CARDIO FACIO CUTANEOUS INTERNATIONAL INC

2024 · Form 990 · revenue $207K · expenses $401K · assets $345K

EIN

16-1569293

Address

3665 E BAY DR STE 204, LARGO, FL 33771-1989

Website

www.cfcsyndrome.org

NTEE code

B99

Subsection

501(c)(3)

Ruling year

1999

Cross-check

ProPublica Nonprofit Explorer

Mission

CFC International's mission is to improve the quality of life for individuals with Cardiofaciocutaneous Syndrome and their families through support, research, awareness, and education. Our vision is to advance understanding and treatment of CFC syndrome. We achieve our mission and seek our vision by providing comprehensive educational materials, a robust website, condition management webinars, and disseminate vital information - like peer-reviewed treatment guidelines - to diagnosed patients and caregivers. We improve access to experts in the management of CFC syndrome by hosting a biennial medical conference as well as at least one Rasopathy Clinic care event per year. Our patient families convene for support in multiple ways: through a Facebook support group, six to eight virtual support groups per month, and regional family meetups. Through our Medical Advisory Board, we strive to ensure that healthcare professionals have immediate access to the most current information, facilitatin

Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).

People paid by the organization

7 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.

Officers and directors, no compensation reported

22 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.

People by year

Highest-paid independent contractors

No independent contractors reported.

Who gave

Contributor names are not public for this form type.

Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.

Finances

Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.

Funders of this organization

8 grantors reported grants to this organization, $261,916 in all, tax years 2011 to 2024. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV

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Who funds organizations like this

Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).

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Where the money went

Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.