AMYOTROPHIC LATERAL SCLEROSIS ASSN: Form 990, tax year 2024
View the entire original 990 at ProPublica ↗
- Organization
- AMYOTROPHIC LATERAL SCLEROSIS ASSN (EIN 13-3271855)
- Tax period
- 2025-02-01 to 2025-06-30
- Filed
- 2026-05-14
- IRS object ID
- 202621349349307277
- Schema version
- 2024v5.5
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule M
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2026-05-14T13:01:06-05:00 | ReturnTs |
| Tax Period End | 2025-06-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 410746749 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CLIFTONLARSONALLEN LLP | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | TWO INTERNATIONAL PLACE 22ND FLOOR | AddressLine1Txt |
| City | BOSTON | CityNm |
| State Abbreviation | MA | StateAbbreviationCd |
| ZIP | 02110 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2025-02-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 133271855 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | AMYOTROPHIC LATERAL SCLEROSIS ASSN | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | AMYO | BusinessNameControlTxt |
| Phone | 2024078580 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1300 WILSON BLVD 600 | AddressLine1Txt |
| City | ARLINGTON | CityNm |
| State Abbreviation | VA | StateAbbreviationCd |
| ZIP | 22209 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | CALANEET BALAS | PersonNm |
| Person Title | PRESIDENT AND CEO | PersonTitleTxt |
| Phone | 2024078580 | PhoneNum |
| Signature | 2026-05-14 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IRS Responsible Prty Info Curr | Yes (1) | IRSResponsiblePrtyInfoCurrInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | LINDSEY PIGG | PreparerPersonNm |
| PTIN | P01268923 | PTIN |
| Phone | 7819821001 | PhoneNum |
| Preparation | 2026-05-05 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2024 | TaxYr |
| Build TS | 2025-03-06 01:10:19Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | CALANEET BALAS | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1300 WILSON BLVD 600 | AddressLine1Txt |
| City | ARLINGTON | CityNm |
| State Abbreviation | VA | StateAbbreviationCd |
| ZIP | 22209 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $22,010,637 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.ALS.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1985 | FormationYr |
| Legal Domicile State | DE | LegalDomicileStateCd |
| Activity Or Mission | LEADING THE FIGHT TO CURE AND TREAT ALS THROUGH RESEARCH, ADVOCACY AND CARE SERVICES. | ActivityOrMissionDesc |
| Voting Members Governing Body | 20 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 20 | VotingMembersIndependentCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Total Volunteers | 20 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $65,814,797 | PYContributionsGrantsAmt |
| CY Contributions Grants | $20,291,104 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $0 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | $1,640,602 | PYInvestmentIncomeAmt |
| CY Investment Income | $614,359 | CYInvestmentIncomeAmt |
| PY Other Revenue | $1,127,652 | PYOtherRevenueAmt |
| CY Other Revenue | $33,638 | CYOtherRevenueAmt |
| PY Total Revenue | $68,583,051 | PYTotalRevenueAmt |
| CY Total Revenue | $20,939,101 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $16,679,289 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $6,230,875 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $43,300,438 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $12,415,660 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $1,004,746 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $544,654 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $6,441,259 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $21,255,164 | PYOtherExpensesAmt |
| CY Other Expenses | $6,835,495 | CYOtherExpensesAmt |
| PY Total Expenses | $82,239,637 | PYTotalExpensesAmt |
| CY Total Expenses | $26,026,684 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | -$13,656,586 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$5,087,583 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $107,245,128 | TotalAssetsBOYAmt |
| Total Assets EOY | $100,352,304 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $18,270,156 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $15,035,467 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $88,974,972 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $85,316,837 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | LEADING THE FIGHT TO CURE AND TREAT ALS THROUGH RESEARCH, ADVOCACY AND CARE SERVICES. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $11,142,906 | ExpenseAmt |
| Grant | $3,561,117 | GrantAmt |
| Revenue | $0 | RevenueAmt |
| Desc | PATIENT AND COMMUNITY SERVICES: THE ASSOCIATION IS COMMITTED TO PROVIDING FULLY DEVELOPED, MANAGED AND EVALUATED PROGRAMS AND SERVICES TO PEOPLE LIVING WITH ALS, FAMILIES, CAREGIVERS AND PROFESSIONALS ACROSS THE UNITED STATES. PROGRAMS INCORPORATE THE PERSPECTIVES FROM KEY STAKEHOLDERS INCLUDING PEOPLE LIVING WITH THE DISEASE, SUBJECT MATTER EXPERTS, CLINICAL BEST PRACTICE, CAREGIVERS, TECHNOLOGY, ACADEMICIANS AND RESEARCH. ACTIVITIES ADDRESS CURRENT NEEDS AND EXPLORE FUTURE SERVICES, CREATING A FOUNDATION FOR INNOVATIVE AND ADVANCED PROGRAM DEVELOPMENT BASED ON SPECIFIC COMMUNITY NEEDS AND KNOWLEDGE ADVANCEMENTS. SPECIFIC ACTIVITIES INCLUDE 1) DEVELOPING AND IMPLEMENTING CLINICAL AND PROFESSIONAL EDUCATION PROGRAMS BASED ON ONGOING NEEDS ASSESSMENTS AND BEST PRACTICE; 2) IMPLEMENTING CERTIFIED CARE CENTER CERTIFICATION AND RECERTIFICATION PROGRAMS BASED ON NATIONALLY-RECOGNIZED STANDARDS OF PRACTICE, INCLUDING GRANTS TO SUPPORT CENTERS OF EXCELLENCE; 3) DEVELOPING STRATEGIES AND ACTUALIZING PLANS TO DELIVER CARE THROUGH OTHER THAN CERTIFIED CENTERS; 4) PROVIDING CURRENT INFORMATION, RESOURCES AND REFERRALS TO THE COMMUNITIES WE SERVE; AND 5) DEVELOPING AND IMPLEMENTING COMPREHENSIVE, CONSISTENT PROGRAMS AND SERVICES THAT ADDRESS INDIVIDUAL, FAMILY, AND CAREGIVER NEEDS BASED ON 'BEST PRACTICE AND AVAILABLE RESOURCES. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $3,229,230 | ExpenseAmt |
| Grant | $2,669,758 | GrantAmt |
| Revenue | $0 | RevenueAmt |
| Desc | RESEARCH PROGRAMS - THE ASSOCIATION FUNDS SCIENTIFIC RESEARCH GRANTS TO DOCTORS/SCIENTISTS TO FIND THE CAUSE AND CURE OF AMYOTROPHIC LATERAL SCLEROSIS (ALS). | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $3,181,196 | ExpenseAmt |
| Revenue | $0 | RevenueAmt |
| Desc | THE ALS ASSOCIATION DEVELOPS AWARENESS AND UNDERSTANDING OF ALS AND THE WORK OF THE ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, THE SCIENTIFIC COMMUNITY AND ELECTED AND OTHER GOVERNMENT OFFICIALS. THE ALS ASSOCIATION'S ADVOCACY EFFORTS HELP SECURE FEDERAL AND STATE FUNDING IN SUPPORT OF ALS RESEARCH AND SUPPORT FOR PEOPLE LIVING WITH ALS. THE ADVOCACY EFFORTS INCLUDE ADVANCES IN LEGISLATION TO HELP THOSE LIVING WITH ALS NAVIGATE INSURANCE AND OTHER GOVERNMENT PROGRAMS. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $17,553,332 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (1) | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | Yes (1) | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | Yes (1) | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (1) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | 0 | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | 0 | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | Yes (1) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (1) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | Yes (1) | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | Yes (1) | GrantsToIndividualsInd |
| Schedule J Required | 0 | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | 0 | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | Yes (1) | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 0 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Employee | 0 | EmployeeCnt |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (1) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (1) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 20 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 20 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (1) | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AZ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | DC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | DE | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ID | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | LA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ME | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ND | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NE | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TX | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WY | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CALANEET BALAS | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 2024078580 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1300 WILSON BLVD 600 | AddressLine1Txt |
| City | ARLINGTON | CityNm |
| State Abbreviation | VA | StateAbbreviationCd |
| ZIP | 22209 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| No Listed Persons Compensated | Yes (X) | NoListedPersonsCompensatedInd |
Form990 Part VII Section A Form990PartVIISectionAGrp (21 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt |
|---|---|---|---|---|---|---|
| LARRY FALIVENA | ||||||
| CHAIR | 5.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| NANCY LEAMOND | ||||||
| VICE CHAIR | 5.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| STEVE HANON | ||||||
| SECRETARY | 4.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| MARK STANCIL | ||||||
| TREASURER | 4.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| SCOTT KAUFFMAN | ||||||
| IMMEDIATE PAST CHAIR | 4.00 | Yes (X) | $0 | $0 | $0 | |
| PETER MCKOWN | ||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |
| REBECCA MOSS | ||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |
| DANIELLE BOISVERT | ||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |
| ANNETTE BOWMAN | ||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |
| EVE DRYER | ||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |
| SEDA GOFF | ||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |
| KELLY HALL | ||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |
| MICHAEL BENATAR | ||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |
| DOUG BUTCHER | ||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |
| WILLIAM SOFFELL | ||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |
| CHRIS TONNIGES | ||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |
| JESSE YBARRA | ||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |
| BERNIE ZIPPRICH | ||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |
| SANDRA PIERSOL | ||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |
| CALANEET BALAS | ||||||
| PRESIDENT AND CEO | 37.50 | Yes (X) | $0 | $0 | $0 | |
| GREG MITCHELL | ||||||
| CHIEF FINANCIAL OFFICER | 37.50 | Yes (X) | $0 | $0 | $0 | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $0 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $0 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 0 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | 0 | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
| Cntrct Rcvd Greater Than100 K | 0 | CntrctRcvdGreaterThan100KCnt |
| Federated Campaigns | $371,570 | FederatedCampaignsAmt |
| Fundraising | $3,048,766 | FundraisingAmt |
| Government Grants | $3,815,683 | GovernmentGrantsAmt |
| All Other Contributions | $13,055,085 | AllOtherContributionsAmt |
| Noncash Contributions | $244,080 | NoncashContributionsAmt |
| Total Contributions | $20,291,104 | TotalContributionsAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $612,078 | TotalRevenueColumnAmt |
| Exclusion | $612,078 | ExclusionAmt |
Royalties Revenue RoyaltiesRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $6,256 | TotalRevenueColumnAmt |
| Exclusion | $6,256 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $211,089 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $208,808 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $2,281 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $2,281 | TotalRevenueColumnAmt |
| Exclusion | $2,281 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $849,320 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $3,048,766 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $862,728 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$13,408 | TotalRevenueColumnAmt |
| Exclusion | -$13,408 | ExclusionAmt |
Other Revenue Misc OtherRevenueMiscGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | REGISTRATION FEES | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $18,127 | TotalRevenueColumnAmt |
| Exclusion | $18,127 | ExclusionAmt |
Miscellaneous Revenue MiscellaneousRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $22,663 | TotalRevenueColumnAmt |
| Exclusion | $22,663 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $40,790 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $20,939,101 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $0 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $647,997 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,281,485 | TotalAmt |
| Program Services | $3,281,485 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,720,806 | TotalAmt |
| Program Services | $1,720,806 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,228,584 | TotalAmt |
| Program Services | $1,228,584 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $918,081 | TotalAmt |
| Program Services | $292,424 | ProgramServicesAmt |
| Management And General | $379,524 | ManagementAndGeneralAmt |
| Fundraising | $246,133 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $8,749,416 | TotalAmt |
| Program Services | $5,412,458 | ProgramServicesAmt |
| Management And General | $568,748 | ManagementAndGeneralAmt |
| Fundraising | $2,768,210 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $635,120 | TotalAmt |
| Program Services | $401,190 | ProgramServicesAmt |
| Management And General | $44,374 | ManagementAndGeneralAmt |
| Fundraising | $189,556 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,449,726 | TotalAmt |
| Program Services | $923,453 | ProgramServicesAmt |
| Management And General | $141,017 | ManagementAndGeneralAmt |
| Fundraising | $385,256 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $663,317 | TotalAmt |
| Program Services | $412,482 | ProgramServicesAmt |
| Management And General | $42,611 | ManagementAndGeneralAmt |
| Fundraising | $208,224 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $243,233 | TotalAmt |
| Program Services | $132,675 | ProgramServicesAmt |
| Management And General | $58,557 | ManagementAndGeneralAmt |
| Fundraising | $52,001 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $93,307 | TotalAmt |
| Management And General | $93,307 | ManagementAndGeneralAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $231,371 | TotalAmt |
| Program Services | $231,371 | ProgramServicesAmt |
Fees For Services Prof Fundraising FeesForServicesProfFundraising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $544,654 | TotalAmt |
| Fundraising | $544,654 | FundraisingAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $88,704 | TotalAmt |
| Management And General | $88,704 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $847,754 | TotalAmt |
| Program Services | $652,014 | ProgramServicesAmt |
| Management And General | $94,281 | ManagementAndGeneralAmt |
| Fundraising | $101,459 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $397,070 | TotalAmt |
| Program Services | $327,436 | ProgramServicesAmt |
| Management And General | $504 | ManagementAndGeneralAmt |
| Fundraising | $69,130 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $665,373 | TotalAmt |
| Program Services | $157,292 | ProgramServicesAmt |
| Management And General | $14,958 | ManagementAndGeneralAmt |
| Fundraising | $493,123 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,611,635 | TotalAmt |
| Program Services | $845,206 | ProgramServicesAmt |
| Management And General | $205,939 | ManagementAndGeneralAmt |
| Fundraising | $560,490 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $621,005 | TotalAmt |
| Program Services | $342,071 | ProgramServicesAmt |
| Management And General | $56,634 | ManagementAndGeneralAmt |
| Fundraising | $222,300 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $470,700 | TotalAmt |
| Program Services | $223,083 | ProgramServicesAmt |
| Management And General | $25,682 | ManagementAndGeneralAmt |
| Fundraising | $221,935 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $192,537 | TotalAmt |
| Program Services | $76,574 | ProgramServicesAmt |
| Management And General | $61,805 | ManagementAndGeneralAmt |
| Fundraising | $54,158 | FundraisingAmt |
Interest InterestGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $7,280 | TotalAmt |
| Fundraising | $7,280 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $294,649 | TotalAmt |
| Program Services | $221,702 | ProgramServicesAmt |
| Management And General | $30,194 | ManagementAndGeneralAmt |
| Fundraising | $42,753 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $104,362 | TotalAmt |
| Program Services | $56,347 | ProgramServicesAmt |
| Management And General | $10,260 | ManagementAndGeneralAmt |
| Fundraising | $37,755 | FundraisingAmt |
Other Expenses OtherExpensesGrp (3 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| CREDIT CARD FEES | $199,527 | $187 | $42 | $199,298 |
| TELECOMMUNICATIONS | $97,539 | $52,755 | $9,521 | $35,263 |
| BAD DEBT EXPENSES | $25,000 | $25,000 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $644,449 | TotalAmt |
| Program Services | $561,737 | ProgramServicesAmt |
| Management And General | $80,431 | ManagementAndGeneralAmt |
| Fundraising | $2,281 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $26,026,684 | TotalAmt |
| Program Services | $17,553,332 | ProgramServicesAmt |
| Management And General | $2,032,093 | ManagementAndGeneralAmt |
| Fundraising | $6,441,259 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,558,923 | BOYAmt |
| EOY | $2,299,913 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,737,275 | BOYAmt |
| EOY | $108,137 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $38,222,377 | BOYAmt |
| EOY | $20,419,974 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,039,888 | BOYAmt |
| EOY | $30,031 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,429,577 | BOYAmt |
| EOY | $1,193,958 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $17,655,274 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $16,070,469 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,792,679 | BOYAmt |
| EOY | $1,584,805 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $50,260,252 | BOYAmt |
| EOY | $68,820,941 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $6,204,157 | BOYAmt |
| EOY | $5,894,545 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $107,245,128 | BOYAmt |
| EOY | $100,352,304 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,262,521 | BOYAmt |
| EOY | $6,539,498 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,772,243 | BOYAmt |
| EOY | $236,010 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $468,502 | BOYAmt |
| EOY | $941,635 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,766,890 | BOYAmt |
| EOY | $7,318,324 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $18,270,156 | BOYAmt |
| EOY | $15,035,467 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,771,710 | BOYAmt |
| EOY | $2,247,915 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $84,203,262 | BOYAmt |
| EOY | $83,068,922 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $88,974,972 | BOYAmt |
| EOY | $85,316,837 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $107,245,128 | BOYAmt |
| EOY | $100,352,304 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$5,087,583 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $1,429,448 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | 0 | FSAuditedInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $37,557,524 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $53,676,289 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $124,090,097 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $65,814,797 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $17,242,338 | CurrentTaxYearAmt |
| Total | $298,381,045 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $37,557,524 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $53,676,289 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $124,090,097 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $65,814,797 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $17,242,338 | CurrentTaxYearAmt |
| Total | $298,381,045 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $48,584,762 | SubstantialContributorsTotAmt |
| Public Support Total170 | $249,796,283 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $2,158,934 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,850,075 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,409,226 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $4,277,779 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $618,334 | CurrentTaxYearAmt |
| Total | $11,314,348 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $21,419 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $119,699 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $3,120,901 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,562,403 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $3,938,877 | CurrentTaxYearAmt |
| Total | $8,763,299 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $318,458,692 | TotalSupportAmt |
| Public Support CY170 | 0.78440 | PublicSupportCY170Pct |
| Public Support PY170 | 0.80150 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Form990 Schedule A Part VI Form990ScheduleAPartVIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART II, SHORT YEAR EXPLANATION: | FormAndLineReferenceDesc |
| Explanation | THE ORGANIZATION CHANGED ITS TAX YEAR AND IS THEREFORE SUBMITTING A SHORT PERIOD FORM 990 TO REFLECT THE CHANGE. THE COLUMN FOR 2024 ON SCHEDULE A, PART II REFLECTS THE PERIOD FEBRUARY 1, 2025 THROUGH JUNE 30, 2025. THE COLUMN FOR 2023 ON SCHEDULE A, PART II REFLECTS THE FULL YEAR PERIOD ENDING JANUARY 31, 2025. THE COLUMN FOR 2022 ON SCHEDULE A, PART II REFLECTS THE FULL YEAR PERIOD ENDING JANUARY 31, 2024. THE COLUMN FOR 2021 ON SCHEDULE A, PART II REFLECTS THE FULL YEAR PERIOD ENDING JANUARY 31, 2023. THE COLUMN FOR 2020 ON SCHEDULE A, PART II REFLECTS THE FULL YEAR PERIOD ENDING JANUARY 31, 2022. | ExplanationTxt |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule C IRS990ScheduleC
Total Grassroots Lobbying TotalGrassrootsLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $30,817 | FilingOrganizationsTotalAmt |
Total Direct Lobbying TotalDirectLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $217,408 | FilingOrganizationsTotalAmt |
Total Lobbying Expend TotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $248,225 | FilingOrganizationsTotalAmt |
Other Exempt Purpose Expend OtherExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $17,379,164 | FilingOrganizationsTotalAmt |
Total Exempt Purpose Expend TotalExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $17,627,389 | FilingOrganizationsTotalAmt |
Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $1,000,000 | FilingOrganizationsTotalAmt |
Grassroots Nontaxable GrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $250,000 | FilingOrganizationsTotalAmt |
Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $1,000,000 | CurrentYearMinus3Amt |
| Current Year Minus2 | $1,000,000 | CurrentYearMinus2Amt |
| Current Year Minus1 | $1,000,000 | CurrentYearMinus1Amt |
| Current Year | $1,000,000 | CurrentYearAmt |
| Total | $4,000,000 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Lobbying Ceiling | $6,000,000 | LobbyingCeilingAmt |
Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $872,335 | CurrentYearMinus3Amt |
| Current Year Minus2 | $1,147,968 | CurrentYearMinus2Amt |
| Current Year Minus1 | $1,085,078 | CurrentYearMinus1Amt |
| Current Year | $248,225 | CurrentYearAmt |
| Total | $3,353,606 | TotalAmt |
Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $250,000 | CurrentYearMinus3Amt |
| Current Year Minus2 | $250,000 | CurrentYearMinus2Amt |
| Current Year Minus1 | $250,000 | CurrentYearMinus1Amt |
| Current Year | $250,000 | CurrentYearAmt |
| Total | $1,000,000 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grassroots Ceiling | $1,500,000 | GrassrootsCeilingAmt |
Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $183,829 | CurrentYearMinus3Amt |
| Current Year Minus2 | $152,636 | CurrentYearMinus2Amt |
| Current Year Minus1 | $147,081 | CurrentYearMinus1Amt |
| Current Year | $30,817 | CurrentYearAmt |
| Total | $514,363 | TotalAmt |
Schedule D IRS990ScheduleD
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $233,415 | BeginningYearBalanceAmt |
| End Year Balance | $233,415 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $233,415 | BeginningYearBalanceAmt |
| End Year Balance | $233,415 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $700,961 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $18,056 | InvestmentEarningsOrLossesAmt |
| Administrative Expenses | $485,602 | AdministrativeExpensesAmt |
| End Year Balance | $233,415 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $6,509,730 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | -$503,564 | InvestmentEarningsOrLossesAmt |
| Administrative Expenses | $5,305,205 | AdministrativeExpensesAmt |
| End Year Balance | $700,961 | EndYearBalanceAmt |
CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $6,516,315 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $429,109 | InvestmentEarningsOrLossesAmt |
| Administrative Expenses | $435,694 | AdministrativeExpensesAmt |
| End Year Balance | $6,509,730 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Board Designated Balance EOY | 0.00000 | BoardDesignatedBalanceEOYPct |
| Prmnnt Endowment Balance EOY | 1.00000 | PrmnntEndowmentBalanceEOYPct |
| Term Endowment Balance EOY | 0.00000 | TermEndowmentBalanceEOYPct |
| Endowments Held Unrelated Org | 0 | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | 0 | EndowmentsHeldRelatedOrgInd |
Leasehold Improvements LeaseholdImprovementsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $1,327,429 | OtherCostOrOtherBasisAmt |
| Depreciation | $596,785 | DepreciationAmt |
| Book Value | $730,644 | BookValueAmt |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $2,396,495 | OtherCostOrOtherBasisAmt |
| Depreciation | $1,744,592 | DepreciationAmt |
| Book Value | $651,903 | BookValueAmt |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $13,931,350 | OtherCostOrOtherBasisAmt |
| Depreciation | $13,729,092 | DepreciationAmt |
| Book Value | $202,258 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $1,584,805 | TotalBookValueLandBuildingsAmt |
Other Assets Org OtherAssetsOrgGrp (3 entries)
| DescDesc | Book ValueBookValueAmt |
|---|---|
| RIGHT-OF-USE ASSET - OPERATING | $4,872,494 |
| BENEFICIAL INTEREST IN PERPETUAL TRUSTS | $930,965 |
| CONTRIBUTIONS RECEIVABLE FROM REMAINDER TRUSTS | $91,086 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Other Assets | $5,894,545 | TotalBookValueOtherAssetsAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)
| DescDesc | AmtAmt |
|---|---|
| ANNUITY PAYMENT LIABILITY | $859,775 |
| LEASE LIABILITIES - OPERATING | $6,458,549 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $7,318,324 | TotalLiabilityAmt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART V, LINE 4: | FormAndLineReferenceDesc |
| Explanation | IN 2013 AND 2014, THE ASSOCIATION RECEIVED A BEQUEST TOTALING $6,276,315, ESTABLISHING A TERM ENDOWMENT ACCORDING TO DESIGNATIONS MADE BY THE DONOR. THE PROCEEDS OF THIS BEQUEST ARE TO BE MAINTAINED BY THE ASSOCIATION IN AN ENDOWMENT FUND FOR A PERIOD OF TEN YEARS. EARNINGS FROM THE FUND ARE RESTRICTED TO SUPPORT RESEARCH AND MAY BE SPENT ON A CURRENT BASIS. UPON EXPIRATION OF THE ENDOWMENT TERM, THE CORPUS OF THE FUND MUST ALSO BE USED TO SUPPORT RESEARCH. DURING THE YEAR ENDED JANUARY 31, 2024, THE ASSOCIATION RELEASED THE REMAINDER OF THE FUNDS FROM THIS GIFT. IN ADDITION, THE ASSOCIATION HAS ANOTHER DONOR-RESTRICTED ENDOWMENT FUND. THE PRINCIPAL OF THE ENDOWMENT FUND IS TO BE HELD IN PERPETUITY AND THE NET EARNINGS USED TO SUPPORT RESEARCH EXPENDITURES. | ExplanationTxt |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (4 entries)
| RegionRegionTxt | OfficesOfficesCnt | EmployeeEmployeeCnt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Specific Services ProvidedSpecificServicesProvidedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|---|---|---|
| EAST ASIA AND THE PACIFIC | 0 | 0 | GRANTS TO RECIPIENTS LOCATED IN THE REGION | RESEARCH | $199,984 |
| EUROPE | 0 | 0 | GRANTS TO RECIPIENTS LOCATED IN THE REGION | RESEARCH | $810,474 |
| NORTH AMERICA | 0 | 0 | GRANTS TO RECIPIENTS LOCATED IN THE REGION | RESEARCH | $168,126 |
| SOUTH ASIA | 0 | 0 | GRANTS TO RECIPIENTS LOCATED IN THE REGION | RESEARCH | $50,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continuation Total Office | 0 | ContinuationTotalOfficeCnt |
| Continuation Total Employee | 0 | ContinuationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $1,228,584 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $1,228,584 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (11 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt | Non Cash AssistanceNonCashAssistanceAmt | Description Of Non Cash AsstDescriptionOfNonCashAsstTxt | Valuation Method UsedValuationMethodUsedDesc |
|---|---|---|---|---|---|---|
| EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA, | ASSISTIVE TECHNOLOGY | $199,984 | WIRE TRANSFER | $0 | N/A | N/A |
| EUROPE | ASSISTIVE TECHNOLOGY | $199,994 | WIRE TRANSFER | $0 | N/A | N/A |
| EUROPE | ASSISTIVE TECHNOLOGY | $196,000 | WIRE TRANSFER | $0 | N/A | N/A |
| EUROPE | DRUG DEVELOPMENT CONTRACT | $98,960 | WIRE TRANSFER | $0 | N/A | N/A |
| EUROPE | DRUG DEVELOPMENT CONTRACT | $75,000 | WIRE TRANSFER | $0 | N/A | N/A |
| EUROPE | POST DOCTORAL FELLOWSHIP | $43,291 | WIRE TRANSFER | $0 | N/A | N/A |
| EUROPE | PARTNERSHIP GRANT | $100,000 | WIRE TRANSFER | $0 | N/A | N/A |
| EUROPE | SEED GRANTS PROGRAM | $47,229 | WIRE TRANSFER | $0 | N/A | N/A |
| EUROPE | SEED GRANTS PROGRAM | $50,000 | WIRE TRANSFER | $0 | N/A | N/A |
| NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES | ASSISTIVE TECHNOLOGY | $168,126 | WIRE TRANSFER | $0 | N/A | N/A |
| SOUTH ASIA | SEED GRANTS PROGRAM | $50,000 | WIRE TRANSFER | $0 | N/A | N/A |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 0 | Total501c3OrgCnt |
| Total Other Org | 11 | TotalOtherOrgCnt |
| Transfer To Foreign Corp | 0 | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | GRANTS OUTSIDE OF THE UNITED STATES ARE FOR RESEARCH GRANTS. EACH AWARD HAS SPECIFIC MILESTONE REPORTING REQUIREMENTS AS WELL AS A FINAL REPORT THAT IS SUBMITTED UPON THE END OF THE GRANT PERIOD. THESE REPORTS SHOW THAT THE WORK BEING PERFORMED CONFORMS WITH THE PURPOSE OF THE GRANT AWARD AND THAT FUNDS ARE BEING SPENT APPROPRIATELY. | ExplanationTxt |
Schedule G IRS990ScheduleG
| Field | Value | IRS element (for citing) |
|---|---|---|
| Mail Solicitations | Yes (X) | MailSolicitationsInd |
| Email Solicitations | Yes (X) | EmailSolicitationsInd |
| Phone Solicitations | Yes (X) | PhoneSolicitationsInd |
| In Person Solicitations | Yes (X) | InPersonSolicitationsInd |
| Solicitation Of Non Govt Grants | Yes (X) | SolicitationOfNonGovtGrantsInd |
| Solicitation Of Govt Grants | Yes (X) | SolicitationOfGovtGrantsInd |
| Special Fundraising Events | Yes (X) | SpecialFundraisingEventsInd |
| Agrmt Prof Fundraising Acty | Yes (1) | AgrmtProfFundraisingActyInd |
Fundraiser Activity Info FundraiserActivityInfoGrp (2 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | ActivityActivityTxt | Fundraiser Control Of FundsFundraiserControlOfFundsInd | Gross ReceiptsGrossReceiptsAmt | Retained By ContractorRetainedByContractorAmt | Net To OrganizationNetToOrganizationAmt |
|---|---|---|---|---|---|---|---|---|
| LAUTMAN MASKA NEILL & COMPANY | ||||||||
| 1730 RHODE ISLAND AVE NW SUITE 301 | WASHINGTON | DC | 20036 | FUNDRAISING COUNSEL | 0 | $968,730 | $174,500 | $794,230 |
| STREETLIGHT DIGITAL | ||||||||
| PO BOX 75 | CONIFER | CO | 80433 | FUNDRAISING COUNSEL | 0 | $0 | $198,786 | -$198,786 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Gross Receipts | $968,730 | TotalGrossReceiptsAmt |
| Total Retained By Contractors | $373,286 | TotalRetainedByContractorsAmt |
| Total Net To Organization | $595,444 | TotalNetToOrganizationAmt |
| Licensed States | AL | LicensedStatesCd |
| Licensed States | AK | LicensedStatesCd |
| Licensed States | AZ | LicensedStatesCd |
| Licensed States | AR | LicensedStatesCd |
| Licensed States | CA | LicensedStatesCd |
| Licensed States | CO | LicensedStatesCd |
| Licensed States | CT | LicensedStatesCd |
| Licensed States | DE | LicensedStatesCd |
| Licensed States | DC | LicensedStatesCd |
| Licensed States | FL | LicensedStatesCd |
| Licensed States | GA | LicensedStatesCd |
| Licensed States | HI | LicensedStatesCd |
| Licensed States | ID | LicensedStatesCd |
| Licensed States | IL | LicensedStatesCd |
| Licensed States | IN | LicensedStatesCd |
| Licensed States | IA | LicensedStatesCd |
| Licensed States | KS | LicensedStatesCd |
| Licensed States | KY | LicensedStatesCd |
| Licensed States | LA | LicensedStatesCd |
| Licensed States | ME | LicensedStatesCd |
| Licensed States | MD | LicensedStatesCd |
| Licensed States | MA | LicensedStatesCd |
| Licensed States | MI | LicensedStatesCd |
| Licensed States | MN | LicensedStatesCd |
| Licensed States | MS | LicensedStatesCd |
| Licensed States | MO | LicensedStatesCd |
| Licensed States | MT | LicensedStatesCd |
| Licensed States | NE | LicensedStatesCd |
| Licensed States | NV | LicensedStatesCd |
| Licensed States | NH | LicensedStatesCd |
| Licensed States | NJ | LicensedStatesCd |
| Licensed States | NM | LicensedStatesCd |
| Licensed States | NY | LicensedStatesCd |
| Licensed States | NC | LicensedStatesCd |
| Licensed States | ND | LicensedStatesCd |
| Licensed States | OH | LicensedStatesCd |
| Licensed States | OK | LicensedStatesCd |
| Licensed States | OR | LicensedStatesCd |
| Licensed States | PA | LicensedStatesCd |
| Licensed States | RI | LicensedStatesCd |
| Licensed States | SC | LicensedStatesCd |
| Licensed States | SD | LicensedStatesCd |
| Licensed States | TN | LicensedStatesCd |
| Licensed States | TX | LicensedStatesCd |
| Licensed States | UT | LicensedStatesCd |
| Licensed States | VT | LicensedStatesCd |
| Licensed States | VA | LicensedStatesCd |
| Licensed States | WA | LicensedStatesCd |
| Licensed States | WV | LicensedStatesCd |
| Licensed States | WI | LicensedStatesCd |
| Licensed States | WY | LicensedStatesCd |
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | LIGHT THE JOURNEY GALA | Event1Nm |
| Gross Receipts Event1 | $294,155 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $241,714 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $52,441 | GrossRevenueEvent1Amt |
| Rent Facility Costs Event1 | $14,836 | RentFacilityCostsEvent1Amt |
| Food And Beverage Event1 | $27,892 | FoodAndBeverageEvent1Amt |
| Entertainment Event1 | $9,713 | EntertainmentEvent1Amt |
| Other Direct Expenses Event1 | $13,086 | OtherDirectExpensesEvent1Amt |
| Event2 | JACKSONVILLE WALK | Event2Nm |
| Gross Receipts Event2 | $215,830 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $207,370 | CharitableContriEvent2Amt |
| Gross Revenue Event2 | $8,460 | GrossRevenueEvent2Amt |
| Non Cash Prizes Event2 | $1,618 | NonCashPrizesEvent2Amt |
| Rent Facility Costs Event2 | $6,442 | RentFacilityCostsEvent2Amt |
| Entertainment Event2 | $722 | EntertainmentEvent2Amt |
| Other Events Total | 128 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $3,388,101 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $2,599,682 | CharitableContriOtherEventsAmt |
| Gross Revenue Other Events | $788,419 | GrossRevenueOtherEventsAmt |
| Non Cash Prizes Other Events | $68,109 | NonCashPrizesOtherEventsAmt |
| Rent Fclty Costs Other Events | $310,363 | RentFcltyCostsOtherEventsAmt |
| Food And Beverage Other Events | $67,737 | FoodAndBeverageOtherEventsAmt |
| Entertainment Other Events | $47,764 | EntertainmentOtherEventsAmt |
| Oth Direct Expnss Other Events | $294,446 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $3,898,086 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $3,048,766 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $849,320 | GrossRevenueTotalEventsAmt |
| Non Cash Prizes Total Events | $69,727 | NonCashPrizesTotalEventsAmt |
| Rent Fclty Costs Total Events | $331,641 | RentFcltyCostsTotalEventsAmt |
| Food And Beverage Total Events | $95,629 | FoodAndBeverageTotalEventsAmt |
| Entertainment Total Events | $58,199 | EntertainmentTotalEventsAmt |
| Oth Direct Expnss Total Events | $307,532 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $862,728 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$13,408 | NetIncomeSummaryAmt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE G, PART I, LINE 2B, COLUMN (V) | FormAndLineReferenceDesc |
| Explanation | THE ASSOCIATION RECEIVES ALL PROCEEDS FROM OUR DIRECT MAIL APPEALS PROGRAM INCLUDING TELEMARKETING. HOWEVER, THE ASSOCIATION IS RESPONSIBLE TO PAY FOR ALL EXPENSES INCURRED IN THE IMPLEMENTATION AND PRODUCTION OF ALL THE DIRECT MAIL AND TELEMARKETING SOLICITATIONS. | ExplanationTxt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (42 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Non Cash AssistanceNonCashAssistanceAmt | Valuation Method UsedValuationMethodUsedDesc | Non Cash AssistanceNonCashAssistanceDesc | Purpose Of GrantPurposeOfGrantTxt | Address Line2USAddress/AddressLine2Txt |
|---|---|---|---|---|---|---|---|---|---|---|---|
| BAYLOR COLLEGE OF MEDICINE | |||||||||||
| PO BOX 301207 | DALLAS | TX | 753031207 | 741613878 | 501(C)3 | $99,884 | $0 | N/A | N/A | QUALITY OF CARE PROGRAM, SEED GRANTS PROGRAM | |
| BETH ISRAEL DEACONESS MEDICAL CENTER INC | |||||||||||
| 330 BROOKLINE AVE OV-540 | BOSTON | MA | 02215 | 042103881 | 501(C)3 | $48,477 | $0 | N/A | N/A | SEED GRANTS PROGRAM | |
| CONTROL BIONICS INC | |||||||||||
| 745 CENTER ST SUITE 303 | MILFORD | OH | 45150 | 260765235 | 501(C)3 | $179,492 | $0 | N/A | N/A | ASSISTIVE TECHNOLOGY | |
| FOUNDATION FOR THE NATIONAL INSTITUTES OF HEALTH INC | |||||||||||
| 11400 ROCKVILLE PIKE SUITE 600 | NORTH BETHESDA | MD | 20852 | 521986675 | 501(C)3 | $100,000 | $0 | N/A | N/A | STRATEGIC INITIATIVE | |
| HOLY CROSS HOSPITAL | |||||||||||
| 4725 NORTH FEDERAL HIGHWAY | FT LAUDERDALE | FL | 33308 | 590791028 | 501(C)3 | $12,741 | $0 | N/A | N/A | BITNER PLANTE QUARTERLY GRANT | |
| INOVA HEALTH SYSTEM FOUNDATION | |||||||||||
| 8095 INNOVATION DR | FAIRFAX | VA | 22031 | 541071867 | 501(C)3 | $25,000 | $0 | N/A | N/A | CLINIC GRANT - VA DOH FUND | |
| JOHNS HOPKINS UNIVERSITY | |||||||||||
| CENTERAL LOCKBOX BANK OF AMERICA | CHICAGO | IL | 60693 | 520595110 | 501(C)3 | $100,000 | $0 | N/A | N/A | SEED GRANTS PROGRAM | 12529 COLLECTIONS CENTER DR |
| MASSACHUSETTS GENERAL HOSPITAL | |||||||||||
| PO BOX 414876 | BOSTON | MA | 022414876 | 042697983 | 501(C)3 | $124,890 | $0 | N/A | N/A | STRATEGIC INITIATIVE | |
| MAYO CLINIC ARIZONA | |||||||||||
| 13400 E SHEA BLVD | SCOTTSDALE | AZ | 85259 | 860800150 | 501(C)3 | $250,000 | $0 | N/A | N/A | QUALITY OF CARE PROGRAM | |
| MAYO CLINIC FLORIDA | |||||||||||
| 200 FIRST ST SW | ROCHESTER | MN | 55905 | 590714831 | 501(C)3 | $97,293 | $0 | N/A | N/A | BITNER PLANTE QUARTERLY GRANT | |
| MCV PHYSICIANS | |||||||||||
| PO BOX 786546 | PHILADELPHIA | PA | 19178 | 541581185 | 501(C)3 | $37,500 | $0 | N/A | N/A | CLINIC GRANT - VA DOH FUND | |
| MEDSTAR GEORGETOWN UNIVERSITY HOSPITAL | |||||||||||
| 3800 RESERVOIR ROAD NW 7PHC | WASHINGTON | DC | 20007 | 522218584 | 501(C)3 | $22,500 | $0 | N/A | N/A | CLINIC GRANT - MD DOH FUND | |
| NOVA SOUTHEASTERN UNIVERSITY | |||||||||||
| 3300 S UNIVERSITY DR 5TH FL | FORT LAUDERDALE | FL | 33328 | 591083502 | 501(C)3 | $41,697 | $0 | N/A | N/A | BITNER PLANTE QUARTERLY GRANT | |
| OHIOHEALTH FOUNDATION INC | |||||||||||
| 300 POLARIS PARKWAY STE 210 | WESTERVILLE | OH | 43082 | 237446919 | 501(C)3 | $99,834 | $0 | N/A | N/A | HOFFMAN ALS CLINIC CAPACITY AWARD | |
| ORLANDO HEALTH INC | |||||||||||
| 76 W UNDERWOOD ST 2ND FL MP67 | ORLANDO | FL | 32806 | 591726273 | 501(C)3 | $35,906 | $0 | N/A | N/A | BITNER PLANTE QUARTERLY GRANT | |
| PARDEE MEMORIAL HOSPITAL FOUNDATION INC | |||||||||||
| 561 FLEMING ST | HENDERSONVILLE | NC | 287394215 | 561930028 | 501(C)3 | $172,863 | $0 | N/A | N/A | HOFFMAN ALS CLINIC DEVELOPMENT AWARD | |
| PITT COUNTY MEMORIAL HOSPITAL INC | |||||||||||
| PO BOX 6028 | GREENVILLE | NC | 27835 | 560585243 | 501(C)3 | $144,000 | $0 | N/A | N/A | HOFFMAN ALS CLINIC CAPACITY AWARD | |
| REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS | |||||||||||
| PO BOX 741816 | LOS ANGELES | CA | 900741816 | 946036494 | 501(C)3 | $198,341 | $0 | N/A | N/A | ASSISTIVE TECHNOLOGY | |
| REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO | |||||||||||
| UCSD CAMPUS MAIN DEPOSITORY PO BOX | LOS ANGELES | CA | 90074 | 956006144 | 501(C)3 | $49,892 | $0 | N/A | N/A | SEED GRANTS PROGRAM | 741539 |
| REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO | |||||||||||
| PO BOX 748872 | LOS ANGELES | CA | 900744872 | 946036493 | 501(C)3 | $96,613 | $0 | N/A | N/A | QUALITY OF CARE PROGRAM | |
| REGENTS OF THE UNIVERSITY OF MINNESOTA | |||||||||||
| NW5957 PO BOX 1450 | MINNEAPOLIS | MN | 55485 | 416007513 | 501(C)3 | $136,010 | $0 | N/A | N/A | STRATEGIC INITIATIVE | |
| SENTARA DEPARTMENT OF NEUROLOGY | |||||||||||
| 1950 GLENN MITCHELL DR SUITE 200 | VIRGINIA BEACH | VA | 23456 | 541547408 | 501(C)3 | $25,000 | $0 | N/A | N/A | CLINIC GRANT - VA DOH FUND | |
| SYNAPTICURE INC | |||||||||||
| 3752 N SHEFFIELD AVE 3S | CHICAGO | IL | 60613 | 842468810 | 501(C)3 | $142,020 | $0 | N/A | N/A | HOFFMAN ALS CLINIC CAPACITY AWARD | |
| TACONIC BIOSCIENCES INC | |||||||||||
| 273 HOVER AVE | GERMANTOWN | NY | 12526 | 141381104 | 501(C)3 | $38,524 | $0 | N/A | N/A | STRATEGIC INITIATIVE | |
| THE BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN | |||||||||||
| BOX 78538 | MILWAUKEE | WI | 532788538 | 396006492 | 501(C)3 | $49,999 | $0 | N/A | N/A | SEED GRANTS PROGRAM | |
| THE JOHNS HOPKINS UNIVERSITY | |||||||||||
| 12529 COLLECTIONS CENTER DR | CHICAGO | IL | 60693 | 520595110 | 501(C)3 | $48,343 | $0 | N/A | N/A | CLINIC GRANT - MD DOH FUND/ANNUAL CLINIC SUPPORT /KAHLERT GRANT | |
| THE MEDICAL UNIVERSITY OF SOUTH CAROLINA FOUNDATION | |||||||||||
| 18 BEE ST MSC 450 | CHARLESTON | SC | 29425 | 576028985 | 501(C)3 | $50,000 | $0 | N/A | N/A | CLINIC GRANT - STATE OF SC CLINICS FUND | |
| THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO | |||||||||||
| PO BOX 748872 | LOS ANGELES | CA | 900744872 | 946036493 | 501(C)3 | $144,000 | $0 | N/A | N/A | HOFFMAN ALS CLINIC CAPACITY AWARD | |
| THE REGENTS OF THE UNIVERSITY OF MICHIGAN | |||||||||||
| 777 E EISENHOWER PKWY STE 650 | ANN ARBOR | MI | 48108 | 386006309 | 501(C)3 | $49,999 | $0 | N/A | N/A | SEED GRANTS PROGRAM | |
| THOMAS JEFFERSON UNIVERSITY | |||||||||||
| 125 SOUTH 9TH ST STE 600 | PHILADELPHIA | PA | 19107 | 231352651 | 501(C)3 | $50,000 | $0 | N/A | N/A | TRIAL CAPACITY PROGRAM | |
| TIDAL HEALTH ALS CLINIC | |||||||||||
| 100 E CARROLL ST | SALISBURY | MD | 21801 | 511851935 | 501(C)3 | $6,750 | $0 | N/A | N/A | CLINIC GRANT - MD DOH FUND | |
| UNIVERSITY MEDICAL GROUP - PRISMA HEALTH NEUROLOGY | |||||||||||
| 200 PATEWOOD DR SUITE B350 | GREENVILLE | SC | 29615 | 571004971 | 501(C)3 | $50,000 | $0 | N/A | N/A | CLINIC GRANT - STATE OF SC CLINICS FUND | |
| UNIVERSITY MEDICAL SERVICE ASSOCIATION INC | |||||||||||
| PO BOX 917492 | ORLANDO | FL | 32891 | 237313346 | 501(C)3 | $115,825 | $0 | N/A | N/A | BITNER PLANTE QUARTERLY GRANT | |
| UNIVERSITY OF ALABAMA | |||||||||||
| BOX 870135 | TUSCALOOSA | AL | 35487 | 636001138 | 501(C)3 | $48,520 | $0 | N/A | N/A | QUALITY OF CARE PROGRAM | |
| UNIVERSITY OF ARKANSAS FOR MEDICAL SCIENCES | |||||||||||
| 4301 WEST MARKHAM ST SLOT 560 | LITTLE ROCK | AR | 72205 | 716046242 | 501(C)3 | $169,817 | $0 | N/A | N/A | HOFFMAN ALS CLINIC DEVELOPMENT AWARD | |
| UNIVERSITY OF CALIFORNIA DAVIS | |||||||||||
| 4860 Y ST STE 1700 LAWRENCE J | SACRAMENTO | CA | 95817 | 946036494 | 501(C)3 | $41,667 | $0 | N/A | N/A | CA GOVT GRANT | ELLISON CARE CTR |
| UNIVERSITY OF FLORIDA | |||||||||||
| 33 TIGERT HALL PO BOX 113001 | GAINESVILLE | FL | 32611 | 596002052 | 501(C)3 | $24,323 | $0 | N/A | N/A | BITNER PLANTE QUARTERLY GRANT | |
| UNIVERSITY OF MARYLAND | |||||||||||
| 110 S PACA ST 3RD FL | BALTIMORE | MD | 21201 | 526002033 | 501(C)3 | $25,000 | $0 | N/A | N/A | CLINIC GRANT - MD DOH FUND | |
| UNIVERSITY OF MIAMI | |||||||||||
| 1120 NW 14 ST RM 1373 | MIAMI | FL | 33136 | 590624458 | 501(C)3 | $142,465 | $0 | N/A | N/A | BITNER PLANTE QUARTERLY GRANT | |
| UNIVERSITY OF NORTH CAROLINA CHAPEL HILL | |||||||||||
| PO BOX 402420 | ATLANTA | GA | 303842420 | 566001393 | 501(C)3 | $50,000 | $0 | N/A | N/A | SEED GRANTS PROGRAM | |
| UNIVERSITY OF VIRGINIA RICHARD R DART ALS CLINIC | |||||||||||
| PO BOX 37963 | BOONE | IA | 50037 | 546001796 | 501(C)3 | $37,500 | $0 | N/A | N/A | CLINIC GRANT - VA DOH FUND | |
| VIRGINIA COMMONWEALTH UNIVERSITY | |||||||||||
| 800 E LEIGH ST STE 3100 | RICHMOND | VA | 232843039 | 546001758 | 501(C)3 | $126,885 | $0 | N/A | N/A | HOFFMAN ALS CLINIC CAPACITY AWARD | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 42 | Total501c3OrgCnt |
| Total Other Org | 0 | TotalOtherOrgCnt |
Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Type | PATIENT GRANTS | GrantTypeTxt |
| Recipient | 1556 | RecipientCnt |
| Cash Grant | $1,720,806 | CashGrantAmt |
| Valuation Method Used | N/A | ValuationMethodUsedDesc |
| Non Cash Assistance | N/A | NonCashAssistanceDesc |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | GRANT APPLICATIONS ARE REVIEWED BY COMMITTEES AND STAFF FOR APPROVAL. ALL GRANT AWARDED RESEARCHERS ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING TO OUR RESEARCH DEPARTMENT. THE ASSOCIATION REQUIRES PROGRESS REPORTS THROUGHOUT THE AWARD TO CONTINUE TO RECEIVE FUNDS. | ExplanationTxt |
Schedule M IRS990ScheduleM
Cars And Other Vehicles CarsAndOtherVehiclesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 32 | ContributionCnt |
| Noncash Contributions Rpt F990 | $36,326 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | NET PROCEEDS | MethodOfDeterminingRevenuesTxt |
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 1397 | ContributionCnt |
| Noncash Contributions Rpt F990 | $207,754 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | AVG HIGH/LOW AT DATE | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form8283 Received | 0 | Form8283ReceivedCnt |
| Any Property That Must Be Held | 0 | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | Yes (1) | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | Yes (1) | ThirdPartiesUsedInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 32B: | FormAndLineReferenceDesc |
| Explanation | THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION USED THE SERVICES OF A CAR PROGRAM DONATION PROCESSOR SERVICE, ADVANCED REMARKETING SERVICES INC., TO ACCEPT, PROCESS, AND SELL NON-CASH DONATIONS OF AUTOMOBILES. THE ASSOCIATION USES THE SERVICES OF THE GIVING BLOCK TO ACCEPT, PROCESS AND SELL CRYPTO CURRENCY DONATIONS. THE ASSOCIATION USES BANK OF AMERICA MERRILL LYNCH TO ACCEPT, PROCESS AND SELL STOCK DONATIONS. | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (5 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION A, LINE 1A | THE EXECUTIVE COMMITTEE MADE UP OF ONLY BOARD OF TRUSTEE MEMBERS CAN ACT AS A GOVERNING SUBSET OF THE BOARD WITH POWER TO MAKE DECISIONS FOR THE FULL BOARD. |
| FORM 990, PART VI, SECTION B, LINE 11B | THE 990 IS REVIEWED IN ITS ENTIRETY BY THE FINANCE COMMITTEE OF THE BOARD OF TRUSTEES AND ONCE ACCEPTED AND APPROVED, THE RETURN IS PRESENTED TO THE ENTIRE BOARD OF TRUSTEES PRIOR TO THE SUBMISSION TO THE INTERNAL REVENUE SERVICE. |
| FORM 990, PART VI, SECTION B, LINE 12C | ANNUALLY BOARD MEMBERS SIGN A NEW CONFLICT OF INTEREST STATEMENT AS WELL AS ALL STAFF. MANAGEMENT TRACKS THE CONFLICT OF INTEREST STATEMENTS FOR ALL BOARD AND COMMITTEE MEMBERS AS WELL AS STAFF. WHERE IT IS DETERMINED THAT AN ACTUAL CONFLICT OF INTEREST EXITS, THE RESPONSIBLE PERSON HAVING THE CONFLICT OF INTEREST SHALL NOT BE COUNTED IN DETERMINING THE PRESENCE OF A QUORUM FOR PURPOSES OF THE VOTE ON THAT CONTRACT OR TRANSACTION. SUCH RESPONSIBLE PERSON MAY MAKE A STATEMENT OR PRESENTATION REGARDING THE MATTER OR RESPOND TO QUESTIONS, BUT SUCH RESPONSIBLE PERSON (I) SHALL NOT PARTICIPATE IN OR BE PERMITTED TO HEAR THE BOARD'S OR ASSOCIATION COMMITTEE'S DISCUSSION OF THE MATTER; (II) SHALL NOT ATTEMPT TO EXERT HIS OR HER PERSONAL INFLUENCE WITH RESPECT TO THE MATTER, EITHER AT OR OUTSIDE THE MEETING; (III) SHALL NOT VOTE ON THE CONTRACT OR TRANSACTION; AND (IV) SHALL NOT BE PRESENT IN THE MEETING ROOM WHEN THE VOTE IS TAKEN. |
| FORM 990, PART VI, SECTION B, LINE 15 | THE EXECUTIVE COMPENSATION COMMITTEE PERFORMS THE ANNUAL REVIEW OF THE PRESIDENT AND CEO AND DETERMINES SALARY AND/OR BONUSES USING INFORMATION OBTAINED FROM OUTSIDE SOURCES FOR SIMILAR SIZED ORGANIZATIONS. THIS IS REVIEWED AND COMPARED WITH MARKET DATA FROM ORGANIZATIONS OF A SIMILAR SIZE AND IN THE SAME INDUSTRY. THE PROCESS DESCRIBED HERE WAS LAST COMPLETED FOR THE FISCAL YEAR 01/31/25. THE PRESIDENT AND CEO REVIEWS ALL SENIOR LEVEL MANAGEMENT AND DETERMINES SALARY AND/OR BONUSES USING INFORMATION OBTAINED FROM OUTSIDE SOURCES FOR SIMILAR SIZED ORGANIZATIONS. THIS IS REVIEWED AND COMPARED WITH MARKET DATA FROM ORGANIZATIONS OF A SIMILAR SIZE AND IN THE PROCESS DESCRIBED HERE WAS LAST COMPLETED IN 2025. |
| FORM 990, PART VI, SECTION C, LINE 19 | THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION'S FORM 990S, FINANCIAL STATEMENTS, CONFLICT OF INTEREST POLICY AND GOVERNING DOCUMENTS ARE AVAILABLE FOR REVIEW AT ITS OFFICE UPON WRITTEN REQUEST. FORM 990 AND THE FINANCIAL STATEMENTS ARE AVAILABLE ON ITS WEBSITE AS WELL. |