CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC
2024 · Form 990EZ · revenue $0 · expenses $0 · assets $0
- Also known as
- THERAPEUTICS INC
- EIN
- 91-2059167
- Address
- 4550 MONTGOMERY AVE STE 1100N, BETHESDA, MD 20814-3732
- Website
- WWW.CFF.ORG
- NTEE code
- U50
- Subsection
- 501(c)(3)
- Ruling year
- 2000
- Cross-check
- ProPublica Nonprofit Explorer
Mission
THE MISSION IS TO CURE CYSTIC FIBROSIS AND TO PROVIDE ALL PEOPLE WITH CF THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES.
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
17 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.
| Name | Latest title | Years | Latest year pay | Total pay from here | Organizations |
|---|---|---|---|---|---|
| Michael P Boyle Md | PRESIDENT/DIRECTOR | 2015-2024 | $0 | $1,341,331 | 2 |
| Robert J Beall Phd (former) | FORMER CEO | 2010-2017 | $439,043 | $9,226,772 | 3 |
| Preston Campbell Md (former) | PRESIDENT & CEO | 2010-2017 | $1,409,782 | $7,680,512 | 3 |
| C Richard Mattingly (former) | FORMER COO | 2010-2017 | $197,010 | $6,929,802 | 3 |
| Vera H Twigg (former) | TREASURER/DIRECTOR (UNTIL 07/2021) | 2010-2021 | $0 | $4,168,910 | 3 |
| Bruce Marshall Md (former) | SENIOR VP OF CLINICAL AFFAIRS | 2010-2017 | $564,279 | $3,438,180 | 2 |
| Martin Mense Phd (former) | VP OF DRUG DISCOVERY | 2010-2017 | $320,252 | $1,662,047 | 1 |
| William Skach Md (former) | SENIOR VP , RESEARCH AFFAIRS | 2015-2017 | $563,157 | $1,362,157 | 2 |
| Marc S Ginsky (former) | COO/DIRECTOR (UNTIL 07/2021) | 2016-2021 | $0 | $1,344,406 | 2 |
| Hermann Bihler Phd (former) | FELLOW SCIENTIST | 2012-2017 | $200,014 | $856,812 | 1 |
| Elizabeth Joseloff Phd (former) | DIRECTOR, INTEGRATIVE BIOLOGY | 2011-2017 | $191,027 | $644,768 | 1 |
| Feng Liang Phd (former) | SENIOR SCIENTIST | 2014-2017 | $202,247 | $569,587 | 1 |
| Cynthia George Msn Fnp Bc (former) | DIR OF CLINICAL RES RESOURCES | 2010-2013 | $140,932 | $520,940 | 1 |
| Theodore J Torphy Phd (former) | CHAIR | 2010-2017 | $0 | $457,600 | 3 |
| David Mcloughlin (former) | SR. VP OF OPERATIONS | 2015 | $421,928 | $421,928 | 2 |
| Jerome Mahiou Phd (former) | SENIOR SCIENTIST | 2016-2017 | $202,317 | $392,748 | 1 |
| Chris Penland Phd (former) | VICE PRESIDENT OF RESEARCH | 2015 | $315,245 | $315,245 | 2 |
Unpaid officers and directors · 12 people
| Name | Latest title | Years | Organizations |
|---|---|---|---|
| Irena Barisic | TREASURER/DIRECTOR | 2021-2024 | 2 |
| Michael Cavadel | SECRETARY/DIRECTOR | 2022-2024 | 1 |
| Chris Gegelys (former) | SVP, CLO, SEC./DIR. (UNTIL 12/21) | 2019-2021 | 2 |
| Carole B Griego Md (former) | DIRECTOR | 2016-2017 | 3 |
| Eric R Olson Phd (former) | DIRECTOR | 2015-2017 | 3 |
| Steven Shak Md (former) | DIRECTOR | 2010-2017 | 3 |
| Catherine C Mcloud (former) | DIRECTOR | 2010-2017 | 3 |
| Jason M Aryeh (former) | DIRECTOR | 2011-2017 | 1 |
| Jonathan Cohn Md (former) | DIRECTOR | 2010-2017 | 1 |
| D Paul Flessner (former) | DIRECTOR | 2010-2017 | 1 |
| Cathrine C Mcloud (former) | DIRECTOR | 2014 | 1 |
| Christy Shaffer PHD (former) | CHAIR | 2012-2013 | 1 |
People by year
2024 · 3 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| MICHAEL P BOYLE MD | PRESIDENT/DIRECTOR | 1 | $0 | - | $0 | $0 | 2 |
| IRENA BARISIC | TREASURER/DIRECTOR | 1 | $0 | - | $0 | $0 | 2 |
| MICHAEL CAVADEL | SECRETARY/DIRECTOR | 1 | $0 | - | $0 | $0 | 1 |
2023 · 3 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| MICHAEL P BOYLE MD | PRESIDENT/DIRECTOR | 1 | $0 | - | $0 | $0 | 2 |
| IRENA BARISIC | TREASURER/DIRECTOR | 1 | $0 | - | $0 | $0 | 2 |
| MICHAEL CAVADEL | SECRETARY/DIRECTOR | 1 | $0 | - | $0 | $0 | 1 |
2022 · 3 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| MICHAEL P BOYLE MD | PRESIDENT/DIRECTOR | 1 | $0 | - | $0 | $0 | 2 |
| IRENA BARISIC | TREASURER/DIRECTOR | 1 | $0 | - | $0 | $0 | 2 |
| MICHAEL CAVADEL | SECRETARY/DIRECTOR | 1 | $0 | - | $0 | $0 | 1 |
2021 · 5 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| MARC S GINSKY | COO/DIRECTOR (UNTIL 07/2021) | 1 | $0 | - | $0 | $0 | 2 |
| MICHAEL P BOYLE MD | PRESIDENT/DIRECTOR | 1 | $0 | - | $0 | $0 | 2 |
| VERA H TWIGG | TREASURER/DIRECTOR (UNTIL 07/2021) | 1 | $0 | - | $0 | $0 | 3 |
| IRENA BARISIC | TREASURER/DIRECTOR (AS OF 07/2021) | 1 | $0 | - | $0 | $0 | 2 |
| CHRIS GEGELYS | SVP, CLO, SEC./DIR. (UNTIL 12/21) | 1 | $0 | - | $0 | $0 | 2 |
2020 · 3 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| MARC S GINSKY | PRESIDENT/DIRECTOR | 1 | $0 | - | $0 | $0 | 2 |
| VERA H TWIGG | TREASURER/DIRECTOR | 1 | $0 | - | $0 | $0 | 3 |
| CHRIS GEGELYS | SVP, CLO, SECRETARY/DIRECTOR | 1 | $0 | - | $0 | $0 | 2 |
2019 · 3 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| MARC S GINSKY | PRESIDENT/DIRECTOR | 1 | $0 | - | $0 | $0 | 2 |
| VERA H TWIGG | TREASURER/DIRECTOR | 1 | $0 | - | $0 | $0 | 3 |
| CHRIS GEGELYS | SECRETARY/DIRECTOR | 1 | $0 | - | $0 | $0 | 2 |
2017 · 21 people listed · 13 paid, $6.4M · 61 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PRESTON CAMPBELL MD | PRESIDENT & CEO | 18 | $396,810 | $805,765 | $207,207 | $1,409,782 | 3 |
| MARC S GINSKY | EXECUTIVE VP, COO & SECRETARY | 5 | $0 | $663,211 | $226,013 | $889,224 | 2 |
| VERA H TWIGG | EXECUTIVE VP & CFO | 5 | $0 | $524,706 | $127,750 | $652,456 | 3 |
| MICHAEL P BOYLE MD | SR VP, THERAPEUTICS DEV | 55 | $503,945 | $0 | $63,689 | $567,634 | 2 |
| BRUCE C MARSHALL MD | SENIOR VP OF CLINICAL AFFAIRS | 41 | $101,381 | $430,358 | $32,540 | $564,279 | 2 |
| WILLIAM SKACH MD | SENIOR VP , RESEARCH AFFAIRS | 47 | $421,375 | $74,361 | $67,421 | $563,157 | 2 |
| ROBERT J BEALL PHD | FORMER CEO | 0 | $55,949 | $383,094 | $0 | $439,043 | 3 |
| MARTIN MENSE PHD | VP OF DRUG DISCOVERY | 55 | $253,980 | $0 | $66,272 | $320,252 | 1 |
| JEROME MAHIOU PHD | SENIOR SCIENTIST | 55 | $153,337 | $0 | $48,980 | $202,317 | 1 |
| FENG LIANG PHD | SENIOR SCIENTIST | 55 | $154,775 | $0 | $47,472 | $202,247 | 1 |
| HERMANN BIHLER PHD | FELLOW SCIENTIST | 55 | $181,398 | $0 | $18,616 | $200,014 | 1 |
| C RICHARD MATTINGLY | FORMER COO | 0 | $0 | $197,010 | $0 | $197,010 | 3 |
| ELIZABETH JOSELOFF PHD | DIRECTOR, INTEGRATIVE BIOLOGY | 55 | $152,856 | $0 | $38,171 | $191,027 | 1 |
| JASON M ARYEH | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| JONATHAN COHN MD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| CAROLE B GRIEGO MD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| CATHERINE C MCLOUD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| D PAUL FLESSNER | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| STEVEN SHAK MD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| ERIC R OLSON PHD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| THEODORE J TORPHY PHD | CHAIR | 5 | $0 | $0 | $0 | $0 | 3 |
2016 · 21 people listed · 13 paid, $5.6M · 50 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PRESTON CAMPBELL MD | PRESIDENT & CEO | 18 | $304,574 | $616,640 | $255,951 | $1,177,165 | 3 |
| ROBERT J BEALL PHD | FORMER CEO | 0 | $126,109 | $609,460 | $565 | $736,134 | 3 |
| VERA H TWIGG | EXECUTIVE VP & CFO | 5 | $0 | $465,131 | $103,024 | $568,155 | 3 |
| BRUCE C MARSHALL MD | SENIOR VP OF CLINICAL AFFAIRS | 14 | $95,540 | $386,312 | $32,117 | $513,969 | 2 |
| MICHAEL P BOYLE MD | SR VP, THERAPEUTICS DEV | 55 | $430,826 | $0 | $59,921 | $490,747 | 2 |
| MARC S GINSKY | EXECUTIVE VP, COO & SECRETARY | 5 | $0 | $305,540 | $149,642 | $455,182 | 2 |
| WILLIAM SKACH MD | SENIOR VP , RESEARCH AFFAIRS | 47 | $329,757 | $58,192 | $54,167 | $442,116 | 2 |
| MARTIN MENSE PHD | VP OF DRUG DISCOVERY | 55 | $227,166 | $0 | $58,464 | $285,630 | 1 |
| HERMANN BIHLER PHD | FELLOW SCIENTIST | 55 | $175,542 | $0 | $17,866 | $193,408 | 1 |
| FENG LIANG PHD | SENIOR SCIENTIST | 55 | $149,425 | $0 | $42,802 | $192,227 | 1 |
| JEROME MAHIOU PHD | SENIOR SCIENTIST | 55 | $146,742 | $0 | $43,689 | $190,431 | 1 |
| ELIZABETH JOSELOFF PHD | DIRECTOR, INTEGRATIVE BIOLOGY | 55 | $143,303 | $0 | $37,202 | $180,505 | 1 |
| C RICHARD MATTINGLY | FORMER COO | 0 | $0 | $135,951 | $7,251 | $143,202 | 3 |
| JASON M ARYEH | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| JONATHAN COHN MD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| CAROLE B GRIEGO MD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| CATHERINE C MCLOUD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| D PAUL FLESSNER | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| STEVEN SHAK MD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| ERIC R OLSON PHD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| THEODORE J TORPHY PHD | CHAIR | 5 | $0 | $0 | $0 | $0 | 3 |
2015 · 16 people listed · 10 paid, $8.7M · 39 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| C RICHARD MATTINGLY | EXECUTIVE VP & COO | 5 | $0 | $2,718,373 | $68,546 | $2,786,919 | 3 |
| ROBERT BEALL PHD | PRESIDENT & CEO (UNTIL 9/30) | 20 | $779,230 | $1,575,208 | $108,896 | $2,463,334 | 3 |
| PRESTON CAMPBELL MD | PRESIDENT & CEO (AS OF 10/1) | 20 | $245,571 | $496,970 | $212,541 | $955,082 | 3 |
| VERA H TWIGG | EXECUTIVE VP, CFO & SECRETARY | 5 | $0 | $499,672 | $107,968 | $607,640 | 3 |
| BRUCE MARSHALL MD | SENIOR VP OF CLINICAL AFFAIRS | 35 | $314,135 | $129,754 | $32,060 | $475,949 | 2 |
| DAVID MCLOUGHLIN | SR. VP OF OPERATIONS | 35 | $108,101 | $253,478 | $60,349 | $421,928 | 2 |
| WILLIAM SKACH MD | SENIOR VP OF RESEARCH AFFAIRS | 38 | $233,504 | $74,887 | $48,493 | $356,884 | 2 |
| CHRIS PENLAND PHD | VICE PRESIDENT OF RESEARCH | 23 | $122,428 | $139,512 | $53,305 | $315,245 | 2 |
| MICHAEL P BOYLE MD | SENIOR VP OF THERAPEUTICS DEV. | 50 | $268,355 | $0 | $14,595 | $282,950 | 2 |
| THEODORE J TORPHY PHD | CHAIR | 5 | $13,200 | $0 | $0 | $13,200 | 3 |
| JASON M ARYEH | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| JONATHAN COHN MD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| CATHERINE C MCLOUD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| D PAUL FLESSNER | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| STEVEN SHAK MD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| ERIC R OLSON PHD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
2014 · 14 people listed · 9 paid, $4.7M · 29 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| ROBERT J BEALL PHD | PRESIDENT AND CEO | 20 | $323,554 | $650,137 | $224,033 | $1,197,724 | 3 |
| C RICHARD MATTINGLY | EXEC VP AND COO | 5 | $0 | $645,755 | $189,266 | $835,021 | 3 |
| PRESTON W CAMPBELL MD | EXEC VP OF MEDICAL AFFAIRS | 20 | $213,925 | $432,875 | $174,822 | $821,622 | 3 |
| VERA H TWIGG | EXEC VP & CFO | 5 | $0 | $461,903 | $85,449 | $547,352 | 3 |
| BRUCE MARSHALL MD | SR. VP OF CLINICAL AFFAIRS | 50 | $407,821 | $0 | $32,120 | $439,941 | 2 |
| MARTIN MENSE PHD | PRINCIPAL SCIENTIST DRUG DISC | 50 | $209,016 | $0 | $46,258 | $255,274 | 1 |
| THEODORE TORPHY PHD | HEAD OF RESEARCH STRATEGY | 16 | $228,800 | $0 | $0 | $228,800 | 3 |
| FENG LIANG PHD | SENIOR SCIENTIST | 50 | $137,177 | $0 | $37,936 | $175,113 | 1 |
| HERMANN BIHLER PHD | SENIOR SCIENTIST | 50 | $151,229 | $0 | $13,417 | $164,646 | 1 |
| JASON M ARYEH | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| JONATHAN COHN MD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| CATHRINE C MCLOUD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| D PAUL FLESSNER | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| STEVEN SHAK MD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
2013 · 15 people listed · 9 paid, $5.5M · 29 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Preston W Campbell MD | Exec VP of Medical Affairs | 20 | $394,239 | $796,908 | $202,914 | $1,394,061 | 3 |
| Robert J Beall PhD | President & CEO | 20 | $364,564 | $737,313 | $261,787 | $1,363,664 | 3 |
| C Richard Mattingly | Exec VP, COO AND SECRETARY | 5 | $0 | $752,470 | $220,754 | $973,224 | 3 |
| Vera H Twigg | EXEC VP and CFO | 5 | $0 | $486,851 | $91,349 | $578,200 | 3 |
| BRUCE MARSHALL MD | VP OF CLINICAL AFFAIRS | 50 | $379,325 | $0 | $31,552 | $410,877 | 2 |
| MARTIN MENSE | PRINCIPAL SCIENTIST DRUG DISC | 50 | $185,473 | $0 | $42,920 | $228,393 | 1 |
| THEODORE J TORPHY PHD | HEAD OF RESEARCH STRATEGY | 16 | $215,600 | $0 | $0 | $215,600 | 3 |
| Hermann Bihler PHD | Senior Scientist | 50 | $146,553 | $0 | $12,989 | $159,542 | 1 |
| CYNTHIA GEORGE MSN FNP BC | DIR OF CLINICAL RES RESOURCES | 50 | $127,454 | $0 | $13,478 | $140,932 | 1 |
| Christy Shaffer PHD | CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| JASON M ARYEH | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| STEVEN SHAK MD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| CATHERINE C MCLOUD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| JONATHAN COHN MD | director | 3 | $0 | $0 | $0 | $0 | 1 |
| D Paul Flessner | Director | 3 | $0 | $0 | $0 | $0 | 1 |
2012 · 15 people listed · 9 paid, $3.8M · 20 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| ROBERT J BEALL PHD | PRESIDENT & CEO | 20 | $329,867 | $669,561 | $112,672 | $1,112,100 | 3 |
| C Richard Mattingly | EXEC VP, COO & SECRETARY | 5 | $0 | $466,050 | $168,894 | $634,944 | 3 |
| Preston W Campbell MD | Exec VP of Medical Affairs | 20 | $151,900 | $301,432 | $155,629 | $608,961 | 3 |
| Vera H Twigg | Sr. VP and CFO | 5 | $0 | $335,965 | $77,783 | $413,748 | 3 |
| BRUCE MARSHALL MD | VP OF CLINICAL AFFAIRS | 50 | $340,444 | $0 | $31,596 | $372,040 | 2 |
| MARTIN MENSE | PRINCIPAL SCIENTIST DRUG DISC | 50 | $160,605 | $0 | $45,605 | $206,210 | 1 |
| ELIZABETH JOSELOFF PHD | INTEGRATIVE BIOLOGY DIRECTOR | 50 | $110,865 | $0 | $31,342 | $142,207 | 1 |
| HERMANN BIHLER PHD | SENIOR SCIENTIST | 50 | $128,056 | $0 | $11,146 | $139,202 | 1 |
| CYNTHIA GEORGE MSN FNP BC | DIR OF CLINICAL RES RESOURCES | 50 | $115,369 | $0 | $14,968 | $130,337 | 1 |
| JASON M ARYEH | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| STEVEN SHAK MD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| CATHERINE C MCLOUD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| JONATHAN COHN MD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| D PAUL FLESSNER | director | 3 | $0 | $0 | $0 | $0 | 1 |
| CHRISTY SHAFFER PHD | TRUSTEE | 5 | $0 | $0 | $0 | $0 | 1 |
2011 · 14 people listed · 8 paid, $3.8M · 12 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Robert J Beall PhD | President & CEO | 18 | $234,488 | $477,065 | $362,172 | $1,073,725 | 3 |
| C Richard Mattingly | Exec VP and COO | 5 | $0 | $475,320 | $284,459 | $759,779 | 3 |
| Preston W Campbell MD | Exec VP of Medical Affairs | 18 | $156,360 | $310,778 | $268,893 | $736,031 | 3 |
| Vera H Twigg | Sr. VP and CFO | 5 | $0 | $325,228 | $119,955 | $445,183 | 3 |
| BRUCE MARSHALL MD | VP OF CLINICAL AFFAIRS | 50 | $339,453 | $0 | $26,029 | $365,482 | 2 |
| MARTIN MENSE | PRINCIPAL SCIENTIST DRUG DISC | 50 | $161,275 | $0 | $43,814 | $205,089 | 1 |
| ELIZABETH JOSELOFF PHD | INTEGRATIVE BIOLOGY DIRECTOR | 50 | $103,125 | $0 | $27,904 | $131,029 | 1 |
| CYNTHIA GEORGE MSN FNP BC | DIR OF CLINICAL RES RESOURCES | 50 | $111,524 | $0 | $15,333 | $126,857 | 1 |
| Theodore J Torphy PhD | CHAIRMAN | 5 | $0 | $0 | $0 | $0 | 3 |
| STEVEN SHAK MD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| CATHERINE C MCLOUD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| JONATHAN COHN MD | director | 3 | $0 | $0 | $0 | $0 | 1 |
| JASON M ARYEH | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| D PAUL FLESSNER | director | 3 | $0 | $0 | $0 | $0 | 1 |
2010 · 12 people listed · 7 paid, $3.0M · 11 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Robert J Beall PhD | President & CEO | 18 | $198,548 | $403,094 | $239,406 | $841,048 | 3 |
| C Richard Mattingly | Exec VP and COO | 5 | $0 | $427,271 | $172,432 | $599,703 | 3 |
| Preston W Campbell MD | Exec VP of Medical Affairs | 18 | $140,934 | $278,976 | $157,898 | $577,808 | 3 |
| Vera H Twigg | Sr. VP and CFO | 5 | $0 | $273,807 | $82,369 | $356,176 | 3 |
| BRUCE MARSHALL MD | VP OF CLINICAL AFFAIRS | 50 | $270,515 | $0 | $25,128 | $295,643 | 2 |
| MARTIN MENSE | PRINCIPAL SCIENTIST DRUG DISC | 50 | $132,787 | $0 | $28,412 | $161,199 | 1 |
| CYNTHIA GEORGE MSN FNP BC | DIR OF CLINICAL RES RESOURCES | 50 | $107,372 | $0 | $15,442 | $122,814 | 1 |
| Catherine C McLoud | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| D PAUL FLESSNER | director | 3 | $0 | $0 | $0 | $0 | 1 |
| JONATHAN COHN MD | director | 3 | $0 | $0 | $0 | $0 | 1 |
| Steven Shak MD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| Theodore J Torphy PhD | CHAIRMAN | 3 | $0 | $0 | $0 | $0 | 3 |
Highest-paid independent contractors
2017 · 5 contractors · $28.0M
| Name | Location | Service | Paid |
|---|---|---|---|
| VERTEX PHARMACEUTICALS INC | BOSTON, MA | CONTRACTED RESEARCH | $12,500,000 |
| GENZYME CORPORATION | FRAMINGHAM, MA | CONTRACTED RESEARCH | $9,330,280 |
| PFIZER INC | CAMBRIDGE, MA | CONTRACTED RESEARCH | $2,120,889 |
| CELTAXSYS INC | ATLANTA, GA | CONTRACTED RESEARCH | $2,073,333 |
| SPYRYX BIOSCIENCES INC | DURHAM, NC | CONTRACTED RESEARCH | $2,023,217 |
2016 · 5 contractors · $100.5M
| Name | Location | Service | Paid |
|---|---|---|---|
| VERTEX PHARMACEUTICALS INC | BOSTON, MA | CONTRACTED RESEARCH | $75,000,000 |
| PFIZER INC | CAMBRIDGE, MA | CONTRACTED RESEARCH | $12,034,880 |
| GENZYME CORPORATION | FRAMINGHAM, MA | CONTRACTED RESEARCH | $6,545,460 |
| ALGIPHARMA AS | SANOVINA, 0 | CONTRACTED RESEARCH | $5,000,000 |
| POLYPHOR LTD | ZURICH, 0 | CONTRACTED RESEARCH | $1,900,000 |
2015 · 5 contractors · $32.0M
| Name | Location | Service | Paid |
|---|---|---|---|
| PFIZER INC | CAMBRIDGE, MA | CONTRACTED RESEARCH | $13,724,392 |
| GENZYME CORPORATION | FRAMINGHAM, MA | CONTRACTED RESEARCH | $5,856,680 |
| SHIRE ORPHAN RARE DISEASE GMBH | ZUG, 0 | CONTRACTED RESEARCH | $4,987,500 |
| ALGIPHARMA AS | SANOVINA, 0 | CONTRACTED RESEARCH | $4,800,000 |
| ANTHERA PHARMACEUTICALS | HAYWARD, CA | CONTRACTED RESEARCH | $2,638,627 |
2014 · 5 contractors · $56.3M
| Name | Location | Service | Paid |
|---|---|---|---|
| MORGAN STANLEY CO LLC | BROOKLYN, NY | TRANSACTION ADVISORY | $24,773,304 |
| PFIZER INC | CAMBRIDGE, MA | contracted research | $17,637,626 |
| GENZYME CORPORATION | FRAMINGHAM, MA | CONTRACTED RESEARCH | $5,250,029 |
| PARION SCIENCES INC | DURHAM, SC | CONTRACTED RESEARCH | $4,703,246 |
| VERTEX PHARMACEUTICALS LLC | BOSTON, MA | CONTRACTED RESEARCH | $3,928,582 |
2013 · 5 contractors · $36.6M
| Name | Location | Service | Paid |
|---|---|---|---|
| VERTEX PHARMACEUTICALS LLC | CONTRACTED RESEARCH | $20,281,486 | |
| PFIZER INC | contracted research | $10,449,569 | |
| PROTEOSTASIS THERAPEUTICS INC | CONTRACTED RESEARCH | $2,070,083 | |
| CHANTEST INC | RESEARCH SUPPORT | $1,950,000 | |
| MORGAN STANLEY CO LLC | transaction advisory | $1,879,333 |
2012 · 5 contractors · $25.5M
| Name | Location | Service | Paid |
|---|---|---|---|
| VERTEX PHARMACEUTICALS LLC | CAMBRIDGE, MA | CONTRACTED RESEARCH | $17,959,575 |
| MORGAN STANLEY CO LLC | NEW YORK, NY | TRANSACTION ADVISORY | $3,017,175 |
| SEATTLE CHILDREN'S RESEARCH INSTITU | SEATTLE, WA | CLINICAL RESEARCH | $1,947,124 |
| CHAN TEST INC | CLEVELAND, OH | RESEARCH SUPPORT | $1,625,000 |
| PROTEOSTASIS THERAPEUTICS INC | CAMBRIDGE, MA | CONTRACTED RESEARCH | $959,411 |
2011 · 5 contractors · $15.3M
| Name | Location | Service | Paid |
|---|---|---|---|
| VERTEX PHARMACEUTICALS LLC | CAMBRIDGE, MA | CONTRACTED RESEARCH | $9,222,356 |
| PFIZER INC | CAMBRIDGE, MA | CONTRACTED RESEARCH | $3,125,718 |
| CHANTEST INC | CLEVELAND, OH | RESEARCH SUPPORT | $2,275,000 |
| OUTCOME SCIENCES INC | BOSTON, MA | CLINICAL RESEARCH | $433,655 |
| SCHANER LUBITZ PLLC | BETHESDA, MD | LEGAL SERVICES | $261,943 |
2010 · 5 contractors · $8.6M
| Name | Location | Service | Paid |
|---|---|---|---|
| FOLDRX PHARMACEUTICALS INC | CAMBRIDGE, MA | THERAPEUTICS DISC | $4,003,786 |
| CHANTEST INC | CLEVELAND, OH | THERAPEUTICS DISC | $2,275,000 |
| ALBANY MEDICAL RESEARCH INC | ALBANY, NY | THERAPEUTICS DISC | $1,890,694 |
| NAT'L DISEASE RESEARCH INTERCHANGE | PHILADELPHIA, PA | CLINICAL MATERIAL | $237,000 |
| PROMEDDX LLC | NORTON, MA | TESTING SERVICES | $197,654 |
Who the money went to
Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.
2017 · 186 grants to organizations · $61.8M
Listed grants add up to $61,754,672; the return's “grants paid” expense line says $68,089,482. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2016 · 184 grants to organizations · $60.4M
Listed grants add up to $60,368,395; the return's “grants paid” expense line says $68,673,186. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2015 · 182 grants to organizations · $55.7M
Listed grants add up to $55,709,808; the return's “grants paid” expense line says $62,018,896. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2014 · 179 grants to organizations · $3.23B
2013 · 129 grants to organizations · $207.4M
Listed grants add up to $207,412,575; the return's “grants paid” expense line says $210,196,981. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2012 · 129 grants to organizations · $113.9M
Listed grants add up to $113,872,509; the return's “grants paid” expense line says $116,651,304. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2011 · 128 grants to organizations · $26.1M
Listed grants add up to $26,105,267; the return's “grants paid” expense line says $27,991,951. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2010 · 105 grants to organizations · $26.5M
Listed grants add up to $26,525,599; the return's “grants paid” expense line says $29,412,613. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Grants received from DAF sponsors and foundations
15 grants to this organization reported by other filers, $390,672,112 in all. Schedule I grants are matched by the EIN the grantor reported; 990-PF grants list no EIN, so those are matched by exact name and state. Grantor type: private foundation (990-PF), DAF sponsor (answered yes to maintaining donor-advised funds that year), or other public charity. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
| Year | Grantor | Grantor type | Amount | Purpose | Matched by | Filing |
|---|---|---|---|---|---|---|
| 2022 | AMICA COMPANIES FOUNDATION | Private foundation | $61 | GENERAL PURPOSE | name and state | view |
| 2020 | BJS RESTAURANTS FOUNDATION INC | Public charity | $10,000 | Sterlings Charity | ein | view |
| 2020 | AMICA COMPANIES FOUNDATION | Private foundation | $175 | GENERAL PURPOSE | name and state | view |
| 2019 | DARRYL WORLEY FOUNDATION INC | Public charity | $1,000 | Utility assistance for the needy | ein | view |
| 2018 | FORGOOD INC | DAF sponsor | $55,550 | Unrestricted | ein | view |
| 2018 | DANIEL A AND SHEILA M SAKLAD | Private foundation | $100 | TO SUPPORT THE RESEARCH OF CYSTIC FIBROSIS. | name and state | view |
| 2017 | CYSTIC FIBROSIS FOUNDATION | Public charity | $115,564,401 | GENERAL SUPPORT | ein | view |
| 2017 | FORGOOD INC | DAF sponsor | $23,476 | Unrestricted | ein | view |
| 2016 | CYSTIC FIBROSIS FOUNDATION | Public charity | $138,829,706 | GENERAL SUPPORT | ein | view |
| 2015 | CYSTIC FIBROSIS FOUNDATION | Public charity | $86,230,120 | GENERAL SUPPORT | ein | view |
| 2012 | DARRYL WORLEY FOUNDATION INC | Public charity | $5,000 | Medical research | ein | view |
| 2011 | CYSTIC FIBROSIS FOUNDATION | Public charity | $49,932,523 | GENERAL SUPPORT | ein | view |
| 2011 | DARRYL WORLEY FOUNDATION INC | Public charity | $5,000 | Medical research | ein | view |
| 2011 | SOUTHLAND TITLE CHILDRENS FOUNDATION | Public charity | $5,000 | TO BENEFIT CHILDREN'S NEEDS IN SPECIAL EDUCATION & MEDICAL SERVICES. | ein | view |
| 2010 | CHILDRENS HEALTH CARE ASSOCIATES INC | Public charity | $10,000 | SPONSOR | ein | view |
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2024 · Form 990EZ | ||||||||
| $0 | $0 | $0 | $0 | - | - | - | - | - |
| 2023 · Form 990EZ | ||||||||
| $0 | $0 | $0 | $0 | - | - | - | - | - |
| 2022 · Form 990EZ | ||||||||
| $0 | $0 | $0 | $0 | - | - | - | - | - |
| 2021 · Form 990EZ | ||||||||
| $0 | $0 | $0 | $0 | - | - | - | - | - |
| 2020 · Form 990EZ | ||||||||
| $0 | $0 | $0 | $0 | - | - | - | - | - |
| 2019 · Form 990EZ | ||||||||
| $0 | $0 | $0 | $0 | - | - | - | - | - |
| 2017 · Form 990 | ||||||||
| $125,014,560 | $125,014,560 | $104,967,871 | $0 | $115,564,401 | $127,538 | $1,601,819 | 61 | 0 |
| 2016 · Form 990 | ||||||||
| $192,669,402 | $192,669,402 | $102,927,707 | $0 | $138,829,706 | $51,523,824 | $1,339,905 | 50 | 0 |
| 2015 · Form 990 | ||||||||
| $124,281,169 | $124,281,169 | $85,794,978 | $0 | $86,230,120 | $120,217 | $1,109,667 | 39 | 0 |
| 2014 · Form 990 | ||||||||
| $3,274,880,997 | $3,274,880,997 | $63,052,423 | $0 | $0 | $3,274,846,429 | $537,479 | 29 | 0 |
| 2013 · Form 990 | ||||||||
| $257,414,279 | $257,414,279 | $55,984,395 | $0 | $0 | $223,471 | $880,483 | 29 | 0 |
| 2012 · Form 990 | ||||||||
| $156,684,773 | $156,684,773 | $41,843,226 | $0 | $0 | $192,984 | $986,063 | 20 | 0 |
| 2011 · Form 990 | ||||||||
| $100,420,758 | $50,488,235 | $28,133,165 | $0 | $99,865,046 | $551,511 | $390,848 | 12 | 0 |
| 2010 · Form 990 | ||||||||
| $54,161,930 | $54,161,930 | $67,639,625 | $0 | $0 | $400,446 | $733,313 | 11 | 0 |
Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2017 · Form 990 · $125,014,560 spent · pay $10,480,531 · grants $68,089,482 · events $355,067
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $61,754,673 | $61,754,673 | - | - | 49.4% | |
| Other (as described) | CONTRACTED RESEARCH | $38,744,834 | $38,744,834 | - | - | 31.0% |
| Other salaries and wages | $6,909,823 | $5,636,735 | $1,273,088 | - | 5.5% | |
| Grants outside the US | $6,320,809 | $6,320,809 | - | - | 5.1% | |
| Office expenses | $1,735,887 | $1,583,992 | $151,895 | - | 1.4% | |
| Occupancy | $1,686,004 | $1,549,862 | $136,142 | - | 1.3% | |
| Pay: officers, directors, trustees, key employees | $1,601,819 | $1,306,695 | $295,124 | - | 1.3% | |
| Depreciation and depletion | $931,056 | $866,681 | $64,375 | - | 0.7% | |
| Other employee benefits | $926,714 | $755,972 | $170,742 | - | 0.7% | |
| Information technology | $840,112 | $652,361 | $187,751 | - | 0.7% | |
| Fees: other services | $814,050 | $745,972 | $68,078 | - | 0.7% | |
| Fees: legal | $501,549 | $501,549 | - | - | 0.4% | |
| Payroll taxes | $497,161 | $395,037 | $102,124 | - | 0.4% | |
| Pension plan contributions | $489,065 | $398,958 | $90,107 | - | 0.4% | |
| Conferences, conventions and meetings | $355,067 | $289,121 | $65,946 | - | 0.3% | |
| Other (as described) | MISCELLANEOUS | $334,669 | $265,639 | $69,030 | - | 0.3% |
| Travel | $331,933 | $288,264 | $43,669 | - | 0.3% | |
| Insurance | $169,386 | $169,386 | - | - | 0.1% | |
| Pay: disqualified persons | $55,949 | $45,641 | $10,308 | - | 0.0% | |
| Grants to US individuals | $14,000 | $14,000 | - | - | 0.0% | |
| Total | $125,014,560 | 100% |
2016 · Form 990 · $192,669,402 spent · pay $8,094,213 · grants $68,673,186 · events $271,998
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other (as described) | CONTRACTED RESEARCH | $108,283,358 | $108,283,358 | - | - | 56.2% |
| Grants to US organizations and governments | $60,368,402 | $60,368,402 | - | - | 31.3% | |
| Grants outside the US | $8,297,784 | $8,297,784 | - | - | 4.3% | |
| Other salaries and wages | $5,283,988 | $4,697,153 | $586,835 | - | 2.7% | |
| Occupancy | $1,687,358 | $1,629,514 | $57,844 | - | 0.9% | |
| Pay: officers, directors, trustees, key employees | $1,339,905 | $1,191,096 | $148,809 | - | 0.7% | |
| Office expenses | $1,147,965 | $1,059,857 | $88,108 | - | 0.6% | |
| Fees: legal | $1,014,415 | $1,014,415 | - | - | 0.5% | |
| Information technology | $944,175 | $811,304 | $132,871 | - | 0.5% | |
| Depreciation and depletion | $825,318 | $801,705 | $23,613 | - | 0.4% | |
| Other employee benefits | $630,752 | $560,701 | $70,051 | - | 0.3% | |
| Payroll taxes | $434,104 | $378,490 | $55,614 | - | 0.2% | |
| Other (as described) | MISCELLANEOUS | $341,500 | $325,099 | $16,401 | $0 | 0.2% |
| Travel | $335,419 | $314,886 | $20,533 | - | 0.2% | |
| Other (as described) | MEDICAL ADVISORY FEES | $321,495 | $321,495 | - | - | 0.2% |
| Other (as described) | CHEMISTRY | $321,143 | $321,143 | - | - | 0.2% |
| Pension plan contributions | $279,355 | $248,330 | $31,025 | - | 0.1% | |
| Conferences, conventions and meetings | $271,998 | $246,372 | $25,626 | - | 0.1% | |
| Insurance | $221,023 | $221,023 | - | - | 0.1% | |
| Fees: other services | $186,836 | $109,144 | $77,692 | - | 0.1% | |
| Pay: disqualified persons | $126,109 | $112,103 | $14,006 | - | 0.1% | |
| Grants to US individuals | $7,000 | $7,000 | - | - | 0.0% | |
| Total | $192,669,402 | 100% |
2015 · Form 990 · $124,281,169 spent · pay $9,002,193 · grants $62,018,896 · events $439,323
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $55,715,621 | $55,715,621 | - | - | 44.8% | |
| Other (as described) | CONTRACTED RESEARCH | $46,960,119 | $46,960,119 | - | - | 37.8% |
| Other salaries and wages | $6,740,789 | $6,152,165 | $588,624 | - | 5.4% | |
| Grants outside the US | $6,296,275 | $6,296,275 | - | - | 5.1% | |
| Pay: officers, directors, trustees, key employees | $1,109,667 | $1,012,768 | $96,899 | - | 0.9% | |
| Office expenses | $1,091,426 | $975,603 | $115,823 | - | 0.9% | |
| Occupancy | $1,051,598 | $995,202 | $56,396 | - | 0.8% | |
| Information technology | $882,625 | $782,729 | $99,896 | - | 0.7% | |
| Fees: legal | $604,718 | $604,718 | - | - | 0.5% | |
| Other (as described) | MEDICAL ADVISORY FEES | $497,387 | $497,387 | - | - | 0.4% |
| Depreciation and depletion | $466,409 | $450,668 | $15,741 | - | 0.4% | |
| Payroll taxes | $459,332 | $413,720 | $45,612 | - | 0.4% | |
| Conferences, conventions and meetings | $439,323 | $416,520 | $22,803 | - | 0.4% | |
| Other employee benefits | $423,586 | $386,597 | $36,989 | - | 0.3% | |
| Other (as described) | MISCELLANEOUS | $387,179 | $362,847 | $24,332 | - | 0.3% |
| Insurance | $324,275 | $324,275 | - | - | 0.3% | |
| Fees: other services | $276,438 | $223,242 | $53,196 | - | 0.2% | |
| Travel | $274,593 | $257,848 | $16,745 | - | 0.2% | |
| Pension plan contributions | $268,819 | $245,345 | $23,474 | - | 0.2% | |
| Grants to US individuals | $7,000 | $7,000 | - | - | 0.0% | |
| Fees: accounting | $3,990 | - | $3,990 | - | 0.0% | |
| Total | $124,281,169 | 100% |
2014 · Form 990 · $3,274,880,997 spent · pay $6,801,253 · grants $3,231,024,082 · events $174,600
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $3,227,374,435 | $3,227,374,435 | - | - | 98.5% | |
| Other (as described) | CONTRACTED RESEARCH | $32,071,504 | $32,071,504 | $0 | $0 | 1.0% |
| Other salaries and wages | $5,184,553 | $4,676,536 | $508,017 | $0 | 0.2% | |
| Grants outside the US | $3,649,647 | $3,649,647 | - | - | 0.1% | |
| Office expenses | $1,173,448 | $1,084,858 | $88,590 | $0 | 0.0% | |
| Information technology | $817,658 | $756,099 | $61,559 | $0 | 0.0% | |
| Occupancy | $813,699 | $758,019 | $55,680 | $0 | 0.0% | |
| Pay: officers, directors, trustees, key employees | $537,479 | $484,813 | $52,666 | $0 | 0.0% | |
| Fees: legal | $425,730 | $425,730 | $0 | $0 | 0.0% | |
| Depreciation and depletion | $422,094 | $408,339 | $13,755 | $0 | 0.0% | |
| Payroll taxes | $376,282 | $335,658 | $40,624 | - | 0.0% | |
| Pension plan contributions | $371,702 | $335,280 | $36,422 | $0 | 0.0% | |
| Other (as described) | MEDICAL ADVISORY FEES | $349,644 | $349,644 | $0 | $0 | 0.0% |
| Other employee benefits | $331,237 | $298,781 | $32,456 | $0 | 0.0% | |
| Travel | $236,645 | $220,818 | $15,827 | $0 | 0.0% | |
| Insurance | $192,740 | $192,740 | $0 | $0 | 0.0% | |
| Fees: other services | $181,207 | $181,207 | $0 | $0 | 0.0% | |
| Conferences, conventions and meetings | $174,600 | $164,518 | $10,082 | $0 | 0.0% | |
| Other (as described) | CHEMISTRY | $110,478 | $110,478 | $0 | $0 | 0.0% |
| Other (as described) | MISCELLANEOUS | $82,365 | $82,365 | $0 | $0 | 0.0% |
| Fees: accounting | $3,850 | $0 | $3,850 | $0 | 0.0% | |
| Total | $3,274,880,997 | 100% |
2013 · Form 990 · $257,414,279 spent · pay $4,951,732 · grants $210,196,981 · events $89,110
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $207,414,076 | $207,414,076 | - | - | 80.6% | |
| Other (as described) | CONTRACTED RESEARCH | $38,740,581 | $38,740,581 | - | - | 15.0% |
| Other salaries and wages | $3,570,839 | $3,183,340 | $387,499 | - | 1.4% | |
| Grants outside the US | $2,782,905 | $2,782,905 | - | - | 1.1% | |
| Pay: officers, directors, trustees, key employees | $880,483 | $784,935 | $95,548 | - | 0.3% | |
| Information technology | $642,349 | $595,409 | $46,940 | - | 0.2% | |
| Office expenses | $641,423 | $605,065 | $36,358 | - | 0.2% | |
| Occupancy | $570,661 | $521,691 | $48,970 | - | 0.2% | |
| Other (as described) | MEDICAL ADVISORY FEES | $360,989 | $360,989 | - | - | 0.1% |
| Payroll taxes | $274,313 | $242,412 | $31,901 | - | 0.1% | |
| Depreciation and depletion | $274,164 | $265,437 | $8,727 | - | 0.1% | |
| Fees: legal | $256,886 | $256,886 | - | - | 0.1% | |
| Pension plan contributions | $185,148 | $165,056 | $20,092 | - | 0.1% | |
| Other (as described) | MISCELLANEOUS | $162,111 | $155,524 | $6,587 | $0 | 0.1% |
| Other (as described) | CHEMISTRY | $151,560 | $151,560 | - | - | 0.1% |
| Travel | $149,288 | $139,506 | $9,782 | - | 0.1% | |
| Insurance | $139,624 | $139,624 | - | - | 0.1% | |
| Conferences, conventions and meetings | $89,110 | $83,897 | $5,213 | - | 0.0% | |
| Fees: other services | $82,970 | $55,962 | $27,008 | - | 0.0% | |
| Other employee benefits | $40,949 | $36,505 | $4,444 | - | 0.0% | |
| Fees: accounting | $3,850 | - | $3,850 | - | 0.0% | |
| Total | $257,414,279 | 100% |
2012 · Form 990 · $156,684,773 spent · pay $3,695,781 · grants $116,651,304 · events $73,714
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $113,876,673 | $113,876,673 | - | - | 72.7% | |
| Other (as described) | CONTRACTED RESEARCH | $33,719,501 | $33,719,501 | $0 | $0 | 21.5% |
| Grants outside the US | $2,774,631 | $2,774,631 | - | - | 1.8% | |
| Other salaries and wages | $2,266,818 | $2,038,208 | $228,610 | $0 | 1.4% | |
| Pay: officers, directors, trustees, key employees | $986,063 | $886,618 | $99,445 | $0 | 0.6% | |
| Occupancy | $525,733 | $493,579 | $32,154 | $0 | 0.3% | |
| Information technology | $400,556 | $373,768 | $26,788 | $0 | 0.3% | |
| Office expenses | $376,309 | $350,165 | $26,144 | $0 | 0.2% | |
| Other (as described) | CHEMISTRY | $331,542 | $331,542 | $0 | $0 | 0.2% |
| Other (as described) | MISCELLANEOUS | $246,357 | $242,678 | $3,679 | $0 | 0.2% |
| Fees: legal | $213,151 | $213,151 | $0 | $0 | 0.1% | |
| Payroll taxes | $195,846 | $175,733 | $20,113 | $0 | 0.1% | |
| Depreciation and depletion | $150,428 | $145,576 | $4,852 | $0 | 0.1% | |
| Insurance | $130,393 | $130,393 | $0 | $0 | 0.1% | |
| Other employee benefits | $123,896 | $111,401 | $12,495 | $0 | 0.1% | |
| Pension plan contributions | $123,158 | $110,737 | $12,421 | $0 | 0.1% | |
| Travel | $116,097 | $108,814 | $7,283 | $0 | 0.1% | |
| Conferences, conventions and meetings | $73,714 | $71,628 | $2,086 | $0 | 0.0% | |
| Fees: other services | $47,818 | $42,295 | $5,523 | $0 | 0.0% | |
| Fees: accounting | $6,089 | $0 | $6,089 | $0 | 0.0% | |
| Total | $156,684,773 | 100% |
2011 · Form 990 · $50,488,235 spent · pay $3,008,405 · grants $27,991,951 · events $57,270
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $26,106,741 | $26,106,741 | - | - | 51.7% | |
| Other (as described) | CONTRACTED RESEARCH | $17,916,553 | $17,916,553 | $0 | $0 | 35.5% |
| Other salaries and wages | $2,150,172 | $1,954,623 | $195,549 | $0 | 4.3% | |
| Grants outside the US | $1,881,811 | $1,881,811 | - | - | 3.7% | |
| Pay: officers, directors, trustees, key employees | $390,848 | $355,302 | $35,546 | $0 | 0.8% | |
| Information technology | $319,734 | $303,417 | $16,317 | $0 | 0.6% | |
| Fees: legal | $261,943 | $261,943 | $0 | $0 | 0.5% | |
| Other (as described) | CHEMISTRY | $252,000 | $252,000 | $0 | $0 | 0.5% |
| Other employee benefits | $210,588 | $191,436 | $19,152 | $0 | 0.4% | |
| Occupancy | $204,557 | $183,530 | $21,027 | $0 | 0.4% | |
| Office expenses | $180,560 | $163,062 | $17,498 | $0 | 0.4% | |
| Payroll taxes | $143,800 | $129,760 | $14,040 | $0 | 0.3% | |
| Insurance | $141,709 | $141,709 | $0 | $0 | 0.3% | |
| Pension plan contributions | $112,997 | $102,720 | $10,277 | $0 | 0.2% | |
| Travel | $78,786 | $74,058 | $4,728 | $0 | 0.2% | |
| Depreciation and depletion | $63,346 | $60,621 | $2,725 | $0 | 0.1% | |
| Conferences, conventions and meetings | $57,270 | $56,020 | $1,250 | $0 | 0.1% | |
| Fees: accounting | $4,790 | $0 | $4,790 | $0 | 0.0% | |
| Fees: other services | $3,705 | $0 | $3,705 | $0 | 0.0% | |
| Grants to US individuals | $3,399 | $3,399 | - | - | 0.0% | |
| Other (as described) | MISCELLANEOUS | $2,926 | $1,197 | $1,729 | - | 0.0% |
| Total | $50,488,235 | 100% |
2010 · Form 990 · $54,161,930 spent · pay $2,842,375 · grants $29,412,613 · events $54,001
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $26,529,182 | $26,529,182 | - | - | 49.0% | |
| Payments to affiliates | $11,352,615 | $11,352,615 | $0 | $0 | 21.0% | |
| Other (as described) | CONTRACTED RESEARCH | $9,260,950 | $9,260,950 | $0 | $0 | 17.1% |
| Grants outside the US | $2,883,431 | $2,883,431 | - | - | 5.3% | |
| Other salaries and wages | $1,804,180 | $1,655,661 | $148,519 | $0 | 3.3% | |
| Pay: officers, directors, trustees, key employees | $733,313 | $672,948 | $60,365 | $0 | 1.4% | |
| Information technology | $242,641 | $232,009 | $10,632 | $0 | 0.4% | |
| Occupancy | $200,413 | $180,608 | $19,805 | $0 | 0.4% | |
| Fees: legal | $184,806 | $184,806 | $0 | $0 | 0.3% | |
| Fees: other services | $171,036 | $167,729 | $3,307 | $0 | 0.3% | |
| Insurance | $150,316 | $150,316 | $0 | $0 | 0.3% | |
| Payroll taxes | $130,823 | $119,689 | $11,134 | $0 | 0.2% | |
| Travel | $125,194 | $121,253 | $3,941 | $0 | 0.2% | |
| Other employee benefits | $108,038 | $99,144 | $8,894 | $0 | 0.2% | |
| Office expenses | $83,711 | $69,445 | $14,266 | $0 | 0.2% | |
| Depreciation and depletion | $71,899 | $69,463 | $2,436 | $0 | 0.1% | |
| Pension plan contributions | $66,021 | $60,586 | $5,435 | $0 | 0.1% | |
| Conferences, conventions and meetings | $54,001 | $52,899 | $1,102 | $0 | 0.1% | |
| Fees: accounting | $4,790 | $0 | $4,790 | $0 | 0.0% | |
| Other (as described) | TRAINING | $4,570 | $2,431 | $2,139 | $0 | 0.0% |
| Total | $54,161,930 | 100% |