PSC PARTNERS SEEKING A CURE: Form 990, tax year 2013
View the entire original 990 at ProPublica ↗
- Organization
- PSC PARTNERS SEEKING A CURE (EIN 20-2112635)
- Tax period
- 2013-01-01 to 2013-12-31
- Filed
- 2014-04-23
- IRS object ID
- 201421139349300422
- Schema version
- 2013v3.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2014-04-23T15:38:15-05:00 | ReturnTs |
| Tax Period End | 2013-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | POYSTI & ADAMS LLC | BusinessNameLine1 |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 400 S COLORADO BLVD STE 690 | AddressLine1 |
| City | DENVER | City |
| State | CO | State |
| ZIP Code | 80246 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2013-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 202112635 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | PSC PARTNERS SEEKING A CURE | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | PSCP | BusinessNameControlTxt |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 5237 SOUTH KENTON WAY | AddressLine1 |
| City | ENGLEWOOD | City |
| State | CO | State |
| ZIP Code | 80111 | ZIPCode |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | RICKY SAFER | PersonNm |
| Person Title | CEO | PersonTitleTxt |
| Signature | 2014-04-14 | SignatureDt |
| Discuss With Paid Preparer | Yes (true) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | CHARLES W POYSTI CPA CGMA | PreparerPersonNm |
| PTIN | P00070003 | PTIN |
| Phone | 3037333796 | PhoneNum |
| Preparation | 2014-04-14 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2013 | TaxYr |
| Build TS | 2015-11-30 17:44:51Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | RICKY SAFER | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 5237 SOUTH KENTON WAY | AddressLine1 |
| City | ENGLEWOOD | City |
| State | CO | State |
| ZIP Code | 80111 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $794,453 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.PSCPARTNERS.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 2005 | FormationYr |
| Legal Domicile State | CO | LegalDomicileStateCd |
| Activity Or Mission | THE MISSION OF THE PSC PARTNERS SEEKING A CURE FOUNDATION IS TO PROVIDE EDUCATION AND SUPPORT TO PSC PATIENTS, FAMILIES AND CAREGIVERS AND TO RAISE FUNDS TO RESEARCH CAUSES, TREATMENTS AND POTENTIAL CURES FOR PRIMARY SCLEROSING CHOLANGITIS. OTHER SIGNIFICANT ACTIVITIES THE MEMBERS OF THE PSCP SCIENTIFIC/MEDICAL ADVISORY COMMITTEE ARE ACTIVELY ENGAGED IN DECIDING WHERE TO ALLOCATE OUR FUNDS FOR PSC RESEARCH. THROUGH THIS COMPETITIVE PROGRAM, PSCP HAS AWARDED RESEARCH GRANTS TO PROMINENT PSC RESEARCHERS. THE PSC PARTNERS SEEKING A CURE LITERATURE SITE IS THE PREMIER AND MOST EXTENSIVE WEBSITE FOR INFORMATION ON PSC AND CONTINUES TO BE UPDATED WEEKLY TO PROVIDE PSC PATIENTS, CAREGIVERS, PHYSICIANS, AND RESEARCHERS WITH EASY ACCESS TO A VAST BODY OF INFORMATION CONCERNING PSC AND ALLIED DISEASES. SINCE 2005 PSCP HAS HELD ANNUAL PATIENT CONFERENCES FOR PSC PATIENTS AND CAREGIVERS AT DIFFERENT MEDICAL CENTERS THROUGHOUT THE COUNTRY. THESE WEEKEND CONFERENCES OFFER THE OPPORTUNITY TO LEARN AB | ActivityOrMissionDesc |
| Voting Members Governing Body | 11 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 11 | VotingMembersIndependentCnt |
| Total Employee | 3 | TotalEmployeeCnt |
| Total Volunteers | 375 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| PY Contributions Grants | $422,979 | PYContributionsGrantsAmt |
| CY Contributions Grants | $490,953 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $112,314 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $119,781 | CYProgramServiceRevenueAmt |
| PY Investment Income | $14,756 | PYInvestmentIncomeAmt |
| CY Investment Income | $12,131 | CYInvestmentIncomeAmt |
| CY Other Revenue | -$1,370 | CYOtherRevenueAmt |
| PY Total Revenue | $550,049 | PYTotalRevenueAmt |
| CY Total Revenue | $621,495 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $163,000 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $333,000 | CYGrantsAndSimilarPaidAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $71,082 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $84,742 | CYSalariesCompEmpBnftPaidAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $52,538 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $93,234 | PYOtherExpensesAmt |
| CY Other Expenses | $105,567 | CYOtherExpensesAmt |
| PY Total Expenses | $327,316 | PYTotalExpensesAmt |
| CY Total Expenses | $523,309 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $222,733 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $98,186 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $1,325,775 | TotalAssetsBOYAmt |
| Total Assets EOY | $1,444,515 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $104 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $17,947 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $1,325,671 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $1,426,568 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | THE MISSION OF THE PSC PARTNERS SEEKING A CURE FOUNDATION IS TO PROVIDE EDUCATION AND SUPPORT TO PSC PATIENTS, FAMILIES AND CAREGIVERS AND TO RAISE FUNDS TO RESEARCH CAUSES, TREATMENTS AND POTENTIAL CURES FOR PRIMARY SCLEROSING CHOLANGITIS. OTHER SIGNIFICANT ACTIVITIES THE MEMBERS OF THE PSCP SCIENTIFIC/MEDICAL ADVISORY COMMITTEE ARE ACTIVELY ENGAGED IN DECIDING WHERE TO ALLOCATE OUR FUNDS FOR PSC RESEARCH. THROUGH THIS COMPETITIVE PROGRAM, PSCP HAS AWARDED RESEARCH GRANTS TO PROMINENT PSC RESEARCHERS. THE PSC PARTNERS SEEKING A CURE LITERATURE SITE IS THE PREMIER AND MOST EXTENSIVE WEBSITE FOR INFORMATION ON PSC AND CONTINUES TO BE UPDATED WEEKLY TO PROVIDE PSC PATIENTS, CAREGIVERS, PHYSICIANS, AND RESEARCHERS WITH EASY ACCESS TO A VAST BODY OF INFORMATION CONCERNING PSC AND ALLIED DISEASES. SINCE 2005 PSCP HAS HELD ANNUAL PATIENT CONFERENCES FOR PSC PATIENTS AND CAREGIVERS AT DIFFERENT MEDICAL CENTERS THROUGHOUT THE COUNTRY. THESE WEEKEND CONFERENCES OFFER THE OPPORTUNITY TO LEARN AB | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $440,287 | ExpenseAmt |
| Grant | $333,000 | GrantAmt |
| Desc | PROVIDE EDUCATION AND SUPPORT TO PRIMARY SCLEROSING CHOLANGITIS (PSC) PATIENTS AND THEIR FAMILIES THROUGH WEBSITE AND OUR ANNUAL CONFERENCE FOR PATIENTS AND CAREGIVERS. TO RAISE FUNDS AND SUPPORT RESEARCH TO FIND THE CAUSE, BETTER TREATMENTS AND A CURE FOR PSC. ALL GRANTS AWARDED BY OUR SCIENTIFIC/MEDICAL ADVISORY COMMITTEE PURSUE THESE EFFORTS. | Desc |
| Total Program Service Expenses | $440,287 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (true) | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | false | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Temp Or Permanent Endowments | Yes (true) | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | Yes (true) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | false | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | false | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (true) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (true) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | false | ForeignOfficeInd |
| Foreign Activities | Yes (true) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (true) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | false | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (true) | FundraisingActivitiesInd |
| Gaming Activities | false | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | Yes (true) | GrantsToOrganizationsInd |
| Grants To Individuals | false | GrantsToIndividualsInd |
| Schedule J Required | false | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | false | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | false | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | false | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | false | DisregardedEntityInd |
| Related Entity | false | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 0 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Employee | 3 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (true) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | false | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | Yes (true) | NondeductibleContributionsInd |
| Nondeductible Contri Discl | Yes (true) | NondeductibleContriDisclInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 11 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 11 | IndependentVotingMemberCnt |
| Family Or Business Rln | false | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (true) | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | false | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (true) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (true) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (true) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (true) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (true) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (true) | CompensationProcessCEOInd |
| Compensation Process Other | false | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Other Website | Yes (X) | OtherWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | THE ORGANIZATION | PersonNm |
| Phone | 3037715227 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 5237 SOUTH KENTON WAY | AddressLine1 |
| City | ENGLEWOOD | City |
| State | CO | State |
| ZIP Code | 80111 | ZIPCode |
Form990 Part VII Section A Form990PartVIISectionAGrp (12 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | OfficerOfficerInd |
|---|---|---|---|---|---|---|
| JOANNE HATCHETT | ||||||
| MEMBER | 5.00 | Yes (X) | $0 | $0 | $0 | |
| RACHEL GOMEL | ||||||
| MEMBER | 35.00 | Yes (X) | $0 | $0 | $0 | |
| JOANNE GRIEME | ||||||
| BOARD CHAIR | 9.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| AUBREY GOLDSTEIN | ||||||
| MEMBER | 2.00 | Yes (X) | $0 | $0 | $0 | |
| SCOTT MALAT | ||||||
| TREASURER | 2.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| RICKY SAFER | ||||||
| CEO | 50.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| KEN SHEPHERD | ||||||
| VICE BOARD C | 4.00 | Yes (X) | $0 | $0 | $0 | |
| DEBORAH WENTE | ||||||
| SECRETARY | 2.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| ROSALIND PARRY | ||||||
| MEMBER | 5.00 | Yes (X) | $0 | $0 | $0 | |
| FRED SABERNICK | ||||||
| MEMBER | 4.00 | Yes (X) | $0 | $0 | $0 | |
| MONICA CROWLEY | ||||||
| MEMBER | 3.00 | Yes (X) | $0 | $0 | $0 | |
| MEEGAN CAREY | ||||||
| EXECUTIVE DI | 40.00 | $65,000 | $0 | $0 | Yes (X) | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $65,000 | TotalReportableCompFromOrgAmt |
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | false | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
| Fundraising | $29,500 | FundraisingAmt |
| All Other Contributions | $461,453 | AllOtherContributionsAmt |
| Noncash Contributions | $15,060 | NoncashContributionsAmt |
| Total Contributions | $490,953 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | CONFERENCE INCOME | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $119,781 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $119,781 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $119,781 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $12,131 | TotalRevenueColumnAmt |
| Exclusion | $12,131 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $165,393 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $165,393 | SecuritiesAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $6,195 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $29,500 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $7,565 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$1,370 | TotalRevenueColumnAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $621,495 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $119,781 | RelatedOrExemptFuncIncomeAmt |
| Exclusion | $12,131 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $183,000 | TotalAmt |
| Program Services | $183,000 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $150,000 | TotalAmt |
| Program Services | $150,000 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $65,000 | TotalAmt |
| Program Services | $19,500 | ProgramServicesAmt |
| Management And General | $9,750 | ManagementAndGeneralAmt |
| Fundraising | $35,750 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $14,046 | TotalAmt |
| Program Services | $11,987 | ProgramServicesAmt |
| Management And General | $2,059 | ManagementAndGeneralAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $5,696 | TotalAmt |
| Program Services | $2,409 | ProgramServicesAmt |
| Management And General | $903 | ManagementAndGeneralAmt |
| Fundraising | $2,384 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $5,653 | TotalAmt |
| Program Services | $5,653 | ProgramServicesAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $7,219 | TotalAmt |
| Management And General | $7,219 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $710 | TotalAmt |
| Management And General | $710 | ManagementAndGeneralAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,053 | TotalAmt |
| Program Services | $306 | ProgramServicesAmt |
| Fundraising | $2,747 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $12,563 | TotalAmt |
| Program Services | $4,359 | ProgramServicesAmt |
| Management And General | $3,692 | ManagementAndGeneralAmt |
| Fundraising | $4,512 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,994 | TotalAmt |
| Program Services | $1,748 | ProgramServicesAmt |
| Management And General | $749 | ManagementAndGeneralAmt |
| Fundraising | $2,497 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $62,564 | TotalAmt |
| Program Services | $59,436 | ProgramServicesAmt |
| Management And General | $3,128 | ManagementAndGeneralAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $715 | TotalAmt |
| Program Services | $214 | ProgramServicesAmt |
| Management And General | $286 | ManagementAndGeneralAmt |
| Fundraising | $215 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,840 | TotalAmt |
| Program Services | $568 | ProgramServicesAmt |
| Management And General | $1,988 | ManagementAndGeneralAmt |
| Fundraising | $284 | FundraisingAmt |
Other Expenses OtherExpensesGrp (2 entries)
| DescDesc | TotalTotalAmt | FundraisingFundraisingAmt | Program ServicesProgramServicesAmt |
|---|---|---|---|
| FUNDRAISING EXPENSES | $4,149 | $4,149 | |
| OTHER PROGRAM | $1,107 | $1,107 |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $523,309 | TotalAmt |
| Program Services | $440,287 | ProgramServicesAmt |
| Management And General | $30,484 | ManagementAndGeneralAmt |
| Fundraising | $52,538 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $36,976 | BOYAmt |
| EOY | $172,527 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,284 | BOYAmt |
| EOY | $16,287 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $3,575 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $2,072 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,218 | BOYAmt |
| EOY | $1,503 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,284,297 | BOYAmt |
| EOY | $1,254,198 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,325,775 | BOYAmt |
| EOY | $1,444,515 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $104 | BOYAmt |
| EOY | $17,947 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $104 | BOYAmt |
| EOY | $17,947 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $955,105 | BOYAmt |
| EOY | $1,154,258 | EOYAmt |
Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $370,566 | BOYAmt |
| EOY | $272,310 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,325,671 | BOYAmt |
| EOY | $1,426,568 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,325,775 | BOYAmt |
| EOY | $1,444,515 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $98,186 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $2,711 | NetUnrlzdGainsLossesInvstAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | false | AccountantCompileOrReviewInd |
| FS Audited | Yes (true) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (true) | AuditCommitteeInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Publicly Supported Org509a2 | Yes (X) | PubliclySupportedOrg509a2Ind |
Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $259,417 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $429,367 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $451,976 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $422,979 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $490,953 | CurrentTaxYearAmt |
| Total | $2,054,692 | TotalAmt |
Gross Receipts Admissions GrossReceiptsAdmissionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus2 Years | $85,080 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $112,314 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $125,976 | CurrentTaxYearAmt |
| Total | $323,370 | TotalAmt |
Total509 Total509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $259,417 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $429,367 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $537,056 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $535,293 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $616,929 | CurrentTaxYearAmt |
| Total | $2,378,062 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support Total509 | $2,378,062 | PublicSupportTotal509Amt |
Gross Investment Income509 GrossInvestmentIncome509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $6,510 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $10,711 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $12,403 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $13,986 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $12,131 | CurrentTaxYearAmt |
| Total | $55,741 | TotalAmt |
Investment Income And UBTI InvestmentIncomeAndUBTIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $6,510 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $10,711 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $12,403 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $13,986 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $12,131 | CurrentTaxYearAmt |
| Total | $55,741 | TotalAmt |
Other Income509 OtherIncome509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $26,390 | CurrentTaxYearMinus4YearsAmt |
| Total | $26,390 | TotalAmt |
Total Support Calendar Year TotalSupportCalendarYearGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $292,317 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $440,078 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $549,459 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $549,279 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $629,060 | CurrentTaxYearAmt |
| Total | $2,460,193 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support CY509 | 0.96660 | PublicSupportCY509Pct |
| Public Support PY509 | 0.95150 | PublicSupportPY509Pct |
| Investment Income CY | 0.02000 | InvestmentIncomeCYPct |
| Investment Income PY | 0.03000 | InvestmentIncomePYPct |
| Thirty Thr Pct Suprt Tests CY509 | Yes (X) | ThirtyThrPctSuprtTestsCY509Ind |
Form990 Schedule A Part IV Form990ScheduleAPartIVGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART II, LINE 12 | FormAndLineReferenceDesc |
| Explanation | 26,390 | ExplanationTxt |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $370,566 | BeginningYearBalanceAmt |
| Contributions | $273,296 | ContributionsAmt |
| Other Expenditures | $371,552 | OtherExpendituresAmt |
| End Year Balance | $272,310 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $366,004 | BeginningYearBalanceAmt |
| Contributions | $175,520 | ContributionsAmt |
| Other Expenditures | $170,958 | OtherExpendituresAmt |
| End Year Balance | $370,566 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $193,122 | BeginningYearBalanceAmt |
| Contributions | $357,569 | ContributionsAmt |
| Other Expenditures | $184,687 | OtherExpendituresAmt |
| End Year Balance | $366,004 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributions | $366,122 | ContributionsAmt |
| Other Expenditures | $173,000 | OtherExpendituresAmt |
| End Year Balance | $193,122 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Term Endowment Balance EOY | 1.00000 | TermEndowmentBalanceEOYPct |
| Endowments Held Unrelated Org | false | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | false | EndowmentsHeldRelatedOrgInd |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $3,575 | OtherCostOrOtherBasisAmt |
| Depreciation | $2,072 | DepreciationAmt |
| Book Value | $1,503 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $1,503 | TotalBookValueLandBuildingsAmt |
| Total Rev Etc Audited Fincl Stmt | $624,206 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $2,711 | NetUnrealizedGainsInvstAmt |
| Revenue Not Reported | $2,711 | RevenueNotReportedAmt |
| Revenue Subtotal | $621,495 | RevenueSubtotalAmt |
| Total Revenue Per Form990 | $621,495 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $523,309 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Subtotal | $523,309 | ExpensesSubtotalAmt |
| Total Expenses Per Form990 | $523,309 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE D, PAGE 3, PART X | FormAndLineReferenceDesc |
| Explanation | NO PROVISION FOR INCOME TAXES HAS BEEN MADE IN THE ACCOMPANYING FINANCIAL STATEMENTS BECAUSE THE ORGANIZATION HAS QUALIFIED AS EXEMPT FROM INCOME TAX UNDER SECTION 501 (C)(3) OF THE INTERNAL REVENUE CODE (CODE) AND COMPARABLE STATE LAW, AND CONTRIBUTIONS TO IT ARE TAX DEDUCTIBLE WITHIN THE LIMITATIONS PRESCRIBED BY THE CODE. THE ORGANIZATION DID NOT HAVE ANY MATERIAL UNRELATED BUSINESS INCOME TAX LIABILITY OR SIGNIFICANT UNCERTAIN TAX POSITIONS FOR THE YEARS ENDED DECEMBER 31, 2013 OR 2012. THE ORGANIZATIONS TAX FILINGS ARE SUBJECT TO AUDIT BY VARIOUS TAXING AUTHORITIES. THE ORGANIZATIONS ENDING OPEN AUDIT PERIODS ARE DECEMBER 31, 2010, 2011, 2012, AND 2013. | ExplanationTxt |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Region | EUROPE | RegionTxt |
| Offices | 5 | OfficesCnt |
| Employee | 5 | EmployeeCnt |
| Type Of Activities Conducted | GRANT | TypeOfActivitiesConductedTxt |
| Specific Services Provided | RESEARCH | SpecificServicesProvidedTxt |
| Region Total Expenditures | $150,000 | RegionTotalExpendituresAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 5 | SubtotalOfficesCnt |
| Subtotal Employees | 5 | SubtotalEmployeesCnt |
| Total Office | 5 | TotalOfficeCnt |
| Total Employee | 5 | TotalEmployeeCnt |
| Subtotal Spent | $150,000 | SubtotalSpentAmt |
| Total Spent | $150,000 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (5 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt |
|---|---|---|
| UNITED KINGDOM | RESEARCH | $30,000 |
| NETHERLANDS | RESEARCH | $30,000 |
| GERMANY | RESEARCH | $30,000 |
| UNITED KINGDOM | RESEARCH | $30,000 |
| ITALY | RESEARCH | $30,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Transfer To Foreign Corp | false | TransferToForeignCorpInd |
| Interest In Foreign Trust | false | InterestInForeignTrustInd |
| Foreign Corp Ownership | false | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | false | PassiveForeignInvestmestCoInd |
| Foreign Partnership | false | ForeignPartnershipInd |
| Boycott Countries | false | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE F, PAGE 1, PART I, LINE 3 | FormAndLineReferenceDesc |
| Explanation | EUROPE 150,000 0 | ExplanationTxt |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Of Event1 | SPECIAL EVENT | NameOfEvent1Amt |
| Gross Receipts Event1 | $35,695 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $29,500 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $6,195 | GrossRevenueEvent1Amt |
| Other Direct Expenses Event1 | $7,565 | OtherDirectExpensesEvent1Amt |
| Gross Receipts Total | $35,695 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $29,500 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $6,195 | GrossRevenueTotalEventsAmt |
| Oth Direct Expnss Total Events | $7,565 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $7,565 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$1,370 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (5 entries)
| Address Line1USAddress/AddressLine1 | CityUSAddress/City | StateUSAddress/State | ZIP CodeUSAddress/ZIPCode | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt | Business Name Line2RecipientBusinessName/BusinessNameLine2 |
|---|---|---|---|---|---|---|---|---|
| MAYO CLINIC | ||||||||
| PO BOX 40082 | ROCHESTER | MN | 55903 | 416011702 | 501C3 | $60,000 | RESEARCH | |
| YALE UNIVERSITY | ||||||||
| 333 CEDAR STREET | NEW HAVEN | CT | 06510 | 060646973 | 501C3 | $30,000 | RESEARCH | |
| CHILDREN'S HOSPITAL MEDICAL CENTER | ||||||||
| 3333 BURNET AVE | CINCINNATI | OH | 45229 | 310833936 | 501C3 | $30,000 | RESEARCH | |
| SCOTT AND WHITE MEMORIAL HOSPITAL | ||||||||
| 2401 SOUTH 31ST ST | TEMPLE | TX | 76508 | 741166904 | 501C3 | $30,000 | RESEARCH | |
| REGENTS OF THE UNIVERSITY OF CA | ||||||||
| PO BOX 179002 | SACRAMENTO | CA | 95817 | 946036494 | 501C3 | $30,000 | RESEARCH | DEPARTMENT OF INTERNAL MEDICINE |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE I, PAGE 1, PART I, LINE 2 | FormAndLineReferenceDesc |
| Explanation | GRANT AWARDEES MUST PROVIDE A ONE TO TWO PAGE SUMMARY OF RESULTS OBTAINED WITH FUNDS PROVIDED BY PCS PARTNERS SEEKING A CURE AFTER THEIR 1ST AND 2ND YEARS OF RESEARCH. THE SUMMARY IS REVIEWED BY THE SCIENTIFIC MEDICAL ADVISORY COMMITTEE. THE RELEASE OF THE SECOND YEAR OF FUNDING IS CONTINGENT UPON SATISFACTORY REVIEW OF THE RESEARCHER'S FIRST YEAR REPORT BY THE SCIENTIFIC/MEDICAL ADVISORY COMMITTEE. | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (5 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990 - ORGANIZATION'S MISSION | THE MISSION OF THE PSC PARTNERS SEEKING A CURE FOUNDATION IS TO PROVIDE EDUCATION AND SUPPORT TO PSC PATIENTS, FAMILIES AND CAREGIVERS AND TO RAISE FUNDS TO RESEARCH CAUSES, TREATMENTS AND POTENTIAL CURES FOR PRIMARY SCLEROSING CHOLANGITIS. OTHER SIGNIFICANT ACTIVITIES THE MEMBERS OF THE PSCP SCIENTIFIC/MEDICAL ADVISORY COMMITTEE ARE ACTIVELY ENGAGED IN DECIDING WHERE TO ALLOCATE OUR FUNDS FOR PSC RESEARCH. THROUGH THIS COMPETITIVE PROGRAM, PSCP HAS AWARDED RESEARCH GRANTS TO PROMINENT PSC RESEARCHERS. THE PSC PARTNERS SEEKING A CURE LITERATURE SITE IS THE PREMIER AND MOST EXTENSIVE WEBSITE FOR INFORMATION ON PSC AND CONTINUES TO BE UPDATED WEEKLY TO PROVIDE PSC PATIENTS, CAREGIVERS, PHYSICIANS, AND RESEARCHERS WITH EASY ACCESS TO A VAST BODY OF INFORMATION CONCERNING PSC AND ALLIED DISEASES. SINCE 2005 PSCP HAS HELD ANNUAL PATIENT CONFERENCES FOR PSC PATIENTS AND CAREGIVERS AT DIFFERENT MEDICAL CENTERS THROUGHOUT THE COUNTRY. THESE WEEKEND CONFERENCES OFFER THE OPPORTUNITY TO LEARN ABOUT THE MOST RECENT ADVANCES IN PSC TREATMENTS AND RESEARCH AND ALSO TO SHARE EXPERIENCES, ADVICE, AND CONCERNS WITH OTHER PSCERS. PSCP HAS STARTED HOLDING LOCAL FORUMS FOR PSC PATIENTS AND CAREGIVERS. THE PSC PARTNERS SEEKING A CURE WEBSITE INCLUDES ADVICE AND PERSONAL STORIES FROM OUR MEMBERS, SO THAT WE CAN OFFER VALUABLE EVERYDAY LIVING SUGGESTIONS TO PSCERS IN ADDITION TO UPDATES ON TREATMENTS AND MEDICAL RESEARCH. IN ADDITION, PSCP PUBLISHES A FREE ONLINE NEWSLETTER WITH UPDATES ABOUT THE LATEST TREATMENTS, RESEARCH RESULTS, AND COPING SUGGESTIONS. |
| FORM 990, PAGE 6, PART VI, LINE 11B | ALL MEMBERS OF THE BOARD OF DIRECTORS RECEIVE A COPY OF THE 990 PRIOR TO IT BEING FILED. |
| FORM 990, PAGE 6, PART VI, LINE 12C | ANNUAL DISCLOSURE OF CONFLICTS OF INTEREST REQUIRED. |
| FORM 990, PAGE 6, PART VI, LINE 15A | CEO AND BOARD OF DIRECTORS DO NOT RECEIVE COMPENSATION COMPENSATION POLICY FOR EXECUTIVE DIRECTOR THE CORPORATION'S PRIMARY OBJECTIVE IS TO PROVIDE REASONABLE AND COMPETITIVE EXECUTIVE TOTAL COMPENSATION CONSISTENT WITH MARKET-BASED COMPENSATION PRACTICES FOR INDIVIDUALS POSSESSING THE EXPERIENCE AND SKILLS NEEDED TO IMPROVE THE OVERALL PERFORMANCE OF THE ORGANIZATION. THE ORGANIZATION'S EXECUTIVE COMPENSATION POLICY IS DESIGNED TO: A) ENCOURAGE THE ATTRACTION AND RETENTION OF HIGH-CALIBER EXECUTIVES. B) PROVIDE A COMPETITIVE TOTAL COMPENSATION PACKAGE, INCLUDING BENEFITS. C) ENSURE THAT PAY IS PERCEIVED TO BE FAIR AND EQUITABLE. D) ENSURE THAT THE POLICY COMPLIES WITH I.R.S. REGULATIONS AND STATE AND FEDERAL LEGISLATION. ESTABLISHMENT OF COMPENSATION COMMITTEE A COMPENSATION COMMITTEE OF THE BOARD WILL BE ESTABLISHED ANNUALLY BY THE BOARD CHAIR AS AN AD HOC COMMITTEE. THE COMPENSATION COMMITTEE WILL ADMINISTER THIS POLICY. THE FOLLOWING COMPONENTS WILL BE PRESENT IN THE PROCESS OF SETTING EXECUTIVE COMPENSATION: REVIEW/APPROVAL BY THE BOARD. NO INVOLVEMENT OF PERSONS WITH CONFLICTS OF INTEREST. COLLECTION AND USE OF COMPENSATION DATA FOR SIMILARLY QUALIFIED PERSONS IN COMPARABLE POSITIONS AT SIMILARLY SITUATED ORGANIZATIONS. CONTEMPORANEOUS DOCUMENTATION AND RECORDKEEPING. REVIEW/APPROVAL BY THE BOARD THE CORPORATION'S EXECUTIVE COMPENSATION POLICY IS ADMINISTERED BY THE COMPENSATION COMMITTEE OF THE BOARD. THE COMPENSATION COMMITTEE IS RESPONSIBLE FOR ESTABLISHING AND MAINTAINING A COMPETITIVE COMPENSATION POLICY FOR THE KEY EXECUTIVES OF THE ORGANIZATION. THE COMMITTEE MEETS AS NEEDED TO REVIEW THE COMPENSATION POLICY AND MAKE RECOMMENDATIONS FOR ANY CHANGES TO THE BOARD, AS APPROPRIATE. NO INVOLVEMENT OF PERSONS WITH CONFLICTS OF INTEREST THE BOARD CHAIR, IN APPOINTING THE COMPENSATION COMMITTEE WILL ENSURE THAT NO MEMBER OF THE COMPENSATION COMMITTEE HAS A CONFLICT OF INTEREST THAT WOULD IMPAIR THEIR ABILITY TO BE FAIR AND IMPARTIAL TO THE COMPENSATION PROCESS. FURTHER, THE COMPENSATION COMMITTEE WILL ENGAGE AN INDEPENDENT FIRM TO REVIEW COMPARABLE COMPENSATION DATA, ALONG WITH THE PROPOSED COMPENSATION FOR KEY EXECUTIVES. COLLECTION AND USE OF COMPENSATION DATA COMPENSATION MUST BE COMMENSURATE WITH THE DUTIES AND RESPONSIBILITIES OF THE PERSON BEING COMPENSATED. REASONABLE COMPENSATION IS THE AMOUNT THAT WOULD ORDINARILY BE PAID FOR LIKE SERVICES BY LIKE ENTERPRISES, WHETHER TAXABLE OR TAX-EXEMPT, UNDER LIKE CIRCUMSTANCES. IN ORDER TO SATISFY THE REBUTTABLE PRESUMPTION SAFE HARBOR PROCEDURE, THE COMPENSATION COMMITTEE WILL RELY ON THE FOLLOWING DEFINITIONS WHEN SEEKING COMPARABILITY DATA TO MAKE ITS DETERMINATION REGARDING COMPENSATION ISSUES. LIKE SERVICES. IN COMPARING AN INDIVIDUAL'S COMPENSATION TO ANOTHER INDIVIDUAL'S COMPENSATION, THE COMPARISON MUST BE BASED ON SUBSTANTIALLY SIMILAR DUTIES AND RESPONSIBILITIES. THE I.R.S. HAS STATED THAT THE KEY IS COMPARING DUTIES AND RESPONSIBILITIES, A FUNCTIONAL COMPARISON, AND NOT THE JOB TITLE. TO DETERMINE WHETHER THE INDIVIDUAL'S COMPENSATION IS COMMENSURATE WITH OTHERS IN THE SAME POSITION AND THUS REASONABLE, THE I.R.S. CONSIDERS, AMONG OTHER FACTORS: THE INDIVIDUAL'S DUTIES AND RESPONSIBILITIES. THE NUMBER OF EMPLOYEES THE INDIVIDUAL MANAGES. THE SIZE OF THE BUDGET OR ASSETS THE INDIVIDUAL MANAGES. THE NUMBER OF HOURS WORKED. WHETHER THE JOB IS NATIONAL OR LOCAL IN SCOPE. WHETHER THE INDIVIDUAL MANAGES MULTIPLE FUNCTIONS OR DEPARTMENTS. LIKE ENTERPRISES. COMPARISONS OF ENTERPRISES NEED TO BE BASED ON ENTITIES OF SIMILAR SIZE. INDICATORS OF SIZE INCLUDE NUMBER OF EMPLOYEES, NUMBER OF PERSONS SERVED BY THE ORGANIZATION, BUDGET AND REVENUES. ADDITIONALLY, THE COMPARABLES SHOULD COME FROM THE SAME INDUSTRY SO AS TO BEST MATCH THE INDIVIDUAL'S DUTIES AND RESPONSIBILITIES. TAX-EXEMPT ORGANIZATIONS CAN LOOK TO BOTH THE FOR-PROFIT AND NON-PROFIT SECTORS TO DETERMINE REASONABLE COMPENSATION. LIKE CIRCUMSTANCES. COMPENSATION PACKAGES BEING COMPARED MUST CONSIST OF A SIMILAR MIX OF COMPENSATION ITEMS. ALL FORMS OF COMPENSATION MUST BE PROPERLY AGGREGATED AND ACCOUNTED AND INCLUDED IN TOTAL COMPENSATION. THE ORGANIZATION SHOULD ALSO USE COMPARABLES FROM THE SAME GEOGRAPHIC AREA WHERE POSSIBLE. THE AVAILABILITY OF SIMILAR SERVICES IN THE GEOGRAPHIC AREA OF THE ORGANIZATION IS RELEVANT TO DETERMINING THE APPROPRIATE LEVEL OF COMPENSATION. IF THERE ARE NOT COMPARABLES IN THE GEOGRAPHIC AREA, THE TAX-EXEMPT ORGANIZATION CAN GO OUTSIDE OF THAT GEOGRAPHIC AREA FOR COMPARABLES BUT MUST MAKE APPROPRIATE COST-OF-LIVING ADJUSTMENTS. THE COMPENSATION COMMITTEE WILL USE AT LEAST THREE COMPARABLES IN THE SAME OR SIMILAR COMMUNITIES FOR SIMILAR SERVICES. THE TARGET RANGE FOR TOTAL COMPENSATION FOR KEY EXECUTIVES IS AT OR BELOW THE FIFTIETH PERCENTILE FOR THE RELEVANT MARKET. CONTEMPORANEOUS DOCUMENTATION AND RECORDKEEPING THE COMPENSATION COMMITTEE WILL ADEQUATELY DOCUMENT THE BASIS FOR ITS DETERMINATION. TO "ADEQUATELY DOCUMENT" THE DECISION FOR PURPOSES OF THE REBUTTABLE PRESUMPTION PROCESS, THE RECORDS OF THE COMPENSATION COMMITTEE MUST STATE THE TERMS OF THE COMPENSATION PACKAGE THAT WERE APPROVED, THE DATE IT WAS APPROVED, THE MEMBERS OF THE BOARD WHO WERE PRESENT DURING THE DEBATE ON THE COMPENSATION ARRANGEMENT THAT WAS APPROVED AND THOSE WHO VOTED TO APPROVE OR REJECT IT. THE DOCUMENTATION SHOULD ALSO NOTE THE COMPARABILITY DATA OBTAINED AND RELIED UPON BY THE COMPENSATION COMMITTEE, HOW IT WAS OBTAINED. ADDITIONALLY, THE COMPENSATION COMMITTEE WILL RECORD THE BASIS FOR ITS DETERMINATION WHENEVER IT DECIDES THAT REASONABLE COMPENSATION IS HIGHER OR LOWER THAN THE RANGE OF COMPARABLE DATA RECEIVED. THE DOCUMENTATION MUST BE MADE CONCURRENTLY WITH THE DETERMINATION OF THE COMPENSATION ARRANGEMENT. RECORDS MUST BE PREPARED BY THE NEXT MEETING OR WITHIN 60 DAYS OF THE COMPENSATION COMMITTEE MEETING AND MUST BE REVIEWED AND APPROVED BY THE BOARD AS REASONABLE, ACCURATE AND COMPLETE WITHIN A REASONABLE TIME THEREAFTER. |
| FORM 990, PAGE 6, PART VI, LINE 19 | UPON REQUEST |