TOURETTE ASSOCIATION OF AMERICA INC: Form 990, tax year 2019
View the entire original 990 at ProPublica ↗
- Organization
- TOURETTE ASSOCIATION OF AMERICA INC (EIN 23-7191992)
- Tax period
- 2019-03-01 to 2020-02-29
- Filed
- 2020-08-26
- IRS object ID
- 202042399349301109
- Schema version
- 2019v5.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2020-08-26T12:57:31-05:00 | ReturnTs |
| Tax Period End | 2020-02-29 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 113518842 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | MARKS PANETH LLP | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 685 THIRD AVENUE | AddressLine1Txt |
| City | NEW YORK | CityNm |
| State Abbreviation | NY | StateAbbreviationCd |
| ZIP | 10017 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2019-03-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 237191992 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | TOURETTE ASSOCIATION OF AMERICA INC | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | TOUR | BusinessNameControlTxt |
| Phone | 7182242999 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 42-40 BELL BOULEVARD | AddressLine1Txt |
| City | BAYSIDE | CityNm |
| State Abbreviation | NY | StateAbbreviationCd |
| ZIP | 11361 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | SONJA MASON-VIDAL | PersonNm |
| Person Title | VICE PRESIDENT, FINANCE | PersonTitleTxt |
| Phone | 7182242999 | PhoneNum |
| Signature | 2020-08-20 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | ROBERT LYONS | PreparerPersonNm |
| PTIN | P00227472 | PTIN |
| Phone | 2125038800 | PhoneNum |
| Preparation | 2020-08-20 | PreparationDt |
Filing Security Information FilingSecurityInformation
IP Address IPAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| I Pv4 Address | 24.146.222.31 | IPv4AddressTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IP | 2020-08-20 | IPDt |
| IP Tm | 08:22:58 | IPTm |
| IP Timezone | ED | IPTimezoneCd |
| Filing License Type | P | FilingLicenseTypeCd |
| At Submission Creation Device Id | DA39A3EE5E6B4B0D3255BFEF95601890AFD80709 | AtSubmissionCreationDeviceId |
| At Submission Filing Device Id | F7BBFA6259344C32E569AC7E54D1F40DDD1EEA94 | AtSubmissionFilingDeviceId |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2019 | TaxYr |
| Build TS | 2020-11-06 18:47:13Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | SONJA MASON-VIDAL | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 42-40 BELL BOULEVARD | AddressLine1Txt |
| City | BAYSIDE | CityNm |
| State Abbreviation | NY | StateAbbreviationCd |
| ZIP | 11361 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $8,114,380 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | TOURETTE.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1972 | FormationYr |
| Legal Domicile State | NY | LegalDomicileStateCd |
| Activity Or Mission | TO IDENTIFY THE CAUSE OF, FIND THE CURE FOR AND CONTROL THE EFFECTS OF TOURETTE SYNDROME. | ActivityOrMissionDesc |
| Voting Members Governing Body | 19 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 19 | VotingMembersIndependentCnt |
| Total Employee | 29 | TotalEmployeeCnt |
| Total Volunteers | 52 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $4,228,564 | PYContributionsGrantsAmt |
| CY Contributions Grants | $3,607,075 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $174,766 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $116,683 | CYProgramServiceRevenueAmt |
| PY Investment Income | $177,443 | PYInvestmentIncomeAmt |
| CY Investment Income | $220,772 | CYInvestmentIncomeAmt |
| PY Other Revenue | -$17,748 | PYOtherRevenueAmt |
| CY Other Revenue | -$41,382 | CYOtherRevenueAmt |
| PY Total Revenue | $4,563,025 | PYTotalRevenueAmt |
| CY Total Revenue | $3,903,148 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $672,015 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $1,032,007 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $2,042,624 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $2,234,673 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $528,648 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $2,378,989 | PYOtherExpensesAmt |
| CY Other Expenses | $1,988,058 | CYOtherExpensesAmt |
| PY Total Expenses | $5,093,628 | PYTotalExpensesAmt |
| CY Total Expenses | $5,254,738 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | -$530,603 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$1,351,590 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $11,792,422 | TotalAssetsBOYAmt |
| Total Assets EOY | $11,065,052 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $782,801 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $1,345,846 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $11,009,621 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $9,719,206 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | TO IDENTIFY THE CAUSE OF, FIND THE CURE FOR, AND CONTROL THE EFFECTS OF TOURETTE SYNDROME. THE TOURETTE ASSOCIATION IS DEDICATED TO MAKING LIFE BETTER FOR ALL PEOPLE AFFECTED BY TOURETTE AND TIC DISORDERS. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $1,624,460 | ExpenseAmt |
| Grant | $1,032,006 | GrantAmt |
| Desc | RESEARCH & MEDICAL PROGRAMS - WORKING TO ADVANCE SCIENTIFIC UNDERSTANDING, TREATMENT OPTIONS AND CARE OPTIONS FOR THE DISORDER BY PROVIDING FUNDING FOR RESEARCH INVESTIGATIONS IN THE AREAS OF NEUROSCIENCES, GENETICS, BEHAVIORAL THERAPY, CLINICAL TRIALS. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $1,562,912 | ExpenseAmt |
| Revenue | $116,683 | RevenueAmt |
| Desc | PUBLIC EDUCATION - PROVIDE EDUCATION AND AWARENESS BY RAISING PUBLIC AWARENESS AND FOSTERING SOCIAL ACCEPTANCE. EDUCATING PROFESSIONALS TO BETTER SERVE THE NEEDS OF CHILDREN, ADULTS AND FAMILIES CHALLENGED BY TOURETTE AND TIC DISORDERS. ADVOCATING FOR PUBLIC POLICIES AND SERVICES THAT PROMOTE POSITIVE SCHOOL, WORK AND SOCIAL ENVIRONMENTS. PROVIDING HELP, HOPE AND A SUPPORTIVE COMMUNITY ACROSS THE NATION. EMPOWERING OUR COMMUNITY TO DEAL WITH THE COMPLEXITIES OF THIS SPECTRUM OF DISORDERS. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $940,653 | ExpenseAmt |
| Revenue | $0 | RevenueAmt |
| Desc | CENTERS FOR DISEASE CONTROL (CDC) PARTNERSHIP - THE ASSOCIATION AND CDC WORK TOGETHER TO PROVIDE EXPERT EDUCATION ABOUT TOURETTE SYNDROME TO PHYSICIANS AND ALLIED PROFESSIONALS AND TO ENCOURAGE PHYSICIANS TO APPLY TO THE ASSOCIATIONS' REFERRAL LISTS. INCLUDES PROGRAMS TO EDUCATE SCHOOLS AND COMMUNITIES ABOUT TOURETTE SYNDROME. | Desc |
Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp (2 entries)
| ExpenseExpenseAmt | DescDesc |
|---|---|
| $56,750 | THE TOURETTE SYNDROME BEHAVIOR TRAINING INSTITUTE ( "TS- BTI") WAS CREATED TO EXPAND THE NUMBER OF HEALTHCARE PROFESSIONALS COMPETENTLY TRAINED IN BEHAVIOR THERAPY FOR TOURETTE SYNDROME AND OTHER TIC DISORDERS. |
| PROFESSIONAL EDUCATION - PROVIDES FOR THE EDUCATION AND AWARENESS OF TOURETTE SYNDROME TO MEDICAL PROFESSIONALS, THROUGH AMONG OTHER THINGS, SEMINARS AND DISTRIBUTION OF RESEARCH UPDATES. |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Prog Srvc Expense | $56,750 | TotalOtherProgSrvcExpenseAmt |
| Total Program Service Expenses | $4,184,775 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (1) | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | Yes (1) | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | 0 | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | Yes (1) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (1) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | Yes (1) | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | 0 | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | 0 | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 33 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (1) | BackupWthldComplianceInd |
| Employee | 29 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | Yes (1) | UnrelatedBusIncmOverLimitInd |
| Form990 T Filed | Yes (1) | Form990TFiledInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (1) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (1) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 19 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 19 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | Yes (1) | MembersOrStockholdersInd |
| Election Of Board Members | Yes (1) | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | Yes (1) | LocalChaptersInd |
| Policies Reference Chapters | Yes (1) | PoliciesReferenceChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | 0 | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AZ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | LA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ME | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ND | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | SONJA MASON-VIDAL VP SEC & TREAS | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 7182242999 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 42-40 BELL BOULEVARD | AddressLine1Txt |
| City | BAYSIDE | CityNm |
| State Abbreviation | NY | StateAbbreviationCd |
| ZIP | 113612820 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (26 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | OfficerOfficerInd | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|
| ALICE KANE | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| AZAD ANAND MD | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| BRUCE D OCHSMAN | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| CHERI G DAVID CPA CVA | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| CINDY KURTZ | |||||||
| SECOND VICE CHAIR | 2.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| DAVID KOCH | |||||||
| DIRECTOR (OUTGOING) | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| DAVID SCHOENHAAR | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| FRED COOK | |||||||
| THIRD VICE CHAIR | 2.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| JASMINE TARKOFF | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| JEFFREY KRAMER | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| JOHN WALKUP MD | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| JULIE MOELIS | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| MONTE REDMAN | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| PAUL S DEVORE | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| PETER HOLLENBECK PHD | |||||||
| FOURTH VICE CHAIR | 2.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| RANDI ZEMSKY | |||||||
| CHAIR | 3.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| REID ASHINOFF | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| ROVENA SCHIRLING | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| STEPHEN MCCALL M ED | |||||||
| DIRECTOR (OUTGOING) | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| STEPHEN BARRON | |||||||
| FIRST VICE CHAIR | 2.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| SUSAN COUREY PHD | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| AMANDA TALTY | |||||||
| PRESIDENT & CEO | 40.00 | $233,379 | $0 | $14,894 | Yes (X) | ||
| SONJA MASON-VIDAL | |||||||
| VP OF FINANCE & ADMINISTRATION | 40.00 | $114,575 | $0 | $17,172 | Yes (X) | ||
| DIANA FELNER | |||||||
| VICE PRES., PUBLIC POLICY | 40.00 | $113,852 | $0 | $44,402 | Yes (X) | ||
| DIANA SHINEMAN | |||||||
| VICE PRES., RESEARCH & MED | 40.00 | $125,400 | $0 | $51,590 | Yes (X) | ||
| TRACEY ALEXANDER | |||||||
| VP, RESOURCE DEV. & CHAPTER SERVICES | 40.00 | $130,845 | $0 | $16,145 | Yes (X) | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $718,051 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $144,203 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 5 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp
Contractor Name ContractorName
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | PANOS GRAPHIC SERVICES | BusinessNameLine1Txt |
Contractor Address ContractorAddress
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 4 ANDERSON COURT | AddressLine1Txt |
| City | WESTBURY SHORE | CityNm |
| State Abbreviation | NY | StateAbbreviationCd |
| ZIP | 11706 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Services | GRAPHIC DESIGN SERVICES | ServicesDesc |
| Compensation | $168,767 | CompensationAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 1 | CntrctRcvdGreaterThan100KCnt |
| Membership Dues | $16,910 | MembershipDuesAmt |
| Fundraising | $991,402 | FundraisingAmt |
| Government Grants | $940,653 | GovernmentGrantsAmt |
| All Other Contributions | $1,658,110 | AllOtherContributionsAmt |
| Noncash Contributions | $24,250 | NoncashContributionsAmt |
| Total Contributions | $3,607,075 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | CONFERENCE INCOME | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $116,683 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $116,683 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $116,683 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $124,391 | TotalRevenueColumnAmt |
| Exclusion | $124,391 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $4,165,106 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $4,068,725 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $96,381 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $96,381 | TotalRevenueColumnAmt |
| Exclusion | $96,381 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $101,125 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $991,402 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $142,507 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$41,382 | TotalRevenueColumnAmt |
| Exclusion | -$41,382 | ExclusionAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $3,903,148 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $116,683 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $179,390 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $702,404 | TotalAmt |
| Program Services | $702,404 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $224,350 | TotalAmt |
| Program Services | $224,350 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $105,253 | TotalAmt |
| Program Services | $105,253 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $385,076 | TotalAmt |
| Program Services | $209,775 | ProgramServicesAmt |
| Management And General | $124,182 | ManagementAndGeneralAmt |
| Fundraising | $51,119 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,494,579 | TotalAmt |
| Program Services | $1,170,050 | ProgramServicesAmt |
| Management And General | $166,558 | ManagementAndGeneralAmt |
| Fundraising | $157,971 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $33,723 | TotalAmt |
| Program Services | $25,800 | ProgramServicesAmt |
| Management And General | $4,721 | ManagementAndGeneralAmt |
| Fundraising | $3,202 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $155,660 | TotalAmt |
| Program Services | $117,432 | ProgramServicesAmt |
| Management And General | $21,967 | ManagementAndGeneralAmt |
| Fundraising | $16,261 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $165,635 | TotalAmt |
| Program Services | $118,296 | ProgramServicesAmt |
| Management And General | $30,082 | ManagementAndGeneralAmt |
| Fundraising | $17,257 | FundraisingAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $190,744 | TotalAmt |
| Program Services | $148,972 | ProgramServicesAmt |
| Management And General | $12,535 | ManagementAndGeneralAmt |
| Fundraising | $29,237 | FundraisingAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $17,056 | TotalAmt |
| Management And General | $17,056 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $24,090 | TotalAmt |
| Program Services | $17,818 | ProgramServicesAmt |
| Management And General | $4,605 | ManagementAndGeneralAmt |
| Fundraising | $1,667 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $80,603 | TotalAmt |
| Program Services | $78,418 | ProgramServicesAmt |
| Fundraising | $2,185 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $437,397 | TotalAmt |
| Program Services | $393,498 | ProgramServicesAmt |
| Management And General | $20,269 | ManagementAndGeneralAmt |
| Fundraising | $23,630 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $190,029 | TotalAmt |
| Program Services | $127,720 | ProgramServicesAmt |
| Management And General | $41,593 | ManagementAndGeneralAmt |
| Fundraising | $20,716 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $283,889 | TotalAmt |
| Program Services | $70,421 | ProgramServicesAmt |
| Management And General | $40,695 | ManagementAndGeneralAmt |
| Fundraising | $172,773 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $219,278 | TotalAmt |
| Program Services | $194,831 | ProgramServicesAmt |
| Management And General | $6,558 | ManagementAndGeneralAmt |
| Fundraising | $17,889 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $180,976 | TotalAmt |
| Program Services | $180,976 | ProgramServicesAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $18,771 | TotalAmt |
| Program Services | $7,835 | ProgramServicesAmt |
| Management And General | $5,248 | ManagementAndGeneralAmt |
| Fundraising | $5,688 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $47,879 | TotalAmt |
| Program Services | $28,250 | ProgramServicesAmt |
| Management And General | $17,526 | ManagementAndGeneralAmt |
| Fundraising | $2,103 | FundraisingAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| CHAPTER SUPPORT | $75,371 | $75,371 | ||
| HONARARIUMS | $47,000 | $47,000 | ||
| RECRUITMENT & TRAINING | $34,185 | $19,414 | $11,931 | $2,840 |
| BANK FEES & CHARGES | $27,617 | $26,733 | $884 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $113,173 | TotalAmt |
| Program Services | $94,158 | ProgramServicesAmt |
| Management And General | $14,905 | ManagementAndGeneralAmt |
| Fundraising | $4,110 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $5,254,738 | TotalAmt |
| Program Services | $4,184,775 | ProgramServicesAmt |
| Management And General | $541,315 | ManagementAndGeneralAmt |
| Fundraising | $528,648 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $181,841 | BOYAmt |
| EOY | $395,233 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,193,131 | BOYAmt |
| EOY | $6,503,392 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,530,141 | BOYAmt |
| EOY | $1,388,424 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $27,585 | BOYAmt |
| EOY | $15,749 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $197,138 | BOYAmt |
| EOY | $98,324 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $158,485 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $118,290 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $42,264 | BOYAmt |
| EOY | $40,195 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,608,807 | BOYAmt |
| EOY | $2,585,079 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $11,515 | BOYAmt |
| EOY | $38,656 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $11,792,422 | BOYAmt |
| EOY | $11,065,052 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $268,991 | BOYAmt |
| EOY | $248,629 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $497,398 | BOYAmt |
| EOY | $1,045,831 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $16,412 | BOYAmt |
| EOY | $51,386 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $782,801 | BOYAmt |
| EOY | $1,345,846 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $9,339,693 | BOYAmt |
| EOY | $7,999,073 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,669,928 | BOYAmt |
| EOY | $1,720,133 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $11,009,621 | BOYAmt |
| EOY | $9,719,206 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $11,792,422 | BOYAmt |
| EOY | $11,065,052 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$1,351,590 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $61,175 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | Yes (1) | FederalGrantAuditRequiredInd |
| Federal Grant Audit Performed | Yes (1) | FederalGrantAuditPerformedInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $2,929,098 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $3,105,580 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $6,229,710 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $4,228,564 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $3,607,075 | CurrentTaxYearAmt |
| Total | $20,100,027 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $2,929,098 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $3,105,580 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $6,229,710 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $4,228,564 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $3,607,075 | CurrentTaxYearAmt |
| Total | $20,100,027 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $1,373,004 | SubstantialContributorsTotAmt |
| Public Support Total170 | $18,727,023 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $244,479 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $189,751 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $144,102 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $178,745 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $124,391 | CurrentTaxYearAmt |
| Total | $881,468 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $626,480 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $714,182 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $284,562 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $123,370 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $101,125 | CurrentTaxYearAmt |
| Total | $1,849,719 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $22,831,214 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $677,816 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.82020 | PublicSupportCY170Pct |
| Public Support PY170 | 0.79140 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Form990 Schedule A Part VI Form990ScheduleAPartVIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: | FormAndLineReferenceDesc |
| Explanation | FUNDRAISING INCOME - 2015 AMOUNT: $ 626,480. 2016 AMOUNT: $ 714,182. 2017 AMOUNT: $ 284,562. 2018 AMOUNT: $ 123,370. 2019 AMOUNT: $ 101,125. | ExplanationTxt |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule C IRS990ScheduleC
| Field | Value | IRS element (for citing) |
|---|---|---|
| Volunteers | Yes (1) | VolunteersInd |
| Paid Staff Or Management | Yes (1) | PaidStaffOrManagementInd |
| Media Advertisements | 0 | MediaAdvertisementsInd |
| Mailings Members | Yes (1) | MailingsMembersInd |
| Mailings Members | $162,457 | MailingsMembersAmt |
| Publications Or Broadcast | 0 | PublicationsOrBroadcastInd |
| Grants Other Organizations | 0 | GrantsOtherOrganizationsInd |
| Direct Contact Legislators | Yes (1) | DirectContactLegislatorsInd |
| Direct Contact Legislators | $28,287 | DirectContactLegislatorsAmt |
| Rallies Demonstrations | 0 | RalliesDemonstrationsInd |
| Other Activities | 0 | OtherActivitiesInd |
| Total Lobbying Expenditures | $190,744 | TotalLobbyingExpendituresAmt |
| Not Described Section501c3 | 0 | NotDescribedSection501c3Ind |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I-A, LINE 1: | FormAndLineReferenceDesc |
| Explanation | TAA ADVOCATES TO ENSURE GOVERNMENT OFFICIALS UNDERSTAND TOURETTE SYNDROME (TS) AND TIC DISORDERS (TD) AND TO ENSURE POLICIES AND REGULATIONS BEING DRAFTED, RELEASED AND FINALIZED OR SIGNED INTO LAW ARE IN THE BEST INTERESTS OF THOSE WITH TS OR TD. WE ALSO ADVOCATE TO ENSURE ADEQUATE GOVERNMENT FUNDING IS PROVIDED FOR THE CDC TOURETTE SYNDROME PUBLIC HEALTH EDUCATION AND RESEARCH PROGRAM AND AT THE NATIONAL INSTITUTES OF HEALTH'S NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS AND STROKE AND THE NATIONAL INSTITUTE OF MENTAL HEALTH. | ExplanationTxt |
Schedule D IRS990ScheduleD
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $334,000 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $6,521 | InvestmentEarningsOrLossesAmt |
| Administrative Expenses | $6,521 | AdministrativeExpensesAmt |
| End Year Balance | $334,000 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $326,000 | BeginningYearBalanceAmt |
| Contributions | $8,000 | ContributionsAmt |
| Investment Earnings Or Losses | $6,701 | InvestmentEarningsOrLossesAmt |
| Administrative Expenses | $6,701 | AdministrativeExpensesAmt |
| End Year Balance | $334,000 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $326,000 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $6,521 | InvestmentEarningsOrLossesAmt |
| Administrative Expenses | $6,521 | AdministrativeExpensesAmt |
| End Year Balance | $326,000 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $326,000 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $5,989 | InvestmentEarningsOrLossesAmt |
| Administrative Expenses | $5,989 | AdministrativeExpensesAmt |
| End Year Balance | $326,000 | EndYearBalanceAmt |
CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $326,000 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $4,604 | InvestmentEarningsOrLossesAmt |
| Administrative Expenses | $4,604 | AdministrativeExpensesAmt |
| End Year Balance | $326,000 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Prmnnt Endowment Balance EOY | 1.00000 | PrmnntEndowmentBalanceEOYPct |
| Endowments Held Unrelated Org | 0 | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | 0 | EndowmentsHeldRelatedOrgInd |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $158,485 | OtherCostOrOtherBasisAmt |
| Depreciation | $118,290 | DepreciationAmt |
| Book Value | $40,195 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $40,195 | TotalBookValueLandBuildingsAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $4,131,823 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $61,175 | NetUnrealizedGainsInvstAmt |
| Donated Services And Use Fclts | $231,514 | DonatedServicesAndUseFcltsAmt |
| Other Revenue | -$46,958 | OtherRevenueAmt |
| Revenue Not Reported | $245,731 | RevenueNotReportedAmt |
| Revenue Subtotal | $3,886,092 | RevenueSubtotalAmt |
| Investment Expenses Not Incld | $17,056 | InvestmentExpensesNotIncldAmt |
| Revenue Not Reported Fincl Stmt | $17,056 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $3,903,148 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $5,422,238 | TotExpnsEtcAuditedFinclStmtAmt |
| Donated Services Use Fclts | $231,514 | DonatedServicesUseFcltsAmt |
| Expenses Not Reported | $231,514 | ExpensesNotReportedAmt |
| Expenses Subtotal | $5,190,724 | ExpensesSubtotalAmt |
| Investment Expenses Not Incld2 | $17,056 | InvestmentExpensesNotIncld2Amt |
| Other Expenses Not Included | $46,958 | OtherExpensesNotIncludedAmt |
| Expenses Not Rpt Fincl Stmt | $64,014 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $5,254,738 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (4 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART V, LINE 4: | THE INTENDED USE OF THE ORGANIZATION'S ENDOWMENT FUNDS IS TO SUPPORT THE WORK OF THE PUBLIC EDUCATION (INFORMATION & REFERRAL SERVICE) PROGRAM. |
| PART X, LINE 2: | THE ASSOCIATION BELIEVES IT HAS NO UNCERTAIN TAX POSITIONS AS OF FEBRUARY 28, 2020 AND FEBRUARY 28, 2019 IN ACCORDANCE WITH ACCOUNTING STANDARDS CODIFICATION ("ASC") TOPIC 740, WHICH PROVIDES STANDARDS FOR ESTABLISHING AND CLASSIFYING ANY TAX PROVISIONS FOR UNCERTAIN TAX POSITIONS. |
| PART XI, LINE 2D - OTHER ADJUSTMENTS: | INDIRECT FUNDRAISING EXPENSES -46,958. |
| PART XII, LINE 4B - OTHER ADJUSTMENTS: | INDIRECT FUNDRAISING EXPENSES 46,958. |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Region | EUROPE | RegionTxt |
| Offices | 0 | OfficesCnt |
| Employee | 0 | EmployeeCnt |
| Type Of Activities Conducted | RESEARCH GRANT TO FURTHER TOURETTE'S MISSION | TypeOfActivitiesConductedTxt |
| Specific Services Provided | RESEARCH GRANT | SpecificServicesProvidedTxt |
| Region Total Expenditures | $105,253 | RegionTotalExpendituresAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continuation Total Office | 0 | ContinuationTotalOfficeCnt |
| Continuation Total Employee | 0 | ContinuationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $105,253 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $105,253 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Region | EUROPE | RegionTxt |
| Purpose Of Grant | RESEARCH GRANT TO FURTHER RESEARCH | PurposeOfGrantTxt |
| Cash Grant | $105,253 | CashGrantAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 1 | Total501c3OrgCnt |
| Transfer To Foreign Corp | 0 | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART I, LINE 2: | GRANTEES ARE REQUIRED TO SUBMIT ANNUAL PROGRESS REPORTS. |
| PART III ACCOUNTING METHOD: |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | GALA | Event1Nm |
| Gross Receipts Event1 | $916,213 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $846,213 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $70,000 | GrossRevenueEvent1Amt |
| Rent Facility Costs Event1 | $82,705 | RentFacilityCostsEvent1Amt |
| Event2 | GOLF TOURNAMENTS | Event2Nm |
| Gross Receipts Event2 | $176,314 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $145,189 | CharitableContriEvent2Amt |
| Gross Revenue Event2 | $31,125 | GrossRevenueEvent2Amt |
| Rent Facility Costs Event2 | $59,802 | RentFacilityCostsEvent2Amt |
| Gross Receipts Total | $1,092,527 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $991,402 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $101,125 | GrossRevenueTotalEventsAmt |
| Rent Fclty Costs Total Events | $142,507 | RentFcltyCostsTotalEventsAmt |
| Direct Expense Summary Events | $142,507 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$41,382 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (5 entries)
| Address Line1USAddress/AddressLine1Txt | Address Line2USAddress/AddressLine2Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|---|
| JOHNS HOPKINS UNIVERSITY | ||||||||
| CO BANK OF AMERICA 12529 COLLECTION | CENTER DRIVE | CHICAGO | IL | 60693 | 520595110 | 501(C)(3) | $152,559 | RESEARCH |
| UC BERKLEY | ||||||||
| 2195 HEARST AVEM ROOM 130 MAIL 1103 | 1103 | BERKELEY | CA | 94720 | 946002123 | 501(C)(3) | $150,620 | RESEARCH |
| UNIVERSITY OF FLORIDA | ||||||||
| 123 GRINTER HALL PO BOX 1133001 | GAINESVILLE | FL | 32611 | 596002052 | 501(C)(3) | $152,559 | RESEARCH | |
| UNIVERSITY OF ROCHESTER | ||||||||
| 910 GENESEE STREET SUITE 200 | ROCHESTER | NY | 14611 | 166036493 | 501(C)(3) | $86,666 | RESEARCH | |
| UCSF | ||||||||
| DEPOSITORY PO BOX 748872 | LOS ANGELES | CA | 90074 | 946036493 | 501(C)(3) | $160,000 | RESEARCH | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 5 | Total501c3OrgCnt |
Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Type | DEEP BRAIN STIMULATION RESEARCHERS | GrantTypeTxt |
| Recipient | 1 | RecipientCnt |
| Cash Grant | $224,350 | CashGrantAmt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | THE ASSOCIATION MUST RECEIVE A FINAL PROGRESS REPORT DESCRIBING RESEARCH AND OUTCOMES AS WELL AS HOW FUNDS HAVE BEEN USED. ADVISORY BOARDS REVIEW AND APPROVE BEFORE FINAL PAYMENT IS MADE. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Compensation Committee | Yes (X) | CompensationCommitteeInd |
| Independent Consultant | Yes (X) | IndependentConsultantInd |
| Form990 Of Other Organizations | Yes (X) | Form990OfOtherOrganizationsInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (3 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| AMANDA TALTY | ||||||||||||||
| PRESIDENT & CEO | $233,169 | $0 | $0 | $0 | $210 | $0 | $7,001 | $0 | $7,893 | $0 | $248,273 | $0 | $0 | $0 |
| DIANA FELNER | ||||||||||||||
| VICE PRES., PUBLIC POLICY | $113,537 | $0 | $0 | $0 | $315 | $0 | $3,454 | $0 | $40,948 | $0 | $158,254 | $0 | $0 | $0 |
| DIANA SHINEMAN | ||||||||||||||
| VICE PRES., RESEARCH & MED | $125,211 | $0 | $0 | $0 | $189 | $0 | $3,759 | $0 | $47,831 | $0 | $176,990 | $0 | $0 | $0 |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (7 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION A, LINE 6 | TOURETTE ASSOCIATION OF AMERICA INC. IS A MEMBERSHIP ORGANIZATION. ANY PERSON INTERESTED IN TOURETTE SYNDROME, ITS CAUSES, TREATMENT AND ASSOCIATED PROBLEMS MAY BECOME A MEMBER OF THIS ASSOCIATION. |
| FORM 990, PART VI, SECTION A, LINE 7A | EACH MEMBER OF THE ASSOCIATION IN GOOD STANDING SHALL BE ENTITLED TO ONE VOTE ON ALL MATTERS SUBMITTED TO A VOTE OF THE MEMBERS. |
| FORM 990, PART VI, SECTION B, LINE 11B | THE FORM 990 IS PREPARED BY AN INDEPENDENT ACCOUNTING FIRM. THE FORM 990 IS PROVIDED TO EACH BOARD MEMBER FOR THEIR REVIEW. THE FORM 990 IS ONLY FILED AFTER EACH BOARD MEMBER FORMALLY APPROVES THE 990. |
| FORM 990, PART VI, SECTION B, LINE 12C | THE CONFLICT OF INTEREST POLICY IS SIGNED ANNUALLY BY BOARD MEMBERS. |
| FORM 990, PART VI, SECTION B, LINE 15A | THERE IS A PERSONNEL/COMPENSATION COMMITTEE. THE CHAIR ASSIGNS THE MEMBERS TO DO RESEARCH AND COME UP WITH RECOMMENDATIONS TO THE COMMITTEE FOR THE OFFICERS. THE CHAIRMAN TAKES THE AMOUNTS TO THE FULL BOARD FOR APPROVAL. |
| FORM 990, PART VI, SECTION C, LINE 19 | ALL DOCUMENTS ARE AVAILABLE UPON REQUEST. |
| FORM 990, PART XII, LINE 2C: | THE PROCESS OF OVERSEEING THE AUDIT AND SELECTION OF AN INDEPENDENT ACCOUNTANT HAS NOT CHANGED FROM THE PRIOR YEAR. |