CYSTIC FIBROSIS FOUNDATION: Form 990, tax year 2024
View the entire original 990 at ProPublica ↗
- Organization
- CYSTIC FIBROSIS FOUNDATION (EIN 13-1930701)
- Tax period
- 2024-01-01 to 2024-12-31
- Filed
- 2025-11-14
- IRS object ID
- 202533189349311948
- Schema version
- 2024v5.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule M
- Schedule O
- Schedule R
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2025-11-14T15:27:33+00:00 | ReturnTs |
| Tax Period End | 2024-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 135565207 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | KPMG LLP | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 8350 Broad Street Suite 900 | AddressLine1Txt |
| City | McLean | CityNm |
| State Abbreviation | VA | StateAbbreviationCd |
| ZIP | 22102 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2024-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 131930701 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CYSTIC FIBROSIS FOUNDATION | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | CYST | BusinessNameControlTxt |
| Phone | 3019514422 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 4550 MONTGOMERY AVENUE 1100n | AddressLine1Txt |
| City | BETHESDA | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 20814 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | MICHAEL P BOYLE MD | PersonNm |
| Person Title | PRESIDENT & CEO | PersonTitleTxt |
| Signature | 2025-11-14 | SignatureDt |
| Discuss With Paid Preparer | Yes (true) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | Brian Kearns | PreparerPersonNm |
| PTIN | P02061479 | PTIN |
| Phone | 7032868000 | PhoneNum |
| Preparation | 2025-11-14 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2024 | TaxYr |
| Build TS | 2025-03-06 01:10:19Z | BuildTS |
Form 990 IRS990
Principal Ofcr Business Name PrincipalOfcrBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | MICHAEL P BOYLE MD | BusinessNameLine1Txt |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 4550 MONTGOMERY AVENUE 1100n | AddressLine1Txt |
| City | BETHESDA | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 20814 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $1,863,238,088 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | https://www.cff.org/ | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1955 | FormationYr |
| Legal Domicile State | DE | LegalDomicileStateCd |
| Activity Or Mission | TO CURE CF AND PROVIDE ALL PEOPLE WITH CF THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES BY FUNDING RESEARCH AND DRUG DEVELOPMENT, PARTNERING WITH THE CF COMMUNITY, AND ADVANCING HIGH-QUALITY, SPECIALIZED CARE. | ActivityOrMissionDesc |
| Voting Members Governing Body | 17 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 16 | VotingMembersIndependentCnt |
| Total Employee | 875 | TotalEmployeeCnt |
| Total Volunteers | 56403 | TotalVolunteersCnt |
| Total Gross UBI | $35,543,466 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $34,190,123 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $86,607,373 | PYContributionsGrantsAmt |
| CY Contributions Grants | $95,892,260 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $3,437,695 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $3,272,736 | CYProgramServiceRevenueAmt |
| PY Investment Income | $179,149,610 | PYInvestmentIncomeAmt |
| CY Investment Income | $231,324,892 | CYInvestmentIncomeAmt |
| PY Other Revenue | $22,821,602 | PYOtherRevenueAmt |
| CY Other Revenue | $25,308,432 | CYOtherRevenueAmt |
| PY Total Revenue | $292,016,280 | PYTotalRevenueAmt |
| CY Total Revenue | $355,798,320 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $200,455,461 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $202,017,166 | CYGrantsAndSimilarPaidAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $127,953,243 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $143,748,863 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $176,400 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $353,500 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $35,110,169 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $114,819,495 | PYOtherExpensesAmt |
| CY Other Expenses | $93,019,390 | CYOtherExpensesAmt |
| PY Total Expenses | $443,404,599 | PYTotalExpensesAmt |
| CY Total Expenses | $439,138,919 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | -$151,388,319 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$83,340,599 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $4,885,921,122 | TotalAssetsBOYAmt |
| Total Assets EOY | $4,986,222,387 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $292,964,822 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $292,597,881 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $4,592,956,300 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $4,693,624,506 | NetAssetsOrFundBalancesEOYAmt |
| Mission | SEE SCHEDULE O | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $306,392,964 | ExpenseAmt |
| Grant | $198,809,390 | GrantAmt |
| Revenue | $16,435,185 | RevenueAmt |
| Desc | Medical Program Expenses. SEE SCHEDULE O. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $22,163,320 | ExpenseAmt |
| Grant | $0 | GrantAmt |
| Revenue | $0 | RevenueAmt |
| Desc | Education Program Expenses. See Schedule O. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $18,153,082 | ExpenseAmt |
| Grant | $3,207,776 | GrantAmt |
| Revenue | $0 | RevenueAmt |
| Desc | Community Service Program Expenses. SEE SCHEDULE O. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $346,709,366 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (true) | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (true) | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | false | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (true) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | Yes (true) | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | false | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (true) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (true) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (true) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | false | ForeignOfficeInd |
| Foreign Activities | Yes (true) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (true) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | Yes (true) | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (true) | FundraisingActivitiesInd |
| Gaming Activities | Yes (true) | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | Yes (true) | GrantsToOrganizationsInd |
| Grants To Individuals | Yes (true) | GrantsToIndividualsInd |
| Schedule J Required | Yes (true) | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Escrow Account | false | EscrowAccountInd |
| On Behalf Of Issuer | false | OnBehalfOfIssuerInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | false | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | false | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | Yes (true) | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | Yes (true) | DisregardedEntityInd |
| Related Entity | Yes (true) | RelatedEntityInd |
| Related Organization Ctrl Ent | Yes (true) | RelatedOrganizationCtrlEntInd |
| Transaction With Control Ent | Yes (true) | TransactionWithControlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 1413 | IRPDocumentCnt |
| IRP Document W2 G | 1 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (true) | BackupWthldComplianceInd |
| Employee | 875 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (true) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | Yes (true) | UnrelatedBusIncmOverLimitInd |
| Form990 T Filed | Yes (true) | Form990TFiledInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (true) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (true) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | false | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | false | PayPremiumsPrsnlBnftCntrctInd |
| Form1098 C Filed | Yes (true) | Form1098CFiledInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | Yes (true) | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | false | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 17 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 16 | IndependentVotingMemberCnt |
| Family Or Business Rln | false | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (true) | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | Yes (true) | LocalChaptersInd |
| Policies Reference Chapters | Yes (true) | PoliciesReferenceChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (true) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (true) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (true) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (true) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (true) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (true) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (true) | CompensationProcessOtherInd |
| Investment In Joint Venture | Yes (true) | InvestmentInJointVentureInd |
| Written Policy Or Procedure | Yes (true) | WrittenPolicyOrProcedureInd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ND | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | IRENA BARISIC & MICHAEL CAVADEL | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 3019514422 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 4550 MONTGOMERY AVENUE SUITE 1100N | AddressLine1Txt |
| City | BETHESDA | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 20814 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (29 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Key EmployeeKeyEmployeeInd | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|---|---|
| MICHAEL P BOYLE MD | |||||||||
| PRESIDENT & CEO | 40.0 | 1.0 | Yes (X) | Yes (X) | $1,054,388 | $0 | $220,763 | ||
| CAROLE B GRIEGO MD | |||||||||
| TRUSTEE | 3.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| DAVID A MOUNT | |||||||||
| TREASURER | 5.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| DODZIE SOGAH PHD | |||||||||
| TRUSTEE | 3.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| DOMINIC J CARUSO | |||||||||
| TRUSTEE | 3.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| ELISE EBERWEIN | |||||||||
| TRUSTEE | 3.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| ERIC R OLSON PHD | |||||||||
| VICE CHAIR | 5.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| ERIC SCHNEIDER MD | |||||||||
| TRUSTEE | 3.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| JESSICA H BOYD MD | |||||||||
| TRUSTEE | 3.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| JOHN S WEINBERG | |||||||||
| EXECUTIVE VICE CHAIR | 5.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| KATE O'DONNELL | |||||||||
| TRUSTEE | 3.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| KC BRYAN WHITE | |||||||||
| CHAIR | 8.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| LOUIS A DEFALCO | |||||||||
| VICE CHAIR | 5.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| PAUL A MOTENKO | |||||||||
| TRUSTEE | 3.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| ROBERT H NIEHAUS | |||||||||
| VICE CHAIR | 5.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| STEVEN SHAK MD | |||||||||
| TRUSTEE | 3.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| TERESA L ELDER | |||||||||
| VICE CHAIR | 5.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| IRENA BARISIC | |||||||||
| EVP & CHIEF OPERATING & FINANCIAL OFFICER | 40.0 | 1.0 | Yes (X) | $761,939 | $0 | $82,616 | |||
| MICHAEL B CAVADEL | |||||||||
| SVP, CHIEF LEGAL OFFICER | 40.0 | 0.0 | Yes (X) | $558,135 | $0 | $103,062 | |||
| ALBERT FARO MD | |||||||||
| Chief Medical Officer Beg. 7/1/2024 | 40.0 | 0.0 | $571,672 | $0 | $99,918 | Yes (X) | |||
| BRUCE MARSHALL MD | |||||||||
| Chief Medical Officer Ending 7/1/2024 | 40.0 | 0.0 | $515,472 | $0 | $34,656 | Yes (X) | |||
| JOHN C MAHLER JR MD | |||||||||
| CHIEF INVESTMENT OFFICER | 40.0 | 0.0 | $1,866,868 | $0 | $75,759 | Yes (X) | |||
| JOHN P CLANCY MD | |||||||||
| SVP, CLINICAL RESEARCH | 40.0 | 0.0 | $669,826 | $0 | $95,378 | Yes (X) | |||
| STEVEn ROWE MD | |||||||||
| EVP, Chief Scientific Officer | 32.0 | 0.0 | $534,655 | $0 | $132,551 | Yes (X) | |||
| ANDREW LEWIS | |||||||||
| MANAGING DIRECTOR, INVESTMENTS | 40.0 | 0.0 | $1,363,454 | $0 | $38,260 | Yes (X) | |||
| EARL A LEE | |||||||||
| MANAGING DIRECTOR, INVESTMENTS | 40.0 | 0.0 | $1,226,269 | $0 | $368,483 | Yes (X) | |||
| ENRIQUE LIN SHIAO PHD | |||||||||
| Principal of Mission Related Investments | 40.0 | 0.0 | $507,691 | $0 | $81,951 | Yes (X) | |||
| ERIC KOEHRSEN | |||||||||
| MANAGING DIRECTOR, INVESTMENTS | 40.0 | 0.0 | $976,105 | $0 | $304,602 | Yes (X) | |||
| GENTIANA S AROVAS | |||||||||
| MANAGING DIRECTOR, INVESTMENTS OPERATIONS | 40.0 | 0.0 | $642,532 | $0 | $177,127 | Yes (X) | |||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $11,249,006 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $1,815,126 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 388 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | Yes (true) | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (true) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp (5 entries)
| Address Line1ContractorAddress/USAddress/AddressLine1Txt | CityContractorAddress/USAddress/CityNm | State AbbreviationContractorAddress/USAddress/StateAbbreviationCd | ZIPContractorAddress/USAddress/ZIPCd | ServicesServicesDesc | CompensationCompensationAmt | Address Line2ContractorAddress/USAddress/AddressLine2Txt |
|---|---|---|---|---|---|---|
| VERTEX PHARMACEUTICALS INC | ||||||
| 50 NORTHERN AVE | BOSTON | MA | 02210 | CONTRACTED RESEARCH | $12,500,000 | |
| Prime Medicine Inc | ||||||
| 21 Erie Street | Cambridge | MA | 02139 | Contracted Research | $6,000,000 | |
| ANAGRAM THERAPEUTICS INC | ||||||
| 10 SPEEN ST STE 302 | FRAMINGHAM | MA | 01701 | CONTRACTED RESEARCH | $5,500,000 | |
| PIONEERING MEDICINE (CF) | ||||||
| LLC 55 CAMBRIDGE PKWY STE 800E | CAMBRIDGE | MA | 02142 | CONTRACTED RESEARCH | $5,211,571 | |
| Slalom LLC | ||||||
| 821 2ND AVE | SEATTLE | WA | 98104 | Technology Consulting | $3,656,673 | SUITE 1900 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 125 | CntrctRcvdGreaterThan100KCnt |
| Federated Campaigns | $220,756 | FederatedCampaignsAmt |
| Fundraising | $52,860,455 | FundraisingAmt |
| All Other Contributions | $42,811,049 | AllOtherContributionsAmt |
| Noncash Contributions | $8,777,057 | NoncashContributionsAmt |
| Total Contributions | $95,892,260 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp (2 entries)
| DescDesc | BusinessBusinessCd | Total Revenue ColumnTotalRevenueColumnAmt | Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt |
|---|---|---|---|
| SCIENTIFIC CONFERENCE | 611600 | $3,015,236 | $3,015,236 |
| DATA SAFETY MONITORING BOARD REVENUE | 541900 | $257,500 | $257,500 |
Total Oth Program Service Rev TotalOthProgramServiceRevGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $0 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $0 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $3,272,736 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $86,902,027 | TotalRevenueColumnAmt |
| Unrelated Business Revenue | $35,543,466 | UnrelatedBusinessRevenueAmt |
| Exclusion | $51,358,561 | ExclusionAmt |
Royalties Revenue RoyaltiesRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $12,346,115 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $339,998 | RelatedOrExemptFuncIncomeAmt |
| Exclusion | $12,006,117 | ExclusionAmt |
Rental Income Or Loss RentalIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Real | $0 | RealAmt |
| Personal | $0 | PersonalAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $1,636,572,899 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $1,492,150,032 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $144,422,867 | SecuritiesAmt |
| Other | $0 | OtherAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $144,422,865 | TotalRevenueColumnAmt |
| Exclusion | $144,422,865 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $15,278,137 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $52,860,455 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $15,278,137 | FundraisingDirectExpensesAmt |
| Gaming Gross Income | $16,130 | GamingGrossIncomeAmt |
| Gaming Direct Expenses | $11,599 | GamingDirectExpensesAmt |
Net Income From Gaming NetIncomeFromGamingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $4,531 | TotalRevenueColumnAmt |
| Exclusion | $4,531 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Sales Of Inventory | $0 | GrossSalesOfInventoryAmt |
| Cost Of Goods Sold | $0 | CostOfGoodsSoldAmt |
Other Revenue Misc OtherRevenueMiscGrp (3 entries)
| DescDesc | BusinessBusinessCd | Total Revenue ColumnTotalRevenueColumnAmt | Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt | Unrelated Business RevenueUnrelatedBusinessRevenueAmt | ExclusionExclusionAmt |
|---|---|---|---|---|---|
| REFUNDED OR CANCELLED GRANTS | 900099 | $12,822,451 | $12,822,451 | $0 | $0 |
| OTHER MISCELLANEOUS REVENUE | 900099 | $135,335 | $0 | $0 | $135,335 |
| $0 | $0 | $0 | $0 |
Miscellaneous Revenue MiscellaneousRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $0 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $0 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $12,957,786 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $355,798,320 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $16,435,185 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $35,543,466 | UnrelatedBusinessRevenueAmt |
| Exclusion | $207,927,409 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $189,712,483 | TotalAmt |
| Program Services | $189,712,483 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $648,911 | TotalAmt |
| Program Services | $648,911 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $11,655,772 | TotalAmt |
| Program Services | $11,655,772 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $7,377,657 | TotalAmt |
| Program Services | $4,454,463 | ProgramServicesAmt |
| Management And General | $2,668,623 | ManagementAndGeneralAmt |
| Fundraising | $254,571 | FundraisingAmt |
Comp Disqual Persons CompDisqualPersonsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $109,686 | TotalAmt |
| Program Services | $104,204 | ProgramServicesAmt |
| Management And General | $5,482 | ManagementAndGeneralAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $103,316,517 | TotalAmt |
| Program Services | $54,900,056 | ProgramServicesAmt |
| Management And General | $29,590,592 | ManagementAndGeneralAmt |
| Fundraising | $18,825,869 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $7,591,804 | TotalAmt |
| Program Services | $4,101,309 | ProgramServicesAmt |
| Management And General | $2,061,086 | ManagementAndGeneralAmt |
| Fundraising | $1,429,409 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $18,310,800 | TotalAmt |
| Program Services | $9,380,238 | ProgramServicesAmt |
| Management And General | $4,628,915 | ManagementAndGeneralAmt |
| Fundraising | $4,301,647 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $7,042,399 | TotalAmt |
| Program Services | $3,771,085 | ProgramServicesAmt |
| Management And General | $1,903,150 | ManagementAndGeneralAmt |
| Fundraising | $1,368,164 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $610,499 | TotalAmt |
| Program Services | $289,235 | ProgramServicesAmt |
| Management And General | $298,573 | ManagementAndGeneralAmt |
| Fundraising | $22,691 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $515,914 | TotalAmt |
| Program Services | $1,624 | ProgramServicesAmt |
| Management And General | $514,290 | ManagementAndGeneralAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $840,554 | TotalAmt |
| Program Services | $840,554 | ProgramServicesAmt |
Fees For Services Prof Fundraising FeesForServicesProfFundraising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $353,500 | TotalAmt |
| Fundraising | $353,500 | FundraisingAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,153,831 | TotalAmt |
| Management And General | $3,153,831 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $7,184,578 | TotalAmt |
| Program Services | $4,934,416 | ProgramServicesAmt |
| Management And General | $2,250,162 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $120,179 | TotalAmt |
| Program Services | $92,759 | ProgramServicesAmt |
| Management And General | $8,774 | ManagementAndGeneralAmt |
| Fundraising | $18,646 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $5,517,115 | TotalAmt |
| Program Services | $2,991,090 | ProgramServicesAmt |
| Management And General | $527,317 | ManagementAndGeneralAmt |
| Fundraising | $1,998,708 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $14,237,632 | TotalAmt |
| Program Services | $8,180,444 | ProgramServicesAmt |
| Management And General | $3,420,824 | ManagementAndGeneralAmt |
| Fundraising | $2,636,364 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $7,667,521 | TotalAmt |
| Program Services | $4,585,375 | ProgramServicesAmt |
| Management And General | $1,566,658 | ManagementAndGeneralAmt |
| Fundraising | $1,515,488 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,562,131 | TotalAmt |
| Program Services | $1,484,177 | ProgramServicesAmt |
| Management And General | $554,960 | ManagementAndGeneralAmt |
| Fundraising | $522,994 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $11,407,805 | TotalAmt |
| Program Services | $9,210,895 | ProgramServicesAmt |
| Management And General | $861,488 | ManagementAndGeneralAmt |
| Fundraising | $1,335,422 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,645,604 | TotalAmt |
| Program Services | $1,882,652 | ProgramServicesAmt |
| Management And General | $455,272 | ManagementAndGeneralAmt |
| Fundraising | $307,680 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $792,595 | TotalAmt |
| Program Services | $504,491 | ProgramServicesAmt |
| Management And General | $258,372 | ManagementAndGeneralAmt |
| Fundraising | $29,732 | FundraisingAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| CONTRACTED RESEARCH | $31,692,660 | $31,692,660 | ||
| Other Taxes and Fees | $2,124,394 | $555,746 | $1,498,875 | $69,773 |
| TRAINING | $759,753 | $409,381 | $269,835 | $80,537 |
| Miscellaneous | $713,382 | $186,622 | $503,330 | $23,430 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $473,243 | TotalAmt |
| Program Services | $138,723 | ProgramServicesAmt |
| Management And General | $318,976 | ManagementAndGeneralAmt |
| Fundraising | $15,544 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $439,138,919 | TotalAmt |
| Program Services | $346,709,365 | ProgramServicesAmt |
| Management And General | $57,319,385 | ManagementAndGeneralAmt |
| Fundraising | $35,110,169 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $20,000 | BOYAmt |
| EOY | $20,000 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $109,087,327 | BOYAmt |
| EOY | $93,127,571 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $15,055,739 | BOYAmt |
| EOY | $15,058,913 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $22,382,858 | BOYAmt |
| EOY | $20,660,450 | EOYAmt |
Receivables From Officers Etc ReceivablesFromOfficersEtcGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Inventories For Sale Or Use InventoriesForSaleOrUseGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $206,966 | BOYAmt |
| EOY | $126,801 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,831,329 | BOYAmt |
| EOY | $5,773,137 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $35,602,656 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $25,873,408 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $8,863,037 | BOYAmt |
| EOY | $9,729,248 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,705,339,108 | BOYAmt |
| EOY | $2,761,100,818 | EOYAmt |
Investments Other Securities InvestmentsOtherSecuritiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,764,791,266 | BOYAmt |
| EOY | $1,928,159,315 | EOYAmt |
Investments Program Related InvestmentsProgramRelatedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $88,133,200 | BOYAmt |
| EOY | $99,228,437 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $167,210,292 | BOYAmt |
| EOY | $53,237,697 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,885,921,122 | BOYAmt |
| EOY | $4,986,222,387 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $37,939,543 | BOYAmt |
| EOY | $39,199,190 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $226,220,440 | BOYAmt |
| EOY | $228,373,004 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,685,701 | BOYAmt |
| EOY | $2,877,223 | EOYAmt |
Loans From Officers Directors LoansFromOfficersDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $26,119,138 | BOYAmt |
| EOY | $22,148,464 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $292,964,822 | BOYAmt |
| EOY | $292,597,881 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,576,101,051 | BOYAmt |
| EOY | $4,673,524,731 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $16,855,249 | BOYAmt |
| EOY | $20,099,775 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,592,956,300 | BOYAmt |
| EOY | $4,693,624,506 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,885,921,122 | BOYAmt |
| EOY | $4,986,222,387 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$83,340,599 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $184,008,805 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | false | AccountantCompileOrReviewInd |
| FS Audited | Yes (true) | FSAuditedInd |
| Audit Committee | Yes (true) | AuditCommitteeInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $73,199,355 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $86,536,159 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $97,948,958 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $86,607,373 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $95,892,261 | CurrentTaxYearAmt |
| Total | $440,184,106 | TotalAmt |
Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $73,199,355 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $86,536,159 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $97,948,958 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $86,607,373 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $95,892,261 | CurrentTaxYearAmt |
| Total | $440,184,106 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $0 | SubstantialContributorsTotAmt |
| Public Support Total170 | $440,184,106 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $95,019,118 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $74,598,441 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $75,903,369 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $88,665,749 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $98,908,144 | CurrentTaxYearAmt |
| Total | $433,094,821 | TotalAmt |
Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $9,386,514 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $6,491,041 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $12,503,243 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $14,646,633 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $15,429,604 | CurrentTaxYearAmt |
| Total | $58,457,035 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $931,735,962 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $56,595,821 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.47243 | PublicSupportCY170Pct |
| Public Support PY170 | 0.48114 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Form990 Schedule A Part VI Form990ScheduleAPartVIGrp (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Schedule A, Part II, Line 12 THE CF FOUNDATION HAS PROVIDED GROSS RECEIPTS FROM RELATED ACTIVITIES. | THE CF FOUNDATION HAS INCLUDED REGISTRATION FEES FROM THE ANNUAL SCIENTIFIC CONFERENCE THAT IT HOSTS, THE NORTH AMERICAN CYSTIC FIBROSIS CONFERENCE ("NACFC"). NACFC BRINGS TOGETHER SCIENTISTS, CLINICIANS, AND CAREGIVERS TO SHARE THIER CF RESEARCH AND EXPERIENCES. THE CF FOUNDATION HAS ALSO INCLUDED REIMBURSEMENTS FOR COSTS RELATED TO THE DATA SAFETY MONITORING BOARD AND PROTOCOL REVIEW COMMITTEE ON LINE 12. |
| Schedule A, Part II, Line 10 Other Income | DESCRIPTION - GROSS FUNDRAISING REVENUE, COLUMN A - 3754416.0, COLUMN B - 3443701.0, COLUMN C - 12338183.0, COLUMN D - 14594252.0, COLUMN E - 15278139.0, COLUMN F - 49408691.0; DESCRIPTION - GROSS GAMING REVENUE, COLUMN A - 89000.0, COLUMN B - 14800.0, COLUMN C - 106070.0, COLUMN D - 21710.0, COLUMN E - 16130.0, COLUMN F - 247710.0; DESCRIPTION - EMPLOYEE RETENTION CREDIT, COLUMN A - 2653151.0, COLUMN B - 3025780.0, COLUMN C - 0.0, COLUMN D - 0.0, COLUMN E - 0.0, COLUMN F - 5678931.0; DESCRIPTION - OTHER MISC. REVENUE, COLUMN A - 2889947.0, COLUMN B - 6760.0, COLUMN C - 58990.0, COLUMN D - 30671.0, COLUMN E - 135335.0, COLUMN F - 3121703.0; |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule C IRS990ScheduleC
| Field | Value | IRS element (for citing) |
|---|---|---|
| Volunteers | Yes (true) | VolunteersInd |
| Paid Staff Or Management | Yes (true) | PaidStaffOrManagementInd |
| Media Advertisements | false | MediaAdvertisementsInd |
| Mailings Members | false | MailingsMembersInd |
| Publications Or Broadcast | Yes (true) | PublicationsOrBroadcastInd |
| Publications Or Broadcast | $1,117 | PublicationsOrBroadcastAmt |
| Grants Other Organizations | false | GrantsOtherOrganizationsInd |
| Direct Contact Legislators | Yes (true) | DirectContactLegislatorsInd |
| Direct Contact Legislators | $1,718,977 | DirectContactLegislatorsAmt |
| Rallies Demonstrations | false | RalliesDemonstrationsInd |
| Other Activities | Yes (true) | OtherActivitiesInd |
| Other Activities | $11,637 | OtherActivitiesAmt |
| Total Lobbying Expenditures | $1,731,731 | TotalLobbyingExpendituresAmt |
| Not Described Section501c3 | false | NotDescribedSection501c3Ind |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Schedule C, Part II-B, Line 1 DETAILED DESCRIPTION OF THE LOBBYING ACTIVITY | FormAndLineReferenceDesc |
| Explanation | THE CF FOUNDATION IS FOCUSED ON CURING CF AND ENSURING ALL PEOPLE WITH THE DISEASE HAVE THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES. IN ADDITION TO FUNDING CF RESEARCH, THE CF FOUNDATION ADVOCATES FOR POLICIES THAT SUPPORT BASIC, TRANSLATIONAL, AND CLINICAL RESEARCH, DRIVE THE DEVELOPMENT OF TREATMENTS FOR RARE DISEASES LIKE CF, AND PROMOTE ACCESS TO HIGH-QUALITY, SPECIALIZED CARE FOR EVERYONE LIVING WITH THE DISEASE. ADVOCACY ACTIVITIES INCLUDE MEETINGS WITH LAWMAKERS AND THEIR STAFF, EMAIL COMMUNICATION ENCOURAGING GRASSROOTS ADVOCATES TO CONTACT THEIR LEGISLATORS, ANNUAL EVENTS WHERE VOLUNTEERS MEET WITH MEMBERS OF CONGRESS TO DISCUSS ISSUES CRITICAL TO THE CF COMMUNITY, DEVELOPING WEB POSTS AND PUBLICATIONS TO REGULARLY UPDATE MEMBERS OF THE CF COMMUNITY OF RELEVANT LEGISLATION AND ENCOURAGE INDIVIDUALS TO TAKE ACTION, Making public statements on issues that directly impact the CF Community and Foundation, AND COMMUNICATING REGULARLY WITH FEDERAL LEGISLATORS AND AGENCIES. | ExplanationTxt |
Schedule D IRS990ScheduleD
Leasehold Improvements LeaseholdImprovementsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $6,656,489 | OtherCostOrOtherBasisAmt |
| Depreciation | $4,204,724 | DepreciationAmt |
| Book Value | $2,451,765 | BookValueAmt |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $28,946,167 | OtherCostOrOtherBasisAmt |
| Depreciation | $21,668,684 | DepreciationAmt |
| Book Value | $7,277,483 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $9,729,248 | TotalBookValueLandBuildingsAmt |
Other Securities OtherSecuritiesGrp (11 entries)
| DescDesc | Book ValueBookValueAmt | Method ValuationMethodValuationCd |
|---|---|---|
| Closely-held equity interests | ||
| Financial derivatives | ||
| PVT EQTY & OTHR ILLIQUID | ||
| OPPORTUNISTIC | ||
| GLOBAL PUBLIC EQUITY | ||
| PERPETUAL TRUSTS & OTHER | ||
| PERPETUAL TRUSTS | $4,504,202 | F |
| GLOBAL PUBLIC EQUITY | $94,046,759 | F |
| OPPORTUNISTIC | $456,083,030 | F |
| PVT EQTY & OTHR ILLIQUID | $1,326,700,948 | F |
| Credit | $46,824,376 | F |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Securities | $1,928,159,315 | TotalBookValueSecuritiesAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp (3 entries)
| DescDesc | AmtAmt |
|---|---|
| Federal Income Taxes | |
| OPERATING LEASE LIABILITIES | |
| OPERATING LEASE LIABILITIES | $22,148,464 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $22,148,464 | TotalLiabilityAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $523,975,413 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $184,008,805 | NetUnrealizedGainsInvstAmt |
| Donated Services And Use Fclts | $343,639 | DonatedServicesAndUseFcltsAmt |
| Other Revenue | $0 | OtherRevenueAmt |
| Revenue Not Reported | $184,352,444 | RevenueNotReportedAmt |
| Revenue Subtotal | $339,622,969 | RevenueSubtotalAmt |
| Investment Expenses Not Incld | $16,175,351 | InvestmentExpensesNotIncldAmt |
| Other Revenues Not Included | $0 | OtherRevenuesNotIncludedAmt |
| Revenue Not Reported Fincl Stmt | $16,175,351 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $355,798,320 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $423,307,207 | TotExpnsEtcAuditedFinclStmtAmt |
| Donated Services Use Fclts | $343,639 | DonatedServicesUseFcltsAmt |
| Other Expenses Included | $0 | OtherExpensesIncludedAmt |
| Expenses Not Reported | $343,639 | ExpensesNotReportedAmt |
| Expenses Subtotal | $422,963,568 | ExpensesSubtotalAmt |
| Investment Expenses Not Incld2 | $16,175,351 | InvestmentExpensesNotIncld2Amt |
| Other Expenses Not Included | $0 | OtherExpensesNotIncludedAmt |
| Expenses Not Rpt Fincl Stmt | $16,175,351 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $439,138,919 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Schedule D, Part X, Line 2 FIN 48 (ASC 740) footnote | FormAndLineReferenceDesc |
| Explanation | The Foundation is a not-for-profit voluntary health organization exempt from Federal income taxes under Section 501(c)(3) of the Internal Revenue Code (the Code) and from state taxes and has been classified as an organization that is not a private foundation under Section 509(a) of the Code. The Foundation does not have a material unrelated business income tax liability as of December 31, 2024 and 2023. Contributions to the Foundation qualify for the charitable contributions deduction to the extent provided by Section 170 of the Code. The Foundation is not aware of any tax position taken that requires disclosure based on current facts and circumstances. The Foundation annually reviews its tax positions and has determined that there are no material uncertain tax positions that require recognition or disclosure in the financial statements. In 2024, the Foundation began separately reporting unrelated business income tax expense within the other changes in net assets section of the statement of activities. This expense was previously reported within net nonoperating investment income. This change in presentation is due to the increase in unrelated business income tax expense generated by certain alternative investments. | ExplanationTxt |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (14 entries)
| RegionRegionTxt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Specific Services ProvidedSpecificServicesProvidedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|---|
| Central America and the Caribbean | Investments | NONE | $780,922,982 |
| East Asia and the Pacific | Investments | NONE | $79,983,461 |
| East Asia and the Pacific | Grantmaking | NONE | $532,103 |
| East Asia and the Pacific | Program Services | CONTRACTED RESEARCH | $207,000 |
| Europe (Including Iceland and Greenland) | Grantmaking | NONE | $7,778,176 |
| Europe (Including Iceland and Greenland) | Investments | NONE | $132,126,305 |
| Europe (Including Iceland and Greenland) | Mission Related Investments | NONE | $5,412,733 |
| Europe (Including Iceland and Greenland) | Program Services | CONTRACTED RESEARCH | $58,305 |
| Middle East and North Africa | Grantmaking | NONE | $140,000 |
| Middle East and North Africa | Investments | NONE | $999,645 |
| Middle East and North Africa | Mission Related Investments | NONE | $18,213,731 |
| North America (Canada & Mexico only) | Grantmaking | NONE | $3,205,493 |
| North America (Canada & Mexico only) | Investments | NONE | $30,576,512 |
| South Asia | Program Services | CONTRACTED RESEARCH | $290,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continuation Total Office | 0 | ContinuationTotalOfficeCnt |
| Continuation Total Employee | 0 | ContinuationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $1,060,446,446 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $1,060,446,446 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (54 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt |
|---|---|---|---|
| East Asia and the Pacific | CLINICAL RESEARCH | $223,134 | Wire |
| East Asia and the Pacific | PILOT STUDY | $55,531 | Wire |
| East Asia and the Pacific | PILOT STUDY | $89,594 | Wire |
| East Asia and the Pacific | RESEARCH | $163,844 | Wire |
| East Asia and the Pacific | THERAPEUTICS DEVELOPMENT AWARD | $207,000 | Wire |
| Europe (Including Iceland and Greenland) | CLINICAL RESEARCH | $1,334,899 | Wire |
| Europe (Including Iceland and Greenland) | CLINICAL RESEARCH | $340,205 | Wire |
| Europe (Including Iceland and Greenland) | CLINICAL RESEARCH | $343,967 | Wire |
| Europe (Including Iceland and Greenland) | CLINICAL RESEARCH CENTER | $983,151 | Wire |
| Europe (Including Iceland and Greenland) | CLINICAL RESEARCH STUDY | $93,028 | Wire |
| Europe (Including Iceland and Greenland) | CLINICAL RESEARCH STUDY | $1,040,970 | Wire |
| Europe (Including Iceland and Greenland) | PILOT STUDY | $56,000 | Wire |
| Europe (Including Iceland and Greenland) | PILOT STUDY | $55,980 | Wire |
| Europe (Including Iceland and Greenland) | PILOT STUDY | $50,000 | Wire |
| Europe (Including Iceland and Greenland) | PILOT STUDY | $112,000 | Wire |
| Europe (Including Iceland and Greenland) | QUALITY IMPROVEMENT | $150,000 | Wire |
| Europe (Including Iceland and Greenland) | QUALITY IMPROVEMENT | $999,500 | Wire |
| Europe (Including Iceland and Greenland) | QUALITY IMPROVEMENT | $80,689 | Wire |
| Europe (Including Iceland and Greenland) | RESEARCH | $167,955 | Wire |
| Europe (Including Iceland and Greenland) | RESEARCH | $124,688 | Wire |
| Europe (Including Iceland and Greenland) | RESEARCH | $157,494 | Wire |
| Europe (Including Iceland and Greenland) | RESEARCH | $156,016 | Wire |
| Europe (Including Iceland and Greenland) | RESEARCH | $165,417 | Wire |
| Europe (Including Iceland and Greenland) | RESEARCH | $127,614 | Wire |
| Europe (Including Iceland and Greenland) | RESEARCH | $126,075 | Wire |
| Europe (Including Iceland and Greenland) | RESEARCH | $310,566 | Wire |
| Europe (Including Iceland and Greenland) | RESEARCH | $154,907 | Wire |
| Europe (Including Iceland and Greenland) | RESEARCH STUDY | $83,085 | Wire |
| Europe (Including Iceland and Greenland) | THERAPEUTICS DISCOVERY RESEARCH | $358,785 | Wire |
| Europe (Including Iceland and Greenland) | THERAPEUTICS DISCOVERY RESEARCH | $201,185 | Wire |
| Europe (Including Iceland and Greenland) | TRAINING | $4,000 | Wire |
| Europe (Including Iceland and Greenland) | THERAPEUTICS DEVELOPMENT AWARD | $58,305 | Wire |
| Middle East and North Africa | CLINICAL RESEARCH STUDY | $84,000 | Wire |
| Middle East and North Africa | PILOT STUDY | $56,000 | Wire |
| North America (Canada & Mexico only) | CLINICAL CARE RESEARCH | $332,511 | Wire |
| North America (Canada & Mexico only) | CLINICAL RESEARCH | $747,519 | Wire |
| North America (Canada & Mexico only) | CLINICAL RESEARCH CENTER | $42,860 | Wire |
| North America (Canada & Mexico only) | CLINICAL RESEARCH CENTER | $143,397 | Wire |
| North America (Canada & Mexico only) | CLINICAL RESEARCH STUDY | $169,145 | Wire |
| North America (Canada & Mexico only) | CLINICAL RESEARCH STUDY | $201,208 | Wire |
| North America (Canada & Mexico only) | CLINICAL RESEARCH STUDY | $168,000 | Wire |
| North America (Canada & Mexico only) | CLINICAL RESEARCH STUDY | $106,784 | Wire |
| North America (Canada & Mexico only) | PILOT STUDY | $56,000 | Wire |
| North America (Canada & Mexico only) | PILOT STUDY | $56,000 | Wire |
| North America (Canada & Mexico only) | PILOT STUDY | $55,300 | Wire |
| North America (Canada & Mexico only) | PILOT STUDY | $56,000 | Wire |
| North America (Canada & Mexico only) | PILOT STUDY | $111,760 | Wire |
| North America (Canada & Mexico only) | PILOT STUDY | $55,984 | Wire |
| North America (Canada & Mexico only) | QUALITY IMPROVEMENT | $67,116 | Wire |
| North America (Canada & Mexico only) | RESEARCH | $335,999 | Wire |
| North America (Canada & Mexico only) | RESEARCH | $157,560 | Wire |
| North America (Canada & Mexico only) | RESEARCH | $168,000 | Wire |
| North America (Canada & Mexico only) | RESEARCH | $167,350 | Wire |
| South Asia | THERAPEUTICS DEVELOPMENT AWARD | $290,000 | Wire |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 53 | Total501c3OrgCnt |
| Total Other Org | 3 | TotalOtherOrgCnt |
| Transfer To Foreign Corp | Yes (true) | TransferToForeignCorpInd |
| Interest In Foreign Trust | false | InterestInForeignTrustInd |
| Foreign Corp Ownership | Yes (true) | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | Yes (true) | PassiveForeignInvestmestCoInd |
| Foreign Partnership | Yes (true) | ForeignPartnershipInd |
| Boycott Countries | false | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Schedule F, Part I, Line 2 Procedures for monitoring use of grant funds | FormAndLineReferenceDesc |
| Explanation | THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANTS AWARDED TO ENTITIES OUTSIDE OF THE U.S. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE CF FOUNDATION AND THE SPONSORED INSTITUTION. SPONSORED INSITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE CF FOUNDATION'S SCIENTIFIC STAFF TO REVIEW PROGRESS, AND FINANCIAL REPORTS ARE REVIEWED BY GRANTS MANAGEMENT STAFF TO ENSURE FUNDS WERE USED AS INTENDED. THE FINAL GRANT PAYMENT IS TYPICALLY CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES AND THE FINAL SCIENTIFIC REPORT. | ExplanationTxt |
Schedule G IRS990ScheduleG
| Field | Value | IRS element (for citing) |
|---|---|---|
| Mail Solicitations | Yes (X) | MailSolicitationsInd |
| Email Solicitations | Yes (X) | EmailSolicitationsInd |
| Phone Solicitations | Yes (X) | PhoneSolicitationsInd |
| In Person Solicitations | Yes (X) | InPersonSolicitationsInd |
| Solicitation Of Non Govt Grants | Yes (X) | SolicitationOfNonGovtGrantsInd |
| Special Fundraising Events | Yes (X) | SpecialFundraisingEventsInd |
| Agrmt Prof Fundraising Acty | Yes (true) | AgrmtProfFundraisingActyInd |
Fundraiser Activity Info FundraiserActivityInfoGrp (3 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | ActivityActivityTxt | Fundraiser Control Of FundsFundraiserControlOfFundsInd | Gross ReceiptsGrossReceiptsAmt | Retained By ContractorRetainedByContractorAmt | Net To OrganizationNetToOrganizationAmt |
|---|---|---|---|---|---|---|---|---|
| LAUTMAN MASKA NEILL & COMPANY | ||||||||
| 1730 RHODE ISLAND AVE NW | WASHINGTON | FM | 20036 | MAIL COUNSEL | false | $11,672,048 | $228,000 | $11,444,048 |
| Graham Pelton | ||||||||
| 39 Beechwood Road | Summit | NJ | 07901 | Fundraising advisory | false | $100,000 | -$100,000 | |
| Allen Balik | ||||||||
| 1 Canopy Lane | Napa | CA | 94558 | Fundraising advisory | false | $25,500 | -$25,500 | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Gross Receipts | $11,672,048 | TotalGrossReceiptsAmt |
| Total Retained By Contractors | $353,500 | TotalRetainedByContractorsAmt |
| Total Net To Organization | $11,318,548 | TotalNetToOrganizationAmt |
| Licensed States | CA | LicensedStatesCd |
| Licensed States | CO | LicensedStatesCd |
| Licensed States | CT | LicensedStatesCd |
| Licensed States | DE | LicensedStatesCd |
| Licensed States | FL | LicensedStatesCd |
| Licensed States | GA | LicensedStatesCd |
| Licensed States | AL | LicensedStatesCd |
| Licensed States | HI | LicensedStatesCd |
| Licensed States | ID | LicensedStatesCd |
| Licensed States | IL | LicensedStatesCd |
| Licensed States | IN | LicensedStatesCd |
| Licensed States | IA | LicensedStatesCd |
| Licensed States | KS | LicensedStatesCd |
| Licensed States | KY | LicensedStatesCd |
| Licensed States | LA | LicensedStatesCd |
| Licensed States | ME | LicensedStatesCd |
| Licensed States | AK | LicensedStatesCd |
| Licensed States | MD | LicensedStatesCd |
| Licensed States | MA | LicensedStatesCd |
| Licensed States | MI | LicensedStatesCd |
| Licensed States | MN | LicensedStatesCd |
| Licensed States | MS | LicensedStatesCd |
| Licensed States | MO | LicensedStatesCd |
| Licensed States | MT | LicensedStatesCd |
| Licensed States | NE | LicensedStatesCd |
| Licensed States | NV | LicensedStatesCd |
| Licensed States | NH | LicensedStatesCd |
| Licensed States | NJ | LicensedStatesCd |
| Licensed States | NM | LicensedStatesCd |
| Licensed States | NY | LicensedStatesCd |
| Licensed States | NC | LicensedStatesCd |
| Licensed States | ND | LicensedStatesCd |
| Licensed States | OH | LicensedStatesCd |
| Licensed States | OK | LicensedStatesCd |
| Licensed States | OR | LicensedStatesCd |
| Licensed States | PA | LicensedStatesCd |
| Licensed States | AZ | LicensedStatesCd |
| Licensed States | RI | LicensedStatesCd |
| Licensed States | SC | LicensedStatesCd |
| Licensed States | SD | LicensedStatesCd |
| Licensed States | TN | LicensedStatesCd |
| Licensed States | TX | LicensedStatesCd |
| Licensed States | UT | LicensedStatesCd |
| Licensed States | VT | LicensedStatesCd |
| Licensed States | VA | LicensedStatesCd |
| Licensed States | AR | LicensedStatesCd |
| Licensed States | WA | LicensedStatesCd |
| Licensed States | WV | LicensedStatesCd |
| Licensed States | WI | LicensedStatesCd |
| Licensed States | WY | LicensedStatesCd |
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | Ski Event | Event1Nm |
| Gross Receipts Event1 | $2,598,020 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $652,851 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $1,945,169 | GrossRevenueEvent1Amt |
| Non Cash Prizes Event1 | $837 | NonCashPrizesEvent1Amt |
| Rent Facility Costs Event1 | $1,061,676 | RentFacilityCostsEvent1Amt |
| Food And Beverage Event1 | $473,265 | FoodAndBeverageEvent1Amt |
| Entertainment Event1 | $38,066 | EntertainmentEvent1Amt |
| Other Direct Expenses Event1 | $371,325 | OtherDirectExpensesEvent1Amt |
| Event2 | Atlanta Walk | Event2Nm |
| Gross Receipts Event2 | $2,362,136 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $2,272,671 | CharitableContriEvent2Amt |
| Gross Revenue Event2 | $89,465 | GrossRevenueEvent2Amt |
| Non Cash Prizes Event2 | $629 | NonCashPrizesEvent2Amt |
| Rent Facility Costs Event2 | $21,729 | RentFacilityCostsEvent2Amt |
| Food And Beverage Event2 | $27,866 | FoodAndBeverageEvent2Amt |
| Entertainment Event2 | $1,250 | EntertainmentEvent2Amt |
| Other Direct Expenses Event2 | $37,991 | OtherDirectExpensesEvent2Amt |
| Other Events Total | 748 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $63,178,436 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $49,934,933 | CharitableContriOtherEventsAmt |
| Gross Revenue Other Events | $13,243,503 | GrossRevenueOtherEventsAmt |
| Non Cash Prizes Other Events | $76,347 | NonCashPrizesOtherEventsAmt |
| Rent Fclty Costs Other Events | $6,110,984 | RentFcltyCostsOtherEventsAmt |
| Food And Beverage Other Events | $3,355,826 | FoodAndBeverageOtherEventsAmt |
| Entertainment Other Events | $505,762 | EntertainmentOtherEventsAmt |
| Oth Direct Expnss Other Events | $3,194,584 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $68,138,592 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $52,860,455 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $15,278,137 | GrossRevenueTotalEventsAmt |
| Non Cash Prizes Total Events | $77,813 | NonCashPrizesTotalEventsAmt |
| Rent Fclty Costs Total Events | $7,194,389 | RentFcltyCostsTotalEventsAmt |
| Food And Beverage Total Events | $3,856,957 | FoodAndBeverageTotalEventsAmt |
| Entertainment Total Events | $545,078 | EntertainmentTotalEventsAmt |
| Oth Direct Expnss Total Events | $3,603,900 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $15,278,137 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | $0 | NetIncomeSummaryAmt |
Gaming Information GamingInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Volunteer Labor Bingo | 0 | VolunteerLaborBingoPct |
| Volunteer Labor Pull Tabs | 0 | VolunteerLaborPullTabsPct |
| Gross Revenue Other Gaming | $16,130 | GrossRevenueOtherGamingAmt |
| Non Cash Prizes Other Gaming | $11,599 | NonCashPrizesOtherGamingAmt |
| Volunteer Labor Other Gaming | Yes (true) | VolunteerLaborOtherGamingInd |
| Volunteer Labor Other Gaming | 0.85 | VolunteerLaborOtherGamingPct |
| Gross Revenue Total Gaming | $16,130 | GrossRevenueTotalGamingAmt |
| Non Cash Prizes Total Gaming | $11,599 | NonCashPrizesTotalGamingAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| States Where Gaming Conducted | NH | StatesWhereGamingConductedCd |
| Licensed | false | LicensedInd |
| Explanation If No | LICENSING WAS NOT REQUIRED FOR THE EVENT HELD IN THIS STATE. | ExplanationIfNoTxt |
| License Suspended Etc | false | LicenseSuspendedEtcInd |
| Gaming With Nonmembers | false | GamingWithNonmembersInd |
| Member Of Other Entity | false | MemberOfOtherEntityInd |
| Gaming Own Facility | 0.0 | GamingOwnFacilityPct |
| Gaming Other Facility | 1.0 | GamingOtherFacilityPct |
| Individual With Books | CYSTIC FIBROSIS FOUNDATION | IndividualWithBooksNm |
Persons With Books US Address PersonsWithBooksUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 4550 MONTGOMERY AVE SUITE 1100N | AddressLine1Txt |
| City | BETHESDA | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 20814 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct With3rd Prty For Game Rev | false | CntrctWith3rdPrtyForGameRevInd |
| Charitable Distribution Rqr | false | CharitableDistributionRqrInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Schedule G, Part IV | FormAndLineReferenceDesc |
| Explanation | 1. LAUTMAN MASKA NEIL & COMPANY: OUR PARTNERSHIP WITH LAUTMAN IS AIMED AT BOLSTERING FUNDRAISING FOR OUR ANNUAL FUND PROGRAM WHICH GENERATES NEARLY $12 MILLION IN DONATIONS EACH YEAR. OUR ANNUAL FUND APPEALS, 65 ROSES CLUB MONTHLY GIVING PROGRAM, GIVINGTUESDAY CAMPAIGN, AND CHAPTER AND YEAR END GIVING EFFORTS ARE ALL EXAMPLES OF FUNDRAISING ACTIVITIES STRENGTHENED BY OUR PARTNERSHIP WITH LAUTMAN. 2. GRAHAM PELTON: WE HAVE PARTNERED WITH GRAHAM PELTON, A NATIONALLY RECOGNIZED FUNDRAISING AND NONPROFIT MANAGEMENT FIRM, TO HELP CONDUCT A THOROUGH ASSESSMENT OF OUR COMPREHENSIVE FUNDRAISING ACTIVITIES. THEY WILL ASSIST IN SHAPING OUR FUNDRAISING PROGRAM WITH THE ULTIMATE GOAL OF RAISING THE FUNDS NEEDED TO ADVANCE OUR MISSION. 3. ALLEN BALIK: WITH HIS EXTENSIVE EXPERIENCE IN THE WINE INDUSTRY, MR. BALIK HAS BEEN ENGAGED TO PROVIDE STRATEGIC AND LOGISTICAL COUNSEL ON THE CF FOUNDATION'S WINEMASTERS FUNDRAISING EVENT. | ExplanationTxt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (624 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt | Business Name Line2RecipientBusinessName/BusinessNameLine2Txt |
|---|---|---|---|---|---|---|---|---|
| Advocate Charitable Foundation | ||||||||
| 2025 Windsor Dr | Oak Brook | IL | 60523 | 363297360 | 501C(3) | $43,047 | ADULT CARE | |
| Advocate Charitable Foundation | ||||||||
| 363297360 | 501C(3) | $204,730 | CF CARE CENTER | |||||
| Albany Medical College | ||||||||
| 141338310 | 501c(3) | $202,590 | CF CARE CENTER | |||||
| Albert Einstein College of Medicine | ||||||||
| 830621846 | 501C(3) | $56,000 | PILOT STUDY | |||||
| All Children's Research Institute Inc | ||||||||
| 592481742 | 501c(3) | $168,372 | CLINICAL RESEARCH CENTER | |||||
| Ann & Robert H Lurie Children's Hospital of Chicago | ||||||||
| 362170833 | 501c(3) | $56,172 | ADULT CARE | |||||
| Ann & Robert H Lurie Children's Hospital of Chicago | ||||||||
| 362170833 | 501c(3) | $173,000 | CF CARE CENTER | |||||
| Ann & Robert H Lurie Children's Hospital of Chicago | ||||||||
| 362170833 | 501c(3) | $111,237 | CLINICAL RESEARCH CENTER | |||||
| Ann & Robert H Lurie Children's Hospital of Chicago | ||||||||
| 362170833 | 501c(3) | $130,000 | RESEARCH | |||||
| Ann & Robert H Lurie Children's Hospital of Chicago | ||||||||
| 362170833 | 501c(3) | $134,000 | TRAINING | |||||
| Arkansas Children's Hospital Research Institute Inc | ||||||||
| 710694931 | 501C(3) | $162,520 | CF CARE CENTER | |||||
| Arkansas Children's Hospital Research Institute Inc | ||||||||
| 710694931 | 501C(3) | $49,999 | CLINICAL RESEARCH STUDY | |||||
| Ascension Seton | ||||||||
| 741109643 | 501c(3) | $394,953 | CF CARE CENTER | |||||
| Ascension Seton | ||||||||
| 741109643 | 501c(3) | $105,526 | CLINICAL RESEARCH CENTER | |||||
| Ascension Seton | ||||||||
| 741109643 | 501c(3) | $55,999 | QUALITY IMPROVEMENT | |||||
| Atlantic Health System Inc | ||||||||
| 521958352 | 501c(3) | $190,338 | CF CARE CENTER | |||||
| Atlantic Health System Inc | ||||||||
| 521958352 | 501c(3) | $104,622 | CLINICAL RESEARCH CENTER | |||||
| Atrium Health Foundation | ||||||||
| 566060481 | 501C(3) | $36,960 | ADULT CARE | |||||
| Atrium Health Foundation | ||||||||
| 566060481 | 501C(3) | $344,313 | CF CARE CENTER | |||||
| Augusta University Research Institute Inc | ||||||||
| 581418202 | 501c(3) | $220,173 | CF CARE CENTER | |||||
| Augusta University Research Institute Inc | ||||||||
| 581418202 | 501c(3) | $92,128 | CLINICAL RESEARCH CENTER | |||||
| Augusta University Research Institute Inc | ||||||||
| 581418202 | 501c(3) | $84,000 | QUALITY IMPROVEMENT | |||||
| Baylor College of Medicine | ||||||||
| 741613878 | 501c(3) | $19,455 | ADHERENCE | |||||
| Baylor College of Medicine | ||||||||
| 741613878 | 501c(3) | $575,049 | CF CARE CENTER | |||||
| Baylor College of Medicine | ||||||||
| 741613878 | 501c(3) | $197,668 | CLINICAL RESEARCH CENTER | |||||
| Baylor College of Medicine | ||||||||
| 741613878 | 501c(3) | $16,663 | CLINICAL RESEARCH STUDY | |||||
| Baylor Scott & White Health | ||||||||
| 463131350 | 501C(3) | $123,310 | CF CARE CENTER | |||||
| Baystate Medical Center Inc | ||||||||
| 042790311 | 501C(3) | $63,210 | CF CARE CENTER | |||||
| Baystate Medical Center Inc | ||||||||
| 042790311 | 501C(3) | $66,990 | TRAINING | |||||
| Benaroya Research Institute at Virginia Mason | ||||||||
| 910653422 | 501C(3) | $166,387 | RESEARCH | |||||
| Beth Israel Deaconess Medical Center Inc | ||||||||
| 042103881 | 501c(3) | $57,780 | CLINICAL RESEARCH | |||||
| Billings Clinic Foundation | ||||||||
| 810407289 | 501C(3) | $181,940 | CF CARE CENTER | |||||
| Billings Clinic Foundation | ||||||||
| 810407289 | 501C(3) | $72,333 | CLINICAL RESEARCH CENTER | |||||
| Board of Regents of the University of Nebraska | ||||||||
| 470049123 | 501c(3) | $442,698 | CF CARE CENTER | |||||
| Board of Regents of the University of Nebraska | ||||||||
| 470049123 | 501c(3) | $120,718 | CLINICAL RESEARCH CENTER | |||||
| Board of Regents of the University of Oklahoma Health Sciences Center | ||||||||
| 731563627 | 501C(3) | $281,890 | CF CARE CENTER | |||||
| Board of Regents of the University of Oklahoma Health Sciences Center | ||||||||
| 731563627 | 501C(3) | $127,019 | CLINICAL RESEARCH CENTER | |||||
| Board of Regents of the University of Oklahoma Health Sciences Center | ||||||||
| 731563627 | 501C(3) | $10,000 | TRAINING | |||||
| Board of Regents of the University of Wisconsin System | ||||||||
| 396006492 | IRC 115 | $223,862 | ADHERENCE | |||||
| Board of Regents of the University of Wisconsin System | ||||||||
| 396006492 | IRC 115 | $389,501 | CF CARE CENTER | |||||
| Board of Regents of the University of Wisconsin System | ||||||||
| 396006492 | IRC 115 | $180,190 | CLINICAL RESEARCH CENTER | |||||
| Board of Trustees of Michigan State University | ||||||||
| 386005984 | 501C(3) | $33,974 | ADULT CARE | |||||
| Board of Trustees of Michigan State University | ||||||||
| 386005984 | 501C(3) | $149,385 | CF CARE CENTER | |||||
| Board of Trustees of Michigan State University | ||||||||
| 386005984 | 501C(3) | $119,499 | THERAPEUTICS DISCOVERY RESEARCH | |||||
| Board of Trustees of Southern Illinois University | ||||||||
| 376005961 | 501C(3) | $43,576 | CF CARE CENTER | |||||
| Board of Trustees of the Leland Stanford Junior University | ||||||||
| 941156365 | 501c(3) | $23,520 | ADHERENCE | |||||
| Board of Trustees of the Leland Stanford Junior University | ||||||||
| 941156365 | 501c(3) | $143,516 | ADULT CARE | |||||
| Board of Trustees of the Leland Stanford Junior University | ||||||||
| 941156365 | 501c(3) | $376,770 | CF CARE CENTER | |||||
| Board of Trustees of the Leland Stanford Junior University | ||||||||
| 941156365 | 501c(3) | $217,172 | CLINICAL CARE RESEARCH | |||||
| Board of Trustees of the Leland Stanford Junior University | ||||||||
| 941156365 | 501c(3) | $138,650 | CLINICAL RESEARCH CENTER | |||||
| Board of Trustees of the Leland Stanford Junior University | ||||||||
| 941156365 | 501c(3) | $27,604 | QUALITY IMPROVEMENT | |||||
| Board of Trustees of the Leland Stanford Junior University | ||||||||
| 941156365 | 501c(3) | $418,000 | RESEARCH | |||||
| Board of Trustees of the Leland Stanford Junior University | ||||||||
| 941156365 | 501c(3) | $152,000 | RESEARCH STUDY | |||||
| Board of Trustees of the Leland Stanford Junior University | ||||||||
| 941156365 | 501c(3) | $67,000 | TRAINING | |||||
| Boston Children's Health Physicians LLP | ||||||||
| 133956599 | LLP | $227,920 | CF CARE CENTER | |||||
| Boston Children's Health Physicians LLP | ||||||||
| 133956599 | LLP | $129,900 | CLINICAL RESEARCH CENTER | |||||
| Brigham and Women's Hospital Inc | ||||||||
| 042312909 | 501C(3) | $170,755 | PILOT STUDY | |||||
| Brigham and Women's Hospital Inc | ||||||||
| 042312909 | 501C(3) | $76,000 | RESEARCH STUDY | |||||
| Brigham and Women's Hospital Inc | ||||||||
| 042312909 | 501C(3) | $130,601 | TRAINING | |||||
| CAMC Health Education and Research Institute Inc | ||||||||
| 550753754 | 501C(3) | $93,620 | CF CARE CENTER | |||||
| Carnegie Mellon University | ||||||||
| 250969449 | 501C(3) | $50,000 | CLINICAL RESEARCH STUDY | |||||
| Carnegie Mellon University | ||||||||
| 250969449 | 501C(3) | $56,000 | PILOT STUDY | |||||
| Carnegie Mellon University | ||||||||
| 250969449 | 501C(3) | $110,000 | RESEARCH STUDY | |||||
| Case Western Reserve University | ||||||||
| 341018992 | 501c(3) | $168,000 | CLINICAL RESEARCH CENTER | |||||
| Case Western Reserve University | ||||||||
| 341018992 | 501c(3) | $112,000 | PILOT STUDY | |||||
| Case Western Reserve University | ||||||||
| 341018992 | 501c(3) | $2,183,802 | RESEARCH | |||||
| Case Western Reserve University | ||||||||
| 341018992 | 501c(3) | $2,022,810 | RESEARCH CENTER | |||||
| Case Western Reserve University | ||||||||
| 341018992 | 501c(3) | $156,890 | RESEARCH STUDY | |||||
| Case Western Reserve University | ||||||||
| 341018992 | 501c(3) | $107,287 | TRAINING | |||||
| Cedars Sinai Medical Center | ||||||||
| 951644600 | 501c(3) | $112,000 | PILOT STUDY | |||||
| Cedars Sinai Medical Center | ||||||||
| 951644600 | 501c(3) | $586,000 | RESEARCH | |||||
| Cedars Sinai Medical Center | ||||||||
| 951644600 | 501c(3) | $250,000 | RESEARCH CENTER | |||||
| Cedars Sinai Medical Center | ||||||||
| 951644600 | 501c(3) | $151,000 | RESEARCH STUDY | |||||
| Cedars Sinai Medical Center | ||||||||
| 951644600 | 501c(3) | $224,000 | THERAPEUTICS DISCOVERY RESEARCH | |||||
| Center for Public Health Innovation | ||||||||
| 934703123 | 501C(3) | $299,118 | CLINICAL CARE RESEARCH | |||||
| Center for Public Health Innovation | ||||||||
| 934703123 | 501C(3) | $83,009 | QUALITY IMPROVEMENT | |||||
| Central Florida Pulmonary Group PA | ||||||||
| 591760017 | C CORP | $160,750 | CF CARE CENTER | |||||
| Central Florida Pulmonary Group PA | ||||||||
| 591760017 | C CORP | $72,188 | CLINICAL RESEARCH CENTER | |||||
| Chattanooga Hamilton County Hospital Authority | ||||||||
| 626000101 | 501C(3) | $82,670 | CF CARE CENTER | |||||
| Children's Health Care | ||||||||
| 411754276 | 501c(3) | $137,920 | CF CARE CENTER | |||||
| Children's Health Care | ||||||||
| 411754276 | 501c(3) | $132,508 | CLINICAL RESEARCH CENTER | |||||
| Children's Hospital Corporation | ||||||||
| 042774441 | 501c(3) | $1,738,647 | ADHERENCE | |||||
| Children's Hospital Corporation | ||||||||
| 042774441 | 501c(3) | $539,799 | CF CARE CENTER | |||||
| Children's Hospital Corporation | ||||||||
| 042774441 | 501c(3) | $931,134 | CLINICAL RESEARCH CENTER | |||||
| Children's Hospital Corporation | ||||||||
| 042774441 | 501c(3) | $716,089 | CLINICAL RESEARCH STUDY | |||||
| Children's Hospital Corporation | ||||||||
| 042774441 | 501c(3) | $111,998 | QUALITY IMPROVEMENT | |||||
| Children's Hospital Corporation | ||||||||
| 042774441 | 501c(3) | $436,054 | RESEARCH | |||||
| Children's Hospital Corporation | ||||||||
| 042774441 | 501c(3) | $75,000 | RESEARCH STUDY | |||||
| Children's Hospital Corporation | ||||||||
| 042774441 | 501c(3) | $134,000 | TRAINING | |||||
| Children's Hospital Los Angeles | ||||||||
| 951690977 | 501c(3) | $156,820 | CF CARE CENTER | |||||
| Children's Hospital Los Angeles | ||||||||
| 951690977 | 501c(3) | $119,481 | CLINICAL RESEARCH CENTER | |||||
| Children's Hospital Los Angeles | ||||||||
| 951690977 | 501c(3) | $50,000 | CLINICAL RESEARCH STUDY | |||||
| Children's Hospital Los Angeles | ||||||||
| 951690977 | 501c(3) | $298,964 | RESEARCH | |||||
| Children's Hospital Los Angeles | ||||||||
| 951690977 | 501c(3) | $200,099 | TRAINING | |||||
| Children's Hospital Medical Center | ||||||||
| 310833936 | 501c(3) | $33,593 | ADHERENCE | |||||
| Children's Hospital Medical Center | ||||||||
| 310833936 | 501c(3) | $210,850 | CF CARE CENTER | |||||
| Children's Hospital Medical Center | ||||||||
| 310833936 | 501c(3) | $352,110 | CLINICAL RESEARCH | |||||
| Children's Hospital Medical Center | ||||||||
| 310833936 | 501c(3) | $286,542 | CLINICAL RESEARCH CENTER | |||||
| Children's Hospital Medical Center | ||||||||
| 310833936 | 501c(3) | $317,070 | CLINICAL RESEARCH STUDY | |||||
| Children's Hospital Medical Center | ||||||||
| 310833936 | 501c(3) | $296,617 | QUALITY IMPROVEMENT | |||||
| Children's Hospital Medical Center | ||||||||
| 310833936 | 501c(3) | $547,992 | RESEARCH CENTER | |||||
| Children's Hospital Medical Center | ||||||||
| 310833936 | 501c(3) | $75,000 | RESEARCH STUDY | |||||
| Children's Hospital Medical Center | ||||||||
| 310833936 | 501c(3) | $267,321 | TRAINING | |||||
| Children's Hospital Medical Center of Akron | ||||||||
| 340714357 | 501c(3) | $36,523 | ADULT CARE | |||||
| Children's Hospital Medical Center of Akron | ||||||||
| 340714357 | 501c(3) | $255,580 | CF CARE CENTER | |||||
| Children's Hospital Medical Center of Akron | ||||||||
| 340714357 | 501c(3) | $138,421 | CLINICAL RESEARCH CENTER | |||||
| Children's Hospital of Orange County | ||||||||
| 952321786 | 501C(3) | $115,980 | CF CARE CENTER | |||||
| Children's Hospital of Orange County | ||||||||
| 952321786 | 501C(3) | $84,481 | CLINICAL RESEARCH CENTER | |||||
| Children's Hospital of Orange County | ||||||||
| 952321786 | 501C(3) | $56,000 | QUALITY IMPROVEMENT | |||||
| Children's Hospital of Pittsburgh Foundation | ||||||||
| 251865744 | 501C(3) | $465,730 | CF CARE CENTER | |||||
| Children's Lung Specialists Craig Nakamura MD LTD | ||||||||
| 880271963 | 501C(3) | $190,780 | CF CARE CENTER | |||||
| Children's Research Institute | ||||||||
| 521654453 | 501C(3) | $189,490 | CF CARE CENTER | |||||
| Children's Research Institute | ||||||||
| 521654453 | 501C(3) | $99,568 | CLINICAL RESEARCH CENTER | |||||
| Children's Specialty Group PLLC | ||||||||
| 541871633 | LLC | $192,250 | CF CARE CENTER | |||||
| Christiana Care Health Services Inc | ||||||||
| 510103684 | 501C(3) | $43,047 | ADULT CARE | |||||
| Christiana Care Health Services Inc | ||||||||
| 510103684 | 501C(3) | $47,884 | CF CARE CENTER | |||||
| Clemson University | ||||||||
| 576000254 | 501C(3) | $50,000 | CLINICAL RESEARCH STUDY | |||||
| Colorado State University | ||||||||
| 846000545 | IRC 115 | $111,128 | PILOT STUDY | |||||
| Colorado State University | ||||||||
| 846000545 | IRC 115 | $167,996 | RESEARCH | |||||
| Connecticut Children's Medical Center | ||||||||
| 060646755 | 501c(3) | $100,905 | CF CARE CENTER | |||||
| Cook Children's Medical Center | ||||||||
| 752051646 | 501c(3) | $353,350 | CF CARE CENTER | |||||
| Cook Children's Medical Center | ||||||||
| 752051646 | 501c(3) | $166,732 | CLINICAL RESEARCH CENTER | |||||
| Cook Children's Medical Center | ||||||||
| 752051646 | 501c(3) | $84,000 | QUALITY IMPROVEMENT | |||||
| Curators of the University of Missouri | ||||||||
| 436003859 | 501C(3) | $263,588 | CF CARE CENTER | |||||
| Curators of the University of Missouri | ||||||||
| 436003859 | 501C(3) | $56,000 | PILOT STUDY | |||||
| Curators of the University of Missouri | ||||||||
| 436003859 | 501C(3) | $168,000 | RESEARCH | |||||
| Curators of the University of Missouri | ||||||||
| 436003859 | 501C(3) | $76,000 | RESEARCH STUDY | |||||
| Dartmouth-Hitchcock Clinic | ||||||||
| 222519596 | 501C(3) | $249,146 | CLINICAL RESEARCH STUDY | |||||
| Dayton Childrens Hospital | ||||||||
| 310672132 | 501c(3) | $220,190 | CF CARE CENTER | |||||
| Dayton Childrens Hospital | ||||||||
| 310672132 | 501c(3) | $105,963 | CLINICAL RESEARCH CENTER | |||||
| Drexel University | ||||||||
| 231352630 | 501C(3) | $93,780 | CF CARE CENTER | |||||
| Driscoll Children's Hospital | ||||||||
| 742577746 | 501C(3) | $89,130 | CF CARE CENTER | |||||
| Duke University | ||||||||
| 560532129 | 501c(3) | $42,007 | ADULT CARE | |||||
| Duke University | ||||||||
| 560532129 | 501c(3) | $195,714 | CF CARE CENTER | |||||
| Duke University | ||||||||
| 560532129 | 501c(3) | $773,403 | CLINICAL CARE RESEARCH | |||||
| Duke University | ||||||||
| 560532129 | 501c(3) | $129,478 | CLINICAL RESEARCH STUDY | |||||
| Duke University | ||||||||
| 560532129 | 501c(3) | $84,803 | TRAINING | |||||
| East Carolina University | ||||||||
| 566000403 | IRC 115 | $43,090 | CF CARE CENTER | |||||
| East Tennessee Children's Hospital Association Inc | ||||||||
| 626002604 | 501C(3) | $151,040 | CF CARE CENTER | |||||
| Eastern Maine Medical Center | ||||||||
| 010211501 | 501C(3) | $65,880 | CF CARE CENTER | |||||
| Emory University | ||||||||
| 580566256 | 501c(3) | $23,519 | ADHERENCE | |||||
| Emory University | ||||||||
| 580566256 | 501c(3) | $613,061 | CF CARE CENTER | |||||
| Emory University | ||||||||
| 580566256 | 501c(3) | $383,813 | CLINICAL CARE RESEARCH | |||||
| Emory University | ||||||||
| 580566256 | 501c(3) | $283,584 | CLINICAL RESEARCH CENTER | |||||
| Emory University | ||||||||
| 580566256 | 501c(3) | $398,060 | CLINICAL RESEARCH STUDY | |||||
| Emory University | ||||||||
| 580566256 | 501c(3) | $207,349 | QUALITY IMPROVEMENT | |||||
| Emory University | ||||||||
| 580566256 | 501c(3) | $1,078,305 | RESEARCH | |||||
| Emory University | ||||||||
| 580566256 | 501c(3) | $152,999 | RESEARCH STUDY | |||||
| Emory University | ||||||||
| 580566256 | 501c(3) | $633,668 | THERAPEUTICS DISCOVERY RESEARCH | |||||
| Emory University | ||||||||
| 580566256 | 501c(3) | $204,999 | TRAINING | |||||
| Fred Hutchinson Cancer Center | ||||||||
| 911935159 | 501C(3) | $85,000 | RESEARCH STUDY | |||||
| Geisinger Clinic | ||||||||
| 236291113 | 501C(3) | $258,858 | CF CARE CENTER | |||||
| Georgia Department of Public Health | ||||||||
| 900676388 | GOVERNMENT ENTITY | $78,168 | QUALITY IMPROVEMENT | |||||
| Georgia Tech Research Corporation | ||||||||
| 580603146 | IRC 115 | $56,000 | PILOT STUDY | |||||
| Georgia Tech Research Corporation | ||||||||
| 580603146 | IRC 115 | $156,250 | RESEARCH | |||||
| Georgia Tech Research Corporation | ||||||||
| 580603146 | IRC 115 | $75,000 | RESEARCH STUDY | |||||
| Georgia Tech Research Corporation | ||||||||
| 580603146 | IRC 115 | $425,879 | THERAPEUTICS DISCOVERY RESEARCH | |||||
| Gundersen Lutheran Medical Foundation Inc | ||||||||
| 391249705 | 501C(3) | $63,755 | CF CARE CENTER | |||||
| Hartford Hospital | ||||||||
| 060646668 | 501C(3) | $103,730 | CF CARE CENTER | |||||
| Health Research Inc New York State Department of Health | ||||||||
| 141402155 | 501C(3) | $81,572 | QUALITY IMPROVEMENT | |||||
| HEALTHWELL FOUNDATION | ||||||||
| 200413676 | 501C(3) | $3,000,000 | Patient Assistance | |||||
| Henry M Jackson Foundation for the advancement of Military Medicine Inc | ||||||||
| 521317896 | 501C(3) | $47,500 | CF CARE CENTER | |||||
| HMH Hospitals Corporation | ||||||||
| 221487576 | 501C(3) | $124,999 | RESEARCH | |||||
| HMH Hospitals Corporation | ||||||||
| 221487576 | 501C(3) | $200,000 | THERAPEUTICS DISCOVERY RESEARCH | |||||
| ICAHN School of Medicine at Mount Sinai | ||||||||
| 136171197 | 501C(3) | $111,929 | PILOT STUDY | |||||
| ICAHN School of Medicine at Mount Sinai | ||||||||
| 136171197 | 501C(3) | $335,350 | RESEARCH | |||||
| Inova Health Care Services | ||||||||
| 540620889 | 501C(3) | $43,866 | ADULT CARE | |||||
| Inova Health Care Services | ||||||||
| 540620889 | 501C(3) | $277,570 | CF CARE CENTER | |||||
| Inova Health Care Services | ||||||||
| 540620889 | 501C(3) | $67,536 | CLINICAL RESEARCH CENTER | |||||
| IOM Health Systems LP | ||||||||
| 351963748 | C CORP | $61,840 | CF CARE CENTER | |||||
| Iowa Health Foundation | ||||||||
| 421467682 | 501C(3) | $108,260 | CF CARE CENTER | |||||
| Jaeb Center for Health Research Foundation Inc | ||||||||
| 593187624 | 501C(3) | $6,907,230 | CLINICAL RESEARCH STUDY | |||||
| Joe DiMaggio Children's Hospital Foundation Inc | ||||||||
| 650492343 | 501C(3) | $69,943 | CF CARE CENTER | |||||
| Joe DiMaggio Children's Hospital Foundation Inc | ||||||||
| 650492343 | 501C(3) | $11,200 | CLINICAL RESEARCH CENTER | |||||
| Joe DiMaggio Children's Hospital Foundation Inc | ||||||||
| 650492343 | 501C(3) | $59,523 | CLINICAL RESEARCH STUDY | |||||
| Johns Hopkins All Children's Hospital Inc | ||||||||
| 590683252 | 501c(3) | $190,990 | CF CARE CENTER | |||||
| Johns Hopkins All Children's Hospital Inc | ||||||||
| 590683252 | 501c(3) | $84,000 | QUALITY IMPROVEMENT | |||||
| Johns Hopkins University | ||||||||
| 520595110 | 501c(3) | $23,520 | ADHERENCE | |||||
| Johns Hopkins University | ||||||||
| 520595110 | 501c(3) | $55,592 | ADULT CARE | |||||
| Johns Hopkins University | ||||||||
| 520595110 | 501c(3) | $476,660 | CF CARE CENTER | |||||
| Johns Hopkins University | ||||||||
| 520595110 | 501c(3) | $993,137 | CLINICAL CARE RESEARCH | |||||
| Johns Hopkins University | ||||||||
| 520595110 | 501c(3) | $245,601 | CLINICAL RESEARCH CENTER | |||||
| Johns Hopkins University | ||||||||
| 520595110 | 501c(3) | $875,850 | CLINICAL RESEARCH STUDY | |||||
| Johns Hopkins University | ||||||||
| 520595110 | 501c(3) | $280,000 | RESEARCH | |||||
| Johns Hopkins University | ||||||||
| 520595110 | 501c(3) | $74,996 | RESEARCH STUDY | |||||
| Johns Hopkins University | ||||||||
| 520595110 | 501c(3) | $1,178,622 | THERAPEUTICS DISCOVERY RESEARCH | |||||
| Johns Hopkins University | ||||||||
| 520595110 | 501c(3) | $172,000 | TRAINING | |||||
| Kaiser Foundation Research Institute a division of Kaiser Foundation Hospit | ||||||||
| 941105628 | 501C(3) | $545,982 | CF CARE CENTER | als | ||||
| Landon Pediatric Foundation | ||||||||
| 931097216 | 501C(3) | $43,710 | CF CARE CENTER | |||||
| Lee Memorial Health System Foundation Inc | ||||||||
| 650645343 | 501C(3) | $49,520 | CF CARE CENTER | |||||
| Lehigh Valley Hospital Inc | ||||||||
| 231689692 | 501C(3) | $87,300 | CF CARE CENTER | |||||
| Lenox Hill Hospital | ||||||||
| 131624070 | 501C(3) | $175,820 | CF CARE CENTER | |||||
| Lenox Hill Hospital | ||||||||
| 131624070 | 501C(3) | $192,578 | CLINICAL RESEARCH CENTER | |||||
| Life Sciences Research Foundation | ||||||||
| 521231801 | 501C(3) | $86,240 | THERAPEUTICS DISCOVERY RESEARCH | |||||
| Loma Linda University | ||||||||
| 951816009 | 501C(3) | $92,280 | CF CARE CENTER | |||||
| Long Island Jewish Medical Center | ||||||||
| 112241326 | 501C(3) | $258,740 | CF CARE CENTER | |||||
| Long Island Jewish Medical Center | ||||||||
| 112241326 | 501C(3) | $153,398 | CLINICAL RESEARCH CENTER | |||||
| Louisiana State University Health Sciences Center | ||||||||
| 720702002 | 501C(3) | $167,170 | CF CARE CENTER | |||||
| Loyola University Chicago | ||||||||
| 361408475 | 501c(3) | $214,760 | CLINICAL CARE RESEARCH | |||||
| Loyola University Medical Center | ||||||||
| 364015560 | 501C(3) | $96,660 | CF CARE CENTER | |||||
| Maine Medical Center | ||||||||
| 010238552 | 501c(3) | $245,960 | CF CARE CENTER | |||||
| Maine Medical Center | ||||||||
| 010238552 | 501c(3) | $138,038 | CLINICAL RESEARCH CENTER | |||||
| Marshfield Clinic Inc | ||||||||
| 390452970 | 501C(3) | $60,520 | CF CARE CENTER | |||||
| Mary Bridge Children's Foundation | ||||||||
| 943030039 | 501C(3) | $132,805 | CF CARE CENTER | |||||
| Massachusetts Institute of Technology | ||||||||
| 042103594 | 501C(3) | $85,000 | RESEARCH STUDY | |||||
| Mayo Clinic | ||||||||
| 416011702 | 501C(3) | $162,460 | CF CARE CENTER | |||||
| Mayo Clinic Jacksonville | ||||||||
| 593337028 | 501C(3) | $104,070 | CF CARE CENTER | |||||
| Mayo Clinic Jacksonville | ||||||||
| 593337028 | 501C(3) | $2,800 | CLINICAL RESEARCH STUDY | |||||
| Medical University of South Carolina | ||||||||
| 576000722 | IRC 115 | $43,047 | ADULT CARE | |||||
| Medical University of South Carolina | ||||||||
| 576000722 | IRC 115 | $236,590 | CF CARE CENTER | |||||
| Medical University of South Carolina | ||||||||
| 576000722 | IRC 115 | $213,297 | CLINICAL RESEARCH CENTER | |||||
| Memorial Health Services | ||||||||
| 951643381 | 501C(3) | $119,267 | CLINICAL RESEARCH CENTER | |||||
| Memorial Medical Center Foundation | ||||||||
| 956105984 | 501C(3) | $209,100 | CF CARE CENTER | |||||
| MH Mission Hospital LLLP | ||||||||
| 832048706 | LLP | $55,010 | CF CARE CENTER | |||||
| Middle East Cystic Fibrosis Association | ||||||||
| 851096028 | 170(B)(1)(A)(VI) | $74,895 | QUALITY IMPROVEMENT | |||||
| Monmouth Medical Center Foundation | ||||||||
| 222456079 | 501C(3) | $153,800 | CF CARE CENTER | |||||
| National Disease Research Interchange | ||||||||
| 232213205 | 501C(3) | $246,727 | THERAPEUTICS DISCOVERY RESEARCH | |||||
| National Jewish Health | ||||||||
| 742044647 | 501c(3) | $23,520 | ADHERENCE | |||||
| National Jewish Health | ||||||||
| 742044647 | 501c(3) | $468,421 | CF CARE CENTER | |||||
| National Jewish Health | ||||||||
| 742044647 | 501c(3) | $392,074 | CLINICAL RESEARCH | |||||
| National Jewish Health | ||||||||
| 742044647 | 501c(3) | $618,968 | CLINICAL RESEARCH CENTER | |||||
| National Jewish Health | ||||||||
| 742044647 | 501c(3) | $1,170,525 | CLINICAL RESEARCH STUDY | |||||
| National Jewish Health | ||||||||
| 742044647 | 501c(3) | $111,627 | PILOT STUDY | |||||
| National Jewish Health | ||||||||
| 742044647 | 501c(3) | $155,970 | RESEARCH | |||||
| National Jewish Health | ||||||||
| 742044647 | 501c(3) | $76,000 | RESEARCH STUDY | |||||
| New York University | ||||||||
| 135562308 | 501C(3) | $132,940 | CF CARE CENTER | |||||
| New York University | ||||||||
| 135562308 | 501C(3) | $168,000 | RESEARCH | |||||
| North Suburban Pulmonary and Critical Care Consultants SC | ||||||||
| 364393017 | C CORP | $45,720 | CF CARE CENTER | |||||
| Northwestern University | ||||||||
| 362167817 | 501c(3) | $63,881 | ADHERENCE | |||||
| Northwestern University | ||||||||
| 362167817 | 501c(3) | $150,460 | CF CARE CENTER | |||||
| Northwestern University | ||||||||
| 362167817 | 501c(3) | $94,759 | CLINICAL RESEARCH CENTER | |||||
| Northwestern University | ||||||||
| 362167817 | 501c(3) | $138,751 | CLINICAL RESEARCH STUDY | |||||
| Northwestern University | ||||||||
| 362167817 | 501c(3) | $101,500 | TRAINING | |||||
| Oklahoma State University | ||||||||
| 731383996 | 501C(3) | $18,118 | ADHERENCE | |||||
| Oregon Health & Science University | ||||||||
| 931176109 | 501c(3) | $110,272 | ADULT CARE | |||||
| Oregon Health & Science University | ||||||||
| 931176109 | 501c(3) | $408,894 | CF CARE CENTER | |||||
| Oregon Health & Science University | ||||||||
| 931176109 | 501c(3) | $249,318 | CLINICAL RESEARCH CENTER | |||||
| Oregon Health & Science University | ||||||||
| 931176109 | 501c(3) | $154,555 | QUALITY IMPROVEMENT | |||||
| Oregon State University | ||||||||
| 611730890 | IRC 115 | $56,000 | PILOT STUDY | |||||
| Oregon State University | ||||||||
| 611730890 | IRC 115 | $168,000 | RESEARCH | |||||
| Oregon State University | ||||||||
| 611730890 | IRC 115 | $74,995 | RESEARCH STUDY | |||||
| Orlando Health Foundation Inc | ||||||||
| 592244943 | 501C(3) | $108,420 | CF CARE CENTER | |||||
| Parkview Hospital Inc | ||||||||
| 350868085 | 501C(3) | $55,400 | CF CARE CENTER | |||||
| Pensacola Lung Group MDs PA | ||||||||
| 592313481 | 501C(3) | $72,500 | CF CARE CENTER | |||||
| Phoenix Children's Hospital Foundation | ||||||||
| 742421549 | 501C(3) | $412,480 | CF CARE CENTER | |||||
| Phoenix Children's Hospital Foundation | ||||||||
| 742421549 | 501C(3) | $110,611 | CLINICAL RESEARCH CENTER | |||||
| Prisma Health - Upstate | ||||||||
| 811723202 | 501C(3) | $46,005 | ADULT CARE | |||||
| Prisma Health - Upstate | ||||||||
| 811723202 | 501C(3) | $158,850 | CF CARE CENTER | |||||
| Prisma HealthMidlands | ||||||||
| 582296052 | 501C(3) | $158,830 | CF CARE CENTER | |||||
| Providence Health & Services - Washington | ||||||||
| 510216586 | 501C(3) | $297,610 | CF CARE CENTER | |||||
| Providence Health & Services - Washington | ||||||||
| 510216586 | 501C(3) | $132,179 | CLINICAL RESEARCH CENTER | |||||
| Regents of the University of California at Irvine | ||||||||
| 952226406 | 501C(3) | $77,000 | RESEARCH STUDY | |||||
| Regents of the University of California Davis | ||||||||
| 946036494 | 501c(3) | $190,040 | CF CARE CENTER | |||||
| Regents of the University of California Davis | ||||||||
| 946036494 | 501c(3) | $81,410 | CLINICAL RESEARCH CENTER | |||||
| Regents of the University of California San Diego | ||||||||
| 956006144 | 501c(3) | $46,079 | ADULT CARE | |||||
| Regents of the University of California San Diego | ||||||||
| 956006144 | 501c(3) | $445,006 | CF CARE CENTER | |||||
| Regents of the University of California San Diego | ||||||||
| 956006144 | 501c(3) | $169,790 | CLINICAL RESEARCH CENTER | |||||
| Regents of the University of California San Diego | ||||||||
| 956006144 | 501c(3) | $168,000 | CLINICAL RESEARCH STUDY | |||||
| Regents of the University of California San Diego | ||||||||
| 956006144 | 501c(3) | $75,995 | RESEARCH STUDY | |||||
| Regents of the University of Michigan | ||||||||
| 386006309 | 501c(3) | $23,520 | ADHERENCE | |||||
| Regents of the University of Michigan | ||||||||
| 386006309 | 501c(3) | $101,408 | ADULT CARE | |||||
| Regents of the University of Michigan | ||||||||
| 386006309 | 501c(3) | $484,600 | CF CARE CENTER | |||||
| Regents of the University of Michigan | ||||||||
| 386006309 | 501c(3) | $237,977 | CLINICAL RESEARCH CENTER | |||||
| Regents of the University of Michigan | ||||||||
| 386006309 | 501c(3) | $450,390 | CLINICAL RESEARCH STUDY | |||||
| Regents of the University of Michigan | ||||||||
| 386006309 | 501c(3) | $112,000 | PILOT STUDY | |||||
| Regents of the University of Michigan | ||||||||
| 386006309 | 501c(3) | $186,000 | QUALITY IMPROVEMENT | |||||
| Regents of the University of Michigan | ||||||||
| 386006309 | 501c(3) | $1,215,200 | RESEARCH | |||||
| Regents of the University of Michigan | ||||||||
| 386006309 | 501c(3) | $250,000 | RESEARCH CENTER | |||||
| Regents of the University of Michigan | ||||||||
| 386006309 | 501c(3) | $109,997 | RESEARCH STUDY | |||||
| Regents of the University of Michigan | ||||||||
| 386006309 | 501c(3) | $83,600 | TRAINING | |||||
| Regents of the University of Minnesota | ||||||||
| 416007513 | IRC 115 | $34,865 | ADHERENCE | |||||
| Regents of the University of Minnesota | ||||||||
| 416007513 | IRC 115 | $59,429 | ADULT CARE | |||||
| Regents of the University of Minnesota | ||||||||
| 416007513 | IRC 115 | $536,117 | CF CARE CENTER | |||||
| Regents of the University of Minnesota | ||||||||
| 416007513 | IRC 115 | $84,117 | CLINICAL RESEARCH | |||||
| Regents of the University of Minnesota | ||||||||
| 416007513 | IRC 115 | $295,163 | CLINICAL RESEARCH CENTER | |||||
| Regents of the University of Minnesota | ||||||||
| 416007513 | IRC 115 | $51,376 | QUALITY IMPROVEMENT | |||||
| Regents of the University of Minnesota | ||||||||
| 416007513 | IRC 115 | $133,998 | TRAINING | |||||
| Renown Health Foundation | ||||||||
| 942972749 | 501C(3) | $65,450 | CF CARE CENTER | |||||
| Rhode Island Hospital | ||||||||
| 050258954 | 501C(3) | $51,740 | ADULT CARE | |||||
| Rhode Island Hospital | ||||||||
| 050258954 | 501C(3) | $181,659 | CF CARE CENTER | |||||
| Rhode Island Hospital | ||||||||
| 050258954 | 501C(3) | $130,795 | RESEARCH | |||||
| Rush University Medical Center | ||||||||
| 362174823 | 501C(3) | $155,279 | CF CARE CENTER | |||||
| Rutgers The State University of New Jersey | ||||||||
| 226001086 | 501C(3) | $36,960 | ADULT CARE | |||||
| Rutgers The State University of New Jersey | ||||||||
| 226001086 | 501C(3) | $177,600 | CF CARE CENTER | |||||
| Rutgers The State University of New Jersey | ||||||||
| 226001086 | 501C(3) | $98,291 | CLINICAL RESEARCH CENTER | |||||
| Rutgers The State University of New Jersey | ||||||||
| 226001086 | 501C(3) | $168,000 | RESEARCH | |||||
| RWJ Barnabas Health Inc | ||||||||
| 221494440 | 501C(3) | $35,300 | ADULT CARE | |||||
| RWJ Barnabas Health Inc | ||||||||
| 221494440 | 501C(3) | $59,620 | CF CARE CENTER | |||||
| Saint Francis Medical Center | ||||||||
| 370662569 | 501c(3) | $169,330 | CF CARE CENTER | |||||
| Sanford Clinic | ||||||||
| 460447693 | 501c(3) | $190,050 | CF CARE CENTER | |||||
| Sanford Medical Center Fargo | ||||||||
| 450226909 | 501C(3) | $57,620 | CF CARE CENTER | |||||
| Santa Barbara Cottage Hospital | ||||||||
| 951644629 | 501C(3) | $98,080 | CF CARE CENTER | |||||
| Seattle Children's Hospital | ||||||||
| 910564748 | 501c(3) | $18,450 | ADHERENCE | |||||
| Seattle Children's Hospital | ||||||||
| 910564748 | 501c(3) | $182,800 | CF CARE CENTER | |||||
| Seattle Children's Hospital | ||||||||
| 910564748 | 501c(3) | $5,459,200 | CLINICAL RESEARCH | |||||
| Seattle Children's Hospital | ||||||||
| 910564748 | 501c(3) | $10,180,397 | CLINICAL RESEARCH CENTER | |||||
| Seattle Children's Hospital | ||||||||
| 910564748 | 501c(3) | $12,893,328 | CLINICAL RESEARCH STUDY | |||||
| Seattle Children's Hospital | ||||||||
| 910564748 | 501c(3) | $56,000 | QUALITY IMPROVEMENT | |||||
| Seattle Children's Hospital | ||||||||
| 910564748 | 501c(3) | $52,449 | RESEARCH | |||||
| Seattle Children's Hospital | ||||||||
| 910564748 | 501c(3) | $97,729 | TRAINING | |||||
| South Broward Hospital District | ||||||||
| 596014973 | 501C(3) | $216,850 | CF CARE CENTER | |||||
| Spectrum Health Foundation | ||||||||
| 382752328 | 501c(3) | $387,397 | CF CARE CENTER | |||||
| Spectrum Health Foundation | ||||||||
| 382752328 | 501c(3) | $182,986 | CLINICAL RESEARCH CENTER | |||||
| Spectrum Health Foundation | ||||||||
| 382752328 | 501c(3) | $50,848 | QUALITY IMPROVEMENT | |||||
| St Alexius Medical Center | ||||||||
| 450226711 | 501C(3) | $37,270 | CF CARE CENTER | |||||
| St Joseph's Hospital and Medical Center | ||||||||
| 221487602 | 501C(3) | $49,810 | CF CARE CENTER | |||||
| St Jude Children's Research Hospital Inc | ||||||||
| 620646012 | 501C(3) | $84,000 | RESEARCH STUDY | |||||
| St Jude Children's Research Hospital Inc | ||||||||
| 620646012 | 501C(3) | $337,598 | THERAPEUTICS DISCOVERY RESEARCH | |||||
| St Louis University | ||||||||
| 430654872 | 501c(3) | $214,370 | CF CARE CENTER | |||||
| St Louis University | ||||||||
| 430654872 | 501c(3) | $98,007 | CLINICAL RESEARCH CENTER | |||||
| St Louis University | ||||||||
| 430654872 | 501c(3) | $966,263 | CLINICAL RESEARCH STUDY | |||||
| St Luke's Regional Medical Center LTD | ||||||||
| 820161600 | 501c(3) | $205,240 | CF CARE CENTER | |||||
| St Luke's Regional Medical Center LTD | ||||||||
| 820161600 | 501c(3) | $142,557 | CLINICAL RESEARCH CENTER | |||||
| St Vincent Hospital of the Hospital Sisters of the Third Order of St Franci | ||||||||
| 390817529 | 501C(3) | $167,360 | CF CARE CENTER | s | ||||
| Stanford Health Care | ||||||||
| 946174066 | 501C(3) | $63,333 | CF CARE CENTER | |||||
| State of Maryland University of Maryland - College ParkBaltimore | ||||||||
| 526002033 | IRC 115 | $56,000 | PILOT STUDY | |||||
| State of Maryland University of Maryland - College ParkBaltimore | ||||||||
| 526002033 | IRC 115 | $78,158 | QUALITY IMPROVEMENT | |||||
| State of Maryland University of Maryland - College ParkBaltimore | ||||||||
| 526002033 | IRC 115 | $489,004 | RESEARCH | |||||
| State of Mississippi - University of Mississippi Medical Center | ||||||||
| 646008520 | 501C(3) | $204,930 | CF CARE CENTER | |||||
| State University of Iowa | ||||||||
| 426004813 | IRC 115 | $287,125 | CF CARE CENTER | |||||
| State University of Iowa | ||||||||
| 426004813 | IRC 115 | $139,157 | CLINICAL RESEARCH CENTER | |||||
| State University of Iowa | ||||||||
| 426004813 | IRC 115 | $422,230 | CLINICAL RESEARCH STUDY | |||||
| State University of Iowa | ||||||||
| 426004813 | IRC 115 | $110,619 | PILOT STUDY | |||||
| State University of Iowa | ||||||||
| 426004813 | IRC 115 | $955,934 | RESEARCH | |||||
| State University of Iowa | ||||||||
| 426004813 | IRC 115 | $900,000 | RESEARCH CENTER | |||||
| State University of Iowa | ||||||||
| 426004813 | IRC 115 | $2,053,746 | THERAPEUTICS DISCOVERY RESEARCH | |||||
| State University of Iowa | ||||||||
| 426004813 | IRC 115 | $7,730 | TRAINING | |||||
| Sutter Bay Hospitals | ||||||||
| 940562680 | 501C(3) | $51,470 | CF CARE CENTER | |||||
| Sutter Medical Center Sacramento | ||||||||
| 941156621 | 501C(3) | $174,088 | CF CARE CENTER | |||||
| Texas A&M AgriLife Research | ||||||||
| 746000541 | 501C(3) | $168,000 | RESEARCH | |||||
| Texas Tech University Health Sciences Center | ||||||||
| 752668014 | IRC 115 | $74,660 | CF CARE CENTER | |||||
| The Administrators of the Tulane Educational Fund | ||||||||
| 720423889 | 501C(3) | $240,750 | CF CARE CENTER | |||||
| The Administrators of the Tulane Educational Fund | ||||||||
| 720423889 | 501C(3) | $113,780 | CLINICAL RESEARCH CENTER | |||||
| The Administrators of the Tulane Educational Fund | ||||||||
| 720423889 | 501C(3) | $273,966 | RESEARCH | |||||
| The American Society of Gene Cell Therapy | ||||||||
| 911766321 | C CORP | $100,000 | THERAPEUTICS DISCOVERY RESEARCH | |||||
| The Board of Trustees of the University of Arkansas acting for and behalf o | ||||||||
| 716046242 | IRC 115 | $244,272 | CF CARE CENTER | f the University of Arkansas for Medical Sciences | ||||
| The Board of Trustees of the University of Arkansas acting for and behalf o | ||||||||
| 716046242 | IRC 115 | $165,529 | CLINICAL RESEARCH CENTER | f the University of Arkansas for Medical Sciences | ||||
| The Carle Foundation | ||||||||
| 371119538 | 501C(3) | $67,050 | CF CARE CENTER | |||||
| The Charlotte-Mecklenburg Hospital Authority | ||||||||
| 560529945 | 501C(3) | $184,838 | CLINICAL RESEARCH STUDY | |||||
| The Children's Hospital of Philadelphia | ||||||||
| 231352166 | 501c(3) | $53,794 | ADULT CARE | |||||
| The Children's Hospital of Philadelphia | ||||||||
| 231352166 | 501c(3) | $215,780 | CF CARE CENTER | |||||
| The Children's Hospital of Philadelphia | ||||||||
| 231352166 | 501c(3) | $248,108 | CLINICAL RESEARCH | |||||
| The Children's Hospital of Philadelphia | ||||||||
| 231352166 | 501c(3) | $246,986 | CLINICAL RESEARCH CENTER | |||||
| The Children's Hospital of Philadelphia | ||||||||
| 231352166 | 501c(3) | $588,374 | CLINICAL RESEARCH STUDY | |||||
| The Children's Hospital of Philadelphia | ||||||||
| 231352166 | 501c(3) | $169,446 | QUALITY IMPROVEMENT | |||||
| The Children's Hospital of Philadelphia | ||||||||
| 231352166 | 501c(3) | $75,999 | RESEARCH STUDY | |||||
| The Children's Hospital of Philadelphia | ||||||||
| 231352166 | 501c(3) | $314,265 | TRAINING | |||||
| The Children's Mercy Hospital | ||||||||
| 440605373 | 501c(3) | $191,710 | CF CARE CENTER | |||||
| The Children's Mercy Hospital | ||||||||
| 440605373 | 501c(3) | $168,921 | CLINICAL RESEARCH CENTER | |||||
| The Cleveland Clinic Foundation | ||||||||
| 340714585 | 501c(3) | $60,480 | ADULT CARE | |||||
| The Cleveland Clinic Foundation | ||||||||
| 340714585 | 501c(3) | $185,285 | CF CARE CENTER | |||||
| The Cleveland Clinic Foundation | ||||||||
| 340714585 | 501c(3) | $1,050,149 | CLINICAL CARE RESEARCH | |||||
| The Cleveland Clinic Foundation | ||||||||
| 340714585 | 501c(3) | $90,824 | CLINICAL RESEARCH CENTER | |||||
| The Cleveland Clinic Foundation | ||||||||
| 340714585 | 501c(3) | $50,000 | CLINICAL RESEARCH STUDY | |||||
| The Cleveland Clinic Foundation | ||||||||
| 340714585 | 501c(3) | $28,170 | QUALITY IMPROVEMENT | |||||
| The Cleveland Clinic Foundation | ||||||||
| 340714585 | 501c(3) | $168,000 | RESEARCH | |||||
| The Feinstein Institutes for Medical Research | ||||||||
| 112673595 | 501c(3) | $51,083 | ADULT CARE | |||||
| The General Hospital Corporation | ||||||||
| 042697983 | 501c(3) | $272,130 | CF CARE CENTER | |||||
| The General Hospital Corporation | ||||||||
| 042697983 | 501c(3) | $536,392 | CLINICAL CARE RESEARCH | |||||
| The General Hospital Corporation | ||||||||
| 042697983 | 501c(3) | $626,133 | CLINICAL RESEARCH | |||||
| The General Hospital Corporation | ||||||||
| 042697983 | 501c(3) | $265,735 | CLINICAL RESEARCH CENTER | |||||
| The General Hospital Corporation | ||||||||
| 042697983 | 501c(3) | $556,578 | CLINICAL RESEARCH STUDY | |||||
| The General Hospital Corporation | ||||||||
| 042697983 | 501c(3) | $129,999 | RESEARCH | |||||
| The General Hospital Corporation | ||||||||
| 042697983 | 501c(3) | $138,000 | TRAINING | |||||
| The Hitchcock Foundation | ||||||||
| 020222139 | 501c(3) | $311,878 | CF CARE CENTER | |||||
| The Hitchcock Foundation | ||||||||
| 020222139 | 501c(3) | $152,373 | CLINICAL RESEARCH CENTER | |||||
| The Medical College of Wisconsin Inc | ||||||||
| 390806261 | 501c(3) | $407,218 | CF CARE CENTER | |||||
| The Medical College of Wisconsin Inc | ||||||||
| 390806261 | 501c(3) | $140,474 | CLINICAL RESEARCH CENTER | |||||
| The Medical College of Wisconsin Inc | ||||||||
| 390806261 | 501c(3) | $51,679 | QUALITY IMPROVEMENT | |||||
| The Medical College of Wisconsin Inc | ||||||||
| 390806261 | 501c(3) | $202,791 | TRAINING | |||||
| The Nemours Foundation | ||||||||
| 590634433 | 501c(3) | $23,128 | ADHERENCE | |||||
| The Nemours Foundation | ||||||||
| 590634433 | 501c(3) | $448,060 | CF CARE CENTER | |||||
| The Nemours Foundation | ||||||||
| 590634433 | 501c(3) | $84,132 | CLINICAL RESEARCH CENTER | |||||
| The Nemours Foundation | ||||||||
| 590634433 | 501c(3) | $71,520 | QUALITY IMPROVEMENT | |||||
| The Ohio State University | ||||||||
| 316025986 | IRC 115 | $36,929 | ADULT CARE | |||||
| The Ohio State University | ||||||||
| 316025986 | IRC 115 | $492,280 | RESEARCH | |||||
| The Ohio State University | ||||||||
| 316025986 | IRC 115 | $99,146 | TRAINING | |||||
| The Pennsylvania State University | ||||||||
| 246000376 | IRC 115 | $234,570 | CF CARE CENTER | |||||
| The Pennsylvania State University | ||||||||
| 246000376 | IRC 115 | $100,736 | CLINICAL RESEARCH CENTER | |||||
| The Rector and Visitors of the University of Virginia | ||||||||
| 546001796 | 501c(3) | $299,830 | CF CARE CENTER | |||||
| The Rector and Visitors of the University of Virginia | ||||||||
| 546001796 | 501c(3) | $155,090 | CLINICAL RESEARCH CENTER | |||||
| The Rector and Visitors of the University of Virginia | ||||||||
| 546001796 | 501c(3) | $318,437 | CLINICAL RESEARCH STUDY | |||||
| The Rector and Visitors of the University of Virginia | ||||||||
| 546001796 | 501c(3) | $508,351 | QUALITY IMPROVEMENT | |||||
| The Regents of the University of California Los Angeles | ||||||||
| 956006143 | 501C(3) | $141,654 | ADULT CARE | |||||
| The Regents of the University of California Los Angeles | ||||||||
| 956006143 | 501C(3) | $298,153 | CF CARE CENTER | |||||
| The Regents of the University of California Los Angeles | ||||||||
| 956006143 | 501C(3) | $444,869 | CLINICAL CARE RESEARCH | |||||
| The Regents of the University of California Los Angeles | ||||||||
| 956006143 | 501C(3) | $96,000 | CLINICAL RESEARCH | |||||
| The Regents of the University of California Los Angeles | ||||||||
| 956006143 | 501C(3) | $58,206 | CLINICAL RESEARCH CENTER | |||||
| The Regents of the University of California Los Angeles | ||||||||
| 956006143 | 501C(3) | $144,944 | CLINICAL RESEARCH STUDY | |||||
| The Regents of the University of California Los Angeles | ||||||||
| 956006143 | 501C(3) | $1,117,717 | RESEARCH | |||||
| The Regents of the University of California Los Angeles | ||||||||
| 956006143 | 501C(3) | $224,000 | THERAPEUTICS DISCOVERY RESEARCH | |||||
| The Regents of the University of California Los Angeles | ||||||||
| 956006143 | 501C(3) | $10,000 | TRAINING | |||||
| The Regents of the University of California San Francisco | ||||||||
| 946036493 | 501c(3) | $46,079 | ADULT CARE | |||||
| The Regents of the University of California San Francisco | ||||||||
| 946036493 | 501c(3) | $406,092 | CF CARE CENTER | |||||
| The Regents of the University of California San Francisco | ||||||||
| 946036493 | 501c(3) | $710,753 | CLINICAL CARE RESEARCH | |||||
| The Regents of the University of California San Francisco | ||||||||
| 946036493 | 501c(3) | $155,878 | CLINICAL RESEARCH CENTER | |||||
| The Regents of the University of California San Francisco | ||||||||
| 946036493 | 501c(3) | $233,000 | RESEARCH | |||||
| The Regents of the University of California San Francisco | ||||||||
| 946036493 | 501c(3) | $341,000 | TRAINING | |||||
| The Regents of the University of Colorado | ||||||||
| 846000555 | 501c(3) | $23,383 | ADHERENCE | |||||
| The Regents of the University of Colorado | ||||||||
| 846000555 | 501c(3) | $35,237 | ADULT CARE | |||||
| The Regents of the University of Colorado | ||||||||
| 846000555 | 501c(3) | $332,628 | CF CARE CENTER | |||||
| The Regents of the University of Colorado | ||||||||
| 846000555 | 501c(3) | $84,184 | CLINICAL CARE RESEARCH | |||||
| The Regents of the University of Colorado | ||||||||
| 846000555 | 501c(3) | $570,397 | CLINICAL RESEARCH | |||||
| The Regents of the University of Colorado | ||||||||
| 846000555 | 501c(3) | $662,964 | CLINICAL RESEARCH CENTER | |||||
| The Regents of the University of Colorado | ||||||||
| 846000555 | 501c(3) | $447,422 | CLINICAL RESEARCH STUDY | |||||
| The Regents of the University of Colorado | ||||||||
| 846000555 | 501c(3) | $159,000 | RESEARCH | |||||
| The Regents of the University of Colorado | ||||||||
| 846000555 | 501c(3) | $76,000 | RESEARCH STUDY | |||||
| The Regents of the University of Colorado | ||||||||
| 846000555 | 501c(3) | $584,109 | TRAINING | |||||
| The Research Foundation for State University of New York | ||||||||
| 141368361 | 501c(3) | $20,761 | ADHERENCE | |||||
| The Research Foundation for State University of New York | ||||||||
| 141368361 | 501c(3) | $46,079 | ADULT CARE | |||||
| The Research Foundation for State University of New York | ||||||||
| 141368361 | 501c(3) | $538,995 | CF CARE CENTER | |||||
| The Research Foundation for State University of New York | ||||||||
| 141368361 | 501c(3) | $124,813 | CLINICAL RESEARCH CENTER | |||||
| The Research Foundation for State University of New York | ||||||||
| 141368361 | 501c(3) | $761,029 | CLINICAL RESEARCH STUDY | |||||
| The Research Foundation for State University of New York | ||||||||
| 141368361 | 501c(3) | $84,000 | QUALITY IMPROVEMENT | |||||
| The Research Institute at Nationwide Children's Hospital | ||||||||
| 316056230 | 501c(3) | $87,499 | ADULT CARE | |||||
| The Research Institute at Nationwide Children's Hospital | ||||||||
| 316056230 | 501c(3) | $452,700 | CF CARE CENTER | |||||
| The Research Institute at Nationwide Children's Hospital | ||||||||
| 316056230 | 501c(3) | $205,134 | CLINICAL RESEARCH CENTER | |||||
| The Research Institute at Nationwide Children's Hospital | ||||||||
| 316056230 | 501c(3) | $50,000 | CLINICAL RESEARCH STUDY | |||||
| The Research Institute at Nationwide Children's Hospital | ||||||||
| 316056230 | 501c(3) | $84,000 | QUALITY IMPROVEMENT | |||||
| The Research Institute at Nationwide Children's Hospital | ||||||||
| 316056230 | 501c(3) | $285,631 | RESEARCH | |||||
| The Research Institute at Nationwide Children's Hospital | ||||||||
| 316056230 | 501c(3) | $650,000 | RESEARCH CENTER | |||||
| The Research Institute at Nationwide Children's Hospital | ||||||||
| 316056230 | 501c(3) | $419,978 | THERAPEUTICS DISCOVERY RESEARCH | |||||
| The Research Institute at Nationwide Children's Hospital | ||||||||
| 316056230 | 501c(3) | $134,000 | TRAINING | |||||
| The Tampa General Hospital Foundation | ||||||||
| 237354477 | 501C(3) | $232,690 | CF CARE CENTER | |||||
| The Toledo Hospital | ||||||||
| 344428256 | 501c(3) | $188,152 | CF CARE CENTER | |||||
| The Toledo Hospital | ||||||||
| 344428256 | 501c(3) | $104,000 | CLINICAL RESEARCH CENTER | |||||
| The Trustees of Columbia University in the City of New York | ||||||||
| 135598093 | 501c(3) | $58,648 | ADULT CARE | |||||
| The Trustees of Columbia University in the City of New York | ||||||||
| 135598093 | 501c(3) | $390,492 | CF CARE CENTER | |||||
| The Trustees of Columbia University in the City of New York | ||||||||
| 135598093 | 501c(3) | $271,068 | CLINICAL CARE RESEARCH | |||||
| The Trustees of Columbia University in the City of New York | ||||||||
| 135598093 | 501c(3) | $259,160 | CLINICAL RESEARCH CENTER | |||||
| The Trustees of Columbia University in the City of New York | ||||||||
| 135598093 | 501c(3) | $196,000 | QUALITY IMPROVEMENT | |||||
| The Trustees of Columbia University in the City of New York | ||||||||
| 135598093 | 501c(3) | $1,202,973 | RESEARCH | |||||
| The Trustees of Columbia University in the City of New York | ||||||||
| 135598093 | 501c(3) | $1,415,822 | THERAPEUTICS DISCOVERY RESEARCH | |||||
| The Trustees of Columbia University in the City of New York | ||||||||
| 135598093 | 501c(3) | $201,000 | TRAINING | |||||
| The University of Arizona | ||||||||
| 742652689 | IRC 115 | $23,520 | ADHERENCE | |||||
| The University of Arizona | ||||||||
| 742652689 | IRC 115 | $40,376 | ADULT CARE | |||||
| The University of Arizona | ||||||||
| 742652689 | IRC 115 | $198,750 | CF CARE CENTER | |||||
| The University of Arizona | ||||||||
| 742652689 | IRC 115 | $265,689 | CLINICAL RESEARCH CENTER | |||||
| The University of Arizona | ||||||||
| 742652689 | IRC 115 | $450,232 | CLINICAL RESEARCH STUDY | |||||
| The University of Chicago | ||||||||
| 362177139 | 501C(3) | $127,050 | CF CARE CENTER | |||||
| The University of Tennessee | ||||||||
| 626001636 | IRC 115 | $251,779 | CF CARE CENTER | |||||
| The University of Tennessee | ||||||||
| 626001636 | IRC 115 | $55,168 | RESEARCH | |||||
| The University of Texas Health Science Center at Houston | ||||||||
| 741761309 | IRC 115 | $125,000 | RESEARCH | |||||
| The University of Texas Health Science Center at San Antonio | ||||||||
| 741586031 | 501C(3) | $81,706 | ADULT CARE | |||||
| The University of Texas Health Science Center at San Antonio | ||||||||
| 741586031 | 501C(3) | $248,150 | CF CARE CENTER | |||||
| The University of Texas Health Science Center at San Antonio | ||||||||
| 741586031 | 501C(3) | $74,480 | CLINICAL RESEARCH CENTER | |||||
| The University of Texas Health Science Center at San Antonio | ||||||||
| 741586031 | 501C(3) | $129,411 | RESEARCH | |||||
| The University of Texas Southwestern Medical Center | ||||||||
| 756002868 | IRC 115 | $23,262 | ADHERENCE | |||||
| The University of Texas Southwestern Medical Center | ||||||||
| 756002868 | IRC 115 | $574,800 | CF CARE CENTER | |||||
| The University of Texas Southwestern Medical Center | ||||||||
| 756002868 | IRC 115 | $403,941 | CLINICAL RESEARCH CENTER | |||||
| The University of Texas Southwestern Medical Center | ||||||||
| 756002868 | IRC 115 | $125,395 | CLINICAL RESEARCH STUDY | |||||
| The University of Texas Southwestern Medical Center | ||||||||
| 756002868 | IRC 115 | $304,567 | QUALITY IMPROVEMENT | |||||
| The University of Texas Southwestern Medical Center | ||||||||
| 756002868 | IRC 115 | $135,990 | TRAINING | |||||
| The University of Vermont and State Agricultural College | ||||||||
| 030179440 | 501c(3) | $174,669 | CLINICAL RESEARCH CENTER | |||||
| The University of Vermont and State Agricultural College | ||||||||
| 030179440 | 501c(3) | $168,000 | RESEARCH | |||||
| The University of Vermont Medical Center Inc | ||||||||
| 030219309 | 501C(3) | $15,635 | ADHERENCE | |||||
| The University of Vermont Medical Center Inc | ||||||||
| 030219309 | 501C(3) | $60,480 | ADULT CARE | |||||
| The University of Vermont Medical Center Inc | ||||||||
| 030219309 | 501C(3) | $193,020 | CF CARE CENTER | |||||
| Thomas Jefferson University | ||||||||
| 231352651 | 501C(3) | $43,046 | ADULT CARE | |||||
| Thomas Jefferson University | ||||||||
| 231352651 | 501C(3) | $100,690 | CF CARE CENTER | |||||
| Trustees of Boston University | ||||||||
| 042103547 | 501C(3) | $130,000 | RESEARCH | |||||
| Trustees of Dartmouth College | ||||||||
| 020222111 | 501c(3) | $416,694 | CLINICAL RESEARCH STUDY | |||||
| Trustees of Dartmouth College | ||||||||
| 020222111 | 501c(3) | $56,000 | PILOT STUDY | |||||
| Trustees of Dartmouth College | ||||||||
| 020222111 | 501c(3) | $1,026,711 | RESEARCH | |||||
| Trustees of Dartmouth College | ||||||||
| 020222111 | 501c(3) | $939,998 | RESEARCH CENTER | |||||
| Trustees of Dartmouth College | ||||||||
| 020222111 | 501c(3) | $77,000 | RESEARCH STUDY | |||||
| Trustees of Indiana University | ||||||||
| 356001673 | 501c(3) | $42,778 | ADULT CARE | |||||
| Trustees of Indiana University | ||||||||
| 356001673 | 501c(3) | $678,111 | CF CARE CENTER | |||||
| Trustees of Indiana University | ||||||||
| 356001673 | 501c(3) | $400,493 | CLINICAL RESEARCH CENTER | |||||
| Trustees of Indiana University | ||||||||
| 356001673 | 501c(3) | $4,014,448 | CLINICAL RESEARCH STUDY | |||||
| Trustees of Indiana University | ||||||||
| 356001673 | 501c(3) | $56,000 | PILOT STUDY | |||||
| Trustees of Indiana University | ||||||||
| 356001673 | 501c(3) | $160,061 | QUALITY IMPROVEMENT | |||||
| Trustees of Indiana University | ||||||||
| 356001673 | 501c(3) | $110,000 | RESEARCH STUDY | |||||
| Trustees of Indiana University | ||||||||
| 356001673 | 501c(3) | $267,992 | TRAINING | |||||
| Trustees of the University of Pennsylvania | ||||||||
| 231352685 | 501c(3) | $60,477 | ADULT CARE | |||||
| Trustees of the University of Pennsylvania | ||||||||
| 231352685 | 501c(3) | $361,925 | CF CARE CENTER | |||||
| Trustees of the University of Pennsylvania | ||||||||
| 231352685 | 501c(3) | $127,512 | CLINICAL CARE RESEARCH | |||||
| Trustees of the University of Pennsylvania | ||||||||
| 231352685 | 501c(3) | $98,575 | CLINICAL RESEARCH CENTER | |||||
| Trustees of the University of Pennsylvania | ||||||||
| 231352685 | 501c(3) | $392,098 | CLINICAL RESEARCH STUDY | |||||
| Trustees of the University of Pennsylvania | ||||||||
| 231352685 | 501c(3) | $56,000 | PILOT STUDY | |||||
| Trustees of the University of Pennsylvania | ||||||||
| 231352685 | 501c(3) | $168,000 | RESEARCH | |||||
| Trustees of the University of Pennsylvania | ||||||||
| 231352685 | 501c(3) | $4,000 | TRAINING | |||||
| University at Buffalo Pediatric Associates | ||||||||
| 161238821 | 501c(3) | $205,850 | CF CARE CENTER | |||||
| University at Buffalo Pediatric Associates | ||||||||
| 161238821 | 501c(3) | $83,998 | QUALITY IMPROVEMENT | |||||
| University Health System Inc | ||||||||
| 311626179 | 501C(3) | $166,210 | CF CARE CENTER | |||||
| University Hospitals Cleveland Medical Center | ||||||||
| 341567805 | 501c(3) | $44,006 | ADULT CARE | |||||
| University Hospitals Cleveland Medical Center | ||||||||
| 341567805 | 501c(3) | $356,960 | CF CARE CENTER | |||||
| University Hospitals Cleveland Medical Center | ||||||||
| 341567805 | 501c(3) | $199,358 | CLINICAL RESEARCH CENTER | |||||
| University Hospitals Cleveland Medical Center | ||||||||
| 341567805 | 501c(3) | $115,589 | CLINICAL RESEARCH STUDY | |||||
| University Hospitals Cleveland Medical Center | ||||||||
| 341567805 | 501c(3) | $83,982 | QUALITY IMPROVEMENT | |||||
| University of Alabama at Birmingham | ||||||||
| 636005396 | 501c(3) | $23,520 | ADHERENCE | |||||
| University of Alabama at Birmingham | ||||||||
| 636005396 | 501c(3) | $73,187 | ADULT CARE | |||||
| University of Alabama at Birmingham | ||||||||
| 636005396 | 501c(3) | $478,301 | CF CARE CENTER | |||||
| University of Alabama at Birmingham | ||||||||
| 636005396 | 501c(3) | $90,047 | CLINICAL RESEARCH | |||||
| University of Alabama at Birmingham | ||||||||
| 636005396 | 501c(3) | $664,412 | CLINICAL RESEARCH CENTER | |||||
| University of Alabama at Birmingham | ||||||||
| 636005396 | 501c(3) | $755,978 | CLINICAL RESEARCH STUDY | |||||
| University of Alabama at Birmingham | ||||||||
| 636005396 | 501c(3) | $49,622 | PILOT STUDY | |||||
| University of Alabama at Birmingham | ||||||||
| 636005396 | 501c(3) | $838,749 | QUALITY IMPROVEMENT | |||||
| University of Alabama at Birmingham | ||||||||
| 636005396 | 501c(3) | $2,962,497 | RESEARCH | |||||
| University of Alabama at Birmingham | ||||||||
| 636005396 | 501c(3) | $815,000 | RESEARCH CENTER | |||||
| University of Alabama at Birmingham | ||||||||
| 636005396 | 501c(3) | $110,000 | RESEARCH STUDY | |||||
| University of Alabama at Birmingham | ||||||||
| 636005396 | 501c(3) | $1,671,124 | THERAPEUTICS DISCOVERY RESEARCH | |||||
| University of Alabama at Birmingham | ||||||||
| 636005396 | 501c(3) | $167,000 | TRAINING | |||||
| University of Cincinnati | ||||||||
| 316000989 | 501C(3) | $43,047 | ADULT CARE | |||||
| University of Cincinnati | ||||||||
| 316000989 | 501C(3) | $146,041 | CF CARE CENTER | |||||
| University of Cincinnati | ||||||||
| 316000989 | 501C(3) | $75,741 | CLINICAL RESEARCH CENTER | |||||
| University of Cincinnati | ||||||||
| 316000989 | 501C(3) | $55,960 | QUALITY IMPROVEMENT | |||||
| University of Cincinnati | ||||||||
| 316000989 | 501C(3) | $163,263 | RESEARCH | |||||
| University of Connecticut Health Center | ||||||||
| 521725543 | 501C(3) | $164,371 | RESEARCH | |||||
| University of Florida | ||||||||
| 596002052 | IRC 115 | $53,823 | ADULT CARE | |||||
| University of Florida | ||||||||
| 596002052 | IRC 115 | $289,602 | CF CARE CENTER | |||||
| University of Florida | ||||||||
| 596002052 | IRC 115 | $214,387 | CLINICAL RESEARCH CENTER | |||||
| University of Georgia Research Foundation Inc | ||||||||
| 581353149 | 501C(3) | $192,640 | RESEARCH | |||||
| University of Kansas Medical Center Research Institute Inc | ||||||||
| 481108830 | 501C(3) | $26,654 | ADHERENCE | |||||
| University of Kansas Medical Center Research Institute Inc | ||||||||
| 481108830 | 501C(3) | $302,890 | CF CARE CENTER | |||||
| University of Kansas Medical Center Research Institute Inc | ||||||||
| 481108830 | 501C(3) | $168,615 | CLINICAL RESEARCH CENTER | |||||
| University of Kansas Medical Center Research Institute Inc | ||||||||
| 481108830 | 501C(3) | $50,000 | CLINICAL RESEARCH STUDY | |||||
| University of Kansas Medical Center Research Institute Inc | ||||||||
| 481108830 | 501C(3) | $56,000 | PILOT STUDY | |||||
| University of Kansas Medical Center Research Institute Inc | ||||||||
| 481108830 | 501C(3) | $287,109 | RESEARCH | |||||
| University of Kansas Medical Center Research Institute Inc | ||||||||
| 481108830 | 501C(3) | $75,600 | TRAINING | |||||
| University of Kentucky Research Foundation | ||||||||
| 616033693 | 501C(3) | $334,600 | CF CARE CENTER | |||||
| University of Kentucky Research Foundation | ||||||||
| 616033693 | 501C(3) | $137,600 | CLINICAL RESEARCH CENTER | |||||
| University of Kentucky Research Foundation | ||||||||
| 616033693 | 501C(3) | $163,024 | CLINICAL RESEARCH STUDY | |||||
| University of Louisville Research Foundation Inc | ||||||||
| 611029626 | 501C(3) | $317,846 | CF CARE CENTER | |||||
| University of Louisville Research Foundation Inc | ||||||||
| 611029626 | 501C(3) | $55,827 | PILOT STUDY | |||||
| University of Massachusetts | ||||||||
| 043167352 | IRC 115 | $46,078 | ADULT CARE | |||||
| University of Massachusetts | ||||||||
| 043167352 | IRC 115 | $162,990 | CF CARE CENTER | |||||
| University of Massachusetts | ||||||||
| 043167352 | IRC 115 | $97,003 | CLINICAL RESEARCH CENTER | |||||
| University of Miami | ||||||||
| 590624458 | 501c(3) | $30,369 | ADULT CARE | |||||
| University of Miami | ||||||||
| 590624458 | 501c(3) | $217,429 | CF CARE CENTER | |||||
| University of Miami | ||||||||
| 590624458 | 501c(3) | $224,056 | CLINICAL RESEARCH CENTER | |||||
| University of New Mexico | ||||||||
| 856000642 | IRC 115 | $317,600 | CF CARE CENTER | |||||
| University of North Carolina at Chapel Hill | ||||||||
| 566001393 | 501c(3) | $43,047 | ADULT CARE | |||||
| University of North Carolina at Chapel Hill | ||||||||
| 566001393 | 501c(3) | $574,348 | CF CARE CENTER | |||||
| University of North Carolina at Chapel Hill | ||||||||
| 566001393 | 501c(3) | $105,280 | CLINICAL RESEARCH | |||||
| University of North Carolina at Chapel Hill | ||||||||
| 566001393 | 501c(3) | $969,087 | CLINICAL RESEARCH CENTER | |||||
| University of North Carolina at Chapel Hill | ||||||||
| 566001393 | 501c(3) | $526,225 | CLINICAL RESEARCH STUDY | |||||
| University of North Carolina at Chapel Hill | ||||||||
| 566001393 | 501c(3) | $56,000 | PILOT STUDY | |||||
| University of North Carolina at Chapel Hill | ||||||||
| 566001393 | 501c(3) | $172,835 | QUALITY IMPROVEMENT | |||||
| University of North Carolina at Chapel Hill | ||||||||
| 566001393 | 501c(3) | $1,044,102 | RESEARCH | |||||
| University of North Carolina at Chapel Hill | ||||||||
| 566001393 | 501c(3) | $900,000 | RESEARCH CENTER | |||||
| University of North Carolina at Chapel Hill | ||||||||
| 566001393 | 501c(3) | $377,000 | RESEARCH STUDY | |||||
| University of North Carolina at Chapel Hill | ||||||||
| 566001393 | 501c(3) | $1,258,183 | THERAPEUTICS DISCOVERY RESEARCH | |||||
| University of North Carolina at Chapel Hill | ||||||||
| 566001393 | 501c(3) | $316,500 | TRAINING | |||||
| University of Pittsburgh | ||||||||
| 250965591 | 501c(3) | $19,612 | ADHERENCE | |||||
| University of Pittsburgh | ||||||||
| 250965591 | 501c(3) | $57,731 | CLINICAL CARE RESEARCH | |||||
| University of Pittsburgh | ||||||||
| 250965591 | 501c(3) | $397,920 | CLINICAL RESEARCH CENTER | |||||
| University of Pittsburgh | ||||||||
| 250965591 | 501c(3) | $583,738 | CLINICAL RESEARCH STUDY | |||||
| University of Pittsburgh | ||||||||
| 250965591 | 501c(3) | $111,879 | PILOT STUDY | |||||
| University of Pittsburgh | ||||||||
| 250965591 | 501c(3) | $144,821 | RESEARCH | |||||
| University of Pittsburgh | ||||||||
| 250965591 | 501c(3) | $109,036 | RESEARCH CENTER | |||||
| University of Pittsburgh | ||||||||
| 250965591 | 501c(3) | $148,000 | TRAINING | |||||
| University of Rochester | ||||||||
| 160743209 | 501c(3) | $46,079 | ADULT CARE | |||||
| University of Rochester | ||||||||
| 160743209 | 501c(3) | $205,810 | CF CARE CENTER | |||||
| University of Rochester | ||||||||
| 160743209 | 501c(3) | $83,428 | CLINICAL RESEARCH CENTER | |||||
| University of Rochester | ||||||||
| 160743209 | 501c(3) | $55,682 | PILOT STUDY | |||||
| University of South Alabama | ||||||||
| 630477348 | 501C(3) | $76,000 | RESEARCH STUDY | |||||
| University of South Florida | ||||||||
| 593102112 | IRC 115 | $77,440 | CF CARE CENTER | |||||
| University of South Florida | ||||||||
| 593102112 | IRC 115 | $59,497 | RESEARCH | |||||
| University of South Florida | ||||||||
| 593102112 | IRC 115 | $4,000 | TRAINING | |||||
| University of Southern California | ||||||||
| 951642394 | 501c(3) | $197,187 | CF CARE CENTER | |||||
| University of Southern California | ||||||||
| 951642394 | 501c(3) | $53,911 | CLINICAL RESEARCH CENTER | |||||
| University of Southern California | ||||||||
| 951642394 | 501c(3) | $163,995 | RESEARCH | |||||
| University of Texas Health Science Center at Tyler | ||||||||
| 756001354 | 501C(3) | $88,560 | CF CARE CENTER | |||||
| University of Texas Health Science Center at Tyler | ||||||||
| 756001354 | 501C(3) | $18,739 | CLINICAL RESEARCH CENTER | |||||
| University of Texas Health Science Center at Tyler | ||||||||
| 756001354 | 501C(3) | $149,999 | RESEARCH | |||||
| University of Texas MD Anderson Cancer Center | ||||||||
| 746001118 | IRC 115 | $125,000 | RESEARCH | |||||
| University of Utah | ||||||||
| 876000525 | 501c(3) | $60,480 | ADULT CARE | |||||
| University of Utah | ||||||||
| 876000525 | 501c(3) | $648,411 | CF CARE CENTER | |||||
| University of Utah | ||||||||
| 876000525 | 501c(3) | $209,221 | CLINICAL RESEARCH CENTER | |||||
| University of Utah | ||||||||
| 876000525 | 501c(3) | $56,000 | QUALITY IMPROVEMENT | |||||
| University of Utah | ||||||||
| 876000525 | 501c(3) | $67,000 | TRAINING | |||||
| University of Washington | ||||||||
| 916001537 | IRC 115 | $243,970 | CF CARE CENTER | |||||
| University of Washington | ||||||||
| 916001537 | IRC 115 | $414,043 | CLINICAL CARE RESEARCH | |||||
| University of Washington | ||||||||
| 916001537 | IRC 115 | $1,709,639 | CLINICAL RESEARCH | |||||
| University of Washington | ||||||||
| 916001537 | IRC 115 | $477,035 | CLINICAL RESEARCH CENTER | |||||
| University of Washington | ||||||||
| 916001537 | IRC 115 | $2,155,537 | CLINICAL RESEARCH STUDY | |||||
| University of Washington | ||||||||
| 916001537 | IRC 115 | $55,592 | PILOT STUDY | |||||
| University of Washington | ||||||||
| 916001537 | IRC 115 | $374,000 | RESEARCH | |||||
| University of Washington | ||||||||
| 916001537 | IRC 115 | $900,000 | RESEARCH CENTER | |||||
| University of Washington | ||||||||
| 916001537 | IRC 115 | $304,000 | RESEARCH STUDY | |||||
| University of Washington | ||||||||
| 916001537 | IRC 115 | $23,906 | THERAPEUTICS DISCOVERY RESEARCH | |||||
| University of Washington | ||||||||
| 916001537 | IRC 115 | $184,100 | TRAINING | |||||
| University Psychiatric Practice Inc | ||||||||
| 161426208 | 501C(3) | $26,888 | CF CARE CENTER | |||||
| University System of New Hampshire | ||||||||
| 026000937 | 501C(3) | $46,000 | QUALITY IMPROVEMENT | |||||
| Utah State University | ||||||||
| 876000528 | 501c(3) | $124,981 | RESEARCH | |||||
| Valley Children's Hospital | ||||||||
| 941294954 | 501C(3) | $117,300 | CF CARE CENTER | |||||
| Vanderbilt University Medical Center | ||||||||
| 352528741 | 501c(3) | $55,691 | ADULT CARE | |||||
| Vanderbilt University Medical Center | ||||||||
| 352528741 | 501c(3) | $415,748 | CF CARE CENTER | |||||
| Vanderbilt University Medical Center | ||||||||
| 352528741 | 501c(3) | $163,621 | CLINICAL RESEARCH CENTER | |||||
| Vanderbilt University Medical Center | ||||||||
| 352528741 | 501c(3) | $112,000 | QUALITY IMPROVEMENT | |||||
| Variety Children's Hospital | ||||||||
| 590638499 | 501C(3) | $60,120 | CF CARE CENTER | |||||
| VHS Children's Hospital of Michigan Inc | ||||||||
| 272845064 | C CORP | $107,400 | CF CARE CENTER | |||||
| Via Christi Hospitals Wichita Inc | ||||||||
| 481172106 | 501C(3) | $155,340 | CF CARE CENTER | |||||
| Virginia Commonwealth University | ||||||||
| 546001758 | IRC 115 | $23,520 | ADHERENCE | |||||
| Virginia Commonwealth University | ||||||||
| 546001758 | IRC 115 | $337,871 | CF CARE CENTER | |||||
| Virginia Commonwealth University | ||||||||
| 546001758 | IRC 115 | $107,087 | CLINICAL RESEARCH CENTER | |||||
| Virginia Commonwealth University | ||||||||
| 546001758 | IRC 115 | $111,998 | QUALITY IMPROVEMENT | |||||
| Virginia Polytechnic Institute and State University | ||||||||
| 546001805 | 501C(3) | $166,921 | RESEARCH | |||||
| Wake Forest University Health Sciences | ||||||||
| 223849199 | 501c(3) | $43,047 | ADULT CARE | |||||
| Wake Forest University Health Sciences | ||||||||
| 223849199 | 501c(3) | $175,612 | CF CARE CENTER | |||||
| Wake Forest University Health Sciences | ||||||||
| 223849199 | 501c(3) | $135,817 | CLINICAL RESEARCH CENTER | |||||
| Warren Clinic Inc | ||||||||
| 731310891 | 501C(3) | $123,110 | CF CARE CENTER | |||||
| WASHINGTON HOSPITAL CENTER CORPORATION | ||||||||
| 521272129 | 501C(3) | $43,047 | ADULT CARE | |||||
| Washington University | ||||||||
| 430653611 | 501c(3) | $506,972 | CF CARE CENTER | |||||
| Washington University | ||||||||
| 430653611 | 501c(3) | $441,996 | CLINICAL CARE RESEARCH | |||||
| Washington University | ||||||||
| 430653611 | 501c(3) | $254,010 | CLINICAL RESEARCH CENTER | |||||
| Washington University | ||||||||
| 430653611 | 501c(3) | $596,645 | CLINICAL RESEARCH STUDY | |||||
| Washington University | ||||||||
| 430653611 | 501c(3) | $250,000 | RESEARCH CENTER | |||||
| Washington University | ||||||||
| 430653611 | 501c(3) | $865,569 | THERAPEUTICS DISCOVERY RESEARCH | |||||
| Wayne State University | ||||||||
| 386028429 | 501c(3) | $110,810 | CF CARE CENTER | |||||
| Wayne State University | ||||||||
| 386028429 | 501c(3) | $140,496 | CLINICAL RESEARCH CENTER | |||||
| Weill Medical College of Cornell University | ||||||||
| 131623978 | 501C(3) | $245,582 | TRAINING | |||||
| West Virginia University Research Corporation | ||||||||
| 550665758 | 501C(3) | $201,530 | CF CARE CENTER | |||||
| West Virginia University Research Corporation | ||||||||
| 550665758 | 501C(3) | $76,942 | CLINICAL RESEARCH CENTER | |||||
| West Virginia University Research Corporation | ||||||||
| 550665758 | 501C(3) | $220,218 | CLINICAL RESEARCH STUDY | |||||
| Western Michigan University School of Medicine | ||||||||
| 454135256 | 501C(3) | $40,917 | CF CARE CENTER | |||||
| Yale University | ||||||||
| 060646973 | 501c(3) | $77,534 | ADULT CARE | |||||
| Yale University | ||||||||
| 060646973 | 501c(3) | $229,630 | CF CARE CENTER | |||||
| Yale University | ||||||||
| 060646973 | 501c(3) | $111,981 | PILOT STUDY | |||||
| Yale University | ||||||||
| 060646973 | 501c(3) | $335,930 | RESEARCH | |||||
| Yale University | ||||||||
| 060646973 | 501c(3) | $75,000 | RESEARCH STUDY | |||||
| Yale University | ||||||||
| 060646973 | 501c(3) | $109,000 | TRAINING | |||||
| ZEPHYRX LLC | ||||||||
| 842846558 | LLC | $95,534 | CF CARE CENTER | |||||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 215 | Total501c3OrgCnt |
| Total Other Org | 9 | TotalOtherOrgCnt |
Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp (2 entries)
| Grant TypeGrantTypeTxt | RecipientRecipientCnt | Cash GrantCashGrantAmt |
|---|---|---|
| FELLOWSHIPS | 69 | $580,008 |
| COMMUNITY IMPACT | 7 | $68,903 |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Schedule I, Part III | SEE SUPPLEMENTAL INFORMATION FOR PART I, LINE 2 FOR PROCEDURES USED TO MONITOR THESE GRANTS. |
| Schedule I, Part I, Line 2 Procedures for monitoring use of grant funds | THE CF FOUNDATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANT FUNDS AWARDED TO ENTITIES INSIDE OF THE U.S. SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE CF FOUNDATION'S SCIENTIFIC STAFF TO ASSESS RESEARCH PROGRESS and grants management staff review financial reports to ensure funders were used as intended. THE FINAL GRANT PAYMENT IS TYPICALLY CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES AND THE FINAL SCIENTIFIC REPORT. In addition, the CF Foundation awards scientific research grants to an academic institution and its affiliate where a key employee also performs part-time cystic fibrosis research. The CF Foundation, the institution, and the individual have established and agreed upon appropriate safeguards to manage potential conflicts of interest, while enabling this mission-critical research to continue. |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Compensation Committee | Yes (X) | CompensationCommitteeInd |
| Independent Consultant | Yes (X) | IndependentConsultantInd |
| Form990 Of Other Organizations | Yes (X) | Form990OfOtherOrganizationsInd |
| Written Employment Contract | Yes (X) | WrittenEmploymentContractInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | false | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | Yes (true) | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | false | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | Yes (true) | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | false | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | false | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | false | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | Yes (true) | AnyNonFixedPaymentsInd |
| Initial Contract Exception | false | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (13 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| MICHAEL P BOYLE MD | ||||||||||||||
| PRESIDENT & CEO | $721,173 | $0 | $311,579 | $0 | $21,636 | $0 | $163,962 | $0 | $56,801 | $0 | $1,275,151 | $0 | $110,514 | $0 |
| IRENA BARISIC | ||||||||||||||
| EVP & CHIEF OPERATING & FINANCIAL OFFICER | $610,580 | $0 | $150,219 | $0 | $1,140 | $0 | $80,370 | $0 | $2,246 | $0 | $844,555 | $0 | $0 | $0 |
| MICHAEL B CAVADEL | ||||||||||||||
| SVP, CHIEF LEGAL OFFICER | $470,090 | $0 | $86,964 | $0 | $1,081 | $0 | $65,989 | $0 | $37,073 | $0 | $661,197 | $0 | $0 | $0 |
| STEVEn ROWE MD | ||||||||||||||
| EVP, Chief Scientific Officer | $438,558 | $0 | $93,679 | $0 | $2,418 | $0 | $78,210 | $0 | $54,341 | $0 | $667,206 | $0 | $0 | $0 |
| JOHN C MAHLER JR MD | ||||||||||||||
| CHIEF INVESTMENT OFFICER | $766,301 | $0 | $1,091,398 | $0 | $9,169 | $0 | $34,656 | $0 | $41,103 | $0 | $1,942,627 | $0 | $0 | $0 |
| BRUCE MARSHALL MD | ||||||||||||||
| Chief Medical Officer Ending 7/1/2024 | $359,859 | $0 | $150,051 | $0 | $5,562 | $0 | $34,656 | $0 | $0 | $0 | $550,128 | $0 | $39,825 | $0 |
| JOHN P CLANCY MD | ||||||||||||||
| SVP, CLINICAL RESEARCH | $523,667 | $0 | $138,635 | $0 | $7,524 | $0 | $41,817 | $0 | $53,561 | $0 | $765,204 | $0 | $33,111 | $0 |
| ALBERT FARO MD | ||||||||||||||
| Chief Medical Officer Beg. 7/1/2024 | $480,427 | $0 | $83,943 | $0 | $7,302 | $0 | $37,474 | $0 | $62,444 | $0 | $671,590 | $0 | $14,536 | $0 |
| EARL A LEE | ||||||||||||||
| MANAGING DIRECTOR, INVESTMENTS | $665,920 | $0 | $558,525 | $0 | $1,824 | $0 | $349,255 | $0 | $19,228 | $0 | $1,594,752 | $0 | $174,565 | $0 |
| ERIC KOEHRSEN | ||||||||||||||
| MANAGING DIRECTOR, INVESTMENTS | $600,659 | $0 | $374,293 | $0 | $1,153 | $0 | $248,801 | $0 | $55,801 | $0 | $1,280,707 | $0 | $156,672 | $0 |
| ANDREW LEWIS | ||||||||||||||
| MANAGING DIRECTOR, INVESTMENTS | $469,402 | $0 | $891,950 | $0 | $2,102 | $0 | $20,856 | $0 | $17,404 | $0 | $1,401,714 | $0 | $0 | $0 |
| GENTIANA S AROVAS | ||||||||||||||
| MANAGING DIRECTOR, INVESTMENTS OPERATIONS | $478,673 | $0 | $161,598 | $0 | $2,261 | $0 | $122,786 | $0 | $54,341 | $0 | $819,659 | $0 | $53,221 | $0 |
| ENRIQUE LIN SHIAO PHD | ||||||||||||||
| Principal of Mission Related Investments | $241,850 | $0 | $265,203 | $0 | $638 | $0 | $34,656 | $0 | $47,295 | $0 | $589,642 | $0 | $0 | $0 |
Supplemental Information Detail SupplementalInformationDetail (3 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Schedule J, Part I, Line 4b Supplemental nonqualified retirement plan | THE EXECUTIVE LISTED BELOW PARTICIPATED IN A NONQUALIFIED DEFERRED COMPENSATION PLAN, UNDER WHICH INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO THE DESIGNATED VESTING DATE. TOTAL PAYMENTS MADE BY THE PLAN TO THE EXECUTIVE DURING THE REPORTING YEAR IS PROVIDED BELOW: NAME: MICHAEL P. BOYLE, M.D. AMOUNT: $14,112 |
| Schedule J, Part I, Line 5a Compensation contingent on revenues of the organization | The CF Foundation Investments Department Incentive Compensation and Retention Plan provides annual cash incentives to the CIO and certain Investment department staff, based on both quantitative and qualitative performance. For eligible staff, a portion is deferred and vests after three years, accruing interest tied to portfolio returns during the deferral period. Awards may be forfeited or paid pro-rata upon death, disability, or separation from service. |
| Schedule J, Part I, Line 7 Non-fixed payments | SEVERAL INDIVIDUALS LISTED IN FORM 990, PART VII, SECTION A, LINE 1A, PARTICIPATED IN THE CF FOUNDATION'S INCENTIVE COMPENSATION PLAN, FROM WHICH NON-FIXED PAYMENTS NOT DESCRIBED IN LINES 5 AND 6 WERE PAID. THE INCENTIVE COMPENSATION PLAN MAKES NON-FIXED PAYMENTS SUBJECT TO, AND BASED ON the achievement of long-term performance objectives established in ADVANCE BY THE COMPENSATION COMMITTEE OF THE CF FOUNDATION'S BOARD OF TRUSTEES. IN ADDITION, THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS THAT RELATE TO A THREE-YEAR PERFORMANCE PERIOD, SUBJECT TO, AND BASED ON, ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PLAN DO NOT INCLUDE PROGRAM RELATED REVENUES SUCH AS ROYALTY STREAMS OR LUMP-SUM PAYMENTS, RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. |
Schedule M IRS990ScheduleM
Cars And Other Vehicles CarsAndOtherVehiclesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contribution | 34 | ContributionCnt |
| Noncash Contributions Rpt F990 | $25,196 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | Other - NET CASH RECEIPTS | MethodOfDeterminingRevenuesTxt |
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contribution | 115 | ContributionCnt |
| Noncash Contributions Rpt F990 | $1,647,245 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | Other - NET CASH RECEIPTS | MethodOfDeterminingRevenuesTxt |
Other Non Cash Contri Table OtherNonCashContriTableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Desc | TANGIBLE AND SERVICE AUCTION ITEMS | Desc |
| Contribution | 12633 | ContributionCnt |
| Noncash Contributions Rpt F990 | $7,104,616 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | Other - NET CASH RECEIPTS | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form8283 Received | 1 | Form8283ReceivedCnt |
| Any Property That Must Be Held | false | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | Yes (true) | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | Yes (true) | ThirdPartiesUsedInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Schedule M, Part I, Line 6 | FormAndLineReferenceDesc |
| Explanation | THE CF FOUNDATION CONTRACTS WITH A THIRD PARTY TO ADMINISTER ITS VEHICLE DONATION PROGRAM AND SELL DONATED VEHICLES. THE THIRD PARTY DOES NOT SOLICIT DONATIONS. | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (11 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Form 990, Part III, Line 1 | THE MISSION OF THE CYSTIC FIBROSIS FOUNDATION (CF FOUNDATION) IS TO CURE CYSTIC FIBROSIS (CF) AND TO PROVIDE ALL PEOPLE WITH CF THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES BY FUNDING RESEARCH AND DRUG DEVELOPMENT, PARTNERING WITH THE CF COMMUNITY, AND ADVANCING HIGH-QUALITY, SPECIALIZED CARE. |
| Form 990, Part III, Line 4a | MEDICAL AND RESEARCH PROGRAMS - THE CF FOUNDATION IS THE WORLD'S LEADER IN THE SEARCH FOR A CURE FOR CF, A PROGRESSIVE, GENETIC DISEASE THAT AFFECTS APPROXIMATELY 40,000 PEOPLE IN THE UNITED STATES, AND MORE THAN 100,000 WORLDWIDE, FROM ANY BACKGROUND. THE CF FOUNDATION ANNUALY FUNDS OVER $250 MILLION IN RESEARCH TO HELP DISCOVER AND DEVELOP EFFECTIVE CF THERAPIES, LEARN MORE ABOUT THE SCIENCE OF CF, AND PROMOTE HIGHLY SPECIALIZED CARE. DUE IN PART TO THE CF FOUNDATION'S EFFORTS, THE AVERAGE LIFE EXPECTANCY OF PEOPLE BORN TODAY WITH CF IS NOW MORE THAN 60 YEARS OF AGE, MORE THAN DOUBLE WHAT IT WAS IN 2000. THE CF FOUNDATION FUNDS DISCOVERY AND DEVELOPMENT RESEARCH CONDUCTED BY BIOTECHNOLOGY AND PHARMACEUTICAL COMPANIES AND ACADEMIC RESEARCH CENTERS. THE CF FOUNDATION DRUG DEVELOPMENT PIPELINE HAS DOZENS OF THERAPIES IN DEVELOPMENT INCLUDING TREATMENTS THAT ADDRESS COMPLICATIONS, LIKE INFECTIONS, AND GENETIC THERAPIES THAT COULD ONE DAY LEAD TO A CURE FOR ALL PEOPLE WITH CF, INCLUDING THOSE WITH RARE AND NONSENSE DISEASE-CAUSING MUTATIONS. THE CF FOUNDATION THERAPEUTICS LAB HELPS EXPEDITE THE EARLY STAGES OF DRUG DISCOVERY THAT COULD CORRECT OR IMPROVE THE FUNCTION OF THE DEFECTIVE CYSTIC FIBROSIS TRANSMEMBRANE CONDUCTANCE REGULATOR (CFTR) PROTEIN. THE LAB BRIDGES THE GAP BETWEEN DISCOVERIES MADE AT ACADEMIC INSTITUTIONS AND THE DEVELOPMENT OF NEW MEDICATIONS BY THE PHARMACEUTICAL INDUSTRY. TO SUPPORT ITS MISSION, THE CF FOUNDATION ALSO FUNDS AND ACCREDITS A NATIONWIDE NETWORK OF MORE THAN 100 CARE CENTERS AT HOSPITALS ACROSS THE COUNTRY. THIS NETWORK PROVIDES THE BEST CARE FOR PEOPLE WITH CF AND HAS BEEN RECOGNIZED BY THE NATIONAL INSTITUTES OF HEALTH AS A MODEL OF CARE FOR A CHRONIC DISEASE. IN 2024, THE FOUNDATION PROVIDED MORE THAN $45 MILLION IN FUNDING FOR CARE CENTERS AND CLINICIANS. THIS WORK INCLUDES DEVELOPING CARE GUIDELINES, FUNDING PROFESSIONAL DEVELOPMENT AWARDS, AND ADVANCING QUALITY IMPROVEMENT OF THE HIGHLY SPECIALIZED CARE NEEDED TO LIVE WITH THE DISEASE. THE CF FOUNDATION ALSO MANAGES A PATIENT REGISTRY OF MORE THAN 30,000 PEOPLE WITH CF. THIS INVALUABLE TOOL HELPS IDENTIFY NEW HEALTH TRENDS TO INFORM DEVELOPMENT OF EFFECTIVE TREATMENTS AND IMPROVEMENT OF QUALITY CF CARE. THE PATIENT REGISTRY IS AN INTERNATIONALLY RECOGNIZED MODEL FOR NONPROFIT HEALTH ORGANIZATIONS, INCLUDING OTHER CF ADVOCACY GROUPS. |
| Form 990, Part III, Line 4c | COMMUNITY SERVICES - THE CF FOUNDATION PROVIDES SUPPORT FOR PEOPLE WITH CF AND THEIR FAMILIES AS THEY MANAGE THE PHYSICAL, EMOTIONAL, AND FINANCIAL CHALLENGES OF LIVING WITH CF. THIS IS ACHIEVED BY SUPPORTING HIGH QUALITY, SPECIALIZED CARE, OFFERING RESOURCES AND TOOLS TO HELP PEOPLE DIRECT THEIR OWN CARE, AND DEVELOPING PROGRAMS TO HELP PEOPLE WITH CF AND THEIR LOVED ONES CONNECT, LEARN FROM ONE ANOTHER, AND CELEBRATE THEIR JOURNEYS TOGETHER. LACK OF ADEQUATE INSURANCE COVERAGE FOR CF THERAPIES HAS BEEN A CONSISTENT CONCERN FOR THOSE LIVING WITH THE DISEASE AND THEIR FAMILIES. THE CF FOUNDATION'S COMPASS PROGRAM IS A HIGHLY PERSONALIZED SERVICE THAT HELPS PEOPLE LIVING WITH CF AND THEIR FAMILIES NAVIGATE CHALLENGES RELATED TO COMPLEX INSURANCE, FINANCIAL, LEGAL, AND OTHER ISSUES THAT CAN PREVENT ACCESS TO CF THERAPIES AND CARE. IN 2024, SKILLED COMPASS CASE MANAGERS RESPONDED TO MORE THAN 6,000 INQUIRIES FROM PEOPLE WITH CF, THEIR FAMILIES, AND THEIR HEALTHCARE PROVIDERS, ASSISTING THEM WITH UNDERSTANDING AND MAXIMIZING THEIR INSURANCE COVERAGE AND BENEFITS, AS WELL AS OFFERING SUPPORT FOR OTHER ASPECTS OF DAILY LIFE WITH CF. CASE MANAGERS ALSO HELPED CONNECT INDIVIDUALS WITH CF TO RESOURCES FOR CHALLENGES RELATED TO LIFE WITH CF THAT CAN AFFECT ACCESS, INCLUDING BASIC LIVING AND FOOD EXPENSES. THROUGH THESE EFFORTS, THE CF FOUNDATION SAVED CLIENTS MORE THAN $3 MILLION IN 2024. THE CF FOUNDATION TYPICALLY HOSTS MORE THAN 1,000 NATIONAL AND CHAPTER EVENTS ANNUALLY FOR PEOPLE WITH CF, THEIR FAMILY MEMBERS, AND VOLUNTEERS. VIRTUAL EVENTS, INCLUDING BREATHECON, RESEARCHCON, AND ROSEUP, WERE DESIGNED BY AND FOR ADULTS WITH CF, THEIR FAMILIES, CLINICIANS, AND RESEARCHERS AS A WAY FOR THE CF COMMUNITY TO CONNECT, SHARE, AND LEARN FROM PEERS THROUGH OPEN AND HONEST DIALOGUE. |
| Form 990, Part III, Line 4b | PUBLIC AND PROFESSIONAL INFORMATION AND EDUCATION - TO SUPPORT ITS MISSION, THE CF FOUNDATION CREATED EDUCATIONAL CONTENT DESIGNED TO INFORM AND SUPPORT PEOPLE WITH CF AND THEIR FAMILIES, MEDICAL PROFESSIONALS, AND THE GENERAL PUBLIC ABOUT THE DISEASE THAT IS MADE AVAILABLE ON ITS WEBSITE AND SOCIAL MEDIA CHANNELS. EACH YEAR, MILLIONS VISIT THE CF FOUNDATION'S WEBSITE, WHICH IS REGULARLY UPDATED WITH A LARGE VOLUME OF ORIGINAL AND UPDATED CONTENT, INCLUDING NEWS STORIES, EDUCATIONAL PAGES, VIDEOS, AND COMMUNITY BLOG POSTS. YEAR-ROUND MEETINGS AND CONFERENCES PROVIDE UPDATES FOR CF RESEARCHERS, PHYSICIANS, AND ALLIED HEALTH PROFESSIONALS AND CREATE OPPORTUNITIES FOR COLLABORATION ON FUTURE CF RESEARCH PROJECTS AND TREATMENT/CARE EFFORTS. |
| Form 990, Part VI, Line 10b | THE CF FOUNDATION HAS NUMEROUS OFFICES LOCATED ACROSS THE U.S. THAT ADHERE TO THE POLICIES AND PROCEDURES OF THE ORGANIZATION. |
| Form 990, Part VI, Line 11b Review of form 990 by governing body | THE CF FOUNDATION PRESENTS AN INITIAL DRAFT OF THE FORM 990 TO ITS BOARD OF TRUSTEES FOR REVIEW AND FEEDBACK. THE COMPENSATION COMMITTEE OF THE BOARD, ALONG WITH THE CF FOUNDATION'S ERISA ATTORNEYS, SPECIFICALLY REVIEW THE EXECUTIVE COMPENSATION SECTIONS OF THE FORM 990. ADDITIONALLY, THE AUDIT COMMITTEE OF THE BOARD REVIEWS THE FORM 990 AS PART OF ITS CHARTERED RESPONSIBILITIES. THE BOARD OF TRUSTEES RECEIVES THE FINAL, COMPLETED VERSION OF THE FORM 990 PRIOR TO ITS FILING. |
| Form 990, Part VI, Line 12c Conflict of interest policy | THE CF FOUNDATION HAS A WRITTEN CONFLICT OF INTEREST POLICY, WHICH REQUIRES OFFICERS, TRUSTEES, AND KEY EMPLOYEES TO ANNUALLY DISCLOSE THEIR INTERESTS THAT COULD GIVE RISE TO CONFLICTS. BOARD OFFICER AND TRUSTEE DISCLOSURES ARE REVIEWED BY THE BOARD'S GOVERNANCE COMMITTEE. KEY EMPLOYEE DISCLOSURES ARE REVIEWED BY THE CHIEF LEGAL OFFICER. THE CF FOUNDATION WILL WORK TO MITIGATE ANY CONFLICTS OF INTEREST. IF A CONFLICT OF INTEREST IS UNABLE TO BE MITIGATED, THE CF FOUNDATION MAY REQUIRE OTHER ACTIONS AS APPROPRIATE. |
| Form 990, Part VI, Line 15a Process to establish compensation of top management official | THE TOTAL COMPENSATION OF EXECUTIVES AT THE CF FOUNDATION IS SPECIFICALLY DESIGNED TO ATTRACT AND RETAIN THE HIGHEST QUALIFIED TALENT TO FULFILL THE CF FOUNDATION'S CRITCALLY IMPORTANT MISSION. THE INDEPENDENT COMPENSATION COMMITTEE OF THE CF FOUNDATION'S BOARD OF TRUSTEES FOLLOWS THE PROCESS DESCRIBED IN THE IRS INTERMEDIATE SANCTIONS RULES WHEN DETERMINING COMPENSATION. SPECIFICALLY, THE COMMITTEE: (1) IS COMPOSED ENTIRELY OF NON-EMPLOYEE VOLUNTEER DIRECTORS WHO HAVE NO FAMILIAL, BUSINESS OR SIGNIFICANT PERSONAL RELATIONSHIPS WITH THE CF FOUNDATION OR ITS EXECUTIVES; (2) ENGAGES AN INDEPENDENT COMPENSATION CONSULTING FIRM TO COMPILE APPROPRIATE COMPARABILITY DATA (INCLUDING COMPENSATION MARKET INFORMATION FOR PEERS WITH WHOM THE CF FOUNDATION COMPETES FOR EXECUTIVE TALENT) FOR COMMITTEE RELIANCE. THE COMMITTEE MEETS WITH REPRESENTATIVES OF THE CONSULTING FIRM TO REVIEW THIS DATA IN DETAIL; (3) REVIEWS ALL ELEMENTS OF EACH EXECUTIVE'S COMPENSATION, BEFORE ANY NEW COMPENSATION ARRANGEMENT IS IMPLEMENTED, TO EVALUATE THE REASONABLENESS OF THE ARRANGEMENT BASED ON THE APPROPRIATE COMPARABILITY DATA AND THE EXECUTIVE'S PERFORMANCE; AND (4) DOCUMENTS, CONCURRENTLY WITH ITS DETERMINATION, THE BASIS FOR ITS DETERMINATION IN THE MINUTES OF ITS MEETING. THESE MINUTES ARE REVIEWED, REVISED IF NECESSARY AND APPROVED AT THE FOLLOWING MEETING OF THE COMMITTEE. |
| Form 990, Part VI, Line 15b Process to establish compensation of other employees | THE PROCESS DESCRIBED ABOVE WAS most recently used TO ESTABLISH 2024 COMPENSATION FOR THE FOLLOWING OFFICERS and KEY EMPLOYEES OF THE ORGANIZATION: PRESIDENT AND CEO EXECUTIVE VICE PRESIDENT, CHIEF OPERATING & FINANCIAL OFFICER CHIEF INVESTMENT OFFICER SENIOR VICE PRESIDENT, CLINICAL RESEARCH EXECUTIVE VICE PRESIDENT AND CHIEF SCIENTIFIC OFFICER STRATEGIC ADVISOR, EXECUTIVE VICE PRESIDENT, AND CHIEF MEDICAL OFFICER SENIOR VICE PRESIDENT AND CHIEF MEDICAL OFFICER |
| Form 990, Part VI, Line 19 Required documents available to the public | THE CF FOUNDATION MADE THE FOLLOWING DOCUMENTS AVAILABLE TO THE PUBLIC DURING THE TAX YEAR: THE CF FOUNDATION'S FORMS 1023 AND 990 WERE AVAILABLE ON ITS WEBSITE, WWW.CFF.ORG. THE CF FOUNDATION'S GOVERNING DOCUMENTS (BYLAWS AND ARTICLES OF INCORPORATION) WERE AVAILABLE UPON REQUEST BY CONTACTING THE CF FOUNDATION IN WRITING. THE CF FOUNDATION'S BOARD AND OFFICER CONFLICT OF INTEREST POLICY AND THE AUDITED FINANCIAL STATEMENTS WERE AVAILABLE ON THE CF FOUNDATION'S WEBSITE, WWW.CFF.ORG. |
| Form 990, Part VIII, Line 11d Other Miscellaneous Revenue | - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; - Total Revenue: 0, Related or Exempt Function Revenue: 0, Unrelated Business Revenue: 0, Revenue Excluded from Tax Under Sections 512, 513, or 514: 0; |
Schedule R IRS990ScheduleR
Id Disregarded Entities IdDisregardedEntitiesGrp
Disregarded Entity Name DisregardedEntityName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Oaktree QR CLV LP | BusinessNameLine1Txt |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 333 S GRAND AVE | AddressLine1Txt |
| City | LOS ANGELES | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 90071 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Primary Activities | Investments | PrimaryActivitiesTxt |
| Legal Domicile State | DE | LegalDomicileStateCd |
| Total Income | $251,866 | TotalIncomeAmt |
| End Of Year Assets | $13,751,866 | EndOfYearAssetsAmt |
Direct Controlling Entity Name DirectControllingEntityName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Cystic Fibrosis Foundation | BusinessNameLine1Txt |
Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp
Disregarded Entity Name DisregardedEntityName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC | BusinessNameLine1Txt |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 4550 MONTGOMERY AVE STE 110 | AddressLine1Txt |
| City | BETHESDA | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 20814 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 912059167 | EIN |
| Primary Activities | RESEARCH | PrimaryActivitiesTxt |
| Legal Domicile State | MD | LegalDomicileStateCd |
| Exempt Code Section | 501(c)(3) | ExemptCodeSectionTxt |
| Public Charity Status | Type I | PublicCharityStatusTxt |
Direct Controlling Entity Name DirectControllingEntityName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CFF | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Controlled Organization | Yes (true) | ControlledOrganizationInd |
Id Related Org Txbl Partnership IdRelatedOrgTxblPartnershipGrp (3 entries)
| Address Line1USAddress/AddressLine1Txt | Address Line2USAddress/AddressLine2Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | EINEIN | Primary ActivitiesPrimaryActivitiesTxt | Legal Domicile StateLegalDomicileStateCd | Predominant Income TypePredominantIncomeTypeTxt | Share Of Total IncomeShareOfTotalIncomeAmt | Share Of EOY AssetsShareOfEOYAssetsAmt | Disproportionate AllocationsDisproportionateAllocationsInd | General Or Managing PartnerGeneralOrManagingPartnerInd | OwnershipOwnershipPct |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| AXAR QR OPPORTUNISTIC CREDIT FUND LP | |||||||||||||
| 402 WEST 13TH STREET | FLOOR 5 | NEW YORK | NY | 10014 | 933694283 | INVESTMENTS | DE | Excluded | $838,845 | $22,761,571 | false | false | 0.92141 |
| LF-CFF INCUBATOR FUND II LP | |||||||||||||
| 800 BOYLSTON STREET SUITE 1715 | BOSTON | MA | 02199 | 873507143 | INVESTMENTS | DE | Excluded | -$641,159 | $31,178 | false | false | 1 | |
| LF-CFF INCUBATOR FUND LP | |||||||||||||
| 800 BOYLSTON STREET SUITE 1715 | BOSTON | MA | 02199 | 851584805 | INVESTMENTS | DE | Excluded | -$1,686,725 | $14,780,680 | false | false | 1 | |
Id Related Org Txbl Corp Tr IdRelatedOrgTxblCorpTrGrp (4 entries)
| Primary ActivitiesPrimaryActivitiesTxt | Legal Domicile StateLegalDomicileStateCd | Business Name Line1DirectControllingEntityName/BusinessNameLine1Txt | Entity TypeEntityTypeTxt | Controlled OrganizationControlledOrganizationInd |
|---|---|---|---|---|
| CHARITABLE REMAINDER TRUST (2) | ||||
| FIDUCIARY | CA | NA | Trust | false |
| CHARITABLE REMAINDER TRUST | ||||
| FIDUCIARY | TN | NA | Trust | false |
| CHARITABLE REMAINDER TRUST | ||||
| FIDUCIARY | NM | NA | Trust | false |
| PERPETUAL TRUST | ||||
| FIDUCIARY | MA | NA | Trust | false |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Receipt Of Int Annts Rnts Rylts | false | ReceiptOfIntAnntsRntsRyltsInd |
| Gift Grnt Or Cap Contri To Oth Org | Yes (true) | GiftGrntOrCapContriToOthOrgInd |
| Gift Grnt Cap Contri From Oth Org | false | GiftGrntCapContriFromOthOrgInd |
| Loans Or Guarantees To Other Org | false | LoansOrGuaranteesToOtherOrgInd |
| Loans Or Guarantees From Oth Org | false | LoansOrGuaranteesFromOthOrgInd |
| Div Related Organization | false | DivRelatedOrganizationInd |
| Asset Sale To Other Org | false | AssetSaleToOtherOrgInd |
| Asset Purchase From Other Org | false | AssetPurchaseFromOtherOrgInd |
| Asset Exchange | false | AssetExchangeInd |
| Rental Of Facilities To Oth Org | false | RentalOfFacilitiesToOthOrgInd |
| Rental Of Fclts From Oth Org | false | RentalOfFcltsFromOthOrgInd |
| Perform Of Services For Oth Org | false | PerformOfServicesForOthOrgInd |
| Perform Of Services By Other Org | false | PerformOfServicesByOtherOrgInd |
| Sharing Of Facilities | false | SharingOfFacilitiesInd |
| Paid Employees Sharing | false | PaidEmployeesSharingInd |
| Reimbursement Paid To Other Org | false | ReimbursementPaidToOtherOrgInd |
| Reimbursement Paid By Other Org | false | ReimbursementPaidByOtherOrgInd |
| Transfer To Other Org | false | TransferToOtherOrgInd |
| Transfer From Other Org | false | TransferFromOtherOrgInd |
Transactions Related Org TransactionsRelatedOrgGrp (3 entries)
| Transaction TypeTransactionTypeTxt | InvolvedInvolvedAmt | Method Of Amount DeterminationMethodOfAmountDeterminationTxt |
|---|---|---|
| AXAR QR OPPORTUNISTIC CREDIT FUND LP | ||
| B | $16,000,000 | CASH |
| LF-CFF INCUBATOR FUND LP | ||
| B | $6,283,000 | CASH |
| LF-CFF INCUBATOR FUND II LP | ||
| B | $494,000 | CASH |