NATIONAL ALOPECIA AREATA FOUNDATION: Form 990, tax year 2013
View the entire original 990 at ProPublica ↗
- Organization
- NATIONAL ALOPECIA AREATA FOUNDATION (EIN 94-2780249)
- Tax period
- 2013-01-01 to 2013-12-31
- Filed
- 2014-05-02
- IRS object ID
- 201421229349300847
- Schema version
- 2013v3.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2014-05-02T15:52:29-05:00 | ReturnTs |
| Tax Period End | 2013-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 264677183 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | DZH PHILLIPS LLP | BusinessNameLine1 |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1330 BROADWAY SUITE 630 | AddressLine1 |
| City | OAKLAND | City |
| State | CA | State |
| ZIP Code | 94612 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2013-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 942780249 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | NATIONAL ALOPECIA AREATA FOUNDATION | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | NATI | BusinessNameControlTxt |
| Phone | 4154723780 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 14 MITCHELL BLVD | AddressLine1 |
| City | SAN RAFAEL | City |
| State | CA | State |
| ZIP Code | 94903 | ZIPCode |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | DORY KRANZ | PersonNm |
| Person Title | PRESIDENT & CEO | PersonTitleTxt |
| Phone | 4154723780 | PhoneNum |
| Signature | 2014-05-02 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | HYDEH GHAFFARI | PreparerPersonNm |
| PTIN | P01228587 | PTIN |
| Phone | 5108346542 | PhoneNum |
| Self Employed | Yes (X) | SelfEmployedInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2013 | TaxYr |
| Build TS | 2015-11-30 17:44:51Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | DORY KRANZ | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 14 MITCHELL BLVD | AddressLine1 |
| City | SAN RAFAEL | City |
| State | CA | State |
| ZIP Code | 94903 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $2,653,810 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.NAAF.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1981 | FormationYr |
| Legal Domicile State | CA | LegalDomicileStateCd |
| Activity Or Mission | PROVIDE EDUCATION, SUPPORT,FUND MEDICAL RESEARCH REGARDING CAUSES & TREATMENT OF ALOPECIA AREATA | ActivityOrMissionDesc |
| Voting Members Governing Body | 10 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 10 | VotingMembersIndependentCnt |
| Total Employee | 9 | TotalEmployeeCnt |
| Total Volunteers | 200 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $3,980,244 | PYContributionsGrantsAmt |
| CY Contributions Grants | $1,871,318 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $293,864 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $462,443 | CYProgramServiceRevenueAmt |
| PY Investment Income | $62,664 | PYInvestmentIncomeAmt |
| CY Investment Income | $84,071 | CYInvestmentIncomeAmt |
| PY Other Revenue | -$18,606 | PYOtherRevenueAmt |
| CY Other Revenue | $0 | CYOtherRevenueAmt |
| PY Total Revenue | $4,318,166 | PYTotalRevenueAmt |
| CY Total Revenue | $2,417,832 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $288,950 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $286,440 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $621,083 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $755,788 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $154,369 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $918,086 | PYOtherExpensesAmt |
| CY Other Expenses | $1,018,003 | CYOtherExpensesAmt |
| PY Total Expenses | $1,828,119 | PYTotalExpensesAmt |
| CY Total Expenses | $2,060,231 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $2,490,047 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $357,601 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $3,678,366 | TotalAssetsBOYAmt |
| Total Assets EOY | $4,319,519 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $25,628 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $24,491 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $3,652,738 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $4,295,028 | NetAssetsOrFundBalancesEOYAmt |
| Mission | SUPPORTS RESEARCH TO FIND A CURE OR ACCEPTABLE TREATMENT FOR ALOPECIA AREATA, SUPPORTS THOSE WITH THE DISEASE, AND EDUCATES THE PUBLIC ABOUT ALOPECIA AREATA. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $1,001,862 | ExpenseAmt |
| Grant | $0 | GrantAmt |
| Revenue | $462,443 | RevenueAmt |
| Desc | AWARENESS AND SUPPORT - PROVIDED EMOTIONAL SUPPORT AND MEDICAL UPDATES FOR PERSONS SUFFERING FROM ALOPECIA AREATA. SERVICES PROVIDED INCLUDE NEWSLETTERS, VIDEO & AUDIO TAPES, WORKSHOPS AND BROCHURES. SPONSORED ANNUAL PATIENT CONFERENCE, WHICH FEATURED SUPPORT SESSIONS AND WHICH WAS ATTENDED BY APPROXIMATELY 1,000 PERSONS FROM THE US AND OTHER COUNTRIES. PROVIDED DVD'S FOR CHILDREN AND ADULTS. PROVIDED A SCHOOL GUIDE FOR PARENTS AND SCHOOL PERSONNEL, AND A COSMETIC GUIDE. ALSO THE ASCOT FUND PROGRAM PROVIDES HAIR PIECES FOR THOSE WHO CANNOT AFFORD ONE. HELPED OVER 10,000 PEOPLE WITH INFORMATION REQUESTS. HAD OVER 20 AWARENESS EVENTSAT MAJOR AND MINOR LEAGUE BALL PARKSTO RAISE AWARENESS OF ALOPECIA AREATA. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $789,347 | ExpenseAmt |
| Grant | $286,440 | GrantAmt |
| Revenue | $0 | RevenueAmt |
| Desc | FUNDED MEDICAL RESEARCH REGARDING CAUSES AND TREATMENT OF ALOPECIA AREATA. CONDUCTED ALOPECIA AREATA TREAMENT DEVELOPMENT MEETINGS. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $1,791,209 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | 0 | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Temp Or Permanent Endowments | 0 | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | 0 | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | 0 | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | Yes (1) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (1) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | 0 | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | 0 | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | 0 | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | 0 | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 14 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (1) | BackupWthldComplianceInd |
| Employee | 9 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | 0 | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 10 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 10 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | 0 | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | 0 | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AZ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | DC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | LA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ME | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TX | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Other Website | Yes (X) | OtherWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | DORY KRANZ | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 4154723780 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 14 MITCHELL BLVD | AddressLine1 |
| City | SAN RAFAEL | City |
| State | CA | State |
| ZIP Code | 94903 | ZIPCode |
Form990 Part VII Section A Form990PartVIISectionAGrp (11 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt |
|---|---|---|---|---|---|---|
| MAUREEN MCGETTIGAN | ||||||
| CHAIR | 5.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| ROBERT FLINT | ||||||
| CHIEF FINANCIAL OFFICER | 3.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| HOY LANNING JR | ||||||
| SECRETARY | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| ALLISON WAGGONER | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| ANN S HEDGES | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| DONNA HAKIM | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| BRIAN TER HAAR | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| GARY GORDON | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| MARIA BECKETT | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| DEBORA PELLICANO | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| VICTORIA KALABOKES | ||||||
| CHIEF EXECUTIVE OFFICER | 40.00 | Yes (X) | Yes (X) | $127,923 | $0 | $19,560 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $127,923 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $19,560 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 1 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | 0 | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
| Cntrct Rcvd Greater Than100 K | 0 | CntrctRcvdGreaterThan100KCnt |
| All Other Contributions | $1,871,318 | AllOtherContributionsAmt |
| Total Contributions | $1,871,318 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp (4 entries)
| DescDesc | BusinessBusinessCd | Total Revenue ColumnTotalRevenueColumnAmt | Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt |
|---|---|---|---|
| CONFERENCE | 624100 | $213,311 | $213,311 |
| AWARENESS CAMPAIGN AND | 611710 | $210,154 | $210,154 |
| NEWSLETTER & BROCHURES | 624100 | $29,076 | $29,076 |
| ALOPECIA AREATA MARKET | 446199 | $9,902 | $9,902 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $462,443 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $86,749 | TotalRevenueColumnAmt |
| Exclusion | $86,749 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $233,300 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $235,978 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | -$2,678 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$2,678 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | -$2,678 | RelatedOrExemptFuncIncomeAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $2,417,832 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $459,765 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $86,749 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $200,000 | TotalAmt |
| Program Services | $200,000 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $86,440 | TotalAmt |
| Program Services | $86,440 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $145,635 | TotalAmt |
| Program Services | $109,226 | ProgramServicesAmt |
| Management And General | $14,563 | ManagementAndGeneralAmt |
| Fundraising | $21,846 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $449,120 | TotalAmt |
| Program Services | $403,510 | ProgramServicesAmt |
| Management And General | $27,459 | ManagementAndGeneralAmt |
| Fundraising | $18,151 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $49,432 | TotalAmt |
| Program Services | $43,197 | ProgramServicesAmt |
| Management And General | $3,618 | ManagementAndGeneralAmt |
| Fundraising | $2,617 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $64,141 | TotalAmt |
| Program Services | $55,626 | ProgramServicesAmt |
| Management And General | $4,446 | ManagementAndGeneralAmt |
| Fundraising | $4,069 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $47,460 | TotalAmt |
| Program Services | $41,392 | ProgramServicesAmt |
| Management And General | $3,171 | ManagementAndGeneralAmt |
| Fundraising | $2,897 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $26,681 | TotalAmt |
| Program Services | $10,220 | ProgramServicesAmt |
| Management And General | $16,461 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $120,553 | TotalAmt |
| Program Services | $91,088 | ProgramServicesAmt |
| Management And General | $17,617 | ManagementAndGeneralAmt |
| Fundraising | $11,848 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $243,237 | TotalAmt |
| Program Services | $187,306 | ProgramServicesAmt |
| Management And General | $1,957 | ManagementAndGeneralAmt |
| Fundraising | $53,974 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $43,662 | TotalAmt |
| Program Services | $40,317 | ProgramServicesAmt |
| Management And General | $1,162 | ManagementAndGeneralAmt |
| Fundraising | $2,183 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $63,401 | TotalAmt |
| Program Services | $47,551 | ProgramServicesAmt |
| Management And General | $9,510 | ManagementAndGeneralAmt |
| Fundraising | $6,340 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $192,366 | TotalAmt |
| Program Services | $189,055 | ProgramServicesAmt |
| Management And General | $3,311 | ManagementAndGeneralAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,003 | TotalAmt |
| Program Services | $1,235 | ProgramServicesAmt |
| Management And General | $1,768 | ManagementAndGeneralAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $8,880 | TotalAmt |
| Program Services | $5,328 | ProgramServicesAmt |
| Management And General | $2,664 | ManagementAndGeneralAmt |
| Fundraising | $888 | FundraisingAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| REGISTRY & TREATMENT DE | $176,959 | $176,959 | $0 | $0 |
| ALOPECIA AWARENESS, LIN | $47,498 | $34,825 | $0 | $12,673 |
| SUPPORT GROUPS & ASCOT | $35,365 | $35,365 | $0 | $0 |
| FED - STATE TAX & REGIS | $14,467 | $0 | $4,340 | $10,127 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $41,931 | TotalAmt |
| Program Services | $32,569 | ProgramServicesAmt |
| Management And General | $2,606 | ManagementAndGeneralAmt |
| Fundraising | $6,756 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,060,231 | TotalAmt |
| Program Services | $1,791,209 | ProgramServicesAmt |
| Management And General | $114,653 | ManagementAndGeneralAmt |
| Fundraising | $154,369 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $281,479 | BOYAmt |
| EOY | $104,884 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $853,111 | BOYAmt |
| EOY | $826,396 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,896 | BOYAmt |
| EOY | $26,981 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $24,413 | BOYAmt |
| EOY | $28,198 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $16,498 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $8,374 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $8,154 | BOYAmt |
| EOY | $8,124 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,430,209 | BOYAmt |
| EOY | $3,234,113 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $79,104 | BOYAmt |
| EOY | $90,823 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,678,366 | BOYAmt |
| EOY | $4,319,519 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $25,628 | BOYAmt |
| EOY | $24,491 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $25,628 | BOYAmt |
| EOY | $24,491 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $944,037 | BOYAmt |
| EOY | $1,082,699 | EOYAmt |
Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,708,701 | BOYAmt |
| EOY | $3,212,329 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,652,738 | BOYAmt |
| EOY | $4,295,028 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,678,366 | BOYAmt |
| EOY | $4,319,519 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $357,601 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $284,689 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $845,174 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $978,999 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,016,631 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,230,244 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $941,318 | CurrentTaxYearAmt |
| Total | $5,012,366 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $845,174 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $978,999 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,016,631 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,230,244 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $941,318 | CurrentTaxYearAmt |
| Total | $5,012,366 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $617,661 | SubstantialContributorsTotAmt |
| Public Support Total170 | $4,394,705 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $15,266 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $13,320 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $13,044 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $59,681 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $86,749 | CurrentTaxYearAmt |
| Total | $188,060 | TotalAmt |
Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus2 Years | $2,717 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,490 | CurrentTaxYearMinus1YearAmt |
| Total | $5,207 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $5,205,633 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $1,454,974 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.84420 | PublicSupportCY170Pct |
| Public Support PY170 | 0.81690 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $16,498 | OtherCostOrOtherBasisAmt |
| Depreciation | $8,374 | DepreciationAmt |
| Book Value | $8,124 | BookValueAmt |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Book Value | $0 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $8,124 | TotalBookValueLandBuildingsAmt |
| Total Rev Etc Audited Fincl Stmt | $2,702,520 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $284,688 | NetUnrealizedGainsInvstAmt |
| Revenue Not Reported | $284,688 | RevenueNotReportedAmt |
| Revenue Subtotal | $2,417,832 | RevenueSubtotalAmt |
| Revenue Not Reported Fincl Stmt | $0 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $2,417,832 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $2,060,231 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Not Reported | $0 | ExpensesNotReportedAmt |
| Expenses Subtotal | $2,060,231 | ExpensesSubtotalAmt |
| Expenses Not Rpt Fincl Stmt | $0 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $2,060,231 | TotalExpensesPerForm990Amt |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (2 entries)
| RegionRegionTxt | OfficesOfficesCnt | EmployeeEmployeeCnt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|---|---|
| NORTH AMERICA | 0 | 0 | GRANTS TO RECIPIENTS | $46,440 |
| EUROPE (INCLUDING ICELAND & GREENLAND) | 0 | 0 | GRANTS TO RECIPIENTS | $40,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continutation Total Office | 0 | ContinutationTotalOfficeCnt |
| Continutation Total Employee | 0 | ContinutationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $86,440 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $86,440 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (3 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt |
|---|---|---|---|
| NORTH AMERICA | SKIN CELL THERAPY RESEARCH | $46,440 | WIRE TRANSFER |
| EUROPE (INCLUDING ICELAND & GREENLAND) | T CELL RESEARCH | $25,000 | WIRE TRANSFER |
| EUROPE (INCLUDING ICELAND & GREENLAND) | CONGRESS ON AUTOIMMUNITY | $15,000 | WIRE TRANSFER |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 3 | Total501c3OrgCnt |
| Total Other Org | 0 | TotalOtherOrgCnt |
| Transfer To Foreign Corp | 0 | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | GRANTS ARE AWARDED BASED UPON RECOMMENDATIONS OF INDEPENDENT SCIENTIFIC ADVISORY COMMITTEE WHICH EVALUATES RESPONSES TO REQUESTS FOR PROPOSALS. ONE FOURTH OF GRANT AWARD IS PAID WHEN CONTRACT IS SIGNED AND THE REMAINING THREE FOURTHS ARE PAID UPON SUBMISSION OF INTERIM AND FINAL REPORTS. FINAL PAYAMENT IS NOT MADE UNTIL SCIENTIFIC ADVISORY COMMITTEE APPROVES FINAL REPORT. AWARDEE IS REQUIRED TO SUBMIT THE REPORTS TO NAAF AS SET FORTH BELOW. SUBMISSION OF REPORTS AND THEIR APPROVAL BY NAAF ARE NECESSARY CONDITIONS FOR FURTHER FUNDING UNDER THIS AWARD. THE FOLLOWING REPORTS ARE REQUIRED: (A) SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC PROGRESS REPORTS WHICH DESCRIBE PROGRESS AND CHALLENGES RELATED TO MILESTONES OUTLINED AND AN ACCOUNTING OF EXPENSES INCURRED ("PROGRESS REPORTS") ARE REQUIRED ON THE FOLLOWING SCHEDULE. THE FIRST ONE-PAGE PROGRESS REPORT SHALL BE SUBMITTED TO NAAF WITHIN FOUR MONTHS OF THE GRANT AWARD, THE SECOND ONE PAGE PROGRESS REPORT SHALL BE SUBMITTED TO NAAF WITHIN EIGHT MONTHS OF THE GRANT AWARD, AND THE FINAL REPORT SHALL BE SUBMITTED TO NAAF WITHIN 30 DAYS OF THE COMPLETION OF THE WORK. THE AWARDEE WILL RECEIVE 25% PAYMENT WITHIN 30 DAYS AFTER NAAF RECEIVES SIGNED AWARD AGREEMENT, 25% PAYMENT WITHIN 30 DAYS AFTER NAAF RECEIVES 4 MONTH PROGRESS REPORT IF MILESTONES ARE MET OR CHALLENGES SATISFACTORILY EXPLAINED, 25% PAYMENT WITHIN 30 DAYS AFTER NAAF RECEIVES 8 MONTH PROGRESS REPORT IF MILESTONES ARE MET AND/OR CHALLENGES SATISFACTORILY EXPLAINED, AND 25% PAYMENT AFTER NAAF RECEIVES FINAL REPORT IF MILESTONES ARE MET AND/OR CHALLENGES SATISFACTORILY EXPLAINED. (B) SUMMARY PROGRESS REPORTS. SUMMARY PROGRESS REPORTS MAY ALSO BE REQUESTED FROM TIME TO TIME TO HELP NAAF IN ITS CONTINUED EFFORTS TO RAISE FUNDS, ATTRACT MAJOR DONORS, AND MEET OTHER OPERATIONAL NEEDS. THESE MUST BE PROVIDED PROMPTLY WHEN REQUESTED. (C) FINAL REPORTS. WITHIN THIRTY (30) DAYS AFTER THE AWARD END DATE, AWARDEE SHALL SUBMIT A FINAL REPORT, NOT TO EXCEED TEN (10) PAGES WHICH INCLUDES: (I) A FINAL SCIENTIFIC NARRATIVE PROGRESS REPORT SUMMARIZING ALL THE DATA GENERATED DURING THE AWARD RESEARCH, THE ACTIVITIES SUPPORTED BY THE AWARD, THE SUCCESSES AND DIFFICULTIES THE AWARDEE HAD IN ACHIEVING THE GOALS AND A FINANCIAL EXPENDITURE REPORT ITEMIZING ALL EXPENSES INCURRED DURING THE ENTIRE AWARD PERIOD. AWARDEE ACKNOWLEDGES AND AGREES THAT REPORT SHALL BE TREATED AS AWARDEE CONFIDENTIAL INFORMATION. THE OBLIGATION TO PROVIDE THE ABOVE REPORTS SHALL SURVIVE TERMINATION OF THIS AWARD AGREEMENT. SUBMISSION OF THE FINAL REPORT SHALL BE A CONDITION PRECEDENT TO RECEIVING THE LAST MILESTONE PAYMENT. | ExplanationTxt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (2 entries)
| Address Line1USAddress/AddressLine1 | CityUSAddress/City | StateUSAddress/State | ZIP CodeUSAddress/ZIPCode | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt | Address Line2USAddress/AddressLine2 |
|---|---|---|---|---|---|---|---|---|
| MD ANDERSON CANCER CENTER UNIVERSITY OF TEXAS | ||||||||
| 1400 PRESSLER STREET UNIT 1452 | HOUSTON | TX | 770304009 | 746001118 | U. OF TEXAS | $150,000 | ALOPECIA AREATA REGISTRY | |
| LEAVITT MEDICAL ASSOCIATES OF FLORIDA INC DBA AMERIDERM RESEARCH | ||||||||
| 725 WEST GRANADA BLOULEVARD SUITE | ORMOND BEACH | FL | 32174 | 593549147 | $50,000 | ALOPECIA AREATA PROTOCOL | 44 | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 1 | Total501c3OrgCnt |
| Total Other Org | 1 | TotalOtherOrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | GRANTS ARE AWARDED BASED UPON RECOMMENDATIONS OF INDEPENDENT SCIENTIFIC ADVISORY COMMITTEE WHICH EVALUATES RESPONSES TO REQUESTS FOR PROPOSALS. ONE FOURTH OF GRANT AWARD IS PAID WHEN CONTRACT IS SIGNED AND THE REMAINING THREE FOURTHS ARE PAID UPON SUBMISSION OF INTERIM AND FINAL REPORTS. FINAL PAYAMENT IS NOT MADE UNTIL SCIENTIFIC ADVISORY COMMITTEE APPROVES FINAL REPORT. AWARDEE IS REQUIRED TO SUBMIT THE REPORTS TO NAAF AS SET FORTH BELOW. SUBMISSION OF REPORTS AND THEIR APPROVAL BY NAAF ARE NECESSARY CONDITIONS FOR FURTHER FUNDING UNDER THIS AWARD. THE FOLLOWING REPORTS ARE REQUIRED: (A) SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC PROGRESS REPORTS WHICH DESCRIBE PROGRESS AND CHALLENGES RELATED TO MILESTONES OUTLINED AND AN ACCOUNTING OF EXPENSES INCURRED ("PROGRESS REPORTS") ARE REQUIRED ON THE FOLLOWING SCHEDULE. THE FIRST ONE-PAGE PROGRESS REPORT SHALL BE SUBMITTED TO NAAF WITHIN FOUR MONTHS OF THE GRANT AWARD, THE SECOND ONE PAGE PROGRESS REPORT SHALL BE SUBMITTED TO NAAF WITHIN EIGHT MONTHS OF THE GRANT AWARD, AND THE FINAL REPORT SHALL BE SUBMITTED TO NAAF WITHIN 30 DAYS OF THE COMPLETION OF THE WORK. THE AWARDEE WILL RECEIVE 25% PAYMENT WITHIN 30 DAYS AFTER NAAF RECEIVES SIGNED AWARD AGREEMENT, 25% PAYMENT WITHIN 30 DAYS AFTER NAAF RECEIVES 4 MONTH PROGRESS REPORT IF MILESTONES ARE MET OR CHALLENGES SATISFACTORILY EXPLAINED, 25% PAYMENT WITHIN 30 DAYS AFTER NAAF RECEIVES 8 MONTH PROGRESS REPORT IF MILESTONES ARE MET AND/OR CHALLENGES SATISFACTORILY EXPLAINED, AND 25% PAYMENT AFTER NAAF RECEIVES FINAL REPORT IF MILESTONES ARE MET AND/OR CHALLENGES SATISFACTORILY EXPLAINED. (B) SUMMARY PROGRESS REPORTS. SUMMARY PROGRESS REPORTS MAY ALSO BE REQUESTED FROM TIME TO TIME TO HELP NAAF IN ITS CONTINUED EFFORTS TO RAISE FUNDS, ATTRACT MAJOR DONORS, AND MEET OTHER OPERATIONAL NEEDS. THESE MUST BE PROVIDED PROMPTLY WHEN REQUESTED. (C) FINAL REPORTS. WITHIN THIRTY (30) DAYS AFTER THE AWARD END DATE, AWARDEE SHALL SUBMIT A FINAL REPORT, NOT TO EXCEED TEN (10) PAGES WHICH INCLUDES: (I) A FINAL SCIENTIFIC NARRATIVE PROGRESS REPORT SUMMARIZING ALL THE DATA GENERATED DURING THE AWARD RESEARCH, THE ACTIVITIES SUPPORTED BY THE AWARD, THE SUCCESSES AND DIFFICULTIES THE AWARDEE HAD IN ACHIEVING THE GOALS AND A FINANCIAL EXPENDITURE REPORT ITEMIZING ALL EXPENSES INCURRED DURING THE ENTIRE AWARD PERIOD. AWARDEE ACKNOWLEDGES AND AGREES THAT REPORT SHALL BE TREATED AS AWARDEE CONFIDENTIAL INFORMATION. THE OBLIGATION TO PROVIDE THE ABOVE REPORTS SHALL SURVIVE TERMINATION OF THIS AWARD AGREEMENT. SUBMISSION OF THE FINAL REPORT SHALL BE A CONDITION PRECEDENT TO RECEIVING THE LAST MILESTONE PAYMENT. | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (6 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION A, LINE 8B | THE ORGANIZATION DOES NOT HAVE A COMMITTEE WITH AUTHORITY TO ACT ON BEHALF OF THE GOVERNING BODY. |
| FORM 990, PART VI, SECTION B, LINE 11 | FORM 990 IS REVIEWED BY DIRECTORS AT MEETING SCHEDULED FOR THAT PURPOSE - RETURN PREPARER IS AVAILABLE TO EXPLAIN FORM AND ANSWER QUESTIONS. |
| FORM 990, PART VI, SECTION B, LINE 12C | OFFICERS & DIRECTORS & STAFF COMPLETE ANNUAL DISCLOSURE STATEMENT |
| FORM 990, PART VI, SECTION B, LINE 15A | WHEN HIRING THE EXECUTIVE DIRECTOR AND OTHER KEY EMPLOYEES, AND THEREAFTER ON AN ANNUAL BASIS, THE BOARD PERFORMS A THOROUGH REVIEW TO DETERMINE SUITABLE COMPENSATION. THIS PROCESS INCLUDES A REVIEW OF COMPARABILITY DATA BY THE BOARD OF DIRECTORS. COMPARABILITY DATA INCLUDES COMPENSATION SURVEYS, WRITTEN EMPLOYMENT CONTRACTS AND FORMS 990 OF SIMILAR ORGANIZATIONS. THE BOARD RETAINS DOCUMENTATION OF THEIR DELIBERATIONS AND FINAL DECISION. |
| FORM 990, PART VI, SECTION C, LINE 19 | GOVERNING DOCUMENTS ARE AVAILABLE THROUGH THE SECRETARY OF STATE. CONFLICT OF INTEREST POLICY IS AVAILABLE UPON REQUEST. FINANCIAL STATEMENTS ARE AVAILABLE ON THE ORGANIZATION'S WEBSITE AND ALSO INCLUDED IN ANNUAL REPORT. |
| FORM 990, PART XII, LINE 2C | THE FINANCE & GOVERNANCE COMMITTEE SELECTS AND OVERSEES AN INDEPENDENT ACCOUNTING FIRM TO CONDUCT THE AUDIT. NO CHANGE IN THE SELECTION METHOD OCCURRED THIS YEAR. |