CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC: Form 990, tax year 2012
View the entire original 990 at ProPublica ↗
- Organization
- CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC (EIN 91-2059167)
- Tax period
- 2012-01-01 to 2012-12-31
- Filed
- 2013-09-04
- IRS object ID
- 201322479349300662
- Schema version
- 2012v2.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Timestamp | 2013-09-04T10:50:21-05:00 | Timestamp |
| Tax Period End Date | 2012-12-31 | TaxPeriodEndDate |
Preparer Firm PreparerFirm
Preparer Firm Business Name PreparerFirmBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | BDO USA LLP | BusinessNameLine1 |
Preparer Firm US Address PreparerFirmUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 8405 GREENSBORO DRIVE 7TH FLOOR | AddressLine1 |
| City | MCLEAN | City |
| State | VA | State |
| ZIP Code | 22102 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnType |
| Tax Period Begin Date | 2012-01-01 | TaxPeriodBeginDate |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 912059167 | EIN |
Name Name
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| In Care Of Name | % ROBERT J BEALL PHD | InCareOfName |
| Name Control | CYST | NameControl |
| Phone | 3019514422 | Phone |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 6931 ARLINGTON ROAD | AddressLine1 |
| Address Line2 | Suite 200 | AddressLine2 |
| City | BETHESDA | City |
| State | MD | State |
| ZIP Code | 20814 | ZIPCode |
Officer Officer
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name | ROBERT J BEALL PHD | Name |
| Title | PRESIDENT & CEO | Title |
| Phone | 7038930600 | Phone |
| Date Signed | 2013-09-04 | DateSigned |
| Authorize Third Party | true | AuthorizeThirdParty |
Preparer Preparer
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name | JEFFREY J SCHRAGG | Name |
| Phone | 7038930600 | Phone |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax Year | 2012 | TaxYear |
| Build TS | 2016-02-24 21:20:13Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Of Principal Officer Person | ROBERT J BEALL PHD | NameOfPrincipalOfficerPerson |
Address Principal Officer US AddressPrincipalOfficerUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 6931 ARLINGTON ROAD STE 200 | AddressLine1 |
| City | BETHESDA | City |
| State | MD | State |
| ZIP Code | 20814 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | 156684773 | GrossReceipts |
| Group Return For Affiliates | false | GroupReturnForAffiliates |
| Organization501c3 | X | Organization501c3 |
| Web Site | www.CFF.ORG/RESEARCH/CFFT/ | WebSite |
| Type Of Organization Corporation | X | TypeOfOrganizationCorporation |
| Year Formation | 2000 | YearFormation |
| State Legal Domicile | MD | StateLegalDomicile |
| Activity Or Mission Description | The mission is to assure the development of the means to cure and control cystic fibrosis (cf) and to improve the quality of life for those with the disease. | ActivityOrMissionDescription |
| Nbr Voting Members Governing Body | 7 | NbrVotingMembersGoverningBody |
| Nbr Independent Voting Members | 6 | NbrIndependentVotingMembers |
| Total Nbr Employees | 20 | TotalNbrEmployees |
| Total Nbr Volunteers | 0 | TotalNbrVolunteers |
| Total Gross UBI | 0 | TotalGrossUBI |
| Net Unrelated Business Txbl Income | 0 | NetUnrelatedBusinessTxblIncome |
| Contributions Grants Prior Year | 49932523 | ContributionsGrantsPriorYear |
| Contributions Grants Current Year | 0 | ContributionsGrantsCurrentYear |
| Program Service Revenue Prior Year | 551511 | ProgramServiceRevenuePriorYear |
| Program Service Revenue CY | 192984 | ProgramServiceRevenueCY |
| Investment Income Prior Year | 188 | InvestmentIncomePriorYear |
| Investment Income Current Year | 0 | InvestmentIncomeCurrentYear |
| Other Revenue Prior Year | 4013 | OtherRevenuePriorYear |
| Other Revenue Current Year | 156491789 | OtherRevenueCurrentYear |
| Total Revenue Prior Year | 50488235 | TotalRevenuePriorYear |
| Total Revenue Current Year | 156684773 | TotalRevenueCurrentYear |
| Grants And Similar Amnts Prior Year | 27991951 | GrantsAndSimilarAmntsPriorYear |
| Grants And Similar Amnts CY | 116651304 | GrantsAndSimilarAmntsCY |
| Benefits Paid To Members Prior Year | 0 | BenefitsPaidToMembersPriorYear |
| Benefits Paid To Members CY | 0 | BenefitsPaidToMembersCY |
| Salaries Etc Prior Year | 3008405 | SalariesEtcPriorYear |
| Salaries Etc Current Year | 3695781 | SalariesEtcCurrentYear |
| Total Prof Fundrsng Exp Prior Year | 0 | TotalProfFundrsngExpPriorYear |
| Total Prof Fundrsng Exp CY | 0 | TotalProfFundrsngExpCY |
| Total Fundrsng Exp Current Year | 0 | TotalFundrsngExpCurrentYear |
| Other Expense Prior Year | 19487879 | OtherExpensePriorYear |
| Other Expenses Current Year | 36337688 | OtherExpensesCurrentYear |
| Total Expenses Prior Year | 50488235 | TotalExpensesPriorYear |
| Total Expenses Current Year | 156684773 | TotalExpensesCurrentYear |
| Revenues Less Expenses CY | 0 | RevenuesLessExpensesCY |
| Total Assets BOY | 28133165 | TotalAssetsBOY |
| Total Assets EOY | 41843226 | TotalAssetsEOY |
| Total Liabilities BOY | 28133165 | TotalLiabilitiesBOY |
| Total Liabilities EOY | 41843226 | TotalLiabilitiesEOY |
| Net Assets Or Fund Balances BOY | 0 | NetAssetsOrFundBalancesBOY |
| Net Assets Or Fund Balances EOY | 0 | NetAssetsOrFundBalancesEOY |
| Mission Description | The mission of the Cystic Fibrosis Foundation, a nonprofit donor supported organization, is to assure the development of the means to cure and control cystic fibrosis (CF) and to improve the quality of life for those with the disease. A life shortening genetic disease, CF affects the lungs and digestive systems of nearly 30,000 children and young adults in the U.S. Currently, there is no cure. | MissionDescription |
| Significant New Program Services | false | SignificantNewProgramServices |
| Significant Change | false | SignificantChange |
| Expense | 38036779 | Expense |
| Grants | 0 | Grants |
| Revenue | 0 | Revenue |
| Description | Investments by Cystic Fibrosis Foundation Therapeutics (CFFT) in state-of-the-art research have accelerated progress toward developing new CF treatments and finding a cure for the disease. By funding CF drug discovery and development research conducted by biotechnology companies and providing matching awards to CF drug developers for CF research, and with a specialized CF clinical trials network, CFFT has attracted significant industry involvement in the fight against CF. CFFT accomplishes its mission by funding life-saving research to develop effective therapies for people with CF. CFFT has funded hundred of millions of dollars of research costs to help develop CF drugs and therapies. Through CFFT's efforts, the life expectancy of a child with CF has doubled in the last 30 years, and research to find a cure is more promising than ever before. | Description |
Activity2 Activity2
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | 118160312 | Expense |
| Grants | 30013065 | Grants |
| Revenue | 192984 | Revenue |
| Description | CFFT supports a national clinical research network of nearly 80 Foundation-accredited care centers that collaborate to conduct clinical trials, allowing potential new CF therapies to move to larger, late-stage studies more quickly. Medical programs in 2012 consisted of costs to support scientific study and investigations. 143 grants were awarded in 2012. | Description |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expense | 156197091 | TotalProgramServiceExpense |
| Described In501 C3 | true | DescribedIn501C3 |
| Schedule B Required | false | ScheduleBRequired |
| Political Activities | false | PoliticalActivities |
| Lobbying Activities | false | LobbyingActivities |
| Donor Advised Funds | false | DonorAdvisedFunds |
| Conservation Easements | false | ConservationEasements |
| Collections Of Art | false | CollectionsOfArt |
| Credit Counseling | false | CreditCounseling |
| Term Or Permanent Endowments | false | TermOrPermanentEndowments |
| Report Land Bldg Equip | true | ReportLandBldgEquip |
| Report Invest Oth Securities | false | ReportInvestOthSecurities |
| Report Prog Rel Invest | false | ReportProgRelInvest |
| Report Other Assets | true | ReportOtherAssets |
| Report Other Liabilities | false | ReportOtherLiabilities |
| Report Fin48 Footnote | false | ReportFin48Footnote |
| Independent Audit Financial Stmt | false | IndependentAuditFinancialStmt |
| Consolidated Audit Financial Stmt | true | ConsolidatedAuditFinancialStmt |
| School | false | School |
| Foreign Office | false | ForeignOffice |
| Foreign Activities | true | ForeignActivities |
| More Than5000 K To Organizations | true | MoreThan5000KToOrganizations |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividuals |
| Professional Fundraising | false | ProfessionalFundraising |
| Fundraising Activities | false | FundraisingActivities |
| Gaming | false | Gaming |
| Hospital | false | Hospital |
| Grants To Organizations | true | GrantsToOrganizations |
| Grants To Individuals | false | GrantsToIndividuals |
| Schedule J Required | true | ScheduleJRequired |
| Tax Exempt Bonds | false | TaxExemptBonds |
| Excess Benefit Transaction | false | ExcessBenefitTransaction |
| Prior Excess Benefit Transaction | false | PriorExcessBenefitTransaction |
| Loan To Officer Or DQP | false | LoanToOfficerOrDQP |
| Grant To Related Person | false | GrantToRelatedPerson |
| Bsnss Rltnshp With Organization | false | BsnssRltnshpWithOrganization |
| Bsnss Rltnshp Thru Family Member | false | BsnssRltnshpThruFamilyMember |
| Officer Entity With Bsnss Rltnshp | false | OfficerEntityWithBsnssRltnshp |
| Deductible Non Cash Contributions | false | DeductibleNonCashContributions |
| Deductible Contributions Of Art | false | DeductibleContributionsOfArt |
| Terminated | false | Terminated |
| Partial Liquidation | false | PartialLiquidation |
| Disregarded Entity | false | DisregardedEntity |
| Related Entity | true | RelatedEntity |
| Related Org Controlled Entity | false | RelatedOrgControlledEntity |
| Transfers To Exempt Non Chrtbl Org | false | TransfersToExemptNonChrtblOrg |
| Activities Conducted Partnership | false | ActivitiesConductedPartnership |
| Schedule O Required | true | ScheduleORequired |
| Number Forms Transmitted With1096 | 66 | NumberFormsTransmittedWith1096 |
| Number W2 G Included | 0 | NumberW2GIncluded |
| Number Of Employees | 20 | NumberOfEmployees |
| Employment Tax Returns Filed | true | EmploymentTaxReturnsFiled |
| Unrelated Business Income | false | UnrelatedBusinessIncome |
| Foreign Financial Account | false | ForeignFinancialAccount |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTrans |
| Taxable Party Notification | false | TaxablePartyNotification |
| Non Deductible Contributions | false | NonDeductibleContributions |
| Quid Pro Quo Contributions | false | QuidProQuoContributions |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOf |
| Funds To Pay Premiums | false | FundsToPayPremiums |
| Premiums Paid | false | PremiumsPaid |
| Indoor Tanning Services | false | IndoorTanningServices |
| Info In Schedule O Part VI | X | InfoInScheduleOPartVI |
| Nbr Voting Governing Body Members | 7 | NbrVotingGoverningBodyMembers |
| Number Independent Voting Members | 6 | NumberIndependentVotingMembers |
| Family Or Business Relationship | false | FamilyOrBusinessRelationship |
| Delegation Of Management Duties | false | DelegationOfManagementDuties |
| Changes To Organizing Docs | false | ChangesToOrganizingDocs |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuse |
| Members Or Stockholders | false | MembersOrStockholders |
| Election Of Board Members | true | ElectionOfBoardMembers |
| Decisions Subject To Approval | false | DecisionsSubjectToApproval |
| Minutes Of Governing Body | true | MinutesOfGoverningBody |
| Minutes Of Committees | true | MinutesOfCommittees |
| Officer Mailing Address | false | OfficerMailingAddress |
| Local Chapters | false | LocalChapters |
| Form990 Provided To Governing Body | true | Form990ProvidedToGoverningBody |
| Conflict Of Interest Policy | true | ConflictOfInterestPolicy |
| Annual Disclosure Covered Persons | true | AnnualDisclosureCoveredPersons |
| Regular Monitoring Enforcement | true | RegularMonitoringEnforcement |
| Whistleblower Policy | true | WhistleblowerPolicy |
| Document Retention Policy | true | DocumentRetentionPolicy |
| Compensation Process CEO | true | CompensationProcessCEO |
| Compensation Process Other | true | CompensationProcessOther |
| Investment In Joint Venture | false | InvestmentInJointVenture |
| States Where Copy Of Return Is Filed | MI | StatesWhereCopyOfReturnIsFiled |
| Own Website | X | OwnWebsite |
| Upon Request | X | UponRequest |
The Books Are In Care Of TheBooksAreInCareOf
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Person | ROBERT J BEALL PHD | NamePerson |
| Telephone Number | 3019514422 | TelephoneNumber |
Address US AddressUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 6931 ARLINGTON ROAD STE 200 | AddressLine1 |
| City | BETHESDA | City |
| State | MD | State |
| ZIP Code | 20814 | ZIPCode |
Form990 Part VII Section A Form990PartVIISectionA (15 entries)
| TitleTitle | Average Hours Per WeekAverageHoursPerWeek | Average Hours Per Week RelatedAverageHoursPerWeekRelated | Individual Trustee Or DirectorIndividualTrusteeOrDirector | OfficerOfficer | Reportable Comp From OrganizationReportableCompFromOrganization | Reportable Comp From Related OrgsReportableCompFromRelatedOrgs | Other CompensationOtherCompensation | Highest Compensated EmployeeHighestCompensatedEmployee |
|---|---|---|---|---|---|---|---|---|
| ROBERT J BEALL PHD | ||||||||
| PRESIDENT & CEO | 20.0 | 40.0 | X | X | 329867 | 669561 | 112672 | |
| JASON M ARYEH | ||||||||
| DIRECTOR | 3.0 | X | 0 | 0 | 0 | |||
| STEVEN SHAK MD | ||||||||
| DIRECTOR | 3.0 | 6.0 | X | 0 | 0 | 0 | ||
| CATHERINE C MCLOUD | ||||||||
| DIRECTOR | 3.0 | 8.0 | X | 0 | 0 | 0 | ||
| JONATHAN COHN MD | ||||||||
| DIRECTOR | 3.0 | X | 0 | 0 | 0 | |||
| D PAUL FLESSNER | ||||||||
| director | 3.0 | X | 0 | 0 | 0 | |||
| CHRISTY SHAFFER PHD | ||||||||
| TRUSTEE | 5.0 | 6.0 | X | 0 | 0 | 0 | ||
| Preston W Campbell MD | ||||||||
| Exec VP of Medical Affairs | 20.0 | 40.0 | X | 151900 | 301432 | 155629 | ||
| C Richard Mattingly | ||||||||
| EXEC VP, COO & SECRETARY | 5.0 | 55.0 | X | 0 | 466050 | 168894 | ||
| Vera H Twigg | ||||||||
| Sr. VP and CFO | 5.0 | 55.0 | X | 0 | 335965 | 77783 | ||
| BRUCE MARSHALL MD | ||||||||
| VP OF CLINICAL AFFAIRS | 50.0 | 340444 | 0 | 31596 | X | |||
| CYNTHIA GEORGE MSN FNP BC | ||||||||
| DIR OF CLINICAL RES RESOURCES | 50.0 | 115369 | 0 | 14968 | X | |||
| MARTIN MENSE | ||||||||
| PRINCIPAL SCIENTIST DRUG DISC | 50.0 | 160605 | 0 | 45605 | X | |||
| ELIZABETH JOSELOFF PHD | ||||||||
| INTEGRATIVE BIOLOGY DIRECTOR | 50.0 | 110865 | 0 | 31342 | X | |||
| HERMANN BIHLER PHD | ||||||||
| SENIOR SCIENTIST | 50.0 | 128056 | 0 | 11146 | X | |||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | 1337106 | TotalReportableCompFromOrg |
| Total Reportable Comp Frm Rltd Orgs | 1773008 | TotalReportableCompFrmRltdOrgs |
| Total Other Compensation | 649635 | TotalOtherCompensation |
| Number Individuals GT100 K | 8 | NumberIndividualsGT100K |
| Formers Listed | false | FormersListed |
| Total Comp GT150 K | true | TotalCompGT150K |
| Compensation From Other Sources | false | CompensationFromOtherSources |
Contractor Compensation ContractorCompensation (5 entries)
| Address Line1AddressOfContractor/AddressUS/AddressLine1 | CityAddressOfContractor/AddressUS/City | StateAddressOfContractor/AddressUS/State | ZIP CodeAddressOfContractor/AddressUS/ZIPCode | Description Of ServicesDescriptionOfServices | CompensationCompensation |
|---|---|---|---|---|---|
| VERTEX PHARMACEUTICALS LLC | |||||
| 130 WAVERLY STREET | CAMBRIDGE | MA | 02139 | CONTRACTED RESEARCH | 17959575 |
| MORGAN STANLEY CO LLC | |||||
| 1585 BROADWAY 4TH FL | NEW YORK | NY | 10036 | TRANSACTION ADVISORY | 3017175 |
| SEATTLE CHILDREN'S RESEARCH INSTITU | |||||
| PO BOX 24728 | SEATTLE | WA | 98124 | CLINICAL RESEARCH | 1947124 |
| CHAN TEST INC | |||||
| 14556 NEO PARKWAY | CLEVELAND | OH | 44128 | RESEARCH SUPPORT | 1625000 |
| PROTEOSTASIS THERAPEUTICS INC | |||||
| 200 TECHNOLOGY SQUARE | CAMBRIDGE | MA | 02139 | CONTRACTED RESEARCH | 959411 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Number Of Contractors GT100 K | 17 | NumberOfContractorsGT100K |
| Info In Schedule O Part VIII | X | InfoInScheduleOPartVIII |
| Total Contributions | 0 | TotalContributions |
Program Service Revenue ProgramServiceRevenue (2 entries)
| DescriptionDescription | Business CodeBusinessCode | Total Revenue ColumnTotalRevenueColumn | Related Or Exempt Function IncomeRelatedOrExemptFunctionIncome |
|---|---|---|---|
| CLINICAL STUDY | 541900 | 91675 | 91675 |
| REFUNDED OR CANCELLED GRANTS | 900099 | 101309 | 101309 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | 192984 | TotalProgramServiceRevenue |
Investment Income InvestmentIncome
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 0 | TotalRevenueColumn |
Income From Invest Bond Proceeds IncomeFromInvestBondProceeds
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 0 | TotalRevenueColumn |
Royalties Revenue RoyaltiesRevenue
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 156491789 | TotalRevenueColumn |
| Exclusion | $156,491,789 | ExclusionAmount |
Rental Income Or Loss RentalIncomeOrLoss
| Field | Value | IRS element (for citing) |
|---|---|---|
| Real | 0 | Real |
| Personal | 0 | Personal |
Net Rental Income Or Loss NetRentalIncomeOrLoss
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 0 | TotalRevenueColumn |
Net Gain Or Loss Investments NetGainOrLossInvestments
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 0 | TotalRevenueColumn |
Net Income From Fundraising Events NetIncomeFromFundraisingEvents
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 0 | TotalRevenueColumn |
Net Income From Gaming NetIncomeFromGaming
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 0 | TotalRevenueColumn |
Net Income Or Loss NetIncomeOrLoss
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 0 | TotalRevenueColumn |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Revenue | 0 | TotalOtherRevenue |
Total Revenue TotalRevenue
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 156684773 | TotalRevenueColumn |
| Related Or Exempt Function Income | 192984 | RelatedOrExemptFunctionIncome |
| Exclusion | $156,491,789 | ExclusionAmount |
Grants To Domestic Orgs GrantsToDomesticOrgs
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 113876673 | Total |
| Program Services | 113876673 | ProgramServices |
Grants To Domestic Individuals GrantsToDomesticIndividuals
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Foreign Grants ForeignGrants
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 2774631 | Total |
| Program Services | 2774631 | ProgramServices |
Benefits To Members BenefitsToMembers
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Comp Current Officers Directors CompCurrentOfficersDirectors
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 986063 | Total |
| Program Services | 886618 | ProgramServices |
| Management And General | 99445 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Comp Disqual Persons CompDisqualPersons
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Other Salaries And Wages OtherSalariesAndWages
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 2266818 | Total |
| Program Services | 2038208 | ProgramServices |
| Management And General | 228610 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Pension Plan Contributions PensionPlanContributions
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 123158 | Total |
| Program Services | 110737 | ProgramServices |
| Management And General | 12421 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Other Employee Benefits OtherEmployeeBenefits
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 123896 | Total |
| Program Services | 111401 | ProgramServices |
| Management And General | 12495 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Payroll Taxes PayrollTaxes
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 195846 | Total |
| Program Services | 175733 | ProgramServices |
| Management And General | 20113 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Fees For Services Management FeesForServicesManagement
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Fees For Services Legal FeesForServicesLegal
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 213151 | Total |
| Program Services | 213151 | ProgramServices |
| Management And General | 0 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Fees For Services Accounting FeesForServicesAccounting
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 6089 | Total |
| Program Services | 0 | ProgramServices |
| Management And General | 6089 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Fees For Services Lobbying FeesForServicesLobbying
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Fees For Services Prof Fundraising FeesForServicesProfFundraising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Fees For Services Invst Mgmnt Fees FeesForServicesInvstMgmntFees
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Fees For Services Other FeesForServicesOther
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 47818 | Total |
| Program Services | 42295 | ProgramServices |
| Management And General | 5523 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Advertising Advertising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Office Expenses OfficeExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 376309 | Total |
| Program Services | 350165 | ProgramServices |
| Management And General | 26144 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Information Technology InformationTechnology
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 400556 | Total |
| Program Services | 373768 | ProgramServices |
| Management And General | 26788 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Royalties Royalties
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Occupancy Occupancy
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 525733 | Total |
| Program Services | 493579 | ProgramServices |
| Management And General | 32154 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Travel Travel
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 116097 | Total |
| Program Services | 108814 | ProgramServices |
| Management And General | 7283 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Travel Entrtnmnt Public Officials TravelEntrtnmntPublicOfficials
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Conferences Meetings ConferencesMeetings
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 73714 | Total |
| Program Services | 71628 | ProgramServices |
| Management And General | 2086 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Interest Interest
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Payments To Affiliates PaymentsToAffiliates
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
| Program Services | 0 | ProgramServices |
| Management And General | 0 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Depreciation Depletion DepreciationDepletion
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 150428 | Total |
| Program Services | 145576 | ProgramServices |
| Management And General | 4852 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Insurance Insurance
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 130393 | Total |
| Program Services | 130393 | ProgramServices |
| Management And General | 0 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Other Expenses OtherExpenses (3 entries)
| DescriptionDescription | TotalTotal | Program ServicesProgramServices | Management And GeneralManagementAndGeneral | FundraisingFundraising |
|---|---|---|---|---|
| CONTRACTED RESEARCH | 33719501 | 33719501 | 0 | 0 |
| CHEMISTRY | 331542 | 331542 | 0 | 0 |
| MISCELLANEOUS | 246357 | 242678 | 3679 | 0 |
Total Functional Expenses TotalFunctionalExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 156684773 | Total |
| Program Services | 156197091 | ProgramServices |
| Management And General | 487682 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Cash Non Interest Bearing CashNonInterestBearing
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 0 | BOY |
| EOY | 0 | EOY |
Savings And Temp Cash Investments SavingsAndTempCashInvestments
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 3733071 | BOY |
| EOY | 3343624 | EOY |
Pledges And Grants Receivable PledgesAndGrantsReceivable
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 0 | BOY |
| EOY | 0 | EOY |
Accounts Receivable AccountsReceivable
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 2249263 | BOY |
| EOY | 441065 | EOY |
Receivables From Officers Etc ReceivablesFromOfficersEtc
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 0 | BOY |
| EOY | 0 | EOY |
Receivables From Disqual Persons ReceivablesFromDisqualPersons
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 0 | BOY |
| EOY | 0 | EOY |
Other Notes Loans Receivable Net OtherNotesLoansReceivableNet
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 0 | BOY |
| EOY | 0 | EOY |
Inventories For Sale Or Use InventoriesForSaleOrUse
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 0 | BOY |
| EOY | 0 | EOY |
Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 229498 | BOY |
| EOY | 131119 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Buildings Equipment Basis | 1094780 | LandBuildingsEquipmentBasis |
| Land Bldg Equipment Accum Deprec | 390391 | LandBldgEquipmentAccumDeprec |
Land Buildings Equipment Basis Net LandBuildingsEquipmentBasisNet
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 157409 | BOY |
| EOY | 704389 | EOY |
Investments Pub Traded Securities InvestmentsPubTradedSecurities
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 0 | BOY |
| EOY | 0 | EOY |
Investments Other Securities InvestmentsOtherSecurities
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 0 | BOY |
| EOY | 0 | EOY |
Investments Program Related InvestmentsProgramRelated
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 0 | BOY |
| EOY | 0 | EOY |
Intangible Assets IntangibleAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 0 | BOY |
| EOY | 0 | EOY |
Other Assets Total OtherAssetsTotal
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 21763924 | BOY |
| EOY | 37223029 | EOY |
Total Assets TotalAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 28133165 | BOY |
| EOY | 41843226 | EOY |
Accounts Payable Accrued Expenses AccountsPayableAccruedExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 989715 | BOY |
| EOY | 1505408 | EOY |
Grants Payable GrantsPayable
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 27143450 | BOY |
| EOY | 40337818 | EOY |
Deferred Revenue DeferredRevenue
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 0 | BOY |
| EOY | 0 | EOY |
Tax Exempt Bond Liabilities TaxExemptBondLiabilities
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 0 | BOY |
| EOY | 0 | EOY |
Escrow Account Liability EscrowAccountLiability
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 0 | BOY |
| EOY | 0 | EOY |
Loans From Officers Directors LoansFromOfficersDirectors
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 0 | BOY |
| EOY | 0 | EOY |
Mort Notes Pybl Secured Invest Prop MortNotesPyblSecuredInvestProp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 0 | BOY |
| EOY | 0 | EOY |
Unsecured Notes Loans Payable UnsecuredNotesLoansPayable
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 0 | BOY |
| EOY | 0 | EOY |
Other Liabilities OtherLiabilities
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 0 | BOY |
| EOY | 0 | EOY |
Total Liabilities TotalLiabilities
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 28133165 | BOY |
| EOY | 41843226 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Follow SFAS117 | X | FollowSFAS117 |
Unrestricted Net Assets UnrestrictedNetAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 0 | BOY |
| EOY | 0 | EOY |
Temporarily Restricted Net Assets TemporarilyRestrictedNetAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 0 | BOY |
| EOY | 0 | EOY |
Permanently Restricted Net Assets PermanentlyRestrictedNetAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 0 | BOY |
| EOY | 0 | EOY |
Total Net Assets Fund Balances TotalNetAssetsFundBalances
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 0 | BOY |
| EOY | 0 | EOY |
Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 28133165 | BOY |
| EOY | 41843226 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expenses | 0 | ReconcilationRevenueExpenses |
| Method Of Accounting Accrual | X | MethodOfAccountingAccrual |
| Accountant Compile Or Review | false | AccountantCompileOrReview |
| FS Audited | true | FSAudited |
FS Audited Basis FSAuditedBasis
| Field | Value | IRS element (for citing) |
|---|---|---|
| Financial Statement Consolidated | X | FinancialStatementConsolidated |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | true | AuditCommittee |
| Federal Grant Audit Required | false | FederalGrantAuditRequired |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Supporting Organization509a3 | X | SupportingOrganization509a3 |
| Supporting Org509a3 Type1 | X | SupportingOrg509a3Type1 |
| Certification Checkbox | X | CertificationCheckbox |
| Contrib By Controlling Individual | false | ContribByControllingIndividual |
| Contribution By Related Party | false | ContributionByRelatedParty |
| Contrib By35 Controlled Entity | false | ContribBy35ControlledEntity |
Supported Org Information SupportedOrgInformation
Name Name
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CYSTIC FIBROSIS FOUNDATION | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 131930701 | EIN |
| Type Of Organization | 03 | TypeOfOrganization |
| Listed In Governing Doc | true | ListedInGoverningDoc |
| Supported Organization Notified | true | SupportedOrganizationNotified |
| Organized In US | true | OrganizedInUS |
| Amount | $86,638,239 | Amount |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Number Of Supported Orgs | 1 | TotalNumberOfSupportedOrgs |
| Sum Of Amounts | 86638239 | SumOfAmounts |
Schedule D IRS990ScheduleD
| Field | Value | IRS element (for citing) |
|---|---|---|
| Art Public Exhibition Amts | ArtPublicExhibitionAmts | |
| Held Works Of Art Amts | HeldWorksOfArtAmts | |
| Current Year Minus3 Years | CurrentYearMinus3Years | |
| Current Year Minus4 Years | CurrentYearMinus4Years | |
| Land | Land | |
| Buildings | Buildings | |
| Leasehold Improvements | LeaseholdImprovements |
Equipment Equipment
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | 1094780 | OtherCostOrOtherBasis |
| Depreciation | 390391 | Depreciation |
| Book Value | 704389 | BookValue |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Land Buildings | OtherLandBuildings | |
| Total Of Book Value Land Buildings | 704389 | TotalOfBookValueLandBuildings |
Other Assets OtherAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| Description | INTERCOMPANY RECEIVABLE | Description |
| Book Value | 37223029 | BookValue |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Other Assets | 37223029 | TotalBookValueOtherAssets |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | true | GrantRecordsMaintained |
Accts Actvs Out US Table AcctsActvsOutUSTable (4 entries)
| RegionRegion | Number Of OfficesNumberOfOffices | Number Of EmployeesNumberOfEmployees | Type Of Activities ConductedTypeOfActivitiesConducted | Specific Services ProvidedSpecificServicesProvided | Total ExpendituresTotalExpenditures |
|---|---|---|---|---|---|
| North America | 0 | 0 | Grantmaking | NONE | 857778 |
| Europe (Including Iceland and Greenland) | 0 | 0 | Grantmaking | NONE | 1298337 |
| East Asia and the Pacific | 0 | 0 | Grantmaking | NONE | 535518 |
| Middle East and North Africa | 0 | 0 | Grantmaking | NONE | 82998 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Number Of Offices | 0 | SubtotalNumberOfOffices |
| Subtotal Number Of Employees | 0 | SubtotalNumberOfEmployees |
| Total Number Of Offices | 0 | TotalNumberOfOffices |
| Total Number Of Employees | 0 | TotalNumberOfEmployees |
| Subtotal Amount Spent | 2774631 | SubtotalAmountSpent |
| Total Amount Spent | 2774631 | TotalAmountSpent |
Grants To Orgs Outside US GrantsToOrgsOutsideUS (13 entries)
| RegionRegion | Purpose Of GrantPurposeOfGrant | Amount Of Cash GrantAmountOfCashGrant | Manner Of Cash DisbursementMannerOfCashDisbursement |
|---|---|---|---|
| North America | ACAD. ADVISORY | 5658 | CHECK |
| North America | DRUG DISCOVERY | 216000 | CHECK |
| North America | DRUG DISCOVERY | 536120 | CHECK |
| North America | NEW TECHNOLOGIES | 100000 | CHECK |
| Europe (Including Iceland and Greenland) | DRUG DISCOVERY | 376293 | WIRE |
| Europe (Including Iceland and Greenland) | DRUG DISCOVERY | 194280 | WIRE |
| Europe (Including Iceland and Greenland) | DRUG DISCOVERY | 300000 | WIRE |
| Europe (Including Iceland and Greenland) | CLINICAL RESEARCH | 60000 | WIRE |
| Europe (Including Iceland and Greenland) | CLINICAL RESEARCH | 234330 | WIRE |
| Europe (Including Iceland and Greenland) | CLINICAL RESEARCH | 133434 | WIRE |
| East Asia and the Pacific | CLINICAL RESEARCH | 390588 | WIRE |
| East Asia and the Pacific | CLINICAL RESEARCH | 144930 | WIRE |
| Middle East and North Africa | DRUG DISCOVERY | 82998 | WIRE |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Number Of501c3 Orgs | 12 | TotalNumberOf501c3Orgs |
| Total Number Of Other Orgs | 0 | TotalNumberOfOtherOrgs |
| Transfer To Foreign Corp | false | TransferToForeignCorp |
| Interest In Foreign Trust | false | InterestInForeignTrust |
| Own Foreign Corp | false | OwnForeignCorp |
| Passive Foreign Invest Co | false | PassiveForeignInvestCo |
| Foreign Partnership | false | ForeignPartnership |
| Boycott Countries | false | BoycottCountries |
Form990 Schedule F Part V Form990ScheduleFPartV
| Field | Value | IRS element (for citing) |
|---|---|---|
| Identifier | Procedures for monitoring grant funds outside of the U.S. | Identifier |
| Return Reference | Schedule F, Part I, Line 2 | ReturnReference |
| Explanation | THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANTS AWARDED TO ENTITIES OUTSIDE OF THE UNITED STATES. THE ORGANIZATION FOLLOWS THE U.S. DEPARTMENT OF TREASURY ANTI-TERRORIST FINANCING VOLUNTARY BEST PRACTICES GUIDELINES FOR CHARITIES. IN COMPLIANCE WITH THE BEST PRACTICES, THE ORGANIZATION COLLECTS AND REVIEWS INFORMATION ABOUT THE PROSPECTIVE GRANTEES AND CONDUCTS A VETTING PROCESS TO ENSURE THEY ARE NOT SUSPECTED OF ACTIVITIES RELATED TO TERRORISM. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE. FUNDING IS INCREMENTAL AND SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO DETERMINE PROGRESS. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLES OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTIONS. THE GRANT IN THE MIDDLE EAST/NORTH AFRICA REGION WAS MADE TO BAR-ILAN UNIVERSITY, A UNIVERSITY IN ISRAEL. | Explanation |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Records Maintained | true | RecordsMaintained |
Recipient Table RecipientTable (129 entries)
| Address Line1AddressUS/AddressLine1 | Address Line2AddressUS/AddressLine2 | CityAddressUS/City | StateAddressUS/State | ZIP CodeAddressUS/ZIPCode | EIN Of RecipientEINOfRecipient | IRC SectionIRCSection | Amount Of Cash GrantAmountOfCashGrant | Purpose Of GrantPurposeOfGrant |
|---|---|---|---|---|---|---|---|---|
| Albany Medical College | ||||||||
| 47 New Scotland Ave | Mail Code 88 | Albany | NY | 12208 | 141338310 | 501(C)(3) | 74088 | CLINICAL RESEARCH STUDY |
| All Children's Hospital | ||||||||
| Dept 9010 | PO Box 31020 | St Petersburg | FL | 33731 | 590683252 | 501(C)(3) | 80438 | CLINICAL RESEARCH STUDY |
| Ann and Robert H Lurie Children's Hospital of Chi | ||||||||
| 2300 Childrens Plaza | Box 43 | Chicago | IL | 60614 | 363357006 | 501(C)(3) | 140400 | CLINICAL RESEARCH STUDY |
| Arizona Board of Regents University of Arizona | ||||||||
| Sponsored Projects Services | 888 N Euclid Room 510 | Tucson | AZ | 85722 | 742652689 | 501(C)(3) | 61377 | CLINICAL RESEARCH STUDY |
| Arizona Board of Regents University of Arizona | ||||||||
| Sponsored Projects Services | 888 N Euclid Room 510 | Tucson | AZ | 85722 | 742652689 | 501(C)(3) | 140888 | CLINICAL RESEARCH AWARDS |
| Baylor College of Medicine | ||||||||
| PO Box 1 | Houston | TX | 77212 | 741613878 | 501(C)(3) | 98537 | CLINICAL RESEARCH STUDY | |
| Beth Israel Medical Center | ||||||||
| Office of Grants Contracts | New York | NY | 10038 | 135564934 | 501(C)(3) | 74088 | CLINICAL RESEARCH STUDY | |
| Board of Regents of the University of Wisconsin Sy | ||||||||
| Research and Sponsored Programs | 160 Water Street 24th Floor | Madison | WI | 537151218 | 396006492 | 501(C)(3) | 70384 | CLINICAL RESEARCH STUDY |
| Board of Regents of the University of Wisconsin Sy | ||||||||
| Research and Sponsored Programs | 21 N Park St Suite 6401 | Madison | WI | 537151218 | 396006492 | 501(C)(3) | 87103 | CLINICAL RESEARCH AWARDS |
| Board of Trustees of the Leland Stanford Junior Un | ||||||||
| 651 Serra Street Suite 220 | Stanford | CA | 943056215 | 941156365 | 501(C)(3) | 80223 | CLINICAL RESEARCH STUDY | |
| Board of Trustees of the Leland Stanford Junior Un | ||||||||
| 651 Serra Street Suite 220 | Stanford | CA | 943056215 | 941156365 | 501(C)(3) | 107211 | CLINICAL RESEARCH AWARDS | |
| Board of Trustees of the Leland Stanford Junior Un | ||||||||
| 651 Serra Street Suite 220 | Stanford | CA | 943056215 | 941156365 | 501(C)(3) | 108000 | DRUG DISCOVERY AWARDS | |
| Case Western Reserve University | ||||||||
| 10900 Euclid Avenue | Cleveland | OH | 441067015 | 341018992 | 501(C)(3) | 15634 | ACADEMIC ADVISORY AWARDS | |
| Case Western Reserve University | ||||||||
| 10900 Euclid Avenue | Cleveland | OH | 441067015 | 341018992 | 501(C)(3) | 91000 | CLINICAL RESEARCH AWARDS | |
| Case Western Reserve University | ||||||||
| 10900 Euclid Avenue | Cleveland | OH | 441067015 | 341018992 | 501(C)(3) | 179533 | CLINICAL RESEARCH | |
| Case Western Reserve University | ||||||||
| 10900 Euclid Avenue | Cleveland | OH | 441067015 | 341018992 | 501(C)(3) | 229957 | CLINICAL RESEARCH STUDY | |
| Children's & Women's Physicians of Westchester LL | ||||||||
| Pediatrics Department | Valhalla | NY | 10595 | 133940462 | 501(C)(3) | 68976 | CLINICAL RESEARCH STUDY | |
| Children's Health Care | ||||||||
| 2525 Chicago Avenue South | Munger Pavilion Room 123 | Minneapolis | MN | 554041844 | 411754276 | 501(C)(3) | 63504 | CLINICAL RESEARCH STUDY |
| Children's Hospital Corporation | ||||||||
| 300 Longwood Avenue | Boston | MA | 02115 | 042774441 | 501(C)(3) | 98537 | CLINICAL RESEARCH STUDY | |
| Children's Hospital Corporation | ||||||||
| 300 Longwood Avenue | Boston | MA | 02115 | 042774441 | 501(C)(3) | 122250 | CLINICAL RESEARCH AWARDS | |
| Children's Hospital Medical Center | ||||||||
| Cincinnati Childrens Hospital Med | CCHMC 3333 Burnet Avenue | Cincinnati | OH | 45229 | 310833936 | 501(C)(3) | 25711 | ACADEMIC ADVISORY AWARDS |
| Children's Hospital Medical Center | ||||||||
| Cincinnati Childrens Hospital Med | CCHMC 3333 Burnet Avenue | Cincinnati | OH | 45229 | 310833936 | 501(C)(3) | 37264 | CLINICAL RESEARCH AWARDS |
| Children's Hospital Medical Center | ||||||||
| Cincinnati Childrens Hospital Med | CCHMC 3333 Burnet Avenue | Cincinnati | OH | 45229 | 310833936 | 501(C)(3) | 299166 | CLINICAL RESEARCH STUDY |
| Children's Hospital Medical Center of Akron | ||||||||
| 1 Perkins Square | 3333 Burnet Avenue | Akron | OH | 44308 | 340714357 | 501(C)(3) | 80438 | CLINICAL RESEARCH STUDY |
| Children's Medical Center | ||||||||
| One Childrens Plaza | Dayton | OH | 454041815 | 310672132 | 501(C)(3) | 68976 | CLINICAL RESEARCH STUDY | |
| Connecticut Children's Medical Center | ||||||||
| 282 Washington Street | Hartford | CT | 06106 | 060646755 | 501(C)(3) | 78830 | CLINICAL RESEARCH STUDY | |
| Cook Children's Medical Center | ||||||||
| 801 Seventh Avenue | Ft Worth | TX | 76104 | 752051646 | 501(C)(3) | 66864 | CLINICAL RESEARCH STUDY | |
| Duke University | ||||||||
| Erwin Square Plaza Suite 820 2200 | Durham | NC | 27705 | 560532129 | 501(C)(3) | 60329 | CLINICAL RESEARCH STUDY | |
| Emory University | ||||||||
| 1784 N Decatur Road | Atlanta | GA | 30322 | 580566256 | 501(C)(3) | 98537 | CLINICAL RESEARCH STUDY | |
| Emory University | ||||||||
| 1784 N Decatur Road | Suite 510 | Atlanta | GA | 30322 | 580566256 | 501(C)(3) | 472370 | CLINICAL RESEARCH AWARDS |
| Kaiser Foundation Research Institute | ||||||||
| 1800 Harrison Street | Suite 510 | Oakland | CA | 94612 | 941105628 | 501(C)(3) | 59122 | CLINICAL RESEARCH STUDY |
| Maine Medical Center | ||||||||
| 22 Bramhall Street | 16th Floor | Portland | ME | 041023175 | 010238552 | 501(C)(3) | 66864 | CLINICAL RESEARCH STUDY |
| Medical University of South Carolina | ||||||||
| PO Box 997 | Charleston | SC | 29402 | 576000722 | 501(C)(3) | 84672 | CLINICAL RESEARCH STUDY | |
| Monmouth Medical Center Foundation | ||||||||
| 300 Second Avenue | Long Branch | NJ | 07740 | 222456079 | 501(C)(3) | 74088 | CLINICAL RESEARCH STUDY | |
| National Disease Research Interchange | ||||||||
| 1628 John F Kennedy Blvd - 8th Fl | Philadelphia | PA | 19103 | 232213205 | 501(C)(3) | 136500 | DRUG DISCOVERY AWARDS | |
| National Jewish Medical and Research Center | ||||||||
| 1400 Jackson Street | Denver | CO | 80206 | 742044647 | 501(C)(3) | 108000 | CLINICAL RESEARCH AWARDS | |
| Nemours Children's Clinic - Jacksonville | ||||||||
| 807 Nira Street | Jacksonville | FL | 32207 | 590634433 | 501(C)(3) | 179928 | CLINICAL RESEARCH STUDY | |
| Oregon Health & Science University | ||||||||
| Sponsored Projects Administration O | Portland | OR | 97239 | 237083114 | 501(C)(3) | 80438 | CLINICAL RESEARCH STUDY | |
| Oregon Health & Science University | ||||||||
| Sponsored Projects Administration O | 0690 SW Bancroft Street | Portland | OR | 97239 | 237083114 | 501(C)(3) | 270000 | DRUG DISCOVERY AWARDS |
| Pennsylvania State University | ||||||||
| College of Medicine | 0690 SW Bancroft Street | Hershey | PA | 17033 | 246000376 | 501(C)(3) | 80438 | CLINICAL RESEARCH STUDY |
| Philadelphia Health & Education Corp (Drexel Univ | ||||||||
| 3201 Arch Street | Office of Research Affairs H138 | Philadelphia | PA | 19104 | 232979433 | 501(C)(3) | 76416 | CLINICAL RESEARCH STUDY |
| Phoenix Children's Hospital | ||||||||
| 1300 North 12th Street | Suite 420 | Phoenix | AZ | 85006 | 860422559 | 501(C)(3) | 68976 | CLINICAL RESEARCH STUDY |
| Providence Alaska Medical Center | ||||||||
| 4045 Lake Otis Pkwy 209 | Anchorage | AK | 99508 | 920016429 | 501(C)(3) | 63504 | CLINICAL RESEARCH STUDY | |
| Regents of the University of Colorado at Denver | ||||||||
| Grants and Contracts Mail Stop F42 | Aurora | CO | 80045 | 846000555 | 501(C)(3) | 20187 | ACADEMIC ADVISORY AWARDS | |
| Regents of the University of Colorado at Denver | ||||||||
| Grants and Contracts Mail Stop F42 | Anschutz Medical Campus Bldg 500 | Aurora | CO | 80045 | 846000555 | 501(C)(3) | 106703 | CLINICAL RESEARCH |
| Regents of the University of Colorado at Denver | ||||||||
| Grants and Contracts Mail Stop F42 | Anschutz Medical Campus Bldg 500 | Aurora | CO | 80045 | 846000555 | 501(C)(3) | 147900 | CLINICAL RESEARCH AWARDS |
| Regents of the University of Colorado at Denver | ||||||||
| Grants and Contracts Mail Stop F42 | Anschutz Medical Campus Bldg 500 | Aurora | CO | 80045 | 846000555 | 501(C)(3) | 149421 | CLINICAL RESEARCH STUDY |
| Research Foundation of SUNY on behalf of Univ at | ||||||||
| 402 Crofts Hall | Anschutz Medical Campus Bldg 500 | Buffalo | NY | 142607016 | 141368361 | 501(C)(3) | 169344 | CLINICAL RESEARCH STUDY |
| Rosalind Franklin University of Medicine and Scien | ||||||||
| Green Bay Road | University at Buffalo | North Chicago | IL | 60064 | 362181973 | 501(C)(3) | 937727 | DRUG DISCOVERY AWARDS |
| Sanford Children's Specialty Clinic | ||||||||
| 1600 W 22 Street | Sioux Falls | SD | 57105 | 460447693 | 501(C)(3) | 60329 | CLINICAL RESEARCH STUDY | |
| Seattle Children's Hospital | ||||||||
| 4800 Sand Point Way NE | Seattle | WA | 98105 | 910564748 | 501(C)(3) | 493146 | CLINICAL RESEARCH AWARDS | |
| Seattle Children's Hospital | ||||||||
| 4800 Sand Point Way NE | Seattle | WA | 98105 | 910564748 | 501(C)(3) | 3832652 | CLINICAL RESEARCH | |
| Seattle Children's Hospital | ||||||||
| 4800 Sand Point Way NE | Seattle | WA | 98105 | 910564748 | 501(C)(3) | 3854718 | CLINICAL RESEARCH STUDY | |
| Seton Healthcare | ||||||||
| 4900 Mueller Blvd | Austin | TX | 78723 | 741109643 | 501(C)(3) | 80438 | CLINICAL RESEARCH STUDY | |
| Spectrum Health Foundation | ||||||||
| 100 Michigan Street NE MC004 | DCMC Administration 3rd Floor | Grand Rapids | MI | 49503 | 382752328 | 501(C)(3) | 66864 | CLINICAL RESEARCH STUDY |
| St Louis University | ||||||||
| 3500 Lindell Blvd | St Louis | MO | 63103 | 430654872 | 501(C)(3) | 70384 | CLINICAL RESEARCH STUDY | |
| St Luke's Regional Medical Center | ||||||||
| 100 East Idaho | Boise | ID | 83712 | 820161600 | 501(C)(3) | 63504 | CLINICAL RESEARCH STUDY | |
| Texas Tech University Health Sciences Center | ||||||||
| 3601 4th Street Stop 6540 | Suite 200 | Lubbock | TX | 79430 | 752668014 | 501(C)(3) | 151903 | DRUG DISCOVERY AWARDS |
| The Children's Hospital Association | ||||||||
| 13123 East 16th Avenue B321 | Aurora | CO | 80045 | 840166760 | 501(C)(3) | 313200 | CLINICAL RESEARCH STUDY | |
| The Children's Hospital Association | ||||||||
| 13123 East 16th Avenue B321 | Aurora | CO | 80045 | 840166760 | 501(C)(3) | 599862 | CLINICAL RESEARCH AWARDS | |
| The Children's Hospital of Philadelphia | ||||||||
| 34th and Civic Center Boulevard | Philadelphia | PA | 19104 | 231352166 | 501(C)(3) | 98537 | CLINICAL RESEARCH STUDY | |
| The Children's Hospital of Philadelphia | ||||||||
| 34th and Civic Center Boulevard | Philadelphia | PA | 19104 | 231352166 | 501(C)(3) | 173328 | CLINICAL RESEARCH AWARDS | |
| The Children's Mercy Hospital | ||||||||
| 2401 Gillham Road | Kansas City | MO | 61408 | 440605373 | 501(C)(3) | 80438 | CLINICAL RESEARCH STUDY | |
| The Feinstein Institute for Medical Research | ||||||||
| 350 Community Drive | Manhasset | NY | 11030 | 112673595 | 501(C)(3) | 25424 | CLINICAL RESEARCH AWARDS | |
| The Feinstein Institute for Medical Research | ||||||||
| 350 Community Drive | Manhasset | NY | 11030 | 112673595 | 501(C)(3) | 80438 | CLINICAL RESEARCH STUDY | |
| The General Hospital Corporation | ||||||||
| PO Box 414876 | Boston | MA | 022414876 | 042697983 | 501(C)(3) | 80438 | CLINICAL RESEARCH STUDY | |
| The General Hospital Corporation | ||||||||
| PO Box 414876 | Boston | MA | 022414876 | 042697983 | 501(C)(3) | 85271 | DRUG DISCOVERY AWARDS | |
| The Johns Hopkins University | ||||||||
| 600 N Wolfe Street Park 316 | Baltimore | MD | 21205 | 520595110 | 501(C)(3) | 27710 | ACADEMIC ADVISORY AWARDS | |
| The Johns Hopkins University | ||||||||
| 600 N Wolfe Street Park 316 | Baltimore | MD | 21205 | 520595110 | 501(C)(3) | 140400 | CLINICAL RESEARCH STUDY | |
| The Johns Hopkins University | ||||||||
| 600 N Wolfe Street Park 316 | Baltimore | MD | 21205 | 520595110 | 501(C)(3) | 158069 | CLINICAL RESEARCH | |
| The Johns Hopkins University | ||||||||
| 600 N Wolfe Street Park 316 | Baltimore | MD | 21205 | 520595110 | 501(C)(3) | 361130 | DRUG DISCOVERY AWARDS | |
| The Johns Hopkins University | ||||||||
| 600 N Wolfe Street Park 316 | Baltimore | MD | 21205 | 520595110 | 501(C)(3) | 1906542 | CLINICAL RESEARCH AWARDS | |
| The Medical College of Wisconsin | ||||||||
| 8701 Watertown Pike Rd | Milwaukee | WI | 53226 | 390806261 | 501(C)(3) | 78830 | CLINICAL RESEARCH STUDY | |
| The Rector and Visitors of the University of Virgi | ||||||||
| Office of Sponsored Programs | Charlottesville | VA | 229044195 | 546001796 | 501(C)(3) | 84672 | CLINICAL RESEARCH STUDY | |
| The Regents of the University of California San D | ||||||||
| 9500 Gilman Dr 0934 | PO Box 400195 | La Jolla | CA | 920930984 | 956006144 | 501(C)(3) | 78830 | CLINICAL RESEARCH STUDY |
| The Regents of the University of California San D | ||||||||
| 9500 Gilman Dr 0934 | La Jolla | CA | 920930984 | 956006144 | 501(C)(3) | 108000 | DRUG DISCOVERY AWARDS | |
| The Regents of The University of Michigan | ||||||||
| 3003 South State Street | Ann Arbor | MI | 481091274 | 386006309 | 501(C)(3) | 100548 | CLINICAL RESEARCH STUDY | |
| The Regents of The University of Michigan | ||||||||
| 3003 South State Street | Room 1044 | Ann Arbor | MI | 481091274 | 386006309 | 501(C)(3) | 457753 | CLINICAL RESEARCH AWARDS |
| The Regents of the University of Minnesota | ||||||||
| Sponsored Projects Administration | Room 1044 | Minneapolis | MN | 554552070 | 416007513 | 501(C)(3) | 140400 | CLINICAL RESEARCH STUDY |
| The Research Institute at Nationwide Children's Ho | ||||||||
| 700 Childrens Drive | 200 Oak Street SE Suite 450 | Columbus | OH | 43205 | 316056230 | 501(C)(3) | 37594 | DRUG DISCOVERY AWARDS |
| The Research Institute at Nationwide Children's Ho | ||||||||
| 700 Childrens Drive | Columbus | OH | 43205 | 316056230 | 501(C)(3) | 140400 | CLINICAL RESEARCH STUDY | |
| The Scripps Research Institute | ||||||||
| 10666 North Torrey Pines Road | La Jolla | CA | 92037 | 330435954 | 501(C)(3) | 504000 | DRUG DISCOVERY AWARDS | |
| The Toledo Hospital | ||||||||
| 2142 N Cove Blvd | Toledo | OH | 43606 | 344428256 | 501(C)(3) | 84672 | CLINICAL RESEARCH STUDY | |
| The Trustees of Columbia University in the City of | ||||||||
| PO Box 29789 | New York | NY | 100879789 | 135598093 | 501(C)(3) | 17296 | ACADEMIC ADVISORY AWARDS | |
| The Trustees of Columbia University in the City of | ||||||||
| PO Box 29789 | General Post Office | New York | NY | 100879789 | 135598093 | 501(C)(3) | 68844 | CLINICAL RESEARCH STUDY |
| The Trustees of Columbia University in the City of | ||||||||
| PO Box 29789 | General Post Office | New York | NY | 100879789 | 135598093 | 501(C)(3) | 123240 | DRUG DISCOVERY AWARDS |
| The University of Alabama at Birmingham | ||||||||
| 1530 3rd Ave S THT422 | General Post Office | Birmingham | AL | 352940006 | 636005396 | 501(C)(3) | 23814 | CLINICAL RESEARCH |
| The University of Alabama at Birmingham | ||||||||
| 1530 3rd Ave S THT422 | Birmingham | AL | 352940006 | 636005396 | 501(C)(3) | 84868 | CLINICAL RESEARCH AWARDS | |
| The University of Alabama at Birmingham | ||||||||
| 1530 3rd Ave S THT422 | Birmingham | AL | 352940006 | 636005396 | 501(C)(3) | 318320 | CLINICAL RESEARCH STUDY | |
| The University of Alabama at Birmingham | ||||||||
| 1530 3rd Ave S THT422 | Birmingham | AL | 352940006 | 636005396 | 501(C)(3) | 768309 | DRUG DISCOVERY AWARDS | |
| The University of Chicago | ||||||||
| University Research Administration | Chicago | IL | 60637 | 362177139 | 501(C)(3) | 25288 | ACADEMIC ADVISORY AWARDS | |
| The University of Chicago | ||||||||
| University Research Administration | 970 E 58th Street | Chicago | IL | 60637 | 362177139 | 501(C)(3) | 59122 | CLINICAL RESEARCH STUDY |
| The University of Iowa | ||||||||
| Office of Vice President for Resear | 970 E 58th Street | Iowa City | IA | 52242 | 426004813 | 501(C)(3) | 140206 | CLINICAL RESEARCH STUDY |
| The University of Iowa | ||||||||
| Office of Vice President for Resear | Division of Sponsored Programs | Iowa City | IA | 52242 | 426004813 | 501(C)(3) | 401179 | DRUG DISCOVERY AWARDS |
| The University of North Carolina at Chapel Hill | ||||||||
| 300 Bynum Hall | Division of Sponsored Programs | Chapel Hill | NC | 275994100 | 566001393 | 501(C)(3) | 137641 | CLINICAL RESEARCH AWARDS |
| The University of North Carolina at Chapel Hill | ||||||||
| 300 Bynum Hall | CB 4100 | Chapel Hill | NC | 275994100 | 566001393 | 501(C)(3) | 198901 | CLINICAL RESEARCH STUDY |
| The University of North Carolina at Chapel Hill | ||||||||
| 300 Bynum Hall | CB 4100 | Chapel Hill | NC | 275994100 | 566001393 | 501(C)(3) | 906669 | DRUG DISCOVERY AWARDS |
| The University of Utah | ||||||||
| 201 S Presidents Circle | CB 4100 | Salt Lake City | UT | 84112 | 876000525 | 501(C)(3) | 100548 | CLINICAL RESEARCH STUDY |
| The University of Vermont and State Agricultural C | ||||||||
| Grant and Contract Administrative S | Room 406 | Burlington | VT | 05405 | 030179440 | 501(C)(3) | 80438 | CLINICAL RESEARCH STUDY |
| Trustee of Indiana University | ||||||||
| Financial Management Services | 223 Waterman Bldg | Indianapolis | IN | 462666057 | 356001673 | 501(C)(3) | 152412 | CLINICAL RESEARCH STUDY |
| Trustees of Dartmouth College | ||||||||
| Dartmouth Medical School | PO Box 66057 | Hanover | NH | 037551404 | 020222111 | 501(C)(3) | 91000 | CLINICAL RESEARCH AWARDS |
| Trustees of Dartmouth College | ||||||||
| Dartmouth Medical School | Dept of Microbiology and Immunolog | Hanover | NH | 037551404 | 020222111 | 501(C)(3) | 316606 | ACADEMIC ADVISORY AWARDS |
| University at Buffalo Pediatric Associates | ||||||||
| 239 Bryant Street | Dept of Microbiology and Immunolog | Buffalo | NY | 14222 | 161238821 | 501(C)(3) | 118500 | ACADEMIC ADVISORY AWARDS |
| University of Arkansas for Medical Sciences | ||||||||
| 4301 West Markham Street | 2nd Floor | Little Rock | AR | 72205 | 716046242 | 501(C)(3) | 80438 | CLINICAL RESEARCH STUDY |
| University of Kentucky Research Foundation | ||||||||
| 337 Peterson | Mail Slot 555 | Lexington | KY | 405060005 | 616033693 | 501(C)(3) | 76416 | CLINICAL RESEARCH STUDY |
| University of Massachusetts Medical School | ||||||||
| 55 Lake Avenue North | Worcester | MA | 01655 | 043167352 | 501(C)(3) | 22311 | CLINICAL RESEARCH STUDY | |
| University of Miami | ||||||||
| PO Box 025405 | Miami | FL | 331025405 | 590624458 | 501(C)(3) | 74088 | CLINICAL RESEARCH STUDY | |
| University of Nebraska Medical Center | ||||||||
| 985100 Nebraska Medical Center | Omaha | NE | 681985190 | 470491233 | 501(C)(3) | 18524 | CLINICAL RESEARCH AWARDS | |
| University of Nebraska Medical Center | ||||||||
| 985100 Nebraska Medical Center | Omaha | NE | 681985190 | 470491233 | 501(C)(3) | 80438 | CLINICAL RESEARCH STUDY | |
| University of Oklahoma Health Sciences Center | ||||||||
| PO Box 26901 | Oklahoma City | OK | 73190 | 736017987 | 501(C)(3) | 74088 | CLINICAL RESEARCH STUDY | |
| University of Pittsburgh | ||||||||
| 350 Thackeray Hall | Pittsburgh | PA | 15260 | 250965591 | 501(C)(3) | 41404 | CLINICAL RESEARCH AWARDS | |
| University of Pittsburgh | ||||||||
| 350 Thackeray Hall | Pittsburgh | PA | 15260 | 250965591 | 501(C)(3) | 144113 | CLINICAL RESEARCH STUDY | |
| University of Pittsburgh | ||||||||
| 350 Thackeray Hall | Pittsburgh | PA | 15260 | 250965591 | 501(C)(3) | 422250 | DRUG DISCOVERY AWARDS | |
| University of Rochester | ||||||||
| Box 649 | Rochester | NY | 14642 | 160743209 | 501(C)(3) | 76416 | CLINICAL RESEARCH STUDY | |
| University of South Alabama | ||||||||
| Admin Bldg 362 | 601 Elmwood Avenue | Mobile | AL | 36688 | 630477348 | 501(C)(3) | 108000 | DRUG DISCOVERY AWARDS |
| University of Tennessee | ||||||||
| 62 S Dunlap | Memphis | TN | 38163 | 626001636 | 501(C)(3) | 66864 | CLINICAL RESEARCH STUDY | |
| University of Texas Health Science Center at San A | ||||||||
| Office of Sponsored Programs MC 78 | San Antonio | TX | 78229 | 741586031 | 501(C)(3) | 74088 | CLINICAL RESEARCH STUDY | |
| University of Washington | ||||||||
| Office of Sponsored Programs | 7703 Floyd Curl Drive | Seattle | WA | 981056692 | 916001537 | 501(C)(3) | 38132 | ACADEMIC ADVISORY AWARDS |
| University of Washington | ||||||||
| Office of Sponsored Programs | 4333 Brooklyn Avenue NE | Seattle | WA | 981056692 | 916001537 | 501(C)(3) | 67477 | CLINICAL RESEARCH AWARDS |
| UT Southwestern Medical Center at Dallas | ||||||||
| 5323 Harry Hines Boulevard | 4333 Brooklyn Avenue NE | Dallas | TX | 753909105 | 756002868 | 501(C)(3) | 80438 | CLINICAL RESEARCH STUDY |
| UT Southwestern Medical Center at Dallas | ||||||||
| 5323 Harry Hines Boulevard | Dallas | TX | 753909105 | 756002868 | 501(C)(3) | 299416 | DRUG DISCOVERY AWARDS | |
| Vanderbilt University | ||||||||
| PO Box 30195 | Nashville | TN | 372410195 | 620476822 | 501(C)(3) | 76416 | CLINICAL RESEARCH STUDY | |
| Virginia Commonwealth University | ||||||||
| Box 2506 - VCU Station | Richmond | VA | 232842506 | 546001758 | 501(C)(3) | 37800 | CLINICAL RESEARCH AWARDS | |
| Virginia Commonwealth University | ||||||||
| Box 2506 - VCU Station | Richmond | VA | 232842506 | 546001758 | 501(C)(3) | 77866 | CLINICAL RESEARCH STUDY | |
| Washington University | ||||||||
| 660 S Euclid Avenue | St Louis | MO | 63110 | 430653611 | 501(C)(3) | 80438 | CLINICAL RESEARCH STUDY | |
| Wayne State University | ||||||||
| Grants Contracts Office III | Detroit | MI | 48201 | 383028425 | 501(C)(3) | 78830 | CLINICAL RESEARCH STUDY | |
| West Virginia University Research Corporation | ||||||||
| One Waterfront Place | Research and Sponsored Programs | Morgantown | WV | 265066001 | 550665758 | 501(C)(3) | 66864 | CLINICAL RESEARCH STUDY |
| Yale University | ||||||||
| 47 College Street Suite 203 | New Haven | CT | 065208047 | 060646973 | 501(C)(3) | 56689 | CLINICAL RESEARCH STUDY | |
| CYSTIC FIBROSIS FOUNDATION HEADQUARTERS | ||||||||
| 6931 ARLINGTON ROAD | SUITE 200 | BETHESDA | MD | 20814 | 131930701 | 501(C)(3) | 86638239 | GENERAL SUPPORT |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Nbr Of501 C3 And Govt Grants | 85 | TotalNbrOf501C3AndGovtGrants |
Form990 Schedule I Part IV Form990ScheduleIPartIV
| Field | Value | IRS element (for citing) |
|---|---|---|
| Identifier | PROCEDURES FOR MONITORING GRANT FUNDS INSIDE OF THE U.S. | Identifier |
| Return Reference | PART I, LINE 2 | ReturnReference |
| Explanation | THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANT FUNDS AWARDED TO ENTITIES INSIDE OF THE US. SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO ENSURE ACCEPTABLE PROGRESS HAS BEEN ATTAINED. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE ORGANIZATION'S INTERNAL AUDITORS AUDIT A SAMPLE OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTIONS. | Explanation |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Compensation Committee | X | CompensationCommittee |
| Independent Consultant | X | IndependentConsultant |
| Form990 Of Other Organizations | X | Form990OfOtherOrganizations |
| Written Employment Contract | X | WrittenEmploymentContract |
| Compensation Survey | X | CompensationSurvey |
| Board Or Committee Approval | X | BoardOrCommitteeApproval |
| Severance Payment | false | SeverancePayment |
| Supplemental Nonqual Retire Plan | true | SupplementalNonqualRetirePlan |
| Equity Based Comp Arrangement | false | EquityBasedCompArrangement |
| Comp Based On Revenue Of Filing Org | false | CompBasedOnRevenueOfFilingOrg |
| Comp Based On Revenue Related Orgs | false | CompBasedOnRevenueRelatedOrgs |
| Comp Based Net Earnings Filing Org | false | CompBasedNetEarningsFilingOrg |
| Comp Based Net Earnings Relate Orgs | false | CompBasedNetEarningsRelateOrgs |
| Any Non Fixed Payments | true | AnyNonFixedPayments |
| Initial Contract Exception | false | InitialContractException |
Form990 Schedule J Part II Form990ScheduleJPartII (6 entries)
| TitleTitle | Base Compensation Filing OrgBaseCompensationFilingOrg | Comp Based On Related OrgsCompBasedOnRelatedOrgs | Bonus Filing OrgBonusFilingOrg | Bonus Related OrgsBonusRelatedOrgs | Other Compensation Filing OrgOtherCompensationFilingOrg | Other Compensation Related OrgsOtherCompensationRelatedOrgs | Deferred Comp Filing OrgDeferredCompFilingOrg | Deferred Comp Related OrgsDeferredCompRelatedOrgs | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrg | Nontaxable Benefits Related OrgsNontaxableBenefitsRelatedOrgs | Total Compensation Filing OrgTotalCompensationFilingOrg | Total Compensation Related OrgsTotalCompensationRelatedOrgs | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrg | Comp Report Prior990 Related OrgsCompReportPrior990RelatedOrgs |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| ROBERT J BEALL PHD | ||||||||||||||
| PRESIDENT & CEO | 183806 | 363683 | 35485 | 72046 | 110576 | 233832 | 21252 | 68745 | 0 | 22675 | 351119 | 760981 | 64680 | 131320 |
| Preston W Campbell MD | ||||||||||||||
| Exec VP of Medical Affairs | 125512 | 243354 | 20778 | 42187 | 5610 | 15891 | 33064 | 92725 | 0 | 29840 | 184964 | 423997 | ||
| C Richard Mattingly | ||||||||||||||
| EXEC VP, COO & SECRETARY | 0 | 376534 | 0 | 67369 | 0 | 22147 | 0 | 149819 | 0 | 19075 | 0 | 634944 | ||
| Vera H Twigg | ||||||||||||||
| Sr. VP and CFO | 0 | 272799 | 0 | 44485 | 0 | 18681 | 0 | 47143 | 0 | 30640 | 0 | 413748 | ||
| BRUCE MARSHALL MD | ||||||||||||||
| VP OF CLINICAL AFFAIRS | 297087 | 41035 | 0 | 2322 | 0 | 30596 | 0 | 1000 | 0 | 372040 | 0 | |||
| MARTIN MENSE | ||||||||||||||
| PRINCIPAL SCIENTIST DRUG DISC | 143295 | 0 | 16999 | 0 | 311 | 0 | 16148 | 0 | 29457 | 0 | 206210 | 0 | ||
Form990 Schedule J Part III Form990ScheduleJPartIII (2 entries)
| IdentifierIdentifier | Return ReferenceReturnReference | ExplanationExplanation |
|---|---|---|
| SUPPLEMENTAL NONQUALIFIED RETIREMENT PLAN | PART I, LINE 4B and Line 7 | Part I, Line 4b: Certain persons listed in Form 990, Part VII, Section A participate in a nonqualified deferred compensation plan, under which interests are forfeited by the participant if the participant voluntarily terminates employment prior to designated vesting date. Further information about the nonqualified deferred compensation plan in which those persons participate is provided in the additional information for Schedule J, Part II, below. Part I, Line 7: Several individuals listed in Form 990, Part VII, Section A, line 1a, (who are identified in Part II, below) participated in an Incentive Compensation Plan, from which non-fixed payments not described in lines 5 and 6 were paid. The Plan is sponsored by CFF, a related organization. The individuals participate by virtue of being officers of CFF. However, if an individual also is an officer of CFFT and receives compensation from CFFT, a portion of the individual's award is paid by CFFT. The Incentive Compensation Plan pays non-fixed payments subject to, and based on, the achievement of annual performance objectives established in advance by the Compensation Committee. In addition, the Incentive Compensation Plan pays non-fixed payments that relate to a three-year performance period, subject to, and based on, the achievement of long-term performance objectives established in advance by the Compensation Committee. |
| COMPENSATION | PART II | Cystic Fibrosis Foundation Therapeutics, Inc. (A) Name: R. Beall, Ph.D.; (B)(i) Base Compensation: base salary - $176,381, 401(k) bonus - $7,425; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $35,485; (B)(iii) Other Reportable Compensation: health insurance benefit - $1,649, automobile allowance - $2,376, other benefits including general organization group term life insurance premium - $4,125, SERP account that became vested, of which $64,680 was previously reported (3) - $102,426; (C) Deferred Compensation: long-term incentive plan benefit (6) - $21,252; (D) Nontaxable Benefits: $0 Cystic Fibrosis Foundation - Headquarters. EIN 13-1930701. (A) Name: R. Beall, Ph.D.; (B)(i) Base Compensation: base salary - $348,608, 401(k) bonus - $15,075; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $72,046; (B)(iii) Other Reportable Compensation: health insurance benefit - $3,349, automobile allowance - $4,824, other benefits including taxable general organization group term life insurance premium - $17,703, SERP account that became vested, of which $131,320 was previously reported (3) - $207,956; (C) Deferred Compensation: retirement benefit (2) - $25,596, long-term incentive plan benefit (6) - $43,149; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $13,177, employee contribution to flexible spending account benefit - $4,500, employee contribution to general organization health plan benefit - $4,998 Cystic Fibrosis Foundation Therapeutics, Inc. (A) Name: P. Campbell, M.D.; (B)(i) Base Compensation: base salary - $125,512; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $20,778; (B)(iii) Other Reportable Compensation: Section 457(b) Plan (5) - $5,610; (C) Deferred Compensation: long-term incentive plan benefit (6) - $15,645, SERP (4) - $17,419; (D) Nontaxable Benefits: $0 Cystic Fibrosis Foundation - Headquarters. (A) Name: P. Campbell, M.D.; (B)(i) Base Compensation: base salary - $243,354; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $42,187; (B)(iii) Other Reportable Compensation: other benefits including taxable general organization group term life insurance premium - $4,501, Section 457(b) Plan (5) - $11,390; (C) Deferred Compensation: retirement benefit (2) - $25,596, long-term incentive plan benefit (6) - $31,763, SERP (4) - $35,366; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $18,366, employee contribution to flexible spending account benefit - $4,200, employee contribution to general organization health plan benefit - $7,274 Cystic Fibrosis Foundation - Headquarters. EIN 13-1930701 Name: (A) R. Mattingly; (B)(i) Base Compensation: base salary - $376,534; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $67,369; (B)(iii) Other Reportable Compensation: Section 457(b) Plan (5) - $17,000; other benefits including taxable general organization group term life insurance premium - $5,147; (C) Deferred Compensation: retirement benefit (2) - $25,596, long-term incentive plan benefit (6) - $47,982, SERP (4) - $76,241; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $13,177, employee contribution to flexible spending account benefit - $900, employee contribution to general organization health plan benefit - $4,998 Cystic Fibrosis Foundation - Headquarters. EIN 13-1930701. (A) Name: V. Twigg; (B)(i) Base Compensation: base salary - $272,799; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $44,485; (B)(iii) Other Reportable Compensation: taxable general organization group term life insurance premium - $1,681, Section 457(b) Plan (5) - $17,000; (C) Deferred Compensation: retirement benefit (2) - $25,596, long-term incentive plan benefit (6) - $19,926, SERP (4) - $ 1,621; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $18,366, employee contribution to flexible spending account benefit - $5,000, employee contribution to general organization health plan benefit - $7,274 (1) This is an award subject to, and based on, achievement of annual performance standards established in advance by the Compensation Committee of the CFF Board. (2) This is the employer contribution made under the Cystic Fibrosis Foundation 401(k) Plan for the 2012 Plan Year. (3) The SERP is sponsored by CFF, a related organization. The executive participates by virtue of being an officer of CFF. HOWEVER, BECAUSE THE EXECUTIVE ALSO IS AN OFFICER WITH RESPECT TO CFFT, BOTH CFFT AND CFF MAKE CONTRIBUTIONS ON THE EXECUTIVE'S BEHALF TO THE SERP. A. A portion of the total SERP account that became vested relates to employer contributions to the SERP that were earned by the participant and accrued during 2010 and 2011. As required, those SERP contributions from prior years were reported as "Retirement and other Deferred Compensation" on the applicable prior years' Form 990s and therefore (as required by the instructions) are double-reported here. The remaining portion of the total SERP account that became vested relates to employer contributions to the SERP that were earned by the participant during 2012. B. SERP interests would have been forfeited by the participant if the participant voluntarily terminated employment prior to December 31, 2012. C. SERP interests are held in a trust subject to the claims of CFF's bankruptcy creditors. In the event of a CFF bankruptcy, participants would become general unsecured creditors of CFF. D. The SERP is a nonqualified deferred compensation plan. This means that participants do not receive the tax benefits available to participants in tax qualified retirement plans. For example, under current law, interests under SERPs are reportable as taxable compensation when they become vested, even if those amounts are not yet payable to the participant (and even if those amounts are never paid to the participant). E. The SERP's design was reviewed and opined upon as reasonable by an independent compensation consultant. SERP contribution amounts were determined by an independent actuary. F. CFF retains the right to amend or terminate the SERP at any time. (4) The SERP is sponsored by CFF, a related organization. The executive participates by virtue of being an officer of CFF. HOWEVER, BOTH CFFT AND CFF MAKE CONTRIBUTIONS ON THE EXECUTIVE'S BEHALF IF THE EXECUTIVE RECEIVES COMPENSATION FROM CFFT (AS AN OFFICER OF CFFT) AND FROM CFF (AS AN OFFICER OF CFF). A. This is an unvested employer contribution to the SERP. B. SERP interests are forfeited by the participant if the participant voluntarily terminates employment prior to attaining age 60. C. In the event of a CFF bankruptcy, participants are general unsecured creditors of CFF. D. The SERP is a nonqualified deferred compensation plan. This means that participants do not receive the tax benefits available to participants in tax qualified retirement plans. For example, under current law, interests under SERPs are reportable as taxable compensation when they become vested, even if those amounts are not yet payable to the participant (and even if those amounts are never paid to the participant). E. The SERP's design was reviewed and opined upon as reasonable by an independent compensation consultant. An independent actuary developed the contribution formula pursuant to which SERP contribution amounts are determined. F. CFF retains the right to amend or terminate the SERP at any time. (5) The 457(b) Plan is sponsored by CFF, a related organization. The executive participates by virtue of being an officer of CFF. HOWEVER, BOTH CFFT AND CFF MAKE CONTRIBUTIONS ON THE EXECUTIVE'S BEHALF IF THE EXECUTIVE RECEIVES COMPENSATION FROM CFFT (AS AN OFFICER OF CFFT) AND FROM CFF (AS AN OFFICER OF CFF). A. This is a vested contribution to the 457(b) Plan for the reporting period. B. In the event of a CFF bankruptcy, participants are general unsecured creditors of CFF. C. Distributions from the 457(b) Plan may not be rolled-over to an IRA or qualified plan (but may only be rolled-over to another 457(b) plan). D. The 457(b) Plan's design was reviewed and opined upon as reasonable by an independent compensation consultant. An independent actuary developed the contribution formula pursuant to which 457(b) contribution amounts are determined. Contributions to the 457(b) Plan are subject to annual IRS limits (currently $17,000). E. CFF retains the right to amend or terminate the 457(b) Plan at any time. (6) This Plan provides for awards that relate to a three-year performance period, subject to, and based on, achievement of performance objectives established in advance by the Compensation Committee of the board of trustees of cff, a related entity. The individuals participate by virtue of being officers of cff. However, if an individual also is an officer of cfft and receives compens |
Schedule O IRS990ScheduleO
General Explanation GeneralExplanation (7 entries)
| IdentifierIdentifier | Return ReferenceReturnReference | ExplanationExplanation |
|---|---|---|
| GOVERNING BODY APPOINTMENTS | Part VI, Section A, Line 7a (Page 6 Core Form) | Certain of the Organization's board members are designated by the Board of Trustees of the Cystic Fibrosis Foundation. |
| REVIEW OF 990 BY GOVERNING BODY | Part VI, Section B, Line 11b (Page 6 Core Form) | The Organization's Board of Directors receives a draft of the Form 990 prior to its being filed, with sufficient time for review and comment allowed. The Organization's ERISA attorneys review the executive compensation sections of the Form 990 to ensure completeness and accuracy. The Audit Committee also reviews the Form 990 as part of its chartered responsibilities. In all cases the cystic fibrosis foundation therapeutics board of directors received a complete copy of the final form 990 before it is filed. |
| CONFLICT OF INTEREST MONITORING | Part VI, Section B, Line 12c (Page 6 Core Form) | A conflict of interest disclosure statement is completed annually by each Board member and officer. Disclosures provided are reported to the Nominating and Governance Committee, the Audit Committee and the Board of Trustees. As required within the bylaws, any potential conflicts of interest must be reported to the Board as they arise. When any matter is deemed a potential conflict of interest and requires action by the Board of Trustees, the interested trustee or officer is required to retire from the room in which the Board or its committee is meeting, may not participate in the final deliberation of the matter, and may not vote on the matter. The Organization enforced the policy during 2012 and had no conflicts of interest as defined by the policy. |
| DETERMINING COMPENSATION | Part VI, Section B, Line 15a and 15b (Page 6 Core Form) | The total compensation of executives at the Organization is specifically designed to attract and retain the highest qualified executive and medical talent to fulfill the critically important mission of assuring the development of the means to cure and control CF and improving the quality of life for those with the disease. Cystic Fibrosis Foundation Therapeutics, Inc. shares officers with Cystic Fibrosis Foundation, a related organization. The independent Compensation Committee of the CF Foundation's Board of Trustees follows the process described in the IRS intermediate sanctions rules when determining compensation for executives of the Organization. Specifically, the Committee: (1) Is composed entirely of non-employee volunteer directors who have no familial, business or significant personal relationships with the Organization or its executives. (2) Assesses the short-term and long-term contribution and performance of each executive in meeting very definitive and quantifiable objectives focused on the Organization's mission success. (3) Engages an independent compensation consulting firm to compile appropriate comparability data (including compensation market information for peers with whom the Organization competes for executive talent) for Committee reliance. The Committee meets with representatives of the consulting firm to review this data in detail. (4) Reviews all elements of each executive's total compensation, including but not limited to base salary, bonuses, perquisites, fringe benefits, and incentive and deferred compensation arrangements. Upon the executive's hire, and at each point in time thereafter at which a new or revised compensation arrangement is under consideration with respect to the executive, the Committee meets with its independent compensation consulting firm before the arrangement is implemented to evaluate the reasonableness of the arrangement by comparing both the arrangement itself and the executive's entire compensation package to compensation packages paid by similarly situated organizations for functionally comparable positions. (5) Documents, concurrently with its determination, the basis for its determination in the minutes of its meeting. These minutes are reviewed, revised if necessary and approved at the following meeting of the Committee. (6) Obtains a written legal opinion concerning the Committee's compliance with the IRS intermediate sanctions rules. The process described above was used to establish compensation for the following offices or positions: President & CEO Executive Vice President, COO and Secretary Executive Vice President for Medical Affairs Senior Vice President & CFO Senior Vice President - CFFP The process was last undertaken in 2012. |
| PUBLIC INSPECTION | Part VI, Section C, Line 19 (Page 6 Core Form) | The Form 1023 for the Organization was available on its website, CFF.org, and the Organization's website provides a direct link to its Form 990 on Guidestar.org. CFFT's governing documents (Bylaws and Articles of Incorporation) are available upon request by contacting the Organization in writing or by phone. Information on how to obtain the governing documents is available on the website, www.cff.org/Research/CFFT. The Board and Officer Conflict of Interest Policy and the audited financial statements are available on the website, www.cff.org/Research/CFFT. |
| COMPENSATION OF OFFICERS, DIRECTORS, TRUSTEES, ETC | FORM 990, PART VII, SECTION A | NAME AND TITLE CHRISTY SHAFFER, PH.D, CHAIR AVG HRS WORKED 5 HRS AVG HRS WORKED - RELATED 6 HRS POSITION INDIVIDUAL DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE JASON M. ARYEH, DIRECTOR AVG HRS WORKED 3 HRS POSITION INDIVIDUAL DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE STEVEN SHAK, M.D., DIRECTOR AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 6 HRS POSITION INDIVIDUAL DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE CATHERINE C. MCLOUD, DIRECTOR AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 8 HRS POSITION INDIVIDUAL DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE JONATHAN COHN, M.D., DIRECTOR AVG HRS WORKED 3 HRS POSITION INDIVIDUAL DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE D. PAUL FLESSNER, DIRECTOR AVG HRS WORKED 3 HRS POSITION INDIVIDUAL DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE ROBERT J. BEALL, PH.D PRES/CEO AVG HRS WORKED 20 HRS AVG HRS WORKED - RELATED 40 HRS POSITION INDIVIDUAL DIRECTOR & OFFICER REPORTABLE COMP FROM THE ORG 329,867 REPORTABLE COMP FROM RELATED ORG 669,561 EST. AMT OF OTHER COMP FROM THE ORG 112,672 NAME AND TITLE PRESTON W. CAMPBELL, M.D., EXEC VP OF MEDICAL AFFAIRS AVG HRS WORKED 20 HRS AVG HRS WORKED - RELATED 40 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG 151,900 REPORTABLE COMP FROM RELATED ORG 301,432 EST. AMT OF OTHER COMP FROM THE ORG 155,629 NAME AND TITLE C. RICHARD MATTINGLY, EXEC VP, COO and secretary AVG HRS WORKED 5 HRS AVG HRS WORKED - RELATED 55 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG 466,050 EST. AMT OF OTHER COMP FROM THE ORG 168,894 NAME AND TITLE VERA H. TWIGG, SR VP & CFO AVG HRS WORKED 5 HRS AVG HRS WORKED - RELATED 55 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG 335,965 EST. AMT OF OTHER COMP FROM THE ORG 77,783 NAME AND TITLE BRUCE MARSHALL, MD. VP OF CLINICAL AFFAIRS AVG HRS WORKED 50 HRS POSITION HIGHEST COMPENSATED EMPLOYEE REPORTABLE COMP FROM THE ORG 340,444 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 31,596 NAME AND TITLE MARTIN MENSE, PH.D, PRINCIPAL SCIENTIST FOR DRUG DISCOVERY AVG HRS WORKED 50 HRS POSITION HIGHEST COMPENSATED EMPLOYEE REPORTABLE COMP FROM THE ORG 160,605 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 45,605 NAME AND TITLE HERMANN BIHLER, PH.D., SENIOR SCIENTIST AVG HRS WORKED 50 HRS POSITION HIGHEST COMPENSATED EMPLOYEE REPORTABLE COMP FROM THE ORG 128,056 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 11,146 NAME AND TITLE CYNTHIA GEORGE, MDS, FNP, BC DIRECTOR OF CLINICAL RES RESOURCES AVG HRS WORKED 50 HRS POSITION HIGHEST COMPENSATED EMPLOYEE REPORTABLE COMP FROM THE ORG 115,369 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 14,968 NAME AND TITLE ELIZABETH JOSELOFF, PH.D. INTEGRATIVE BIOLOGY DIRECTOR AVG HRS WORKED 50 HRS POSITION HIGHEST COMPENSATED EMPLOYEE REPORTABLE COMP FROM THE ORG 110,865 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 31,342 TOTAL REPORTABLE COMP FROM THE ORG 1,337,106 TOTAL REPORTABLE COMP FROM RELATED ORG 1,773,008 TOTAL EST. AMT OF OTHER COMP FROM THE ORG 649,635 |
| ROYALTY MONETIZATION | FORM 990, PART VIII, LINE 5 | CFFT retains legal and beneficial rights to intellectual property developed under certain scientific grants and drug discovery agreements. Royalties received under these agreements are recorded as revenue when they become due. In addition, at times CFFT may sell all or a portion of its royalty rights under certain of these agreements in exchange for a lump sum. Amounts received under these agreements are recorded as royalty revenue when rights are forfeited and proceeds are receivable. In May 2012, CFFT entered into an agreement to sell a portion of its future royalty revenue under one such drug discovery agreement. Royalty revenue includes $146,120,334 relating to this transaction. |
Schedule R IRS990ScheduleR
Form990 Schedule R Part II Form990ScheduleRPartII (2 entries)
| Address Line1AddressUS/AddressLine1 | CityAddressUS/City | StateAddressUS/State | ZIP CodeAddressUS/ZIPCode | EINEIN | Primary ActivitiesPrimaryActivities | Legal Domicile StateLegalDomicileState | Exempt Code SectionExemptCodeSection | Public Charity StatusPublicCharityStatus | Business Name Line1DirectControllingEntityName/BusinessNameLine1 | Controlled OrgControlledOrg |
|---|---|---|---|---|---|---|---|---|---|---|
| CYSTIC FIBROSIS FOUNDATION-HEADQUARTERS | ||||||||||
| 6931 ARLINGTON RD | bethesda | MD | 20814 | 131930701 | research | DE | 501(c)(3) | 7 | na | false |
| CYSTIC FIBROSIS FOUNDATION - GROUP | ||||||||||
| 6931 ARLINGTON RD | BETHESDA | MD | 20814 | 136161105 | EDUCATION | DE | 501(c)(3) | 7 | CFF-HQ | false |
Form990 Schedule R Part IV Form990ScheduleRPartIV
Name Of Related Org NameOfRelatedOrg
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CYSTIC FIBROSIS SERVICES INC | BusinessNameLine1 |
Address US AddressUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 6931 ARLINGTON RD | AddressLine1 |
| City | BETHESDA | City |
| State | MD | State |
| ZIP Code | 20814 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 521850490 | EIN |
| Primary Activity | pharmacy | PrimaryActivity |
| Legal Domicile State | MD | LegalDomicileState |
Direct Controlling Entity Name DirectControllingEntityName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CFF PHARMACY | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Type Of Entity | c | TypeOfEntity |
| Share Of Total Income | 0 | ShareOfTotalIncome |
| Share Of EOY Assets | 0 | ShareOfEOYAssets |
| Controlled Org | false | ControlledOrg |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Receipt Of Int Ann Rents Royalties | false | ReceiptOfIntAnnRentsRoyalties |
| Gift Grant Or Cap Contr To Other Org | true | GiftGrantOrCapContrToOtherOrg |
| Loans Or Guarantees To Other Org | false | LoansOrGuaranteesToOtherOrg |
| Loans Or Guarantees From Other Org | false | LoansOrGuaranteesFromOtherOrg |
| Sale Of Assets To Other Org | false | SaleOfAssetsToOtherOrg |
| Purchase Of Assets From Other Org | false | PurchaseOfAssetsFromOtherOrg |
| Exchange Of Assets | false | ExchangeOfAssets |
| Rental Of Facilities To Other Orgs | false | RentalOfFacilitiesToOtherOrgs |
| Rental Of Facilities Fr Other Orgs | false | RentalOfFacilitiesFrOtherOrgs |
| Perform Of Services For Other Orgs | false | PerformOfServicesForOtherOrgs |
| Perform Of Services By Other Orgs | false | PerformOfServicesByOtherOrgs |
| Sharing Of Facilities | true | SharingOfFacilities |
| Sharing Of Paid Employees | true | SharingOfPaidEmployees |
| Reimbursement Paid To Other Org | false | ReimbursementPaidToOtherOrg |
| Reimbursement Paid By Other Org | false | ReimbursementPaidByOtherOrg |
| Other Transfer To Other Org | false | OtherTransferToOtherOrg |
| Other Transfer From Other Org | false | OtherTransferFromOtherOrg |
Transactions Related Orgs Table TransactionsRelatedOrgsTable (3 entries)
| Transaction TypeTransactionType | Amount InvolvedAmountInvolved | Method Of Amt DeterminationMethodOfAmtDetermination |
|---|---|---|
| Cystic fibrosis foundation - headquarters | ||
| B | 86638239 | FMV |
| Cystic fibrosis foundation - headquarters | ||
| N | 333740 | FMV |
| Cystic fibrosis foundation - headquarters | ||
| O | 1852879 | FMV |