VASCULITIS FOUNDATION: Form 990, tax year 2024
View the entire original 990 at ProPublica ↗
- Organization
- VASCULITIS FOUNDATION (EIN 43-1492959)
- Tax period
- 2024-07-01 to 2025-06-30
- Filed
- 2025-09-19
- IRS object ID
- 202522629349300037
- Schema version
- 2024v5.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2025-09-19T15:42:41-04:00 | ReturnTs |
| Tax Period End | 2025-06-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 431122456 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | NOVAK BIRKS PC | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 4435 MAIN ST STE 500 | AddressLine1Txt |
| City | KANSAS CITY | CityNm |
| State Abbreviation | MO | StateAbbreviationCd |
| ZIP | 641111858 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2024-07-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 431492959 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | VASCULITIS FOUNDATION | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | VASC | BusinessNameControlTxt |
| Phone | 8164368211 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | PO BOX 28660 | AddressLine1Txt |
| City | KANSAS CITY | CityNm |
| State Abbreviation | MO | StateAbbreviationCd |
| ZIP | 64188 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | JOYCE A KULLMAN | PersonNm |
| Person Title | EXECUTIVE DIRECTOR | PersonTitleTxt |
| Phone | 8164368211 | PhoneNum |
| Signature | 2025-08-22 | SignatureDt |
| Discuss With Paid Preparer | Yes (true) | DiscussWithPaidPreparerInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IRS Responsible Prty Info Curr | false | IRSResponsiblePrtyInfoCurrInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | WILLIAM J MILLER CPA | PreparerPersonNm |
| PTIN | P01604284 | PTIN |
| Phone | 8169316111 | PhoneNum |
| Preparation | 2025-09-19 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2024 | TaxYr |
| Build TS | 2025-03-06 01:10:19Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | KEVIN BYRAM MD | PrincipalOfficerNm |
| Gross Receipts | $2,508,810 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.VASCULITISFOUNDATION.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1988 | FormationYr |
| Legal Domicile State | MO | LegalDomicileStateCd |
| Activity Or Mission | BUILDING UPON THE COLLECTIVE STRENGTH OF THE VASCULITIS COMMUNITY, THE VASCULITIS FOUNDATION SUPPORTS, INSPIRES AND EMPOWERS INDIVIDUALS WITH VASCULITIS AND THEIR FAMILIES THROUGH A WIDE RANGE OF EDUCATION, RESEARCH, CLINICAL, AND AWARENESS INITIATIVES. OUR VISION IS TO BE THE LEADING ORGANIZATION IN THE WORLD DEDICATED TO DIGANOSING, TREATING, AND CURING ALL FORMS OF VASCULITIS. | ActivityOrMissionDesc |
| Voting Members Governing Body | 12 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 12 | VotingMembersIndependentCnt |
| Total Employee | 11 | TotalEmployeeCnt |
| Total Volunteers | 150 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| PY Contributions Grants | $2,740,183 | PYContributionsGrantsAmt |
| CY Contributions Grants | $2,299,448 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $75,230 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $64,436 | CYProgramServiceRevenueAmt |
| PY Investment Income | $141,293 | PYInvestmentIncomeAmt |
| CY Investment Income | $144,926 | CYInvestmentIncomeAmt |
| CY Other Revenue | $0 | CYOtherRevenueAmt |
| PY Total Revenue | $2,956,706 | PYTotalRevenueAmt |
| CY Total Revenue | $2,508,810 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $502,502 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $246,907 | CYGrantsAndSimilarPaidAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $638,217 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $911,909 | CYSalariesCompEmpBnftPaidAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $248,744 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $949,606 | PYOtherExpensesAmt |
| CY Other Expenses | $1,224,290 | CYOtherExpensesAmt |
| PY Total Expenses | $2,090,325 | PYTotalExpensesAmt |
| CY Total Expenses | $2,383,106 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $866,381 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $125,704 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $5,594,826 | TotalAssetsBOYAmt |
| Total Assets EOY | $6,087,497 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $53,633 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $146,118 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $5,541,193 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $5,941,379 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | BUILDING UPON THE COLLECTIVE STRENGTH OF THE VASCULITIS COMMUNITY, THE VASCULITIS FOUNDATION SUPPORTS, INSPIRES AND EMPOWERS INDIVIDUALS WITH VASCULITIS AND THEIR FAMILIES THROUGH A WIDE RANGE OF EDUCATION, RESEARCH, CLINICAL, AND AWARENESS INITIATIVES. OUR VISION IS TO BE THE LEADING ORGANIZATION IN THE WORLD DEDICATED TO DIGANOSING, TREATING, AND CURING ALL FORMS OF VASCULITIS. | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $900,946 | ExpenseAmt |
| Revenue | $64,436 | RevenueAmt |
| Desc | BUILDING UPON THE COLLECTIVE STRENGTH OF THE VASCULITIS COMMUNITY, THE VASCULITIS FOUNDATION (VF) SUPPORTS, INSPIRES, AND EMPOWERS INDIVIDUALS WITH VASCULITIS AND THEIR FAMILIES THROUGH A WIDE RANGE OF EDUCATION, FELLOWSHIP, RESEARCH, CLINICAL, AND AWARENESS INITIATIVES. OUR VISION IS TO BE THE LEADING ORGANIZATION IN THE WORLD DEDICATED TO DIAGNOSING, TREATING, AND CURING ALL FORMS OF VASCULITIS. THE VF PROVIDES SUPPORT THROUGH ITS EXTENSIVE WEBSITE, MONTLHY E-NEWSLETTERS, ELECTRONIC AND PRINTED EDUCATIONAL MATERIALS, PHONE AND EMAIL OUTREACH. WEBSITE VISITORS: 35,000 ANNUALLY; YOUTUBE SUBSCRIBERS: 10,000+ ANNUALLY; MONTHLY E-NEWSLETTER DISTRIBUTION: MORE THAN 14,000 SUBSCRIBERS; AND 3,500 PHONE AND EMAIL REQUESTS FOR ASSISTANCE THIS YEAR. THE VF OFFERS 9 VIRTUAL SUPPORT GROUP MEETINGS MONTHLY FOR PATIENTS OF ALL AGES AND THEIR PARENTS AND CAREGIVERS, ATTRACTING AS MANY AS 275 PARTICIPANTS A MONTH. THE VF OFFERS WIDE-RANGING LIVE AND ON-DEMAND WEBINARS WHICH ADDRESS DISEASE SPOTLIGHTS, MENTAL HEALTH/WELLNESS, RESEARCH, THERAPIES AND TREATMENTS. THE VF HAD 100+ WEBINARS WITH 7,020 HOURS WATCHED, AND 150,000+ VIEWS ON VF'S YOUTUBE EDUCATION CHANNEL. THE VF TEAM HAS BEEN ON THE ROAD THIS YEAR EDUCATING OUR PATIENT COMMUNITY AT REGIONAL CONFERENCES IN AUSTIN, CLEVELAND, NASHVILLE, SANTA MONICA, SCOTTSDALE, SEATTLE, AND WASHINGTON, DC. THE VF TEAM ALSO RAISED AWARENESS IN THE MEDICAL COMMUNITY BY EXHIBITING AT INTERNATIONAL MEDICAL CONFERENCES INCLUDING THE AMERICAN COLLEGE OF RHEUMATOLOGY, AMERICAN SOCIETY OF NEPHROLOGY, AMERICAN THORACIC SOCIETY, CARRA, AND RH APP. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $621,816 | ExpenseAmt |
| Grant | $246,907 | GrantAmt |
| Desc | VASCULITIS - BUILDING OUTCOMES, LEADING DISCOVERIES (V-BOLD) PROGRAM COMBINES RESEARCH, FELLOWSHIPS, VASCULITIS CENTERS, AND THE VPPRN WITH THE GOAL TO IMPROVE THE QUALITY OF LIFE FOR PATIENTS WITH VASCULITIS, AND ULTIMATELY FIND THE CAUSE(S) AND CURE FOR VASCULITIS. RESEARCH: THE VF YOUNG INVESTIGATOR AWARD PROVIDES ONE OR TWO-YEAR GRANTS OF UP TO 50,000 TO SUPPORT RESEARCHERS WITHIN FIVE YEARS OF THE COMPLETION OF THEIR FELLOWSHIPS. THE FUNDING SUPPORTS PILOT STUDIES IN RESEARCHING DIAGNOSIS, ETIOLOGY/PATHOGENESIS, EPIDEMIOLOGY, AND TREATMENT/MANAGEMENT. FELLOWSHIPS: THE VF PARTNERS WITH ACADEMIC INSTITUTIONS AND THE VASCULITIS CLINICAL RESEARCH CONSORTIUM (VCRC) TO PROVIDE FELLOWSHIPS FOR PHYSICIAN- INVESTIGATORS WHO HAVE A STRONG INTEREST IN VASCULITIS. THIS MENTORED TRAINING PROGRAM EMPHASIZES CLINICAL, PATIENT-ORIENTED INVESTIGATION. VASCULITIS CENTERS ARE ESSENTIAL IN THE PATIENT JOURNEY - FROM DIAGNOSIS TO TREATMENT TO REMISSION, WITH THE POTENTIAL FOR CURES. VASCULITIS CENTERS PROVIDE COMPREHENSIVE, HIGH-QUALITY, AND COMPASSIONATE CARE TO PATIENTS WITH VASCULITIS. IN ADDITION, THEY HAVE THE CAPACITY TO ADVANCE OUR UNDERSTANDING OF VASCULITIS THROUGH RESEARCH. WITH EXPERTS IN THE MANAGEMENT AND STUDY OF THE DISEASE, VASCULITIS CENTERS ARE AT THE FOREFRONT OF SPECIALTY CARE AND CLINICAL RESEARCH, WHILE TREATING ALL TYPES OF VASCULITIS. IN 2024-25, VF FUNDED 10 GRANTS TOTALLING 246,907. VASCULITIS PATIENT-POWERED RESEARCH NETWORK (VPPRN) IS THE INTERNATIONAL RESEARCH NETWORK OF PATIENTS, SCIENTISTS, CLINICIANS, ADVOCATES AND FAMILY MEMBERS WHO WORK TO IMPROVE THE HEALTH CARE AND QUALITY OF LIFE FOR PEOPLE WITH VASCULITIS THROUGH HIGH-LEVEL CLINICAL RESEARCH. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $1,522,762 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (true) | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | false | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | Yes (true) | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (true) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | false | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (true) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (true) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (true) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | false | ForeignOfficeInd |
| Foreign Activities | false | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (true) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | false | ProfessionalFundraisingInd |
| Fundraising Activities | false | FundraisingActivitiesInd |
| Gaming Activities | false | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | Yes (true) | GrantsToOrganizationsInd |
| Grants To Individuals | false | GrantsToIndividualsInd |
| Schedule J Required | false | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | false | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | false | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | false | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | false | DisregardedEntityInd |
| Related Entity | false | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 15 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Employee | 11 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (true) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | false | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | false | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | false | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | false | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | false | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | false | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 12 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 12 | IndependentVotingMemberCnt |
| Family Or Business Rln | false | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (true) | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | false | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (true) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (true) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (true) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (true) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (true) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (true) | CompensationProcessCEOInd |
| Compensation Process Other | false | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | JOYCE A KULLMAN | PersonNm |
| Phone | 8164368211 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | PO BOX 28660 | AddressLine1Txt |
| City | KANSAS CITY | CityNm |
| State Abbreviation | MO | StateAbbreviationCd |
| ZIP | 64188 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (14 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd |
|---|---|---|---|---|---|---|---|
| JOYCE A KULLMAN | |||||||
| EXECUTIVE DI | 40.00 | 0.00 | Yes (X) | $126,647 | $0 | $22,821 | |
| KEVIN BYRAM MD | |||||||
| PRESIDENT | 4.00 | 0.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| SARA BAIRD AMODIO MSW EDD | |||||||
| PAST PRESIDE | 4.00 | 0.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| ELIZABETH BRANDT MD | |||||||
| SECRETARY | 4.00 | 0.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| DON NAGLE | |||||||
| TREAS - ENDI | 4.00 | 0.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| WILLIAM ANDREWS | |||||||
| TREAS - BEG | 4.00 | 0.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| BRIAN GOLDMAN | |||||||
| VP OF RESOUR | 4.00 | 0.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| JOCELYN ASHFORD | |||||||
| DIRECTOR | 4.00 | 0.00 | $0 | $0 | $0 | Yes (X) | |
| CAZ CAZANOV | |||||||
| DIRECTOR | 4.00 | 0.00 | $0 | $0 | $0 | Yes (X) | |
| NOELLE CREAMER | |||||||
| DIRECTOR | 4.00 | 0.00 | $0 | $0 | $0 | Yes (X) | |
| VIMAL DEREBAIL MD | |||||||
| DIRECTOR | 4.00 | 0.00 | $0 | $0 | $0 | Yes (X) | |
| ANISHA B DUA MD MPH | |||||||
| DIRECTOR | 4.00 | 0.00 | $0 | $0 | $0 | Yes (X) | |
| DAHLIA MAK | |||||||
| DIRECTOR | 4.00 | 0.00 | $0 | $0 | $0 | Yes (X) | |
| SEBASTIAN SATTUI MD | |||||||
| DIRECTOR | 4.00 | 0.00 | $0 | $0 | $0 | Yes (X) | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $126,647 | TotalReportableCompFromOrgAmt |
| Total Other Compensation | $22,821 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 1 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | false | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
| Federated Campaigns | $2,510 | FederatedCampaignsAmt |
| Membership Dues | $70,000 | MembershipDuesAmt |
| All Other Contributions | $2,226,938 | AllOtherContributionsAmt |
| Noncash Contributions | $2,000 | NoncashContributionsAmt |
| Total Contributions | $2,299,448 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp (2 entries)
| DescDesc | Total Revenue ColumnTotalRevenueColumnAmt | Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt |
|---|---|---|
| FEES FOR SERVICE | $50,546 | $50,546 |
| SYMPOSIUM/CONF REGISTRATIONS | $13,890 | $13,890 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $64,436 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $144,926 | TotalRevenueColumnAmt |
| Exclusion | $144,926 | ExclusionAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $2,508,810 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $64,436 | RelatedOrExemptFuncIncomeAmt |
| Exclusion | $144,926 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $178,870 | TotalAmt |
| Program Services | $178,870 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $68,037 | TotalAmt |
| Program Services | $68,037 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $149,468 | TotalAmt |
| Program Services | $85,198 | ProgramServicesAmt |
| Management And General | $17,936 | ManagementAndGeneralAmt |
| Fundraising | $46,334 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $641,639 | TotalAmt |
| Program Services | $408,164 | ProgramServicesAmt |
| Management And General | $104,645 | ManagementAndGeneralAmt |
| Fundraising | $128,830 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $23,316 | TotalAmt |
| Program Services | $14,673 | ProgramServicesAmt |
| Management And General | $3,242 | ManagementAndGeneralAmt |
| Fundraising | $5,401 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $36,323 | TotalAmt |
| Program Services | $31,325 | ProgramServicesAmt |
| Management And General | $689 | ManagementAndGeneralAmt |
| Fundraising | $4,309 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $61,163 | TotalAmt |
| Program Services | $36,082 | ProgramServicesAmt |
| Management And General | $11,894 | ManagementAndGeneralAmt |
| Fundraising | $13,187 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,074 | TotalAmt |
| Management And General | $4,074 | ManagementAndGeneralAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $109,677 | TotalAmt |
| Program Services | $4,000 | ProgramServicesAmt |
| Management And General | $105,677 | ManagementAndGeneralAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $20,228 | TotalAmt |
| Management And General | $20,228 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $103,139 | TotalAmt |
| Program Services | $10,360 | ProgramServicesAmt |
| Management And General | $92,779 | ManagementAndGeneralAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $46,523 | TotalAmt |
| Program Services | $35,539 | ProgramServicesAmt |
| Management And General | $680 | ManagementAndGeneralAmt |
| Fundraising | $10,304 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $43,389 | TotalAmt |
| Program Services | $11,827 | ProgramServicesAmt |
| Management And General | $28,479 | ManagementAndGeneralAmt |
| Fundraising | $3,083 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $279,472 | TotalAmt |
| Program Services | $116,655 | ProgramServicesAmt |
| Management And General | $162,817 | ManagementAndGeneralAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $115,117 | TotalAmt |
| Program Services | $98,357 | ProgramServicesAmt |
| Management And General | $7,617 | ManagementAndGeneralAmt |
| Fundraising | $9,143 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $157,052 | TotalAmt |
| Program Services | $127,100 | ProgramServicesAmt |
| Management And General | $27,035 | ManagementAndGeneralAmt |
| Fundraising | $2,917 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $78,816 | TotalAmt |
| Program Services | $71,631 | ProgramServicesAmt |
| Management And General | $2,086 | ManagementAndGeneralAmt |
| Fundraising | $5,099 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $55,158 | TotalAmt |
| Program Services | $41,368 | ProgramServicesAmt |
| Management And General | $13,790 | ManagementAndGeneralAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $6,117 | TotalAmt |
| Management And General | $6,117 | ManagementAndGeneralAmt |
Other Expenses OtherExpensesGrp (2 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| DIRECT PROGRAM SERVICES | $197,468 | $175,516 | $1,815 | $20,137 |
| SCHOLARSHIP EXPENSE | $8,060 | $8,060 |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,383,106 | TotalAmt |
| Program Services | $1,522,762 | ProgramServicesAmt |
| Management And General | $611,600 | ManagementAndGeneralAmt |
| Fundraising | $248,744 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $103,368 | BOYAmt |
| EOY | $91,708 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,177,360 | BOYAmt |
| EOY | $1,472,079 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $532,500 | BOYAmt |
| EOY | $1,005,500 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $23,500 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $50,162 | BOYAmt |
| EOY | $5,582 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $213,084 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $82,898 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $142,426 | BOYAmt |
| EOY | $130,186 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,589,010 | BOYAmt |
| EOY | $3,358,942 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,594,826 | BOYAmt |
| EOY | $6,087,497 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $23,592 | BOYAmt |
| EOY | $18,530 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,045 | BOYAmt |
| EOY | $83,000 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $28,996 | BOYAmt |
| EOY | $44,588 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $53,633 | BOYAmt |
| EOY | $146,118 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,188,892 | BOYAmt |
| EOY | $2,566,441 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,352,301 | BOYAmt |
| EOY | $3,374,938 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,541,193 | BOYAmt |
| EOY | $5,941,379 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,594,826 | BOYAmt |
| EOY | $6,087,497 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $125,704 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $274,482 | NetUnrlzdGainsLossesInvstAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | false | AccountantCompileOrReviewInd |
| FS Audited | Yes (true) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (true) | AuditCommitteeInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,269,441 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,501,389 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,888,211 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,740,183 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,299,448 | CurrentTaxYearAmt |
| Total | $10,698,672 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,269,441 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,501,389 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,888,211 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,740,183 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,299,448 | CurrentTaxYearAmt |
| Total | $10,698,672 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $3,225,341 | SubstantialContributorsTotAmt |
| Public Support Total170 | $7,473,331 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $14,246 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $13,888 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $84,580 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $141,293 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $144,926 | CurrentTaxYearAmt |
| Total | $398,933 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $11,097,605 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $454,057 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.67340 | PublicSupportCY170Pct |
| Public Support PY170 | 0.70290 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $2,589,010 | BeginningYearBalanceAmt |
| Contributions | $485,186 | ContributionsAmt |
| Investment Earnings Or Losses | $350,066 | InvestmentEarningsOrLossesAmt |
| Grants Or Scholarships | $45,092 | GrantsOrScholarshipsAmt |
| Administrative Expenses | $20,228 | AdministrativeExpensesAmt |
| End Year Balance | $3,358,942 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $2,113,397 | BeginningYearBalanceAmt |
| Contributions | $235,298 | ContributionsAmt |
| Investment Earnings Or Losses | $278,922 | InvestmentEarningsOrLossesAmt |
| Grants Or Scholarships | $22,500 | GrantsOrScholarshipsAmt |
| Administrative Expenses | $16,107 | AdministrativeExpensesAmt |
| End Year Balance | $2,589,010 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $274,635 | BeginningYearBalanceAmt |
| Contributions | $1,759,065 | ContributionsAmt |
| Investment Earnings Or Losses | $84,686 | InvestmentEarningsOrLossesAmt |
| Administrative Expenses | $4,989 | AdministrativeExpensesAmt |
| End Year Balance | $2,113,397 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $313,242 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | -$36,815 | InvestmentEarningsOrLossesAmt |
| Administrative Expenses | $1,792 | AdministrativeExpensesAmt |
| End Year Balance | $274,635 | EndYearBalanceAmt |
CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $253,378 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $61,689 | InvestmentEarningsOrLossesAmt |
| Administrative Expenses | $1,825 | AdministrativeExpensesAmt |
| End Year Balance | $313,242 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Board Designated Balance EOY | 0.64000 | BoardDesignatedBalanceEOYPct |
| Term Endowment Balance EOY | 0.36000 | TermEndowmentBalanceEOYPct |
| Endowments Held Unrelated Org | Yes (true) | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | false | EndowmentsHeldRelatedOrgInd |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $213,084 | OtherCostOrOtherBasisAmt |
| Depreciation | $82,898 | DepreciationAmt |
| Book Value | $130,186 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $130,186 | TotalBookValueLandBuildingsAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)
| DescDesc | AmtAmt |
|---|---|
| ACCRUED PAYROLL | $44,376 |
| PAYROLL TAXES | $212 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $44,588 | TotalLiabilityAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $2,763,064 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $274,482 | NetUnrealizedGainsInvstAmt |
| Revenue Not Reported | $274,482 | RevenueNotReportedAmt |
| Revenue Subtotal | $2,488,582 | RevenueSubtotalAmt |
| Investment Expenses Not Incld | $20,228 | InvestmentExpensesNotIncldAmt |
| Revenue Not Reported Fincl Stmt | $20,228 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $2,508,810 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $2,362,878 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Subtotal | $2,362,878 | ExpensesSubtotalAmt |
| Investment Expenses Not Incld2 | $20,228 | InvestmentExpensesNotIncld2Amt |
| Expenses Not Rpt Fincl Stmt | $20,228 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $2,383,106 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| SCHEDULE D, PAGE 2, PART V, LINE 4 | THERE ARE TWO FUNDS TREATED AS ENDOWMENT FUNDS. THE SUZANNE LYSANDROU- DEPAOLIS VASCULITIS EDUCATIONAL OUTREACH ENDOWMENT WAS ESTABLISHED TO SUPPORT EDUCATIONAL PROGRAMS, RESOURCES, AND TRAINING FOR VASCULITIS PATIENTS AND MEDICAL PROFESSIONALS. THE ENDOWMENT WILL CEASE ON DECEMBER 13, 2055, AFTER WHICH THE BALANCE WILL BE SPENT DOWN IN SUBSEQUENT YEARS. THE VASCULITIS FOUNDATION BOARD HAS DESIGNATED CERTAIN FUNDS, TO BE TREATED SIMILARLY TO AN ENDOWMENT, TO GENERATE A LONG-TERM TOTAL RATE OF RETURN THAT WILL INCREASE THE VALUE OF THE ASSETS AND PROVIDE A LONG TERM RESERVE FUND FOR THE ORGANIZATION. |
| SCHEDULE D, PAGE 3, PART X | THE FOUNDATION QUALIFIES AS TAX EXEMPT FROM FEDERAL INCOME TAX UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. THE FOUNDATION RECOGNIZES THE FINANCIAL STATEMENT BENEFIT OF A TAX POSITION ONLY AFTER DETERMINING THAT THE RELEVANT TAX AUTHORITY WOULD MORE-LIKELY-THAN-NOT SUSTAIN THE POSITION FOLLOWING AN AUDIT. FOR TAX POSITIONS MEETING THE MORE-LIKELY- THAN-NOT THRESHOLD, THE AMOUNT RECOGNIZED IN THE FINANCIAL STATEMENTS IS THE LARGEST BENEFIT THAT HAS A GREATER THAN 50% LIKELIHOOD OF BEING REALIZED UPON ULTIMATE SETTLEMENT WITH THE RELEVANT TAX AUTHORITY. THE FOUNDATION IS SUBJECT TO INCOME TAX REGULATIONS IN THE U.S. FEDERAL JURISDICTION AND CERTAIN STATE JURISDICTIONS. TAX REGULATIONS WITHIN EACH JURISDICTION ARE SUBJECT TO THE INTERPRETATION OF THE RELATED TAX LAWS AND REGULATIONS AND REQUIRE SIGNIFICANT JUDGMENT TO APPLY. WITH FEW EXCEPTIONS, THE FOUNDATION IS NO LONGER SUBJECT TO INCOME TAX EXAMINATIONS BY THE APPLICABLE TAX AUTHORITIES FOR THE YEARS BEFORE 2021. IF ANY WERE TO BE INCURRED, THE FOUNDATION'S POLICY IS TO RECORD PENALTIES AND INTEREST ASSESSED BY INCOME TAX AUTHORITIES AS OPERATING EXPENSES. |
Schedule F IRS990ScheduleF
Grants To Org Outside US GrantsToOrgOutsideUSGrp (4 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt |
|---|---|---|---|
| NORTH AMERICA | FELLOWSHIP GRANT | $25,000 | WIRE |
| EUROPE | VASCULITIS RESEARCH | $12,500 | WIRE |
| NORTH AMERICA | VASCULITIS RESEARCH | $5,537 | WIRE |
| EUROPE | VASCULITIS RESEARCH | $25,000 | WIRE |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Org | 4 | TotalOtherOrgCnt |
| Transfer To Foreign Corp | false | TransferToForeignCorpInd |
| Interest In Foreign Trust | false | InterestInForeignTrustInd |
| Foreign Corp Ownership | false | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | false | PassiveForeignInvestmestCoInd |
| Foreign Partnership | false | ForeignPartnershipInd |
| Boycott Countries | false | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE F, PAGE 1, PART I, LINE 2 | FormAndLineReferenceDesc |
| Explanation | GRANT RECIPIENTS ARE REQUIRED TO SUBMIT PERIODIC REPORTS ON THE STATUS OF THEIR RESEARCH AND USE OF GRANT FUNDS. | ExplanationTxt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (6 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt | Business Name Line2RecipientBusinessName/BusinessNameLine2Txt | Address Line2USAddress/AddressLine2Txt |
|---|---|---|---|---|---|---|---|---|---|
| CLEVELAND CLINIC FOUNDATION | |||||||||
| 9500 EUCLID AVE A50 | CLEVELAND | OH | 44195 | 340714585 | 501C3 | $25,000 | FELLOWSHIP GRANT | ||
| OHIO STATE UNIVERSITY | |||||||||
| 1960 KENNY ROAD | COLUMBUS | OH | 43210 | 316025986 | GOV | $11,250 | VASCULITIS RESEARCH | ||
| TRUSTEES OF THE UNIVERSITY OF PA | |||||||||
| 3451 WALNUT STREET | PHILADELPHIA | PA | 19104 | 231352685 | 501C3 | $12,620 | VASCULITIS RESEARCH | OFFICE OF RESEARCH STUDIES | |
| TRUSTEES OF THE UNIVERSITY OF PA | |||||||||
| 3400 SPRUCE STREET | PHILADELPHIA | PA | 19104 | 231352685 | 501C3 | $80,000 | VPPRN PROGRAM | DIVISION OF RHEUMATOLOGY | 5057 WHITE BUILDING |
| YALE UNIVERSITY | |||||||||
| PO BOX 1873 | NEW HAVEN | CT | 065081873 | 060646973 | 501C3 | $25,000 | VASCULITIS RESEARCH | ||
| UNIVERSITY OF COLORADO | |||||||||
| 13123 E 16TH AVE | AURORA | CO | 800457106 | 846000555 | 501C3 | $25,000 | VASCULITIS RESEARCH | DEPARTMENT OF PEDIATRICS | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 4 | Total501c3OrgCnt |
| Total Other Org | 1 | TotalOtherOrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE I, PAGE 1, PART I, LINE 2 | FormAndLineReferenceDesc |
| Explanation | GRANT RECIPIENTS ARE REQUIRED TO SUBMIT PERIODIC REPORTS ON THE STATUS OF THEIR RESEARCH AND USE OF GRANT FUNDS. | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (7 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990 - ORGANIZATION'S MISSION | BUILDING UPON THE COLLECTIVE STRENGTH OF THE VASCULITIS COMMUNITY, THE VASCULITIS FOUNDATION SUPPORTS, INSPIRES AND EMPOWERS INDIVIDUALS WITH VASCULITIS AND THEIR FAMILIES THROUGH A WIDE RANGE OF EDUCATION, RESEARCH, CLINICAL, AND AWARENESS INITIATIVES. OUR VISION IS TO BE THE LEADING ORGANIZATION IN THE WORLD DEDICATED TO DIGANOSING, TREATING, AND CURING ALL FORMS OF VASCULITIS. |
| FORM 990, PAGE 2, PART III, LINE 4A | BUILDING UPON THE COLLECTIVE STRENGTH OF THE VASCULITIS COMMUNITY, THE VASCULITIS FOUNDATION (VF) SUPPORTS, INSPIRES, AND EMPOWERS INDIVIDUALS WITH VASCULITIS AND THEIR FAMILIES THROUGH A WIDE RANGE OF EDUCATION, FELLOWSHIP, RESEARCH, CLINICAL, AND AWARENESS INITIATIVES. OUR VISION IS TO BE THE LEADING ORGANIZATION IN THE WORLD DEDICATED TO DIAGNOSING, TREATING, AND CURING ALL FORMS OF VASCULITIS. THE VF PROVIDES SUPPORT THROUGH ITS EXTENSIVE WEBSITE, MONTLHY E-NEWSLETTERS, ELECTRONIC AND PRINTED EDUCATIONAL MATERIALS, PHONE AND EMAIL OUTREACH. WEBSITE VISITORS: 35,000 ANNUALLY; YOUTUBE SUBSCRIBERS: 10,000+ ANNUALLY; MONTHLY E-NEWSLETTER DISTRIBUTION: MORE THAN 14,000 SUBSCRIBERS; AND 3,500 PHONE AND EMAIL REQUESTS FOR ASSISTANCE THIS YEAR. THE VF OFFERS 9 VIRTUAL SUPPORT GROUP MEETINGS MONTHLY FOR PATIENTS OF ALL AGES AND THEIR PARENTS AND CAREGIVERS, ATTRACTING AS MANY AS 275 PARTICIPANTS A MONTH. THE VF OFFERS WIDE-RANGING LIVE AND ON-DEMAND WEBINARS WHICH ADDRESS DISEASE SPOTLIGHTS, MENTAL HEALTH/WELLNESS, RESEARCH, THERAPIES AND TREATMENTS. THE VF HAD 100+ WEBINARS WITH 7,020 HOURS WATCHED, AND 150,000+ VIEWS ON VF'S YOUTUBE EDUCATION CHANNEL. THE VF TEAM HAS BEEN ON THE ROAD THIS YEAR EDUCATING OUR PATIENT COMMUNITY AT REGIONAL CONFERENCES IN AUSTIN, CLEVELAND, NASHVILLE, SANTA MONICA, SCOTTSDALE, SEATTLE, AND WASHINGTON, DC. THE VF TEAM ALSO RAISED AWARENESS IN THE MEDICAL COMMUNITY BY EXHIBITING AT INTERNATIONAL MEDICAL CONFERENCES INCLUDING THE AMERICAN COLLEGE OF RHEUMATOLOGY, AMERICAN SOCIETY OF NEPHROLOGY, AMERICAN THORACIC SOCIETY, CARRA, AND RH APP. |
| FORM 990, PAGE 2, PART III, LINE 4B | VASCULITIS - BUILDING OUTCOMES, LEADING DISCOVERIES (V-BOLD) PROGRAM COMBINES RESEARCH, FELLOWSHIPS, VASCULITIS CENTERS, AND THE VPPRN WITH THE GOAL TO IMPROVE THE QUALITY OF LIFE FOR PATIENTS WITH VASCULITIS, AND ULTIMATELY FIND THE CAUSE(S) AND CURE FOR VASCULITIS. RESEARCH: THE VF YOUNG INVESTIGATOR AWARD PROVIDES ONE OR TWO-YEAR GRANTS OF UP TO 50,000 TO SUPPORT RESEARCHERS WITHIN FIVE YEARS OF THE COMPLETION OF THEIR FELLOWSHIPS. THE FUNDING SUPPORTS PILOT STUDIES IN RESEARCHING DIAGNOSIS, ETIOLOGY/PATHOGENESIS, EPIDEMIOLOGY, AND TREATMENT/MANAGEMENT. FELLOWSHIPS: THE VF PARTNERS WITH ACADEMIC INSTITUTIONS AND THE VASCULITIS CLINICAL RESEARCH CONSORTIUM (VCRC) TO PROVIDE FELLOWSHIPS FOR PHYSICIAN- INVESTIGATORS WHO HAVE A STRONG INTEREST IN VASCULITIS. THIS MENTORED TRAINING PROGRAM EMPHASIZES CLINICAL, PATIENT-ORIENTED INVESTIGATION. VASCULITIS CENTERS ARE ESSENTIAL IN THE PATIENT JOURNEY - FROM DIAGNOSIS TO TREATMENT TO REMISSION, WITH THE POTENTIAL FOR CURES. VASCULITIS CENTERS PROVIDE COMPREHENSIVE, HIGH-QUALITY, AND COMPASSIONATE CARE TO PATIENTS WITH VASCULITIS. IN ADDITION, THEY HAVE THE CAPACITY TO ADVANCE OUR UNDERSTANDING OF VASCULITIS THROUGH RESEARCH. WITH EXPERTS IN THE MANAGEMENT AND STUDY OF THE DISEASE, VASCULITIS CENTERS ARE AT THE FOREFRONT OF SPECIALTY CARE AND CLINICAL RESEARCH, WHILE TREATING ALL TYPES OF VASCULITIS. IN 2024-25, VF FUNDED 10 GRANTS TOTALLING 246,907. VASCULITIS PATIENT-POWERED RESEARCH NETWORK (VPPRN) IS THE INTERNATIONAL RESEARCH NETWORK OF PATIENTS, SCIENTISTS, CLINICIANS, ADVOCATES AND FAMILY MEMBERS WHO WORK TO IMPROVE THE HEALTH CARE AND QUALITY OF LIFE FOR PEOPLE WITH VASCULITIS THROUGH HIGH-LEVEL CLINICAL RESEARCH. |
| FORM 990, PAGE 6, PART VI, LINE 11B | THE 990 IS REVIEWED AND APPROVED BY THE ORGANIZATION'S FINANCE COMMITTEE AND THEN SHARED WITH THE BOARD OF DIRECTORS BEFORE FILING WITH THE IRS. |
| FORM 990, PAGE 6, PART VI, LINE 12C | BOARD OF DIRECTOR MEMBERS ARE REQUIRED TO COMPLETE A CONFLICT OF INTEREST STATEMENT ANNUALLY WHICH IS REVIEWED AT THE FALL RETREAT. |
| FORM 990, PAGE 6, PART VI, LINE 15A | ANNUAL PERFORMANCE REVIEW AND COMPARISON TO INDUSTRY. |
| FORM 990, PAGE 6, PART VI, LINE 19 | GOVERNING DOCUMENTS ARE MADE AVAILABLE TO THE PUBLIC UPON WRITTEN REQUEST. |