FRAXA RESEARCH FOUNDATION INC: Form 990, tax year 2019
View the entire original 990 at ProPublica ↗
- Organization
- FRAXA RESEARCH FOUNDATION INC (EIN 04-3222167)
- Tax period
- 2019-01-01 to 2019-12-31
- Filed
- 2020-07-13
- IRS object ID
- 202011959349302106
- Schema version
- 2019v5.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2020-07-13T09:09:00-07:00 | ReturnTs |
| Tax Period End | 2019-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | FRITZ DEGUGLIELMO LLC | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 8 ESSEX STREET | AddressLine1Txt |
| City | NEWBURYPORT | CityNm |
| State Abbreviation | MA | StateAbbreviationCd |
| ZIP | 01950 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2019-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 043222167 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | FRAXA Research Foundation Inc | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | FRAX | BusinessNameControlTxt |
| Phone | 9784621866 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 10 Prince Place | AddressLine1Txt |
| City | Newburyport | CityNm |
| State Abbreviation | MA | StateAbbreviationCd |
| ZIP | 01950 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Katherine Clapp | PersonNm |
| Person Title | President | PersonTitleTxt |
| Phone | 9784621866 | PhoneNum |
| Signature | 2020-05-14 | SignatureDt |
| Discuss With Paid Preparer | Yes (true) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | Daniel E Schaffner CPA | PreparerPersonNm |
| PTIN | P00796903 | PTIN |
| Phone | 9784622161 | PhoneNum |
| Preparation | 2020-07-13 | PreparationDt |
Filing Security Information FilingSecurityInformation
IP Address IPAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| I Pv4 Address | 173.13.123.81 | IPv4AddressTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IP | 2020-07-13 | IPDt |
| IP Tm | 09:01:15 | IPTm |
| IP Timezone | PD | IPTimezoneCd |
| Filing License Type | P | FilingLicenseTypeCd |
| At Submission Creation Device Id | 9325813F8D33C623A5B4A5043004254F148EC2F7 | AtSubmissionCreationDeviceId |
| At Submission Filing Device Id | 9325813F8D33C623A5B4A5043004254F148EC2F7 | AtSubmissionFilingDeviceId |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2019 | TaxYr |
| Build TS | 2020-09-22 18:59:49Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | Katherine N Clapp | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 10 Prince Place Suite 203 | AddressLine1Txt |
| City | Newburyport | CityNm |
| State Abbreviation | MA | StateAbbreviationCd |
| ZIP | 01950 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $1,430,320 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | www.fraxa.org | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1994 | FormationYr |
| Legal Domicile State | MA | LegalDomicileStateCd |
| Activity Or Mission | FRAXA's mission is to find effective treatments and ultimately a cure for Fragile X syndrome. | ActivityOrMissionDesc |
| Voting Members Governing Body | 14 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 12 | VotingMembersIndependentCnt |
| Total Employee | 5 | TotalEmployeeCnt |
| Total Volunteers | 150 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $1,813,697 | PYContributionsGrantsAmt |
| CY Contributions Grants | $1,326,429 | CYContributionsGrantsAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | $38,889 | PYInvestmentIncomeAmt |
| CY Investment Income | $44,542 | CYInvestmentIncomeAmt |
| PY Other Revenue | -$7,931 | PYOtherRevenueAmt |
| CY Other Revenue | -$19,044 | CYOtherRevenueAmt |
| PY Total Revenue | $1,844,655 | PYTotalRevenueAmt |
| CY Total Revenue | $1,351,927 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $1,075,004 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $852,418 | CYGrantsAndSimilarPaidAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $361,477 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $364,288 | CYSalariesCompEmpBnftPaidAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $120,105 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $80,224 | PYOtherExpensesAmt |
| CY Other Expenses | $72,815 | CYOtherExpensesAmt |
| PY Total Expenses | $1,516,705 | PYTotalExpensesAmt |
| CY Total Expenses | $1,289,521 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $327,950 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $62,406 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $2,422,802 | TotalAssetsBOYAmt |
| Total Assets EOY | $2,468,935 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $176,236 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $7,844 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $2,246,566 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $2,461,091 | NetAssetsOrFundBalancesEOYAmt |
| Mission | FRAXA's mission is to find effective treatments and ultimately a cure for Fragile X syndrome. | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $991,806 | ExpenseAmt |
| Grant | $852,418 | GrantAmt |
| Revenue | $0 | RevenueAmt |
| Desc | To raise funds for the direct funding of grant research for the purpose of finding treatment and cure for Fragile X. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $109,322 | ExpenseAmt |
| Grant | $0 | GrantAmt |
| Revenue | $0 | RevenueAmt |
| Desc | To fund programs for the purpose of educating the general public about Fragile X. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $1,101,128 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (true) | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | false | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | false | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | false | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | false | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | false | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (true) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (true) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | false | ForeignOfficeInd |
| Foreign Activities | false | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (true) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | false | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (true) | FundraisingActivitiesInd |
| Gaming Activities | false | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | Yes (true) | GrantsToOrganizationsInd |
| Grants To Individuals | false | GrantsToIndividualsInd |
| Schedule J Required | false | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | false | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | false | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | false | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | false | DisregardedEntityInd |
| Related Entity | false | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 3 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (true) | BackupWthldComplianceInd |
| Employee | 5 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (true) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | false | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | false | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | false | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | false | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | false | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | false | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 14 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 12 | IndependentVotingMemberCnt |
| Family Or Business Rln | Yes (true) | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (true) | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | false | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (true) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (true) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (true) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (true) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (true) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (true) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (true) | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AZ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TX | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Other Website | Yes (X) | OtherWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Katherine N Clapp | PersonNm |
| Phone | 9784621866 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 10 Prince Place Suite 203 | AddressLine1Txt |
| City | Newburyport | CityNm |
| State Abbreviation | MA | StateAbbreviationCd |
| ZIP | 01950 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (15 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|
| Katherine Clapp | |||||||
| President | 40.00 | Yes (X) | Yes (X) | $94,751 | $0 | $4,704 | |
| Deborah Stevenson | |||||||
| Board Chair | 10.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| Michael Tranfaglia | |||||||
| Medical Director/Treasurer/Secretary | 40.00 | Yes (X) | Yes (X) | $107,671 | $0 | $4,703 | |
| Dean Clark | |||||||
| Director | 10.00 | Yes (X) | $0 | $0 | $0 | ||
| Theodore Coutilish | |||||||
| Director | 10.00 | Yes (X) | $0 | $0 | $0 | ||
| Leslie Eddy | |||||||
| Director | 10.00 | Yes (X) | $0 | $0 | $0 | ||
| Andres Centellas | |||||||
| Director | 10.00 | Yes (X) | $0 | $0 | $0 | ||
| Franziska Klebe | |||||||
| Director | 10.00 | Yes (X) | $0 | $0 | $0 | ||
| Jessica Haugen | |||||||
| Director | 10.00 | Yes (X) | $0 | $0 | $0 | ||
| James Vershbow | |||||||
| Director | 10.00 | Yes (X) | $0 | $0 | $0 | ||
| Ronald M Watkins Jr | |||||||
| Director | 10.00 | Yes (X) | $0 | $0 | $0 | ||
| Sasa Zorovic | |||||||
| Director | 10.00 | Yes (X) | $0 | $0 | $0 | ||
| Gregory Miller | |||||||
| Director | 10.00 | Yes (X) | $0 | $0 | $0 | ||
| Michael Pierce | |||||||
| Director | 10.00 | Yes (X) | $0 | $0 | $0 | ||
| David Bjork | |||||||
| Development Director | 40.00 | $100,000 | $0 | $0 | Yes (X) | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $302,422 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $9,407 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 1 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | false | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
| Fundraising | $439,365 | FundraisingAmt |
| All Other Contributions | $887,064 | AllOtherContributionsAmt |
| Noncash Contributions | $5,954 | NoncashContributionsAmt |
| Total Contributions | $1,326,429 | TotalContributionsAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $46,311 | TotalRevenueColumnAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $46,311 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $27,659 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $29,428 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | -$1,769 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$1,769 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $0 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | -$1,769 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $21,100 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $439,365 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $48,965 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$27,865 | TotalRevenueColumnAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | -$27,865 | ExclusionAmt |
Other Revenue Misc OtherRevenueMiscGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | Product Sales & Other | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $8,821 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $8,821 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $0 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $8,821 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $1,351,927 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $8,821 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $16,677 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $674,918 | TotalAmt |
| Program Services | $674,918 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $177,500 | TotalAmt |
| Program Services | $177,500 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $211,829 | TotalAmt |
| Program Services | $178,857 | ProgramServicesAmt |
| Management And General | $19,891 | ManagementAndGeneralAmt |
| Fundraising | $13,081 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $127,112 | TotalAmt |
| Program Services | $47,005 | ProgramServicesAmt |
| Management And General | $1,160 | ManagementAndGeneralAmt |
| Fundraising | $78,947 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $25,347 | TotalAmt |
| Program Services | $13,094 | ProgramServicesAmt |
| Management And General | $2,534 | ManagementAndGeneralAmt |
| Fundraising | $9,719 | FundraisingAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $5,315 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $5,315 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $30,486 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $30,486 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,018 | TotalAmt |
| Program Services | $1,153 | ProgramServicesAmt |
| Management And General | $1,813 | ManagementAndGeneralAmt |
| Fundraising | $52 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $9,120 | TotalAmt |
| Program Services | $4,712 | ProgramServicesAmt |
| Management And General | $912 | ManagementAndGeneralAmt |
| Fundraising | $3,496 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,413 | TotalAmt |
| Program Services | $662 | ProgramServicesAmt |
| Management And General | $55 | ManagementAndGeneralAmt |
| Fundraising | $696 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,748 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $3,748 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| Bank and credit fees | $12,955 | $350 | $18 | $12,587 |
| Printing | $846 | $405 | $0 | $441 |
| Postage | $1,147 | $557 | $99 | $491 |
| Registration Fees | $1,980 | $0 | $1,980 | $0 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,787 | TotalAmt |
| Program Services | $1,915 | ProgramServicesAmt |
| Management And General | $277 | ManagementAndGeneralAmt |
| Fundraising | $595 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,289,521 | TotalAmt |
| Program Services | $1,101,128 | ProgramServicesAmt |
| Management And General | $68,288 | ManagementAndGeneralAmt |
| Fundraising | $120,105 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $11,487 | BOYAmt |
| EOY | $11,826 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,346,718 | BOYAmt |
| EOY | $1,087,479 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $100,365 | BOYAmt |
| EOY | $163,558 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,400 | BOYAmt |
| EOY | $500 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $962,832 | BOYAmt |
| EOY | $1,205,572 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,422,802 | BOYAmt |
| EOY | $2,468,935 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,815 | BOYAmt |
| EOY | $7,844 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $168,421 | BOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $176,236 | BOYAmt |
| EOY | $7,844 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,116,195 | BOYAmt |
| EOY | $2,361,091 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $130,371 | BOYAmt |
| EOY | $100,000 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,246,566 | BOYAmt |
| EOY | $2,461,091 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,422,802 | BOYAmt |
| EOY | $2,468,935 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $62,406 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $152,119 | NetUnrlzdGainsLossesInvstAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | false | AccountantCompileOrReviewInd |
| FS Audited | Yes (true) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (true) | AuditCommitteeInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
| Other Support Sum | $0 | OtherSupportSumAmt |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,176,131 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,234,854 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,552,729 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,813,697 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,326,429 | CurrentTaxYearAmt |
| Total | $7,103,840 | TotalAmt |
Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,176,131 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,234,854 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,552,729 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,813,697 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,326,429 | CurrentTaxYearAmt |
| Total | $7,103,840 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $595,518 | SubstantialContributorsTotAmt |
| Public Support Total170 | $6,508,322 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $72,768 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $49,588 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $41,224 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $48,342 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $46,311 | CurrentTaxYearAmt |
| Total | $258,233 | TotalAmt |
Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $7,362,073 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $17,918 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.88400 | PublicSupportCY170Pct |
| Public Support PY170 | 0.86330 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
| Public Support Total509 | $0 | PublicSupportTotal509Amt |
| Public Support CY509 | 0 | PublicSupportCY509Pct |
| Investment Income CY | 0 | InvestmentIncomeCYPct |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
| Field | Value | IRS element (for citing) |
|---|---|---|
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $1,565,696 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $152,119 | NetUnrealizedGainsInvstAmt |
| Donated Services And Use Fclts | $18,000 | DonatedServicesAndUseFcltsAmt |
| Other Revenue | $48,965 | OtherRevenueAmt |
| Revenue Not Reported | $219,084 | RevenueNotReportedAmt |
| Revenue Subtotal | $1,346,612 | RevenueSubtotalAmt |
| Investment Expenses Not Incld | $5,315 | InvestmentExpensesNotIncldAmt |
| Revenue Not Reported Fincl Stmt | $5,315 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $1,351,927 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $1,351,171 | TotExpnsEtcAuditedFinclStmtAmt |
| Donated Services Use Fclts | $18,000 | DonatedServicesUseFcltsAmt |
| Other Expenses Included | $48,965 | OtherExpensesIncludedAmt |
| Expenses Not Reported | $66,965 | ExpensesNotReportedAmt |
| Expenses Subtotal | $1,284,206 | ExpensesSubtotalAmt |
| Investment Expenses Not Incld2 | $5,315 | InvestmentExpensesNotIncld2Amt |
| Expenses Not Rpt Fincl Stmt | $5,315 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $1,289,521 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (3 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Pt II, Line 3 | The Foundation has adopted the application of the provisions of FASB ASC 740-10 (formerly FASB Interpretation No. 48, "Accounting For Uncertainty in Income Taxes"). The primary tax positions made by the Foundation are the existence of Unrelated Business Income Tax and the Foundation's status as an exempt organization under Section 501(c)(3) of the Internal Revenue Code. The Foundation currently evaluates all tax positions, and makes determinations regarding the likelihood of those positions being upheld under review. For the year presented, and as a result of adoption, the Foundation has not recognized any tax benefits or loss contingencies for uncertain tax positions based on its evaluations. The Foundation's Form 990, Return of Organization Exempt from Income Tax, for the years ending December 31, 2016 through 2019 are subject to examination by the IRS, generally for 3 years after it is filed. |
| Pt XI, Line 2d | Fundraising event expense netted with revenue on Form 990 |
| Pt XII, Line 2d | Fundraising event expense netted with revenue on Form 990 |
Schedule F IRS990ScheduleF
Grants To Org Outside US GrantsToOrgOutsideUSGrp (5 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt |
|---|---|---|---|
| North America | Research | $22,500 | Wire |
| South America | Research | $60,000 | Wire |
| Europe | Research | $20,000 | Wire |
| North America | Research | $30,000 | Wire |
| Europe | Research | $45,000 | Wire |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 5 | Total501c3OrgCnt |
| Transfer To Foreign Corp | false | TransferToForeignCorpInd |
| Interest In Foreign Trust | false | InterestInForeignTrustInd |
| Foreign Corp Ownership | false | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | false | PassiveForeignInvestmestCoInd |
| Foreign Partnership | false | ForeignPartnershipInd |
| Boycott Countries | false | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Pt I Line 2 | FormAndLineReferenceDesc |
| Explanation | The Foundation makes their foreign grantees adhere to the same contract and write the same reports as their grantees in the US. The Foundation offers grants and fellowships designed to encourage research aimed at finding a specific treatment for fragile X syndrome. Institutions receiving grants must be exempt from federal income taxes under Section 501(c)(3) of the US Internal Revenue Code, if in the US. Institutions outside the US must be nonprofit educational institutions. Fellowships and grants are awarded for one year. A financial report and progress report are required within 90 days following the end of the project. If a project is not initiated within nine months of the date the award is made, the award must be reauthorized by the Foundation's Board of Directors. | ExplanationTxt |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | Patricks Pals | Event1Nm |
| Gross Receipts Event1 | $139,230 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $139,230 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $0 | GrossRevenueEvent1Amt |
| Other Direct Expenses Event1 | $2,826 | OtherDirectExpensesEvent1Amt |
| Event2 | Watkins Event | Event2Nm |
| Gross Receipts Event2 | $50,000 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $50,000 | CharitableContriEvent2Amt |
| Gross Revenue Event2 | $0 | GrossRevenueEvent2Amt |
| Other Events Total | 6 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $153,178 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $132,078 | CharitableContriOtherEventsAmt |
| Gross Revenue Other Events | $21,100 | GrossRevenueOtherEventsAmt |
| Rent Fclty Costs Other Events | $26,092 | RentFcltyCostsOtherEventsAmt |
| Oth Direct Expnss Other Events | $4,927 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $342,408 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $321,308 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $21,100 | GrossRevenueTotalEventsAmt |
| Rent Fclty Costs Total Events | $26,092 | RentFcltyCostsTotalEventsAmt |
| Oth Direct Expnss Total Events | $7,753 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $33,845 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$12,745 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (14 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|
| University of Washington | ||||||
| Roosevelt Way NE | Seattle | WA | 98115 | 916001537 | $45,000 | Research |
| Cincinnati Children's Hospital | ||||||
| 3333 Burnet Ave | Cincinnati | OH | 45229 | 310833936 | $90,000 | Research |
| University of Texas Southwestern | ||||||
| PO Box 841765 | Dallas | TX | 75284 | 756002868 | $45,000 | Research |
| Massachusetts General Hospital | ||||||
| 55 Fruit Street | Boston | MA | 02211 | 041564655 | $45,000 | Research |
| University of California Los Angeles | ||||||
| 405 Hilgard Avenue | Los Angeles | CA | 90095 | 956006143 | $45,000 | Research |
| Mass Inst of Technology | ||||||
| 77 Mass Avenue | Cambridge | MA | 02139 | 042103594 | $45,000 | Research |
| Rush University Medical Center | ||||||
| 1653 W Congress Parkway | Chicago | IL | 60612 | 362174823 | $100,000 | Research |
| University of California | ||||||
| 900 University Avenue | Riverside | CA | 92521 | 956006142 | $13,000 | Research |
| University of California - Berkeley | ||||||
| 120 Sproul Hall | Berkeley | CA | 94720 | 946002123 | $45,000 | Research |
| Emory University | ||||||
| 201 Dowman Drive | Atlanta | GA | 30322 | 580566256 | $45,000 | Research |
| Rowan University | ||||||
| 201 Mullica Hill Road | Glassboro | NJ | 08028 | 222764819 | $20,800 | Research |
| Umass medical | ||||||
| 55 N Lake Avenue | Worcester | MA | 01655 | 043358566 | $45,000 | Research |
| Boston Childrens Hospital | ||||||
| PO Box 414413 | Boston | MA | 02241 | 042774441 | $45,000 | Research |
| University fo Wisconsin-Madison | ||||||
| Drawer 538 | Milwaukee | WI | 53278 | 396006492 | $45,000 | Research |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 1 | Total501c3OrgCnt |
| Total Other Org | 13 | TotalOtherOrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Pt I Line 2 | FormAndLineReferenceDesc |
| Explanation | The Foundation offers grants and fellowships designed to encourage research aimed at finding a specific treatment for fragile X syndrome. Institutions receiving grants must be exempt from federal income taxes under Section 501(c)(3) of the US Internal Revenue Code, if in the US. Institutions outside the US must be nonprofit educational institutions. Fellowships and grants are awarded for one year. A financial report and progress report are required within 90 days following the end of the project. If a project is not initiated within nine months of the date the award is made, the award must be reauthorized by the Foundation's Board of Directors. | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (6 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Pt VI, Line 2 | The President, Katherine Clapp and the Treasurer, Michael Tranfaglia are married. |
| Pt VI, Line 11b | The Form 990 is prepared by an outside independent auditor and is then reviewed by the Board of Directors at a meeting before being filed with the Internal Revenue Service. |
| Pt VI, Line 12c | If an issue is to be decided by the Board that involves potential conflict of interest for a board member, it is the responsibility of the board member to identify the potential conflict of interest, not participate in the discussion of the issue and not vote on the issue. |
| Pt VI, Line 15a | The Board of Director members exclusive of the officers being discussed meet independently to discuss salary increases. |
| Pt VI, Line 15b | The Board of Director members exclusive of the officers being discussed meet independently to discuss salary increases. |
| Pt VI, Line 19 | The Foundation has written governing documents, conflict of interest policy and financial statements and they are available for public inspection upon request. The audited financial statements an the Foundation's 501(c)(3) exempt status are available to the public on the Foundation's website (www.fraxa.org). The Foundation's financial information and tax forms are also available on guidestar.org. The process has not changed from the prior year. |