STRATEGY STUDIO / PUBLIC DATA EXPLORER

CURE LBSL: Form 990, tax year 2018

View the entire original 990 at ProPublica ↗

Organization
CURE LBSL (EIN 46-2829156)
Tax period
2018-01-01 to 2018-12-31
Filed
2019-05-15
IRS object ID
201901359349314160
Schema version
2018v3.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2019-05-15T20:13:00-06:00ReturnTs
Tax Period End2018-12-31TaxPeriodEndDt
Return Type990ReturnTypeCd
Tax Period Begin2018-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN462829156EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1A Cure For EllieBusinessNameLine1Txt
FieldValueIRS element (for citing)
In Care Of% Elizabeth McGinnInCareOfNm
Business Name ControlACURBusinessNameControlTxt
Phone2024874235PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line13520 S Wakefield StAddressLine1Txt
CityArlingtonCityNm
State AbbreviationVAStateAbbreviationCd
ZIP22206ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonELIZABETH MCGINNPersonNm
Person TitleDirectorPersonTitleTxt
Phone2024874235PhoneNum
Signature2019-05-15SignatureDt

Filing Security Information FilingSecurityInformation

IP Address IPAddress

FieldValueIRS element (for citing)
I Pv4 Address72.66.18.81IPv4AddressTxt
FieldValueIRS element (for citing)
Federal Original Submission Id21010520191356626447FederalOriginalSubmissionId
Federal Original Submission Id2019-05-15FederalOriginalSubmissionIdDt
Filing License TypeOFilingLicenseTypeCd
At Submission Creation Device IdD99C34F1948E12D7F2F271AC929097E5AB96A1FFAtSubmissionCreationDeviceId
At Submission Filing Device IdD99C34F1948E12D7F2F271AC929097E5AB96A1FFAtSubmissionFilingDeviceId
FieldValueIRS element (for citing)
Tax2018TaxYr
Build TS2019-02-21 02:37:17ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Address ChangeYes (X)AddressChangeInd
Principal OfficerELIZABETH MCGINNPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line13520 S Wakefield StAddressLine1Txt
CityArlingtonCityNm
State AbbreviationVAStateAbbreviationCd
ZIP22206ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$107,860GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.acureforellie.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2013FormationYr
Legal Domicile StateVALegalDomicileStateCd
Activity Or MissionFund research on mitochondrial disease and LeukodystrophyLBSL and support affected familiesActivityOrMissionDesc
Voting Members Governing Body4VotingMembersGoverningBodyCnt
Voting Members Independent4VotingMembersIndependentCnt
Total Employee0TotalEmployeeCnt
Total Gross UBI$0TotalGrossUBIAmt
PY Contributions Grants$100,598PYContributionsGrantsAmt
CY Contributions Grants$107,860CYContributionsGrantsAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
CY Investment Income$0CYInvestmentIncomeAmt
CY Other Revenue$0CYOtherRevenueAmt
PY Total Revenue$100,598PYTotalRevenueAmt
CY Total Revenue$107,860CYTotalRevenueAmt
PY Grants And Similar Paid$70,000PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$80,000CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
CY Salaries Comp Emp Bnft Paid$0CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$0CYTotalFundraisingExpenseAmt
PY Other Expenses$4,942PYOtherExpensesAmt
CY Other Expenses$29,261CYOtherExpensesAmt
PY Total Expenses$74,942PYTotalExpensesAmt
CY Total Expenses$109,261CYTotalExpensesAmt
PY Revenues Less Expenses$25,656PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$1,401CYRevenuesLessExpensesAmt
Total Assets BOY$44,532TotalAssetsBOYAmt
Total Assets EOY$43,192TotalAssetsEOYAmt
Total Liabilities EOY$0TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$44,532NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$43,192NetAssetsOrFundBalancesEOYAmt
MissionProvide funding to rare disease research & support affected familiesMissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$80,000ExpenseAmt
Grant$80,000GrantAmt
DescWe provided $80,000 to a research program at the Kennedy Krieger Institute in Baltimore Maryland. The research seeks to create a treatment for the rare disease - leukodystrophy LBSL. This year's research included testing drugs against the disease in different forms and supported a natural history study with sample of known patientsDesc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
DescWe are still small and are only funding the one piece of research previously listed.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
DescWe are still small and are only funding the one piece of research previously listed.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$80,000TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredfalseScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Temp Or Permanent EndowmentsfalseTempOrPermanentEndowmentsInd
Report Land Building EquipmentfalseReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesfalseReportOtherLiabilitiesInd
Include FIN48 FootnotefalseIncludeFIN48FootnoteInd
Independent Audit Fincl StmtfalseIndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesfalseForeignActivitiesInd
More Than5000 K To OrgfalseMoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesfalseFundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredfalseScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With Officer EntfalseBusinessRlnWithOfficerEntInd
Deductible Non Cash ContrifalseDeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document0IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee0EmployeeCnt
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Form990 T FiledfalseForm990TFiledInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members4GoverningBodyVotingMembersCnt
Independent Voting Member4IndependentVotingMemberCnt
Family Or Business RlnYes (true)FamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesfalseMinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyfalseForm990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyfalseWhistleblowerPolicyInd
Document Retention PolicyfalseDocumentRetentionPolicyInd
Compensation Process CEOfalseCompensationProcessCEOInd
Compensation Process OtherfalseCompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonELIZABETH MCGINNPersonNm
Phone2024874235PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line13520 S Wakefield StAddressLine1Txt
CityArlingtonCityNm
State AbbreviationVAStateAbbreviationCd
ZIP22206ZIPCd
FieldValueIRS element (for citing)
No Listed Persons CompensatedYes (X)NoListedPersonsCompensatedInd

Form990 Part VII Section A Form990PartVIISectionAGrp (7 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmt
ELIZABETH MCGINN
Director15.00Yes (X)Yes (X)$0$0$0
MICHAEL MCGINN
Director5.000Yes (X)Yes (X)$0$0$0
ELIZABETH GULUGIAN
Director1.000Yes (X)$0$0$0
CHRIS GULUGIAN
Director1.000Yes (X)$0$0$0
MEGAN MITCHELL
Director1.000Yes (X)$0$0$0
LANCE STERN
Director1.000Yes (X)$0$0$0
MORGAN STERN
Director1.000Yes (X)$0$0$0
FieldValueIRS element (for citing)
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KfalseTotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd
All Other Contributions$107,860AllOtherContributionsAmt
Total Contributions$107,860TotalContributionsAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$107,860TotalRevenueColumnAmt
FieldValueIRS element (for citing)
Info In Schedule O Part IXYes (X)InfoInScheduleOPartIXInd

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$80,000TotalAmt
Program Services$80,000ProgramServicesAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$60TotalAmt
Program Services$60ProgramServicesAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$1,933TotalAmt
Program Services$1,933ProgramServicesAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$1,210TotalAmt
Program Services$1,210ProgramServicesAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$5,322TotalAmt
Program Services$5,322ProgramServicesAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$1,097TotalAmt
Program Services$1,097ProgramServicesAmt

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$19,639TotalAmt
Program Services$19,639ProgramServicesAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$109,261TotalAmt
Program Services$109,261ProgramServicesAmt
Management And General$0ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$44,532BOYAmt
EOY$43,192EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$44,532BOYAmt
EOY$43,192EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY$44,532BOYAmt
EOY$43,192EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$44,532BOYAmt
EOY$43,192EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$44,532BOYAmt
EOY$43,192EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss-$1,401ReconcilationRevenueExpnssAmt
Method Of Accounting CashYes (X)MethodOfAccountingCashInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedfalseFSAuditedInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Publicly Supported Org509a2Yes (X)PubliclySupportedOrg509a2Ind
Public Support Total170$0PublicSupportTotal170Amt

Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$18,251CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$44,989CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$58,837CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$100,598CurrentTaxYearMinus1YearAmt
Current Tax Year$107,860CurrentTaxYearAmt
Total$330,535TotalAmt

Total509 Total509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$18,251CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$44,989CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$58,837CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$100,598CurrentTaxYearMinus1YearAmt
Current Tax Year$107,860CurrentTaxYearAmt
Total$330,535TotalAmt
FieldValueIRS element (for citing)
Public Support Total509$330,535PublicSupportTotal509Amt

Total Support Calendar Year TotalSupportCalendarYearGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$18,251CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$44,989CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$58,837CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$100,598CurrentTaxYearMinus1YearAmt
Current Tax Year$107,860CurrentTaxYearAmt
Total$330,535TotalAmt
FieldValueIRS element (for citing)
Public Support CY5091.00000PublicSupportCY509Pct
Public Support PY5091.00000PublicSupportPY509Pct
Investment Income CY0.00000InvestmentIncomeCYPct
Thirty Thr Pct Suprt Tests CY509Yes (X)ThirtyThrPctSuprtTestsCY509Ind

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedfalseGrantRecordsMaintainedInd

Recipient Table RecipientTable

Recipient Business Name RecipientBusinessName

FieldValueIRS element (for citing)
Business Name Line1Kennedy Krieger InstituteBusinessNameLine1Txt

US Address USAddress

FieldValueIRS element (for citing)
Address Line1707 North BroadwayAddressLine1Txt
CityBaltimoreCityNm
State AbbreviationMDStateAbbreviationCd
ZIP21205ZIPCd
FieldValueIRS element (for citing)
Recipient EIN521524965RecipientEIN
Cash Grant$80,000CashGrantAmt
Non Cash Assistance$0NonCashAssistanceAmt
Purpose Of GrantRare Disease ResearchPurposeOfGrantTxt
FieldValueIRS element (for citing)
Total501c3 Org0Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Part I Line 2The charity has regular and ad hoc meetings with the lead
Part I Line 2researcher to discuss progress and intentions for future
Part I Line 2research

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (10 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Part VI Line 1aNone
Part VI Line 1aNone
Part VI Line 2Two married couples - The McGinns and the Gulugians
Part VI Line 8bWe have no committees.
Part VI Line 11bThe form will be emailed to the board once it is complete and
Part VI Line 11bavailable for print.
Part VI Line 12cThere is little room for a conflict of interest within A Cure for Ellie
Part VI Line 12cbut all potential conflicts are to be raised to the board for review
Part VI Line 19We do not make our policies public.
Part IX Line 24eEvent and General Expense Total expenses - $19639.00 Program service expenses - $19639.00 Mgmt and general expenses - $0.00 Fundraising expenses - $0.00