CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC: Form 990, tax year 2010
View the entire original 990 at ProPublica ↗
- Organization
- CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC (EIN 91-2059167)
- Tax period
- 2010-01-01 to 2010-12-31
- Filed
- 2011-08-01
- IRS object ID
- 201112139349300101
- Schema version
- 2010v3.2
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Timestamp | 2011-08-01T09:06:07-04:00 | Timestamp |
| Tax Period End Date | 2010-12-31 | TaxPeriodEndDate |
Preparer Firm PreparerFirm
Preparer Firm Business Name PreparerFirmBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | ARGY WILTSE & ROBINSON PC | BusinessNameLine1 |
Preparer Firm US Address PreparerFirmUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 8405 GREENSBORO DRIVE 7TH FLOOR | AddressLine1 |
| City | MCLEAN | City |
| State | VA | State |
| ZIP Code | 22102 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnType |
| Tax Period Begin Date | 2010-01-01 | TaxPeriodBeginDate |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 912059167 | EIN |
Name Name
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Control | CYST | NameControl |
| Phone | 3019514422 | Phone |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 6931 ARLINGTON ROAD | AddressLine1 |
| City | BETHESDA | City |
| State | MD | State |
| ZIP Code | 20814 | ZIPCode |
Officer Officer
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name | ROBERT J BEALL PHD | Name |
| Title | PRESIDENT & CEO | Title |
| Date Signed | 2011-07-23 | DateSigned |
Preparer Preparer
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 7038930600 | Phone |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax Year | 2010 | TaxYear |
| Build TS | 2016-02-24 21:20:13Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Of Principal Officer Person | ROBERT J BEALL PHD | NameOfPrincipalOfficerPerson |
Address Principal Officer US AddressPrincipalOfficerUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 6931 ARLINGTON ROAD STE 200 | AddressLine1 |
| City | BETHESDA | City |
| State | MD | State |
| ZIP Code | 20814 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | 54161930 | GrossReceipts |
| Group Return For Affiliates | false | GroupReturnForAffiliates |
| Organization501c3 | X | Organization501c3 |
| Web Site | www.CFF.ORG/RESEARCH/CFFT/ | WebSite |
| Type Of Organization Corporation | X | TypeOfOrganizationCorporation |
| Year Formation | 2000 | YearFormation |
| State Legal Domicile | MD | StateLegalDomicile |
| Activity Or Mission Description | The mission is to assure the development of the means to cure and control cystic fibrosis (cf) and to improve the quality of life for those with the disease. | ActivityOrMissionDescription |
| Nbr Voting Members Governing Body | 6 | NbrVotingMembersGoverningBody |
| Nbr Independent Voting Members | 5 | NbrIndependentVotingMembers |
| Total Nbr Employees | 11 | TotalNbrEmployees |
| Total Nbr Volunteers | 0 | TotalNbrVolunteers |
| Total Gross UBI | 0 | TotalGrossUBI |
| Net Unrelated Business Txbl Income | 0 | NetUnrelatedBusinessTxblIncome |
| Contributions Grants Prior Year | 54285326 | ContributionsGrantsPriorYear |
| Contributions Grants Current Year | 0 | ContributionsGrantsCurrentYear |
| Program Service Revenue Prior Year | 0 | ProgramServiceRevenuePriorYear |
| Program Service Revenue CY | 400446 | ProgramServiceRevenueCY |
| Investment Income Prior Year | 0 | InvestmentIncomePriorYear |
| Investment Income Current Year | 369 | InvestmentIncomeCurrentYear |
| Other Revenue Prior Year | 35876 | OtherRevenuePriorYear |
| Other Revenue Current Year | 53761115 | OtherRevenueCurrentYear |
| Total Revenue Prior Year | 54321202 | TotalRevenuePriorYear |
| Total Revenue Current Year | 54161930 | TotalRevenueCurrentYear |
| Grants And Similar Amnts Prior Year | 29566742 | GrantsAndSimilarAmntsPriorYear |
| Grants And Similar Amnts CY | 29412613 | GrantsAndSimilarAmntsCY |
| Benefits Paid To Members Prior Year | 0 | BenefitsPaidToMembersPriorYear |
| Benefits Paid To Members CY | 0 | BenefitsPaidToMembersCY |
| Salaries Etc Prior Year | 2624177 | SalariesEtcPriorYear |
| Salaries Etc Current Year | 2842375 | SalariesEtcCurrentYear |
| Total Prof Fundrsng Exp Prior Year | 0 | TotalProfFundrsngExpPriorYear |
| Total Prof Fundrsng Exp CY | 0 | TotalProfFundrsngExpCY |
| Total Fundrsng Exp Current Year | 0 | TotalFundrsngExpCurrentYear |
| Other Expense Prior Year | 22130283 | OtherExpensePriorYear |
| Other Expenses Current Year | 21906942 | OtherExpensesCurrentYear |
| Total Expenses Prior Year | 54321202 | TotalExpensesPriorYear |
| Total Expenses Current Year | 54161930 | TotalExpensesCurrentYear |
| Revenues Less Expenses CY | 0 | RevenuesLessExpensesCY |
| Total Assets BOY | 24668970 | TotalAssetsBOY |
| Total Assets EOY | 67639625 | TotalAssetsEOY |
| Total Liabilities BOY | 24668970 | TotalLiabilitiesBOY |
| Total Liabilities EOY | 67639625 | TotalLiabilitiesEOY |
| Net Assets Or Fund Balances EOY | 0 | NetAssetsOrFundBalancesEOY |
| Mission Description | THE MISSION IS TO ASSURE THE DEVELOPMENT OF THE MEANS TO CURE AND CONTROL CYSTIC FIBROSIS (CF) AND TO IMPROVE THE QUALITY OF LIFE FOR THOSE WITH THE DISEASE. A LIFE SHORTENING GENETIC DISEASE, CF AFFECTS THE LUNGS AND DIGESTIVE SYSTEMS OF NEARLY 30,000 CHILDREN AND YOUNG ADULTS IN THE U.S. CURRENTLY, THERE IS NO CURE. | MissionDescription |
| Significant New Program Services | false | SignificantNewProgramServices |
| Significant Change | false | SignificantChange |
| Expense | 11625382 | Expense |
| Grants | 0 | Grants |
| Revenue | 0 | Revenue |
| Description | Investments by Cystic Fibrosis Foundation Therapeutics (CFFT) in state-of-the-art research have accelerated progress toward developing new CF treatments and finding a cure for the disease. By investing in CF drug discovery and development research conducted by biotechnology companies and providing matching awards to CF drug developers for CF research, and with a specialized CF clinical trials network, CFFT has attracted significant industry involvement in the fight against CF. Cayston, a new inhaled antibiotic developed by Gilead Sciences, Inc., was approved in 2010 by the FDA. This was the first drug to progress completely through CFFT's Therapeutics Development Program and it offers an antibiotic alternative for CF patients who battle recurrent lung infections and often develop resistance to existing antibiotics. At the end of 2010, CFFT supported nearly 30 potential CF drug therapies in various stages of development. | Description |
Activity2 Activity2
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | 42239783 | Expense |
| Grants | 29412613 | Grants |
| Revenue | 400446 | Revenue |
| Description | Medical Programs in 2010 consisted of costs to support scientific study and investigations. 200 grants were awarded in 2010. | Description |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expense | 53865165 | TotalProgramServiceExpense |
| Described In501 C3 | true | DescribedIn501C3 |
| Schedule B Required | false | ScheduleBRequired |
| Political Activities | false | PoliticalActivities |
| Lobbying Activities | false | LobbyingActivities |
| Donor Advised Funds | false | DonorAdvisedFunds |
| Conservation Easements | false | ConservationEasements |
| Collections Of Art | false | CollectionsOfArt |
| Credit Counseling | false | CreditCounseling |
| Term Or Permanent Endowments | false | TermOrPermanentEndowments |
| Report Land Bldg Equip | true | ReportLandBldgEquip |
| Report Invest Oth Securities | false | ReportInvestOthSecurities |
| Report Prog Rel Invest | false | ReportProgRelInvest |
| Report Other Assets | false | ReportOtherAssets |
| Report Other Liabilities | true | ReportOtherLiabilities |
| Report Fin48 Footnote | true | ReportFin48Footnote |
| Independent Audit Financial Stmt | false | IndependentAuditFinancialStmt |
| Consolidated Audit Financial Stmt | true | ConsolidatedAuditFinancialStmt |
| School | false | School |
| Foreign Office | false | ForeignOffice |
| Foreign Activities | true | ForeignActivities |
| More Than5000 K To Organizations | true | MoreThan5000KToOrganizations |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividuals |
| Professional Fundraising | false | ProfessionalFundraising |
| Fundraising Activities | false | FundraisingActivities |
| Gaming | false | Gaming |
| Hospital | false | Hospital |
| Grants To Organizations | true | GrantsToOrganizations |
| Grants To Individuals | false | GrantsToIndividuals |
| Schedule J Required | true | ScheduleJRequired |
| Tax Exempt Bonds | false | TaxExemptBonds |
| Excess Benefit Transaction | false | ExcessBenefitTransaction |
| Prior Excess Benefit Transaction | false | PriorExcessBenefitTransaction |
| Loan To Officer Or DQP | false | LoanToOfficerOrDQP |
| Grant To Related Person | false | GrantToRelatedPerson |
| Bsnss Rltnshp With Organization | false | BsnssRltnshpWithOrganization |
| Bsnss Rltnshp Thru Family Member | false | BsnssRltnshpThruFamilyMember |
| Officer Entity With Bsnss Rltnshp | false | OfficerEntityWithBsnssRltnshp |
| Deductible Non Cash Contributions | false | DeductibleNonCashContributions |
| Deductible Contributions Of Art | false | DeductibleContributionsOfArt |
| Terminated | false | Terminated |
| Partial Liquidation | false | PartialLiquidation |
| Disregarded Entity | false | DisregardedEntity |
| Related Entity | true | RelatedEntity |
| Related Org Controlled Entity | false | RelatedOrgControlledEntity |
| Transaction Related Entity | false | TransactionRelatedEntity |
| Transfers To Exempt Non Chrtbl Org | false | TransfersToExemptNonChrtblOrg |
| Activities Conducted Partnership | false | ActivitiesConductedPartnership |
| Schedule O Required | true | ScheduleORequired |
| Number Forms Transmitted With1096 | 47 | NumberFormsTransmittedWith1096 |
| Number W2 G Included | 0 | NumberW2GIncluded |
| Compliance With Backup Witholding | true | ComplianceWithBackupWitholding |
| Number Of Employees | 11 | NumberOfEmployees |
| Employment Tax Returns Filed | true | EmploymentTaxReturnsFiled |
| Unrelated Business Income | false | UnrelatedBusinessIncome |
| Foreign Financial Account | false | ForeignFinancialAccount |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTrans |
| Taxable Party Notification | false | TaxablePartyNotification |
| Non Deductible Contributions | false | NonDeductibleContributions |
| Quid Pro Quo Contributions | false | QuidProQuoContributions |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOf |
| Funds To Pay Premiums | false | FundsToPayPremiums |
| Premiums Paid | false | PremiumsPaid |
| Indoor Tanning Services | false | IndoorTanningServices |
| Info In Schedule O Part VI | X | InfoInScheduleOPartVI |
| Nbr Voting Governing Body Members | 6 | NbrVotingGoverningBodyMembers |
| Number Independent Voting Members | 5 | NumberIndependentVotingMembers |
| Family Or Business Relationship | false | FamilyOrBusinessRelationship |
| Delegation Of Management Duties | false | DelegationOfManagementDuties |
| Changes To Organizing Docs | false | ChangesToOrganizingDocs |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuse |
| Members Or Stockholders | false | MembersOrStockholders |
| Election Of Board Members | true | ElectionOfBoardMembers |
| Decisions Subject To Approval | false | DecisionsSubjectToApproval |
| Minutes Of Governing Body | true | MinutesOfGoverningBody |
| Minutes Of Committees | true | MinutesOfCommittees |
| Officer Mailing Address | false | OfficerMailingAddress |
| Local Chapters | false | LocalChapters |
| Form990 Provided To Governing Body | true | Form990ProvidedToGoverningBody |
| Conflict Of Interest Policy | true | ConflictOfInterestPolicy |
| Annual Disclosure Covered Persons | true | AnnualDisclosureCoveredPersons |
| Regular Monitoring Enforcement | true | RegularMonitoringEnforcement |
| Whistleblower Policy | true | WhistleblowerPolicy |
| Document Retention Policy | true | DocumentRetentionPolicy |
| Compensation Process CEO | true | CompensationProcessCEO |
| Compensation Process Other | true | CompensationProcessOther |
| Investment In Joint Venture | false | InvestmentInJointVenture |
| Own Website | X | OwnWebsite |
| Other Website | X | OtherWebsite |
| Upon Request | X | UponRequest |
The Books Are In Care Of TheBooksAreInCareOf
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Person | ROBERT J BEALL PHD | NamePerson |
| Telephone Number | 3019514422 | TelephoneNumber |
Address US AddressUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 6931 ARLINGTON ROAD STE 200 | AddressLine1 |
| City | BETHESDA | City |
| State | MD | State |
| ZIP Code | 20814 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part VII | X | InfoInScheduleOPartVII |
Form990 Part VII Section A Form990PartVIISectionA (12 entries)
| TitleTitle | Average Hours Per WeekAverageHoursPerWeek | Individual Trustee Or DirectorIndividualTrusteeOrDirector | Reportable Comp From OrganizationReportableCompFromOrganization | Reportable Comp From Related OrgsReportableCompFromRelatedOrgs | Other CompensationOtherCompensation | OfficerOfficer | Key EmployeeKeyEmployee | Highest Compensated EmployeeHighestCompensatedEmployee |
|---|---|---|---|---|---|---|---|---|
| Catherine C McLoud | ||||||||
| DIRECTOR | 3.0 | X | 0 | 0 | 0 | |||
| D PAUL FLESSNER | ||||||||
| director | 3.0 | X | 0 | 0 | 0 | |||
| JONATHAN COHN MD | ||||||||
| director | 3.0 | X | 0 | 0 | 0 | |||
| Steven Shak MD | ||||||||
| DIRECTOR | 3.0 | X | 0 | 0 | 0 | |||
| Theodore J Torphy PhD | ||||||||
| CHAIRMAN | 3.0 | X | 0 | 0 | 0 | |||
| Robert J Beall PhD | ||||||||
| President & CEO | 18.0 | X | 198548 | 403094 | 239406 | X | ||
| C Richard Mattingly | ||||||||
| Exec VP and COO | 5.0 | 0 | 427271 | 172432 | X | |||
| Preston W Campbell MD | ||||||||
| Exec VP of Medical Affairs | 18.0 | 140934 | 278976 | 157898 | X | |||
| Vera H Twigg | ||||||||
| Sr. VP and CFO | 5.0 | 0 | 273807 | 82369 | X | |||
| BRUCE MARSHALL MD | ||||||||
| VP OF CLINICAL AFFAIRS | 50.0 | 270515 | 0 | 25128 | X | |||
| MARTIN MENSE | ||||||||
| PRINCIPAL SCIENTIST DRUG DISC | 50.0 | 132787 | 0 | 28412 | X | |||
| CYNTHIA GEORGE MSN FNP BC | ||||||||
| DIR OF CLINICAL RES RESOURCES | 50.0 | 107372 | 0 | 15442 | X | |||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | 850156 | TotalReportableCompFromOrg |
| Total Reportable Comp Frm Rltd Orgs | 1383148 | TotalReportableCompFrmRltdOrgs |
| Total Other Compensation | 721087 | TotalOtherCompensation |
| Number Individuals GT100 K | 5 | NumberIndividualsGT100K |
| Formers Listed | false | FormersListed |
| Total Comp GT150 K | true | TotalCompGT150K |
| Compensation From Other Sources | false | CompensationFromOtherSources |
Contractor Compensation ContractorCompensation (5 entries)
| Address Line1AddressOfContractor/AddressUS/AddressLine1 | CityAddressOfContractor/AddressUS/City | StateAddressOfContractor/AddressUS/State | ZIP CodeAddressOfContractor/AddressUS/ZIPCode | Description Of ServicesDescriptionOfServices | CompensationCompensation |
|---|---|---|---|---|---|
| FOLDRX PHARMACEUTICALS INC | |||||
| 100 ACORN PARK DRIVE | CAMBRIDGE | MA | 02140 | THERAPEUTICS DISC | 4003786 |
| CHANTEST INC | |||||
| 14556 NEO PARKWAY | CLEVELAND | OH | 44128 | THERAPEUTICS DISC | 2275000 |
| ALBANY MEDICAL RESEARCH INC | |||||
| 26 RESEARCH CIRCLE | ALBANY | NY | 12212 | THERAPEUTICS DISC | 1890694 |
| NAT'L DISEASE RESEARCH INTERCHANGE | |||||
| 1628 JOHN F KENNEDY BLVD | PHILADELPHIA | PA | 19103 | CLINICAL MATERIAL | 237000 |
| PROMEDDX LLC | |||||
| 10 COMMERCE WAY | NORTON | MA | 02766 | TESTING SERVICES | 197654 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Number Of Contractors GT100 K | 10 | NumberOfContractorsGT100K |
| Total Contributions | 0 | TotalContributions |
Program Service Revenue ProgramServiceRevenue (2 entries)
| DescriptionDescription | Business CodeBusinessCode | Total Revenue ColumnTotalRevenueColumn | Related Or Exempt Function IncomeRelatedOrExemptFunctionIncome |
|---|---|---|---|
| CLINICAL STUDY | 541900 | 180000 | 180000 |
| REFUNDED OR CANCELLED GRANTS | 900099 | 220446 | 220446 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | 400446 | TotalProgramServiceRevenue |
Investment Income InvestmentIncome
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 369 | TotalRevenueColumn |
| Exclusion | $369 | ExclusionAmount |
Income From Invest Bond Proceeds IncomeFromInvestBondProceeds
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 0 | TotalRevenueColumn |
Royalties Revenue RoyaltiesRevenue
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 53761115 | TotalRevenueColumn |
| Exclusion | $53,761,115 | ExclusionAmount |
Net Gain Or Loss Investments NetGainOrLossInvestments
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 0 | TotalRevenueColumn |
Net Income From Fundraising Events NetIncomeFromFundraisingEvents
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 0 | TotalRevenueColumn |
Net Income From Gaming NetIncomeFromGaming
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 0 | TotalRevenueColumn |
Net Income Or Loss NetIncomeOrLoss
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 0 | TotalRevenueColumn |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Revenue | 0 | TotalOtherRevenue |
Total Revenue TotalRevenue
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 54161930 | TotalRevenueColumn |
| Related Or Exempt Function Income | 400446 | RelatedOrExemptFunctionIncome |
| Exclusion | $53,761,484 | ExclusionAmount |
Grants To Domestic Orgs GrantsToDomesticOrgs
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 26529182 | Total |
| Program Services | 26529182 | ProgramServices |
Grants To Domestic Individuals GrantsToDomesticIndividuals
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Foreign Grants ForeignGrants
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 2883431 | Total |
| Program Services | 2883431 | ProgramServices |
Benefits To Members BenefitsToMembers
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Comp Current Officers Directors CompCurrentOfficersDirectors
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 733313 | Total |
| Program Services | 672948 | ProgramServices |
| Management And General | 60365 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Comp Disqual Persons CompDisqualPersons
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Other Salaries And Wages OtherSalariesAndWages
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 1804180 | Total |
| Program Services | 1655661 | ProgramServices |
| Management And General | 148519 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Pension Plan Contributions PensionPlanContributions
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 66021 | Total |
| Program Services | 60586 | ProgramServices |
| Management And General | 5435 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Other Employee Benefits OtherEmployeeBenefits
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 108038 | Total |
| Program Services | 99144 | ProgramServices |
| Management And General | 8894 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Payroll Taxes PayrollTaxes
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 130823 | Total |
| Program Services | 119689 | ProgramServices |
| Management And General | 11134 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Fees For Services Management FeesForServicesManagement
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Fees For Services Legal FeesForServicesLegal
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 184806 | Total |
| Program Services | 184806 | ProgramServices |
| Management And General | 0 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Fees For Services Accounting FeesForServicesAccounting
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 4790 | Total |
| Program Services | 0 | ProgramServices |
| Management And General | 4790 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Fees For Services Lobbying FeesForServicesLobbying
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Fees For Services Prof Fundraising FeesForServicesProfFundraising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Fees For Services Invst Mgmnt Fees FeesForServicesInvstMgmntFees
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Fees For Services Other FeesForServicesOther
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 171036 | Total |
| Program Services | 167729 | ProgramServices |
| Management And General | 3307 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Advertising Advertising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Office Expenses OfficeExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 83711 | Total |
| Program Services | 69445 | ProgramServices |
| Management And General | 14266 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Information Technology InformationTechnology
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 242641 | Total |
| Program Services | 232009 | ProgramServices |
| Management And General | 10632 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Royalties Royalties
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Occupancy Occupancy
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 200413 | Total |
| Program Services | 180608 | ProgramServices |
| Management And General | 19805 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Travel Travel
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 125194 | Total |
| Program Services | 121253 | ProgramServices |
| Management And General | 3941 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Travel Entrtnmnt Public Officials TravelEntrtnmntPublicOfficials
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Conferences Meetings ConferencesMeetings
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 54001 | Total |
| Program Services | 52899 | ProgramServices |
| Management And General | 1102 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Interest Interest
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Payments To Affiliates PaymentsToAffiliates
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 11352615 | Total |
| Program Services | 11352615 | ProgramServices |
| Management And General | 0 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Depreciation Depletion DepreciationDepletion
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 71899 | Total |
| Program Services | 69463 | ProgramServices |
| Management And General | 2436 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Insurance Insurance
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 150316 | Total |
| Program Services | 150316 | ProgramServices |
| Management And General | 0 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Other Expenses OtherExpenses (2 entries)
| DescriptionDescription | TotalTotal | Program ServicesProgramServices | Management And GeneralManagementAndGeneral | FundraisingFundraising |
|---|---|---|---|---|
| CONTRACTED RESEARCH | 9260950 | 9260950 | 0 | 0 |
| TRAINING | 4570 | 2431 | 2139 | 0 |
Total Functional Expenses TotalFunctionalExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 54161930 | Total |
| Program Services | 53865165 | ProgramServices |
| Management And General | 296765 | ManagementAndGeneral |
| Fundraising | 0 | Fundraising |
Cash Non Interest Bearing CashNonInterestBearing
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 821382 | BOY |
| EOY | 0 | EOY |
Savings And Temp Cash Investments SavingsAndTempCashInvestments
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 1171289 | BOY |
| EOY | 1068631 | EOY |
Accounts Receivable AccountsReceivable
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 192 | BOY |
| EOY | 66488635 | EOY |
Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 39442 | BOY |
| EOY | 32500 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Buildings Equipment Basis | 300684 | LandBuildingsEquipmentBasis |
| Land Bldg Equipment Accum Deprec | 250825 | LandBldgEquipmentAccumDeprec |
Land Buildings Equipment Basis Net LandBuildingsEquipmentBasisNet
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 90491 | BOY |
| EOY | 49859 | EOY |
Other Assets Total OtherAssetsTotal
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 22546174 | BOY |
| EOY | 0 | EOY |
Total Assets TotalAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 24668970 | BOY |
| EOY | 67639625 | EOY |
Accounts Payable Accrued Expenses AccountsPayableAccruedExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 191156 | BOY |
| EOY | 16758245 | EOY |
Grants Payable GrantsPayable
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 24477814 | BOY |
| EOY | 22749014 | EOY |
Other Liabilities OtherLiabilities
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 0 | BOY |
| EOY | 28132366 | EOY |
Total Liabilities TotalLiabilities
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 24668970 | BOY |
| EOY | 67639625 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Follow SFAS117 | X | FollowSFAS117 |
Total Net Assets Fund Balances TotalNetAssetsFundBalances
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 0 | BOY |
| EOY | 0 | EOY |
Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 24668970 | BOY |
| EOY | 67639625 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expenses | 0 | ReconcilationRevenueExpenses |
| Reconcilation Other Changes | 0 | ReconcilationOtherChanges |
| Method Of Accounting Accrual | X | MethodOfAccountingAccrual |
| Accountant Compile Or Review | false | AccountantCompileOrReview |
| FS Audited | true | FSAudited |
| Audit Committee | true | AuditCommittee |
| Financial Statement Consolidated | X | FinancialStatementConsolidated |
| Federal Grant Audit Required | false | FederalGrantAuditRequired |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Supporting Organization509a3 | X | SupportingOrganization509a3 |
| Supporting Org509a3 Type1 | X | SupportingOrg509a3Type1 |
| Certification Checkbox | X | CertificationCheckbox |
| Contrib By Controlling Individual | false | ContribByControllingIndividual |
| Contribution By Related Party | false | ContributionByRelatedParty |
| Contrib By35 Controlled Entity | false | ContribBy35ControlledEntity |
Supported Org Information SupportedOrgInformation
Name Name
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CYSTIC FIBROSIS FOUNDATION | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 131930701 | EIN |
| Type Of Organization | 07 | TypeOfOrganization |
| Listed In Governing Doc | true | ListedInGoverningDoc |
| Supported Organization Notified | true | SupportedOrganizationNotified |
| Organized In US | true | OrganizedInUS |
| Amount | $11,352,615 | Amount |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Number Of Supported Orgs | 1 | TotalNumberOfSupportedOrgs |
| Sum Of Amounts | 11352615 | SumOfAmounts |
Schedule D IRS990ScheduleD
| Field | Value | IRS element (for citing) |
|---|---|---|
| Art Public Exhibition Amts | ArtPublicExhibitionAmts | |
| Held Works Of Art Amts | HeldWorksOfArtAmts | |
| Land | Land | |
| Buildings | Buildings | |
| Leasehold Improvements | LeaseholdImprovements |
Equipment Equipment
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | 300684 | OtherCostOrOtherBasis |
| Depreciation | 250825 | Depreciation |
| Book Value | 49859 | BookValue |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Land Buildings | OtherLandBuildings | |
| Total Of Book Value Land Buildings | 49859 | TotalOfBookValueLandBuildings |
| Federal Income Tax Liability | 0 | FederalIncomeTaxLiability |
Other Liabilities OtherLiabilities
| Field | Value | IRS element (for citing) |
|---|---|---|
| Description | INTERCOMPANY PAYABLE | Description |
| Amount | $28,132,366 | Amount |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Of Amounts | 28132366 | TotalOfAmounts |
Form990 Schedule D Part XIV Form990ScheduleDPartXIV
| Field | Value | IRS element (for citing) |
|---|---|---|
| Identifier | FIN 48 FOOTNOTE | Identifier |
| Return Reference | FORM 990 SCHEDULE D, PART X, LINE 2 | ReturnReference |
| Explanation | IN 2009, THE FOUNDATION ADOPTED AUTHORITATIVE GUIDANCE SPECIFIC TO THE ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES. THE ADOPTION DID NOT HAVE A MATERIAL EFFECT ON THE FINANCIAL STATEMENTS. | Explanation |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | true | GrantRecordsMaintained |
Accts Actvs Out US Table AcctsActvsOutUSTable (4 entries)
| RegionRegion | Number Of OfficesNumberOfOffices | Number Of EmployeesNumberOfEmployees | Type Of Activities ConductedTypeOfActivitiesConducted | Specific Services ProvidedSpecificServicesProvided | Total ExpendituresTotalExpenditures |
|---|---|---|---|---|---|
| North America | 0 | 0 | Grantmaking | none | 789132 |
| Europe (Including Iceland and Greenland) | 0 | 0 | Grantmaking | none | 1216962 |
| East Asia and the Pacific | 0 | 0 | Grantmaking | none | 794339 |
| Middle East and North Africa | 0 | 0 | Grantmaking | none | 82998 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Number Of Offices | 0 | SubtotalNumberOfOffices |
| Subtotal Number Of Employees | 0 | SubtotalNumberOfEmployees |
| Total Number Of Offices | 0 | TotalNumberOfOffices |
| Total Number Of Employees | 0 | TotalNumberOfEmployees |
| Subtotal Amount Spent | 2883431 | SubtotalAmountSpent |
| Total Amount Spent | 2883431 | TotalAmountSpent |
Grants To Orgs Outside US GrantsToOrgsOutsideUS (15 entries)
| RegionRegion | Purpose Of GrantPurposeOfGrant | Amount Of Cash GrantAmountOfCashGrant | Manner Of Cash DisbursementMannerOfCashDisbursement |
|---|---|---|---|
| North America | CLIN RESEAR | 57049 | CHECK |
| North America | CLIN RESEAR | 100863 | CHECK |
| North America | DRUG DISCOV | 98560 | CHECK |
| North America | DRUG DISCOV | 216000 | CHECK |
| North America | DRUG DISCOV | 262660 | CHECK |
| North America | DRUG DISCOV | 54000 | CHECK |
| Europe/Iceland/Greenland | CLIN RESEAR | 232725 | WIRE |
| Europe/Iceland/Greenland | CLIN RESEAR | 93100 | CHECK |
| Europe/Iceland/Greenland | CLIN RESEAR | 305594 | CHECK |
| Europe/Iceland/Greenland | Drug DISCOV | 100000 | CHECK |
| Europe/Iceland/Greenland | DRUG DISCOV | 168927 | CHECK |
| Europe/Iceland/Greenland | DRUG DISCOV | 203303 | WIRE |
| Europe/Iceland/Greenland | DRUG DISCOV | 113313 | WIRE |
| East Asia/Pacific | CLIN TRIAL | 794339 | CHECK |
| Middle East/North Africa | DRUG DISCOV | 82998 | CHECK |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Number Of501c3 Orgs | 15 | TotalNumberOf501c3Orgs |
| Total Number Of Other Orgs | 0 | TotalNumberOfOtherOrgs |
| Transfer To Foreign Corp | false | TransferToForeignCorp |
| Interest In Foreign Trust | false | InterestInForeignTrust |
| Own Foreign Corp | false | OwnForeignCorp |
| Passive Foreign Invest Co | false | PassiveForeignInvestCo |
| Foreign Partnership | false | ForeignPartnership |
| Boycott Countries | false | BoycottCountries |
Form990 Schedule F Part V Form990ScheduleFPartV
| Field | Value | IRS element (for citing) |
|---|---|---|
| Identifier | Procedures for monitoring grant funds outside of the U.S. | Identifier |
| Return Reference | Schedule F, Part I, Line 2 | ReturnReference |
| Explanation | THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANTS AWARDED TO ENTITIES OUTSIDE OF THE UNITED STATES. THE ORGANIZATION FOLLOWS THE U.S. DEPARTMENT OF TREASURY ANTI-TERRORIST FINANCING VOLUNTARY BEST PRACTICES GUIDELINES FOR CHARITIES. IN COMPLIANCE WITH THE BEST PRACTICES, THE ORGANIZATION COLLECTS AND REVIEWS INFORMATION ABOUT THE PROSPECTIVE GRANTEE INSTITUTIONS AND CONDUCTS A VETTING PROCESS TO ENSURE THEY ARE NOT SUSPECTED OF ACTIVITIES RELATED TO TERRORISM. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE. SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO DETERMINE PROGRESS. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLES OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTIONS. THE GRANT IN THE MIDDLE EAST/NORTH AFRICA REGION WAS MADE TO A UNIVERSITY IN ISRAEL. | Explanation |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Records Maintained | true | RecordsMaintained |
Recipient Table RecipientTable (105 entries)
| Address Line1AddressUS/AddressLine1 | CityAddressUS/City | StateAddressUS/State | ZIP CodeAddressUS/ZIPCode | EIN Of RecipientEINOfRecipient | IRC SectionIRCSection | Amount Of Cash GrantAmountOfCashGrant | Purpose Of GrantPurposeOfGrant | Address Line2AddressUS/AddressLine2 |
|---|---|---|---|---|---|---|---|---|
| Albany Medical College | ||||||||
| Albany NY 12208 | Albany | NY | 12208 | 141338310 | 501c(3) | 71820 | CLINICAL RESEARCH | |
| Arizona Board of Regents University of Arizona | ||||||||
| Tucson AZ 85722 | Tucson | AZ | 85722 | 742652689 | 501c(3) | 187951 | CLINICAL RESEARCH | |
| Atlantic Health System | ||||||||
| Morristown NJ 07962 | Morristown | NJ | 07962 | 521958352 | 501c(3) | 61560 | CLINICAL RESEARCH | |
| Baylor College of Medicine | ||||||||
| Houston TX 77212 | Houston | TX | 77212 | 741613878 | 501c(3) | 78491 | CLINICAL RESEARCH | |
| Case Western Reserve University | ||||||||
| Cleveland OH 44106-7015 | Cleveland | OH | 441067015 | 341018992 | 501c(3) | 458961 | CLINICAL RESEARCH | |
| CFRx Lab LLC | ||||||||
| Charlestown MA 02129 | Charlestown | MA | 02129 | 042763837 | 501c(3) | 551264 | DRUG DISCOVERY | |
| Children's & Women's Physicians of Westchester LL | ||||||||
| Valhalla NY 10595 | Valhalla | NY | 10595 | 133940462 | 501c(3) | 71820 | CLINICAL RESEARCH | |
| Children's Health Care | ||||||||
| Minneapolis MN 55404-1844 | Minneapolis | MN | 554041844 | 411754276 | 501c(3) | 61560 | CLINICAL RESEARCH | |
| Children's Hospital Corporation | ||||||||
| Boston MA 02115 | Boston | MA | 02115 | 042774441 | 501c(3) | 102600 | CLINICAL RESEARCH | Suite 208 |
| Children's Hospital Medical Center of Akron | ||||||||
| Akron OH 44308 | Akron | OH | 44308 | 340714357 | 501c(3) | 82080 | CLINICAL RESEARCH | Munger Pavilion Room 123 |
| Children's Hospital Medical Center Cincinnati | ||||||||
| Cincinnati OH 45229 | Cincinnati | OH | 45229 | 310833936 | 501c(3) | 423461 | CLINICAL RESEARCH | |
| Children's Medical Center | ||||||||
| Dayton OH 45404 | Dayton | OH | 45404 | 310672132 | 501c(3) | 71820 | CLINICAL RESEARCH | |
| Children's Memorial Hospital | ||||||||
| Chicago IL 60614 | Chicago | IL | 60614 | 363357006 | 501c(3) | 172800 | CLINICAL RESEARCH | |
| Children's Mercy Hospital | ||||||||
| Kansas City MO 61408 | Kansas City | MO | 61408 | 440605373 | 501c(3) | 82080 | CLINICAL RESEARCH | |
| Connecticut Children's Medical Center | ||||||||
| Hartford CT 06106 | Hartford | CT | 06106 | 060646755 | 501c(3) | 79454 | CLINICAL RESEARCH | |
| Cook Children's Medical Center | ||||||||
| Ft Worth TX 76104 | Ft Worth | TX | 76104 | 752051646 | 501c(3) | 71820 | CLINICAL RESEARCH | |
| Drexel University College of Medicine | ||||||||
| Philadelphia PA 19129-1191 | Philadelphia | PA | 191291191 | 232979433 | 501c(3) | 82080 | CLINICAL RESEARCH | |
| Duke University Medical Center | ||||||||
| Durham NC 27710 | Durham | NC | 27710 | 560532129 | 501c(3) | 61560 | CLINICAL RESEARCH | |
| Emory University | ||||||||
| Atlanta GA 30322 | Atlanta | GA | 30322 | 580566256 | 501c(3) | 102600 | CLINICAL RESEARCH | |
| Indiana University | ||||||||
| Indianapolis IN 46266-6057 | Indianapolis | IN | 462666057 | 356001673 | 501c(3) | 102369 | CLINICAL RESEARCH | |
| Kaiser Foundation Research Institute | ||||||||
| Oakland CA 94612 | Oakland | CA | 94612 | 941105628 | 501c(3) | 61560 | CLINICAL RESEARCH | |
| LSUMC - Shreveport | ||||||||
| Shreveport LA 71130 | Shreveport | LA | 71130 | 720702002 | 501c(3) | 61560 | CLINICAL RESEARCH | |
| Maine Medical Center | ||||||||
| Portland ME 04102-3175 | Portland | ME | 041023175 | 010238552 | 501c(3) | 236645 | CLINICAL RESEARCH | |
| Maine Medical Center | ||||||||
| Portland ME 04102-3175 | Portland | ME | 041023175 | 010238552 | 501c(3) | 71820 | CLINICAL RESEARCH | |
| Medical College of Georgia | ||||||||
| Atlanta GA 30394 | Atlanta | GA | 30394 | 586002053 | 501c(3) | 79209 | CLINICAL RESEARCH | |
| Medical University of South Carolina | ||||||||
| Charleston SC 29402 | Charleston | SC | 29402 | 576000722 | 501c(3) | 149903 | CLINICAL RESEARCH | |
| Medical University of South Carolina | ||||||||
| Charleston SC 29402 | Charleston | SC | 29402 | 576000722 | 501c(3) | 24754 | ACADEMIC ADVISORY AWARDS | |
| Monmouth Medical Center Foundation | ||||||||
| Long Branch NJ 07740 | Long Branch | NJ | 07740 | 222456079 | 501c(3) | 71820 | CLINICAL RESEARCH | |
| Nemours Children's Clinic Orlando | ||||||||
| Orlando FL 32801 | Orlando | FL | 32801 | 590634433 | 501c(3) | 232792 | CLINICAL RESEARCH | |
| Oregon Health & Sciences University | ||||||||
| Portland OR 97201 | Portland | OR | 97201 | 237083114 | 501c(3) | 52920 | CLINICAL RESEARCH | |
| Oregon Health & Sciences University | ||||||||
| Portland OR 97201 | Portland | OR | 97201 | 237083114 | 501c(3) | 270000 | DRUG DISCOVERY | |
| Pennsylvania State University | ||||||||
| Hershey PA 17033 | Hershey | PA | 17033 | 246000376 | 501c(3) | 82080 | CLINICAL RESEARCH | |
| Phoenix Children's Hospital | ||||||||
| Phoenix AZ 85006 | Phoenix | AZ | 85006 | 860422559 | 501c(3) | 71820 | CLINICAL RESEARCH | |
| Providence Alaska Medical Center | ||||||||
| Anchorage AK 99508 | Anchorage | AK | 99508 | 510216586 | 501c(3) | 41599 | CLINICAL RESEARCH | L-106 |
| Regents of the University of Colorado at Denver an | ||||||||
| Aurora CO 80045 | Aurora | CO | 80045 | 846000555 | 501c(3) | 226504 | CLINICAL RESEARCH | |
| Rosalind Franklin University of Medicine and Scien | ||||||||
| North Chicago IL 60064 | North Chicago | IL | 60064 | 362181973 | 501c(3) | 398912 | DRUG DISCOVERY | |
| Sanford Clinic | ||||||||
| Sioux Falls SD 57117 | Sioux Falls | SD | 57117 | 460447693 | 501c(3) | 61560 | CLINICAL RESEARCH | |
| Seattle Children's Hospital | ||||||||
| Seattle WA 98105 | Seattle | WA | 98105 | 910564748 | 501c(3) | 3005545 | CLINICAL TRIALS | 13123 East 16th Avenue B395 |
| Seattle Children's Hospital | ||||||||
| Seattle WA 98105 | Seattle | WA | 98105 | 910564748 | 501c(3) | 5003553 | CLINICAL RESEARCH | |
| Spectrum Health | ||||||||
| Grand Rapids MI 49503 | Grand Rapids | MI | 49503 | 382752328 | 501c(3) | 71820 | CLINICAL RESEARCH | |
| St Luke's Regional Medical Center | ||||||||
| Boise ID 83712 | Boise | ID | 83712 | 820161600 | 501c(3) | 61560 | CLINICAL RESEARCH | |
| Stanford University | ||||||||
| Stanford CA 94305-6215 | Stanford | CA | 943056215 | 941156365 | 501c(3) | 474140 | CLINICAL RESEARCH | |
| Stanford University | ||||||||
| Stanford CA 94305-6215 | Stanford | CA | 943056215 | 941156365 | 501c(3) | 108000 | DRUG DISCOVERY | |
| SUNY Upstate Medical University | ||||||||
| Syracuse NY 13210 | Syracuse | NY | 13210 | 141368361 | 501c(3) | 76361 | CLINICAL RESEARCH | |
| Texas Tech University Health Sciences Center | ||||||||
| Lubbock TX 79430 | Lubbock | TX | 79430 | 752668014 | 501c(3) | 105594 | DRUG DISCOVERY | |
| The Children's Hospital Association | ||||||||
| Aurora CO 80045 | Aurora | CO | 80045 | 840166760 | 501c(3) | 618907 | CLINICAL RESEARCH | |
| The Children's Hospital of Philadelphia | ||||||||
| Philadelphia PA 19104 | Philadelphia | PA | 19104 | 231352166 | 501c(3) | 101261 | CLINICAL RESEARCH | |
| The Cystic Fibrosis Center at St Vincent's Hospit | ||||||||
| New York NY 10011 | New York | NY | 10011 | 135562343 | 501c(3) | 35910 | CLINICAL RESEARCH | |
| The General Hospital Corporation (aka Massachuse | ||||||||
| Boston MA 02114 | Boston | MA | 02114 | 042697983 | 501c(3) | 85271 | DRUG DISCOVERY | |
| The General Hospital Corporation (aka Massachuse | ||||||||
| Boston MA 02114 | Boston | MA | 02114 | 042697983 | 501c(3) | 82080 | CLINICAL RESEARCH | |
| The Hitchcock Foundation | ||||||||
| Lebanon NH 03756 | Lebanon | NH | 03756 | 020222139 | 501c(3) | 71820 | CLINICAL RESEARCH | |
| The Johns Hopkins University | ||||||||
| Baltimore MD 21205 | Baltimore | MD | 21205 | 520595110 | 501c(3) | 791988 | CLINICAL RESEARCH | |
| The Johns Hopkins University | ||||||||
| Baltimore MD 21205 | Baltimore | MD | 21205 | 520595110 | 501c(3) | 291600 | DRUG DISCOVERY | |
| The Medical College of Wisconsin | ||||||||
| Milwaukee WI 53226 | Milwaukee | WI | 53226 | 390806261 | 501c(3) | 75872 | CLINICAL RESEARCH | |
| The Rector and Visitors of the University of Virgi | ||||||||
| Charlottesville VA 22904-4195 | Charlottesville | VA | 229044195 | 546001796 | 501c(3) | 82080 | CLINICAL RESEARCH | MC0831 |
| The Regents of the University of California San D | ||||||||
| La Jolla CA 92093-0984 | La Jolla | CA | 920930984 | 956006144 | 501c(3) | 130557 | CLINICAL RESEARCH | MC0831 |
| The Regents of the University of California San D | ||||||||
| La Jolla CA 92093-0984 | La Jolla | CA | 920930984 | 956006144 | 501c(3) | 324000 | DRUG DISCOVERY | Room 1044 |
| The Regents of The University of Michigan | ||||||||
| Ann Arbor MI 48109-1274 | Ann Arbor | MI | 481091274 | 386006309 | 501c(3) | 499126 | CLINICAL RESEARCH | Room 1044 |
| The Regents of the University of Minnesota | ||||||||
| Minneapolis MN 55455-2070 | Minneapolis | MN | 554552070 | 416007513 | 501c(3) | 172800 | CLINICAL RESEARCH | 200 Oak Street SE Suite 450 |
| The Research Institute at Nationwide Children's Ho | ||||||||
| Columbus OH 43205 | Columbus | OH | 43205 | 316056230 | 501c(3) | 75188 | DRUG DISCOVERY | |
| The Research Institute at Nationwide Children's Ho | ||||||||
| Columbus OH 43205 | Columbus | OH | 43205 | 316056230 | 501c(3) | 172800 | CLINICAL RESEARCH | |
| The Scripps Research Institute | ||||||||
| La Jolla CA 92037 | La Jolla | CA | 92037 | 330435954 | 501c(3) | 504000 | DRUG DISCOVERY | General Post Office |
| The Trustees of Columbia University in the City of | ||||||||
| New York NY 10087-9789 | New York | NY | 100879789 | 135598093 | 501c(3) | 63240 | DRUG DISCOVERY | General Post Office |
| The Trustees of Columbia University in the City of | ||||||||
| New York NY 10087-9789 | New York | NY | 100879789 | 135598093 | 501c(3) | 82080 | CLINICAL RESEARCH | |
| The Trustees of Columbia University in the City of | ||||||||
| New York NY 10087-9789 | New York | NY | 100879789 | 135598093 | 501c(3) | 44920 | ACADEMIC ADVISORY AWARDS | |
| The University of Alabama at Birmingham | ||||||||
| Birmingham AL 35233 | Birmingham | AL | 35233 | 636005396 | 501c(3) | 1014632 | DRUG DISCOVERY | Suite 620 ACC |
| The University of Alabama at Birmingham | ||||||||
| Birmingham AL 35233 | Birmingham | AL | 35233 | 636005396 | 501c(3) | 347922 | CLINICAL RESEARCH | Suite 620 ACC |
| The University of Alabama at Birmingham | ||||||||
| Birmingham AL 35233 | Birmingham | AL | 35233 | 636005396 | 501c(3) | 56841 | ACADEMIC ADVISORY AWARDS | 970 E 58th Street |
| The University of Chicago | ||||||||
| Chicago IL 60637 | Chicago | IL | 60637 | 362177139 | 501c(3) | 61560 | CLINICAL RESEARCH | |
| The University of Iowa | ||||||||
| Iowa City IA 52242 | Iowa City | IA | 52242 | 426004813 | 501c(3) | 263207 | DRUG DISCOVERY | Division of Sponsored Programs |
| The University of Iowa | ||||||||
| Iowa City IA 52242 | Iowa City | IA | 52242 | 426004813 | 501c(3) | 172800 | CLINICAL RESEARCH | |
| The University of North Carolina at Chapel Hill | ||||||||
| Chapel Hill NC 27599-4100 | Chapel Hill | NC | 275994100 | 566001393 | 501c(3) | 673368 | CLINICAL RESEARCH | |
| The University of North Carolina at Chapel Hill | ||||||||
| Chapel Hill NC 27599-4100 | Chapel Hill | NC | 275994100 | 566001393 | 501c(3) | 789363 | CLINICAL TRIALS | |
| The University of North Carolina at Chapel Hill | ||||||||
| Chapel Hill NC 27599-4100 | Chapel Hill | NC | 275994100 | 566001393 | 501c(3) | 1071552 | DRUG DISCOVERY | Dept of Microbiology and Immunolog |
| The University of North Carolina at Chapel Hill | ||||||||
| Chapel Hill NC 27599-4100 | Chapel Hill | NC | 275994100 | 566001393 | 501c(3) | 25861 | ACADEMIC ADVISORY AWARDS | |
| The University of Vermont and State Agricultural C | ||||||||
| Burlington VT 5405 | Burlington | VT | 05405 | 030179440 | 501c(3) | 82080 | CLINICAL RESEARCH | 2nd Floor |
| Toledo Children's Hospital | ||||||||
| Toledo OH 43606 | Toledo | OH | 43606 | 344428256 | 501c(3) | 82080 | CLINICAL RESEARCH | 438 Whitney Road Ext U-1133 |
| Trustees of Dartmouth College | ||||||||
| Hanover NH 03755-1404 | Hanover | NH | 037551404 | 020222111 | 501c(3) | 62429 | ACADEMIC ADVISORY AWARDS | |
| University at Buffalo Pediatric Associates | ||||||||
| Buffalo NY 14222 | Buffalo | NY | 14222 | 161238821 | 501c(3) | 82080 | CLINICAL RESEARCH | |
| University at Buffalo Pediatric Associates | ||||||||
| Buffalo NY 14222 | Buffalo | NY | 14222 | 161238821 | 501c(3) | 179896 | ACADEMIC ADVISORY AWARDS | |
| University of Connecticut | ||||||||
| Storrs CT 06269-1133 | Storrs | CT | 062691133 | 060772160 | 501c(3) | 97134 | DRUG DISCOVERY | |
| University of Kentucky Research Foundation | ||||||||
| Lexington KY 40506-0005 | Lexington | KY | 405060005 | 616033693 | 501c(3) | 81700 | CLINICAL RESEARCH | |
| University of Massachusetts Medical School | ||||||||
| Worcester MA 01655 | Worcester | MA | 01655 | 043167352 | 501c(3) | 61560 | CLINICAL RESEARCH | |
| University of Miami | ||||||||
| Miami FL 33102-5405 | Miami | FL | 331025405 | 590624458 | 501c(3) | 71474 | CLINICAL RESEARCH | |
| University of Nebraska Medical Center | ||||||||
| Omaha NE 68198-5190 | Omaha | NE | 681985190 | 470491233 | 501c(3) | 82080 | CLINICAL RESEARCH | |
| University of New Mexico Health Sciences Center | ||||||||
| Albuquerque NM 87131-0001 | Albuquerque | NM | 871310001 | 856000642 | 501c(3) | 39708 | CLINICAL RESEARCH | 601 Elmwood Avenue |
| University of Oklahoma Health Sciences Center | ||||||||
| Oklahoma City OK 73190 | Oklahoma City | OK | 73190 | 736017987 | 501c(3) | 71820 | CLINICAL RESEARCH | |
| University of Pittsburgh | ||||||||
| Pittsburgh PA 15260 | Pittsburgh | PA | 15260 | 250965591 | 501c(3) | 476667 | DRUG DISCOVERY | |
| University of Pittsburgh | ||||||||
| Pittsburgh PA 15260 | Pittsburgh | PA | 15260 | 250965591 | 501c(3) | 208758 | CLINICAL RESEARCH | |
| University of Rochester Medical Center | ||||||||
| Rochester NY 14642 | Rochester | NY | 14642 | 160743209 | 501c(3) | 82080 | CLINICAL RESEARCH | |
| University of South Alabama | ||||||||
| Mobile AL 36688 | Mobile | AL | 36688 | 630477348 | 501c(3) | 108000 | DRUG DISCOVERY | |
| University of Southern California | ||||||||
| Los Angeles CA 90033 | Los Angeles | CA | 90033 | 951642394 | 501c(3) | 61560 | CLINICAL RESEARCH | |
| University of Tennessee | ||||||||
| Memphis TN 38163 | Memphis | TN | 38163 | 626001636 | 501c(3) | 76930 | CLINICAL RESEARCH | |
| University of Texas Health Science Center at San A | ||||||||
| San Antonio TX 78229 | San Antonio | TX | 78229 | 741586031 | 501c(3) | 71820 | CLINICAL RESEARCH | |
| University of Utah | ||||||||
| Salt Lake City UT 84102 | Salt Lake City | UT | 84102 | 876000525 | 501c(3) | 102600 | CLINICAL RESEARCH | |
| University of Washington | ||||||||
| Seattle WA 98105-6692 | Seattle | WA | 981056692 | 916001537 | 501c(3) | 313321 | CLINICAL RESEARCH | |
| University of Wisconsin Board of Regents | ||||||||
| Madison WI 53706 | Madison | WI | 53706 | 396006492 | 501c(3) | 263134 | CLINICAL RESEARCH | |
| UT Southwestern Medical Center at Dallas | ||||||||
| Dallas TX 75390-9040 | Dallas | TX | 753909040 | 756002868 | 501c(3) | 292964 | DRUG DISCOVERY | |
| Vanderbilt University Medical Center | ||||||||
| Nashville TN 37241-0195 | Nashville | TN | 372410195 | 620476822 | 501c(3) | 82080 | CLINICAL RESEARCH | |
| Via Christi Regional Medical Center Inc | ||||||||
| Wichita KS 67214 | Wichita | KS | 67214 | 481172106 | 501c(3) | 61560 | CLINICAL RESEARCH | Research and Sponsored Programs |
| Virginia Commonwealth University | ||||||||
| Richmond VA 23284-2506 | Richmond | VA | 232842506 | 546001758 | 501c(3) | 81482 | CLINICAL RESEARCH | One Waterfront Place |
| Washington University | ||||||||
| St Louis MO 63110 | St Louis | MO | 63110 | 430653611 | 501c(3) | 190080 | CLINICAL RESEARCH | PO Box 208047 |
| Wayne State University | ||||||||
| Detroit MI 48201 | Detroit | MI | 48201 | 383028425 | 501c(3) | 82080 | CLINICAL RESEARCH | |
| West Virginia University Research Corporation | ||||||||
| Morgantown WV 26506-6001 | Morgantown | WV | 265066001 | 550665758 | 501c(3) | 52686 | CLINICAL RESEARCH | |
| Yale University | ||||||||
| New Haven CT 06520-8047 | New Haven | CT | 065208047 | 060646973 | 501c(3) | 60968 | CLINICAL RESEARCH | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Nbr Of501 C3 And Govt Grants | 87 | TotalNbrOf501C3AndGovtGrants |
| Total Nbr Of Other Organizations | 0 | TotalNbrOfOtherOrganizations |
Form990 Schedule I Part IV Form990ScheduleIPartIV
| Field | Value | IRS element (for citing) |
|---|---|---|
| Identifier | PROCEDURES FOR MONITORING GRANT FUNDS INSIDE OF THE U.S. | Identifier |
| Return Reference | PART I, LINE 2 | ReturnReference |
| Explanation | THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANT FUNDS AWARDED TO ENTITIES INSIDE OF THE US. SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED AND APPROVED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO DETERMINE PROGRESS. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON A SAMPLE OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTIONS. | Explanation |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Compensation Committee | X | CompensationCommittee |
| Independent Consultant | X | IndependentConsultant |
| Form990 Of Other Organizations | X | Form990OfOtherOrganizations |
| Written Employment Contract | X | WrittenEmploymentContract |
| Compensation Survey | X | CompensationSurvey |
| Board Or Committee Approval | X | BoardOrCommitteeApproval |
| Severance Payment | false | SeverancePayment |
| Supplemental Nonqual Retire Plan | true | SupplementalNonqualRetirePlan |
| Equity Based Comp Arrangement | false | EquityBasedCompArrangement |
| Comp Based On Revenue Of Filing Org | false | CompBasedOnRevenueOfFilingOrg |
| Comp Based On Revenue Related Orgs | false | CompBasedOnRevenueRelatedOrgs |
| Comp Based Net Earnings Filing Org | false | CompBasedNetEarningsFilingOrg |
| Comp Based Net Earnings Relate Orgs | false | CompBasedNetEarningsRelateOrgs |
| Any Non Fixed Payments | false | AnyNonFixedPayments |
| Initial Contract Exception | false | InitialContractException |
Form990 Schedule J Part II Form990ScheduleJPartII (6 entries)
| Base Compensation Filing OrgBaseCompensationFilingOrg | Comp Based On Related OrgsCompBasedOnRelatedOrgs | Bonus Filing OrgBonusFilingOrg | Bonus Related OrgsBonusRelatedOrgs | Other Compensation Filing OrgOtherCompensationFilingOrg | Other Compensation Related OrgsOtherCompensationRelatedOrgs | Deferred Comp Filing OrgDeferredCompFilingOrg | Deferred Comp Related OrgsDeferredCompRelatedOrgs | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrg | Nontaxable Benefits Related OrgsNontaxableBenefitsRelatedOrgs | Total Compensation Filing OrgTotalCompensationFilingOrg | Total Compensation Related OrgsTotalCompensationRelatedOrgs | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrg | Comp Report Prior990 Related OrgsCompReportPrior990RelatedOrgs |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Robert J Beall PhD | |||||||||||||
| 164014 | 323652 | 26599 | 54003 | 7935 | 25439 | 63690 | 154438 | 0 | 21275 | 262238 | 578807 | 26599 | 54003 |
| C Richard Mattingly | |||||||||||||
| 0 | 345800 | 0 | 62006 | 0 | 19465 | 0 | 149016 | 0 | 23416 | 0 | 599703 | 0 | 62006 |
| Preston W Campbell MD | |||||||||||||
| 115272 | 222712 | 20217 | 41046 | 5445 | 15218 | 34498 | 95170 | 0 | 28230 | 175432 | 402376 | 20217 | 41046 |
| Vera H Twigg | |||||||||||||
| 0 | 237095 | 0 | 25969 | 0 | 10743 | 0 | 54772 | 0 | 27597 | 0 | 356176 | 0 | 25969 |
| BRUCE MARSHALL MD | |||||||||||||
| 268193 | 0 | 0 | 0 | 2322 | 0 | 25128 | 0 | 0 | 0 | 295643 | 0 | 0 | 0 |
| MARTIN MENSE | |||||||||||||
| 132511 | 0 | 276 | 0 | 0 | 0 | 3015 | 0 | 25397 | 0 | 161199 | 0 | 0 | 0 |
Form990 Schedule J Part III Form990ScheduleJPartIII (2 entries)
| IdentifierIdentifier | Return ReferenceReturnReference | ExplanationExplanation |
|---|---|---|
| SUPPLEMENTAL NONQUALIFIED RETIREMENT PLAN | PART I, LINE 4B | Part I, Line 4b: Certain persons listed in Form 990, Part VII, Section A participate in a nonqualified deferred compensation plan, under which interests are forfeited by the participant if the participant voluntarily terminates employment prior to designated vesting date. Further information about the nonqualified deferred compensation plan in which those persons participate is provided in the additional information for Schedule J, Part II, below. |
| COMPENSATION | PART II | Cystic Fibrosis Foundation Therapeutics, Inc. EIN 91-2059167. (A) Name: R. Beall, Ph.D.; (B)(i) Base Compensation: base salary - $156,754, 401(k) bonus - $7,260; (B)(ii) Bonus & Incentive Compensation : long-term incentive plan payment, which was previously reported (1) - $26,599; (B)(iii) Other Reportable Compensation: health insurance benefit - $1,434, automobile allowance - $2,376, other benefits including general organization group term life insurance premiums - $4,125; (C) Deferred Compensation: long-term incentive plan benefits (6) - $31,350, SERP (3) - $32,340; (D) Nontaxable Benefits: $0 Cystic Fibrosis Foundation - Headquarters. (A) Name: R. Beall, Ph.D.; (B)(i) Base Compensation: base salary - $308,912, 401(k) bonus - $14,740; (B)(ii) Bonus & Incentive Compensation: long-term incentive plan payment, which was previously reported (1) - $54,003; (B)(iii) Other Reportable Compensation: health insurance benefit - $2,912, automobile allowance - $4,824, other benefits including taxable general organization group term life insurance premiums - $17,703; (C) Deferred Compensation: retirement benefit (2) - $25,128, long-term incentive plan benefits (6) - $63,650, SERP (3) - $65,660; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $11,932, employee contribution to flexible spending account benefit - $5,000, employee contribution to general organization health plan benefit - $4,346 Cystic Fibrosis Foundation Therapeutics, Inc. EIN 91-2059167. (A) Name: P. Campbell, M.D.; (B)(i) Base Compensation: base salary - $115,272; (B)(ii) Bonus & Incentive Compensation: long-term incentive plan payment, which was previously reported (1) - $20,217; (B)(iii) Other Reportable Compensation: Section 457(b) Plan (5) - $5,445; (C) Deferred Compensation: long-term incentive plan benefit (6) - $23,077, SERP (4) - $11,421; (D) Nontaxable Benefits: $0 Cystic Fibrosis Foundation - Headquarters. (A) Name: P. Campbell, M.D.; (B)(i) Base Compensation: base salary - $222,712; (B)(ii) Bonus & Incentive Compensation: long-term incentive plan payment, which was previously reported (1) - $41,046; (B)(iii) Other Reportable Compensation: other benefits including taxable general organization group term life insurance premiums - $4,163, Section 457(b) Plan (5) - $11,055; (C) Deferred Compensation: retirement benefit (2) - $25,128, long-term incentive plan benefits (6) - $46,855, SERP (4) - $23,187; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $16,905, employee contribution to flexible spending account benefit - $5,000, employee contribution to general organization health plan benefit - $6,325 Cystic Fibrosis Foundation - Headquarters. Name: (A) R. Mattingly; (B)(i) Base Compensation: base salary - $345,800; (B)(ii) Bonus & Incentive Compensation: long-term incentive plan payment, which was previously reported (1) - $62,006; (B)(iii) Other Reportable Compensation: Section 457(b) Plan (5) - $16,500; other benefits including taxable general organization group term life insurance premiums - $2,965; (C) Deferred Compensation: retirement benefit (2) - $25,128, long-term incentive plan benefit (6) - $70,780, SERP (4) - $53,108; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $15,273, employee contribution to flexible spending account benefit - $2,500, employee contribution to general organization health plan benefit - $5,640 Cystic Fibrosis Foundation - Headquarters. (A) Name: V. Twigg; (B)(i) Base Compensation: base salary - $237,095; (B)(ii) Bonus & Incentive Compensation: long-term incentive plan payment, which was previously reported (1)- $25,969; (B)(iii) Other Reportable Compensation: taxable general organization group term life insurance premiums - $1,368, Section 457(b) Plan (5) - $9,375; (C) Deferred Compensation: retirement benefit (2) - $25,128, long-term incentive plan benefit (6) - $29,644; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $17,908, employee contribution to flexible spending account benefit - $5,000, employee contribution to general organization health plan benefit - $4,689 (1) This figure represents payment of an award that accrued over a three-year performance period (years 2007-2009), and which was based on achievement of long term performance standards established in advance by the Compensation Committee. As required, this award was reported as "Deferred Compensation" on prior years' Forms 990 in each year it accrued and therefore (as required by the instructions) is double-reported here. (2) This is the employer contribution made under the Cystic Fibrosis Foundation 401(k) Plan for the 2010 Plan Year. (3) The SERP is sponsored by CFF, a related organization. The executive participates by virtue of being an officer of CFF. CFFT makes contributions on the participant's behalf to the SERP. A. This is an unvested employer contribution to the SERP. B. SERP interests are forfeited by the participant if the participant voluntarily terminates employment prior to December 31, 2012. C. SERP interests are held in a trust subject to the claims of CFF's bankruptcy creditors. In the event of a CFF bankruptcy, participants would become general unsecured creditors of CFF. D. The SERP is a nonqualified deferred compensation plan. This means that participants do not receive the tax benefits available to participants in tax qualified retirement plans. E. The SERP's design was reviewed and opined upon as reasonable by an independent compensation consultant. SERP contribution amounts were determined by an independent actuary. For example, under current law, interests under those arrangements are reportable as taxable compensation when they become vested, even if those amounts are not yet payable to the participant (and even if those amounts are never paid to the participant). F. CFF retains the right to amend or terminate the SERP at any time. (4) The SERP is sponsored by CFF, a related organization. The executive participates by virtue of being an officer of CFF. CFFT makes contributions on the participant's behalf to the SERP. A. This is an unvested employer contribution to the SERP. B. SERP interests are forfeited by the participant if the participant voluntarily terminates employment prior to attaining age 60. C. In the event of a CFF bankruptcy, participants are general unsecured creditors of CFF. D. The SERP is a nonqualified deferred compensation plan. This means that participants do not receive the tax benefits available to participants in tax qualified retirement plans. E. The SERP's design was reviewed and opined upon as reasonable by an independent compensation consultant. An independent actuary developed the contribution formula pursuant to which SERP contribution amounts are determined. F. CFF retains the right to amend or terminate the SERP at any time. (5) The 457(b) Plan is sponsored by CFF, a related organization. The executive participates by virtue of being an officer of CFF. CFFT makes contributions on the participant's behalf to the Plan. A. This is a vested contribution to the 457(b) Plan for the reporting period. B. In the event of a CFF bankruptcy, participants are general unsecured creditors of CFF. C. Distributions from the 457(b) Plan may not be rolled-over to an IRA or qualified plan (but may only be rolled-over to another 457(b) plan). D. The 457(b) Plan's design was reviewed and opined upon as reasonable by an independent compensation consultant. An independent actuary developed the contribution formula pursuant to which 457(b) contribution amounts are determined. Contributions to the 457(b) Plan are subject to annual IRS limits (currently $16,500). E. CFF retains the right to amend or terminate the 457(b) Plan at any time. (6) This Plan provides for awards related to a 3-year performance period, which ends on 12/31/12, based on achievement of performance objectives established in advance by the Compensation Committee. The individual must be employed on 12/31/12 to be eligible to receive full payment of the award. As required by the Form 990 instructions, this reported amount is an estimate of the portion of the award that accrued under the Plan by the executive for performance in 2010 but it has not been earned, awarded or paid under the Plan. |
Schedule O IRS990ScheduleO
General Explanation GeneralExplanation (9 entries)
| IdentifierIdentifier | Return ReferenceReturnReference | ExplanationExplanation |
|---|---|---|
| GOVERNING BODY APPOINTMENTS | Part VI, Section A, Line 7a (Page 6 Core Form) | Certain of the Organization's board members are designated by the Board of Trustees of the Cystic Fibrosis Foundation. |
| REVIEW OF 990 BY GOVERNING BODY | Part VI, Section B, Line 11b (Page 6 Core Form) | The Organization's Board of Directors receives a draft of the Form 990 prior to its being filed, with sufficient time for review and comment allowed. The Compensation Committee AND the Organization's ERISA attorneys review the executive compensation sections of the Form 990 to ensure completeness and accuracy. The Audit Committee also reviews the Form 990 as part of its chartered responsibilities. |
| CONFLICT OF INTEREST MONITORING | Part VI, Section B, Line 12c (Page 6 Core Form) | A conflict of interest disclosure statement is completed annually by each Board member and officer. Disclosures provided are reported to the Nominating and Governance Committee, the Audit Committee and the Board of Trustees. As required within the bylaws, any potential conflicts of interest must be reported to the Board as they arise. When any matter is deemed a potential conflict of interest and requires action by the Board of Trustees, the interested trustee or officer is required to retire from the room in which the Board or its committee is meeting, may not participate in the final deliberation of the matter, and may not vote on the matter. The Organization enforced the policy during 2010 and had no conflicts of interest as defined by the policy. |
| DETERMINING COMPENSATION | Part VI, Section B, Line 15a and 15b (Page 6 Core Form) | The total compensation of executives at the Organization is specifically designed to attract and retain the highest qualified executive and medical talent to fulfill the critically important mission of assuring the development of the means to cure and control CF and improving the quality of life for those with the disease. Cystic Fibrosis Foundation Therapeutics, Inc. shares officers with Cystic Fibrosis Foundation, a related organization. The independent Compensation Committee of the CF Foundation's Board of Trustees (who also is independent with respect to CFFT and its officers) follows the process described in the IRS intermediate sanctions rules when determining compensation for the CFFT / CFF officers. Specifically, the Committee: (1) Is composed entirely of non-employee volunteer directors who have no familial, business or significant personal relationships with the Organization or its executives. (2) Assesses the short-term and long-term contribution and performance of each executive in meeting very definitive and quantifiable objectives focused on the CF Foundation's mission success. (3) Engages an independent compensation consulting firm to compile appropriate comparability data (including compensation market information for peers with whom the CF Foundation competes for executive talent) for committee reliance. The committee meets with representatives of the consulting firm to review this data in detail. (4) Reviews all elements of each executive's total compensation, including but not limited to base salary, bonuses, perquisites, fringe benefits, and incentive and deferred compensation arrangements. Upon the executive's hire, and at each point in time thereafter at which a new or revised compensation arrangement is under consideration with respect to the executive, the committee meets with its independent compensation consulting firm before the arrangement is implemented to evaluate the reasonableness of the arrangement by comparing both the arrangement itself and the executive's entire compensation package to compensation packages paid by similarly situated organizations for functionally comparable positions. (5) Documents, concurrently with its determination, the basis for its determination in the minutes of its meeting. These minutes are reviewed, revised if necessary and approved at the following meeting of the committee. (6) Obtains a written legal opinion concerning the committee's compliance with the IRS intermediate sanctions rules. The process described above was used to establish compensation for the cfft/cff officeRs or positions: President & CEO Executive Vice President & COO Executive Vice President for Medical Affairs Senior Vice President & CFO The process was last undertaken in 2009. |
| PUBLIC INSPECTION | Part VI, Section C, Line 19 (Page 6 Core Form) | Forms 1023 and 990-T for the Organization are available on its website, CFF.org. The Organization's website provides a link to Guidestar.org for access to Form 990. The Foundation's governing documents (Bylaws and Articles of Incorporation) are available upon request by contacting the National Office of the Cystic Fibrosis Foundation in writing or by phone. Information on how to obtain the governing documents is also available on the Foundation's website, www.cff.org. The Board and Officer Conflict of Interest Policy and the audited financial statements are available on the Foundation's website, www.cff.org. |
| HOURS DEVOTED FOR RELATED ORGANIZATION | FORM 990 PART VII | NAME:Robert J. Beall, Ph.D. TITLE:President & CEO HOURS:39 |
| HOURS DEVOTED FOR RELATED ORGANIZATION | FORM 990 PART VII | NAME:C. Richard Mattingly TITLE:Exec VP and COO HOURS:55 |
| HOURS DEVOTED FOR RELATED ORGANIZATION | FORM 990 PART VII | NAME:Preston W. Campbell, MD TITLE:Exec VP of Medical Affairs HOURS:39 |
| HOURS DEVOTED FOR RELATED ORGANIZATION | FORM 990 PART VII | NAME:Vera H. Twigg TITLE:Sr. VP and CFO HOURS:55 |
Schedule R IRS990ScheduleR
Form990 Schedule R Part II Form990ScheduleRPartII (2 entries)
| Address Line1AddressUS/AddressLine1 | CityAddressUS/City | StateAddressUS/State | ZIP CodeAddressUS/ZIPCode | EINEIN | Primary ActivitiesPrimaryActivities | Legal Domicile StateLegalDomicileState | Exempt Code SectionExemptCodeSection | Public Charity StatusPublicCharityStatus | Business Name Line1DirectControllingEntityName/BusinessNameLine1 |
|---|---|---|---|---|---|---|---|---|---|
| CYSTIC FIBROSIS FOUNDATION-HEADQUARTERS | |||||||||
| 6931 ARLINGTON RD | bethesda | MD | 20814 | 131930701 | research | DE | 501(C)(3) | 7 | na |
| CYSTIC FIBROSIS FOUNDATION - GROUP | |||||||||
| 6931 ARLINGTON RD | BETHESDA | MD | 20814 | 136161105 | EDUCATION | DE | 501(C)(3) | 7 | CFF-HQ |
Form990 Schedule R Part IV Form990ScheduleRPartIV
Name Of Related Org NameOfRelatedOrg
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CYSTIC FIBROSIS SERVICES INC | BusinessNameLine1 |
Address US AddressUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 6931 ARLINGTON RD | AddressLine1 |
| City | BETHESDA | City |
| State | MD | State |
| ZIP Code | 20814 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 521850490 | EIN |
| Primary Activity | pharmacy | PrimaryActivity |
| Legal Domicile State | MD | LegalDomicileState |
Direct Controlling Entity Name DirectControllingEntityName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CFF PHARMACY | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Type Of Entity | c | TypeOfEntity |
| Share Of Total Income | 0 | ShareOfTotalIncome |
| Share Of EOY Assets | 0 | ShareOfEOYAssets |
| Percentage Ownership | 0.00000 | PercentageOwnership |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Receipt Of Int Ann Rents Royalties | false | ReceiptOfIntAnnRentsRoyalties |
| Gift Grant Or Cap Contr To Other Org | true | GiftGrantOrCapContrToOtherOrg |
| Gift Grant Or Cap Contr Fr Other Org | false | GiftGrantOrCapContrFrOtherOrg |
| Loans Or Guarantees To Other Org | false | LoansOrGuaranteesToOtherOrg |
| Loans Or Guarantees From Other Org | false | LoansOrGuaranteesFromOtherOrg |
| Sale Of Assets To Other Org | false | SaleOfAssetsToOtherOrg |
| Purchase Of Assets From Other Org | false | PurchaseOfAssetsFromOtherOrg |
| Exchange Of Assets | false | ExchangeOfAssets |
| Rental Of Facilities To Other Orgs | false | RentalOfFacilitiesToOtherOrgs |
| Rental Of Facilities Fr Other Orgs | false | RentalOfFacilitiesFrOtherOrgs |
| Perform Of Services For Other Orgs | false | PerformOfServicesForOtherOrgs |
| Perform Of Services By Other Orgs | false | PerformOfServicesByOtherOrgs |
| Sharing Of Facilities | true | SharingOfFacilities |
| Sharing Of Paid Employees | true | SharingOfPaidEmployees |
| Reimbursement Paid To Other Org | false | ReimbursementPaidToOtherOrg |
| Reimbursement Paid By Other Org | false | ReimbursementPaidByOtherOrg |
| Other Transfer To Other Org | false | OtherTransferToOtherOrg |
| Other Transfer From Other Org | false | OtherTransferFromOtherOrg |
Transactions Related Orgs Table TransactionsRelatedOrgsTable (3 entries)
| Transaction TypeTransactionType | Amount InvolvedAmountInvolved |
|---|---|
| Cystic fibrosis foundation - headquarters | |
| 1B | 11352615 |
| Cystic fibrosis foundation - headquarters | |
| 1M | 242527 |
| Cystic fibrosis foundation - headquarters | |
| 1N | 1684292 |