HYDROCEPHALUS ASSOCIATION INCORPORATED: Form 990, tax year 2024
View the entire original 990 at ProPublica ↗
- Organization
- HYDROCEPHALUS ASSOCIATION INCORPORATED (EIN 94-3000301)
- Tax period
- 2024-01-01 to 2024-12-31
- Filed
- 2025-07-10
- IRS object ID
- 202501919349300220
- Schema version
- 2024v5.2
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule M
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2025-07-10T08:11:30-05:00 | ReturnTs |
| Tax Period End | 2024-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 541342298 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | KOSITZKA WICKS AND COMPANY | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 4405 COX ROAD SUITE 200 | AddressLine1Txt |
| City | GLEN ALLEN | CityNm |
| State Abbreviation | VA | StateAbbreviationCd |
| ZIP | 23060 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2024-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 943000301 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | HYDROCEPHALUS ASSOCIATION | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | HYDR | BusinessNameControlTxt |
| Phone | 3012023811 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 6903 ROCKLEDGE DRIVE SUITE 740 | AddressLine1Txt |
| City | NORTH BETHESDA | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 20817 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | DIANA GRAY | PersonNm |
| Person Title | PRESIDENT AND CEO | PersonTitleTxt |
| Phone | 3012023811 | PhoneNum |
| Signature | 2025-07-09 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IRS Responsible Prty Info Curr | Yes (1) | IRSResponsiblePrtyInfoCurrInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | JENNICA JARDINE WHITFIELD CPA | PreparerPersonNm |
| PTIN | P01379267 | PTIN |
| Phone | 8048551200 | PhoneNum |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2024 | TaxYr |
| Build TS | 2025-03-06 01:10:19Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Change | Yes (X) | AddressChangeInd |
| Principal Officer | DIANA GRAY | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 6903 ROCKLEDGE DRIVE SUITE 740 | AddressLine1Txt |
| City | NORTH BETHESDA | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 20817 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $3,861,276 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.HYDROASSOC.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1986 | FormationYr |
| Legal Domicile State | DE | LegalDomicileStateCd |
| Activity Or Mission | FIND A CURE FOR HYDROCEPHALUS AND IMPROVE THE LIVES OF THOSE IMPACTED BY THE CONDITION. | ActivityOrMissionDesc |
| Voting Members Governing Body | 20 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 20 | VotingMembersIndependentCnt |
| Total Employee | 25 | TotalEmployeeCnt |
| Total Volunteers | 1600 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $3,520,084 | PYContributionsGrantsAmt |
| CY Contributions Grants | $3,350,909 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $0 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $73,155 | CYProgramServiceRevenueAmt |
| PY Investment Income | $137,427 | PYInvestmentIncomeAmt |
| CY Investment Income | $180,343 | CYInvestmentIncomeAmt |
| PY Other Revenue | -$29,128 | PYOtherRevenueAmt |
| CY Other Revenue | -$45,743 | CYOtherRevenueAmt |
| PY Total Revenue | $3,628,383 | PYTotalRevenueAmt |
| CY Total Revenue | $3,558,664 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $565,398 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $879,590 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $1,993,111 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $2,248,081 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $105,462 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $1,071,147 | PYOtherExpensesAmt |
| CY Other Expenses | $1,284,320 | CYOtherExpensesAmt |
| PY Total Expenses | $3,629,656 | PYTotalExpensesAmt |
| CY Total Expenses | $4,411,991 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | -$1,273 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$853,327 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $4,359,202 | TotalAssetsBOYAmt |
| Total Assets EOY | $3,458,025 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $612,422 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $488,203 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $3,746,780 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $2,969,822 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | FIND A CURE FOR HYROCEPHALUS AND IMPROVE THE LIVES OF THOSE IMPACTED. WE WILL ACCOMPLISH THIS BY COLLABORATING WITH PATIENTS, CAREGIVERS, RESEARCHERS AND INDUSTRY, RAISING AWARENESS, AND FUNDING INNOVATIVE, HIGH-IMPACT RESEARCH TO PREVENT, TREAT AND CURE HYDROCEPHALUS. | MissionDesc |
| Significant New Program Srvc | Yes (1) | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $1,443,435 | ExpenseAmt |
| Grant | $866,590 | GrantAmt |
| Desc | RESEARCHTHE HYDROCEPHALUS ASSOCIATION (HA) IS DEDICATED TO ADVANCING HIGH-QUALITY RESEARCH. EACH YEAR THE HA FUNDS TALENTED SCIENTISTS THROUGH DIRECT GRANT FUNDING ENABLING THEM TO LEVERAGE THESE PROJECTS AND SECURE LARGER FEDERAL GRANTS FOR GREATER IMPACT. THE HA FUNDS RESEARCH THAT IS ALIGNED WITH PATIENT-IDENTIFIED PRIORITIES TO IMPROVE UNDERSTANDING OF THE CONDITION, IDENTIFY AND TEST NEW TREATMENTS, MOVE DISCOVERIES TOWARDS CLINICAL USE, ENHANCE DIAGNOSIS, IMPROVE ACCESS TO CARE, AND ULTIMATELY ELEVATE THE QUALITY OF LIFE OF THOSE LIVING WITH HYDROCEPHALUS. GRANT PROGRAMS INCLUDE THE INNOVATOR AWARD, ACCELERATOR AWARD, NEUROPSYCHOLOGY AND COGNITION AWARD, ENGINEERING PRIZE, AND THE NEXT GENERATION AWARD. HA'S IMPACT IS AMPLIFIED THROUGH THE MANY RESEARCH NETWORKS THAT WE SUPPORT: THE HA PATIENT-POWERED INTERACTIVE ENGAGEMENT REGISTRY (HAPPIER), HA NETWORK FOR DISCOVERY SCIENCE (HANDS), HYDROCEPHALUS CLINICAL RESEARCH NETWORK (HCRN), AND ADULT HCRN (AHCRN). HAPPIER PROVIDES PATIENTS AND CAREGIVERS THE OPPORTUNITY TO ENGAGE IN RESEARCH WHILE PROVIDING RESEARCHERS WITH ACCESS TO CRITICAL DATA. HANDS PROVIDES THE CONNECTIONS, TECHNOLOGY, AND TOOLS NEEDED TO SPUR AND SUPPORT INNOVATIVE RESEARCH, WHILE THE PEDIATRIC-FOCUSED HCRN AND ADULT- FOCUSED AHCRN PROVIDE THE STRUCTURE AND EXPERTISE NECESSARY TO EFFICIENTLY AND THOROUGHLY TEST THESE NEW TECHNOLOGIES AND CLINICAL THERAPIES WITH THE HIGHEST CLINICAL STANDARDS. BY FUNDING BASIC, TRANSLATIONAL, AND CLINICAL RESEARCHERS, HA HAS CREATED A PIPELINE TO MOVE RESEARCH FROM THE BENCH TO THE BEDSIDE. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $1,472,850 | ExpenseAmt |
| Grant | $13,000 | GrantAmt |
| Desc | SUPPORT AND EDUCATION THE HYDROCEPHALUS ASSOCIATION IS DEEPLY COMMITTED TO IMPROVING THE LIVES OF THOSE AFFECTED BY HYDROCEPHALUS BY PROVIDING DIRECT SUPPORT AS WELL AS EDUCATIONAL RESOURCES IN COLLABORATION WITH A WIDE RANGE OF STAKEHOLDERS TO RAISE AWARENESS AND KNOWLEDGE. IN 2024, HA STAFF PROVIDED ONE-ON-ONE SUPPORT THROUGH PHONE CALLS, EMAILS, AND INTERACTIONS ON SOCIAL MEDIA TOTALING OVER 5,100 TOUCHES. HA CONDUCTED A TOTAL OF 201 VIRTUAL SOCIAL GATHERINGS AND/OR EDUCATIONAL MEETINGS WITH MEDICAL AND OTHER PROFESSIONALS JOINING AS GUEST SPEAKERS IN OUR LOCAL SUPPORT GROUPS - COMMUNITY NETWORKS. THESE EVENTS PROVIDED OUR COMMUNITY WITH THE OPPORTUNITY TO FIND FRIENDSHIP AND RECEIVE EDUCATION. OUR PEER SUPPORT VOLUNTEERS MADE 82 CONNECTIONS TO PROVIDE FIRST-HAND KNOWLEDGE AND EXPERIENCE ON LIVING WITH HYDROCEPHALUS. NEW NATIONAL LEVEL GROUP EMERGED, ONE FOR MEN WITH HYDROCEPHALUS. THE ASSOCIATION CONTINUES TO SUPPORT OUR YOUNG ADULTS' ACADEMIC PURSUITS THROUGH OUR SCHOLARSHIP PROGRAM. ESTABLISHED IN 1994, HA HAS AWARDED 252 SCHOLARSHIPS TO DESERVING FUTURE LEADERS OF THE HYDROCEPHALUS COMMUNITY. IN 2024, HA OFFERED 13 EDUCATIONAL SCHOLARSHIPS TO YOUNG ADULTS LIVING WITH HYDROCEPHALUS WHO EXHIBIT PROMISING LEADERSHIP SKILLS AND ARE INVOLVED IN THEIR COMMUNITIES. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $208,244 | ExpenseAmt |
| Desc | ADVOCACY THE HYDROCEPHALUS ASSOCIATION ADVOCACY COMMITTEE HAS CONTINUED TO MONITOR AND SUPPORT KEY LEGISLATION THAT WILL BENEFIT THE HYDROCEPHALUS COMMUNITY. HYDROCEPHALUS WAS ONCE AGAIN INCLUDED ON THE LIST OF ELIGIBLE CONDITIONS TO RECEIVE FUNDING UNDER THE CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAMS (CDMRP) AND ADMINISTERED BY THE DEPARTMENT OF DEFENSE (DOD). THE CDMRP HAS APPROPRIATIONS OF $15.61 BILLION, WHICH ARE USED TO FUND THE BEST SCIENTIFIC AND MEDICAL RESEARCH. WE ARE PROUD OF THIS CONTINUED ACCOMPLISHMENT. HA CONTINUES TO CO-LEAD WITH THE SPINA BIFIDA ASSOCIATION A COALITION FOCUSED ON ISSUES AROUND CHILDREN WITH CHRONIC MEDICAL CONDITIONS TRANSITIONING TO ADULT MEDICAL CARE AND SERVICES. HA ALSO CONTINUES TO BE ACTIVE IN ADVOCACY MEETINGS AND SIGN-ON LETTERS PUT TOGETHER AS PART OF THE NATIONAL HEALTH COUNCIL (NHC), AMERICAN BRAIN COALITION (ABC), NATIONAL ORGANIZATION FOR RARE DISEASE (NORD), RESEARCH!AMERICA, AND THE NATIONAL HEATH DEFENSE CONSORTIUM (DHRC). | Desc |
Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp (2 entries)
| ExpenseExpenseAmt | RevenueRevenueAmt | DescDesc |
|---|---|---|
| $672,925 | $73,155 | CONFERENCESTHE 18TH NATIONAL CONFERENCE ON HYDROCEPHALUS, HA CONNECT, WAS HELD IN TAMPA FLORIDA JULY 14-16, 2024. THE NATIONAL CONFERENCE ATTRACTED PARTICIPANTS FROM 46 STATES. 552 INDIVIDUALS ATTENDED THE THREE-DAY EVENT. THE CONFERENCE FEATURED EDUCATIONAL TRACKS FOR PARENTS, TEENS, ADULTS, AND INDIVIDUALS LIVING WITH NORMAL PRESSURE HYDROCEPHALUS. THERE WERE OVER 70 EDUCATIONAL SESSIONS HELD WITH OVER 80 SPEAKERS. THE CONFERENCE FEATURED AN INTERACTIVE EXHIBIT HALL TO ENGAGE ATTENDEES. ADDITIONAL EVENTS WERE HOSTED AROUND INNOVATION AND RESEARCH. |
| $6,824 | MERCHANDISE SALES, NET |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Prog Srvc Expense | $672,925 | TotalOtherProgSrvcExpenseAmt |
| Total Other Prog Srvc Revenue | $79,979 | TotalOtherProgSrvcRevenueAmt |
| Total Program Service Expenses | $3,797,454 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (1) | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | Yes (1) | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (1) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | Yes (1) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (1) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | Yes (1) | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | Yes (1) | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | 0 | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | Yes (1) | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 4 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (1) | BackupWthldComplianceInd |
| Employee | 25 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | 0 | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 20 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 20 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | 0 | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ME | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | DC | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | DIANA GRAY | PersonNm |
| Phone | 3012023811 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 6903 ROCKLEDGE DRIVE SUITE 740 | AddressLine1Txt |
| City | NORTH BETHESDA | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 20817 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (26 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|
| JASON PRESTON | |||||||
| CHAIR | 4.50 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| TERESA MASTRANGELO | |||||||
| VICE CHAIR | 3.50 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| LYDIA VALADEZ-MCSTAY | |||||||
| VICE CHAIR | 3.50 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| TESSA VAN DER WILLIGEN | |||||||
| VICE CHAIR | 3.50 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| BRETT WEITZ | |||||||
| PAST CHAIR | 3.50 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| HUGH ALLEN | |||||||
| FINANCE COMMITTEE CHAIR | 3.50 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| RAYMOND R MOSER JR JD | |||||||
| DIRECTOR | 3.50 | Yes (X) | $0 | $0 | $0 | ||
| SALLY DUNKELBERGER DANIEL | |||||||
| DIRECTOR | 3.50 | Yes (X) | $0 | $0 | $0 | ||
| PAM FINLAYSON | |||||||
| DIRECTOR | 3.50 | Yes (X) | $0 | $0 | $0 | ||
| MICHAEL SIEGEL PHD | |||||||
| DIRECTOR | 3.50 | Yes (X) | $0 | $0 | $0 | ||
| DAVID LIMBRICK MD | |||||||
| DIRECTOR | 3.50 | Yes (X) | $0 | $0 | $0 | ||
| MIKE MUHONEN MD | |||||||
| DIRECTOR | 3.50 | Yes (X) | $0 | $0 | $0 | ||
| STEPHANIE VOGT | |||||||
| DIRECTOR | 3.50 | Yes (X) | $0 | $0 | $0 | ||
| MICHAEL WILLIAMS MD | |||||||
| DIRECTOR | 3.50 | Yes (X) | $0 | $0 | $0 | ||
| DEITRA MATTHEWS MPA | |||||||
| DIRECTOR | 3.50 | Yes (X) | $0 | $0 | $0 | ||
| SHERYL ROSENBERG JD | |||||||
| DIRECTOR | 3.50 | Yes (X) | $0 | $0 | $0 | ||
| KIPP COCO | |||||||
| DIRECTOR | 3.50 | Yes (X) | $0 | $0 | $0 | ||
| TAMMY LEE | |||||||
| DIRECTOR | 3.50 | Yes (X) | $0 | $0 | $0 | ||
| PETER FINLAYSON | |||||||
| DIRECTOR | 3.50 | Yes (X) | $0 | $0 | $0 | ||
| TIM HARRIS | |||||||
| DIRECTOR | 3.50 | Yes (X) | $0 | $0 | $0 | ||
| DIANA GRAY | |||||||
| PRESIDENT AND CEO | 45.00 | Yes (X) | $240,680 | $0 | $22,619 | ||
| AMANDA GARZON | |||||||
| CHIEF OPERATING OFFICER | 45.00 | Yes (X) | $141,772 | $0 | $14,247 | ||
| BRIAN SAPHIER | |||||||
| TREASURER AND CFO | 45.00 | Yes (X) | $141,557 | $0 | $12,399 | ||
| LINDA RILEY | |||||||
| NATIONAL DIRECTOR OF DEVELOPMENT | 40.00 | $138,921 | $0 | $16,517 | Yes (X) | ||
| MONICA CHAU | |||||||
| NATIONAL DIRECTOR OF RESEARCH | 40.00 | $131,153 | $0 | $7,521 | Yes (X) | ||
| JUDITH FROEHLICH | |||||||
| NATIONAL DIRECTOR OF MARKETING | 40.00 | $130,796 | $0 | $14,357 | Yes (X) | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $924,879 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $87,660 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 6 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
| Cntrct Rcvd Greater Than100 K | 0 | CntrctRcvdGreaterThan100KCnt |
| Fundraising | $1,887,584 | FundraisingAmt |
| All Other Contributions | $1,463,325 | AllOtherContributionsAmt |
| Noncash Contributions | $54,182 | NoncashContributionsAmt |
| Total Contributions | $3,350,909 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | CONFERENCE FEES | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $73,155 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $73,155 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $73,155 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $124,449 | TotalRevenueColumnAmt |
| Exclusion | $124,449 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $193,907 | SecuritiesAmt |
| Other | $750 | OtherAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $138,104 | SecuritiesAmt |
| Other | $659 | OtherAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $55,803 | SecuritiesAmt |
| Other | $91 | OtherAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $55,894 | TotalRevenueColumnAmt |
| Exclusion | $55,894 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $0 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $1,887,584 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $159,876 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$159,876 | TotalRevenueColumnAmt |
| Exclusion | -$159,876 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gaming Gross Income | $57,595 | GamingGrossIncomeAmt |
| Gaming Direct Expenses | $0 | GamingDirectExpensesAmt |
Net Income From Gaming NetIncomeFromGamingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $57,595 | TotalRevenueColumnAmt |
| Exclusion | $57,595 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Sales Of Inventory | $10,797 | GrossSalesOfInventoryAmt |
| Cost Of Goods Sold | $3,973 | CostOfGoodsSoldAmt |
Net Income Or Loss NetIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $6,824 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $6,824 | RelatedOrExemptFuncIncomeAmt |
Other Revenue Misc OtherRevenueMiscGrp (2 entries)
| DescDesc | BusinessBusinessCd | Total Revenue ColumnTotalRevenueColumnAmt | ExclusionExclusionAmt |
|---|---|---|---|
| MISCELLANEOUS REVENUE | 900099 | $40,623 | $40,623 |
| RETURNED GRANT AWARD | 900099 | $9,091 | $9,091 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $49,714 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $3,558,664 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $79,979 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $127,776 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $823,833 | TotalAmt |
| Program Services | $823,833 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $13,000 | TotalAmt |
| Program Services | $13,000 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $42,757 | TotalAmt |
| Program Services | $42,757 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $573,273 | TotalAmt |
| Program Services | $410,337 | ProgramServicesAmt |
| Management And General | $159,274 | ManagementAndGeneralAmt |
| Fundraising | $3,662 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,375,768 | TotalAmt |
| Program Services | $1,200,762 | ProgramServicesAmt |
| Management And General | $131,360 | ManagementAndGeneralAmt |
| Fundraising | $43,646 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $38,087 | TotalAmt |
| Program Services | $34,066 | ProgramServicesAmt |
| Management And General | $2,680 | ManagementAndGeneralAmt |
| Fundraising | $1,341 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $119,735 | TotalAmt |
| Program Services | $77,576 | ProgramServicesAmt |
| Management And General | $38,735 | ManagementAndGeneralAmt |
| Fundraising | $3,424 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $141,218 | TotalAmt |
| Program Services | $117,459 | ProgramServicesAmt |
| Management And General | $20,229 | ManagementAndGeneralAmt |
| Fundraising | $3,530 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $8,075 | TotalAmt |
| Program Services | $3,823 | ProgramServicesAmt |
| Management And General | $4,140 | ManagementAndGeneralAmt |
| Fundraising | $112 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $20,151 | TotalAmt |
| Program Services | $71 | ProgramServicesAmt |
| Management And General | $20,080 | ManagementAndGeneralAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,000 | TotalAmt |
| Program Services | $3,000 | ProgramServicesAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $115,818 | TotalAmt |
| Program Services | $98,742 | ProgramServicesAmt |
| Management And General | $12,672 | ManagementAndGeneralAmt |
| Fundraising | $4,404 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $22,685 | TotalAmt |
| Program Services | $1,969 | ProgramServicesAmt |
| Fundraising | $20,716 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $358,035 | TotalAmt |
| Program Services | $336,133 | ProgramServicesAmt |
| Management And General | $11,074 | ManagementAndGeneralAmt |
| Fundraising | $10,828 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $260,283 | TotalAmt |
| Program Services | $242,632 | ProgramServicesAmt |
| Management And General | $13,929 | ManagementAndGeneralAmt |
| Fundraising | $3,722 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $124,773 | TotalAmt |
| Program Services | $105,602 | ProgramServicesAmt |
| Management And General | $15,691 | ManagementAndGeneralAmt |
| Fundraising | $3,480 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $179,760 | TotalAmt |
| Program Services | $176,008 | ProgramServicesAmt |
| Management And General | $4 | ManagementAndGeneralAmt |
| Fundraising | $3,748 | FundraisingAmt |
Interest InterestGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,778 | TotalAmt |
| Management And General | $3,778 | ManagementAndGeneralAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $33,416 | TotalAmt |
| Program Services | $28,282 | ProgramServicesAmt |
| Management And General | $4,202 | ManagementAndGeneralAmt |
| Fundraising | $932 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $12,483 | TotalAmt |
| Program Services | $1,159 | ProgramServicesAmt |
| Management And General | $11,286 | ManagementAndGeneralAmt |
| Fundraising | $38 | FundraisingAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| SERVICE CHARGES | $49,639 | $85 | $49,551 | $3 |
| SITE EXPENSES | $38,478 | $38,478 | ||
| DUES AND SUBSCRIPTIONS | $28,120 | $24,485 | $2,023 | $1,612 |
| PRIZES AND AWARDS | $14,413 | $14,413 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $11,413 | TotalAmt |
| Program Services | $2,782 | ProgramServicesAmt |
| Management And General | $8,367 | ManagementAndGeneralAmt |
| Fundraising | $264 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,411,991 | TotalAmt |
| Program Services | $3,797,454 | ProgramServicesAmt |
| Management And General | $509,075 | ManagementAndGeneralAmt |
| Fundraising | $105,462 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,206,278 | BOYAmt |
| EOY | $656,749 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $254,386 | BOYAmt |
| EOY | $210,018 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $4,263 | EOYAmt |
Inventories For Sale Or Use InventoriesForSaleOrUseGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $40,324 | BOYAmt |
| EOY | $39,471 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $97,903 | BOYAmt |
| EOY | $120,089 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $235,950 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $220,544 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $15,330 | BOYAmt |
| EOY | $15,406 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,529,577 | BOYAmt |
| EOY | $2,282,221 | EOYAmt |
Intangible Assets IntangibleAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $51,627 | BOYAmt |
| EOY | $49,674 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $163,777 | BOYAmt |
| EOY | $80,134 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,359,202 | BOYAmt |
| EOY | $3,458,025 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $280,022 | BOYAmt |
| EOY | $236,776 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $50,000 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $332,400 | BOYAmt |
| EOY | $201,427 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $612,422 | BOYAmt |
| EOY | $488,203 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,532,659 | BOYAmt |
| EOY | $1,936,849 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,214,121 | BOYAmt |
| EOY | $1,032,973 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,746,780 | BOYAmt |
| EOY | $2,969,822 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,359,202 | BOYAmt |
| EOY | $3,458,025 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$853,327 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $76,369 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $3,399,671 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $4,038,576 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $4,093,067 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $3,260,063 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $3,350,909 | CurrentTaxYearAmt |
| Total | $18,142,286 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $3,399,671 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $4,038,576 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $4,093,067 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $3,260,063 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $3,350,909 | CurrentTaxYearAmt |
| Total | $18,142,286 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $131,634 | SubstantialContributorsTotAmt |
| Public Support Total170 | $18,010,652 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $6,229 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $2,707 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $48,407 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $137,427 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $124,449 | CurrentTaxYearAmt |
| Total | $319,219 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus3 Years | $15,129 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $150 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $15,300 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $49,714 | CurrentTaxYearAmt |
| Total | $80,293 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $18,541,798 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $187,567 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.97140 | PublicSupportCY170Pct |
| Public Support PY170 | 0.97860 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Form990 Schedule A Part VI Form990ScheduleAPartVIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: | FormAndLineReferenceDesc |
| Explanation | OTHER MISCELLANEOUS INCOME - 2021 AMOUNT: $ 15,129. 2022 AMOUNT: $ 150. 2023 AMOUNT: $ 15,300. 2024 AMOUNT: $ 49,714. | ExplanationTxt |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule C IRS990ScheduleC
| Field | Value | IRS element (for citing) |
|---|---|---|
| Volunteers | Yes (1) | VolunteersInd |
| Paid Staff Or Management | Yes (1) | PaidStaffOrManagementInd |
| Media Advertisements | 0 | MediaAdvertisementsInd |
| Mailings Members | Yes (1) | MailingsMembersInd |
| Publications Or Broadcast | Yes (1) | PublicationsOrBroadcastInd |
| Publications Or Broadcast | $2,000 | PublicationsOrBroadcastAmt |
| Grants Other Organizations | 0 | GrantsOtherOrganizationsInd |
| Direct Contact Legislators | Yes (1) | DirectContactLegislatorsInd |
| Direct Contact Legislators | $1,000 | DirectContactLegislatorsAmt |
| Rallies Demonstrations | Yes (1) | RalliesDemonstrationsInd |
| Other Activities | 0 | OtherActivitiesInd |
| Total Lobbying Expenditures | $3,000 | TotalLobbyingExpendituresAmt |
| Not Described Section501c3 | 0 | NotDescribedSection501c3Ind |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART II-B, LINE 1, LOBBYING ACTIVITIES: | FormAndLineReferenceDesc |
| Explanation | AS PART OF OUR PROGRAM TO EDUCATE CONGRESS AND OTHERS ABOUT THE NEEDS OF HYDROCEPHALUS PATIENTS AND THEIR FAMILIES, AND TO ADVOCATE FOR MORE FUNDING FOR HYDROCEPHALUS RESEARCH, THE HYDROCEPHALUS ASSOCIATION MET ONE-ON-ONE WITH CONGRESSIONAL OFFICES TO EDUCATE MEMBERS ON HYDROCEPHALUS AND PARTICIPATED IN A NUMBER OF COALITIONS (INCLUDING THE NATIONAL HEALTH COUNCIL, RESEARCH!AMERICA, AND THE AMERICAN BRAIN COALITION). | ExplanationTxt |
Schedule D IRS990ScheduleD
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $91,318 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $13,142 | InvestmentEarningsOrLossesAmt |
| Grants Or Scholarships | $13,142 | GrantsOrScholarshipsAmt |
| End Year Balance | $91,318 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $79,544 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $11,774 | InvestmentEarningsOrLossesAmt |
| End Year Balance | $91,318 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $91,318 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | -$11,774 | InvestmentEarningsOrLossesAmt |
| End Year Balance | $79,544 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $91,318 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $1,573 | InvestmentEarningsOrLossesAmt |
| Grants Or Scholarships | $1,573 | GrantsOrScholarshipsAmt |
| End Year Balance | $91,318 | EndYearBalanceAmt |
CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $91,118 | BeginningYearBalanceAmt |
| Contributions | $200 | ContributionsAmt |
| Investment Earnings Or Losses | $2,973 | InvestmentEarningsOrLossesAmt |
| Grants Or Scholarships | $2,973 | GrantsOrScholarshipsAmt |
| End Year Balance | $91,318 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Prmnnt Endowment Balance EOY | 1.00000 | PrmnntEndowmentBalanceEOYPct |
| Endowments Held Unrelated Org | 0 | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | 0 | EndowmentsHeldRelatedOrgInd |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $118,355 | OtherCostOrOtherBasisAmt |
| Depreciation | $102,949 | DepreciationAmt |
| Book Value | $15,406 | BookValueAmt |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $117,595 | OtherCostOrOtherBasisAmt |
| Depreciation | $117,595 | DepreciationAmt |
| Book Value | $0 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $15,406 | TotalBookValueLandBuildingsAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)
| DescDesc | AmtAmt |
|---|---|
| SBA LOAN | $147,011 |
| OPERATING LEASE LIABILITY | $54,416 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $201,427 | TotalLiabilityAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $3,625,942 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $76,369 | NetUnrealizedGainsInvstAmt |
| Revenue Not Reported | $76,369 | RevenueNotReportedAmt |
| Revenue Subtotal | $3,549,573 | RevenueSubtotalAmt |
| Other Revenues Not Included | $9,091 | OtherRevenuesNotIncludedAmt |
| Revenue Not Reported Fincl Stmt | $9,091 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $3,558,664 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $4,402,900 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Not Reported | $0 | ExpensesNotReportedAmt |
| Expenses Subtotal | $4,402,900 | ExpensesSubtotalAmt |
| Other Expenses Not Included | $9,091 | OtherExpensesNotIncludedAmt |
| Expenses Not Rpt Fincl Stmt | $9,091 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $4,411,991 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (4 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART X, LINE 2: | THE ASSOCIATION IS A QUALIFYING NONPROFIT ORGANIZATION AS DEFINED IN SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND THE TAX STATUTES OF DELAWARE, AND THEREFORE IS EXEMPT FROM FEDERAL AND STATE INCOME TAXES. ACCORDINGLY, THE ACCOMPANYING FINANCIAL STATEMENTS DO NOT REFLECT A PROVISION OR LIABILITY FOR FEDERAL AND STATE INCOME TAXES. THE ASSOCIATION DOES NOT BELIEVE IT HAS ANY UNCERTAIN TAX POSITIONS AS OF DECEMBER 31, 2024. FISCAL YEARS ENDING ON OR AFTER 2021 REMAIN SUBJECT TO EXAMINATION BY FEDERAL AND STATE AUTHORITIES. |
| PART XI, LINE 4B - OTHER ADJUSTMENTS: | RETURNED GRANT AWARD |
| PART XII, LINE 4B - OTHER ADJUSTMENTS: | RETURNED GRANT AWARD |
| PART V, LINE 4: | THE ORGANIZATION USES ENDOWMENT FUNDS FOR EDUCATIONAL SCHOLARSHIPS TO YOUNG ADULTS WITH HYDROCEPHALUS. |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Region | NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES | RegionTxt |
| Type Of Activities Conducted | TO FUND THE CLINICAL RESEARCH SITE FOR THE ADULT HYDROCEPHALUS CLINICAL RESEARCH NETWORK | TypeOfActivitiesConductedTxt |
| Region Total Expenditures | $42,757 | RegionTotalExpendituresAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continuation Total Office | 0 | ContinuationTotalOfficeCnt |
| Continuation Total Employee | 0 | ContinuationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $42,757 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $42,757 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Region | NORTH AMERICA | RegionTxt |
| Purpose Of Grant | TO FUND THE CLINICAL RESEARCH SITE FOR THE ADULT HYDROCEPHALUS CLINICAL RESEARCH NETWORK | PurposeOfGrantTxt |
| Cash Grant | $42,757 | CashGrantAmt |
| Manner Of Cash Disbursement | CHECK | MannerOfCashDisbursementTxt |
| Non Cash Assistance | $0 | NonCashAssistanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Transfer To Foreign Corp | 0 | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | SOUTH FLORIDA WALK | Event1Nm |
| Gross Receipts Event1 | $273,753 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $273,753 | CharitableContriEvent1Amt |
| Other Direct Expenses Event1 | $5,028 | OtherDirectExpensesEvent1Amt |
| Event2 | LONG ISLAND WALK | Event2Nm |
| Gross Receipts Event2 | $157,452 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $157,452 | CharitableContriEvent2Amt |
| Other Direct Expenses Event2 | $6,604 | OtherDirectExpensesEvent2Amt |
| Other Events Total | 42 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $1,456,379 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $1,456,379 | CharitableContriOtherEventsAmt |
| Oth Direct Expnss Other Events | $148,244 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $1,887,584 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $1,887,584 | CharitableContributionsTotAmt |
| Oth Direct Expnss Total Events | $159,876 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $159,876 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$159,876 | NetIncomeSummaryAmt |
Gaming Information GamingInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Revenue Other Gaming | $57,595 | GrossRevenueOtherGamingAmt |
| Volunteer Labor Other Gaming | Yes (1) | VolunteerLaborOtherGamingInd |
| Volunteer Labor Other Gaming | 1.00000 | VolunteerLaborOtherGamingPct |
| Gross Revenue Total Gaming | $57,595 | GrossRevenueTotalGamingAmt |
| Net Gaming Income Summary | $57,595 | NetGamingIncomeSummaryAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| States Where Gaming Conducted | NC | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | SC | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | CO | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | IA | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | MI | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | TX | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | NY | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | KY | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | LA | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | AZ | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | FL | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | PA | StatesWhereGamingConductedCd |
| Licensed | Yes (1) | LicensedInd |
| License Suspended Etc | 0 | LicenseSuspendedEtcInd |
| Gaming With Nonmembers | Yes (1) | GamingWithNonmembersInd |
| Member Of Other Entity | 0 | MemberOfOtherEntityInd |
| Gaming Other Facility | 1.00000 | GamingOtherFacilityPct |
Persons With Books Name PersonsWithBooksName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | LINDA RILEY | BusinessNameLine1Txt |
Persons With Books US Address PersonsWithBooksUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 6903 ROCKLEDGE DRIVE SUITE 740 | AddressLine1Txt |
| City | NORTH BETHESDA | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 20817 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct With3rd Prty For Game Rev | 0 | CntrctWith3rdPrtyForGameRevInd |
| Gaming Manager Person | LINDA RILEY | GamingManagerPersonNm |
| Gaming Manager Services Prov | NATIONAL DIRECTOR OF DEVELOPMENT AND MANAGES THE WALK PROGRAM WHOSE VOLUNTEERS CONDUCT THE RAFFLES. | GamingManagerServicesProvTxt |
| Charitable Distribution Rqr | Yes (1) | CharitableDistributionRqrInd |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (11 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Non Cash AssistanceNonCashAssistanceAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|---|
| CLEVELAND CLINIC FOUNDATION | ||||||||
| 9500 EUCLID AVE DESK JJ36 | CLEVELAND | OH | 44195 | 912153073 | 501(C)(3) | $46,211 | $0 | TO FUND THE CLINICAL RESEARCH SITE FOR THE ADULT HYDROCEPHALUS CLINICAL RESEARCH NETWORK |
| PRIMARY CHILDREN'S FOUNDATION | ||||||||
| 36 SOUTH STATE STREET SUITE 1600 | SALT LAKE CITY | UT | 84111 | 870453633 | 501(C)(3) | $75,000 | $0 | TO FUND THE CLINICAL RESEARCH SITE FOR THE HYDROCEPHALUS CLINICAL RESEARCH NETWORK |
| UNIVERSITY OF UTAH | ||||||||
| 75 SOUTH 2000 EAST RAB 211 | SALT LAKE CITY | UT | 84108 | 876000525 | 501(C)(3) | $173,222 | $0 | TO FUND THE CLINICAL RESEARCH SITE FOR THE ADULT HYDROCEPHALUS CLINICAL RESEARCH NETWORK |
| BOSTON CHILDREN'S HOSPITAL | ||||||||
| 300 LONGWOOD AVENUE | BOSTON | MA | 02115 | 881343469 | 501(C)(3) | $85,000 | $0 | MECHANISMS OF HYDROCEPAHLUS RESEARCH GRANT - TO FUND BASIC RESEARCH FOR THE TREATMENT OF HYDROCEPHALUS |
| UNIVERSITY OF CALIFORNIA SAN FRANCISCO FOUNDATION | ||||||||
| 2001 THE EMBARCADERO 3RD FLOOR | SAN FRANCISCO | CA | 94133 | 942829914 | 501(C)(3) | $75,000 | $0 | MECHANISMS OF HYDROCEPAHLUS RESEARCH GRANT - TO FUND BASIC RESEARCH FOR THE TREATMENT OF HYDROCEPHALUS |
| CHILDREN'S HOSPITAL LOS ANGELES | ||||||||
| 4650 W SUNSET BLVD | LOS ANGELES | CA | 90027 | 951690977 | 501(C)(3) | $50,000 | $0 | MECHANISMS OF HYDROCEPAHLUS RESEARCH GRANT - TO FUND BASIC RESEARCH FOR THE TREATMENT OF HYDROCEPHALUS |
| JOHNS HOPKINS UNIVERSITY | ||||||||
| 3400 N CHALRES ST | BALTIMORE | MD | 212182683 | 475649093 | 501(C)(3) | $85,000 | $0 | MECHANISMS OF HYDROCEPAHLUS RESEARCH GRANT - TO FUND BASIC RESEARCH FOR THE TREATMENT OF HYDROCEPHALUS |
| UMASS CHAN MEDICAL SCHOOL FOUNDATION | ||||||||
| 55 N LAKE AVE | WORCESTER | MA | 01655 | 043108190 | 501(C)(3) | $85,000 | $0 | MECHANISMS OF HYDROCEPAHLUS RESEARCH GRANT - TO FUND BASIC RESEARCH FOR THE TREATMENT OF HYDROCEPHALUS |
| UNIVERSITY OF COLORADO FOUNDATION | ||||||||
| 1800 GRANT STREET SUITE 725 | DENVER | CO | 80203 | 846049811 | 501(C)(3) | $49,400 | $0 | MECHANISMS OF HYDROCEPAHLUS RESEARCH GRANT - TO FUND BASIC RESEARCH FOR THE TREATMENT OF HYDROCEPHALUS |
| VIRGINIA COMMONWEALTH UNIVERSITY FOUNDATION | ||||||||
| 910 W FRANKLIN ST | RICHMOND | VA | 23220 | 540757884 | 501(C)(3) | $50,000 | $0 | MECHANISMS OF HYDROCEPAHLUS RESEARCH GRANT - TO FUND BASIC RESEARCH FOR THE TREATMENT OF HYDROCEPHALUS |
| YALE UNIVERSITY | ||||||||
| 38 HILLHOUSE AVENUE | NEW HAVEN | CT | 06520 | 060646973 | 501(C)(3) | $50,000 | $0 | MECHANISMS OF HYDROCEPAHLUS RESEARCH GRANT - TO FUND BASIC RESEARCH FOR THE TREATMENT OF HYDROCEPHALUS |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 11 | Total501c3OrgCnt |
| Total Other Org | 0 | TotalOtherOrgCnt |
Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Type | SCHOLARSHIP | GrantTypeTxt |
| Recipient | 13 | RecipientCnt |
| Cash Grant | $13,000 | CashGrantAmt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | MANAGEMENT OBTAINS PERIOD REPORTING FROM GRANTEES IN ACCORDANCE WITH TERMS OF THE GRANT AGREEMENT TO MONITOR TO USE OF GRANT FUNDS. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantiation Required | Yes (1) | SubstantiationRequiredInd |
| Form990 Of Other Organizations | Yes (X) | Form990OfOtherOrganizationsInd |
| Written Employment Contract | Yes (X) | WrittenEmploymentContractInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (4 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| DIANA GRAY | ||||||||||||||
| PRESIDENT AND CEO | $240,680 | $0 | $0 | $0 | $0 | $0 | $10,293 | $0 | $12,326 | $0 | $263,299 | $0 | $0 | $0 |
| AMANDA GARZON | ||||||||||||||
| CHIEF OPERATING OFFICER | $141,772 | $0 | $0 | $0 | $0 | $0 | $5,743 | $0 | $8,504 | $0 | $156,019 | $0 | $0 | $0 |
| LINDA RILEY | ||||||||||||||
| NATIONAL DIRECTOR OF DEVELOPMENT | $138,921 | $0 | $0 | $0 | $0 | $0 | $5,646 | $0 | $10,871 | $0 | $155,438 | $0 | $0 | $0 |
| BRIAN SAPHIER | ||||||||||||||
| TREASURER AND CFO | $141,557 | $0 | $0 | $0 | $0 | $0 | $5,719 | $0 | $6,680 | $0 | $153,956 | $0 | $0 | $0 |
Schedule M IRS990ScheduleM
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 6 | ContributionCnt |
| Noncash Contributions Rpt F990 | $47,087 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
Other Non Cash Contri Table OtherNonCashContriTableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Desc | PROGRAM MATERIALS | Desc |
| Contribution | 3 | ContributionCnt |
| Noncash Contributions Rpt F990 | $7,095 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Any Property That Must Be Held | 0 | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | 0 | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | 0 | ThirdPartiesUsedInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, COLUMN (B): | FormAndLineReferenceDesc |
| Explanation | THE NUMBER OF CONTRIBUTIONS REPRESENTS THE NUMBER OF TRANSACTIONS WHERE DONORS CONTRIBUTED TO THE ASSOCIATION THROUGH STOCK DONATIONS. | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (8 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART III, LINE 2 | THE 18TH NATIONAL CONFERENCE ON HYDROCEPHALUS, HA CONNECT, WAS HELD IN TAMPA FLORIDA JULY 14-16, 2024. THE NATIONAL CONFERENCE ATTRACTED PARTICIPANTS FROM 46 STATES. 552 INDIVIDUALS ATTENDED THE THREE-DAY EVENT. THE CONFERENCE FEATURED EDUCATIONAL TRACKS FOR PARENTS, TEENS, ADULTS, AND INDIVIDUALS LIVING WITH NORMAL PRESSURE HYDROCEPHALUS. THERE WERE OVER 70 EDUCATIONAL SESSIONS HELD WITH OVER 80 SPEAKERS. THE CONFERENCE FEATURED AN INTERACTIVE EXHIBIT HALL TO ENGAGE ATTENDEES. ADDITIONAL EVENTS WERE HOSTED AROUND INNOVATION AND RESEARCH. |
| FORM 990, PART VI, SECTION A, LINE 1A | ACCORDING TO OUR BYLAWS, THE EXECUTIVE COMMITTEE, UNLESS LIMITED IN A RESOLUTION OF THE BOARD, SHALL HAVE AND MAY EXERCISE ALL OF THE AUTHORITY OF THE BOARD IN THE MANAGEMENT OF THE BUSINESS AND AFFAIRS OF THE CORPORATION BETWEEN MEETINGS OF THE BOARD. |
| FORM 990, PART VI, SECTION B, LINE 11B | ALL BOARD MEMBERS RECEIVE AN ELECTRONIC OR PAPER COPY OF THE IRS FORM 990 PRIOR TO ITS SUBMISSION. BOARD MEMBERS MUST SUBMIT ANY QUESTIONS OR CHANGES TO THE PRESIDENT & CHIEF EXECUTIVE OFFICER, WHO SUBMITS THE CHANGES TO THE TAX PREPARER. |
| FORM 990, PART VI, SECTION B, LINE 12C | EACH YEAR BOARD MEMBERS GET A COPY OF THE CONFLICT OF INTEREST POLICY AND A DISCLOSURE FORM TO FILL OUT WITH DETAILS OF ANY POSSIBLE CONFLICTS THAT MAY EXIST. |
| FORM 990, PART VI, SECTION B, LINE 15A | THE PROCESS FOR DETERMINING THE COMPENSATION FOR THE PRESIDENT & CHIEF EXECUTIVE OFFICER (WHO IS ALSO IN CHARGE OF FINANCIAL MANAGEMENT OF THE ORGANIZATION) POSITION INCLUDES THE FOLLOWING STEPS: 1) THE BOARD CHAIR AND PRESIDENT & CHIEF EXECUTIVE OFFICER EACH COLLECT COMPARABLE SALARY INFORMATION (E.G., SALARY STUDIES). 2) THE BOARD CHAIR MAKES A RECOMMENDATION FOR PRESIDENT & CEO COMPENSATION TO THE EXECUTIVE COMMITTEE. 3) EXECUTIVE COMMITTEE MEMBERS (WITHOUT A CONFLICT OF INTEREST) VOTE ON THE RECOMMENDATION BY THE BOARD CHAIR FOR PROPOSED CEO COMPENSATION, AND A RECORD OF THE VOTE IS RECORDED IN EXECUTIVE COMMITTEE MINUTES. |
| FORM 990, PART VI, SECTION C, LINE 18 | FORM 990 IS AVAILABLE ON THE HYDROCEPHALUS ASSOCIATION WEBSITE AT WWW.HYDROASSOC.ORG/ANNUAL-REPORTS-AND-FINANCIALS |
| FORM 990, PART VI, SECTION C, LINE 19 | THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC AT THE ORGANIZATION'S OFFICE OR ON THE ORGANIZATION'S WEBSITE UPON REQUEST. |
| FORM 990, PART XII, LINE 2C: | THE AUDIT COMMITTEE SELECTS AND OVERSEES AN INDEPENDENT ACCOUNTING FIRM TO CONDUCT THE AUDIT. NO CHANGE IN THE SELECTION METHOD OCCURRED THIS YEAR. |