STRATEGY STUDIO / PUBLIC DATA EXPLORER

CURE LBSL: Form 990, tax year 2019

View the entire original 990 at ProPublica ↗

Organization
CURE LBSL (EIN 46-2829156)
Tax period
2019-01-01 to 2019-12-31
Filed
2020-07-15
IRS object ID
202031979349305393
Schema version
2019v5.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2020-07-15T15:59:39-05:00ReturnTs
Tax Period End2019-12-31TaxPeriodEndDt
Return Type990ReturnTypeCd
Tax Period Begin2019-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN462829156EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1A Cure for EllieBusinessNameLine1Txt
FieldValueIRS element (for citing)
In Care Of% Elizabeth McGinnInCareOfNm
Business Name ControlACURBusinessNameControlTxt
Phone2024874235PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line13520 S Wakefield StAddressLine1Txt
CityArlingtonCityNm
State AbbreviationVAStateAbbreviationCd
ZIP22206ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonELIZABETH MCGINNPersonNm
Person TitleDirectorPersonTitleTxt
Phone2024874235PhoneNum
Signature2020-07-15SignatureDt

Filing Security Information FilingSecurityInformation

IP Address IPAddress

FieldValueIRS element (for citing)
I Pv4 Address71.191.79.171IPv4AddressTxt
FieldValueIRS element (for citing)
Federal Original Submission Id21010520201970466932FederalOriginalSubmissionId
Federal Original Submission Id2020-07-15FederalOriginalSubmissionIdDt
Filing License TypeOFilingLicenseTypeCd
At Submission Creation Device Id019935EE6480CA7401E820D81F978556EAB92B19AtSubmissionCreationDeviceId
At Submission Filing Device Id019935EE6480CA7401E820D81F978556EAB92B19AtSubmissionFilingDeviceId
FieldValueIRS element (for citing)
Tax2019TaxYr
Build TS2020-09-23 17:36:50ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerELIZABETH A MCGINNPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line13520 S Wakefield StAddressLine1Txt
CityArlingtonCityNm
State AbbreviationVAStateAbbreviationCd
ZIP22206ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$308,282GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.acureforellie.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2013FormationYr
Legal Domicile StateVALegalDomicileStateCd
Activity Or MissionFund research on mitochondrial disease and LeukodystrophyLBSL and support affected familiesActivityOrMissionDesc
Voting Members Governing Body0VotingMembersGoverningBodyCnt
Voting Members Independent0VotingMembersIndependentCnt
Total Employee0TotalEmployeeCnt
Total Gross UBI$0TotalGrossUBIAmt
CY Contributions Grants$308,282CYContributionsGrantsAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
CY Investment Income$0CYInvestmentIncomeAmt
CY Other Revenue$0CYOtherRevenueAmt
CY Total Revenue$308,282CYTotalRevenueAmt
PY Grants And Similar Paid$80,000PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$255,000CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
CY Salaries Comp Emp Bnft Paid$0CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$0CYTotalFundraisingExpenseAmt
PY Other Expenses$29,261PYOtherExpensesAmt
CY Other Expenses$24,767CYOtherExpensesAmt
PY Total Expenses$109,261PYTotalExpensesAmt
CY Total Expenses$279,767CYTotalExpensesAmt
PY Revenues Less Expenses-$109,261PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$28,515CYRevenuesLessExpensesAmt
Total Assets BOY$43,192TotalAssetsBOYAmt
Total Assets EOY$71,272TotalAssetsEOYAmt
Total Liabilities EOY$0TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$43,192NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$71,272NetAssetsOrFundBalancesEOYAmt
MissionProvide funding to rare disease research & support affected familiesMissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$255,000ExpenseAmt
Grant$255,000GrantAmt
DescWe provided $255,000 to a research program at the Kennedy Krieger Institute in Baltimore, Maryland. The research seeks to create a treatment for the rare disease, Leukodystrophy - LBSL. This year's research included building cells with disease attributes, testing therapeutics, and a natrual history study with a sample of known patients. May never be read by a human but IT IS EXCITING!!!Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
DescWe are still small and are only funding the one research effort noted.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
DescWe are still small and are only funding the one research effort noted.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$255,000TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsfalseDonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentfalseReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesfalseReportOtherLiabilitiesInd
Include FIN48 FootnotefalseIncludeFIN48FootnoteInd
Independent Audit Fincl StmtfalseIndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesfalseForeignActivitiesInd
More Than5000 K To OrgfalseMoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesfalseFundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredfalseScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContrifalseDeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document0IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee0EmployeeCnt
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Form990 T FiledfalseForm990TFiledInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsYes (true)NondeductibleContributionsInd
Nondeductible Contri DisclYes (true)NondeductibleContriDisclInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members0GoverningBodyVotingMembersCnt
Independent Voting Member0IndependentVotingMemberCnt
Family Or Business RlnYes (true)FamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyfalseWhistleblowerPolicyInd
Document Retention PolicyfalseDocumentRetentionPolicyInd
Compensation Process CEOfalseCompensationProcessCEOInd
Compensation Process OtherYes (true)CompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonELIZABETH A MCGINNPersonNm
Phone2024874235PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line13520 S Wakefield StAddressLine1Txt
CityArlingtonCityNm
State AbbreviationVAStateAbbreviationCd
ZIP22206ZIPCd
FieldValueIRS element (for citing)
No Listed Persons CompensatedYes (X)NoListedPersonsCompensatedInd

Form990 Part VII Section A Form990PartVIISectionAGrp (7 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmt
ELIABETH MCGINN
Director15.00Yes (X)Yes (X)$0$0$0
MICHAEL MCGINN
Director5.000Yes (X)Yes (X)$0$0$0
ELIZABETH GULUGIAN
Director1.000Yes (X)$0$0$0
CHRIS GULUGIAN
Director1.000Yes (X)$0$0$0
MEGAN MITCHELL
Director1.000Yes (X)$0$0$0
LANCE STERN
Director1.000Yes (X)$0$0$0
MORGAN STERN
Director1.000Yes (X)$0$0$0
FieldValueIRS element (for citing)
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KfalseTotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd
All Other Contributions$308,282AllOtherContributionsAmt
Total Contributions$308,282TotalContributionsAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$308,282TotalRevenueColumnAmt
FieldValueIRS element (for citing)
Info In Schedule O Part IXYes (X)InfoInScheduleOPartIXInd

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$255,000TotalAmt
Program Services$255,000ProgramServicesAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$70TotalAmt
Management And General$70ManagementAndGeneralAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$357TotalAmt
Management And General$357ManagementAndGeneralAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$2,304TotalAmt
Management And General$2,304ManagementAndGeneralAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$1,451TotalAmt
Management And General$1,451ManagementAndGeneralAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$1,169TotalAmt
Management And General$1,169ManagementAndGeneralAmt

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$19,416TotalAmt
Management And General$19,416ManagementAndGeneralAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$279,767TotalAmt
Program Services$255,000ProgramServicesAmt
Management And General$24,767ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$43,192BOYAmt
EOY$71,272EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$43,192BOYAmt
EOY$71,272EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$43,192BOYAmt
EOY$71,272EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$43,192BOYAmt
EOY$71,272EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$43,192BOYAmt
EOY$71,272EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$28,515ReconcilationRevenueExpnssAmt
Method Of Accounting CashYes (X)MethodOfAccountingCashInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedfalseFSAuditedInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Publicly Supported Org509a2Yes (X)PubliclySupportedOrg509a2Ind

Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$44,989CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$58,837CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$100,598CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$107,860CurrentTaxYearMinus1YearAmt
Current Tax Year$308,281CurrentTaxYearAmt
Total$620,565TotalAmt

Total509 Total509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$44,989CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$58,837CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$100,598CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$107,860CurrentTaxYearMinus1YearAmt
Current Tax Year$308,281CurrentTaxYearAmt
Total$620,565TotalAmt
FieldValueIRS element (for citing)
Public Support Total509$620,565PublicSupportTotal509Amt

Total Support Calendar Year TotalSupportCalendarYearGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$44,989CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$58,837CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$100,598CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$107,860CurrentTaxYearMinus1YearAmt
Current Tax Year$308,281CurrentTaxYearAmt
Total$620,565TotalAmt
FieldValueIRS element (for citing)
Public Support CY5091.00000PublicSupportCY509Pct
Public Support PY5091.00000PublicSupportPY509Pct
Investment Income CY0.00000InvestmentIncomeCYPct
Thirty Thr Pct Suprt Tests CY509Yes (X)ThirtyThrPctSuprtTestsCY509Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedfalseGrantRecordsMaintainedInd

Recipient Table RecipientTable

Recipient Business Name RecipientBusinessName

FieldValueIRS element (for citing)
Business Name Line1Kennedy Krieger InstituteBusinessNameLine1Txt

US Address USAddress

FieldValueIRS element (for citing)
Address Line1707 North BroadwayAddressLine1Txt
CityBaltimoreCityNm
State AbbreviationMDStateAbbreviationCd
ZIP21205ZIPCd
FieldValueIRS element (for citing)
Recipient EIN521524965RecipientEIN
Cash Grant$255,000CashGrantAmt
Non Cash Assistance$0NonCashAssistanceAmt
Purpose Of GrantRare Disease ResearchPurposeOfGrantTxt
FieldValueIRS element (for citing)
Total501c3 Org0Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Part VI Line 11bThe form will be emailed to the board once it is complete and
Part VI Line 11bavailable for print.
Part VI Line 19We do not make our policies public but they are available upon request