TOURETTE ASSOCIATION OF AMERICA INC: Form 990, tax year 2024
View the entire original 990 at ProPublica ↗
- Organization
- TOURETTE ASSOCIATION OF AMERICA INC (EIN 23-7191992)
- Tax period
- 2024-03-01 to 2025-02-28
- Filed
- 2025-12-15
- IRS object ID
- 202523499349301007
- Schema version
- 2024v5.2
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule G
- Schedule I
- Schedule J
- Schedule M
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2025-12-15T11:11:16-06:00 | ReturnTs |
| Tax Period End | 2025-02-28 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 131577780 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | SCHULTHEIS & PANETTIERI LLP | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 450 WIRELESS BLVD | AddressLine1Txt |
| City | HAUPPAUGE | CityNm |
| State Abbreviation | NY | StateAbbreviationCd |
| ZIP | 11788 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2024-03-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 237191992 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | TOURETTE ASSOCIATION OF AMERICA INC | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | TOUR | BusinessNameControlTxt |
| Phone | 7182242999 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 42-40 BELL BOULEVARD | AddressLine1Txt |
| City | BAYSIDE | CityNm |
| State Abbreviation | NY | StateAbbreviationCd |
| ZIP | 113612332 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | ANDREW JULIA | PersonNm |
| Person Title | VP OF FINANCE & ADMINISTRATION | PersonTitleTxt |
| Phone | 7182242999 | PhoneNum |
| Signature | 2025-12-15 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IRS Responsible Prty Info Curr | Yes (1) | IRSResponsiblePrtyInfoCurrInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | CAROL WESTFALL | PreparerPersonNm |
| PTIN | P00539069 | PTIN |
| Phone | 6312734778 | PhoneNum |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2024 | TaxYr |
| Build TS | 2025-03-06 01:10:19Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | ANDREW JULIA | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 42-40 BELL BOULEVARD | AddressLine1Txt |
| City | BAYSIDE | CityNm |
| State Abbreviation | NY | StateAbbreviationCd |
| ZIP | 113612332 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $9,853,155 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Group Exemption | 7202 | GroupExemptionNum |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | TOURETTE.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1972 | FormationYr |
| Legal Domicile State | NY | LegalDomicileStateCd |
| Activity Or Mission | TO IDENTIFY THE CAUSE OF, FIND THE CURE FOR AND CONTROL THE EFFECTS OF TOURETTE SYNDROME. | ActivityOrMissionDesc |
| Voting Members Governing Body | 19 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 19 | VotingMembersIndependentCnt |
| Total Employee | 38 | TotalEmployeeCnt |
| Total Volunteers | 52 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $4,466,745 | PYContributionsGrantsAmt |
| CY Contributions Grants | $4,694,677 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $138,528 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $105,365 | CYProgramServiceRevenueAmt |
| PY Investment Income | $486,666 | PYInvestmentIncomeAmt |
| CY Investment Income | $436,522 | CYInvestmentIncomeAmt |
| PY Other Revenue | -$43,744 | PYOtherRevenueAmt |
| CY Other Revenue | $0 | CYOtherRevenueAmt |
| PY Total Revenue | $5,048,195 | PYTotalRevenueAmt |
| CY Total Revenue | $5,236,564 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $972,793 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $673,396 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $3,192,989 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $3,208,563 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $734,776 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $2,438,755 | PYOtherExpensesAmt |
| CY Other Expenses | $1,917,620 | CYOtherExpensesAmt |
| PY Total Expenses | $6,604,537 | PYTotalExpensesAmt |
| CY Total Expenses | $5,799,579 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | -$1,556,342 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$563,015 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $10,414,671 | TotalAssetsBOYAmt |
| Total Assets EOY | $9,502,751 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $2,262,774 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $1,714,865 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $8,151,897 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $7,787,886 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | TO IDENTIFY THE CAUSE OF, FIND THE CURE FOR, AND CONTROL THE EFFECTS OF TOURETTE SYNDROME. THE TOURETTE ASSOCIATION IS DEDICATED TO MAKING LIFE BETTER FOR ALL PEOPLE AFFECTED BY TOURETTE AND TIC DISORDERS. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $2,225,237 | ExpenseAmt |
| Revenue | $105,365 | RevenueAmt |
| Desc | PUBLIC EDUCATION - PROVIDE EDUCATION AND AWARENESS BY RAISING PUBLIC AWARENESS AND FOSTERING SOCIAL ACCEPTANCE. EDUCATING PROFESSIONALS TO BETTER SERVE THE NEEDS OF CHILDREN, ADULTS AND FAMILIES CHALLENGED BY TOURETTE AND TIC DISORDERS. ADVOCATING FOR PUBLIC POLICIES AND SERVICES THAT PROMOTE POSITIVE SCHOOL, WORK AND SOCIAL ENVIRONMENTS. PROVIDING HELP, HOPE AND A SUPPORTIVE COMMUNITY ACROSS THE NATION. EMPOWERING OUR COMMUNITY TO DEAL WITH THE COMPLEXITIES OF THIS SPECTRUM OF DISORDERS. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $949,883 | ExpenseAmt |
| Grant | $600,000 | GrantAmt |
| Revenue | $0 | RevenueAmt |
| Desc | RESEARCH & MEDICAL PROGRAMS - WORKING TO ADVANCE SCIENTIFICUNDERSTANDING, TREATMENT OPTIONS AND CARE OPTIONS FOR THE DISORDER BYPROVIDING FUNDING FOR RESEARCH INVESTIGATIONS IN THE AREAS OFNEUROSCIENCES, GENETICS, BEHAVIORIAL THERAPY, CLINICAL TRIALS. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $1,124,707 | ExpenseAmt |
| Grant | $73,396 | GrantAmt |
| Desc | CENTERS FOR DISEASE CONTROL (CDC) PARTNERSHIP - THE ASSOCIATION ANDCDC WORK TOGETHER TO PROVIDE EXPERT EDUCATION ABOUT TOURETTE SYNDROMETO PHYSICIANS AND ALLIED PROFESSIONALS AND TO ENCOURAGE PHYSICIANS TOAPPLY TO THE ASSOCIATION'S REFERRAL LISTS. INCLUDES PROGRAMS TOEDUCATE SCHOOLS AND COMMUNITIES ABOUT TOURETTE SYNDROME. | Desc |
Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $126,255 | ExpenseAmt |
| Desc | PROFESSIONAL EDUCATION - PROVIDES FOR THE EDUCATION AND AWARENESS OFTOURETTE SYNDROME TO MEDICAL PROFESSIONALS, THROUGH AMONG OTHER THINGS,SEMINARS AND DISTRIBUTION OF RESEARCH UPDATES. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Prog Srvc Expense | $126,255 | TotalOtherProgSrvcExpenseAmt |
| Total Program Service Expenses | $4,426,082 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (1) | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | Yes (1) | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (1) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | 0 | ForeignActivitiesInd |
| More Than5000 K To Org | 0 | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | 0 | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | Yes (1) | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 40 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (1) | BackupWthldComplianceInd |
| Employee | 38 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (1) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (1) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 19 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 19 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | Yes (1) | LocalChaptersInd |
| Policies Reference Chapters | Yes (1) | PoliciesReferenceChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | 0 | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AZ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | LA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ME | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ND | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | ANDREW JULIA | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 7182242999 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 42-40 BELL BOULEVARD | AddressLine1Txt |
| City | BAYSIDE | CityNm |
| State Abbreviation | NY | StateAbbreviationCd |
| ZIP | 113612332 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (27 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|
| STEPHEN BARRON | |||||||
| CHAIRMAN OF THE BOARD | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| DAVID SCHOENHAAR | |||||||
| FIRST VICE CHAIR | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| JASMINE TARKOFF | |||||||
| SECOND VICE CHAIR | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| JEFFREY KRAMER | |||||||
| THIRD VICE CHAIR | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| ALICE KANE | |||||||
| FOURTH VICE CHAIR | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| CHERI DAVID CPA | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| MONTE REDMAN | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| PAUL DEVORE | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| MARC BENSON | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| BRUCE OCHSMAN | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| DANIEL MCGARVEY | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| CINDY KURTZ | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| ROVENA SCHIRLING | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| RANDI ZEMSKY | |||||||
| DIRECTOR | 4.00 | Yes (X) | $0 | $0 | $0 | ||
| KARL VALENTINI | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| JOHN WALKUP MD | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| SUSAN COUREY PHD | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| ANTHONY ACAMPORA EFF 22425 | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| DASH MIHOK EFF 22425 | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| AMANDA TALTY | |||||||
| PRESIDENT & CEO | 40.00 | Yes (X) | $295,326 | $0 | $14,500 | ||
| SONJA MASON-VIDAL | |||||||
| VP OF FINANCE & ADM. | 40.00 | Yes (X) | $157,479 | $0 | $24,262 | ||
| JAMES NICHOLS | |||||||
| VP OF PUBLIC POLICY | 40.00 | Yes (X) | $92,129 | $0 | $14,620 | ||
| SCOTT STERLING | |||||||
| VP OF RESOURCE DEVELOPMENT & AFFILIATE SERVICES | 40.00 | Yes (X) | $69,689 | $0 | $0 | ||
| DIANA FELNER - THRU 12024 | |||||||
| VP OF PUBLIC POLICY | 40.00 | Yes (X) | $10,943 | $0 | $0 | ||
| KARON HARRISON - THRU 101624 | |||||||
| VP OF RESOURCE DEVELOPMENT & AFFILIATES SERVICES | 40.00 | Yes (X) | $134,312 | $0 | $23,059 | ||
| KATRINA HERMETET | |||||||
| VP, MEDICAL & SCIENTIFIC AFFAIRS | 40.00 | $104,186 | $0 | $9,583 | Yes (X) | ||
| JAMES SARACINI | |||||||
| VP, MARKETING & COMMUNICATIONS | 40.00 | $145,815 | $0 | $4,862 | Yes (X) | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $1,009,879 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $90,886 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 5 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
| Cntrct Rcvd Greater Than100 K | 0 | CntrctRcvdGreaterThan100KCnt |
| Fundraising | $778,099 | FundraisingAmt |
| Government Grants | $1,221,509 | GovernmentGrantsAmt |
| All Other Contributions | $2,695,069 | AllOtherContributionsAmt |
| Noncash Contributions | $146,626 | NoncashContributionsAmt |
| Total Contributions | $4,694,677 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | CONFERENCE INCOME | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $105,365 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $105,365 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $105,365 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $268,282 | TotalRevenueColumnAmt |
| Exclusion | $268,282 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $4,582,605 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $4,414,365 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $168,240 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $168,240 | TotalRevenueColumnAmt |
| Exclusion | $168,240 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $202,226 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $778,099 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $202,226 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $5,236,564 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $105,365 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $436,522 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $673,396 | TotalAmt |
| Program Services | $673,396 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $829,858 | TotalAmt |
| Program Services | $590,454 | ProgramServicesAmt |
| Management And General | $138,701 | ManagementAndGeneralAmt |
| Fundraising | $100,703 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,801,215 | TotalAmt |
| Program Services | $1,306,049 | ProgramServicesAmt |
| Management And General | $186,868 | ManagementAndGeneralAmt |
| Fundraising | $308,298 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $45,652 | TotalAmt |
| Program Services | $36,702 | ProgramServicesAmt |
| Management And General | $3,702 | ManagementAndGeneralAmt |
| Fundraising | $5,248 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $348,614 | TotalAmt |
| Program Services | $280,270 | ProgramServicesAmt |
| Management And General | $28,269 | ManagementAndGeneralAmt |
| Fundraising | $40,075 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $183,224 | TotalAmt |
| Program Services | $147,303 | ProgramServicesAmt |
| Management And General | $14,858 | ManagementAndGeneralAmt |
| Fundraising | $21,063 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $12,819 | TotalAmt |
| Program Services | $3,668 | ProgramServicesAmt |
| Management And General | $7,623 | ManagementAndGeneralAmt |
| Fundraising | $1,528 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $46,000 | TotalAmt |
| Management And General | $46,000 | ManagementAndGeneralAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $47,544 | TotalAmt |
| Program Services | $47,544 | ProgramServicesAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $34,988 | TotalAmt |
| Management And General | $34,988 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $220,853 | TotalAmt |
| Program Services | $176,281 | ProgramServicesAmt |
| Management And General | $9,311 | ManagementAndGeneralAmt |
| Fundraising | $35,261 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $245,419 | TotalAmt |
| Program Services | $153,765 | ProgramServicesAmt |
| Management And General | $11,723 | ManagementAndGeneralAmt |
| Fundraising | $79,931 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $161,578 | TotalAmt |
| Program Services | $108,270 | ProgramServicesAmt |
| Management And General | $8,965 | ManagementAndGeneralAmt |
| Fundraising | $44,343 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $82,850 | TotalAmt |
| Program Services | $40,565 | ProgramServicesAmt |
| Management And General | $28,809 | ManagementAndGeneralAmt |
| Fundraising | $13,476 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $287,536 | TotalAmt |
| Program Services | $249,663 | ProgramServicesAmt |
| Management And General | $2,512 | ManagementAndGeneralAmt |
| Fundraising | $35,361 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $335,573 | TotalAmt |
| Program Services | $335,573 | ProgramServicesAmt |
Interest InterestGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $6,597 | TotalAmt |
| Management And General | $6,597 | ManagementAndGeneralAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $6,296 | TotalAmt |
| Program Services | $3,083 | ProgramServicesAmt |
| Management And General | $2,189 | ManagementAndGeneralAmt |
| Fundraising | $1,024 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $54,392 | TotalAmt |
| Program Services | $30,340 | ProgramServicesAmt |
| Management And General | $21,334 | ManagementAndGeneralAmt |
| Fundraising | $2,718 | FundraisingAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| MISCELLANEOUS | $224,240 | $183,772 | $1,204 | $39,264 |
| UNCOLLECTABLE RECEIVABL | $80,000 | $80,000 | ||
| REGISTRATION FEES | $40,504 | $33,803 | $3,891 | $2,810 |
| CHAPTER SUPPORT | $15,777 | $15,777 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $14,654 | TotalAmt |
| Program Services | $9,804 | ProgramServicesAmt |
| Management And General | $1,177 | ManagementAndGeneralAmt |
| Fundraising | $3,673 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $5,799,579 | TotalAmt |
| Program Services | $4,426,082 | ProgramServicesAmt |
| Management And General | $638,721 | ManagementAndGeneralAmt |
| Fundraising | $734,776 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $125,327 | BOYAmt |
| EOY | $115,751 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,605,365 | BOYAmt |
| EOY | $191,049 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $916,497 | BOYAmt |
| EOY | $1,700,367 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $43,958 | BOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $252,556 | BOYAmt |
| EOY | $159,664 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $168,185 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $158,105 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $16,376 | BOYAmt |
| EOY | $10,080 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $6,100,707 | BOYAmt |
| EOY | $7,062,228 | EOYAmt |
Investments Other Securities InvestmentsOtherSecuritiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $34,519 | BOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $319,366 | BOYAmt |
| EOY | $263,612 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $10,414,671 | BOYAmt |
| EOY | $9,502,751 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $445,542 | BOYAmt |
| EOY | $419,481 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $822,300 | BOYAmt |
| EOY | $699,299 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $18,327 | BOYAmt |
| EOY | $35,715 | EOYAmt |
Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $539,586 | BOYAmt |
| EOY | $200,763 | EOYAmt |
Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $158,810 | BOYAmt |
| EOY | $158,810 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $278,209 | BOYAmt |
| EOY | $200,797 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,262,774 | BOYAmt |
| EOY | $1,714,865 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $6,993,959 | BOYAmt |
| EOY | $5,654,225 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,157,938 | BOYAmt |
| EOY | $2,133,661 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $8,151,897 | BOYAmt |
| EOY | $7,787,886 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $10,414,671 | BOYAmt |
| EOY | $9,502,751 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$563,015 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $199,004 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | Yes (1) | FederalGrantAuditRequiredInd |
| Federal Grant Audit Performed | Yes (1) | FederalGrantAuditPerformedInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $3,462,232 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $3,971,216 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $4,496,697 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $4,466,745 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $4,694,676 | CurrentTaxYearAmt |
| Total | $21,091,566 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $3,462,232 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $3,971,216 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $4,496,697 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $4,466,745 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $4,694,676 | CurrentTaxYearAmt |
| Total | $21,091,566 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $2,308,322 | SubstantialContributorsTotAmt |
| Public Support Total170 | $18,783,244 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $120,737 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $150,792 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $190,767 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $280,265 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $268,282 | CurrentTaxYearAmt |
| Total | $1,010,843 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $3,185 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $81,614 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $197,637 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $178,630 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $202,226 | CurrentTaxYearAmt |
| Total | $663,292 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $22,765,701 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $592,796 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.82510 | PublicSupportCY170Pct |
| Public Support PY170 | 0.86390 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Form990 Schedule A Part VI Form990ScheduleAPartVIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE A, PART II, LINE 10 EXPLANATION FOR OTHER INCOME: | FormAndLineReferenceDesc |
| Explanation | 2021 AMOUNT: $61,295 2022 AMOUNT: $91,446 2023 AMOUNT: $178,630 2024 AMOUNT: $202,226 MISCELLANEOUS INCOME: 2020 AMOUNT: $3,185 2021 AMOUNT: $20,319 2022 AMOUNT: $106,191 | ExplanationTxt |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule C IRS990ScheduleC
| Field | Value | IRS element (for citing) |
|---|---|---|
| Volunteers | Yes (1) | VolunteersInd |
| Paid Staff Or Management | Yes (1) | PaidStaffOrManagementInd |
| Media Advertisements | 0 | MediaAdvertisementsInd |
| Mailings Members | Yes (1) | MailingsMembersInd |
| Mailings Members | $35,698 | MailingsMembersAmt |
| Publications Or Broadcast | 0 | PublicationsOrBroadcastInd |
| Grants Other Organizations | 0 | GrantsOtherOrganizationsInd |
| Direct Contact Legislators | Yes (1) | DirectContactLegislatorsInd |
| Direct Contact Legislators | $227,378 | DirectContactLegislatorsAmt |
| Rallies Demonstrations | 0 | RalliesDemonstrationsInd |
| Other Activities | 0 | OtherActivitiesInd |
| Total Lobbying Expenditures | $263,076 | TotalLobbyingExpendituresAmt |
| Not Described Section501c3 | 0 | NotDescribedSection501c3Ind |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I-A, LINE 1: | FormAndLineReferenceDesc |
| Explanation | TAA ADVOCATES TO ENSURE GOVERNMENT OFFICIALS UNDERSTAND TOURETTE SYNDROME (TS) AND TIC DISORDERS (TD) AND TO ENSURE POLICIES AND REGULATIONS BEING DRAFTED, RELEASED AND FINALIZED OR SIGNED INTO LAW ARE IN THE BEST INTERESTS OF THOSE WITH TS OR TD. WE ALSO ADVOCATE TO ENSURE ADEQUATE GOVERNMENT FUNDING IS PROVIDED FOR THE CDC TOURETTE SYNDROME PUBLIC HEALTH EDUCATION AND RESEARCH PROGRAM AND AT THE NATIONAL INSTITUTES OF HEALTH'S NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS AND STROKE AND THE NATIONAL INSTITUTE OF MENTAL HEALTH. | ExplanationTxt |
Schedule D IRS990ScheduleD
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $580,458 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $9,053 | InvestmentEarningsOrLossesAmt |
| Other Expenditures | $9,053 | OtherExpendituresAmt |
| End Year Balance | $580,458 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $474,000 | BeginningYearBalanceAmt |
| Contributions | $106,458 | ContributionsAmt |
| Investment Earnings Or Losses | $7,166 | InvestmentEarningsOrLossesAmt |
| Other Expenditures | $7,166 | OtherExpendituresAmt |
| End Year Balance | $580,458 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $474,000 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $4,795 | InvestmentEarningsOrLossesAmt |
| Other Expenditures | $4,795 | OtherExpendituresAmt |
| End Year Balance | $474,000 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $334,000 | BeginningYearBalanceAmt |
| Contributions | $140,000 | ContributionsAmt |
| Investment Earnings Or Losses | $5,146 | InvestmentEarningsOrLossesAmt |
| Administrative Expenses | $5,146 | AdministrativeExpensesAmt |
| End Year Balance | $474,000 | EndYearBalanceAmt |
CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $334,000 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $5,518 | InvestmentEarningsOrLossesAmt |
| Administrative Expenses | $5,518 | AdministrativeExpensesAmt |
| End Year Balance | $334,000 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Prmnnt Endowment Balance EOY | 1.00000 | PrmnntEndowmentBalanceEOYPct |
| Endowments Held Unrelated Org | Yes (1) | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | 0 | EndowmentsHeldRelatedOrgInd |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $168,185 | OtherCostOrOtherBasisAmt |
| Depreciation | $158,105 | DepreciationAmt |
| Book Value | $10,080 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $10,080 | TotalBookValueLandBuildingsAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)
| DescDesc | AmtAmt |
|---|---|
| OPERATING LEASE LIABILITY | $182,908 |
| FINANCING LEASE LIABILITY | $17,889 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $200,797 | TotalLiabilityAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $5,821,240 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $199,004 | NetUnrealizedGainsInvstAmt |
| Donated Services And Use Fclts | $459,924 | DonatedServicesAndUseFcltsAmt |
| Other Revenue | -$39,264 | OtherRevenueAmt |
| Revenue Not Reported | $619,664 | RevenueNotReportedAmt |
| Revenue Subtotal | $5,201,576 | RevenueSubtotalAmt |
| Investment Expenses Not Incld | $34,988 | InvestmentExpensesNotIncldAmt |
| Revenue Not Reported Fincl Stmt | $34,988 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $5,236,564 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $6,185,251 | TotExpnsEtcAuditedFinclStmtAmt |
| Donated Services Use Fclts | $459,924 | DonatedServicesUseFcltsAmt |
| Expenses Not Reported | $459,924 | ExpensesNotReportedAmt |
| Expenses Subtotal | $5,725,327 | ExpensesSubtotalAmt |
| Investment Expenses Not Incld2 | $34,988 | InvestmentExpensesNotIncld2Amt |
| Other Expenses Not Included | $39,264 | OtherExpensesNotIncludedAmt |
| Expenses Not Rpt Fincl Stmt | $74,252 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $5,799,579 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (4 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART V, LINE 4: | THE INTENDED USE OF THE ORGANIZATION'S ENDOWMENT FUNDS IS TO SUPPORT THE WORK OF THE PUBLIC EDUCATION (INFORMATION & REFERRAL SERVICE) PROGRAM. |
| PART X, LINE 2: | THE ASSOCIATION BELIEVES IT HAS NO UNCERTAIN TAX POSITIONS AS OF FEBRUARY 28, 2025 AND FEBRUARY 29, 2024 IN ACCORDANCE WITH FASB ASC TOPIC 740, WHICH PROVIDES STANDARDS FOR ESTABLISHING AND CLASSIFYING ANY TAX PROVISIONS FOR UNCERTAIN TAX POSITIONS. |
| PART XI, LINE 2D - OTHER ADJUSTMENTS: | INDIRECT FUNDRAISING EXPENSE -39,264. |
| PART XII, LINE 4B - OTHER ADJUSTMENTS: | INDIRECT FUNDRAISING EXPENSE 39,264. |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | GALA | Event1Nm |
| Gross Receipts Event1 | $772,120 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $700,000 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $72,120 | GrossRevenueEvent1Amt |
| Non Cash Prizes Event1 | $21,126 | NonCashPrizesEvent1Amt |
| Rent Facility Costs Event1 | $58,720 | RentFacilityCostsEvent1Amt |
| Other Direct Expenses Event1 | $2,900 | OtherDirectExpensesEvent1Amt |
| Event2 | GOLF - LI | Event2Nm |
| Gross Receipts Event2 | $208,205 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $78,099 | CharitableContriEvent2Amt |
| Gross Revenue Event2 | $130,106 | GrossRevenueEvent2Amt |
| Non Cash Prizes Event2 | $4,017 | NonCashPrizesEvent2Amt |
| Rent Facility Costs Event2 | $99,221 | RentFacilityCostsEvent2Amt |
| Food And Beverage Event2 | $8,314 | FoodAndBeverageEvent2Amt |
| Other Direct Expenses Event2 | $7,928 | OtherDirectExpensesEvent2Amt |
| Gross Receipts Total | $980,325 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $778,099 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $202,226 | GrossRevenueTotalEventsAmt |
| Non Cash Prizes Total Events | $25,143 | NonCashPrizesTotalEventsAmt |
| Rent Fclty Costs Total Events | $157,941 | RentFcltyCostsTotalEventsAmt |
| Food And Beverage Total Events | $8,314 | FoodAndBeverageTotalEventsAmt |
| Oth Direct Expnss Total Events | $10,828 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $202,226 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | $0 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (4 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Non Cash AssistanceNonCashAssistanceAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|---|
| REGENTS OF THE UNIVERSITY OF CA (UCSD) | ||||||||
| 9500 GILMAN AVENUE | LA JOLLA | CA | 92093 | 956006144 | 501 (C)(3) | $150,000 | $0 | RESEARCH |
| YALE UNIVERSITY | ||||||||
| 55 COLLEGE STREET | NEW HAVEN | CT | 06520 | 060646973 | 501 (C)(3) | $150,000 | $0 | RESEARCH |
| UNIVERSITY OF MINNESOTA | ||||||||
| 2221 UNIVERSITY AVENUE SE STE 100 | MINNEAPOLIS | MN | 55414 | 416007513 | 501 (C)(3) | $150,000 | $0 | RESEARCH |
| RUTGERS | ||||||||
| 33 KNIGHTSBRIDGE RD | PISCATAWAY | NJ | 08854 | 226001086 | 501 (C)(3) | $150,000 | $0 | RESEARCH |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 4 | Total501c3OrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | THE ASSOCIATION MUST RECEIVE A FINAL PROGRESS REPORT DESCRIBING RESEARCH AND OUTCOMES AS WELL AS HOW FUNDS HAVE BEEN USED. ADVISORY BOARDS REVIEW AND APPROVE BEFORE FINAL PAYMENT IS MADE. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Compensation Committee | Yes (X) | CompensationCommitteeInd |
| Form990 Of Other Organizations | Yes (X) | Form990OfOtherOrganizationsInd |
| Written Employment Contract | Yes (X) | WrittenEmploymentContractInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (4 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| AMANDA TALTY | ||||||||||||||
| PRESIDENT & CEO | $294,500 | $0 | $0 | $0 | $826 | $0 | $9,000 | $0 | $5,500 | $0 | $309,826 | $0 | $0 | $0 |
| SONJA MASON-VIDAL | ||||||||||||||
| VP OF FINANCE & ADM. | $157,026 | $0 | $0 | $0 | $453 | $0 | $4,800 | $0 | $19,462 | $0 | $181,741 | $0 | $0 | $0 |
| KARON HARRISON - THRU 101624 | ||||||||||||||
| VP OF RESOURCE DEVELOPMENT & AFFILIA | $133,880 | $0 | $0 | $0 | $432 | $0 | $4,132 | $0 | $18,927 | $0 | $157,371 | $0 | $0 | $0 |
| JAMES SARACINI | ||||||||||||||
| VP, MARKETING & COMMUNICATIONS | $145,561 | $0 | $0 | $0 | $254 | $0 | $3,115 | $0 | $1,747 | $0 | $150,677 | $0 | $0 | $0 |
Schedule M IRS990ScheduleM
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 7 | ContributionCnt |
| Noncash Contributions Rpt F990 | $146,626 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Any Property That Must Be Held | 0 | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | 0 | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | 0 | ThirdPartiesUsedInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE M, PART I, COLUMN (B): | FormAndLineReferenceDesc |
| Explanation | THE NUMBER IN COLUMN B REPRESENTS THE NUMBER OF CONTRIBUTIONS. | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (5 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION B, LINE 11B | THE FORM 990 IS PREPARED BY AN INDEPENDENT ACCOUNTING FIRM. THE FORM 990 IS PROVIDED TO EACH BOARD MEMBER FOR THEIR REVIEW. THE FORM 990 IS ONLY FILED AFTER EACH BOARD MEMBER FORMALLY APPROVES THE FORM 990. |
| FORM 990, PART VI, SECTION B, LINE 12C | THE CONFLICT OF INTEREST POLICY IS SIGNED ANNUALLY BY BOARD MEMBERS AND MANAGEMENT. |
| FORM 990, PART VI, SECTION B, LINE 15A | THERE IS A PERSONNEL/COMPENSATION COMMITTEE. THE CHAIR ASSIGNS THE MEMBERS TO DO RESEARCH AND COME UP WITH RECOMMENDATIONS TO THE COMMITTEE FOR THE OFFICERS. |
| FORM 990, PART VI, SECTION C, LINE 19 | ALL DOCUMENTS ARE AVAILABLE UPON REQUEST. |
| FORM 990, PART XII, LINE 2C: | THE PROCESS OF OVERSEEING THE AUDIT AND SELECTION OF AN INDEPENDENT ACCOUNTANT HAS NOT CHANGED FROM THE PRIOR YEAR. |