TOURETTE ASSOCIATION OF AMERICA INC: Form 990, tax year 2013
View the entire original 990 at ProPublica ↗
- Organization
- TOURETTE ASSOCIATION OF AMERICA INC (EIN 23-7191992)
- Tax period
- 2013-03-01 to 2014-02-28
- Filed
- 2014-06-26
- IRS object ID
- 201441779349300149
- Schema version
- 2013v3.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2014-06-26T13:54:11-05:00 | ReturnTs |
| Tax Period End | 2014-02-28 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 113518842 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | MARKS PANETH LLP | BusinessNameLine1 |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 685 THIRD AVENUE | AddressLine1 |
| City | NEW YORK | City |
| State | NY | State |
| ZIP Code | 10017 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2013-03-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 237191992 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | TOURETTE SYNDROME ASSOCIATION INC | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | TOUR | BusinessNameControlTxt |
| Phone | 7182242999 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 42-40 BELL BOULEVARD | AddressLine1 |
| City | BAYSIDE | City |
| State | NY | State |
| ZIP Code | 11361 | ZIPCode |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | ANNETTA HEWKO | PersonNm |
| Person Title | PRESIDENT | PersonTitleTxt |
| Phone | 7182242999 | PhoneNum |
| Signature | 2014-06-26 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | ROBERT R LYONS CPA | PreparerPersonNm |
| PTIN | P00227472 | PTIN |
| Phone | 2125038800 | PhoneNum |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2013 | TaxYr |
| Build TS | 2015-11-30 17:44:51Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | ANNETTA HEWKO | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 42-40 BELL BOULEVARD | AddressLine1 |
| City | BAYSIDE | City |
| State | NY | State |
| ZIP Code | 11361 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $9,987,125 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | TSA-USA.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1972 | FormationYr |
| Legal Domicile State | NY | LegalDomicileStateCd |
| Activity Or Mission | TO IDENTIFY THE CAUSE OF, FIND THE CURE FOR AND CONTROL THE EFFECTS OF TOURETTE SYNDROME. | ActivityOrMissionDesc |
| Voting Members Governing Body | 15 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 15 | VotingMembersIndependentCnt |
| Total Employee | 31 | TotalEmployeeCnt |
| Total Volunteers | 64 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $4,301,410 | PYContributionsGrantsAmt |
| CY Contributions Grants | $4,750,321 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $131,231 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $72,593 | CYProgramServiceRevenueAmt |
| PY Investment Income | $415,997 | PYInvestmentIncomeAmt |
| CY Investment Income | $345,443 | CYInvestmentIncomeAmt |
| PY Other Revenue | $443 | PYOtherRevenueAmt |
| CY Other Revenue | $36,281 | CYOtherRevenueAmt |
| PY Total Revenue | $4,849,081 | PYTotalRevenueAmt |
| CY Total Revenue | $5,204,638 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $1,858,357 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $1,729,156 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $2,630,888 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $2,827,020 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $677,764 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $1,960,575 | PYOtherExpensesAmt |
| CY Other Expenses | $1,551,170 | CYOtherExpensesAmt |
| PY Total Expenses | $6,449,820 | PYTotalExpensesAmt |
| CY Total Expenses | $6,107,346 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | -$1,600,739 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$902,708 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $18,600,148 | TotalAssetsBOYAmt |
| Total Assets EOY | $19,286,904 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $1,268,226 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $1,511,335 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $17,331,922 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $17,775,569 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | TO IDENTIFY THE CAUSE OF, FIND THE CURE FOR, AND CONTROL THE EFFECTS OF TOURETTE SYNDROME. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $2,439,258 | ExpenseAmt |
| Grant | $1,729,156 | GrantAmt |
| Desc | RESEARCH - IDENTIFY THE CAUSES OF TOURETTE SYNDROME, IMPROVE PATIENT CARE AND ULTIMATELY FIND A CURE FOR THE DISORDER BY PROVIDING FUNDING FOR RESEARCH INVESTIGATIONS IN THE AREAS OF NEUROSCIENCES AND CLINICAL CARE. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $1,269,829 | ExpenseAmt |
| Revenue | $72,593 | RevenueAmt |
| Desc | PUBLIC EDUCATION - PROVIDES FOR EDUCATION AND AWARENESS TO THE PUBLIC ON TOURETTE SYNDROME, AMONG OTHER THINGS, MAILING OF TOURETTE SYNDROME PAMPHLETS, BROCHURES, VIDEOS AND FILMS. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $718,519 | ExpenseAmt |
| Desc | CENTER FOR DISEASE CONTROL PROGRAM - THE ASSOCIATION AND CENTERS FOR DISEASE CONTROL PREVENTION (CDC) MEDICAL EDUCATION PARTNERSHIP IS PART OF A LARGER APPROPRIATION FROM THE US CONGRESS TO PROMOTE EXPERT MEDICAL EDUCATION ON TOURETTE SYNDROME (TS). THE GOALS OF THE MEDICAL EDUCATION PROGRAM ARE TO PROVIDE EXPERT EDUCATION IN TS TO PHYSICIANS AND TO ALLIED PROFESSIONALS, AND TO ENCOURAGE PHYSICIANS APPLICATION TO THE ASSOCIATION'S REFERRAL LISTS. | Desc |
Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp (2 entries)
| DescDesc | ExpenseExpenseAmt |
|---|---|
| NEW YORK COUNSELING PROGRAM - PROVIDES CASE MANAGEMENT, ADVOCACY, COUNSELING AND GROUP SESSION SERVICES TO PERSONS WITH TOURETTE SYNDROME WHO RESIDE IN NEW YORK CITY. | |
| PROFESSIONAL EDUCATION - PROVIDES FOR THE EDUCATION AND AWARENESS OF TOURETTE SYNDROME TO MEDICAL PROFESSIONALS, THROUGH AMONG OTHER THINGS, SEMINARS AND DISTRIBUTION OF RESEARCH UPDATES. | $177,848 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Prog Srvc Expense | $177,848 | TotalOtherProgSrvcExpenseAmt |
| Total Program Service Expenses | $4,605,454 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (1) | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Temp Or Permanent Endowments | Yes (1) | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | 0 | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | Yes (1) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (1) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | 0 | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | 0 | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 29 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Employee | 31 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (1) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (1) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 15 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 15 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | Yes (1) | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | Yes (1) | LocalChaptersInd |
| Policies Reference Chapters | Yes (1) | PoliciesReferenceChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (1) | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AZ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | LA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ME | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ND | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | JULIE NOULAS | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 7182242999 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 42-40 BELL BOULEVARD | AddressLine1 |
| City | BAYSIDE | City |
| State | NY | State |
| ZIP Code | 113612820 | ZIPCode |
Form990 Part VII Section A Form990PartVIISectionAGrp (25 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt |
|---|---|---|---|---|---|---|
| MICHAEL WOLFF | ||||||
| CHAIR | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| ROVENA SCHIRLING | ||||||
| FIRST VICE CHAIR | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| BRUCE D OCHSMAN | ||||||
| SECOND VICE CHAIR | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| ALICE KANE | ||||||
| THIRD VICE CHAIR | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| CINDY KURTZ | ||||||
| FOURTH VICE CHAIR | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| MARCIE KIRKPATRICK LIPSITZ | ||||||
| SECRETARY | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| FRED COOK | ||||||
| FINANCE COMMITTEE CHAIR | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| BRIAN KEMPNER | ||||||
| SECRETARY (FORMER) | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| REID ASHINOFF | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| SOL BARER | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| PAUL S DEVORE | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| ROBIN JOSEPHS | ||||||
| DIRECTOR (FORMER) | 2.00 | Yes (X) | $0 | $0 | $0 | |
| LISA MATLIN | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| KENNETH D MOELIS | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| MONTE REDMAN | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| ROBIN SMALL | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| RANDI ZEMSKY | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| JUDIT UNGAR | ||||||
| PRESIDENT (FORMER)/SENIOR ADVISOR | 35.00 | Yes (X) | $338,218 | $0 | $43,573 | |
| GARY FRANK | ||||||
| EXECUTIVE VP | 35.00 | Yes (X) | $122,822 | $0 | $21,487 | |
| JULIE NOULAS | ||||||
| VP, FINANCE & TREASURER | 35.00 | Yes (X) | $117,891 | $0 | $9,362 | |
| KEVIN MCNAUGHT | ||||||
| VP, MEDICAL & SCIENCE PROG | 35.00 | Yes (X) | $111,617 | $0 | $20,875 | |
| JOSEPH MARK LEVINE | ||||||
| VP, DEVELOPMENT | 35.00 | Yes (X) | $100,102 | $0 | $20,168 | |
| DANIEL ROSTAN | ||||||
| VP, FIELD SERVICES | 35.00 | Yes (X) | $98,369 | $0 | $20,001 | |
| ELRIDGE PROCTOR | ||||||
| VP, PUBLIC POLICY | 35.00 | Yes (X) | $89,941 | $0 | $7,561 | |
| ANNETTA HEWKO | ||||||
| PRESIDENT | 35.00 | Yes (X) | $142,028 | $0 | $12,013 | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $1,120,988 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $155,040 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 6 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
| Cntrct Rcvd Greater Than100 K | 0 | CntrctRcvdGreaterThan100KCnt |
| Federated Campaigns | $64,020 | FederatedCampaignsAmt |
| Membership Dues | $150,363 | MembershipDuesAmt |
| Fundraising | $1,728,236 | FundraisingAmt |
| Government Grants | $1,511,337 | GovernmentGrantsAmt |
| All Other Contributions | $1,296,365 | AllOtherContributionsAmt |
| Total Contributions | $4,750,321 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp (2 entries)
| DescDesc | BusinessBusinessCd | Total Revenue ColumnTotalRevenueColumnAmt | Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt |
|---|---|---|---|
| CONFERENCE INCOME | 900099 | $58,369 | $58,369 |
| SALE OF INFO MATERIAL | 900099 | $14,224 | $14,224 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $72,593 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $345,085 | TotalRevenueColumnAmt |
| Exclusion | $345,085 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $4,125,145 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $4,124,787 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $358 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $358 | TotalRevenueColumnAmt |
| Exclusion | $358 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $657,700 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $1,728,236 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $657,700 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
Other Revenue Misc OtherRevenueMiscGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | MISCELLEANEOUS INCOME | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $36,281 | TotalRevenueColumnAmt |
| Exclusion | $36,281 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $36,281 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $5,204,638 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $72,593 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $381,724 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,429,156 | TotalAmt |
| Program Services | $1,429,156 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $300,000 | TotalAmt |
| Program Services | $300,000 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,315,316 | TotalAmt |
| Program Services | $782,560 | ProgramServicesAmt |
| Management And General | $282,308 | ManagementAndGeneralAmt |
| Fundraising | $250,448 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,104,504 | TotalAmt |
| Program Services | $726,270 | ProgramServicesAmt |
| Management And General | $207,463 | ManagementAndGeneralAmt |
| Fundraising | $170,771 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $59,311 | TotalAmt |
| Program Services | $38,145 | ProgramServicesAmt |
| Management And General | $12,848 | ManagementAndGeneralAmt |
| Fundraising | $8,318 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $192,537 | TotalAmt |
| Program Services | $127,352 | ProgramServicesAmt |
| Management And General | $42,787 | ManagementAndGeneralAmt |
| Fundraising | $22,398 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $155,352 | TotalAmt |
| Program Services | $100,017 | ProgramServicesAmt |
| Management And General | $32,169 | ManagementAndGeneralAmt |
| Fundraising | $23,166 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $34,500 | TotalAmt |
| Management And General | $34,500 | ManagementAndGeneralAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $60,125 | TotalAmt |
| Program Services | $60,125 | ProgramServicesAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $47,457 | TotalAmt |
| Program Services | $5,319 | ProgramServicesAmt |
| Management And General | $38,193 | ManagementAndGeneralAmt |
| Fundraising | $3,945 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $86,500 | TotalAmt |
| Program Services | $85,936 | ProgramServicesAmt |
| Fundraising | $564 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $276,963 | TotalAmt |
| Program Services | $182,420 | ProgramServicesAmt |
| Management And General | $22,212 | ManagementAndGeneralAmt |
| Fundraising | $72,331 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $189,995 | TotalAmt |
| Program Services | $99,009 | ProgramServicesAmt |
| Management And General | $61,263 | ManagementAndGeneralAmt |
| Fundraising | $29,723 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $214,806 | TotalAmt |
| Program Services | $161,836 | ProgramServicesAmt |
| Management And General | $26,357 | ManagementAndGeneralAmt |
| Fundraising | $26,613 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $174,193 | TotalAmt |
| Program Services | $174,193 | ProgramServicesAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $21,705 | TotalAmt |
| Program Services | $9,836 | ProgramServicesAmt |
| Management And General | $9,232 | ManagementAndGeneralAmt |
| Fundraising | $2,637 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $44,202 | TotalAmt |
| Program Services | $33,373 | ProgramServicesAmt |
| Management And General | $9,282 | ManagementAndGeneralAmt |
| Fundraising | $1,547 | FundraisingAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | FundraisingFundraisingAmt | Management And GeneralManagementAndGeneralAmt |
|---|---|---|---|---|
| PRINTING AND PUBS. | $191,466 | $155,820 | $35,646 | |
| GENETIC ANALYSIS & LAB | $62,713 | $62,713 | ||
| MISCELLANEOUS | $46,086 | $7,180 | $17,183 | $21,723 |
| CHAPTER SUPPORT | $45,551 | $45,551 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $54,908 | TotalAmt |
| Program Services | $18,643 | ProgramServicesAmt |
| Management And General | $23,791 | ManagementAndGeneralAmt |
| Fundraising | $12,474 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $6,107,346 | TotalAmt |
| Program Services | $4,605,454 | ProgramServicesAmt |
| Management And General | $824,128 | ManagementAndGeneralAmt |
| Fundraising | $677,764 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $396,279 | BOYAmt |
| EOY | $395,764 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $11,868,407 | BOYAmt |
| EOY | $10,597,427 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $85,688 | BOYAmt |
| EOY | $115,546 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $185,301 | BOYAmt |
| EOY | $594,015 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $168,883 | BOYAmt |
| EOY | $226,322 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $230,014 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $187,057 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $47,318 | BOYAmt |
| EOY | $42,957 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,848,272 | BOYAmt |
| EOY | $7,314,873 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $18,600,148 | BOYAmt |
| EOY | $19,286,904 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $580,811 | BOYAmt |
| EOY | $607,676 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $681,915 | BOYAmt |
| EOY | $832,812 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,500 | BOYAmt |
| EOY | $70,847 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,268,226 | BOYAmt |
| EOY | $1,511,335 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $16,839,090 | BOYAmt |
| EOY | $16,777,822 | EOYAmt |
Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $166,832 | BOYAmt |
| EOY | $671,747 | EOYAmt |
Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $326,000 | BOYAmt |
| EOY | $326,000 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $17,331,922 | BOYAmt |
| EOY | $17,775,569 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $18,600,148 | BOYAmt |
| EOY | $19,286,904 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$902,708 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $1,346,355 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | Yes (1) | FederalGrantAuditRequiredInd |
| Federal Grant Audit Performed | Yes (1) | FederalGrantAuditPerformedInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $6,716,325 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $6,910,924 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $6,586,765 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $4,301,410 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $4,750,321 | CurrentTaxYearAmt |
| Total | $29,265,745 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $6,716,325 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $6,910,924 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $6,586,765 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $4,301,410 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $4,750,321 | CurrentTaxYearAmt |
| Total | $29,265,745 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $290,215 | SubstantialContributorsTotAmt |
| Public Support Total170 | $28,975,530 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $578,979 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $524,023 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $467,734 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $413,354 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $345,085 | CurrentTaxYearAmt |
| Total | $2,329,175 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | -$86,606 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | -$95,765 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $40,000 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $443 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $36,281 | CurrentTaxYearAmt |
| Total | -$105,647 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $31,489,273 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $379,471 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.92020 | PublicSupportCY170Pct |
| Public Support PY170 | 0.91830 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule C IRS990ScheduleC
| Field | Value | IRS element (for citing) |
|---|---|---|
| Volunteers | Yes (1) | VolunteersInd |
| Paid Staff Or Management | Yes (1) | PaidStaffOrManagementInd |
| Media Advertisements | 0 | MediaAdvertisementsInd |
| Mailings Members | Yes (1) | MailingsMembersInd |
| Mailings Members | $19,530 | MailingsMembersAmt |
| Publications Or Broadcast | 0 | PublicationsOrBroadcastInd |
| Grants Other Organizations | 0 | GrantsOtherOrganizationsInd |
| Direct Contact Legislators | Yes (1) | DirectContactLegislatorsInd |
| Direct Contact Legislators | $40,595 | DirectContactLegislatorsAmt |
| Rallies Demonstrations | 0 | RalliesDemonstrationsInd |
| Other Activities | 0 | OtherActivitiesInd |
| Total Lobbying Expenditures | $60,125 | TotalLobbyingExpendituresAmt |
| Not Described Section501c3 | 0 | NotDescribedSection501c3Ind |
Schedule D IRS990ScheduleD
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $326,000 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $1,953 | InvestmentEarningsOrLossesAmt |
| Administrative Expenses | $1,953 | AdministrativeExpensesAmt |
| End Year Balance | $326,000 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $326,000 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $3,417 | InvestmentEarningsOrLossesAmt |
| Administrative Expenses | $3,417 | AdministrativeExpensesAmt |
| End Year Balance | $326,000 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $326,000 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $5,841 | InvestmentEarningsOrLossesAmt |
| Administrative Expenses | $5,841 | AdministrativeExpensesAmt |
| End Year Balance | $326,000 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $326,000 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $6,437 | InvestmentEarningsOrLossesAmt |
| Administrative Expenses | $6,437 | AdministrativeExpensesAmt |
| End Year Balance | $326,000 | EndYearBalanceAmt |
CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $326,000 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $8,194 | InvestmentEarningsOrLossesAmt |
| Administrative Expenses | $8,194 | AdministrativeExpensesAmt |
| End Year Balance | $326,000 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Prmnnt Endowment Balance EOY | 1.00000 | PrmnntEndowmentBalanceEOYPct |
| Endowments Held Unrelated Org | 0 | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | 0 | EndowmentsHeldRelatedOrgInd |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $230,014 | OtherCostOrOtherBasisAmt |
| Depreciation | $187,057 | DepreciationAmt |
| Book Value | $42,957 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $42,957 | TotalBookValueLandBuildingsAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $6,696,235 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $1,346,355 | NetUnrealizedGainsInvstAmt |
| Donated Services And Use Fclts | $145,242 | DonatedServicesAndUseFcltsAmt |
| Revenue Not Reported | $1,491,597 | RevenueNotReportedAmt |
| Revenue Subtotal | $5,204,638 | RevenueSubtotalAmt |
| Revenue Not Reported Fincl Stmt | $0 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $5,204,638 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $6,252,588 | TotExpnsEtcAuditedFinclStmtAmt |
| Donated Services Use Fclts | $145,242 | DonatedServicesUseFcltsAmt |
| Expenses Not Reported | $145,242 | ExpensesNotReportedAmt |
| Expenses Subtotal | $6,107,346 | ExpensesSubtotalAmt |
| Expenses Not Rpt Fincl Stmt | $0 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $6,107,346 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART V, LINE 4: | THE INTENDED USE OF THE ORGANIZATION'S ENDOWMENT FUNDS IS TO SUPPORT THE WORK OF THE PUBLIC EDUCATION (INFORMATION & REFERRAL SERVICE) PROGRAM. |
| PART X, LINE 2: | THE ASSOCIATION HAS NO UNCERTAIN TAX POSITIONS AS OF FEBRUARY 28, 2014 AND 2013 IN ACCORDANCE WITH ACCOUNTING STANDARDS CODIFICATION ("ASC") TOPIC 740, WHICH PROVIDES STANDARDS FOR ESTABLISHING AND CLASSIFYING ANY TAX PROVISIONS FOR UNCERTAIN TAX POSITIONS. THE ASSOCIATION IS NO LONGER SUBJECT TO FEDERAL OR STATE AND LOCAL TAX EXAMINATIONS BY TAX AUTHORITIES FOR YEARS ENDED BEFORE 2011. |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | 0 | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (3 entries)
| RegionRegionTxt | OfficesOfficesCnt | EmployeeEmployeeCnt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Specific Services ProvidedSpecificServicesProvidedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|---|---|---|
| AUSTRALIA | 0 | 0 | GRANT RECIPIENT | RESEARCH | $75,000 |
| PORTUGAL | 0 | 0 | GRANT RECIPIENT | RESEARCH | $75,000 |
| ISRAEL | 0 | 0 | GRANT RECIPIENT | RESEARCH | $150,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continutation Total Office | 0 | ContinutationTotalOfficeCnt |
| Continutation Total Employee | 0 | ContinutationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $300,000 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $300,000 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (3 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt |
|---|---|---|---|
| ISRAEL | RESEARCH GRANT | $150,000 | CHECK |
| AUSTRAILIA | RESEARCH GRANT | $75,000 | CHECK |
| PORTUGAL | RESEARCH GRANT | $75,000 | CHECK |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 3 | Total501c3OrgCnt |
| Total Other Org | 0 | TotalOtherOrgCnt |
| Transfer To Foreign Corp | 0 | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | THE ASSOCIATION MUST RECEIVE A FINAL PROGRESS REPORT DESCRIBING RESEARCH AND OUTCOMES AS WELL AS HOW FUNDS HAVE BEEN USED. ADVISORY BOARDS REVIEW AND APPROVE BEFORE FINAL PAYMENT IS MADE. | ExplanationTxt |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Of Event1 | DINN. DANCE/JOURNALS | NameOfEvent1Amt |
| Gross Receipts Event1 | $1,254,850 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $1,148,450 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $106,400 | GrossRevenueEvent1Amt |
| Food And Beverage Event1 | $63,728 | FoodAndBeverageEvent1Amt |
| Entertainment Event1 | $17,712 | EntertainmentEvent1Amt |
| Other Direct Expenses Event1 | $14,588 | OtherDirectExpensesEvent1Amt |
| Name Of Event2 | GOLF TOURNAMENTS | NameOfEvent2Amt |
| Gross Receipts Event2 | $722,076 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $478,181 | CharitableContriEvent2Amt |
| Gross Revenue Event2 | $243,895 | GrossRevenueEvent2Amt |
| Rent Facility Costs Event2 | $224,310 | RentFacilityCostsEvent2Amt |
| Other Direct Expenses Event2 | $102,793 | OtherDirectExpensesEvent2Amt |
| Other Events Total | 3 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $409,010 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $101,605 | CharitableContriOtherEventsAmt |
| Gross Revenue Other Events | $307,405 | GrossRevenueOtherEventsAmt |
| Oth Direct Expnss Other Events | $234,569 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $2,385,936 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $1,728,236 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $657,700 | GrossRevenueTotalEventsAmt |
| Rent Fclty Costs Total Events | $224,310 | RentFcltyCostsTotalEventsAmt |
| Food And Beverage Total Events | $63,728 | FoodAndBeverageTotalEventsAmt |
| Entertainment Total Events | $17,712 | EntertainmentTotalEventsAmt |
| Oth Direct Expnss Total Events | $351,950 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $657,700 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | $0 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (10 entries)
| Address Line1USAddress/AddressLine1 | Address Line2USAddress/AddressLine2 | CityUSAddress/City | StateUSAddress/State | ZIP CodeUSAddress/ZIPCode | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|---|
| JOHN HOPKINS UNIVERSITY | ||||||||
| JHU CENTRAL LOCKBOX BANK OF AMERICA | 12529 COLLECTION CENTER DRIVE | CHICAGO | IL | 60695 | 520595110 | 501(C)(3) | $149,912 | RESEARCH |
| YALE UNIVERSITY | ||||||||
| PO BOX 1873 | NEW HAVEN | CT | 065081873 | 060646973 | 501(C)(3) | $40,000 | RESEARCH | |
| UNIVERSITY OF KANSAS CENTER FOR RESEARCH | ||||||||
| ACCOUNTING SERVICES 2385 IRVING | HILL ROAD | LAWRENCE | KS | 66049 | 480680117 | 501(C)(3) | $149,998 | RESEARCH |
| VANDERBILT UNIVERSITY MEDICAL CENTER | ||||||||
| ACADEMIC AND RESEARCH ENTERPRISE | DEPT AT 40303 | ATLANTA | GA | 311920303 | 620476822 | 501(C)(3) | $150,000 | RESEARCH |
| WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY | ||||||||
| 575 LEXINGTON AVENUE 9TH FLOOR | NEW YORK | NY | 10022 | 131623978 | 501(C)(3) | $50,000 | RESEARCH | |
| UNIVERSITY OF FLORIDA | ||||||||
| 123 GRINTER HALL PO BOX 113001 | PROJECT 105523 | GAINESVILLE | FL | 326113001 | 596002052 | 501(C)(3) | $75,000 | RESEARCH |
| RUTGERS THE STATE UNIVERSITY OF NEW JERSEY | ||||||||
| 249 UNIVERSITY AVENUE SUITE 206 | NEWARK | NJ | 07102 | 226001086 | 501(C)(3) | $40,000 | RESEARCH | |
| UCLA NEUROSCIENCE GENOMICS CORE UNIVERSITY OF CALIFORNIA LOS ANGELES | ||||||||
| 695 CHARLES E YOUNG DRIVE SOUTH | LOS ANGELES | CA | 90095 | 946036493 | 501(C)(3) | $301,781 | NIH GRANT - RESEARCH | |
| CENTER FOR HUMAN GENETIC RESEARCH - MASSACHUSETTS GENERAL HOSPITAL | ||||||||
| 185 CAMBRIDGE STREET | BOSTON | MA | 02114 | 042697893 | 501(C)(3) | $80,687 | NIH GRANT - RESEARCH | |
| BROAD INSTITUTE | ||||||||
| 7 CAMBRIDGE CENTER | CAMBRIDGE | MA | 02142 | 263428781 | 501(C)(3) | $381,079 | NIH GRANT - RESEARCH | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 10 | Total501c3OrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | THE ASSOCIATION MUST RECEIVE A FINAL PROGRESS REPORT DESCRIBING RESEARCH AND OUTCOMES AS WELL AS HOW FUNDS HAVE BEEN USED. ADVISORY BOARDS REVIEW AND APPROVE BEFORE FINAL PAYMENT IS MADE. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Compensation Committee | Yes (X) | CompensationCommitteeInd |
| Written Employment Contract | Yes (X) | WrittenEmploymentContractInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (2 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| JUDIT UNGAR | ||||||||||||||
| PRESIDENT (FORMER)/SENIOR ADVISOR | $287,640 | $0 | $0 | $0 | $50,578 | $0 | $0 | $0 | $43,573 | $0 | $381,791 | $0 | $0 | $0 |
| ANNETTA HEWKO | ||||||||||||||
| PRESIDENT | $142,028 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $12,013 | $0 | $154,041 | $0 | $0 | $0 |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (7 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION A, LINE 1 | THIS IS A MEMBERSHIP ORGANIZATION |
| FORM 990, PART VI, SECTION A, LINE 6 | THIS IS A MEMBERSHIP ORGANIZATION |
| FORM 990, PART VI, SECTION B, LINE 11 | THE FORM 990 IS PROVIDED TO EACH BOARD MEMBER FOR THEIR REVIEW. THE FORM 990 IS ONLY FILED AFTER EACH BOARD MEMBER EITHER FORMALLY APPROVES THE 990 OR OTHERWISE RAISES QUESTIONS DURING A PRESCRIBED TIME PERIOD. |
| FORM 990, PART VI, SECTION B, LINE 12C | THE CONFLICT OF INTEREST POLICY IS SIGNED ANNUALLY BY BOARD MEMBERS. |
| FORM 990, PART VI, SECTION B, LINE 15 | THERE IS A PERSONNEL/COMPENSATION COMMITTEE. THE CHAIR ASSIGNS THE MEMBERS TO DO RESEARCH AND COME UP WITH RECOMMENDATIONS TO THE COMMITTEE. THE CHAIRMAN TAKES THE AMOUNTS TO THE FULL BOARD FOR APPROVAL. |
| FORM 990, PART VI, SECTION C, LINE 19 | FINANCIAL STATEMENTS AND ANNUAL REPORT ARE ON THE WEB. ALL OTHER POLICIES ARE AVAILABLE UPON REQUEST. |
| FORM 990, PART XII, LINE 2C: | THE PROCESS OF OVERSEEING THE AUDIT AND SELECTION OF INDEPENDENT ACCOUNTANT HAS NOT BEEN CHANGED FROM PRIOR YEAR. |