ASH REGISTRY INC: Form 990, tax year 2024
View the entire original 990 at ProPublica ↗
- Organization
- ASH REGISTRY INC (EIN 82-4218205)
- Tax period
- 2024-07-01 to 2025-06-30
- Filed
- 2026-04-22
- IRS object ID
- 202641129349300234
- Schema version
- 2024v5.5
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2026-04-22T11:17:45-05:00 | ReturnTs |
| Tax Period End | 2025-06-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 881478669 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CBIZ ADVISORS LLC | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1899 L STREET NW 850 | AddressLine1Txt |
| City | WASHINGTON | CityNm |
| State Abbreviation | DC | StateAbbreviationCd |
| ZIP | 20036 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2024-07-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 824218205 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | ASH REGISTRY INC | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | ASHR | BusinessNameControlTxt |
| Phone | 2027760544 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 2021 L STREET NW 900 | AddressLine1Txt |
| City | WASHINGTON | CityNm |
| State Abbreviation | DC | StateAbbreviationCd |
| ZIP | 20036 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | MATTHEW GERTZOG | PersonNm |
| Person Title | EXECUTIVE DIRECTOR | PersonTitleTxt |
| Phone | 2027760544 | PhoneNum |
| Signature | 2026-04-21 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IRS Responsible Prty Info Curr | Yes (1) | IRSResponsiblePrtyInfoCurrInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | AARON FOX | PreparerPersonNm |
| PTIN | P01365820 | PTIN |
| Phone | 2022274000 | PhoneNum |
| Preparation | 2026-04-21 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2024 | TaxYr |
| Build TS | 2025-03-06 01:10:19Z | BuildTS |
Form 990 IRS990
Doing Business As Name DoingBusinessAsName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | ASH RESEARCH COLLABORATIVE | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | MATTHEW GERTZOG | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 2021 L STREET NW 900 | AddressLine1Txt |
| City | WASHINGTON | CityNm |
| State Abbreviation | DC | StateAbbreviationCd |
| ZIP | 20036 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $4,973,130 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.ASHRESEARCHCOLLABORATIVE.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 2017 | FormationYr |
| Legal Domicile State | DC | LegalDomicileStateCd |
| Activity Or Mission | ASH RC ACCELERATES HEMATOLOGY RESEARCH THROUGH REAL-WORLD DATA, NETWORKS, AND INCLUSIVE STUDY ACCESS. | ActivityOrMissionDesc |
| Voting Members Governing Body | 11 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 11 | VotingMembersIndependentCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Total Volunteers | 79 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $2,596,845 | PYContributionsGrantsAmt |
| CY Contributions Grants | $4,358,950 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $382,119 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $614,180 | CYProgramServiceRevenueAmt |
| PY Investment Income | $0 | PYInvestmentIncomeAmt |
| CY Investment Income | $0 | CYInvestmentIncomeAmt |
| PY Other Revenue | $0 | PYOtherRevenueAmt |
| CY Other Revenue | $0 | CYOtherRevenueAmt |
| PY Total Revenue | $2,978,964 | PYTotalRevenueAmt |
| CY Total Revenue | $4,973,130 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $763,278 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $730,473 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $2,355,405 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $3,092,881 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $0 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $6,559,437 | PYOtherExpensesAmt |
| CY Other Expenses | $6,215,261 | CYOtherExpensesAmt |
| PY Total Expenses | $9,678,120 | PYTotalExpensesAmt |
| CY Total Expenses | $10,038,615 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | -$6,699,156 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$5,065,485 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $2,501,839 | TotalAssetsBOYAmt |
| Total Assets EOY | $3,937,364 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $45,049,715 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $51,550,725 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | -$42,547,876 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | -$47,613,361 | NetAssetsOrFundBalancesEOYAmt |
| Mission | THE ASH RESEARCH COLLABORATIVE (ASH RC) IS WORKING TO ACCELERATE CHANGE BY MAKING IT MORE EFFICIENT TO CONDUCT RESEARCH, FROM INCREASING ACCESS TO HIGH-QUALITY CLINICAL DATA TO MAKING IT EASIER FOR INDIVIDUALS WITH HEMATOLOGIC CONDITIONS TO PARTICIPATE IN STUDIES. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $7,998,220 | ExpenseAmt |
| Grant | $730,473 | GrantAmt |
| Revenue | $614,180 | RevenueAmt |
| Desc | THE ASH RC DATA HUB WAS CREATED TO FACILITATE THE SHARING OF DATA ON BENIGN AND MALIGNANT HEMATOLOGIC CONDITIONS IN SUPPORT OF SCIENTIFIC INQUIRY AND DISCOVERY. AS A MAJOR INITIATIVE WITHIN ASH RC, THE DATA HUB AIMS TO CREATE THE LARGEST SHARED INFORMATION RESOURCE WITHIN THE GLOBAL HEMATOLOGY COMMUNITY. THE DATA HUB IS CURRENTLY COLLECTING DATA ON PATIENTS WITH MULTIPLE MYELOMA (MM) AND SICKLE CELL DISEASE (SCD). THE LONG-TERM GOAL OF THE ASH RC IS TO ADDRESS THE ENTIRE SPECTRUM OF MALIGNANT AND NONMALIGNANT HEMATOLOGIC DISEASES, WHICH MEANS THE DATA HUB WILL EXPAND ITS SCOPE ONCE THESE INITIAL EFFORTS HAVE REACHED MATURITY. CURRENTLY, THE DATA HUB HOUSES DATA ON MORE THAN 24,000 PATIENTS WITH SCD AND 6,300 PATIENTS WITH MM. | Desc |
| Total Program Service Expenses | $7,998,220 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | 0 | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | 0 | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (1) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | 0 | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | Yes (1) | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | 0 | ForeignActivitiesInd |
| More Than5000 K To Org | 0 | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | 0 | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | 0 | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | 0 | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | Yes (1) | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 19 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (1) | BackupWthldComplianceInd |
| Employee | 0 | EmployeeCnt |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | 0 | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 11 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 11 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | 0 | CompensationProcessCEOInd |
| Compensation Process Other | 0 | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | TIFFANY AKE | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 2027760544 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 2021 L STREET NW 900 | AddressLine1Txt |
| City | WASHINGTON | CityNm |
| State Abbreviation | DC | StateAbbreviationCd |
| ZIP | 20036 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (17 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Key EmployeeKeyEmployeeInd | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|---|---|
| MARK CROWTHERMDMSCFRCPCFRSC | |||||||||
| BOARD CHAIR | 2.00 | 0.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| GARY SHILLER | |||||||||
| SECRETARY/TREASURER | 2.00 | 0.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| LINDA BURNS MD | |||||||||
| APPOINTED MEMBER | 2.00 | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| ROY SILVERSTEIN MD | |||||||||
| LIAISON TO ASH EC | 2.00 | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| CHRISTOPHER BOONE PHD FACHE | |||||||||
| FHIMSS - APPOINTED MEMBER | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |||
| HELEN BURSTIN MD MPH | |||||||||
| APPOINTED MEMBER | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |||
| ANDREW EVENS DO MBA MSC | |||||||||
| APP MEM TILL 03/25, VICE CHAIRPERSON | 2.00 | 0.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| MARC GINSKY JD | |||||||||
| APPOINTED MEMBER | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |||
| BOB LOWENBERG MD PHD | |||||||||
| APPOINTED MEMBER | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |||
| CHRIS MCENTEE | |||||||||
| APPOINTED MEMBER AS OF 05/25 | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |||
| MARTHA LIGGETT ESQ | |||||||||
| EX-OFFICIO | 2.00 | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| MATTHEW GERTZOG | |||||||||
| EXECUTIVE DIRECTOR | 18.00 | 17.00 | $324,492 | $324,492 | $95,076 | Yes (X) | |||
| KATHLEEN TORRES | |||||||||
| SENIOR DIRECTOR, DATA HUB | 40.00 | 0.00 | $398,919 | $0 | $87,188 | Yes (X) | |||
| CHRISTOPHER DOWD | |||||||||
| DEPUTY DIR., BUSINESS DEVELOPMENT | 40.00 | 0.00 | $412,041 | $0 | $101,266 | Yes (X) | |||
| MICHELLE WALSER | |||||||||
| DEPUTY DIRECTOR, OPERATIONS | 40.00 | 0.00 | $278,287 | $0 | $73,820 | Yes (X) | |||
| SUSAN ROGERS SENIOR MANAGER | |||||||||
| LEARNING COMMUNITY PROGRAMS | 40.00 | 0.00 | $192,116 | $0 | $25,098 | Yes (X) | |||
| EMILY SEMMEL | |||||||||
| DEPUTY DIRECTOR, DATA HUB | 40.00 | 0.00 | $177,432 | $0 | $40,911 | Yes (X) | |||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $1,783,287 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $324,492 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $423,359 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 10 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp (5 entries)
| Address Line1ContractorAddress/USAddress/AddressLine1Txt | CityContractorAddress/USAddress/CityNm | State AbbreviationContractorAddress/USAddress/StateAbbreviationCd | ZIPContractorAddress/USAddress/ZIPCd | ServicesServicesDesc | CompensationCompensationAmt |
|---|---|---|---|---|---|
| IQVIA RDS INC | |||||
| 4820 EMPEROR BLVD | DURHAM | NC | 27703 | DATA AGGREGATION/DATA MGMT | $1,517,692 |
| NEW YORK CITY HEALTH & HOSPITAL CORPORAT | |||||
| 50 WATER STREET | NEW YORK | NY | 10004 | RESEARCH STUDY FUNDING COST | $262,694 |
| DELOITTE CONSULTING LLP | |||||
| 4022 SELLS DRIVE | HERMITAGE | TN | 37076 | CONSULTING | $252,000 |
| STRATEGIC RESEARCH SOLUTIONS | |||||
| 108 S PINE STREET | FENTON | MI | 48430 | PROGRAM MGMT SUPPORT/CONSULTING | $237,975 |
| BREAKTHROUGH HEALTHCARE | |||||
| 2803 MANHATTAN AVE | BALTIMORE | MD | 21215 | DATA INFO./ ANALYTICS & GRANT MGMT | $224,147 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 10 | CntrctRcvdGreaterThan100KCnt |
| Related Organizations | $607,837 | RelatedOrganizationsAmt |
| All Other Contributions | $3,751,113 | AllOtherContributionsAmt |
| Total Contributions | $4,358,950 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | PROJECTS | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $614,180 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $614,180 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $614,180 | TotalProgramServiceRevenueAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $4,973,130 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $614,180 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $0 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part IX | Yes (X) | InfoInScheduleOPartIXInd |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $730,473 | TotalAmt |
| Program Services | $730,473 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $351,567 | TotalAmt |
| Program Services | $316,411 | ProgramServicesAmt |
| Management And General | $35,156 | ManagementAndGeneralAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,103,370 | TotalAmt |
| Program Services | $1,414,681 | ProgramServicesAmt |
| Management And General | $688,689 | ManagementAndGeneralAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $185,756 | TotalAmt |
| Program Services | $126,444 | ProgramServicesAmt |
| Management And General | $59,312 | ManagementAndGeneralAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $271,628 | TotalAmt |
| Program Services | $186,779 | ProgramServicesAmt |
| Management And General | $84,849 | ManagementAndGeneralAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $180,560 | TotalAmt |
| Program Services | $126,392 | ProgramServicesAmt |
| Management And General | $54,168 | ManagementAndGeneralAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $65,577 | TotalAmt |
| Program Services | $65,475 | ProgramServicesAmt |
| Management And General | $102 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,972,586 | TotalAmt |
| Program Services | $3,965,256 | ProgramServicesAmt |
| Management And General | $7,330 | ManagementAndGeneralAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $89,058 | TotalAmt |
| Program Services | $89,058 | ProgramServicesAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,735 | TotalAmt |
| Program Services | $2,952 | ProgramServicesAmt |
| Management And General | $1,783 | ManagementAndGeneralAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $48,279 | TotalAmt |
| Program Services | $26,909 | ProgramServicesAmt |
| Management And General | $21,370 | ManagementAndGeneralAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $53,421 | TotalAmt |
| Program Services | $29,776 | ProgramServicesAmt |
| Management And General | $23,645 | ManagementAndGeneralAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $61,444 | TotalAmt |
| Management And General | $61,444 | ManagementAndGeneralAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $311,112 | TotalAmt |
| Program Services | $311,112 | ProgramServicesAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Management And GeneralManagementAndGeneralAmt | Program ServicesProgramServicesAmt |
|---|---|---|---|
| COST AGREEMENT | $980,000 | $980,000 | |
| STIPENDS | $367,005 | $367,005 | |
| HONORARIA | $205,859 | $205,859 | |
| SUBSCR/PUBLICATIONS | $32,499 | $51 | $32,448 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $23,686 | TotalAmt |
| Program Services | $1,190 | ProgramServicesAmt |
| Management And General | $22,496 | ManagementAndGeneralAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $10,038,615 | TotalAmt |
| Program Services | $7,998,220 | ProgramServicesAmt |
| Management And General | $2,040,395 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $515,987 | BOYAmt |
| EOY | $472,074 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,813,209 | BOYAmt |
| EOY | $3,333,171 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $51,500 | BOYAmt |
| EOY | $72,420 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $307,220 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $247,521 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $121,143 | BOYAmt |
| EOY | $59,699 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,501,839 | BOYAmt |
| EOY | $3,937,364 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $251,143 | BOYAmt |
| EOY | $430,180 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $44,798,572 | BOYAmt |
| EOY | $51,120,545 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $45,049,715 | BOYAmt |
| EOY | $51,550,725 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | -$42,548,922 | BOYAmt |
| EOY | -$50,829,407 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,046 | BOYAmt |
| EOY | $3,216,046 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | -$42,547,876 | BOYAmt |
| EOY | -$47,613,361 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,501,839 | BOYAmt |
| EOY | $3,937,364 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$5,065,485 | ReconcilationRevenueExpnssAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Consolidated Basis Fincl Stmt | Yes (X) | ConsolidatedBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Supporting Organization509a3 | Yes (X) | SupportingOrganization509a3Ind |
| Supporting Org Type2 | Yes (X) | SupportingOrgType2Ind |
| Supported Organizations | 1 | SupportedOrganizationsCnt |
Supported Org Information SupportedOrgInformationGrp
Supported Organization Name SupportedOrganizationName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | AMERICAN SOCIETY OF HEMATOLOGY INC | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 237080568 | EIN |
| Organization Type | 10 | OrganizationTypeCd |
| Governing Document Listed | Yes (1) | GoverningDocumentListedInd |
| Support | $0 | SupportAmt |
| Other Support | $0 | OtherSupportAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Supported Organizations Total | 1 | SupportedOrganizationsTotalCnt |
| Support Sum | $0 | SupportSumAmt |
| Other Support Sum | $0 | OtherSupportSumAmt |
Form990 Sch A Supporting Org Form990SchASupportingOrgGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Listed By Name Governing Doc | Yes (1) | ListedByNameGoverningDocInd |
| Suprt Org No IRS Determination | 0 | SuprtOrgNoIRSDeterminationInd |
| Supported Org Section C456 | 0 | SupportedOrgSectionC456Ind |
| Supported Org Not Organized US | 0 | SupportedOrgNotOrganizedUSInd |
| Organization Change Suprt Org | 0 | OrganizationChangeSuprtOrgInd |
| Support Non Supported Org | 0 | SupportNonSupportedOrgInd |
| Payment Substantial Contribtr | 0 | PaymentSubstantialContribtrInd |
| Loan Disqualified Person | 0 | LoanDisqualifiedPersonInd |
| Controlled Disqualified Prsn | 0 | ControlledDisqualifiedPrsnInd |
| Disqualified Prsn Controll Int | 0 | DisqualifiedPrsnControllIntInd |
| Disqualified Prsn Ownr Int | 0 | DisqualifiedPrsnOwnrIntInd |
| Excess Business Holdings Rules | 0 | ExcessBusinessHoldingsRulesInd |
| Contribution Controller | 0 | ContributionControllerInd |
| Contribution Family | 0 | ContributionFamilyInd |
| Contribution35 Controlled | 0 | Contribution35ControlledInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Majority Dir Trst Supported Org | Yes (1) | MajorityDirTrstSupportedOrgInd |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $307,220 | OtherCostOrOtherBasisAmt |
| Depreciation | $247,521 | DepreciationAmt |
| Book Value | $59,699 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $59,699 | TotalBookValueLandBuildingsAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | DUE TO RELATED PARTY | Desc |
| Amt | $51,120,545 | Amt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $51,120,545 | TotalLiabilityAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $4,973,130 | TotalRevEtcAuditedFinclStmtAmt |
| Revenue Not Reported | $0 | RevenueNotReportedAmt |
| Revenue Subtotal | $4,973,130 | RevenueSubtotalAmt |
| Revenue Not Reported Fincl Stmt | $0 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $4,973,130 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $10,038,615 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Not Reported | $0 | ExpensesNotReportedAmt |
| Expenses Subtotal | $10,038,615 | ExpensesSubtotalAmt |
| Expenses Not Rpt Fincl Stmt | $0 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $10,038,615 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART X, LINE 2: | FormAndLineReferenceDesc |
| Explanation | THE SOCIETY EVALUATED ITS UNCERTAINTY IN INCOME TAXES FOR THE YEAR ENDED JUNE 30, 2025 AND 2024, AND DETERMINED THAT THERE WERE NO MATTERS THAT WOULD REQUIRE RECOGNITION IN THE CONSOLIDATED FINANCIAL STATEMENTS OR THAT MAY HAVE ANY EFFECT ON ITS TAX-EXEMPT STATUS; AND THERE ARE CURRENTLY NO EXAMINATIONS PENDING OR IN PROGRESS. | ExplanationTxt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (19 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Non Cash AssistanceNonCashAssistanceAmt | Purpose Of GrantPurposeOfGrantTxt | Address Line2USAddress/AddressLine2Txt |
|---|---|---|---|---|---|---|---|---|---|
| THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO | |||||||||
| 47 52ND STREET | OAKLAND | CA | 94609 | 946036493 | 501(C)(3) | $50,000 | $0 | ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL | |
| MONTEFIORE MEDICAL CENTER | |||||||||
| 111 210TH STREET | BRONX | NY | 10467 | 131740114 | 501(C)(3) | $50,000 | $0 | ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL | |
| UNIVERSITY OF CONNECTICUT HEALTH CENTER | |||||||||
| 263 FARMINGTON AVENUE DEPARTMENT OF | FARMINGTON | CT | 06030 | 521725543 | 501(C)(3) | $50,000 | $0 | ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL | MEDICINE MC 1628 |
| CHILDREN'S HOSPITAL MEDICAL CENTER | |||||||||
| 3333 BURNET AVENUE MLC 4900 | CINCINNATI | OH | 45229 | 310833936 | 501(C)(3) | $50,000 | $0 | ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL | |
| EMORY UNIVERSITY | |||||||||
| WOODRUFF EXTENSION BLDG SUITE 144 | ATLANTA | GA | 30322 | 580566256 | 501(C)(3) | $50,000 | $0 | ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL | |
| UNIVERSITY OF ALABAMA AT BIRMINGHAM | |||||||||
| 1720 2ND AVENUE | BIRMINGHAM | AL | 35294 | 636005396 | 501(C)(3) | $50,000 | $0 | ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL | |
| THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER | |||||||||
| 5323 HARRY HINES BLVD | DALLAS | TX | 75390 | 756002868 | 501(C)(3) | $50,000 | $0 | ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL | |
| CHILDREN'S HOSPITAL OF PHILADELPHIA | |||||||||
| 3401 CIVIC CENTER BLVD | PHILADELPHIA | PA | 19104 | 231352166 | 501(C)(3) | $50,000 | $0 | ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL | |
| NEWARK BETH ISRAEL MEDICAL CENTER | |||||||||
| 201 LYONS AVENUE | NEWARK | NJ | 07112 | 223452311 | 501(C)(3) | $48,847 | $0 | ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL | |
| BAYLOR COLLEGE OF MEDICINE | |||||||||
| 1102 BATES STREET SUITE 1570 | HOUSTON | TX | 77030 | 741613878 | 501(C)(3) | $48,251 | $0 | ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL | |
| DUKE UNIVERSITY | |||||||||
| UMC 3939 CLINIC 2N 40 MEDICINE | DURHAM | NC | 27710 | 560532129 | 501(C)(3) | $47,205 | $0 | ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL | CIRCLE |
| MEDICAL COLLEGE OF WISCONSIN | |||||||||
| 8733 WATERTOWN PLANK ROAD PO BOX | MILWAUKEE | WI | 53226 | 390806261 | 501(C)(3) | $44,968 | $0 | ASH RC RESEARCH NETWORK SITE GRANT | 26509 |
| ANN & ROBERT H LURIE CHILDREN'S HOSP CHICAGO | |||||||||
| 225 E CHICAGO AVE BOX 30 | CHICAGO | IL | 60611 | 362170833 | 501(C)(3) | $41,143 | $0 | ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL | |
| CHILDREN'S NATIONAL MEDICAL CENTER | |||||||||
| 111 MICHIGAN AVENUE | WASHINGTON | DC | 20010 | 521654453 | 501(C)(3) | $30,034 | $0 | ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL | |
| AUGUSTA UNIVERSITY RESEARCH INSTITUTE | |||||||||
| 1120 15TH STREET | AUGUSTA | GA | 30912 | 581418202 | 501(C)(3) | $28,691 | $0 | ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL | |
| NEW YORK CITY HEALTH & HOSPITAL CORPORATION | |||||||||
| 1400 PELHAM PARKWAY SOUTH SUITE 303 | NEW YORK | NY | 10461 | 132655001 | 501(C)(3) | $19,161 | $0 | ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL | |
| BOSTON MEDICAL CENTER | |||||||||
| 72 E CONCORD ST R-304 | BOSTON | MA | 02118 | 043314093 | 501(C)(3) | $13,800 | $0 | ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL | |
| PRISMA HEALTH-UPSTATE | |||||||||
| 900 W FARIS ROAD | GREENVILLE | SC | 29605 | 811723202 | 501(C)(3) | $13,584 | $0 | ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL | |
| WASHINGTON UNIVERSITY | |||||||||
| 660 SOUTH EUCLID MSC 8505-45-01 | LOUIS | MO | 63110 | 430653611 | 501(C)(3) | $9,538 | $0 | ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 19 | Total501c3OrgCnt |
| Total Other Org | 0 | TotalOtherOrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | ASH RC COLLECTS AND STORES THE RESEARCH SITE'S REPORTED PLANNED USE OF THE GRANT/ASSISTANCE AT THE BEGINNING OF THE GRANT YEAR AND ALSO COLLECTS AND STORES THE RESEARCH SITE'S REPORTED ACTUAL USE OF THE FUNDS AT THE END OF THE YEAR CYCLE. THE AWARD IS PROVIDED BASED ON A CONTRACTUAL AGREEMENT WITH THE SITES TO PROVIDE SITE SUPPORT. THEY WENT THROUGH A SITE SELECTION PROCESS WHEN THE SCD CLINICAL TRIALS NETWORK WAS ESTABLISHED TO ENSURE THEY MET THE CRITERIA NEEDED TO PARTICIPATE IN THIS PROGRAM. CHECK IN CALLS ARE CONDUCTED THROUGHOUT THE YEAR WITH RESEARCH SITE PERSONNEL AND THEY HAVE TARGETS TO MEET THROUGHOUT THE YEAR. WE ARE TRACKING PROGRESS ON KEY PERFORMANCE METRICS THAT ARE OUTLINED IN THEIR AWARD LETTER. THEIR FINAL REPORTING IS ALSO INCLUDES THIS INFORMATION AND A BREAKDOWN OF HOW THE FUNDS WERE USED. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Club Dues Or Fees | Yes (X) | ClubDuesOrFeesInd |
| Written Policy Ref T And E Expnss | Yes (1) | WrittenPolicyRefTAndEExpnssInd |
| Substantiation Required | 0 | SubstantiationRequiredInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | Yes (1) | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (6 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| MATTHEW GERTZOG | ||||||||||||||
| EXECUTIVE DIRECTOR | $286,568 | $286,568 | $20,000 | $20,000 | $17,924 | $17,924 | $29,250 | $29,250 | $18,288 | $18,288 | $372,030 | $372,030 | $0 | $0 |
| CHRISTOPHER DOWD | ||||||||||||||
| DEPUTY DIR., BUSINESS DEVELOPMENT | $367,893 | $0 | $40,000 | $0 | $4,148 | $0 | $58,496 | $0 | $42,770 | $0 | $513,307 | $0 | $0 | $0 |
| KATHLEEN TORRES | ||||||||||||||
| SENIOR DIRECTOR, DATA HUB | $392,545 | $0 | $0 | $0 | $6,374 | $0 | $57,800 | $0 | $29,388 | $0 | $486,107 | $0 | $0 | $0 |
| MICHELLE WALSER | ||||||||||||||
| DEPUTY DIRECTOR, OPERATIONS | $260,601 | $0 | $15,000 | $0 | $2,686 | $0 | $40,924 | $0 | $32,896 | $0 | $352,107 | $0 | $0 | $0 |
| EMILY SEMMEL | ||||||||||||||
| DEPUTY DIRECTOR, DATA HUB | $175,866 | $0 | $0 | $0 | $1,566 | $0 | $14,099 | $0 | $26,812 | $0 | $218,343 | $0 | $0 | $0 |
| SUSAN ROGERS SENIOR MANAGER | ||||||||||||||
| LEARNING COMMUNITY PROGRAMS | $188,561 | $0 | $0 | $0 | $3,555 | $0 | $18,856 | $0 | $6,242 | $0 | $217,214 | $0 | $0 | $0 |
Supplemental Information Detail SupplementalInformationDetail (4 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART I, LINE 1A | THE ORGANIZATION PROVIDED HEALTH CLUB DUES AS PART OF ITS WELLNESS PROGRAM. |
| PART I, LINE 3 | ASH RC RELIED ON AMERICAN SOCIETY OF HEMATOLOGY, INC. (ASH), A RELATED ORGANIZATION, TO DETERMINE COMPENSATION. ASH USED THE FOLLOWING METHODS TO DETERMINE COMPENSATION: - INDEPENDENT COMPENSATION CONSULTANT - COMPENSATION SURVEY OR STUDY - APPROVAL BY THE BOARD OR COMPENSATION COMMITTEE - FORM 990 OF OTHER ORGANIZATIONS - COMPENSATION COMMITTEE |
| PART I, LINE 7 | MATTHEW GERTZOG AND CHRISTOPHER DOWD RECIEVED NON-FIXED DISCRETIONARY BONUS OF $40,000 EACH IN CALENDAR YEAR 2025. |
| PARTS I AND II: | ASH RC DOES NOT DIRECTLY HIRE OR COMPENSATE EMPLOYEES. AMERICAN SOCIETY OF HEMATOLOGY, INC., A RELATED ORGANIZATION EXEMPT UNDER IRS SECTION 501(C)(3), IS RESPONSIBLE FOR FILING FORMS W-2S FOR ALL EMPLOYEES. THE COMPENSATION AND RELATED NON-TAXABLE BENEFITS ARE REPORTED ON PART VII, SECTION A AS WELL AS PART IX OF EACH ORGANIZATION AS INCURRED. |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (7 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART I, LINE 1 | THE ASH RC IS CURRENTLY FOCUSED IN TWO DISEASE AREAS: ONE CLASSICAL HEMATOLOGIC CONDITION, SICKLE CELL DISEASE (SCD), AND ONE MALIGNANT HEMATOLOGIC DISEASE, MULTIPLE MYELOMA (MM). AT THE HEART OF BOTH PROGRAMS ARE SITE-BASED RESEARCH NETWORKS CONSISTING OF EXPERTS IN THEIR RESPECTIVE FIELDS. THE SCD RESEARCH NETWORK FOSTERS COLLABORATIVE PARTNERSHIPS TO ACCELERATE PROGRESS IN CLINICAL RESEARCH AND IMPROVE OUTCOMES FOR INDIVIDUALS LIVING WITH SCD BY EXPEDITING THE DEVELOPMENT OF THERAPEUTICS AND GENERATING HIGH-QUALITY EVIDENCE TO SUPPORT CLINICAL DECISION-MAKING. LEARN ABOUT THE SCD RESEARCH NETWORK. THE MM RESEARCH NETWORK IS COMMITTED TO BUILDING RELATIONSHIPS WITHIN THE MYELOMA COMMUNITY, LEVERAGING THE POWER OF REAL-WORLD EVIDENCE, AND PRIORITIZING RESEARCH TO IMPROVE THE LIVES OF INDIVIDUALS LIVING WITH MULTIPLE MYELOMA. LEARN ABOUT THE MM RESEARCH NETWORK. BOTH NETWORKS ARE POWERED BY REAL-WORLD DATA (RWD) WHICH WE CALL THE DATA HUB. THE DATA HUB IS DESIGNED TO BE THE LARGEST SHARED INFORMATION RESOURCE WITH REAL-WORLD DATA TO SERVE THE HEMATOLOGY COMMUNITY. ACCESS TO THESE DATA CAN ACCELERATE RESEARCH AND DEVELOPMENT, SUPPORT REGULATORY DECISION-MAKING, AND HELP CLINICS IDENTIFY OPPORTUNITIES FOR QUALITY IMPROVEMENT. |
| FORM 990, PART VI, SECTION B, LINE 11B | THE FORM 990 WAS PREPARED BY THE OUTSIDE ACCOUNTANTS AND REVIEWED FIRST BY THE CHIEF FINANCIAL OFFICER, AND THEN BY THE EXECUTIVE DIRECTOR. IT WAS THEN SENT TO THE ENTIRE BOARD PRIOR TO FILING WITH THE IRS. |
| FORM 990, PART VI, SECTION B, LINE 12C | ASH RC'S CONFLICT OF INTEREST POLICY QUESTIONNAIRE IS FILLED OUT ELECTRONICALLY BY ALL BOARD MEMBERS AND OFFICERS. BEFORE EACH BOARD OR COMMITTEE MEETING A MEMBER IS PUT IN CHARGE OF REVIEWING ALL CONFLICT OF INTEREST STATEMENTS FOR THE MEMBERS ATTENDING. FURTHERMORE, MEMBERS ARE ASKED TO DISCLOSE ANY CHANGES BEFORE EVERY MEETING. WHEN AN ASH RC MEMBER HAS A CONFLICT, S/HE WILL NOT: 1. TAKE ANY ACTION ON BEHALF OF ASH CONCERNING THE SUBJECT IN CONFLICT OR ANY ISSUE RELEVANT TO THE SUBJECT IN CONFLICT; 2. PARTICIPATE IN DISCUSSIONS ON THE SUBJECT WITHOUT FULL DISCLOSURE; 3. PARTICIPATE IN DECISION-MAKING DISCUSSIONS OR CAST A VOTE; 4. IMPLY THAT HE/SHE IS ACTING ON BEHALF OF ASH RC WHEN DISCUSSING THE RELEVANT SUBJECT WITH THIRD PARTIES; OR 5. FAIL TO CLARIFY WITH THIRD PARTIES WITH WHOM HE/SHE DEALS ON THE RELEVANT SUBJECT THAT HE/SHE IS NOT ACTING ON BEHALF OF ASH RC. |
| FORM 990, PART VI, SECTION B, LINE 15 | ASH RC RELIES ON A RELATED ORGANIZATION, ASH, TO DETERMINE COMPENSATION. AS PART OF THE PROCESS FOR DETERMINING THE COMPENSATION FOR ALL OF ITS EMPLOYEES, THE COMPENSATION FOR KEY EMPLOYEES OF THE ORGANIZATION (INCLUDING THE EXECUTIVE DIRECTOR OF ASH RC) IS REVIEWED BY AN OUTSIDE HR GROUP AND APPROVED BY THE EXECUTIVE DIRECTOR OF ASH. |
| FORM 990, PART VI, SECTION C, LINE 19 | THE ORGANIZATION'S GOVERNING DOCUMENTS AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. THE CONFLICT OF INTEREST POLICY IS LOCATED ON THE ORGANIZATION'S WEBSITE. |
| FORM 990, PART IX, LINE 11G | CONSULTANTS: PROGRAM SERVICE EXPENSES 3,504,423. MANAGEMENT AND GENERAL EXPENSES 5,470. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 3,509,893. OTHER PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 460,833. MANAGEMENT AND GENERAL EXPENSES 1,860. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 462,693. |
| FORM 990, PART XII, LINE 2C: | THE PROCESS HAS NOT CHANGED FROM PRIOR YEAR. |
Schedule R IRS990ScheduleR
Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp
Disregarded Entity Name DisregardedEntityName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | AMERICAN SOCIETY OF HEMATOLOGY INC | BusinessNameLine1Txt |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 2021 L STREET NW SUITE 900 | AddressLine1Txt |
| City | WASHINGTON | CityNm |
| State Abbreviation | DC | StateAbbreviationCd |
| ZIP | 20036 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 237080568 | EIN |
| Primary Activities | SEE PART VII | PrimaryActivitiesTxt |
| Legal Domicile State | DC | LegalDomicileStateCd |
| Exempt Code Section | 501(C)(3) | ExemptCodeSectionTxt |
| Public Charity Status | LINE 10 | PublicCharityStatusTxt |
| Direct Controlling NA | N/A | DirectControllingNACd |
| Controlled Organization | 0 | ControlledOrganizationInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Receipt Of Int Annts Rnts Rylts | 0 | ReceiptOfIntAnntsRntsRyltsInd |
| Gift Grnt Or Cap Contri To Oth Org | 0 | GiftGrntOrCapContriToOthOrgInd |
| Gift Grnt Cap Contri From Oth Org | Yes (1) | GiftGrntCapContriFromOthOrgInd |
| Loans Or Guarantees To Other Org | 0 | LoansOrGuaranteesToOtherOrgInd |
| Loans Or Guarantees From Oth Org | Yes (1) | LoansOrGuaranteesFromOthOrgInd |
| Div Related Organization | 0 | DivRelatedOrganizationInd |
| Asset Sale To Other Org | 0 | AssetSaleToOtherOrgInd |
| Asset Purchase From Other Org | 0 | AssetPurchaseFromOtherOrgInd |
| Asset Exchange | 0 | AssetExchangeInd |
| Rental Of Facilities To Oth Org | 0 | RentalOfFacilitiesToOthOrgInd |
| Rental Of Fclts From Oth Org | 0 | RentalOfFcltsFromOthOrgInd |
| Perform Of Services For Oth Org | 0 | PerformOfServicesForOthOrgInd |
| Perform Of Services By Other Org | 0 | PerformOfServicesByOtherOrgInd |
| Sharing Of Facilities | Yes (1) | SharingOfFacilitiesInd |
| Paid Employees Sharing | Yes (1) | PaidEmployeesSharingInd |
| Reimbursement Paid To Other Org | 0 | ReimbursementPaidToOtherOrgInd |
| Reimbursement Paid By Other Org | Yes (1) | ReimbursementPaidByOtherOrgInd |
| Transfer To Other Org | 0 | TransferToOtherOrgInd |
| Transfer From Other Org | 0 | TransferFromOtherOrgInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART II LINE (B) | FormAndLineReferenceDesc |
| Explanation | PROFESSIONAL SOCIETY SERVING BOTH CLINICIANS & SCIENTISTS AROUND THE WORLD WHO ARE WORKING TO CONQUER BLOOD DISEASES. | ExplanationTxt |