HHT FOUNDATION INTERNATIONAL INC: Form 990, tax year 2024
View the entire original 990 at ProPublica ↗
- Organization
- HHT FOUNDATION INTERNATIONAL INC (EIN 22-3115041)
- Tax period
- 2024-07-01 to 2025-06-30
- Filed
- 2026-03-24
- IRS object ID
- 202600839349300210
- Schema version
- 2024v5.5
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule L
- Schedule M
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2026-03-24T08:27:12-05:00 | ReturnTs |
| Tax Period End | 2025-06-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 260794367 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | UHY ADVISORS MID-ATLANTIC INC | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 8601 ROBERT FULTON DRIVE SUITE 210 | AddressLine1Txt |
| City | COLUMBIA | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 21046 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2024-07-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 223115041 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | HHT FOUNDATION | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | HHTF | BusinessNameControlTxt |
| Phone | 4103579932 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | PO BOX 329 | AddressLine1Txt |
| City | MONKTON | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 21111 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | MARIANNE CLANCY | PersonNm |
| Person Title | CEO AND MANAGING DIRECTOR | PersonTitleTxt |
| Phone | 4103579932 | PhoneNum |
| Signature | 2026-03-09 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IRS Responsible Prty Info Curr | 0 | IRSResponsiblePrtyInfoCurrInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | HSUANYI WANG | PreparerPersonNm |
| PTIN | P03292356 | PTIN |
| Phone | 4107205220 | PhoneNum |
| Preparation | 2026-03-09 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2024 | TaxYr |
| Build TS | 2025-03-06 01:10:19Z | BuildTS |
Form 990 IRS990
Doing Business As Name DoingBusinessAsName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CURE HHT | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | MARIANNE CLANCY | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | PO BOX 329 | AddressLine1Txt |
| City | MONKTON | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 21111 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $10,713,422 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.CUREHHT.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1990 | FormationYr |
| Legal Domicile State | MD | LegalDomicileStateCd |
| Activity Or Mission | FIND A CURE FOR HHT WHILE SAVING THE LIVES AND IMPROVING THE WELL-BEING OF INDIVIDUALS AND FAMILIES AFFECTED BY HHT. | ActivityOrMissionDesc |
| Voting Members Governing Body | 13 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 13 | VotingMembersIndependentCnt |
| Total Employee | 19 | TotalEmployeeCnt |
| Total Volunteers | 13 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $6,587,947 | PYContributionsGrantsAmt |
| CY Contributions Grants | $9,245,580 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $104,766 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $470,997 | CYProgramServiceRevenueAmt |
| PY Investment Income | $134,583 | PYInvestmentIncomeAmt |
| CY Investment Income | $134,970 | CYInvestmentIncomeAmt |
| PY Other Revenue | -$36,985 | PYOtherRevenueAmt |
| CY Other Revenue | -$10,031 | CYOtherRevenueAmt |
| PY Total Revenue | $6,790,311 | PYTotalRevenueAmt |
| CY Total Revenue | $9,841,516 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $2,930,944 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $2,385,005 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $1,209,237 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $1,354,761 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $134,000 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $370,532 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $1,111,280 | PYOtherExpensesAmt |
| CY Other Expenses | $3,255,409 | CYOtherExpensesAmt |
| PY Total Expenses | $5,251,461 | PYTotalExpensesAmt |
| CY Total Expenses | $7,129,175 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $1,538,850 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $2,712,341 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $5,213,609 | TotalAssetsBOYAmt |
| Total Assets EOY | $8,133,180 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $809,199 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $962,042 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $4,404,410 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $7,171,138 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | HHT FOUNDATION INTERNATIONAL, INC. IS A NOT-FOR-PROFIT ORGANIZATION DEDICATED TO SERVING INDIVIDUALS AFFECTED BY HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT). THE ORGANIZATION PROVIDES INFORMATION TO PATIENTS, FAMILY MEMBERS, AND HEALTHCARE PROFESSIONALS; OFFERS SUPPORT AND COMMUNITY FOR PATIENTS AND THEIR FAMILIES; RAISES FUNDS TO ADVANCE BASIC AND CLINICAL RESEARCH; AND SPONSORS RESEARCH GRANTS TO PROMOTE SCIENTIFIC STUDIES FOCUSED ON HHT. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $5,435,882 | ExpenseAmt |
| Grant | $2,385,005 | GrantAmt |
| Desc | RESEARCH - THE RESEARCH PROGRAM SUPPORTS FUNDING FOR STUDIES THAT ADVANCE UNDERSTANDING OF THE UNDERLYING MECHANISMS OF HHT, FOSTERS THE DEVELOPMENT OF NOVEL THERAPEUTIC APPROACHES FOR TREATMENT AND DISEASE MANAGEMENT, AND PROMOTES TRANSLATIONAL RESEARCH THAT LEADS TO MULTI-CENTER CLINICAL TRIALS. IN ADDITION, THE HHT INTERNATIONAL SCIENTIFIC CONFERENCE IS HELD BIENNIALLY TO FACILITATE COLLABORATION AND THE EXCHANGE OF SCIENTIFIC KNOWLEDGE AMONG RESEARCHERS AND CLINICIANS. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $390,312 | ExpenseAmt |
| Revenue | $470,997 | RevenueAmt |
| Desc | EDUCATION - THE GOAL OF THE EDUCATION PROGRAM IS TO ADVANCE AWARENESS, ACCURATE DIAGNOSIS, AND BEST-PRACTICE TREATMENT OF HHT BY SUPPORTING PATIENT EDUCATION AND OUTREACH, SPONSORING EDUCATIONAL CONFERENCES AND PROFESSIONAL MEETINGS, AND STRENGTHENING A NETWORK OF COMPREHENSIVE HHT CLINICAL CENTERS OF EXCELLENCE. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $290,891 | ExpenseAmt |
| Desc | PUBLIC INFORMATION - THE GOAL OF THE PUBLIC INFORMATION PROGRAM IS TO INCREASE AWARENESS OF HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT) AMONG THE GENERAL PUBLIC, PRIVATE SECTOR, AND GOVERNMENTAL AUDIENCES THROUGH STRATEGIC ENGAGEMENT WITH THE PRESS AND OTHER MEDIA CHANNELS. | Desc |
Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $29,023 | ExpenseAmt |
| Desc | ADVOCACY - THE GOAL OF THE ADVOCACY PROGRAM IS TO REPRESENT AND SUPPORT INDIVIDUALS AFFECTED BY HHT BY ADVANCING RECOGNITION OF THE DISORDER AND SECURING FUNDING TO EXPAND AWARENESS EFFORTS, IMPROVE ACCESS TO EXPERT CARE, AND PROMOTE PARTICIPATION IN CLINICAL TRIALS. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Prog Srvc Expense | $29,023 | TotalOtherProgSrvcExpenseAmt |
| Total Program Service Expenses | $6,146,108 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (1) | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | Yes (1) | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | 0 | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | Yes (1) | ForeignActivitiesInd |
| More Than5000 K To Org | 0 | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | Yes (1) | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | Yes (1) | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | Yes (1) | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | 0 | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | Yes (1) | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 37 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (1) | BackupWthldComplianceInd |
| Employee | 19 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (1) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (1) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 13 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 13 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | 0 | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | DC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | LA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ME | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AZ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TX | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | DE | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ID | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NE | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ND | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WY | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | HILLEARY ABBRUZZESE | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 4103579932 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | PO BOX 329 | AddressLine1Txt |
| City | MONKTON | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 21111 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (16 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|
| JOHN DUNN | |||||||
| PRESIDENT | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| GABRIELLA CHOI | |||||||
| VICE PRESIDENT | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| MARC TOPAZ ESQ | |||||||
| TREASURER | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| KAREN SILBER WEISSEL PHD | |||||||
| SECRETARY | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| ANTHONY ANZELL PHD | |||||||
| MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| SCOTT BOATWRIGHT | |||||||
| MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| HOWARD LICHTIG | |||||||
| MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| MARIJO MCCUNE | |||||||
| MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| MIKE NOLAN | |||||||
| MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| BRANDON PROBST PHD | |||||||
| MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| DENNIS SPRECHER MD | |||||||
| MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| TERRY THOMPSON JR | |||||||
| MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| DENNIS ROUTLEDGE | |||||||
| MEMBER EMERITUS | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| MARIANNE CLANCY | |||||||
| EXECUTIVE DIRECTOR | 40.00 | Yes (X) | $199,190 | $0 | $35,561 | ||
| STEFANIE-NICOLE SCHAEFER | |||||||
| CHIEF OPERATING OFFICER | 40.00 | Yes (X) | $114,106 | $0 | $22,165 | ||
| MELISSA DICKEY | |||||||
| DIRECTOR, NAT'L HHT COORDINATING CENTER | 40.00 | $145,845 | $0 | $13,525 | Yes (X) | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $459,141 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $71,251 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 3 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp (3 entries)
| Address Line1ContractorAddress/USAddress/AddressLine1Txt | CityContractorAddress/USAddress/CityNm | State AbbreviationContractorAddress/USAddress/StateAbbreviationCd | ZIPContractorAddress/USAddress/ZIPCd | ServicesServicesDesc | CompensationCompensationAmt |
|---|---|---|---|---|---|
| BIORASI LLC | |||||
| 18851 NE 29TH AVE SUITE 800 | MIAMI | FL | 33180 | CLINICAL TRIALS AND RESEARCH | $709,889 |
| Q SQUARED SOLUTIONS LLC | |||||
| 2400 ELLIS ROAD | DURHAM | NC | 27703 | CONSULTING SERVICES | $179,085 |
| ALICIA LYNN KREUL HALL | |||||
| 3311 CANOE BROOK PKWY | RALEIGH | NC | 27614 | CLINICAL TRIALS AND RESEARCH | $157,413 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 3 | CntrctRcvdGreaterThan100KCnt |
| Fundraising | $30,036 | FundraisingAmt |
| Government Grants | $4,416,977 | GovernmentGrantsAmt |
| All Other Contributions | $4,798,567 | AllOtherContributionsAmt |
| Noncash Contributions | $207,396 | NoncashContributionsAmt |
| Total Contributions | $9,245,580 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | CONFERENCE FEES | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $470,997 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $470,997 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $470,997 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $110,501 | TotalRevenueColumnAmt |
| Exclusion | $110,501 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $866,571 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $842,102 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $24,469 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $24,469 | TotalRevenueColumnAmt |
| Exclusion | $24,469 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $11,942 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $30,036 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $29,804 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$17,862 | TotalRevenueColumnAmt |
| Exclusion | -$17,862 | ExclusionAmt |
Other Revenue Misc OtherRevenueMiscGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | OTHER INCOME | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $7,831 | TotalRevenueColumnAmt |
| Exclusion | $7,831 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $7,831 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $9,841,516 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $470,997 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $124,939 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part IX | Yes (X) | InfoInScheduleOPartIXInd |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,350,067 | TotalAmt |
| Program Services | $2,350,067 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $34,938 | TotalAmt |
| Program Services | $34,938 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $420,856 | TotalAmt |
| Program Services | $240,300 | ProgramServicesAmt |
| Management And General | $111,218 | ManagementAndGeneralAmt |
| Fundraising | $69,338 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $758,456 | TotalAmt |
| Program Services | $625,698 | ProgramServicesAmt |
| Management And General | $85,792 | ManagementAndGeneralAmt |
| Fundraising | $46,966 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $17,102 | TotalAmt |
| Program Services | $15,277 | ProgramServicesAmt |
| Management And General | $1,253 | ManagementAndGeneralAmt |
| Fundraising | $572 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $70,550 | TotalAmt |
| Program Services | $60,909 | ProgramServicesAmt |
| Management And General | $6,117 | ManagementAndGeneralAmt |
| Fundraising | $3,524 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $87,797 | TotalAmt |
| Program Services | $64,603 | ProgramServicesAmt |
| Management And General | $14,764 | ManagementAndGeneralAmt |
| Fundraising | $8,430 | FundraisingAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $59,747 | TotalAmt |
| Program Services | $59,747 | ProgramServicesAmt |
Fees For Services Prof Fundraising FeesForServicesProfFundraising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $134,000 | TotalAmt |
| Fundraising | $134,000 | FundraisingAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,567 | TotalAmt |
| Management And General | $3,567 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,985,514 | TotalAmt |
| Program Services | $1,851,192 | ProgramServicesAmt |
| Management And General | $133,866 | ManagementAndGeneralAmt |
| Fundraising | $456 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $60,294 | TotalAmt |
| Program Services | $31,784 | ProgramServicesAmt |
| Management And General | $409 | ManagementAndGeneralAmt |
| Fundraising | $28,101 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $168,644 | TotalAmt |
| Program Services | $95,796 | ProgramServicesAmt |
| Management And General | $49,313 | ManagementAndGeneralAmt |
| Fundraising | $23,535 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $387,447 | TotalAmt |
| Program Services | $222,337 | ProgramServicesAmt |
| Management And General | $161,343 | ManagementAndGeneralAmt |
| Fundraising | $3,767 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $14,171 | TotalAmt |
| Management And General | $14,171 | ManagementAndGeneralAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $91,656 | TotalAmt |
| Program Services | $41,507 | ProgramServicesAmt |
| Management And General | $22,438 | ManagementAndGeneralAmt |
| Fundraising | $27,711 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $428,622 | TotalAmt |
| Program Services | $428,497 | ProgramServicesAmt |
| Management And General | $125 | ManagementAndGeneralAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,864 | TotalAmt |
| Management And General | $1,864 | ManagementAndGeneralAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| MISCELLANEOUS AND CREDI | $32,366 | $13,750 | $4,869 | $13,747 |
| SUBSCRIPTIONS AND DUES | $11,485 | $1,100 | $10,385 | |
| PAZOPANIB | $8,606 | $8,606 | ||
| OTHER GRANTS AND AWARDS | $1,426 | $1,426 |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $7,129,175 | TotalAmt |
| Program Services | $6,146,108 | ProgramServicesAmt |
| Management And General | $612,535 | ManagementAndGeneralAmt |
| Fundraising | $370,532 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $501,341 | BOYAmt |
| EOY | $786,548 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,030,724 | BOYAmt |
| EOY | $3,729,712 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $158,211 | BOYAmt |
| EOY | $84,089 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $14,487 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $12,784 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,567 | BOYAmt |
| EOY | $1,703 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,420,226 | BOYAmt |
| EOY | $3,430,897 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $99,540 | BOYAmt |
| EOY | $100,231 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,213,609 | BOYAmt |
| EOY | $8,133,180 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $658,420 | BOYAmt |
| EOY | $962,042 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $150,779 | BOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $809,199 | BOYAmt |
| EOY | $962,042 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,934,700 | BOYAmt |
| EOY | $3,347,720 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,469,710 | BOYAmt |
| EOY | $3,823,418 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,404,410 | BOYAmt |
| EOY | $7,171,138 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,213,609 | BOYAmt |
| EOY | $8,133,180 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $2,712,341 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $54,387 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | Yes (1) | FederalGrantAuditRequiredInd |
| Federal Grant Audit Performed | Yes (1) | FederalGrantAuditPerformedInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $2,144,594 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $2,356,154 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $3,267,105 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $6,587,947 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $9,245,580 | CurrentTaxYearAmt |
| Total | $23,601,380 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $2,144,594 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $2,356,154 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $3,267,105 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $6,587,947 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $9,245,580 | CurrentTaxYearAmt |
| Total | $23,601,380 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $1,796,549 | SubstantialContributorsTotAmt |
| Public Support Total170 | $21,804,831 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $7,772 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $13,736 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $55,714 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $104,940 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $110,501 | CurrentTaxYearAmt |
| Total | $292,663 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $48,958 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | -$22,807 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | -$11,211 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | -$36,985 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | -$10,031 | CurrentTaxYearAmt |
| Total | -$32,076 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $23,861,967 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $1,012,806 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.91380 | PublicSupportCY170Pct |
| Public Support PY170 | 0.93720 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Form990 Schedule A Part VI Form990ScheduleAPartVIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: | FormAndLineReferenceDesc |
| Explanation | NET INCOME FROM FUNDRAISING EVENTS AND OTHER INCOME | ExplanationTxt |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule C IRS990ScheduleC
| Field | Value | IRS element (for citing) |
|---|---|---|
| Volunteers | 0 | VolunteersInd |
| Paid Staff Or Management | 0 | PaidStaffOrManagementInd |
| Media Advertisements | 0 | MediaAdvertisementsInd |
| Mailings Members | 0 | MailingsMembersInd |
| Publications Or Broadcast | 0 | PublicationsOrBroadcastInd |
| Grants Other Organizations | 0 | GrantsOtherOrganizationsInd |
| Direct Contact Legislators | 0 | DirectContactLegislatorsInd |
| Rallies Demonstrations | 0 | RalliesDemonstrationsInd |
| Other Activities | Yes (1) | OtherActivitiesInd |
| Other Activities | $59,747 | OtherActivitiesAmt |
| Total Lobbying Expenditures | $59,747 | TotalLobbyingExpendituresAmt |
| Not Described Section501c3 | 0 | NotDescribedSection501c3Ind |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART II-B, LINE 1, LOBBYING ACTIVITIES | FormAndLineReferenceDesc |
| Explanation | THE FOUNDATION CONTRACTED WITH A FIRM TO SUPPORT ITS EFFORTS TO INCREASE AWARENESS OF HHT AT THE FEDERAL LEVEL, BUILD STRATEGIC PARTNERSHIPS WITH KEY DECISION-MAKERS IN WASHINGTON, AND SECURE INCREASED FUNDING FOR RESEARCH TOWARD A CURE FOR HHT. | ExplanationTxt |
Schedule D IRS990ScheduleD
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $390,387 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $52,599 | InvestmentEarningsOrLossesAmt |
| End Year Balance | $442,986 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $327,159 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $63,228 | InvestmentEarningsOrLossesAmt |
| End Year Balance | $390,387 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $285,033 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $42,126 | InvestmentEarningsOrLossesAmt |
| End Year Balance | $327,159 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $307,864 | BeginningYearBalanceAmt |
| Contributions | $7,308 | ContributionsAmt |
| Investment Earnings Or Losses | -$30,139 | InvestmentEarningsOrLossesAmt |
| End Year Balance | $285,033 | EndYearBalanceAmt |
CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $226,950 | BeginningYearBalanceAmt |
| Contributions | $2,500 | ContributionsAmt |
| Investment Earnings Or Losses | $78,414 | InvestmentEarningsOrLossesAmt |
| End Year Balance | $307,864 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Prmnnt Endowment Balance EOY | 0.53800 | PrmnntEndowmentBalanceEOYPct |
| Term Endowment Balance EOY | 0.46200 | TermEndowmentBalanceEOYPct |
| Endowments Held Unrelated Org | 0 | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | 0 | EndowmentsHeldRelatedOrgInd |
Leasehold Improvements LeaseholdImprovementsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $6,050 | OtherCostOrOtherBasisAmt |
| Depreciation | $5,792 | DepreciationAmt |
| Book Value | $258 | BookValueAmt |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $8,437 | OtherCostOrOtherBasisAmt |
| Depreciation | $6,992 | DepreciationAmt |
| Book Value | $1,445 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $1,703 | TotalBookValueLandBuildingsAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $9,892,336 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $54,387 | NetUnrealizedGainsInvstAmt |
| Revenue Not Reported | $54,387 | RevenueNotReportedAmt |
| Revenue Subtotal | $9,837,949 | RevenueSubtotalAmt |
| Investment Expenses Not Incld | $3,567 | InvestmentExpensesNotIncldAmt |
| Revenue Not Reported Fincl Stmt | $3,567 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $9,841,516 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $7,125,608 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Not Reported | $0 | ExpensesNotReportedAmt |
| Expenses Subtotal | $7,125,608 | ExpensesSubtotalAmt |
| Investment Expenses Not Incld2 | $3,567 | InvestmentExpensesNotIncld2Amt |
| Expenses Not Rpt Fincl Stmt | $3,567 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $7,129,175 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART X, LINE 2: | THE INCOME TAX POSITIONS TAKEN BY CURE HHT FOR ANY YEAR OPEN UNDER THE VARIOUS STATUTES OF LIMITATIONS ARE THAT THE ORGANIZATION CONTINUES TO BE EXEMPT FROM INCOME TAXES AND THAT THE ORGANIZATION HAS PROPERLY REPORTED UNRELATED BUSINESS INCOME THAT IS SUBJECT TO INCOME TAXES. CURE HHT BELIEVES THAT THERE ARE NO TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN THAT WOULD SIGNIFICANTLY INCREASE UNRECOGNIZED TAX BENEFITS WITHIN 12 MONTHS OF THE REPORTING DATE. NONE OF THE CURE HHT'S INCOME TAX RETURNS ARE CURRENTLY UNDER EXAMINATION. |
| PART V, LINE 4 | NET ASSETS PERMANENTLY RESTRICTED RESULT FROM CONTRIBUTIONS TO BE USED TO GENERATE INCOME TO PROVIDE FOR MEDICAL RESEARCH AND/OR EDUCATION. INCOME EARNED FROM THESE NET ASSETS MUST BE USED FOR MEDICAL RESEARCH AND/OR EDUCATIONAL PROJECTS AS DETERMINED BY THE FOUNDATION'S MANAGEMENT AND BOARD OF DIRECTORS. |
Schedule F IRS990ScheduleF
Account Activities Outside US AccountActivitiesOutsideUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Region | EUROPE (INCLUDING ICELAND & GREENLAND) | RegionTxt |
| Offices | 0 | OfficesCnt |
| Employee | 0 | EmployeeCnt |
| Type Of Activities Conducted | PROGRAM SERVICES | TypeOfActivitiesConductedTxt |
| Specific Services Provided | INTERNATIONAL SCIENTIFIC CONFERENCE | SpecificServicesProvidedTxt |
| Region Total Expenditures | $489,764 | RegionTotalExpendituresAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continuation Total Office | 0 | ContinuationTotalOfficeCnt |
| Continuation Total Employee | 0 | ContinuationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $489,764 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $489,764 | TotalSpentAmt |
| Transfer To Foreign Corp | 0 | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 3: | FormAndLineReferenceDesc |
| Explanation | ACCRUAL BASIS | ExplanationTxt |
Schedule G IRS990ScheduleG
| Field | Value | IRS element (for citing) |
|---|---|---|
| Mail Solicitations | Yes (X) | MailSolicitationsInd |
| Email Solicitations | Yes (X) | EmailSolicitationsInd |
| Phone Solicitations | Yes (X) | PhoneSolicitationsInd |
| In Person Solicitations | Yes (X) | InPersonSolicitationsInd |
| Solicitation Of Non Govt Grants | Yes (X) | SolicitationOfNonGovtGrantsInd |
| Solicitation Of Govt Grants | Yes (X) | SolicitationOfGovtGrantsInd |
| Special Fundraising Events | Yes (X) | SpecialFundraisingEventsInd |
| Agrmt Prof Fundraising Acty | Yes (1) | AgrmtProfFundraisingActyInd |
Fundraiser Activity Info FundraiserActivityInfoGrp
Organization Business Name OrganizationBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | NPL IMPACT AGENCY | BusinessNameLine1Txt |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 590 WEST CROSSVILLE ROAD 103 | AddressLine1Txt |
| City | ROSWELL | CityNm |
| State Abbreviation | GA | StateAbbreviationCd |
| ZIP | 30075 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Activity | IN-PERSON SOLICITATIONS, BUILD INTERNAL PROCESSES | ActivityTxt |
| Fundraiser Control Of Funds | 0 | FundraiserControlOfFundsInd |
| Gross Receipts | $0 | GrossReceiptsAmt |
| Retained By Contractor | $134,000 | RetainedByContractorAmt |
| Net To Organization | -$134,000 | NetToOrganizationAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Retained By Contractors | $134,000 | TotalRetainedByContractorsAmt |
| Total Net To Organization | -$134,000 | TotalNetToOrganizationAmt |
| Licensed States | AL | LicensedStatesCd |
| Licensed States | AK | LicensedStatesCd |
| Licensed States | AR | LicensedStatesCd |
| Licensed States | CA | LicensedStatesCd |
| Licensed States | CO | LicensedStatesCd |
| Licensed States | CT | LicensedStatesCd |
| Licensed States | DC | LicensedStatesCd |
| Licensed States | FL | LicensedStatesCd |
| Licensed States | GA | LicensedStatesCd |
| Licensed States | HI | LicensedStatesCd |
| Licensed States | IL | LicensedStatesCd |
| Licensed States | KS | LicensedStatesCd |
| Licensed States | KY | LicensedStatesCd |
| Licensed States | ME | LicensedStatesCd |
| Licensed States | MD | LicensedStatesCd |
| Licensed States | MA | LicensedStatesCd |
| Licensed States | MI | LicensedStatesCd |
| Licensed States | MN | LicensedStatesCd |
| Licensed States | MS | LicensedStatesCd |
| Licensed States | MO | LicensedStatesCd |
| Licensed States | NV | LicensedStatesCd |
| Licensed States | NH | LicensedStatesCd |
| Licensed States | NJ | LicensedStatesCd |
| Licensed States | NM | LicensedStatesCd |
| Licensed States | NY | LicensedStatesCd |
| Licensed States | NC | LicensedStatesCd |
| Licensed States | ND | LicensedStatesCd |
| Licensed States | OH | LicensedStatesCd |
| Licensed States | OK | LicensedStatesCd |
| Licensed States | OR | LicensedStatesCd |
| Licensed States | PA | LicensedStatesCd |
| Licensed States | RI | LicensedStatesCd |
| Licensed States | SC | LicensedStatesCd |
| Licensed States | TN | LicensedStatesCd |
| Licensed States | UT | LicensedStatesCd |
| Licensed States | VA | LicensedStatesCd |
| Licensed States | WA | LicensedStatesCd |
| Licensed States | WV | LicensedStatesCd |
| Licensed States | WI | LicensedStatesCd |
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | STONER GOLF | Event1Nm |
| Gross Receipts Event1 | $19,158 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $7,216 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $11,942 | GrossRevenueEvent1Amt |
| Other Direct Expenses Event1 | $17,547 | OtherDirectExpensesEvent1Amt |
| Event2 | GRASSROOTS | Event2Nm |
| Gross Receipts Event2 | $17,820 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $17,820 | CharitableContriEvent2Amt |
| Other Direct Expenses Event2 | $12,257 | OtherDirectExpensesEvent2Amt |
| Other Events Total | 1 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $5,000 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $5,000 | CharitableContriOtherEventsAmt |
| Gross Receipts Total | $41,978 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $30,036 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $11,942 | GrossRevenueTotalEventsAmt |
| Oth Direct Expnss Total Events | $29,804 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $29,804 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$17,862 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (19 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Non Cash AssistanceNonCashAssistanceAmt | Purpose Of GrantPurposeOfGrantTxt | Address Line2USAddress/AddressLine2Txt |
|---|---|---|---|---|---|---|---|---|---|
| AUGUSTA UNIVERSITY RESEARCH INSTITUTE INC | |||||||||
| PO BOX 945552 | ATLANTA | GA | 303945552 | 581418202 | 501(C)(3) | $151,338 | $0 | HHT-RELATED RESEARCH | |
| CLEVELAND CLINIC FOUNDATION | |||||||||
| 6801 BRECKVILLE RD RK1-85 | INDEPENDENCE | OH | 44131 | 340714585 | 501(C)(3) | $118,974 | $0 | HHT-RELATED RESEARCH | |
| COLUMBIA UNIVERSITY | |||||||||
| PO BOX 29789 | NEW YORK CITY | NY | 10087 | 135598093 | 501(C)(3) | $169,911 | $0 | HHT-RELATED RESEARCH | |
| JOHNS HOPKINS UNIVERSITY | |||||||||
| 12529 COLLECTIONS CENTER DRIVE | CHICAGO | IL | 60693 | 520595110 | 501(C)(3) | $74,747 | $0 | HHT-RELATED RESEARCH | |
| MASSACHUSETTS GENERAL HOSPITAL | |||||||||
| 125 NASHUA STREET SUITE 540 | BOSTON | MA | 02114 | 041564655 | 501(C)(3) | $135,793 | $0 | HHT-RELATED RESEARCH | |
| MAYO CLINIC | |||||||||
| 200 1ST STREET SOUTHWEST | ROCHESTER | MN | 55905 | 416011702 | 501(C)(3) | $106,707 | $0 | HHT-RELATED RESEARCH | |
| OREGON HEALTH SCIENCE UNIVERSITY - OFFICE OF PROPOSAL & AWARD MANAGEMENT | |||||||||
| PO BOX 3003 | PORTLAND | OR | 97208 | 931176109 | $79,872 | $0 | HHT-RELATED RESEARCH | ||
| THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY | |||||||||
| 485 BROADWAY | REDWOOD CITY | CA | 94063 | 941156365 | 501(C)(3) | $130,000 | $0 | HHT-RELATED RESEARCH | |
| THE BROAD INSTITUTE INC | |||||||||
| 415 MAIN STREET NE30-7031 | CAMBRIDGE | MA | 02142 | 263428781 | 501(C)(3) | $177,045 | $0 | HHT-RELATED RESEARCH | |
| THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL OFFICE OF SPONSORED PROGRAM | |||||||||
| 104 AIRPORT DRIVE SUITE 2200 CAMPUS | CHAPEL HILL | NC | 275991350 | 566001393 | $127,255 | $0 | HHT-RELATED RESEARCH | BOX 1350 | |
| TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA | |||||||||
| 3451 WALNUT ST 5TH FLOOR FRANKLIN | PHILADELPHIA | PA | 191046205 | 231352685 | 501(C)(3) | $86,466 | $0 | HHT-RELATED RESEARCH | BUILDING |
| UCSF REGENTS OF THE UNIVERSITY OF CALIFORNIA | |||||||||
| 220 MONTGOMERY ST FL 5 | SAN FRANCISCO | CA | 94104 | 946036493 | $137,195 | $0 | HHT-RELATED RESEARCH | ||
| UNIVERSITY OF CALIFORNIA LOS ANGELES EXTRAMURAL FUND MANAGEMENT | |||||||||
| 10889 WILSHIRE BOULEVARD SUITE 700 | LOS ANGELES | CA | 900951406 | 956006143 | $251,639 | $0 | HHT-RELATED RESEARCH | ||
| UNIVERSITY OF COLORADO ANSCHUTZ MEDICAL CAMPUS | |||||||||
| 12700 E 19TH AVE C272 | AURORA | CO | 80045 | 846000555 | $123,553 | $0 | HHT-RELATED RESEARCH | ||
| UNIVERSITY OF UTAH | |||||||||
| 201 S 1460 EAST RM 406 | SALT LAKE CITY | UT | 84112 | 876000525 | $80,218 | $0 | HHT-RELATED RESEARCH | ||
| UT SOUTHWESTERN MEDICAL CENTER | |||||||||
| 5323 HARRY HINES BLVD | DALLAS | TX | 75390 | 756002868 | $126,071 | $0 | HHT-RELATED RESEARCH | ||
| WASHINGTON UNIVERSITY IN ST LOUIS | |||||||||
| 7425 FORSYTH BOULEVARD | ST LOUIS | MT | 63105 | 430653611 | 501(C)(3) | $133,986 | $0 | HHT-RELATED RESEARCH | |
| YALE UNIVERSITY OFFICE OF SPONSORED PROJECTS | |||||||||
| PO BOX 208239 | NEW HAVEN | CT | 065208239 | 060646973 | 501(C)(3) | $113,034 | $0 | HHT-RELATED RESEARCH | |
| THEUNIVERSITY OF ALABAMA AT BIRMINGHAM | |||||||||
| 1720 2ND AVENUE SOUTH AB 990 | BIRMINGHAM | AL | 352940109 | 636005396 | 501(C)(3) | $25,397 | $0 | HHT-RELATED RESEARCH | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 12 | Total501c3OrgCnt |
| Total Other Org | 7 | TotalOtherOrgCnt |
Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Type | TRAVEL AWARDS | GrantTypeTxt |
| Recipient | 32 | RecipientCnt |
| Cash Grant | $34,938 | CashGrantAmt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | CURE HHT MONITORS THE USE OF GRANT FUNDS THROUGH REGULAR COMMUNICATIONS WITH THE ORGANIZATION AND PERFORMANCE REPORTS ON THE RESEARCH. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (2 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| MARIANNE CLANCY | ||||||||||||||
| EXECUTIVE DIRECTOR | $199,190 | $0 | $0 | $0 | $0 | $0 | $5,792 | $0 | $29,769 | $0 | $234,751 | $0 | $0 | $0 |
| MELISSA DICKEY | ||||||||||||||
| DIRECTOR, NAT'L HHT COORDINATING CEN | $145,845 | $0 | $0 | $0 | $0 | $0 | $4,408 | $0 | $9,117 | $0 | $159,370 | $0 | $0 | $0 |
Schedule L IRS990ScheduleL
Bus Tr Involve Interested Prsn BusTrInvolveInterestedPrsnGrp
Name Of Interested NameOfInterested
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | MARIANNE CLANCY | PersonNm |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Relationship Description | EXECUTIVE DIRECTOR | RelationshipDescriptionTxt |
| Transaction | $13,200 | TransactionAmt |
| Transaction | LEASE OF OFFICE SPACE | TransactionDesc |
| Sharing Of Revenues | 0 | SharingOfRevenuesInd |
Schedule M IRS990ScheduleM
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 6 | ContributionCnt |
| Noncash Contributions Rpt F990 | $207,396 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FAIR MARKET VALUE | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Any Property That Must Be Held | 0 | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | 0 | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | 0 | ThirdPartiesUsedInd |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (6 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION B, LINE 11B | THE EXECUTIVE DIRECTOR REVIEWS THE 990 BEFORE FILING. THE FORM 990 IS DISTRIBUTED AND REVIEWED BY THE BOARD OF DIRECTORS. |
| FORM 990, PART VI, SECTION B, LINE 12C | HHT FOUNDATION INTERNATIONAL, INC. MAINTAINS A CONFLICT-OF-INTEREST POLICY, WHICH IS REVIEWED ANNUALLY BY MANAGEMENT WITH THE BOARD OF DIRECTORS. BOARD MEMBERS DISCUSS THE POLICY AND SIGN A DISCLOSURE AGREEMENT EACH YEAR TO CONFIRM UNDERSTANDING AND ENSURE THE POLICY REMAINS CURRENT. |
| FORM 990, PART VI, SECTION B, LINE 15A | THE EXECUTIVE DIRECTOR'S SALARY IS APPROVED ANNUALLY BY THE EXECUTIVE COMMITTEE, OR ITS DESIGNEES, AS PART OF THE BUDGET APPROVAL PROCESS. THE EXECUTIVE COMMITTEE, OR ITS DESIGNEES, ALSO CONDUCTS AN ANNUAL PERFORMANCE REVIEW COVERING THE PRIOR TWELVE-MONTH PERIOD. BASED ON THE RESULTS OF THIS PERFORMANCE REVIEW, AS WELL AS ADDITIONAL ANALYSES - INCLUDING, BUT NOT LIMITED TO, COMPARISONS OF THE EXECUTIVE DIRECTOR'S COMPENSATION WITH THAT OF INDIVIDUALS IN COMPARABLE POSITIONS WITHIN THE NONPROFIT SECTOR - THE EXECUTIVE COMMITTEE, OR ITS DESIGNEES, DETERMINES ANY APPLICABLE BONUSES AND ADJUSTMENTS TO THE SUBSEQUENT YEAR'S BASE SALARY. ONCE COMPENSATION DECISIONS ARE APPROVED, A MEMBER OF THE EXECUTIVE COMMITTEE COMMUNICATES THE APPROVAL TO THE FINANCIAL ADMINISTRATOR. THE FINANCIAL ADMINISTRATOR RETAINS DOCUMENTATION SUPPORTING THE EXECUTIVE COMMITTEE'S DETERMINATIONS AND PROCESSES THE APPROVED COMPENSATION THROUGH THE PAYROLL SYSTEM. |
| FORM 990, PART VI, SECTION C, LINE 19 | GOVERNING DOCUMENTS ARE AVAILABLE TO THE PUBLIC UPON REQUEST ONLY. |
| FORM 990, PART IX, LINE 11G | PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 92,023. MANAGEMENT AND GENERAL EXPENSES 133,866. FUNDRAISING EXPENSES 456. TOTAL EXPENSES 226,345. MEDICAL DIRECTOR CONSULTING: PROGRAM SERVICE EXPENSES 19,100. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 19,100. SCIENTIFIC DIRECTOR CONSULTING: PROGRAM SERVICE EXPENSES 63,475. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 63,475. SUBCONTRACTORS: PROGRAM SERVICE EXPENSES 1,676,594. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 1,676,594. |
| FORM 990, PART XII, LINE 2C: | THE PROCESS HAS NOT CHANGED FROM THE PRIOR YEAR. |