STRATEGY STUDIO / PUBLIC DATA EXPLORER

CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE: Form 990, tax year 2018

View the entire original 990 at ProPublica ↗

Organization
CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE (EIN 46-4152355)
Tax period
2018-01-01 to 2018-12-31
Filed
2019-11-15
IRS object ID
201943199349303124
Schema version
2018v3.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2019-11-15T06:42:19-08:00ReturnTs
Tax Period End2018-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN390919055PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1Ritz Holman LLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1330 E Kilbourn Ste 550AddressLine1Txt
CityMilwaukeeCityNm
State AbbreviationWIStateAbbreviationCd
ZIP532023144ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2018-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN464152355EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1CHILDHOOD ARTHRITIS AND RHEUMATOLOGYBusinessNameLine1Txt
Business Name Line2RESEARCH ALLIANCEBusinessNameLine2Txt
FieldValueIRS element (for citing)
Business Name ControlCHILBusinessNameControlTxt
Phone4149189822PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1555 E WELLS ST STE 1100AddressLine1Txt
CityMILWAUKEECityNm
State AbbreviationWIStateAbbreviationCd
ZIP53202ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonROBERT COLBERT MD PHDPersonNm
Person TitleTreasurerPersonTitleTxt
Signature2019-11-15SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonKATY L SOMMERPreparerPersonNm
PTINP00273273PTIN
Phone4142711451PhoneNum
FieldValueIRS element (for citing)
Tax2018TaxYr
Build TS2020-03-31 21:24:44ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerEMILY VON SCHEVENPrincipalOfficerNm
Gross Receipts$9,976,474GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
All Affiliates IncludedfalseAllAffiliatesIncludedInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresshttps://www.carragroup.org/WebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2014FormationYr
Legal Domicile StateCALegalDomicileStateCd
Activity Or MissionCARRA members work together to capitalize on opportunities, actively develop a structure and a scientific agenda, and collaborate with potential funding sources to create a research alliance that benefits our patients. CARRA Conducts collaborative research to prevent, treat and cure pediatric rheumatic diseases.ActivityOrMissionDesc
Voting Members Governing Body9VotingMembersGoverningBodyCnt
Voting Members Independent5VotingMembersIndependentCnt
Total Employee0TotalEmployeeCnt
Total Gross UBI$0TotalGrossUBIAmt
PY Contributions Grants$10,497,647PYContributionsGrantsAmt
CY Contributions Grants$6,025,669CYContributionsGrantsAmt
PY Program Service Revenue$2,298,414PYProgramServiceRevenueAmt
CY Program Service Revenue$3,884,923CYProgramServiceRevenueAmt
PY Investment Income$2,102PYInvestmentIncomeAmt
CY Investment Income$19,852CYInvestmentIncomeAmt
CY Other Revenue$46,030CYOtherRevenueAmt
PY Total Revenue$12,798,163PYTotalRevenueAmt
CY Total Revenue$9,976,474CYTotalRevenueAmt
PY Grants And Similar Paid$405,348PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$560,529CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$358,999PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$249,771CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$0CYTotalFundraisingExpenseAmt
PY Other Expenses$4,508,744PYOtherExpensesAmt
CY Other Expenses$7,066,469CYOtherExpensesAmt
PY Total Expenses$5,273,091PYTotalExpensesAmt
CY Total Expenses$7,876,769CYTotalExpensesAmt
PY Revenues Less Expenses$7,525,072PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$2,099,705CYRevenuesLessExpensesAmt
Total Assets BOY$16,222,097TotalAssetsBOYAmt
Total Assets EOY$18,423,173TotalAssetsEOYAmt
Total Liabilities BOY$1,148,769TotalLiabilitiesBOYAmt
Total Liabilities EOY$1,250,140TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$15,073,328NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$17,173,033NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionCARRA members work together to capitalize on opportunities, actively develop a structure and a scientific agenda, and collaborate with potential funding sources to create a research alliance that benefits our patients. CARRA Conducts collaborative research to prevent, treat and cure pediatric rheumatic diseases.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$4,518,304ExpenseAmt
Revenue$3,824,673RevenueAmt
DescCARRA Registry: CARRA and the Duke Clinical Research Institute (DCRI) are collaborating to launch the second phase of the CARRA Registry, a registry of children and young adults with pediatric-onset rheumatic conditions such as juvenile idiopathic arthritis (JIA). The Registry is a cornerstone of CARRA and provides disease and treatment data on children with a variety of rheumatic diseases.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$1,162,913ExpenseAmt
Revenue$51,250RevenueAmt
DescOther program services: Informatics/Programing, Leadership service associated with furthering the mission and ACR meeting expenses.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$661,073ExpenseAmt
Revenue$9,000RevenueAmt
DescAnnual Meeting: provides many opportunities to develop and refine scientific approaches to questions in clinical and translational research, while networking with colleagues. The meeting offers a unique, interactive format with sessions that encourage active participation, including brainstorming and contributing to new research initiatives and ideas.Desc
FieldValueIRS element (for citing)
Total Other Prog Srvc Expense$521,011TotalOtherProgSrvcExpenseAmt
Total Other Prog Srvc Grant$521,011TotalOtherProgSrvcGrantAmt
Total Program Service Expenses$6,863,301TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Temp Or Permanent EndowmentsfalseTempOrPermanentEndowmentsInd
Report Land Building EquipmentfalseReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesfalseReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (true)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesfalseForeignActivitiesInd
More Than5000 K To OrgYes (true)MoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesfalseFundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsYes (true)GrantsToIndividualsInd
Schedule J RequiredfalseScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Invest Tax Exempt BondsfalseInvestTaxExemptBondsInd
Escrow AccountfalseEscrowAccountInd
On Behalf Of IssuerfalseOnBehalfOfIssuerInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
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Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document8IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee0EmployeeCnt
Employment Tax Returns FiledfalseEmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Form990 T FiledfalseForm990TFiledInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsfalseQuidProQuoContributionsInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Form8282 Filed0Form8282FiledCnt
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Form8899 FiledindfalseForm8899Filedind
Form1098 C FiledfalseForm1098CFiledInd
DAF Excess Business HoldingsfalseDAFExcessBusinessHoldingsInd
Taxable DistributionsfalseTaxableDistributionsInd
Distribution To DonorfalseDistributionToDonorInd
Org Filed In Lieu Of Form1041falseOrgFiledInLieuOfForm1041Ind
Licensed More Than One StatefalseLicensedMoreThanOneStateInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members9GoverningBodyVotingMembersCnt
Independent Voting Member5IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesYes (true)DelegationOfMgmtDutiesInd
Change To Org DocumentsYes (true)ChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersYes (true)MembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyfalseWhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherYes (true)CompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonEXECUTIVE DIRECTOR INCPersonNm
Phone4142766445PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1555 E WELLS STREET SUITE 110AddressLine1Txt
CityMILWAUKEECityNm
State AbbreviationWIStateAbbreviationCd
ZIP53202ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (9 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtOfficerOfficerInd
YUKIKO KIMURA MD
PAST PRESIDENT3.000.00Yes (X)$100,927$0$0
ROBERT FUHLBRIGGE MD PHD
PRESIDENT3.000.00Yes (X)$54,432$0$0Yes (X)
CAROL WALLACE MD
Director1.000.00Yes (X)$0$0$0
HARRY SAAL PHD
Director1.000.00Yes (X)$0$0$0
BRIAN KOTZIN MD
Director1.000.00Yes (X)$0$0$0
LEIGH WHITE JD
Director1.000.00Yes (X)$0$0$0
CHRISTY SANDBORG MD
CHAIR3.000.00$0$0$0Yes (X)
EMILY VON SCHEVEN MD MAS
Vice President3.000.00$74,412$0$0Yes (X)
ROBERT COLBERT MD PHD
Treasurer3.000.00$20,000$0$0Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$249,771TotalReportableCompFromOrgAmt
Indiv Rcvd Greater Than100 K1IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KfalseTotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (4 entries)

Address Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmt
DUKE CLINICAL RESEARCH INSTITUTE
2400 PRATT STDURHAMNC27705REGISTRY MANAGEMENT$3,995,607
BOSTON CHILDRENS HOSPITAL
300 LONGWOOD AVEBOSTONMA02115INFORMATICS SUPPORT$260,000
EXECUTIVE DIRECTOR INC
555 e wells streetmilwaukeeWI53202management$517,250
GROUP CONSULTING
120 COUNTY LINE ROADBRYN MAWRPA19010ORG. CONSULTING$186,519
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K4CntrctRcvdGreaterThan100KCnt
All Other Contributions$6,025,669AllOtherContributionsAmt
Total Contributions$6,025,669TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (3 entries)

DescDescBusinessBusinessCdTotal Revenue ColumnTotalRevenueColumnAmtRelated Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
annual meeting541900$9,000$9,000
Membership Dues & Assessments900099$51,250$51,250
RESEARCH STUDIES & COLLAB541900$3,824,673$3,824,673
FieldValueIRS element (for citing)
Total Program Service Revenue$3,884,923TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$19,852TotalRevenueColumnAmt
Exclusion$19,852ExclusionAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Income From Gaming NetIncomeFromGamingGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Income Or Loss NetIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Other Revenue Misc OtherRevenueMiscGrp

FieldValueIRS element (for citing)
DescGrant Support RefundsDesc
Business900099BusinessCd
Total Revenue Column$46,030TotalRevenueColumnAmt
Related Or Exempt Func Income$46,030RelatedOrExemptFuncIncomeAmt
FieldValueIRS element (for citing)
Other Revenue Total$46,030OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$9,976,474TotalRevenueColumnAmt
Related Or Exempt Func Income$3,930,953RelatedOrExemptFuncIncomeAmt
Exclusion$19,852ExclusionAmt
FieldValueIRS element (for citing)
Info In Schedule O Part IXYes (X)InfoInScheduleOPartIXInd

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$521,011TotalAmt
Program Services$521,011ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$7,659TotalAmt
Program Services$7,659ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$31,859TotalAmt
Program Services$31,859ProgramServicesAmt

Benefits To Members BenefitsToMembersGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$249,771TotalAmt
Program Services$249,771ProgramServicesAmt

Comp Disqual Persons CompDisqualPersonsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$1,471,975TotalAmt
Program Services$597,292ProgramServicesAmt
Management And General$874,683ManagementAndGeneralAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$760TotalAmt
Management And General$760ManagementAndGeneralAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$20,250TotalAmt
Management And General$20,250ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$4,210,417TotalAmt
Program Services$4,206,507ProgramServicesAmt
Management And General$3,910ManagementAndGeneralAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$19,254TotalAmt
Program Services$872ProgramServicesAmt
Management And General$18,382ManagementAndGeneralAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$41,544TotalAmt
Program Services$30,668ProgramServicesAmt
Management And General$10,876ManagementAndGeneralAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$472,854TotalAmt
Program Services$437,562ProgramServicesAmt
Management And General$35,292ManagementAndGeneralAmt

Royalties RoyaltiesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$53,732TotalAmt
Program Services$28,421ProgramServicesAmt
Management And General$25,311ManagementAndGeneralAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$739,816TotalAmt
Program Services$739,816ProgramServicesAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$23,406TotalAmt
Management And General$23,406ManagementAndGeneralAmt

Other Expenses OtherExpensesGrp

FieldValueIRS element (for citing)
DescMiscellaneousDesc
Total$12,461TotalAmt
Program Services$11,863ProgramServicesAmt
Management And General$598ManagementAndGeneralAmt

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$7,876,769TotalAmt
Program Services$6,863,301ProgramServicesAmt
Management And General$1,013,468ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$4,099,256BOYAmt
EOY$2,763,778EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$3,504,290BOYAmt
EOY$7,124,102EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$5,890,000BOYAmt
EOY$6,098,750EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$2,710,543BOYAmt
EOY$2,400,430EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$18,008BOYAmt
EOY$36,113EOYAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$16,222,097BOYAmt
EOY$18,423,173EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$1,139,319BOYAmt
EOY$1,242,090EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$9,450BOYAmt
EOY$8,050EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$1,148,769BOYAmt
EOY$1,250,140EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY$9,508,328BOYAmt
EOY$11,074,283EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$5,565,000BOYAmt
EOY$6,098,750EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$15,073,328BOYAmt
EOY$17,173,033EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$16,222,097BOYAmt
EOY$18,423,173EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$2,099,705ReconcilationRevenueExpnssAmt
Info In Schedule O Part XIIYes (X)InfoInScheduleOPartXIIInd
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,840,811CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,755,621CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$4,523,687CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$10,497,647CurrentTaxYearMinus1YearAmt
Current Tax Year$6,025,669CurrentTaxYearAmt
Total$25,643,435TotalAmt

Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,840,811CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,755,621CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$4,523,687CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$10,497,647CurrentTaxYearMinus1YearAmt
Current Tax Year$6,025,669CurrentTaxYearAmt
Total$25,643,435TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$0SubstantialContributorsTotAmt
Public Support Total170$25,643,435PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$286CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$672CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,267CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,102CurrentTaxYearMinus1YearAmt
Current Tax Year$19,852CurrentTaxYearAmt
Total$24,179TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year$46,030CurrentTaxYearAmt
Total$46,030TotalAmt
FieldValueIRS element (for citing)
Total Support$25,713,644TotalSupportAmt
Gross Receipts Rltd Activities$10,762,936GrossReceiptsRltdActivitiesAmt
Public Support CY1700.99730PublicSupportCY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

FieldValueIRS element (for citing)
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$9,930,444TotalRevEtcAuditedFinclStmtAmt
Revenue Subtotal$9,930,444RevenueSubtotalAmt
Other Revenues Not Included$46,030OtherRevenuesNotIncludedAmt
Revenue Not Reported Fincl Stmt$46,030RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$9,976,474TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$7,830,739TotExpnsEtcAuditedFinclStmtAmt
Expenses Subtotal$7,830,739ExpensesSubtotalAmt
Other Expenses Not Included$46,030OtherExpensesNotIncludedAmt
Expenses Not Rpt Fincl Stmt$46,030ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$7,876,769TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Part X : FIN48 FootnoteThe Organization is exempt from income tax under Section 501(c)(3) of Internal Revenue Code and is classified as other than a private foundation. Management has reviewed all tax positions recognized in previously filed tax returns and those expected to be taken in future tax returns. As of December 31, 2018, the Organization had no amounts related to unrecognized income tax benefits and no amounts related to accrued interest and penalties. The Organization does not anticipate any significant changes to unrecognized income tax benefits over the next year.
Part XI, Line 4b: Other revenue amounts included on 990 but not included in F/SGrant Support Refunds $46030
Part XII, Line 4b: Other revenue amounts included on 990 but not included in F/SGrant Support Refunds $46030

Schedule F IRS990ScheduleF

Grants To Org Outside US GrantsToOrgOutsideUSGrp

FieldValueIRS element (for citing)
RegionCANADARegionTxt
Purpose Of GrantRESEARCH STUDYPurposeOfGrantTxt
Cash Grant$31,859CashGrantAmt
Manner Of Cash DisbursementCashMannerOfCashDisbursementTxt
Valuation Method UsedFMVValuationMethodUsedDesc
FieldValueIRS element (for citing)
Total Other Org1TotalOtherOrgCnt
Transfer To Foreign CorpfalseTransferToForeignCorpInd
Interest In Foreign TrustfalseInterestInForeignTrustInd
Foreign Corp OwnershipfalseForeignCorpOwnershipInd
Passive Foreign Investmest CofalsePassiveForeignInvestmestCoInd
Foreign PartnershipfalseForeignPartnershipInd
Boycott CountriesfalseBoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePart II, Line 1 - Method of AccountingFormAndLineReferenceDesc
ExplanationCARRA has a Grants Review Committee that oversees the funding of grants. Grant recipients must go through a grant review process, which includes a final grant report due within 30 days of the end of the project period.ExplanationTxt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedfalseGrantRecordsMaintainedInd

Recipient Table RecipientTable (18 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtValuation Method UsedValuationMethodUsedDescPurpose Of GrantPurposeOfGrantTxt
ANN & ROBERT LURIE CHILDRENS
225 E CHICAGO AVECHICAGOIL606113621708333$25,000$0FMVSMALL GRANT
CHILDRENS HOSPITAL OF PHILA
3401 CIVIC CENTER BLVDPHILADELPHIAPA191042313521663$8,640$0FMVPUBLICATION GRANT
CINCINNATI CHILDRENS HOSPITAL
3333 BURNET AVECINCINNATIOH452293160262853$25,000$0FMVSMALL GRANT
COLUMBIA UNIVERSITY
116TH STNEW YORKNY100271355980933$9,269$0FMVSMALL GRANT
DUKE UNIVERSITY
2301 ERWIN RDDURHAMNC277105605321293$19,278$0FMVFELLOWS GRANT
EAST TENNESSEE ST UNIV
1276 GILBREATH DRJOHNSON CITYTN376146260210463$50,000$0FMVLARGE GRANT
FEINSTEIN INST FOR MED RES
350 COMMUNITY DRMANHASSETNY110301126735953$30,408$0FMVSMALL GRANT/FELLOWS GRANT
HACKENSAVK UNIV MED CENTER
30 PROSPECT AVEHACKENSACKNJ076012214875763$24,978$0FMVSMALL GRANT
HOSPITAL FOR SPECIAL SURGERY
541 E 71ST STNEW YORKNY100211316241353$25,000$0FMVFELLOWS GRANT
INDIANA UNIVERSITY
107 S INDIANA AVEBLOOMINGTONIN474053560189403$70,736$0FMVSMALL GRANT/LARGE GRANT
RESEARCH INST AT NATIONWIDE
700 CHILDRENS DRCOLOMBUSOH432053160562303$49,978$0FMVSMALL GRANT/FELLOWS GRANT
RUTGERS UNIVERSITY
57 US HIGHWAY 1NEW BRUNSWICKNJ089011226001083$10,000$0FMVPUBLICATION GRANT
SEATTLE CHILDRENS HOSPITAL
400 SAND POINT WAY NESEATTLEWA981059105647483$29,985$0FMVSMALL GRANT/FELLOWS GRANT
SETON HEALTHCARE
1345 PHILOMENA STAUSTINTX787232721931743$25,000$0FMVSMALL GRANT
THE UNIVERSITY OF CALIFORNIA
1111 FRANKLIN STOAKLANDCA946079460364933$59,332$0FMVSMALL GRANT/FELLOWS GRANT
UNIVERSITY OF ALABAMA BIRM
1720 2ND AVEBIRMINGHAMAL352946360053963$8,369$0FMVPUBLICATION GRANT
UNIVERSITY OF PENNSYLVANIA
801 SPRUCE STPHILADELPHIAPA191072313526853$22,032$0FMVSMALL GRANT/FELLOWS GRANT
VANDERBILT UNIVERSITY
2201 WEST END AVENASHVILLETN372353525287413$24,998$0FMVFELLOWS GRANT
FieldValueIRS element (for citing)
Total501c3 Org18Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp

FieldValueIRS element (for citing)
Grant TypePRES. TRAVEL AWARDGrantTypeTxt
Recipient3RecipientCnt
Cash Grant$7,659CashGrantAmt
Valuation Method UsedFMVValuationMethodUsedDesc

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceAdditional Supplemental InformationFormAndLineReferenceDesc
ExplanationUNSPENT GRANTS OF $46,030 WERE REFUNDED THROUGHOUT THE YEAR.ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (8 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990, Part III, Line 4d: Other Program Services DescriptionOTHER PROGRAM SERVICES 4: Other program services: Informatics/Programing, Leadership service associated with furthering the mission and ACR meeting expenses.
Form 990, Part VI, Line 3: Description of Delegated Duties to Management CompanyCARRA contracts with Executive Director Inc. (A for-profit Management Company) to provide office facilities, management, record keeping, accounting, storage, other significant services, plus related overhead costs.
Form 990, Part VI, Line 4: Description of Significant Changes to Organizational DocumentsChanges to the bylaws were made in the current year.Article VI: Deleted reference to membership charterArticle VII: Increased max number of directors from 7 to 11Changed director terms from 3 to 2 yearsChange the number of Board classes from 3 to 2Changed term end date from Dec 31 to June 30Article VIII: Added Executive Committee as a Board CommitteeUpdated Steering Committee duties to include 1) overseeing research activities of the corporation and (2) overseeing the structure, organization, and activities of the membershipArticle IX: Changed terms so that officers are chosen biannually
Form 990, Part VI, Line 11b: Form 990 Review ProcessPRIOR TO FILING, FORM 990 WILL BE REVIEWED BY THE CFO AND THE EXECUTIVE DIRECTOR AND THEN DISTRIBUTED TO THE FULL BOARD AND FINANCE COMMITTEE FOR REVIEW.
Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of ConflictsThe Conflict of Interest policy is monitored by the Ethics Committee and reviewedand signed at the beginning of each fiscal year by all staff and Board members withsignificant decision making authority. It is each signator's obligation to discloseany potential conflict as soon as it is known, or reasonably should be known.
Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top ManagementThe Board of Directors shall review any compensation packages of the Executive Director and the Chief Financial Officer, and shall approve such compensation only after determining that the compensation is reasonable. Compensation is determined using information about compensation paid by similarly situated taxable and tax-exempt organizations for similar services. Such information may include up-to-date compensation surveys compiled by independent firms or actual written offers from similarly situated organizations. Approvals of all compensation must be documented in writing with the dates and terms of the agreement, a record of all individuals who voted in consideration, along with all information and the information's source.
Form 990, Part VI, Line 19: Other Organization Documents Publicly AvailableThe most recent Form 990s (including financial information), the Bylaws, Articles ofIncorporation, Form 1023 Application for Exemption, and Conflict of Interest Policyare provided to the public upon request
Form 990, Part XII, Line 2: Change of Oversight or Selection ProcessCARRA now has a finance committee that oversees the approval of the audit.