ALPHA-1 FOUNDATION INC: Form 990, tax year 2024
View the entire original 990 at ProPublica ↗
- Organization
- ALPHA-1 FOUNDATION INC (EIN 65-0585415)
- Tax period
- 2024-07-01 to 2025-06-30
- Filed
- 2026-05-15
- IRS object ID
- 202631359349301803
- Schema version
- 2024v5.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule O
- Schedule R
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2026-05-15T07:14:43+00:00 | ReturnTs |
| Tax Period End | 2025-06-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 135381590 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | BDO USA | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 450 S ORANGE AVE STE 550 | AddressLine1Txt |
| City | ORLANDO | CityNm |
| State Abbreviation | FL | StateAbbreviationCd |
| ZIP | 328013308 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2024-07-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 650585415 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | ALPHA-1 FOUNDATION INC | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | ALPH | BusinessNameControlTxt |
| Phone | 3055679888 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 3300 PONCE DE LEON BLVD | AddressLine1Txt |
| City | CORAL GABLES | CityNm |
| State Abbreviation | FL | StateAbbreviationCd |
| ZIP | 331347211 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | SCOTT SANTARELLA | PersonNm |
| Person Title | PRESIDENT AND CEO | PersonTitleTxt |
| Phone | 3055679888 | PhoneNum |
| Signature | 2026-05-15 | SignatureDt |
| Discuss With Paid Preparer | Yes (true) | DiscussWithPaidPreparerInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IRS Responsible Prty Info Curr | Yes (true) | IRSResponsiblePrtyInfoCurrInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | SAMANTHA BOKORI | PreparerPersonNm |
| PTIN | P01057347 | PTIN |
| Phone | 4078416930 | PhoneNum |
| Preparation | 2026-05-13 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2024 | TaxYr |
| Build TS | 2025-03-06 01:10:19Z | BuildTS |
Form 990 IRS990
Principal Ofcr Business Name PrincipalOfcrBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | SCOTT SANTARELLA | BusinessNameLine1Txt |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 3300 PONCE DE LEON BLVD | AddressLine1Txt |
| City | CORAL GABLES | CityNm |
| State Abbreviation | FL | StateAbbreviationCd |
| ZIP | 331347211 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $26,580,492 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | ALPHA1.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1995 | FormationYr |
| Legal Domicile State | FL | LegalDomicileStateCd |
| Activity Or Mission | THE ALPHA-1 FOUNDATION IS COMMITTED TO FINDING A CURE FOR ALPHA-1 ANTITRYPSIN DEFICIENCY AND TO IMPROVING THE LIVES OF ALPHAS WORLDWIDE. | ActivityOrMissionDesc |
| Voting Members Governing Body | 11 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 11 | VotingMembersIndependentCnt |
| Total Employee | 23 | TotalEmployeeCnt |
| Total Volunteers | 300 | TotalVolunteersCnt |
| Total Gross UBI | $329,000 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $8,897,971 | PYContributionsGrantsAmt |
| CY Contributions Grants | $10,167,916 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $373,667 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $329,000 | CYProgramServiceRevenueAmt |
| PY Investment Income | $2,181,265 | PYInvestmentIncomeAmt |
| CY Investment Income | $3,211,865 | CYInvestmentIncomeAmt |
| PY Other Revenue | $161,477 | PYOtherRevenueAmt |
| CY Other Revenue | $46,646 | CYOtherRevenueAmt |
| PY Total Revenue | $11,614,380 | PYTotalRevenueAmt |
| CY Total Revenue | $13,755,427 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $3,230,157 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $3,199,012 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $2,245,923 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $2,627,386 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $1,124,911 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $4,616,956 | PYOtherExpensesAmt |
| CY Other Expenses | $8,154,384 | CYOtherExpensesAmt |
| PY Total Expenses | $10,093,036 | PYTotalExpensesAmt |
| CY Total Expenses | $13,980,782 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $1,521,344 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$225,355 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $44,464,081 | TotalAssetsBOYAmt |
| Total Assets EOY | $47,454,771 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $2,581,193 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $3,427,861 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $41,882,888 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $44,026,910 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | THE ALPHA-1 FOUNDATION IS COMMITTED TO FINDING A CURE FOR ALPHA-1 ANTITRYPSIN DEFICIENCY AND TO IMPROVING THE LIVES OF PEOPLE AFFECTED BY ALPHA-1 WORLDWIDE. | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $5,839,029 | ExpenseAmt |
| Grant | $2,950,012 | GrantAmt |
| Revenue | $0 | RevenueAmt |
| Desc | ALPHA-1 RESEARCH NETWORK: THE ALPHA-1 RESEARCH INFRASTRUCTURE PROVIDES SUPPORT FOR A NETWORK OF ALPHA-1 INVESTIGATORS WORLDWIDE. IT IS ONE OF THE FOUNDATION'S MOST VALUABLE ASSETS AND INCLUDES THE DNA & TISSUE BANK, THERAPEUTIC DEVELOPMENT NETWORK, AND CLINICAL RESOURCE CENTERS. THE FOUNDATION'S MISSION IS SERVED BY SCIENTIFIC MEETINGS THAT BRING TOGETHER STAKEHOLDERS WITH THE INTENT TO PROMOTE SCIENTIFIC DISCOVERY, IDENTIFY NEW APPROACHES TO THE DETECTION OF ALPHA-1, AND EDUCATE PHYSICIANS AND PATIENTS ON ALPHA-1. THE ALPHA-1 GRANTS AND AWARDS PROGRAM IS THE HEART OF THE FOUNDATION'S RESEARCH ACTIVITIES AND HAS ESTABLISHED ITSELF AS THE WORLDWIDE LEADER OF ALPHA-1 RESEARCH SUPPORT. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $1,305,234 | ExpenseAmt |
| Grant | $0 | GrantAmt |
| Revenue | $0 | RevenueAmt |
| Desc | ALPHA-1 NATIONAL CONFERENCE: THE 34TH ANNUAL ALPHA-1 NATIONAL EDUCATIONAL CONFERENCE WAS HELD ON JUNE 6-8, 2025. AS THE LARGEST ANNUAL GATHERING OF THE ALPHA-1 COMMUNITY, THE NATIONAL CONFERENCE PROVIDES IMPORTANT OPPORTUNITIES FOR NETWORKING, EDUCATION, AND ADVOCACY. THE SPEAKERS INCLUDED SOME OF THE LEADING CLINICIANS AND RESEARCHERS IN THE ALPHA-1 FIELD TO BRING INCREDIBLE SUBJECT MATTER EXPERTISE AND EDUCATION TO THE COMMUNITY. THE PROGRAM COVERED A WIDE RANGE OF MEDICAL EDUCATION AND SUPPORTIVE TOPICS TO INFORM, EMPOWER AND MOTIVATE PATIENTS TO TAKE CHARGE OF THEIR HEALTH. THE LAST SIX YEARS OF PRESENTATIONS ARE AVAILABLE ON THE FOUNDATION'S WEBSITE AT WWW.ALPHA1.ORG. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $641,781 | ExpenseAmt |
| Grant | $249,000 | GrantAmt |
| Revenue | $0 | RevenueAmt |
| Desc | ALPHA-1 REGISTRY AND ACT STUDY: THE RESEARCH REGISTRY IS A CONFIDENTIAL DATABASE OF DIAGNOSED ALPHAS AND CARRIERS WILLING AND ABLE TO PARTICIPATE IN RESEARCH STUDIES AND CLINICAL TRIALS FOR NEW THERAPIES. IT IS COMPRISED OF BOTH PATIENT SUPPORTED AND CLINICAL DATA. THE REGISTRY REPRESENTS THE LARGEST COHORT OF ALPHAS IN THE WORLD. THE GOAL OF THE ALPHA-1 CODED TESTING (ACT) STUDY IS TO PROVIDE A WAY FOR THOSE AT RISK, INCLUDING FAMILY MEMBERS OF DIAGNOSED ALPHAS, TO LEARN THEIR GENOTYPE. THE STUDY INCLUDES A RESEARCH QUESTIONNAIRE, A FINGERSTICK TESTING KIT, AND IS FREE AND CONFIDENTIAL. | Desc |
Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp (5 entries)
| ExpenseExpenseAmt | GrantGrantAmt | RevenueRevenueAmt | DescDesc |
|---|---|---|---|
| $526,408 | $0 | $0 | ALPHA-1 EDUCATION DAYS PROVIDE ACCESS TO CURRENT MEDICAL INFORMATION AND RESOURCES TO HUNDREDS OF ALPHAS, THEIR FAMILIES, AND CAREGIVERS. |
| $2,435,566 | $0 | $0 | OTHER ALPHA-1 SERVICES INCLUDE PATIENT EDUCATION (MATERIALS, WEBSITE, ETC), A PATIENT SUPPORT NETWORK, AND A TARGETED DETECTION PROGRAM. |
| $411,454 | $0 | $0 | THE MISSION OF ALPHA-1 GLOBAL IS TO DEVELOP A COLLABORATIVE GLOBAL NETWORK OF ALPHA-1 PATIENT LEADERS, PHYSICIANS, AND RESEARCHERS. |
| $349,323 | $0 | $0 | THE ALPHA-1-TO-ONE MAGAZINE IS DESIGNED TO INFORM THE COMMUNITY OF RESEARCH DEVELOPMENTS, EDUCATION, ADVOCACY AND FUNDRAISING OPPORTUNITIES. |
| $281,906 | $0 | $0 | THE FOUNDATION'S PUBLIC POLICY PROGRAM MONITORS RELEVANT LEGISLATION AND REGULATORY ISSUES AND PUBLICIZES THE FOUNDATION'S POSITIONS ON SUCH ISSUES. |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Prog Srvc Expense | $4,004,657 | TotalOtherProgSrvcExpenseAmt |
| Total Program Service Expenses | $11,790,701 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (true) | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (true) | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | Yes (true) | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | false | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (true) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | false | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | false | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (true) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | false | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | Yes (true) | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | false | ForeignOfficeInd |
| Foreign Activities | Yes (true) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (true) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | false | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (true) | FundraisingActivitiesInd |
| Gaming Activities | false | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | Yes (true) | GrantsToOrganizationsInd |
| Grants To Individuals | false | GrantsToIndividualsInd |
| Schedule J Required | Yes (true) | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Escrow Account | false | EscrowAccountInd |
| On Behalf Of Issuer | false | OnBehalfOfIssuerInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | false | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | false | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | false | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | Yes (true) | DisregardedEntityInd |
| Related Entity | Yes (true) | RelatedEntityInd |
| Related Organization Ctrl Ent | Yes (true) | RelatedOrganizationCtrlEntInd |
| Transaction With Control Ent | false | TransactionWithControlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 48 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (true) | BackupWthldComplianceInd |
| Employee | 23 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (true) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | Yes (true) | UnrelatedBusIncmOverLimitInd |
| Form990 T Filed | Yes (true) | Form990TFiledInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (true) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (true) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | false | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | false | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | false | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | false | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 11 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 11 | IndependentVotingMemberCnt |
| Family Or Business Rln | false | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (true) | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | false | LocalChaptersInd |
| Policies Reference Chapters | false | PoliciesReferenceChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (true) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (true) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (true) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (true) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (true) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (true) | CompensationProcessCEOInd |
| Compensation Process Other | false | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| Written Policy Or Procedure | false | WrittenPolicyOrProcedureInd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ND | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AZ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | MARK DELVAUX | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 3055679888 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 3300 PONCE DE LEON BLVD | AddressLine1Txt |
| City | CORAL GABLES | CityNm |
| State Abbreviation | FL | StateAbbreviationCd |
| ZIP | 33134 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (19 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|---|
| CATHERINE VERNON | ||||||||
| DIRECTOR/SECRETARY (AS OF 10/2024) | 4.0 | 0 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| FRED C WALSH | ||||||||
| VICE CHAIR (THRU 9/2024) | 8.0 | 0 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| JON HAGSTROM | ||||||||
| CHAIR | 8.0 | 0 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| KENNETH IRVINE | ||||||||
| TREASURER | 8.0 | 0 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| PEGGY IVERSON | ||||||||
| SECRETARY (THRU 10/2024)/VICE CHAIR (AS OF 10/2024) | 8.0 | 0 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| VIRGINIA CLARK | ||||||||
| PHYSICIAN DIRECTOR | 8.0 | 0 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| ALICE TURNER | ||||||||
| DIRECTOR (AS OF 7/2024) | 4.0 | 0 | Yes (X) | $0 | $0 | $0 | ||
| ANN KNEBEL | ||||||||
| DIRECTOR | 4.0 | 0 | Yes (X) | $0 | $0 | $0 | ||
| DARRELL KOTTON | ||||||||
| DIRECTOR | 4.0 | 0 | Yes (X) | $0 | $0 | $0 | ||
| ERIN CARR | ||||||||
| DIRECTOR (AS OF 7/2024) | 4.0 | 0 | Yes (X) | $0 | $0 | $0 | ||
| JENNIFER JOPP | ||||||||
| DIRECTOR | 4.0 | 0 | Yes (X) | $0 | $0 | $0 | ||
| MARK BRANTLY | ||||||||
| DIRECTOR | 4.0 | 0 | Yes (X) | $0 | $0 | $0 | ||
| MARK B DELVAUX | ||||||||
| CFO | 10.0 | 0 | Yes (X) | $100,000 | $0 | $0 | ||
| SCOTT SANTARELLA | ||||||||
| PRESIDENT AND CEO | 40.0 | 0 | Yes (X) | $352,414 | $0 | $25,089 | ||
| ADRIANA ARCE | ||||||||
| SEN DIRECTOR OF EXECUTIVE OPERATIONS & SCIENTIFIC EVENTS | 40.0 | 0 | $107,310 | $0 | $17,264 | Yes (X) | ||
| ANGELA T MCBRIDE | ||||||||
| SENIOR DIRECTOR OF CORPORATE RELATIONS | 40.0 | 0 | $135,996 | $0 | $21,725 | Yes (X) | ||
| JEANNE KUSHNER | ||||||||
| SENIOR DIRECTOR OF COMMUNICATIONS | 40.0 | 0 | $110,591 | $0 | $29,808 | Yes (X) | ||
| LINDA RODRIGUEZ | ||||||||
| SENIOR DEVELOPMENT DIRECTOR | 40.0 | 0 | $136,689 | $0 | $3,028 | Yes (X) | ||
| RANDEL H PLANT | ||||||||
| SENIOR DIRECTOR OF RESEARCH PROGRAMS | 40.0 | 0 | $158,473 | $0 | $22,920 | Yes (X) | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $1,101,473 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $119,834 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 6 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (true) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | Yes (true) | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp (5 entries)
| Address Line1ContractorAddress/USAddress/AddressLine1Txt | CityContractorAddress/USAddress/CityNm | State AbbreviationContractorAddress/USAddress/StateAbbreviationCd | ZIPContractorAddress/USAddress/ZIPCd | ServicesServicesDesc | CompensationCompensationAmt | Address Line2ContractorAddress/USAddress/AddressLine2Txt |
|---|---|---|---|---|---|---|
| STRATISHIFT CONSULTING LLC | ||||||
| 4521 COTTENDALE DRIVE | DURHAM | NC | 27703 | CONSULTING | $601,371 | |
| CROWELL & MORING LLP | ||||||
| TWO MANHATTAN WEST | NEW YORK | NY | 10001 | LEGAL SERVICES | $388,479 | 375 NINTH AVENUE |
| SIGHT & SOUND PRODUCTIONS LLC | ||||||
| 3636 BEACHWOOD COURT | JACKSONVILLE | FL | 32224 | VIDEO PRODUCTION | $350,747 | |
| ALPHANET INC | ||||||
| 3300 PONCE DE LEON BLVD | CORAL GABLES | FL | 33134 | MANAGEMENT SERVICES | $344,699 | |
| EDWARDS-HUNT GROUP LLC | ||||||
| 6590 PENDRY AVENUE | BOCA RATON | FL | 33433 | CONSULTING SERVICES | $303,664 | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 8 | CntrctRcvdGreaterThan100KCnt |
| Fundraising | $165,000 | FundraisingAmt |
| All Other Contributions | $10,002,916 | AllOtherContributionsAmt |
| Noncash Contributions | $8,217 | NoncashContributionsAmt |
| Total Contributions | $10,167,916 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | PUBLICATION INCOME | Desc |
| Business | 513120 | BusinessCd |
| Total Revenue Column | $329,000 | TotalRevenueColumnAmt |
| Unrelated Business Revenue | $329,000 | UnrelatedBusinessRevenueAmt |
Total Oth Program Service Rev TotalOthProgramServiceRevGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $0 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $0 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $329,000 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $974,384 | TotalRevenueColumnAmt |
| Exclusion | $974,384 | ExclusionAmt |
Gross Rents GrossRentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Real | $6,844 | RealAmt |
Rental Income Or Loss RentalIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Real | $6,844 | RealAmt |
| Personal | $0 | PersonalAmt |
Net Rental Income Or Loss NetRentalIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $6,844 | TotalRevenueColumnAmt |
| Exclusion | $6,844 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $14,979,973 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $12,742,492 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $2,237,481 | SecuritiesAmt |
| Other | $0 | OtherAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $2,237,481 | TotalRevenueColumnAmt |
| Exclusion | $2,237,481 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $122,375 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $165,000 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $82,573 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $39,802 | TotalRevenueColumnAmt |
| Exclusion | $39,802 | ExclusionAmt |
Miscellaneous Revenue MiscellaneousRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $0 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $0 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $0 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $13,755,427 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $0 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $329,000 | UnrelatedBusinessRevenueAmt |
| Exclusion | $3,258,511 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part IX | Yes (X) | InfoInScheduleOPartIXInd |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,900,825 | TotalAmt |
| Program Services | $1,900,825 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,298,187 | TotalAmt |
| Program Services | $1,298,187 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $477,503 | TotalAmt |
| Program Services | $288,554 | ProgramServicesAmt |
| Management And General | $111,786 | ManagementAndGeneralAmt |
| Fundraising | $77,163 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,699,523 | TotalAmt |
| Program Services | $1,286,543 | ProgramServicesAmt |
| Management And General | $54,289 | ManagementAndGeneralAmt |
| Fundraising | $358,691 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $49,629 | TotalAmt |
| Program Services | $39,193 | ProgramServicesAmt |
| Management And General | $1,211 | ManagementAndGeneralAmt |
| Fundraising | $9,225 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $255,891 | TotalAmt |
| Program Services | $208,673 | ProgramServicesAmt |
| Management And General | $6,250 | ManagementAndGeneralAmt |
| Fundraising | $40,968 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $144,840 | TotalAmt |
| Program Services | $108,907 | ProgramServicesAmt |
| Management And General | $5,371 | ManagementAndGeneralAmt |
| Fundraising | $30,562 | FundraisingAmt |
Fees For Services Management FeesForServicesManagementGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $551,369 | TotalAmt |
| Program Services | $551,369 | ProgramServicesAmt |
| Management And General | $0 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $547,398 | TotalAmt |
| Program Services | $511,397 | ProgramServicesAmt |
| Management And General | $32,346 | ManagementAndGeneralAmt |
| Fundraising | $3,655 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $95,093 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $95,093 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $86,750 | TotalAmt |
| Program Services | $86,750 | ProgramServicesAmt |
| Management And General | $0 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $188,939 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $188,939 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,752,874 | TotalAmt |
| Program Services | $2,472,460 | ProgramServicesAmt |
| Management And General | $175,984 | ManagementAndGeneralAmt |
| Fundraising | $104,430 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $925,432 | TotalAmt |
| Program Services | $698,171 | ProgramServicesAmt |
| Management And General | $85,228 | ManagementAndGeneralAmt |
| Fundraising | $142,033 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $65,425 | TotalAmt |
| Program Services | $55,189 | ProgramServicesAmt |
| Management And General | $1,334 | ManagementAndGeneralAmt |
| Fundraising | $8,902 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $11,819 | TotalAmt |
| Program Services | $9,263 | ProgramServicesAmt |
| Management And General | $353 | ManagementAndGeneralAmt |
| Fundraising | $2,203 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $469,748 | TotalAmt |
| Program Services | $380,165 | ProgramServicesAmt |
| Management And General | $66,527 | ManagementAndGeneralAmt |
| Fundraising | $23,056 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,207,184 | TotalAmt |
| Program Services | $1,818,631 | ProgramServicesAmt |
| Management And General | $191,459 | ManagementAndGeneralAmt |
| Fundraising | $197,094 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,707 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $4,707 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $38,604 | TotalAmt |
| Program Services | $30,227 | ProgramServicesAmt |
| Management And General | $1,158 | ManagementAndGeneralAmt |
| Fundraising | $7,219 | FundraisingAmt |
Other Expenses OtherExpensesGrp (3 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| DUES AND SUBSCRIPTIONS | $139,134 | $39,051 | $24,872 | $75,211 |
| LICENSES, FEES AND TAXES | $60,795 | $0 | $17,992 | $42,803 |
| REPAIRS AND MAINTENANCE | $9,113 | $7,146 | $271 | $1,696 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $0 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $13,980,782 | TotalAmt |
| Program Services | $11,790,701 | ProgramServicesAmt |
| Management And General | $1,065,170 | ManagementAndGeneralAmt |
| Fundraising | $1,124,911 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $992,958 | BOYAmt |
| EOY | $1,634,327 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,052,795 | BOYAmt |
| EOY | $1,112,805 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $921,723 | BOYAmt |
| EOY | $498,946 | EOYAmt |
Receivables From Officers Etc ReceivablesFromOfficersEtcGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $195,920 | BOYAmt |
| EOY | $166,217 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $565,812 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $418,074 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $10,705 | BOYAmt |
| EOY | $147,738 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $39,774,063 | BOYAmt |
| EOY | $42,752,962 | EOYAmt |
Investments Other Securities InvestmentsOtherSecuritiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
Investments Program Related InvestmentsProgramRelatedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,490,917 | BOYAmt |
| EOY | $1,116,776 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $25,000 | BOYAmt |
| EOY | $25,000 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $44,464,081 | BOYAmt |
| EOY | $47,454,771 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,000,326 | BOYAmt |
| EOY | $1,418,198 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $941,034 | BOYAmt |
| EOY | $1,193,830 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $639,833 | BOYAmt |
| EOY | $815,833 | EOYAmt |
Loans From Officers Directors LoansFromOfficersDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,581,193 | BOYAmt |
| EOY | $3,427,861 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $39,896,406 | BOYAmt |
| EOY | $41,418,273 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,986,482 | BOYAmt |
| EOY | $2,608,637 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $41,882,888 | BOYAmt |
| EOY | $44,026,910 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $44,464,081 | BOYAmt |
| EOY | $47,454,771 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part XI | Yes (X) | InfoInScheduleOPartXIInd |
| Reconcilation Revenue Expnss | -$225,355 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $2,743,518 | NetUnrlzdGainsLossesInvstAmt |
| Donated Services And Use Fclts | $0 | DonatedServicesAndUseFcltsAmt |
| Investment Expense | $0 | InvestmentExpenseAmt |
| Prior Period Adjustments | $0 | PriorPeriodAdjustmentsAmt |
| Other Changes In Net Assets | -$374,141 | OtherChangesInNetAssetsAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | false | AccountantCompileOrReviewInd |
| FS Audited | Yes (true) | FSAuditedInd |
| Audit Committee | Yes (true) | AuditCommitteeInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $7,939,893 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $9,050,130 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $8,383,940 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $8,872,661 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $10,167,916 | CurrentTaxYearAmt |
| Total | $44,414,540 | TotalAmt |
Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $7,939,893 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $9,050,130 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $8,383,940 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $8,872,661 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $10,167,916 | CurrentTaxYearAmt |
| Total | $44,414,540 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $30,271,246 | SubstantialContributorsTotAmt |
| Public Support Total170 | $14,143,294 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $469,516 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $474,423 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $690,915 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $939,909 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $981,228 | CurrentTaxYearAmt |
| Total | $3,555,991 | TotalAmt |
Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $62,038 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $137,860 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $86,623 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $95,763 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $0 | CurrentTaxYearAmt |
| Total | $382,284 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $0 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $0 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $0 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $0 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $0 | CurrentTaxYearAmt |
| Total | $0 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $48,352,815 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $0 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.29250 | PublicSupportCY170Pct |
| Public Support PY170 | 0.2217 | PublicSupportPY170Pct |
| Ten Pct Facts Crcmstncs Test CY | Yes (X) | TenPctFactsCrcmstncsTestCYInd |
Form990 Schedule A Part VI Form990ScheduleAPartVIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Schedule A, Part II, Line 17a | FormAndLineReferenceDesc |
| Explanation | THE ALPHA-1 FOUNDATION MAINTAINS AN ONGOING SOLICITATION PROGRAM FROM THE GENERAL PUBLIC. DURING THE FISCAL YEAR ENDED JUNE 30, 2025, THE FOUNDATION RECEIVED CONTRIBUTIONS FROM 3,148 DONORS FROM ACROSS THE UNITED STATES. AS SHOWN ON SCHEDULE B, 48 DONORS CONTRIBUTED AMOUNTS OF $5,000 OR HIGHER. FUNDRAISING ACTIVITIES INCLUDE A GENERAL CAMPAIGN, SPECIAL EVENTS, AND OTHER FUNDRAISING APPEALS. THE PUBLIC SUPPORT PERCENTAGE FOR FISCAL 2025 WOULD BE ABOVE 33 1/3% IF THE SUPPORT RECEIVED FROM ALPHANET INC., A SECTION 509(A)(2) PUBLIC CHARITY, WAS EXCLUDED FROM THIS COMPUTATION. THE SUPPORT RECEIVED FROM ALPHANET HAS PROVIDED FUNDING TO SUPPORT DETECTION OF ALPHA-1 AFFECTED PERSONS, RESEARCH FOR IMPROVED THERAPIES, AND A CURE FOR ALPHA-1. | ExplanationTxt |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule C IRS990ScheduleC
Total Grassroots Lobbying TotalGrassrootsLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $5,750 | FilingOrganizationsTotalAmt |
Total Direct Lobbying TotalDirectLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $81,000 | FilingOrganizationsTotalAmt |
Total Lobbying Expend TotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $86,750 | FilingOrganizationsTotalAmt |
Other Exempt Purpose Expend OtherExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $11,703,951 | FilingOrganizationsTotalAmt |
Total Exempt Purpose Expend TotalExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $11,790,701 | FilingOrganizationsTotalAmt |
Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $739,535 | FilingOrganizationsTotalAmt |
| Affiliated Group Total | $0 | AffiliatedGroupTotalAmt |
Grassroots Nontaxable GrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $184,884 | FilingOrganizationsTotalAmt |
Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $468,710 | CurrentYearMinus3Amt |
| Current Year Minus2 | $504,166 | CurrentYearMinus2Amt |
| Current Year Minus1 | $664,350 | CurrentYearMinus1Amt |
| Current Year | $739,535 | CurrentYearAmt |
| Total | $2,376,761 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Lobbying Ceiling | $3,565,142 | LobbyingCeilingAmt |
Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $10,000 | CurrentYearMinus3Amt |
| Current Year Minus2 | $10,000 | CurrentYearMinus2Amt |
| Current Year Minus1 | $61,500 | CurrentYearMinus1Amt |
| Current Year | $86,750 | CurrentYearAmt |
| Total | $168,250 | TotalAmt |
Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $117,178 | CurrentYearMinus3Amt |
| Current Year Minus2 | $126,042 | CurrentYearMinus2Amt |
| Current Year Minus1 | $166,088 | CurrentYearMinus1Amt |
| Current Year | $184,884 | CurrentYearAmt |
| Total | $594,192 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grassroots Ceiling | $891,288 | GrassrootsCeilingAmt |
Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $10,000 | CurrentYearMinus3Amt |
| Current Year Minus2 | $10,000 | CurrentYearMinus2Amt |
| Current Year Minus1 | $6,500 | CurrentYearMinus1Amt |
| Current Year | $5,750 | CurrentYearAmt |
| Total | $32,250 | TotalAmt |
Schedule D IRS990ScheduleD
| Field | Value | IRS element (for citing) |
|---|---|---|
| Donor Advised Funds Held | 1 | DonorAdvisedFundsHeldCnt |
| Funds And Other Accounts Held | 0 | FundsAndOtherAccountsHeldCnt |
| Donor Advised Funds Contri | $0 | DonorAdvisedFundsContriAmt |
| Funds And Other Accounts Contri | $0 | FundsAndOtherAccountsContriAmt |
| Donor Advised Funds Grants | $0 | DonorAdvisedFundsGrantsAmt |
| Funds And Other Accounts Grants | $0 | FundsAndOtherAccountsGrantsAmt |
| Donor Advised Funds Vl EOY | $28,369 | DonorAdvisedFundsVlEOYAmt |
| Funds And Other Accounts Vl EOY | $0 | FundsAndOtherAccountsVlEOYAmt |
| Disclosed Org Leg Ctrl | Yes (true) | DisclosedOrgLegCtrlInd |
| Disclosed For Charitable Prps | Yes (true) | DisclosedForCharitablePrpsInd |
Leasehold Improvements LeaseholdImprovementsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $200,825 | OtherCostOrOtherBasisAmt |
| Depreciation | $200,825 | DepreciationAmt |
| Book Value | $0 | BookValueAmt |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $304,928 | OtherCostOrOtherBasisAmt |
| Depreciation | $157,190 | DepreciationAmt |
| Book Value | $147,738 | BookValueAmt |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $60,059 | OtherCostOrOtherBasisAmt |
| Depreciation | $60,059 | DepreciationAmt |
| Book Value | $0 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $147,738 | TotalBookValueLandBuildingsAmt |
| Total Liability | $0 | TotalLiabilityAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Other Revenue | $0 | OtherRevenueAmt |
| Revenue Not Reported | $0 | RevenueNotReportedAmt |
| Revenue Subtotal | $0 | RevenueSubtotalAmt |
| Other Revenues Not Included | $0 | OtherRevenuesNotIncludedAmt |
| Revenue Not Reported Fincl Stmt | $0 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $0 | TotalRevenuePerForm990Amt |
| Other Expenses Included | $0 | OtherExpensesIncludedAmt |
| Expenses Not Reported | $0 | ExpensesNotReportedAmt |
| Expenses Subtotal | $0 | ExpensesSubtotalAmt |
| Other Expenses Not Included | $0 | OtherExpensesNotIncludedAmt |
| Expenses Not Rpt Fincl Stmt | $0 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $0 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Schedule D, Part X, Line 2 FIN 48 (ASC 740) footnote | FormAndLineReferenceDesc |
| Explanation | THE FOUNDATION HAS ADOPTED THE PROVISIONS OF FINANCIAL ACCOUNTING STANDARDS CODIFICATION (ASC) 740, INCOME TAXES. UNDER ASC 740, THE FOUNDATION MUST RECOGNIZE THE TAX BENEFIT ASSOCIATED WITH TAX POSITIONS TAKEN FOR TAX RETURN PURPOSES WHEN IT IS MORE LIKELY THAN NOT THAT THE POSITION WILL BE SUSTAINED. MANAGEMENT OF THE FOUNDATION DOES NOT BELIEVE THERE ARE ANY MATERIAL UNCERTAIN TAX POSITIONS AND, ACCORDINGLY, HAS NOT RECORDED ANY LIABILITY FOR UNRECOGNIZED TAX BENEFITS. | ExplanationTxt |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (3 entries)
| RegionRegionTxt | OfficesOfficesCnt | EmployeeEmployeeCnt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|---|---|
| North America (Canada & Mexico only) | 0 | 0 | Grantmaking | $200,000 |
| East Asia and the Pacific | 0 | 0 | Grantmaking | $73,812 |
| Europe (Including Iceland and Greenland) | 0 | 0 | Grantmaking | $1,024,375 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continuation Total Office | 0 | ContinuationTotalOfficeCnt |
| Continuation Total Employee | 0 | ContinuationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $1,298,187 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $1,298,187 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (13 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt |
|---|---|---|---|
| Europe (Including Iceland and Greenland) | RESEARCH | $191,232 | WIRE |
| North America (Canada & Mexico only) | RESEARCH | $200,000 | WIRE |
| Europe (Including Iceland and Greenland) | RESEARCH | $37,228 | WIRE |
| Europe (Including Iceland and Greenland) | RESEARCH | $20,000 | WIRE |
| Europe (Including Iceland and Greenland) | RESEARCH | $180,292 | WIRE |
| East Asia and the Pacific | RESEARCH | $73,812 | WIRE |
| Europe (Including Iceland and Greenland) | RESEARCH | $74,625 | WIRE |
| Europe (Including Iceland and Greenland) | RESEARCH | $124,307 | WIRE |
| Europe (Including Iceland and Greenland) | RESEARCH | $68,375 | WIRE |
| Europe (Including Iceland and Greenland) | RESEARCH | $136,255 | WIRE |
| Europe (Including Iceland and Greenland) | RESEARCH | $99,447 | WIRE |
| Europe (Including Iceland and Greenland) | RESEARCH | $74,000 | WIRE |
| Europe (Including Iceland and Greenland) | RESEARCH | $18,614 | WIRE |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 13 | Total501c3OrgCnt |
| Total Other Org | 0 | TotalOtherOrgCnt |
| Transfer To Foreign Corp | false | TransferToForeignCorpInd |
| Interest In Foreign Trust | false | InterestInForeignTrustInd |
| Foreign Corp Ownership | false | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | false | PassiveForeignInvestmestCoInd |
| Foreign Partnership | false | ForeignPartnershipInd |
| Boycott Countries | false | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail (3 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Schedule F, Part I, Line 2 Procedures for monitoring use of grant funds | THE FOUNDATION HAS A GRANTS ADVISORY COMMITTEE CONSISTING OF 25 MEMBERS AND 2 STAFF MEMBERS ASSIGNED TO THE COMMITTEE. THE MEMBERSHIP OF THE COMMITTEE CONSISTS OF MEDICAL DOCTORS WHO ARE ALPHA-1 EXPERTS AND RESEARCHERS. THE COMMITTEE REVIEWS GRANT APPLICATIONS FOR QUALITY AND APPLICABILITY OF RESEARCH FUNDS. PRIOR TO ACCEPTANCE, THE PROSPECTIVE GRANTEE IS CHECKED AGAINST THE US TREASURY'S OFAC LIST. ON A QUARTERLY BASIS, ALL GRANTS ARE PEER-REVIEWED FOR PROGRESS BEFORE SUBSEQUENT PAYMENTS ARE MADE. FINAL RESEARCH REPORTS ARE SUBMITTED AND PEER-REVIEWED BEFORE FINAL GRANT PAYMENTS ARE MADE. |
| Schedule F, Part I, Line 3 Method used to account for expenditures on org's financial statements | EAST ASIA AND THE PACIFIC-Cash; EUROPE (INCLUDING ICELAND AND GREENLAND)-Cash; NORTH AMERICA (CANADA & MEXICO ONLY)-Accrual |
| Schedule F, Part II, Line 1 Method used to account for expenditures on org's financial statements | EAST ASIA AND THE PACIFIC-Accrual; EUROPE (INCLUDING ICELAND AND GREENLAND)-Accrual; NORTH AMERICA (CANADA & MEXICO ONLY)-Accrual |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | BUILDING FRIENDS FOR A CURE | Event1Nm |
| Gross Receipts Event1 | $287,375 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $165,000 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $122,375 | GrossRevenueEvent1Amt |
| Rent Facility Costs Event1 | $68,760 | RentFacilityCostsEvent1Amt |
| Food And Beverage Event1 | $6,205 | FoodAndBeverageEvent1Amt |
| Other Direct Expenses Event1 | $7,608 | OtherDirectExpensesEvent1Amt |
| Gross Revenue Event2 | $0 | GrossRevenueEvent2Amt |
| Gross Revenue Other Events | $0 | GrossRevenueOtherEventsAmt |
| Gross Receipts Total | $287,375 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $165,000 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $122,375 | GrossRevenueTotalEventsAmt |
| Rent Fclty Costs Total Events | $68,760 | RentFcltyCostsTotalEventsAmt |
| Food And Beverage Total Events | $6,205 | FoodAndBeverageTotalEventsAmt |
| Oth Direct Expnss Total Events | $7,608 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $82,573 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | $39,802 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (19 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt | Address Line2USAddress/AddressLine2Txt |
|---|---|---|---|---|---|---|---|---|
| UNIVERSITY OF FLORIDA | ||||||||
| 1600 SW ARCHER RD | GAINSVILLE | FL | 32610 | 596002052 | 501(C)(3) | $470,549 | RESEARCH | |
| REGENTS OF THE UNIV OF CALIFORNIA | ||||||||
| 1850 RESEARCH PARK DR | DAVIS | CA | 956186153 | 946036494 | 501(C)(3) | $178,944 | RESEARCH | |
| BRIGHAM & WOMEN'S HOSPITAL INC | ||||||||
| 75 FRANCIS ST | BOSTON | MA | 02115 | 042312909 | 501(C)(3) | $174,125 | RESEARCH | |
| BAYLOR COLLEGE OF MEDICINE | ||||||||
| PO BOX 201361 | HOUSTON | TX | 77216 | 741613878 | 501(C)(3) | $174,051 | RESEARCH | |
| NATIONAL JEWISH HEALTH | ||||||||
| 1400 JACKSON ST | DENVER | CO | 80206 | 742044647 | 501(C)(3) | $99,723 | RESEARCH | M217 |
| UNIVERISTY OF CINCINNATI | ||||||||
| 4100 WEST 150TH ST | CLEVELAND | OH | 441351304 | 316000989 | 501(C)(3) | $99,500 | RESEARCH | |
| CLEMSON UNIVERSITY | ||||||||
| 391 COLLEGE AVE | CLEMSON | SC | 39634 | 576000254 | 501(C)(3) | $99,452 | RESEARCH | STE 303 |
| BOSTON MEDICAL CENTER | ||||||||
| 600 HARRISON AVENUE | BOSTON | MA | 02118 | 043314093 | 501(C)(3) | $95,267 | RESEARCH | |
| THE UNIVERSITY OF TEXAS | ||||||||
| PO BOX 7159 | AUSTIN | TX | 77137 | 746000203 | 501(C)(3) | $74,000 | RESEARCH | |
| BOSTON UNIV OF INTERNAL MEDICINE | ||||||||
| 85 E NEWTON ST | BOSTON | MA | 021182308 | 510172171 | 501(C)(3) | $63,368 | RESEARCH | M-921 |
| UNIVERSITY OF COLORADO | ||||||||
| 1600 BROADWAY | DENVER | CO | 80202 | 846000555 | 501(c)(3) | $52,500 | RESEARCH | |
| UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC | ||||||||
| 3901 RAINBOW BLVD | KANSAS CITY | KS | 66160 | 480680117 | 501(C)(3) | $48,012 | RESEARCH | MS 1039 |
| UNIVERSITY OF CHICAGO | ||||||||
| 5801 SOUTH ELLIS AVENUE | CHICAGO | IL | 60637 | 362177139 | 501(C)(3) | $45,894 | RESEARCH | |
| CENTER FOR VETERANS RESEARCH AND EDUCATION | ||||||||
| 1 VETERANS DR 151 | MINNEAPOLIS | MN | 55417 | 411652941 | 501(C)(3) | $38,837 | RESEARCH | |
| TRUSTEES OF BOSTON UNIVERSITY | ||||||||
| 25 BUICK STREET | BOSTON | MA | 02215 | 042103547 | 501(C)(3) | $37,250 | RESEARCH | 2ND FLOOR |
| COLUMBIA UNIVERSITY | ||||||||
| 630 W 168T ST | NEW YORK | NY | 10027 | 135598093 | 501(C)(3) | $35,845 | RESEARCH | STE 39 |
| UNIVERSITY OF UTAH | ||||||||
| 201 SOUTH PRESIDENTS CIRCLE | SALT LAKE CITY | UT | 84112 | 876000525 | 501(C)(3) | $10,499 | RESEARCH | RM 159 |
| FEDERATION OF AMERICAN SOCIETIES FOR EXPERIMENTAL BIOLOGY | ||||||||
| 9650 ROCKVILLE PIKE | BETHESDA | MD | 20814 | 520700497 | 501(C)(3) | $7,500 | RESEARCH | |
| GORDON RESEARCH CONFERENCES | ||||||||
| 1400 JACKSON ST | DENVER | CO | 80206 | 260150662 | 501(C)(3) | $7,500 | RESEARCH | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 19 | Total501c3OrgCnt |
| Total Other Org | 0 | TotalOtherOrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Schedule I, Part I, Line 2 Procedures for monitoring use of grant funds | FormAndLineReferenceDesc |
| Explanation | THE FOUNDATION HAS A GRANTS ADVISORY COMMITTEE CONSISTING OF 25 MEMBERS AND 2 STAFF MEMBERS ASSIGNED TO THE COMMITTEE. THE MEMBERSHIP OF THE COMMITTEE CONSISTS OF MEDICAL DOCTORS WHO ARE ALPHA-1 EXPERTS AND RESEARCHERS. THE COMMITTEE REVIEWS GRANT APPLICATIONS FOR QUALITY AND APPLICABILITY OF RESEARCH FUNDS. PRIOR TO ACCEPTANCE, THE PROSPECTIVE GRANTEE IS CHECKED AGAINST THE US TREASURY'S OFAC LIST. ON A QUARTERLY BASIS, ALL GRANTS ARE PEER-REVIEWED FOR PROGRESS BEFORE SUBSEQUENT PAYMENTS ARE MADE. FINAL RESEARCH REPORTS ARE SUBMITTED AND PEER-REVIEWED BEFORE FINAL GRANT PAYMENTS ARE MADE. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Compensation Committee | Yes (X) | CompensationCommitteeInd |
| Independent Consultant | Yes (X) | IndependentConsultantInd |
| Form990 Of Other Organizations | Yes (X) | Form990OfOtherOrganizationsInd |
| Written Employment Contract | Yes (X) | WrittenEmploymentContractInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | false | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | false | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | false | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | false | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | false | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | false | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | false | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | false | AnyNonFixedPaymentsInd |
| Initial Contract Exception | false | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (4 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| MARK B DELVAUX | ||||||||||||||
| CFO | $100,000 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $100,000 | $0 | $0 | $0 |
| SCOTT SANTARELLA | ||||||||||||||
| PRESIDENT AND CEO | $352,414 | $0 | $0 | $0 | $0 | $0 | $10,350 | $0 | $14,739 | $0 | $377,503 | $0 | $0 | $0 |
| ANGELA T MCBRIDE | ||||||||||||||
| SENIOR DIRECTOR OF CORPORATE RELATIONS | $135,996 | $0 | $0 | $0 | $0 | $0 | $7,466 | $0 | $14,259 | $0 | $157,721 | $0 | $0 | $0 |
| RANDEL H PLANT | ||||||||||||||
| SENIOR DIRECTOR OF RESEARCH PROGRAMS | $158,473 | $0 | $0 | $0 | $0 | $0 | $8,772 | $0 | $14,148 | $0 | $181,393 | $0 | $0 | $0 |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Schedule J, Part II COMPENSATION FROM AN UNRELATED ORGANIZATION OR INDIVIDUAL | FormAndLineReferenceDesc |
| Explanation | NAME - MARK B. DELVAUX, COMPENSATION FROM UNRELATED ORGANIZATION - 100000, NAME OF UNRELATED ORGANIZATION - ALPHANET INC., TYPE OF COMPENSATION - ADMINISTRATIVE SERVICES AGREEMENT | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (11 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Form 990, Part III, Line 4d Description of other program services | (Expenses $ 526,408 including grants of $ 0)(Revenue $ 0) ALPHA-1 EDUCATION DAYS PROVIDE ACCESS TO CURRENT MEDICAL INFORMATION AND RESOURCES TO HUNDREDS OF ALPHAS, THEIR FAMILIES, AND CAREGIVERS. |
| Form 990, Part III, Line 4d Description of other program services | (Expenses $ 2,435,566 including grants of $ 0)(Revenue $ 0) OTHER ALPHA-1 SERVICES INCLUDE PATIENT EDUCATION (MATERIALS, WEBSITE, ETC), A PATIENT SUPPORT NETWORK, AND A TARGETED DETECTION PROGRAM. |
| Form 990, Part III, Line 4d Description of other program services | (Expenses $ 411,454 including grants of $ 0)(Revenue $ 0) THE MISSION OF ALPHA-1 GLOBAL IS TO DEVELOP A COLLABORATIVE GLOBAL NETWORK OF ALPHA-1 PATIENT LEADERS, PHYSICIANS, AND RESEARCHERS. |
| Form 990, Part III, Line 4d Description of other program services | (Expenses $ 349,323 including grants of $ 0)(Revenue $ 0) THE ALPHA-1-TO-ONE MAGAZINE IS DESIGNED TO INFORM THE COMMUNITY OF RESEARCH DEVELOPMENTS, EDUCATION, ADVOCACY AND FUNDRAISING OPPORTUNITIES. |
| Form 990, Part III, Line 4d Description of other program services | (Expenses $ 281,906 including grants of $ 0)(Revenue $ 0) THE FOUNDATION'S PUBLIC POLICY PROGRAM MONITORS RELEVANT LEGISLATION AND REGULATORY ISSUES AND PUBLICIZES THE FOUNDATION'S POSITIONS ON SUCH ISSUES. |
| Form 990, Part VI, Line 11b Review of form 990 by governing body | THE FORM 990 IS PROVIDED TO MEMBERS OF MANAGEMENT AND THE BOARD OF DIRECTORS FOR REVIEW PRIOR TO FILING. |
| Form 990, Part VI, Line 12c Conflict of interest policy | WRITTEN CONFLICT OF INTEREST STATEMENTS ARE OBTAINED FROM ALL OFFICERS, BOARD MEMBERS, AND COMMITTEE MEMBERS ON AN ANNUAL BASIS. |
| Form 990, Part VI, Line 15a Process to establish compensation of top management official | COMPENSATION LEVELS ARE DEVELOPED USING SALARY SURVEYS AND A REVIEW OF 990S FOR COMPARABLE NOT-FOR-PROFIT ORGANIZATIONS. |
| Form 990, Part VI, Line 19 Required documents available to the public | AUDITED FINANCIAL STATEMENTS ARE AVAILABLE ON WWW.ALPHA1.ORG. GOVERNING DOCUMENTS AND THE CONFLICT OF INTEREST POLICY ARE AVAILABLE UPON REQUEST. |
| Form 990, Part IX, Line 11g Other Fees | OTHER CONTRACT SERVICES - Total Expense: 2752874, Program Service Expense: 2472460, Management and General Expenses: 175984, Fundraising Expenses: 104430; |
| Form 990, Part XI, Line 9 Other changes in net assets or fund balances | CHANGES ATTRIBUTED TO INCOME FROM AFFILIATE - -374141; Total - -374141; |
Schedule R IRS990ScheduleR
Id Disregarded Entities IdDisregardedEntitiesGrp
Disregarded Entity Name DisregardedEntityName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | ALPHA DETECT LLC | BusinessNameLine1Txt |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 3300 PONCE DE LEON BLVD | AddressLine1Txt |
| City | CORAL GABLES | CityNm |
| State Abbreviation | FL | StateAbbreviationCd |
| ZIP | 331347211 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Primary Activities | DETECTING RISK OF ALPHA-1 ANTITRYPSIN DEFICIENCY (AATD) | PrimaryActivitiesTxt |
| Legal Domicile State | DE | LegalDomicileStateCd |
| Total Income | $750,000 | TotalIncomeAmt |
| End Of Year Assets | $750,000 | EndOfYearAssetsAmt |
Direct Controlling Entity Name DirectControllingEntityName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | ALPHA-1 FOUNDATION INC | BusinessNameLine1Txt |
Id Related Org Txbl Corp Tr IdRelatedOrgTxblCorpTrGrp
Related Organization Name RelatedOrganizationName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | THE ALPHA-1 PROJECT INC | BusinessNameLine1Txt |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 3300 PONCE DE LEON BLVD | AddressLine1Txt |
| City | CORAL GABLES | CityNm |
| State Abbreviation | FL | StateAbbreviationCd |
| ZIP | 331347211 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 272040293 | EIN |
| Primary Activities | DRUG THERAPIES | PrimaryActivitiesTxt |
| Legal Domicile State | DE | LegalDomicileStateCd |
Direct Controlling Entity Name DirectControllingEntityName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | ALPHA-1 FOUNDATION INC | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Entity Type | C Corporation | EntityTypeTxt |
| Share Of Total Income | $18 | ShareOfTotalIncomeAmt |
| Controlled Organization | Yes (true) | ControlledOrganizationInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Receipt Of Int Annts Rnts Rylts | false | ReceiptOfIntAnntsRntsRyltsInd |
| Gift Grnt Or Cap Contri To Oth Org | false | GiftGrntOrCapContriToOthOrgInd |
| Gift Grnt Cap Contri From Oth Org | false | GiftGrntCapContriFromOthOrgInd |
| Loans Or Guarantees To Other Org | false | LoansOrGuaranteesToOtherOrgInd |
| Loans Or Guarantees From Oth Org | false | LoansOrGuaranteesFromOthOrgInd |
| Div Related Organization | false | DivRelatedOrganizationInd |
| Asset Sale To Other Org | false | AssetSaleToOtherOrgInd |
| Asset Purchase From Other Org | false | AssetPurchaseFromOtherOrgInd |
| Asset Exchange | false | AssetExchangeInd |
| Rental Of Facilities To Oth Org | false | RentalOfFacilitiesToOthOrgInd |
| Rental Of Fclts From Oth Org | false | RentalOfFcltsFromOthOrgInd |
| Perform Of Services For Oth Org | false | PerformOfServicesForOthOrgInd |
| Perform Of Services By Other Org | false | PerformOfServicesByOtherOrgInd |
| Sharing Of Facilities | false | SharingOfFacilitiesInd |
| Paid Employees Sharing | false | PaidEmployeesSharingInd |
| Reimbursement Paid To Other Org | false | ReimbursementPaidToOtherOrgInd |
| Reimbursement Paid By Other Org | false | ReimbursementPaidByOtherOrgInd |
| Transfer To Other Org | false | TransferToOtherOrgInd |
| Transfer From Other Org | false | TransferFromOtherOrgInd |