERY PATIENT TO BEST FIT THEIR SPECIFIC NEEDS. HIGHLY TRAINED MDA CARE SPECIALISTS SERVE AS AN IMPORTANT PART OF THE CARE TEAM, HELPING FAMILIES NAVIGATE THE HEALTH SYSTEM, ANSWERING QUESTIONS, DISTRIBUTING MDA EDUCATIONAL MATERIALS, COORDINATING MDA SERVICES, AND ASSISTING WITH COMMUNITY RESOURCE REFERRALS. EACH YEAR THOUSANDS OF CHILDREN/YOUNG ADULTS LEARN VITAL LIFE SKILLS AND GAIN INDEPENDENCE AT SUMMER CAMP AND THROUGH RECREATIONAL PROGRAMS, AT NO COST TO FAMILIES. EACH CAMP IS STAFFED WITH DEDICATED HEALTH PROFESSIONALS AND TRAINED CAMP VOLUNTEERS WHO MEET THE MEDICAL AND PHYSICAL NEEDS OF EACH CAMPER ALL AT NO COST TO FAMILIES.	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$11,248,191	ExpenseAmt
Grant	$8,710,305	GrantAmt
Desc	RESEARCH: MDA IS THE LARGEST NON-GOVERNMENTAL FUNDER OF NEUROMUSCULAR DISEASE RESEARCH IN THE COUNTRY, SUPPORTING STRATEGIC RESEARCH FOR MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. SINCE ITS INCEPTION IN 1950, MDA HAS INVESTED MORE THAN $1 BILLION IN NEUROMUSCULAR DISEASE RESEARCH TO UNCOVER NEW TREATMENTS. A SINGLE BREAKTHROUGH CAN LEAD TO A CURE. OUR FUNDING RESEARCH ACROSS MANY NEUROMUSCULAR DISEASES MEANS FINDINGS FROM ONE DISEASE OFTEN ENABLE PROGRESS IN OTHERS, MAXIMIZING THE SPEED AT WHICH WE CAN MAKE PROGRESS. SUPPORT FOR MDA'S RESEARCH ENABLES MDA TO FUND LEADING RESEARCH TEAMS WORKING TOWARD BREAKTHROUGH THERAPIES, WHICH CAN HAVE A LIFE-CHANGING IMPACT ON PATIENTS. (CONT. SCHEDULE O)MDA-FUNDED BREAKTHROUGHS INCLUDE DRUGS FOR AMYOTROPHIC LATERAL SCLEROSIS (ALS), DUCHENNE MUSCULAR DYSTROPHY (DMD), PERIODIC PARALYSIS, POMPE DISEASE, AND SPINAL MUSCULAR ATROPHY (SMA). MDA LAUNCHED THE MOVR (NEUROMUSCULAR OBSERVATIONAL RESEARCH) DATA HUB AS A TRANSFORMATIVE PLATFORM, COMBINING MDA'S CARE CENTER NETWORK WITH A STATE-OF-THE-ART INFORMATION-MANAGEMENT SYSTEM. AS THE LARGEST CENTRALIZED DATA HUB FOR MULTIPLE NEUROMUSCULAR DISEASES, MOVR AGGREGATES CLINICAL, GENETIC, AND PATIENT-REPORTED DATA ACROSS BROAD COMMUNITIES OF HEALTHCARE PROVIDERS, RESEARCHERS, AND INDUSTRY PARTNERS THAT WILL LEAD TO RAPID DEVELOPMENTS IN PATIENT CARE, TREATMENTS, AND CURES.	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$14,259,987	ExpenseAmt
Grant	$125,781	GrantAmt
Desc	PROFESSIONAL AND PUBLIC HEALTH EDUCATION:MDA OFFERS A BROAD AND EXPANDING ARRAY OF RESOURCES AND EVENTS EXPERTLY DEVELOPED TO RESPOND TO THE RAPIDLY CHANGING TREATMENT LANDSCAPE. OUR RESOURCES FOR PROVIDING RELEVANT MEDICAL EDUCATION TO PROFESSIONALS ARE UNPARALLELED AND OUR SERVICES AND INITIATIVES REFLECT OUR LEADERSHIP IN THIS AREA. WE PROVIDE BOTH ACCREDITED CONTINUING MEDICAL EDUCATION (CME) AND NON-CME PROGRAMS. AS THE MOST COMPREHENSIVE NEUROMUSCULAR DISEASE MEETING IN THE WORLD, OUR ANNUAL MDA CLINICAL & SCIENTIFIC CONFERENCE PROVIDES A UNIQUE OPPORTUNITY TO LEARN FROM, BE INSPIRED BY, AND SHARE IDEAS WITH EXPERTS FROM ACADEMIA, GOVERNMENT, AND INDUSTRY. (CONT. SCHEDULE O)AT THE COMMUNITY LEVEL, WE ESTABLISHED MDA ENGAGE AND MDA ACCESS EDUCATIONAL EVENT SERIES THAT BRINGS LOCAL HIGH-IMPACT EDUCATIONAL PROGRAMS TO THE NEUROMUSCULARCOMMUNITY IN-PERSON AND VIRTUALLY. EACH OF THE ENGAGE PROGRAMS INCORPORATES MULTIPLE MODULES OF INTEREST, FROM THERAPY DEVELOPMENT ROUNDTABLES TO DISEASE MANAGEMENT TO GENETIC TESTING, DESIGNED SPECIFICALLY FOR COMMUNITY AUDIENCES. EACH EVENT ALSO INCLUDES A SOCIAL ELEMENT FOR FAMILIES AND PARTICIPANTS WITH THE AIM OF STRENGTHENING THE COMMUNITY AND HELPING ATTENDEES MAKE PERSONAL CONNECTIONS.	Desc

Field	Value	IRS element (for citing)
Total Program Service Expenses	$48,399,528	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (1)	DescribedInSection501c3Ind
Schedule B Required	Yes (1)	ScheduleBRequiredInd
Political Campaign Acty	0	PoliticalCampaignActyInd
Lobbying Activities	Yes (1)	LobbyingActivitiesInd
Subject To Proxy Tax	0	SubjectToProxyTaxInd
Donor Advised Fund	0	DonorAdvisedFundInd
Conservation Easements	0	ConservationEasementsInd
Collections Of Art	0	CollectionsOfArtInd
Credit Counseling	0	CreditCounselingInd
Donor Rstr Or Quasi Endowments	Yes (1)	DonorRstrOrQuasiEndowmentsInd
Report Land Building Equipment	Yes (1)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	0	ReportInvestmentsOtherSecInd
Report Program Related Invst	0	ReportProgramRelatedInvstInd
Report Other Assets	0	ReportOtherAssetsInd
Report Other Liabilities	Yes (1)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	Yes (1)	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	Yes (1)	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	0	ConsolidatedAuditFinclStmtInd
School Operating	0	SchoolOperatingInd
Foreign Office	0	ForeignOfficeInd
Foreign Activities	Yes (1)	ForeignActivitiesInd
More Than5000 K To Org	Yes (1)	MoreThan5000KToOrgInd
More Than5000 K To Individuals	0	MoreThan5000KToIndividualsInd
Professional Fundraising	Yes (1)	ProfessionalFundraisingInd
Fundraising Activities	Yes (1)	FundraisingActivitiesInd
Gaming Activities	0	GamingActivitiesInd
Operate Hospital	0	OperateHospitalInd
Grants To Organizations	Yes (1)	GrantsToOrganizationsInd
Grants To Individuals	0	GrantsToIndividualsInd
Schedule J Required	Yes (1)	ScheduleJRequiredInd
Tax Exempt Bonds	0	TaxExemptBondsInd
Engaged In Excess Benefit Trans	0	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	0	PYExcessBenefitTransInd
Loan Outstanding	0	LoanOutstandingInd
Grant To Related Person	0	GrantToRelatedPersonInd
Business Rln With Org Mem	0	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	0	BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent	0	BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri	Yes (1)	DeductibleNonCashContriInd
Deductible Art Contribution	0	DeductibleArtContributionInd
Terminate Operations	0	TerminateOperationsInd
Partial Liquidation	0	PartialLiquidationInd
Disregarded Entity	0	DisregardedEntityInd
Related Entity	0	RelatedEntityInd
Related Organization Ctrl Ent	0	RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	0	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	0	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (1)	ScheduleORequiredInd
IRP Document	91	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (1)	BackupWthldComplianceInd
Employee	269	EmployeeCnt
Employment Tax Returns Filed	Yes (1)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	Yes (1)	UnrelatedBusIncmOverLimitInd
Form990 T Filed	Yes (1)	Form990TFiledInd
Foreign Financial Account	0	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	0	ProhibitedTaxShelterTransInd
Taxable Party Notification	0	TaxablePartyNotificationInd
Nondeductible Contributions	0	NondeductibleContributionsInd
Quid Pro Quo Contributions	Yes (1)	QuidProQuoContributionsInd
Quid Pro Quo Contri Discl	Yes (1)	QuidProQuoContriDisclInd
Form8282 Property Disposed Of	0	Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct	0	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	0	PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services	0	IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt	0	SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc	0	SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	20	GoverningBodyVotingMembersCnt
Independent Voting Member	20	IndependentVotingMemberCnt
Family Or Business Rln	0	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	0	DelegationOfMgmtDutiesInd
Change To Org Documents	0	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	0	MaterialDiversionOrMisuseInd
Members Or Stockholders	0	MembersOrStockholdersInd
Election Of Board Members	0	ElectionOfBoardMembersInd
Decisions Subject To Approva	0	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (1)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (1)	MinutesOfCommitteesInd
Officer Mailing Address	0	OfficerMailingAddressInd
Local Chapters	0	LocalChaptersInd
Form990 Provided To Gvrn Body	Yes (1)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (1)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (1)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (1)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (1)	WhistleblowerPolicyInd
Document Retention Policy	Yes (1)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (1)	CompensationProcessCEOInd
Compensation Process Other	Yes (1)	CompensationProcessOtherInd
Investment In Joint Venture	0	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	AL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AZ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	DE	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	GA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	HI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ID	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	LA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ME	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NE	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NM	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ND	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	RI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	UT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	VA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WY	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	JON VAN COTT VP OF FINANCECONTROLLER	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Phone	6467132020	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1016 W JACKSON BLVD 1073	AddressLine1Txt
City	CHICAGO	CityNm
State Abbreviation	IL	StateAbbreviationCd
ZIP	60607	ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (28 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	OfficerOfficerInd	Highest Compensated EmployeeHighestCompensatedEmployeeInd
ANJAN ARALIHALLI
DIRECTOR	1.00	Yes (X)	$0	$0	$0
BARRY BYRNE MD PHD
DIRECTOR	1.00	Yes (X)	$0	$0	$0
BENJAMIN CUMBO III
DIRECTOR	1.00	Yes (X)	$0	$0	$0
CHARLES D SCHOOR ESQ
DIRECTOR	1.00	Yes (X)	$0	$0	$0
CHRIS ROSA PHD
VICE CHAIRMAN	5.00	Yes (X)	$0	$0	$0	Yes (X)
DAN FRIES
DIRECTOR	1.00	Yes (X)	$0	$0	$0
ELIZABETH MCNALLY MD PHD
DIRECTOR	1.00	Yes (X)	$0	$0	$0
GOVERNOR BRAD HENRY
CHAIRMAN	5.00	Yes (X)	$0	$0	$0	Yes (X)
HON ROBERT E PIPIA
DIRECTOR	1.00	Yes (X)	$0	$0	$0
JENNIFER GOTTLIEB
DIRECTOR	1.00	Yes (X)	$0	$0	$0
JOHN COSTANTINO
DIRECTOR	1.00	Yes (X)	$0	$0	$0
JOHN E HOWELL
DIRECTOR	1.00	Yes (X)	$0	$0	$0
LILIAN WU PHD
DIRECTOR	1.00	Yes (X)	$0	$0	$0
LOUIS KUNKEL PHD
DIRECTOR	1.00	Yes (X)	$0	$0	$0
MARK SMITH
DIRECTOR	1.00	Yes (X)	$0	$0	$0
MATT PLUMMER
DIRECTOR	1.00	Yes (X)	$0	$0	$0
MIKE ROWLETT
DIRECTOR	1.00	Yes (X)	$0	$0	$0
NANCY KINDELAN
DIRECTOR	1.00	Yes (X)	$0	$0	$0
STEVE FURNARY
DIRECTOR	1.00	Yes (X)	$0	$0	$0
TOM SIMON
DIRECTOR	1.00	Yes (X)	$0	$0	$0
DONALD WOOD
PRESIDENT & CEO	50.00		$634,139	$0	$33,459	Yes (X)
HENRY LANMAN
SEC. & CHIEF LEGAL OFFICER	50.00		$372,458	$0	$31,094	Yes (X)
MICHAEL KENNEDY
TREASURER & CFO	50.00		$445,354	$0	$65,017	Yes (X)
MARY ROTH
CHIEF MARKETING OFFICER	50.00		$241,889	$0	$48,436		Yes (X)
NORA CAPOCCI
VP, HEALTHCARE SERVICES	50.00		$235,784	$0	$23,594		Yes (X)
PERIPEDES GONDIM
VP, HUMAN RESOURCES & VOLUNTEERS	50.00		$268,301	$0	$31,071		Yes (X)
RUTH DAILEY
CHIEF DEVELOPMENT OFFICER	50.00		$279,285	$0	$28,857		Yes (X)
SHARON HESTERLEE
CHIEF RESEARCH OFFICER	50.00		$285,786	$0	$62,493		Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$2,762,996	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$0	TotReportableCompRltdOrgAmt
Total Other Compensation	$324,021	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	62	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	0	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (1)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	0	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (4 entries)

Address Line1ContractorAddress/USAddress/AddressLine1Txt	CityContractorAddress/USAddress/CityNm	State AbbreviationContractorAddress/USAddress/StateAbbreviationCd	ZIPContractorAddress/USAddress/ZIPCd	ServicesServicesDesc	CompensationCompensationAmt
MOORE A SERIES LLC (CX MARKETING LLC)
4200 PARLIAMENT PLACE 3RD FLOOR	LANHAM	MD	20703	DONOR CARE SERVICES	$811,619
GLC (GENERAL LEARNING COMMUNICATIONS LL
PO BOX 7443046	ATLANTA	GA	30371	CONTENT MARKETING AGENCY	$623,105
YES & HOLDINGS LLC
1700 DIAGONAL ROAD SUITE 700	ALEXANDRIA	VA	22314	MARKETING SERVICES	$541,164
1ST DEGREE LLC
755 GRAND BOULEVARD SUITE B-105 25	MIRAMAR BEACH	FL	32550	MARKETING SERVICES	$189,585

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	4	CntrctRcvdGreaterThan100KCnt
Federated Campaigns	$255,025	FederatedCampaignsAmt
Fundraising	$33,838,247	FundraisingAmt
Government Grants	$319,214	GovernmentGrantsAmt
All Other Contributions	$19,782,695	AllOtherContributionsAmt
Noncash Contributions	$758,754	NoncashContributionsAmt
Total Contributions	$54,195,181	TotalContributionsAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$1,428,427	TotalRevenueColumnAmt
Exclusion	$1,428,427	ExclusionAmt

Royalties Revenue RoyaltiesRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$746,785	TotalRevenueColumnAmt
Exclusion	$746,785	ExclusionAmt

Gross Rents GrossRentsGrp

Field	Value	IRS element (for citing)
Real	$49,660	RealAmt

Less Rental Expenses LessRentalExpensesGrp

Field	Value	IRS element (for citing)
Real	$0	RealAmt

Rental Income Or Loss RentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Real	$49,660	RealAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$49,660	TotalRevenueColumnAmt
Exclusion	$49,660	ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$27,139,177	SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$23,318,869	SecuritiesAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	$3,820,308	SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$3,820,308	TotalRevenueColumnAmt
Exclusion	$3,820,308	ExclusionAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$3,289,181	FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event	$33,838,247	ContriRptFundraisingEventAmt
Fundraising Direct Expenses	$3,794,843	FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	-$505,662	TotalRevenueColumnAmt
Exclusion	-$505,662	ExclusionAmt

Other Revenue Misc OtherRevenueMiscGrp

Field	Value	IRS element (for citing)
Desc	QUEST ADVERTISING	Desc
Business	541800	BusinessCd
Total Revenue Column	$621,545	TotalRevenueColumnAmt
Unrelated Business Revenue	$621,545	UnrelatedBusinessRevenueAmt

Field	Value	IRS element (for citing)
Other Revenue Total	$621,545	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$60,356,244	TotalRevenueColumnAmt
Related Or Exempt Func Income	$0	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	$621,545	UnrelatedBusinessRevenueAmt
Exclusion	$5,539,518	ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$14,629,142	TotalAmt
Program Services	$14,629,142	ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$2,029,851	TotalAmt
Program Services	$2,029,851	ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$1,581,521	TotalAmt
Program Services	$1,058,144	ProgramServicesAmt
Management And General	$54,003	ManagementAndGeneralAmt
Fundraising	$469,374	FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$21,109,703	TotalAmt
Program Services	$14,123,819	ProgramServicesAmt
Management And General	$720,819	ManagementAndGeneralAmt
Fundraising	$6,265,065	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$367,411	TotalAmt
Program Services	$245,823	ProgramServicesAmt
Management And General	$12,546	ManagementAndGeneralAmt
Fundraising	$109,042	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$4,375,115	TotalAmt
Program Services	$2,927,248	ProgramServicesAmt
Management And General	$149,394	ManagementAndGeneralAmt
Fundraising	$1,298,473	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$1,683,799	TotalAmt
Program Services	$1,126,575	ProgramServicesAmt
Management And General	$57,496	ManagementAndGeneralAmt
Fundraising	$499,728	FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$312,646	TotalAmt
Program Services	$79,369	ProgramServicesAmt
Management And General	$59,975	ManagementAndGeneralAmt
Fundraising	$173,302	FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$115,390	TotalAmt
Program Services	$53,017	ProgramServicesAmt
Management And General	$15,593	ManagementAndGeneralAmt
Fundraising	$46,780	FundraisingAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

Field	Value	IRS element (for citing)
Total	$998,305	TotalAmt
Program Services	$998,305	ProgramServicesAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	$33,625	TotalAmt
Fundraising	$33,625	FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

Field	Value	IRS element (for citing)
Total	$174,986	TotalAmt
Management And General	$174,986	ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$1,429,423	TotalAmt
Program Services	$1,295,620	ProgramServicesAmt
Management And General	$82,809	ManagementAndGeneralAmt
Fundraising	$50,994	FundraisingAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$2,512,310	TotalAmt
Program Services	$1,737,159	ProgramServicesAmt
Management And General	$38,932	ManagementAndGeneralAmt
Fundraising	$736,219	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$2,306,909	TotalAmt
Program Services	$1,098,503	ProgramServicesAmt
Management And General	$140,417	ManagementAndGeneralAmt
Fundraising	$1,067,989	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$2,583,712	TotalAmt
Program Services	$1,148,107	ProgramServicesAmt
Management And General	$834,570	ManagementAndGeneralAmt
Fundraising	$601,035	FundraisingAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$227,187	TotalAmt
Program Services	$709	ProgramServicesAmt
Management And General	$189,991	ManagementAndGeneralAmt
Fundraising	$36,487	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$3,077,542	TotalAmt
Program Services	$2,016,425	ProgramServicesAmt
Management And General	$356,836	ManagementAndGeneralAmt
Fundraising	$704,281	FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$542,863	TotalAmt
Program Services	$542,863	ProgramServicesAmt

Interest InterestGrp

Field	Value	IRS element (for citing)
Total	$661,520	TotalAmt
Program Services	$303,941	ProgramServicesAmt
Management And General	$89,395	ManagementAndGeneralAmt
Fundraising	$268,184	FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$645,340	TotalAmt
Program Services	$535,102	ProgramServicesAmt
Management And General	$110,238	ManagementAndGeneralAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$391,416	TotalAmt
Program Services	$179,839	ProgramServicesAmt
Management And General	$52,894	ManagementAndGeneralAmt
Fundraising	$158,683	FundraisingAmt

Other Expenses OtherExpensesGrp (2 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	FundraisingFundraisingAmt
EVENT EXPENSES	$3,013,730	$1,249,275	$1,764,455
PRODUCTION COSTS	$912,819	$912,819

All Other Expenses AllOtherExpensesGrp

Field	Value	IRS element (for citing)
Total	$249,121	TotalAmt
Program Services	$107,873	ProgramServicesAmt
Management And General	$85,453	ManagementAndGeneralAmt
Fundraising	$55,795	FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$65,965,386	TotalAmt
Program Services	$48,399,528	ProgramServicesAmt
Management And General	$3,226,347	ManagementAndGeneralAmt
Fundraising	$14,339,511	FundraisingAmt

Field	Value	IRS element (for citing)
Joint Costs	Yes (X)	JointCostsInd

Total Joint Costs TotalJointCostsGrp

Field	Value	IRS element (for citing)
Total	$1,666,170	TotalAmt
Program Services	$666,468	ProgramServicesAmt
Management And General	$0	ManagementAndGeneralAmt
Fundraising	$999,702	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$3,683,724	BOYAmt
EOY	$4,374,392	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$5,439,147	BOYAmt
EOY	$1,562,462	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$4,099,385	BOYAmt
EOY	$4,089,647	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$1,783,069	BOYAmt
EOY	$2,604,547	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$5,562,800	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$4,548,501	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$1,385,357	BOYAmt
EOY	$1,014,299	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$49,996,486	BOYAmt
EOY	$44,214,583	EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

Field	Value	IRS element (for citing)
BOY	$76,213	BOYAmt
EOY	$76,213	EOYAmt

Intangible Assets IntangibleAssetsGrp

Field	Value	IRS element (for citing)
BOY	$73,096	BOYAmt
EOY	$10,442	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$24,911	BOYAmt
EOY	$24,911	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$66,561,388	BOYAmt
EOY	$57,971,496	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$7,034,528	BOYAmt
EOY	$7,831,569	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$2,040,021	BOYAmt
EOY	$1,079,496	EOYAmt

Deferred Revenue DeferredRevenueGrp

Field	Value	IRS element (for citing)
BOY	$3,550,230	BOYAmt
EOY	$4,618,055	EOYAmt

Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp

Field	Value	IRS element (for citing)
BOY	$9,375,467	BOYAmt
EOY	$10,768,117	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$36,167,306	BOYAmt
EOY	$30,238,789	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$58,167,552	BOYAmt
EOY	$54,536,026	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows FASB117	Yes (X)	OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$4,593,741	BOYAmt
EOY	-$1,508,923	EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$3,800,095	BOYAmt
EOY	$4,944,393	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$8,393,836	BOYAmt
EOY	$3,435,470	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$66,561,388	BOYAmt
EOY	$57,971,496	EOYAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part XI	Yes (X)	InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss	-$5,609,142	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	$370,489	NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets	$280,287	OtherChangesInNetAssetsAmt
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	0	AccountantCompileOrReviewInd
FS Audited	Yes (1)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Separate Basis Fincl Stmt	Yes (X)	SeparateBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (1)	AuditCommitteeInd
Federal Grant Audit Required	0	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$51,829,703	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$60,181,680	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$59,144,929	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$56,761,618	CurrentTaxYearMinus1YearAmt
Current Tax Year	$54,195,181	CurrentTaxYearAmt
Total	$282,113,111	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$51,829,703	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$60,181,680	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$59,144,929	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$56,761,618	CurrentTaxYearMinus1YearAmt
Current Tax Year	$54,195,181	CurrentTaxYearAmt
Total	$282,113,111	TotalAmt

Field	Value	IRS element (for citing)
Substantial Contributors Tot	$4,778,195	SubstantialContributorsTotAmt
Public Support Total170	$277,334,916	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$1,042,846	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$968,429	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$1,684,474	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$2,629,877	CurrentTaxYearMinus1YearAmt
Current Tax Year	$2,224,872	CurrentTaxYearAmt
Total	$8,550,498	TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus2 Years	$10,004	CurrentTaxYearMinus2YearsAmt
Total	$10,004	TotalAmt

Other Income170 OtherIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$2,950	CurrentTaxYearMinus4YearsAmt
Total	$2,950	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$290,676,563	TotalSupportAmt
Public Support CY170	0.95410	PublicSupportCY170Pct
Public Support PY170	0.97240	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:	FormAndLineReferenceDesc
Explanation	GAMING EVENTS - 2020 AMOUNT: $ 2,950.	ExplanationTxt

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule C IRS990ScheduleC

Total Direct Lobbying TotalDirectLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$998,305	FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$998,305	FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$47,401,223	FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$48,399,528	FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$1,000,000	FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$250,000	FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$1,000,000	CurrentYearMinus3Amt
Current Year Minus2	$1,000,000	CurrentYearMinus2Amt
Current Year Minus1	$1,000,000	CurrentYearMinus1Amt
Current Year	$1,000,000	CurrentYearAmt
Total	$4,000,000	TotalAmt

Field	Value	IRS element (for citing)
Lobbying Ceiling	$6,000,000	LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$486,336	CurrentYearMinus3Amt
Current Year Minus2	$869,855	CurrentYearMinus2Amt
Current Year Minus1	$847,575	CurrentYearMinus1Amt
Current Year	$998,305	CurrentYearAmt
Total	$3,202,071	TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$250,000	CurrentYearMinus3Amt
Current Year Minus2	$250,000	CurrentYearMinus2Amt
Current Year Minus1	$250,000	CurrentYearMinus1Amt
Current Year	$250,000	CurrentYearAmt
Total	$1,000,000	TotalAmt

Field	Value	IRS element (for citing)
Grassroots Ceiling	$1,500,000	GrassrootsCeilingAmt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$816,802	BeginningYearBalanceAmt
Investment Earnings Or Losses	$77,476	InvestmentEarningsOrLossesAmt
Administrative Expenses	$104,045	AdministrativeExpensesAmt
End Year Balance	$790,233	EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$982,396	BeginningYearBalanceAmt
Contributions	$24,380	ContributionsAmt
Investment Earnings Or Losses	$133,867	InvestmentEarningsOrLossesAmt
Other Expenditures	$312,379	OtherExpendituresAmt
Administrative Expenses	$11,462	AdministrativeExpensesAmt
End Year Balance	$816,802	EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$1,191,057	BeginningYearBalanceAmt
Investment Earnings Or Losses	-$195,884	InvestmentEarningsOrLossesAmt
Administrative Expenses	$12,777	AdministrativeExpensesAmt
End Year Balance	$982,396	EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$1,077,753	BeginningYearBalanceAmt
Investment Earnings Or Losses	$126,644	InvestmentEarningsOrLossesAmt
Administrative Expenses	$13,340	AdministrativeExpensesAmt
End Year Balance	$1,191,057	EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$929,020	BeginningYearBalanceAmt
Investment Earnings Or Losses	$160,235	InvestmentEarningsOrLossesAmt
Administrative Expenses	$11,502	AdministrativeExpensesAmt
End Year Balance	$1,077,753	EndYearBalanceAmt

Field	Value	IRS element (for citing)
Prmnnt Endowment Balance EOY	1.00000	PrmnntEndowmentBalanceEOYPct
Endowments Held Unrelated Org	0	EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org	0	EndowmentsHeldRelatedOrgInd

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$5,562,800	OtherCostOrOtherBasisAmt
Depreciation	$4,548,501	DepreciationAmt
Book Value	$1,014,299	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$1,014,299	TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)

DescDesc	AmtAmt
ACCRUED PENSION COST	$30,234,092
OPERATING LEASE LIABILITY	$4,697

Field	Value	IRS element (for citing)
Total Liability	$30,238,789	TotalLiabilityAmt
Footnote Text	Yes (X)	FootnoteTextInd
Total Rev Etc Audited Fincl Stmt	$61,883,434	TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst	$370,489	NetUnrealizedGainsInvstAmt
Donated Services And Use Fclts	$1,209,500	DonatedServicesAndUseFcltsAmt
Other Revenue	$171,847	OtherRevenueAmt
Revenue Not Reported	$1,751,836	RevenueNotReportedAmt
Revenue Subtotal	$60,131,598	RevenueSubtotalAmt
Investment Expenses Not Incld	$174,986	InvestmentExpensesNotIncldAmt
Other Revenues Not Included	$49,660	OtherRevenuesNotIncludedAmt
Revenue Not Reported Fincl Stmt	$224,646	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$60,356,244	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$66,841,800	TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts	$1,209,500	DonatedServicesUseFcltsAmt
Other Expenses Included	-$49,660	OtherExpensesIncludedAmt
Expenses Not Reported	$1,159,840	ExpensesNotReportedAmt
Expenses Subtotal	$65,681,960	ExpensesSubtotalAmt
Investment Expenses Not Incld2	$174,986	InvestmentExpensesNotIncld2Amt
Other Expenses Not Included	$108,440	OtherExpensesNotIncludedAmt
Expenses Not Rpt Fincl Stmt	$283,426	ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990	$65,965,386	TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART V, LINE 4:	THE ASSOCIATION'S ENDOWMENT CONSISTS OF ONE INDIVIDUAL FUND ESTABLISHED TO SUPPORT DUCHENNE MUSCULAR DYSTROPHY RESEARCH THAT HAS BEEN APPROVED FOR FUNDING BY THE ASSOCIATION. THE ASSOCIATION MANAGES THIS ENDOWMENT IN ACCORDANCE WITH THE NEW YORK PRUDENT MANAGEMENT OF INSTITUTIONAL FUNDS ACT (NYPMIFA). THE ASSOCIATION HAS INTERPRETED NYPMIFA AS ALLOWING IT TO APPROPRIATE FOR FUTURE EXPENDITURE OR TO ACCUMULATE SO MUCH OF DONOR-RESTRICTED ENDOWMENT FUNDS AS IS PRUDENT FOR THE USES, BENEFITS, PURPOSES AND DURATION FOR WHICH THE ENDOWMENT FUND IS ESTABLISHED, SUBJECT TO THE INTENT OF THE DONOR AS EXPRESSED IN THE GIFT INSTRUMENT AND ABSENT EXPLICIT DONOR STIPULATIONS TO THE CONTRARY. PER THE DONOR'S DESIGNATION, THE ASSOCIATION IS TO DISBURSE APPROXIMATELY 85% OF ANNUAL NET INCOME OF ITS ENDOWED FUND AND THE REMAINING 15% RETURNS TO PRINCIPAL.
PART X, LINE 2:	U.S. GAAP PROVIDES ACCOUNTING AND DISCLOSURE GUIDANCE ABOUT POSITIONS TAKEN BY AN ORGANIZATION IN ITS TAX RETURNS THAT MIGHT BE UNCERTAIN. MANAGEMENT HAS CONSIDERED ITS TAX POSITIONS AND BELIEVES THAT ALL OF THE POSITIONS TAKEN BY THE ASSOCIATION IN ITS FEDERAL AND STATE EXEMPT ORGANIZATION TAX RETURNS ARE MORE LIKELY THAN NOT TO BE SUSTAINED UPON EXAMINATION. THE ASSOCIATION'S RETURNS FOR YEARS ENDED DECEMBER 31, 2024, 2023, 2022, 2021 ARE OPEN FOR EXAMINATION BY FEDERAL AND STATE TAXING AUTHORITIES, WHICH GENERALLY IS FOR THREE YEARS AFTER THEY ARE FILED. IF APPLICABLE, THE ASSOCIATION WOULD RECOGNIZE INTEREST AND PENALTIES ASSOCIATED WITH TAX MATTERS AS PART OF GENERAL AND ADMINISTRATIVE EXPENSES AND WOULD INCLUDE ACCRUED INTEREST AND PENALTIES IN ACCRUED EXPENSES. MANAGEMENT HAS ANALYZED THE TAX POSITIONS TAKEN BY THE ASSOCIATION AND HAS CONCLUDED THAT, AS OF DECEMBER 31, 2024, THERE ARE NO UNCERTAIN TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN THAT WOULD REQUIRE RECOGNITION OF A LIABILITY (OR ASSET) OR DISCLOSURE IN THE FINANCIAL STATEMENTS.
PART XI, LINE 2D - OTHER ADJUSTMENTS:	CHANGES IN UNRECOGNIZED BENEFIT PLAN COSTS 280,287. FUNDRAISING EXPENSES -108,440.
PART XI, LINE 4B - OTHER ADJUSTMENTS:	SUBLEASE RENTAL 49,660.
PART XII, LINE 2D - OTHER ADJUSTMENTS:	SUBLEASE RENTAL -49,660.
PART XII, LINE 4B - OTHER ADJUSTMENTS:	FUNDRAISING EXPENSES 108,440.

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (3 entries)

RegionRegionTxt	Type Of Activities ConductedTypeOfActivitiesConductedTxt	Specific Services ProvidedSpecificServicesProvidedTxt	Region Total ExpendituresRegionTotalExpendituresAmt
EAST ASIA AND THE PACIFIC	PROGRAM SERVICES	RESEARCH GRANT	$322,240
EUROPE	PROGRAM SERVICES	RESEARCH GRANT	$838,815
NORTH AMERICA	PROGRAM SERVICES	RESEARCH GRANT	$816,052

Field	Value	IRS element (for citing)
Subtotal Offices	0	SubtotalOfficesCnt
Subtotal Employees	0	SubtotalEmployeesCnt
Continuation Total Office	0	ContinuationTotalOfficeCnt
Continuation Total Employee	0	ContinuationTotalEmployeeCnt
Total Office	0	TotalOfficeCnt
Total Employee	0	TotalEmployeeCnt
Subtotal Spent	$1,977,107	SubtotalSpentAmt
Continuation Spent	$0	ContinuationSpentAmt
Total Spent	$1,977,107	TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (3 entries)

RegionRegionTxt	Purpose Of GrantPurposeOfGrantTxt	Cash GrantCashGrantAmt	Manner Of Cash DisbursementMannerOfCashDisbursementTxt	Non Cash AssistanceNonCashAssistanceAmt
EAST ASIA AND THE PACIFIC	RESEARCH	$322,240	CHECK/WIRE	$0
EUROPE	RESEARCH	$838,815	CHECK/WIRE	$0
NORTH AMERICA	RESEARCH	$868,796	CHECK/WIRE	$0

Field	Value	IRS element (for citing)
Total501c3 Org	0	Total501c3OrgCnt
Total Other Org	25	TotalOtherOrgCnt
Transfer To Foreign Corp	0	TransferToForeignCorpInd
Interest In Foreign Trust	0	InterestInForeignTrustInd
Foreign Corp Ownership	0	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	0	PassiveForeignInvestmestCoInd
Foreign Partnership	0	ForeignPartnershipInd
Boycott Countries	0	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES.	ExplanationTxt

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Mail Solicitations	Yes (X)	MailSolicitationsInd
Email Solicitations	Yes (X)	EmailSolicitationsInd
Phone Solicitations	Yes (X)	PhoneSolicitationsInd
Special Fundraising Events	Yes (X)	SpecialFundraisingEventsInd
Agrmt Prof Fundraising Acty	0	AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp

Organization Business Name OrganizationBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	PURSUANT GROUP	BusinessNameLine1Txt

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	PO BOX 120519	AddressLine1Txt
City	DALLAS	CityNm
State Abbreviation	TX	StateAbbreviationCd
ZIP	75312	ZIPCd

Field	Value	IRS element (for citing)
Activity	CONSULTANT FOR FUNDRAISING STRATEGIES	ActivityTxt
Fundraiser Control Of Funds	0	FundraiserControlOfFundsInd
Gross Receipts	$305,682	GrossReceiptsAmt
Retained By Contractor	$36,625	RetainedByContractorAmt
Net To Organization	$269,057	NetToOrganizationAmt

Field	Value	IRS element (for citing)
Total Gross Receipts	$305,682	TotalGrossReceiptsAmt
Total Retained By Contractors	$36,625	TotalRetainedByContractorsAmt
Total Net To Organization	$269,057	TotalNetToOrganizationAmt
Licensed States	AL	LicensedStatesCd
Licensed States	AK	LicensedStatesCd
Licensed States	AZ	LicensedStatesCd
Licensed States	CA	LicensedStatesCd
Licensed States	CO	LicensedStatesCd
Licensed States	CT	LicensedStatesCd
Licensed States	DE	LicensedStatesCd
Licensed States	FL	LicensedStatesCd
Licensed States	GA	LicensedStatesCd
Licensed States	HI	LicensedStatesCd
Licensed States	ID	LicensedStatesCd
Licensed States	IL	LicensedStatesCd
Licensed States	IN	LicensedStatesCd
Licensed States	IA	LicensedStatesCd
Licensed States	KS	LicensedStatesCd
Licensed States	KY	LicensedStatesCd
Licensed States	LA	LicensedStatesCd
Licensed States	ME	LicensedStatesCd
Licensed States	MD	LicensedStatesCd
Licensed States	MA	LicensedStatesCd
Licensed States	MI	LicensedStatesCd
Licensed States	MN	LicensedStatesCd
Licensed States	MO	LicensedStatesCd
Licensed States	MT	LicensedStatesCd
Licensed States	NE	LicensedStatesCd
Licensed States	NV	LicensedStatesCd
Licensed States	NJ	LicensedStatesCd
Licensed States	NM	LicensedStatesCd
Licensed States	NY	LicensedStatesCd
Licensed States	NC	LicensedStatesCd
Licensed States	ND	LicensedStatesCd
Licensed States	OH	LicensedStatesCd
Licensed States	OK	LicensedStatesCd
Licensed States	OR	LicensedStatesCd
Licensed States	PA	LicensedStatesCd
Licensed States	RI	LicensedStatesCd
Licensed States	SC	LicensedStatesCd
Licensed States	SD	LicensedStatesCd
Licensed States	TN	LicensedStatesCd
Licensed States	UT	LicensedStatesCd
Licensed States	VA	LicensedStatesCd
Licensed States	WA	LicensedStatesCd
Licensed States	WV	LicensedStatesCd
Licensed States	WI	LicensedStatesCd
Licensed States	WY	LicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Event1	SPECIAL EVENTS	Event1Nm
Gross Receipts Event1	$16,795,580	GrossReceiptsEvent1Amt
Charitable Contri Event1	$13,971,566	CharitableContriEvent1Amt
Gross Revenue Event1	$2,824,014	GrossRevenueEvent1Amt
Non Cash Prizes Event1	$99,885	NonCashPrizesEvent1Amt
Rent Facility Costs Event1	$106,012	RentFacilityCostsEvent1Amt
Food And Beverage Event1	$51,080	FoodAndBeverageEvent1Amt
Entertainment Event1	$96,365	EntertainmentEvent1Amt
Other Direct Expenses Event1	$20,444	OtherDirectExpensesEvent1Amt
Event2	DISTINGUISHED EVENTS	Event2Nm
Gross Receipts Event2	$11,642,682	GrossReceiptsEvent2Amt
Charitable Contri Event2	$11,407,141	CharitableContriEvent2Amt
Gross Revenue Event2	$235,541	GrossRevenueEvent2Amt
Non Cash Prizes Event2	$884,348	NonCashPrizesEvent2Amt
Rent Facility Costs Event2	$1,052,177	RentFacilityCostsEvent2Amt
Food And Beverage Event2	$563,592	FoodAndBeverageEvent2Amt
Entertainment Event2	$202,854	EntertainmentEvent2Amt
Other Direct Expenses Event2	$32,367	OtherDirectExpensesEvent2Amt
Other Events Total	122	OtherEventsTotalCnt
Gross Receipts Other Events	$8,689,166	GrossReceiptsOtherEventsAmt
Charitable Contri Other Events	$8,459,540	CharitableContriOtherEventsAmt
Gross Revenue Other Events	$229,626	GrossRevenueOtherEventsAmt
Non Cash Prizes Other Events	$55,590	NonCashPrizesOtherEventsAmt
Rent Fclty Costs Other Events	$276,699	RentFcltyCostsOtherEventsAmt
Food And Beverage Other Events	$86,186	FoodAndBeverageOtherEventsAmt
Entertainment Other Events	$3,854	EntertainmentOtherEventsAmt
Oth Direct Expnss Other Events	$263,390	OthDirectExpnssOtherEventsAmt
Gross Receipts Total	$37,127,428	GrossReceiptsTotalAmt
Charitable Contributions Tot	$33,838,247	CharitableContributionsTotAmt
Gross Revenue Total Events	$3,289,181	GrossRevenueTotalEventsAmt
Non Cash Prizes Total Events	$1,039,823	NonCashPrizesTotalEventsAmt
Rent Fclty Costs Total Events	$1,434,888	RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events	$700,858	FoodAndBeverageTotalEventsAmt
Entertainment Total Events	$303,073	EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events	$316,201	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$3,794,843	DirectExpenseSummaryEventsAmt
Net Income Summary	-$505,662	NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (172 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Non Cash AssistanceNonCashAssistanceAmt	Purpose Of GrantPurposeOfGrantTxt	Address Line2USAddress/AddressLine2Txt
ADVENTHEALTH ORLANDO
601 E ROLLINS STREET BOX 37	ORLANDO	FL	328031248	590724459	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS
ALL WHEELS UP INC
5575 LA JOLLA DRIVE	FRISCO	TX	75036	452492761	501(C)(3)	$75,000	$0	ADVOCACY
ANN & ROBERT H LURIE CHILDRENS HOSPITAL OF CHICAGO ATTN
KEVIN BRADEN 225 E CHICAGO BOX 4	CHICAGO	IL	60611	362170833	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
ATRIUM HEALTH FOUNDATION
208 EAST BOULEVARD	CHARLOTTE	NC	28203	566060481	501(C)(3)	$90,000	$0	RESEARCH
ATRIUM HEALTH WFB
PO BOX 604096	CHARLOTTE	NC	282604096	223849199	501(C)(3)	$30,000	$0	RESEARCH
BAYCARE MEDICAL GROUP
2985 DREW STREET MS 1027	CLEARWATER	FL	33759	593140335	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS
BAYLOR COLLEGE OF MEDICINE
PO BOX 30120 7	DALLAS	TX	753031207	741100555	501(C)(3)	$247,500	$0	MEDICAL DIAGNOSIS
BEAUMONT HEALTH SYSTEM
3535 WEST 13 MILE ROAD PEDIATRIC	ROYAL OAK	MI	48073	381459362	501(C)(3)	$25,000	$0	MOVR REGISTRY SUPPORT	ADMINISTRATION SUITE 709
BOSTON CHILDREN'S HOSPITAL
1295 BOYLSTON ST 4TH FLOOR	BOSTON	MA	033265724	042774441	501(C)(3)	$277,473	$0	RESEARCH
BRIGHAM AND WOMENS HOSPITAL RESEARCH
PO BOX 3149	BOSTON	MA	022413149	042312909	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS
CALIFORNIA PACIFIC MEDICAL CENTER FOUNDATION
PO BOX 160045	SACRAMENTO	CA	95816	942728423	501(C)(3)	$93,126	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
CAMP ALDERSGATE
2000 ALDERSGATE RD	LITTLE ROCK	AR	72205	710743209	501(C)(3)	$28,000	$0	MEDICAL DIAGNOSIS AND RESEARCH
CAMP CAVELL CONSERVANCY
3335 LAKESHORE RD	LEXINGTON	MI	48450	462336793	501(C)(3)	$36,885	$0	MEDICAL DIAGNOSIS AND RESEARCH
CAMP COLE
1571 CROSSING CREEK ROAD	EASTOVER	SC	29044	821387411	501(C)(3)	$21,750	$0	MEDICAL DIAGNOSIS AND RESEARCH
CAMP COURAGEOUS OF LOWA
12007 190TH STREET PO BOX 418	MONTICELLO	IA	52310	237210932	501(C)(3)	$53,486	$0	MEDICAL DIAGNOSIS AND RESEARCH
CAMP FOR ALL
3701 KIRBY DRIVE SUITE 570	HOUSTON	TX	77098	760404267	501(C)(3)	$37,180	$0	MEDICAL DIAGNOSIS AND RESEARCH
CAMP JOHN MARC
4925 GREENVILLE AVESUITE400	DALLAS	TX	75206	752205242	STATE OF TX	$27,819	$0	MEDICAL DIAGNOSIS AND RESEARCH
CAMP RONALD MCDONALD FOR GOOD TIMES
1250 LYMAN PLACE	LOS ANGELES	CA	90029	953167869	501(C)(3)	$45,292	$0	MEDICAL DIAGNOSIS AND RESEARCH
CEDARS-SINAI MEDICAL CENTER OFFICE OF RESEARCH ADMINISTRATION
6500 WILSHIRE BLVD STE 1150	LOS ANGELES	CA	90048	951644600	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS AND RESEARCH
CENTER FOR COURAGEOUS KIDS
1501 BURNLEY ROAD	SCOTTSVILLE	KY	42164	201789905	501(C)(3)	$15,000	$0	MEDICAL DIAGNOSIS AND RESEARCH
CHARCOT-MARIE-TOOTH ASSOCIATION
PO BOX 105	GLENOLDEN	PA	19036	222480896	501(C)(3)	$74,998	$0	RESEARCH
CHILD CRISIS ARIZONA
424 W RIO SALADO	PARKWAY MESA	AZ	85201	860324144	501(C)(3)	$36,885	$0	MEDICAL DIAGNOSIS AND RESEARCH
CHILDRENS CLINICS FOR REHABILITATIVE SERVICES
2600 NORTH WYATT DRIVE	TUCSON	AZ	85712	860667510	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
CHILDREN'S HEALTHCARE OF ATLANTA
PO BOX 101012	ATLANTA	GA	303921012	581710601	501(C)(3)	$35,000	$0	MEDICAL DIAGNOSIS
CHILDRENS HOSPITAL COLORADO MUSCLE CLINIC
13123 E 16TH AVENUE BOX 285	AURORA	CO	80045	840166760	501(C)(3)	$55,000	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
CHILDRENS HOSPITAL LOS ANGELES SPONSORED PROJECTS
4650 SUNSET BLVD MAILSTOP 97	LOS ANGELES	CA	90027	951690977	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
CHILDRENS HOSPITAL MEDICAL CENTER
3333 BURNET AVE	CINCINNATI	OH	452293039	310833963	501(C)(3)	$65,000	$0	MEDICAL DIAGNOSIS
CHILDREN'S HOSPITAL OF PHILADELPHIA DIVISION OF NEUROLOGY
3401 CIVIC CENTER BLVD	PHILADELPHIA	PA	19104	231352166	501(C)(3)	$79,675	$0	MEDICAL DIAGNOSIS
CHILDRENS HOSPITAL OF THE KINGS DAUGHTERS INC
601 CHILDRENS LANE	NORFOLK	VA	23507	540506321	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
CHILDRENS NATIONAL MEDICAL CENTER
111 MICHIGAN AVENUE NW	WASHINGTON	DC	20010	521640403	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS
CHILDREN'S RESEARCH INSTITUTE (CNMC)
111 MICHIGAN AVENUE NW	WASHINGTON	DC	20010	521654453	501(C)(3)	$187,429	$0	RESEARCH
CLINICAL NEUROLOGY
PC 4221 S WESTERN SUITE 5010	OKLAHOMA CITY	OK	73109	412141136	501(C)(3)	$75,000	$0	MEDICAL DIAGNOSIS
COLUMBIA UNIVERSITY MEDICAL CENTER
COLUMBIA UNIVERSITY 630 WEST 168TH	NEW YORK	NY	10032	135598093	501(C)(3)	$170,000	$0	RESEARCH	STREET BOX 49
CONNECTICUT CHILDREN'S MEDICAL CENTER
282 WASHINGTON STREET	HARTFORD	CT	061063322	060646755	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
COXHEALTH FOUNDATION
3525 S NATIONAL AVE SUITE 204	SPRINGFIELD	MO	65807	436810485	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
CURATORS OF THE UNIVERSITY OF MISSOURI
AR PO BOX 807012	KANSAS CITY	MO	641807012	436003859	STATE OF MO	$70,707	$0	MEDICAL DIAGNOSIS
CURE CMD
3217 E CARSON ST 1014	LAKEWOOD	CA	90712	262640975	501(C)(3)	$29,000	$0	ADVOCACY
CURE RARE DISEASE INC
4 RESEARCH DRIVE	WOODBRIDGE	CT	06525	822473513	501(C)(3)	$50,000	$0	ADVOCACY
CURE VCP DISEASE INC
209 AVONDALE CIR	WARNER ROBINS	GA	31088	824368871	501(C)(3)	$35,000	$0	ADVOCACY
DANA FARBER CANCER INSTITUTE
450 BROOKLINE AVENUE	BOSTON	MA	022155450	042263040	501(C)(3)	$100,000	$0	RESEARCH
DARTMOUTH-HITCHCOCK MEDICAL CENTER
ONE MEDICAL CENTER DRIVE	LEBANON	NH	03756	020222140	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
DENT NEUROLOGIC INSTITUTE
3980 SHERIDAN DRIVE 5TH FLOOR	AMHERST	NY	14226	161582336	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
DIGNITY HEALTH DBA ST JOSEPH'S HOSPITAL & MEDICAL CENTER
350 W THOMAS RD	PHOENIX	AZ	85013	941196203	501(C)(3)	$100,000	$0	RESEARCH
DIGNITY HEALTH ST JOSEPHS HOSPITAL AZ
MISC A/R CASE FILE 57431	LOS ANGELES	CA	900748781	860096787	501(C)(3)	$60,000	$0	MEDICAL DIAGNOSIS
DUKE UNIVERSITY MEDICAL CENTER
PO BOX 602651	CHARLOTTE	NC	282602651	562070036	501(C)(3)	$100,000	$0	RESEARCH
EASTER SEALS COLORADO
393 S HARLAN ST	LAKEWOOD	CO	80226	840412575	501(C)(3)	$37,736	$0	MEDICAL DIAGNOSIS AND RESEARCH
EMORY UNIVERSITY
1599 CLIFTON ROAD NE 4TH FLOOR	ATLANTA	GA	30322	580566256	501(C)(3)	$287,835	$0	RESEARCH	MAILSTOP
FLORIDA ELKS YOUTH CAMP INC
24175 SE HIGHWAY 450	UMATILLA	FL	32784	593415374	501(C)(3)	$36,969	$0	MEDICAL DIAGNOSIS AND RESEARCH
FORGE BIOLOGICS IN
3900 GRANTZ ROAD	GROVE CITY	OH	43123	843555353	501(C)(3)	$49,385	$0	RESEARCH
FRIEDREICH'S ATAXIA RESEARCH ALLIANCE
PO BOX 1537	SPRINGFIELD	VA	22151	522122720	501(C)(3)	$125,000	$0	RESEARCH
FSHD SOCIETY
75 NORTH MAIN STREET SUITE 1073	RANDOLPH	MA	02368	521762747	501(C)(3)	$25,500	$0	ADVOCACY
GEISINGER CLINIC
100 N ACADEMY AVE	DANVILLE	PA	178223057	236291113	501(C)(3)	$20,225	$0	MOVR REGISTRY SUPPORT
GILLETTE CHILDRENS SPECIALTY HEALTHCARE
200 EAST UNIVERSITY AVENUE	ST PAUL	MN	55101	363379150	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
HAPPINESS IS CAMPING INC
62 SUNSET LAKE RD	HARDWICK	NJ	07825	132556242	501(C)(3)	$47,470	$0	MEDICAL DIAGNOSIS AND RESEARCH
HOSPITAL FOR SPECIAL CARE
2150 CORBIN AVENUE	NEW BRITAIN	CT	06053	060646766	501(C)(3)	$60,450	$0	MEDICAL DIAGNOSIS
HOSPITAL FOR SPECIAL SURGERY
535 EAST 70TH STREET	NEW YORK	NY	10021	131624135	501(C)(3)	$56,025	$0	RESEARCH
HUDSONALPHA INSTITUTE FOR BIOTECHNOLOGY
601 GENOME WAY	HUNTSVILLE	AL	35806	432059317	501(C)(3)	$98,036	$0	RESEARCH
IDAHO PHYSICAL MEDICINE AND REHABILITATION
P O BOX 1128 ATTN	IDAHO	ID	83701	820435241		$16,050	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
INDIANA UNIVERSITY
1024 EAST 3RD STREET ROOM 132	BLOOMINGTON	IN	47405	356001673	501(C)(3)	$60,313	$0	MEDICAL DIAGNOSIS AND RESEARCH
INDIANA UNIVERSITY HEALTH INC
IU HEALTH 2227 RELIABLE PARKWAY	CHICAGO	IL	606860022	351955872	501(C)(3)	$40,000	$0	MEDICAL DIAGNOSIS
IOWA STATE UNIVERSITY OF SCIENCE AND TECHNOLOGY
1350 BEARDSHEAR HALL515 MORRILL RD	AMES	IA	500112103	426004224	STATE OF LOWA	$100,000	$0	RESEARCH
JOHNS HOPKINS ALL CHILDREN'S HOSPITAL
601 5TH STREET SOUTH SUITE 302	ST PETERSBURG	FL	34655	590683252	501(C)(3)	$15,000	$0	MEDICAL DIAGNOSIS
JOHNS HOPKINS UNIVERSITY
733 NORTH BROADWAY SUITE 117	BALTIMORE	MD	21205	520595110	501(C)(3)	$866,005	$0	MEDICAL DIAGNOSIS
KUMC RESEARCH INSTITUTE INC
3901 RAINBOW BOULEVARD MS 1039	KANSAS CITY	KS	66160	481108830	501(C)(3)	$75,000	$0	RESEARCH
LOMA LINDA UNIVERSITY
24887 TAYLOR STREET SUITE 202	LOMA LINDA	CA	92350	951816009	501(C)(3)	$60,000	$0	MEDICAL DIAGNOSIS
LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER-NEW ORLEANS
1542 TULANE AVE ROOM 763A	NEW ORLEANS	LA	70112	726087770	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
LSUHSC-SHREVEPORT NEUROLOGY ATTN JESSICA COTE
1501 KINGS HWY ROOM 3-408 C	SHREVEPORT	LA	71103	720702002	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
MAINE MEDICAL CENTER
92 CAMPUS DRIVE2ND FLOOR SUITE	SCARBOROUGH	ME	04074	010238552	501(C)(3)	$15,000	$0	MEDICAL DIAGNOSIS
MASSACHUSETTS GENERAL HOSPITAL- RESEARCH
PO BOX 414876	BOSTON	MA	022414876	042697983	501(C)(3)	$378,730	$0	MEDICAL DIAGNOSIS AND RESEARCH
MAYO CLINIC JACKSONVILLE
4500 SAN PABLO ROAD	JACKSONVILLE	FL	32224	593337028	501(C)(3)	$45,000	$0	RESEARCH
MAYO CLINIC MAYO CLINIC RESEARCH
PO BOX 860334	MINNEAPOLIS	MN	554860334	416011702	501(C)(3)	$30,000	$0	RESEARCH
MCV ASSOCIATED PHYSICIANS
1101 EAST MARSHALL STREET RM6-015	RICHMOND	VA	232980599	541581185	501(C)(3)	$40,000	$0	MEDICAL DIAGNOSIS	BOX 980599
MEDICAL COLLEGE OF WISCONSIN CONTROLLERS OFFICE
8701 WATERTOWN PLANK RD	MILWAUKEE	WI	53226	390806261	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
MEDICAL UNIVERSITY OF SOUTH CAROLINA RESEARCH & SPONSORED PROGRAMS
19 HAGOOD AVENUE SUITE 606 MSC 808	CHARLESTON	SC	294258080	576000722	501(C)(3)	$20,000	$0	MOVR REGISTRY SUPPORT
MEDSTAR GEORGETOWN UNIVERSITY HOSPITAL NEUROLOGY DEPARTMENT
3800 RESERVOIR RD NW 7TH FLOOR PHC	WASHINGTON	DC	20007	522218584	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS
METHODIST LE BONHEUR COMMUNITY OUTREACH
GARY COOK 600 JEFFERSON AVE	MEMPHIS	TN	38105	621251288	501(C)(3)	$51,125	$0	MEDICAL DIAGNOSIS
MICHIGAN STATE UNIVERSITY
426 AUDITORIUM ROAD ROOM 2 EAST	LANSING	MI	48824	386005984	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS
MILLER SCHOOL OF MEDICINE OF THE UNIVERSITY OF MIAMI
PO BOX 405803	ATLANTA	GA	303845803	590624458	501(C)(3)	$242,500	$0	RESEARCH
MONTEFIORE MEDICAL CENTER ATTN KRISTOPHER VON STEINBURG
555 S BROADWAY BLDG A 1ST FL RM	BRONX	NY	10467	131740114	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS	A1-R61
MT HOOD KIWANIS CAMP INC
10725 SW BARBUR BLVD SUITE 50	PORTLAND	OR	97219	930422242	501(C)(3)	$18,186	$0	MEDICAL DIAGNOSIS AND RESEARCH
NATIONAL ABILITY CENTER
1000 ABILITY	WAY PARK CITY	UT	84060	943025807	501(C)(3)	$22,756	$0	MEDICAL DIAGNOSIS AND RESEARCH
NATIONAL INSTITUTES OF NEUROLOGICAL DISORDERS AND STROKE NIH NINDS
PO BOX 5801	BETHESDA	MD	20824	520858115	GOVT	$98,223	$0	RESEARCH
NEMOURS FOUNDATION
10140 CENTURION PARKWAY N	JACKSONVILLE	FL	32256	590634433	501(C)(3)	$100,000	$0	MEDICAL DIAGNOSIS
NEUROLOGY LLPC
1919 S WHEELING AVENUE SUITE 707	TULSA	OK	74104	731502318		$25,000	$0	MEDICAL DIAGNOSIS
NEW YORK UNIVERSITY SCHOOL OF MEDICINE
PO BOX 415026	BOSTON	MA	022415026	135562308	STATE OF NY	$50,000	$0	MEDICAL DIAGNOSIS
NORTHWESTERN MEDICAL GROUP DEPARTMENT OF NEUROLOGY
259 E ERIE ST SUITE 1900	CHICAGO	IL	60611	363097297	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
OLIVE VIEW-UCLA EDUCATION & RESEARCH INSTITUTE
14445 OLIVE VIEW DRIVE RESEARCH	SYLMAR	CA	913421495	952249539	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS	ADMINISTRATION OFFICE
OREGON HEALTH & SCIENCE UNIVERSITY
3181 SW SAM JACKSON PARK RD MAIL	PORTLAND	OR	97239	931176109	STATE OF OR	$124,991	$0	RESEARCH	CODE L106OPAM
PINE TREE SOCIETY INC
149 FRONT STREET	BATH	ME	04530	010212442	501(C)(3)	$33,000	$0	MEDICAL DIAGNOSIS AND RESEARCH
PRISMA HEALTH GRANTS AND TRIALS
PO BOX 748580	ATLANTA	GA	303748580	811723202		$40,000	$0	MEDICAL DIAGNOSIS
RADY CHILDRENS HOSPITAL FOUNDATION - SAN DIEGO
3020 CHILDRENS WAY MC 5005	SAN DIEGO	CA	921234282	330170626	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS
RECREATION UNLIMITED FARM AND FUN
7700 PIPER ROAD	ASHLEY	OH	43003	311813336	501(C)(3)	$30,896	$0	MEDICAL DIAGNOSIS AND RESEARCH
REGENTS OF THE UNIVERSITY OF MINNESOTA
NW 5957 PO BOX 1450	MINNEAPOLIS	MN	554855957	416007513	501(C)(3)	$120,750	$0	MEDICAL DIAGNOSIS AND RESEARCH
RHODE ISLAND HOSPITAL
PO BOX H	PROVIDENCE	RI	02901	050468736	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
RUSH UNIVERSITY MEDICAL CENTER
1700 W VAN BUREN STREET SUITE 250	CHICAGO	IL	60612	362174823	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
RUTGERS THE STATE UNIVERSITY OF NEW JERSEY-RBHS-NJMS
33 KNIGHTSBRIDGE ROAD 2ND FLOOR	PISCATAWAY	NJ	08854	462354111	501(C)(3)	$50,000	$0	RESEARCH	EAST
SANFORD BURNHAM PREBYS MEDICAL DISCOVERY INSTITUTE
10901 NORTH TORREY PINES RD	LA JOLLA	CA	92037	510197108	501(C)(3)	$70,000	$0	RESEARCH
SARASOTA MEMORIAL HOSPITAL
1700 TAMIAMI TRAIL ATTN PAT BURKE	SARASOTA	FL	34239	596012500	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
SEATTLE CHILDRENS HOSPITAL
4300 ROOSEVELT WAY NE M/S RC 507	SEATTLE	WA	98105	910564748	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
SEMMES-MURPHEY CLINIC
PO BOX 1000 DEPT 575	MEMPHIS	TN	38148	911770750	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
SHRINERS HOSPITAL FOR CHILDREN PORTLAND
3101 SW SAM JACKSON PARK RD	PORTLAND	OR	97239	362193608	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
SIERRA NEVADA JOURNEYS
PO BOX 1631	RENO	NV	89505	010881587	501(C)(3)	$61,215	$0	MEDICAL DIAGNOSIS AND RESEARCH
SOCIETY FOR MUSCLE BIOLOGY
6120 EXECUTIVE BLVD SUITE 725	ROCKVILLE	MD	20852	753027179	501(C)(3)	$10,000	$0	RESEARCH
SPECTRUM HEALTH FOUNDATION
100 MICHIGAN NE MC 004	GRAND RAPIDS	MI	49503	382752328	501(C)(3)	$15,000	$0	MEDICAL DIAGNOSIS
ST CHARLES HOSPITAL FOUNDATION
200 BELLE TERRE ROAD	PORT JEFFERSON	NY	11777	412076312	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
ST JUDE CHILDRENS RESEARCH HOSPITAL INC
262 DANNY THOMAS PLACE	MEMPHIS	TN	381053678	620646012	501(C)(3)	$50,000	$0	RESEARCH
ST LUKES HEALTH SYSTEM
PO BOX 1663	IDAHO	ID	837011663	452716222	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
ST PETERS HOSPITAL ST PETERS HEALTH PARTNERS CENTER FOR PHILANTHROPY
310 S MANNING BLVD	ALBANY	NY	12208	222262982	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
STANDFORD UNIVERSITY
PO BOX 884253	LOS ANGELES	CA	900884253	941156365	501(C)(3)	$42,116	$0	RESEARCH
STANFORD CHILD HEALTH RESEARCH INSTITUTE
4100 BOHANNON RD MAIL CODE 5894	MENLO PARK	CA	94025	911770752	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
STANFORD HEALTH CARE
315 MONTGOMERY STREET	SAN FRANCISCO	CA	94104	946174066	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
TEMPLE UNIVERSITY
PO BOX 22432	NEW YORK	NY	100872432	231365971	501(C)(3)	$50,100	$0	MOVR REGISTRY SUPPORT
TEXAS NEUROLOGY PA
MD 6080 NORTH CENTRAL EXPRESSWAY	DALLAS	TX	75206	752654757	501(C)(3)	$56,050	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT	SUITE 100
THE AKARI FOUNDATION
15007 PEOPLES DRIVE	SAN ANTONIO	TX	78253	822557369	501(C)(3)	$40,000	$0	ADVOCACY
THE AMERICAN SOCIETY OF GENE & CELL THERAPY (ASGCT)
20800 SWENSON DRIVE SUITE 300	WAUKESHA	WI	53186	911766321	501(C)(3)	$75,000	$0	RESEARCH
THE BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM
UW-MADISON GAR ACCOUNT OFFICE FOR	MILWAUKEE	WI	532780538	396006492	501(C)(3)	$25,650	$0	MEDICAL DIAGNOSIS	RESEARCH SPONSORED PROGRAMS DRAWER
THE BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS - UNIV OF ILLINOI AT C
28395 NETWORK PLACE	CHICAGO	IL	606731283	376000511	STATE OF IL	$274,944	$0	RESEARCH
THE METHODIST HOSPITAL FOUNDATION METHODIST NEUROLOGICAL INSTITUTE
6560 FANNIN STREET 802	HOUSTON	TX	77030	571201170	501(C)(3)	$100,000	$0	MEDICAL DIAGNOSIS
THE METROHEALTH SYSTEM
PO BOX 73308	CLEVELAND	OH	44193	346004382	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS
THE OHIO UNIVERSITY
1072 GRAVES HALL 333 W 10TH AVE	COLUMBUS	OH	43210	316025986	STATE OF OHIO	$115,350	$0	MEDICAL DIAGNOSIS AND RESEARCH
THE PAINTED TURTLE
1300 4TH STREET SUITE 300	SANTA MONICA	CA	90401	954612481	501(C)(3)	$65,000	$0	MEDICAL DIAGNOSIS AND RESEARCH
THE PENNSYLVANIA STATE UNIVERSITY COLLEGE OF MEDICINE
MAIL CODE H157 500 UNIVERSITY DRIVE	HERSHEY	PA	17033	246000376	STATE OF PA	$35,000	$0	RESEARCH
THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGINIA
PO BOX 400195	CHARLOTTESVILLE	VA	229044195	546001796	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA (IRVINE)
228 ALDRICH HALL	IRVINE	CA	926971050	952226406	501(C)(3)	$227,625	$0	RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES
1125 MURPHY HALL 405 HILGARD AVENUE	LOS ANGELES	CA	900959000	956006143	501(C)(3)	$320,990	$0	RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DRIVE DEPT 0934 USCD	LA JOLLA	CA	920930934	956006144	501(C)(3)	$30,000	$0	RESEARCH	FUND 8987EA
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
PO BOX 748872	LOS ANGELES	CA	900744872	946036493	501(C)(3)	$200,792	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA -UNIVERSITY OF CALIFORNIA DAVIS
1850 RESEARCH PARK DRIVE SUITE 300	DAVIS	CA	95618	946036494	501(C)(3)	$344,440	$0	RESEARCH
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
BOX 223131 PAF 17-PAF00659	PITTSBURGH	PA	152512131	386006309	501(C)(3)	$124,826	$0	RESEARCH
THE RESEARCH FOUNDATION ON BEHALF OF SUNY
CAB209 750 EAST ADAMS STREET	SYRACUSE	NY	13210	141368361	501(C)(3)	$103,312	$0	RESEARCH
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL
PO BOX 78000	DETROIT	MI	482781653	316056230	501(C)(3)	$50,000	$0	RESEARCH
THE TRUSTEES OF COLUMBIA UNIVERSITY
PO BOX 29789 GENERAL POST OFFICE	NEW YORK	NY	100879789	135598093	501(C)(3)	$276,004	$0	MEDICAL DIAGNOSIS
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1600 7TH AVENUE S LOWDER 608 ATTN	BIRMINGHAM	AL	35233	636005396	STATE OF AL	$30,000	$0	MEDICAL DIAGNOSIS	TRINA IRBY
THE UNIVERSITY OF IOWA
2410 UCC 201 ST CLINTON	IOWA CITY	IA	522424034	426004813	501(C)(3)	$355,139	$0	RESEARCH & MOVR REGISTRY SUPPORT
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DR SUITE 2200 CAMPUS	CHAPEL HILL	NC	275991350	566001393	501(C)(3)	$35,000	$0	RESEARCH	BOX 1350
THOMAS JEFFERSON UNIVERSITY
1101 MARKET STREET 29TH FLOOR	PHILADELPHIA	PA	191072934	231352651	501(C)(3)	$70,000	$0	RESEARCH
TIMBER POINTE OUTDOOR CENTER
TIMBER POINTE LANE	HUDSON	IL	61748	370686250	501(C)(3)	$52,603	$0	MEDICAL DIAGNOSIS AND RESEARCH
TRUE FRIENDS
10509 108TH ST NW	ANNANDALE	MN	55302	411543013	501(C)(3)	$40,708	$0	MEDICAL DIAGNOSIS AND RESEARCH
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET FRANKLIN	PHILADELPHIA	PA	19104	231352685	501(C)(3)	$150,000	$0	RESEARCH	BUILDING 5TH FLOOR
TRUSTEES OF TUFTS COLLEGE
136 HARRISON AVE	BOSTON	MA	02111	042103634	501(C)(3)	$99,958	$0	RESEARCH
UMASS CHAN MEDICAL SCHOOL
55 LAKE AVENUE	NORTH WORCESTER	MA	01655	043167352	STATE OF MA	$85,000	$0	MEDICAL DIAGNOSIS AND RESEARCH
UNIVERSITY HOSPITAL BROOKLYN SUNY DOWNSTATE MED CTR
450 CLARKSON AVENUE BOX 35	BROOKLYN	NY	11203	146013200	STATE OF NY	$35,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY NEUROLOGY INC
77 GOODELL ST SUITE 310	BUFFALO	NY	14203	161359213	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 7TH AVENUE SOUTH SC 460A	BIRMINGHAM	AL	35233	636005396	STATE OF AL	$38,700	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF ARKANSAS FOR MEDICAL SCIENCES
4301 WEST MARKHAM STREET 812	LITTLE ROCK	AR	72205	716046242	STATE OF AR	$30,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF CINCINNATI PHYSICIANS
260 STETSON STREET SUITE 2300 ML	CINCINNATI	OH	45219	273850988	501(C)(3)	$35,000	$0	MEDICAL DIAGNOSIS	0525
UNIVERSITY OF COLORADO DENVER
170801-SR PO BOX 910238	DENVER	CO	802910238	846000555	STATE OF CO	$100,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF FLORIDA
33 TIGERT HALL	GAINESVILLE	FL	32611	596002052	STATE OF FLORIDA	$277,093	$0	RESEARCH
UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC
3901 RAINBOW BOULEVARD MS 1039	KANSAS CITY	KS	66160	481108830	501(C)(3)	$509,357	$0	RESEARCH
UNIVERSITY OF MIAMI
PO BOX 405803	ATLANTA	GA	303845803	590624458	501(C)(3)	$127,300	$0	RESEARCH
UNIVERSITY OF MISSISSIPPI MEDICAL CENTER
POST-AWARD 2500 NORTH STATE STREET	JACKSON	MS	392164505	646008520	STATE OF MS	$20,000	$0	MEDICAL DIAGNOSIS RESEARCH AND REGISTRY SUPPORT
UNIVERSITY OF NEBRASKA MEDICAL CENTER
988435 NEBRASKA MEDICAL CENTER	OMAHA	NE	681988435	470049123	STATE OF NE	$35,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF NEW MEXICO HSC
1 UNIVERSITY OF NEW MEXICO MSC09	ALBUQUERQUE	NM	871310001	856000642	STATE OF NM	$35,000	$0	MEDICAL DIAGNOSIS	5225
UNIVERSITY OF PEDIATRICIANS RDM ASSOCIATES
7457 M E CAD BLVD STE 200	CLARKSON	MI	48348	383336414	501(C)(3)	$15,000	$0	MOVR REGISTRY SUPPORT
UNIVERSITY OF PITTSBURGH
PO BOX 640458	PITTSBURGH	PA	152640458	250965591	501(C)(3)	$119,400	$0	RESEARCH
UNIVERSITY OF ROCHESTER
910 GENESEE STREET SUITE 200	ROCHESTER	NY	146113847	160743209	501(C)(3)	$629,682	$0	RESEARCH
UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO
7703 FLOYD CURL DRIVE MSC 7828	SAN ANTONIO	TX	782293900	741586031	STATE OF TX	$75,300	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF UTAH ATTN PEDIATRIC NEUROLOGY
PO BOX 581374	SALT LAKE CITY	UT	84158	876000525	STATE OF UT	$85,000	$0	MEDICAL DIAGNOSIS AND RESEARCH
UNIVERSITY OF VERMONT MEDICAL CENTER
PO BOX 1902	BURLINGTON	VT	054011902	030219309	STATE OF VT	$20,000	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
UNIVERSITY OF WASHINGTON
4333 BROOKLYN AVE NE BOX 359472	SEATTLE	WA	98195	916001537	STATE OF WA	$481,076	$0	RESEARCH
UNIVERSITY OF WASHINGTON MEDICAL CENTER REHABILITATION MEDICINE CLINIC
BOX 356143 1959 NE PACIFIC	SEATTLE	WA	981956143	916001537	STATE OF WA	$50,000	$0	MEDICAL DIAGNOSIS
UT SOUTHWESTERN MEDICAL CENTER
PO BOX 841765 1950 N STEMMONS	DALLAS	TX	75207	756002868	STATE OF TX	$190,000	$0	MEDICAL DIAGNOSIS	FREEWAY STE 5010
VANDERBILT UNIVERSITY MEDICAL CENTER
PO BOX 121236	DALLAS	TX	753121236	352528741	501(C)(3)	$140,383	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
VARIETY - THE CHILDRENS CHARITY OF THE DELAWARE VALLEY
PO BOX 609 2950 POTSHOP ROAD	WORCESTER	PA	19490	231556195	501(C)(3)	$46,814	$0	MEDICAL DIAGNOSIS AND RESEARCH
VICTORY JUNCTION GANG CAMP
4500 ADAMS WAY	RANDLEMAN	NC	27317	562215292	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS AND RESEARCH
VIRGINIA COMMONWEALTH UNIVERSITY
800 EAST LEIGH STREET SUITE 3100	RICHMOND	VA	232843039	546001758	STATE OF VA	$99,811	$0	RESEARCH
WASHINGTON UNIVERSITY IN ST LOUIS
700 ROSEDALE AVE CAMPUS BOX 1034	ST LOUIS	MO	63112	430653611	501(C)(3)	$142,459	$0	RESEARCH
WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY
1300 YORK AVENUE BOX 89	NEW YORK	NY	10065	131623978	501(C)(3)	$100,000	$0	RESEARCH
WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION
886 CHESTNUT RIDGE ROAD	MORGANTOWN	WV	26506	550665758	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS
WONDERLAND CAMP & CONFERENCE CENTER
9241 CAMP LAKE ROAD	SALEM	WI	53168	362167909	CHURCH	$24,182	$0	MED
YALE UNIVERSITY
PO BOX 208087	NEW HAVEN	CT	065208087	060646973	501(C)(3)	$197,592	$0	MEDICAL DIAGNOSIS AND RESEARCH
YMCA CAMP SEYMOUR
9725 CRAMER RD NW GIG	HARBOUR	WA	98329	910565562	501(C)(3)	$42,808	$0	MEDICAL DIAGNOSIS AND RESEARCH

Field	Value	IRS element (for citing)
Total501c3 Org	169	Total501c3OrgCnt
Total Other Org	3	TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES.	ExplanationTxt

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Compensation Committee	Yes (X)	CompensationCommitteeInd
Independent Consultant	Yes (X)	IndependentConsultantInd
Written Employment Contract	Yes (X)	WrittenEmploymentContractInd
Compensation Survey	Yes (X)	CompensationSurveyInd
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	0	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	0	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	0	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	0	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	0	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	0	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	0	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	Yes (1)	AnyNonFixedPaymentsInd
Initial Contract Exception	0	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (8 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Bonus Related OrganizationsBonusRelatedOrganizationsAmt	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
DONALD WOOD
PRESIDENT & CEO	$529,139	$0	$105,000	$0	$0	$0	$0	$0	$33,459	$0	$667,598	$0	$0	$0
MICHAEL KENNEDY
TREASURER & CFO	$370,354	$0	$75,000	$0	$0	$0	$30,500	$0	$34,517	$0	$510,371	$0	$0	$0
HENRY LANMAN
SEC. & CHIEF LEGAL OFFICER	$371,458	$0	$0	$0	$1,000	$0	$30,500	$0	$594	$0	$403,552	$0	$0	$0
SHARON HESTERLEE
CHIEF RESEARCH OFFICER	$245,982	$0	$39,804	$0	$0	$0	$28,417	$0	$34,076	$0	$348,279	$0	$0	$0
RUTH DAILEY
CHIEF DEVELOPMENT OFFICER	$279,285	$0	$0	$0	$0	$0	$27,940	$0	$917	$0	$308,142	$0	$0	$0
PERIPEDES GONDIM
VP, HUMAN RESOURCES & VOLUNTEERS	$232,482	$0	$35,819	$0	$0	$0	$30,500	$0	$571	$0	$299,372	$0	$0	$0
MARY ROTH
CHIEF MARKETING OFFICER	$228,089	$0	$13,800	$0	$0	$0	$30,500	$0	$17,936	$0	$290,325	$0	$0	$0
NORA CAPOCCI
VP, HEALTHCARE SERVICES	$199,800	$0	$30,784	$0	$5,200	$0	$23,000	$0	$594	$0	$259,378	$0	$0	$0

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 7	FormAndLineReferenceDesc
Explanation	INCLUDED ON SCHEDULE J, PART II, COLUMN B(II) REPRESENTS EMPLOYEE BONUSES BASED ON INDIVIDUAL AND ORGANIZATIONAL PERFORMANCE METRICS. THESE PAYMENTS ARE SUBJECT TO FINAL BOARD APPROVAL.	ExplanationTxt

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	1865	ContributionCnt
Noncash Contributions Rpt F990	$117,215	NoncashContributionsRptF990Amt
Method Of Determining Revenues	FMV	MethodOfDeterminingRevenuesTxt

Other Non Cash Contri Table OtherNonCashContriTableGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Desc	AUCTION ITEMS	Desc
Contribution	640	ContributionCnt
Noncash Contributions Rpt F990	$641,539	NoncashContributionsRptF990Amt
Method Of Determining Revenues	FMV	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Any Property That Must Be Held	0	AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts	0	ReviewProcessUnusualNCGiftsInd
Third Parties Used	0	ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, COLUMN (B):	FormAndLineReferenceDesc
Explanation	COLUMN B REPRESENTS NUMBER OF CONTRIBUTIONS.	ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
FORM 990, PART I, LINE 1	MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS THE #1 VOLUNTARY HEALTH ORGANIZATION IN THE UNITED STATES FOR PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. FOR OVER 70 YEARS, MDA HAS LED THE WAY IN ACCELERATING RESEARCH, ADVANCING CARE, AND ADVOCATING FOR THE SUPPORT OF OUR FAMILIES. MDA'S MISSION IS TO EMPOWER THE PEOPLE WE SERVE TO LIVE LONGER, MORE INDEPENDENT LIVES.
FORM 990, PART VI, SECTION B, LINE 11B	ALL BOARD MEMBERS WERE PROVIDED A COPY OF THE FEDERAL FORM 990 BEFORE FILING WITH THE IRS.
FORM 990, PART VI, SECTION B, LINE 12C	THE CONFLICT OF INTEREST POLICY IS MONITORED BY THE HUMAN RESOURCES DEPARTMENT IN CONJUNCTION WITH LEGAL. BOARD MEMBERS ARE REQUIRED TO SIGN AN CONFLICT OF INTEREST DISCLOSURE ANNUALLY. WHEN A CONFLICT OF INTEREST ARISES, THE PERSON WITH THE CONFLICT IS REQUIRED TO RECUSE HIS/HERSELF FROM THE MATTER AND DISCUSSION INVOLVED.
FORM 990, PART VI, SECTION B, LINE 15	MDA HAS A COMPENSATION COMMITTEE OF THE GOVERNING BOARD THAT REVIEWS THE CEO AND EXECUTIVE TEAM COMPENSATION. A COMPENSATION STUDY IS COMPLETED BY AN INDEPENDENT CONSULTANT AND REVIEWED WITH THE COMPENSATION COMMITTEE. ANNUAL REVIEWS ARE COMPLETED AND CONTRACTS ARE AMENDED AS THEY EXPIRE.
FORM 990, PART VI, SECTION C, LINE 19	GOVERNING DOCUMENTS AND THE CONFLICT OF INTEREST POLICIES ARE INTERNAL DOCUMENTS. COPIES OF THE AUDITED FINANCIAL STATEMENTS ARE AVAILABLE ON MDA'S WEBSITE.
FORM 990, PART XI, LINE 9:	CHANGE IN UNRECOGNIZED BENEFIT PLAN COSTS 280,287.