STRATEGY STUDIO / PUBLIC DATA EXPLORER

RECURRENT RESPIRATORY PAPILLOMATOSIS FOUNDATION

Cite this

Plain text RECURRENT RESPIRATORY PAPILLOMATOSIS FOUNDATION. Strategy Studio, nonprofit organization profile, tax years 2020–2024. https://strategystudio.org/org/521798693. Retrieved 2026-10-19.

APA Strategy Studio. (n.d.). RECURRENT RESPIRATORY PAPILLOMATOSIS FOUNDATION [Nonprofit organization profile; tax years 2020–2024]. Retrieved October 19, 2026, from https://strategystudio.org/org/521798693

MLA “RECURRENT RESPIRATORY PAPILLOMATOSIS FOUNDATION.” Strategy Studio, tax years 2020–2024, https://strategystudio.org/org/521798693. Accessed 19 Oct. 2026.

Retrieved 2026-10-19; covers tax years 2020–2024. Data: Strategy Studio, CC BY 4.0.

2024 · Form 990 · revenue $142K · expenses $367K · assets $366K

Also known as
PAPILLOMATOSIS FOUNDATION
EIN
52-1798693
Address
PO BOX 6643, LAWRENCE TWP, NJ 08648-0643
Website
www.rrpf.org
NTEE code
Z99Z
Subsection
501(c)(3)
Ruling year
1993
Cross-check
ProPublica Nonprofit Explorer

Mission

The Recurrent Respiratory Papillomatosis Foundation (RRPF) was created to provide patient/family support, serve as an information resource for patients an practitioners, promote public awareness, and aid in the prevention, treatment, and cure of RRP.

Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).

People paid by the organization

None of the 10 people listed on these returns reported compensation from the organization. They are listed below.

Officers and directors, no compensation reported

10 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.

NameLatest titleYearsHrs/wk (latest)CompensationOrganizations
Kim McClellan President2020-2024 0 $0 reported 1
Chris Neuberger Treasurer2020-2024 0 $0 reported 1
Bill Stern Director CFO2020-2024 0 $0 reported 1
Jim Tansey Vice President2024 0 $0 reported 1
Heather DeGortari Secretary2024 0 $0 reported 1
Amy Tichgelaar Director2024 0 $0 reported 1
Geoff Young Director2024 0 $0 reported 1
Heather DE Gortari (former) Secretary2020 5 $0 reported 1
Elizabeth Volz (former) Co Director Patient Advocacy2020 10 $0 reported 1
Lisa Tansey (former) Director of Donor Engagement2020 15 $0 reported 1

People by year

2024 · 7 people listed · none paid · 0 employees
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Kim McClellan President0 $0$0$0 $01
Chris Neuberger Treasurer0 $0$0$0 $01
Bill Stern Director CFO0 $0$0$0 $01
Jim Tansey Vice President0 $0$0$0 $01
Heather DeGortari Secretary0 $0$0$0 $01
Amy Tichgelaar Director0 $0$0$0 $01
Geoff Young Director0 $0$0$0 $01
2023 · 3 people listed · none paid · 0 employees
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
KIM MCCLELLAN PRESIDENT- $0$0$0 $01
CHRIS NEUBERGER TREASURER- $0$0$0 $01
BILL STERN DIRECTOR CFO- $0$0$0 $01
2022 · 3 people listed · none paid · 0 employees
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
KIM MCCLELLAN PRESIDENT- $0$0$0 $01
CHRIS NEUBERGER TREASURER- $0$0$0 $01
BILL STERN DIRECTOR CFO- $0$0$0 $01
2021 · 3 people listed · none paid · 0 employees
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
KIM MCCLELLAN PRESIDENT10 $0$0$0 $01
CHRIS NEUBERGER TREASURER15 $0$0$0 $01
BILL STERN DIRECTOR CFO10 $0$0$0 $01
2020 · 6 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Kim McClellan President10 $0-$0 $01
Bill Stern CFO - Director of Research10 $0-$0 $01
Heather DE Gortari Secretary5 $0-$0 $01
Chris Neuberger Treasurer15 $0-$0 $01
Elizabeth Volz Co Director Patient Advocacy10 $0-$0 $01
Lisa Tansey Director of Donor Engagement15 $0-$0 $01

Highest-paid independent contractors

No independent contractors reported.

Who gave

Contributor names are not public for this form type.

Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.

Finances

Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.

RevenueExpensesAssetsNet assetsContributionsProgram revenueOfficer payEmployeesVolunteers
2024 · Form 990 period ending 2025-10-31 · view filing · original 990 ↗
$142,341$367,381 $366,451$362,532 $142,341$0 $00-
2023 · Form 990 period ending 2024-10-31 · view filing · original 990 ↗
$486,204$453,791 $589,878$587,572 $486,204$0 -0-
2022 · Form 990 period ending 2023-10-31 · view filing · original 990 ↗
$399,839$303,662 $548,475$555,159 $399,839$0 -0-
2021 · Form 990 period ending 2022-10-31 · view filing · original 990 ↗
$305,788$104,085 $459,924$458,982 $296,784$8,500 -0-
2020 · Form 990EZ period ending 2021-10-31 · amended · view filing · original 990 ↗
$89,386$26,211 $257,279$257,279 $89,386$0 ---
2020 · Form 990EZ period ending 2021-10-31 · superseded · view filing · original 990 ↗
$89,386$26,211 $257,279$257,279 $89,386$0 ---

Funders of this organization

6 grantors reported grants to this organization, $721,182 in all, tax years 2017 to 2024. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV

GrantorTypeMatchYears givenGrantsTotalLatest yearLatest year's amountGrants
SILICON VALLEY COMMUNITY FOUNDATION DAF sponsor Exact 2021 1$600,000 2021$600,000
show
FORGOOD INC DAF sponsor Exact 2018-2024 7$87,971 2024$8,555
show
PURE INC DAF sponsor Exact 2021 1$22,354 2021$22,354
show
AMERICAN ONLINE GIVING FOUNDATION INC DAF sponsor Exact 2021 1$7,191 2021$7,191
show
AMAZONSMILE FOUNDATION Private foundation Fuzzy filed as “RECURRENT RESPIRATORY PAPILLOMATOSIS FOUNDATION” 2020-2023 4$3,591 2023$917
show
HANNON FAMILY FOUNDATION INC Private foundation Fuzzy filed as “RECURRENT RESPIRATORY PAPILLOMATOSIS FOUNDATION” 2017 1$75 2017$75
show

Similar organizations

Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)

OrganizationStateNTEELatest revenueLatest expensesTop-paid titleTop payWhy similar
COTTAGE 1886 FOUNDATION INCNJZ99 $106,177$262,556 CHAIRMAN$0 Same NTEE code Z99, revenue within 2x, same state
BASILONE MEMORIAL FOUNDATION INCNJZ99 $119,001$81,887 Director$0 Same NTEE code Z99, revenue within 2x, same state
FAMILY ASSOCIATION OF NORTHFIELD INCNJZ99 $154,513$156,021 Sergeant at Arm$0 Same NTEE code Z99, revenue within 2x, same state
PTOS OF PEMBERTONNJZ99 $108,111$119,017 TRUSTEE$0 Same NTEE code Z99, revenue within 2x, same state
HOPE WITH HEART A NON-PROFIT CORPORATIONNJZ99 $185,672$148,749 President$0 Same NTEE code Z99, revenue within 2x, same state
AVNEI KODESH INCNJZ99 $112,970$109,521 SECRETARY$0 Same NTEE code Z99, revenue within 2x, same state
SIX STAR FOUNDATIONNJZ99 $169,525$208,950 TRUSTEE$0 Same NTEE code Z99, revenue within 2x, same state
NAVESINK FOUNDATIONNJZ99 $106,358$207,358 TRUSTEE$0 Same NTEE code Z99, revenue within 2x, same state
FRIENDS OF AKIM U S A INCNJZ99 $115,965$161,808 DIRECTOR$140,000 Same NTEE code Z99, revenue within 2x, same state
PASSAIC-CLIFTON GEMACH INCNJZ99 $153,564$54,584 Chairman$0 Same NTEE code Z99, revenue within 2x, same state
FRANK J GUARINI FOUNDATIONNJZ99 $126,711$166,748 Trustee$13,194 Same NTEE code Z99, revenue within 2x, same state
HARTNETT FAMILY FOUNDATION INCNJZ99 $119,579$114,139 PRESIDENT/TRUSTEE$0 Same NTEE code Z99, revenue within 2x, same state
HEBREW FREE LOAN OF NEW JERSEY INCNJZ99 $176,915$96,864 PRESIDENT/TRUSTEE$0 Same NTEE code Z99, revenue within 2x, same state
MASTERWORKS INCNJZ99 $106,390$83,762 PRESIDENT$0 Same NTEE code Z99, revenue within 2x, same state
O-IA-DA INTL INCNJZ99 $137,144$152,645 President$0 Same NTEE code Z99, revenue within 2x, same state
COOKSTOVE PROJECT INCNJZ99 $127,079$113,874 Board Member & President$0 Same NTEE code Z99, revenue within 2x, same state
ATLANTIC HIGHLANDS FIRE DEPARTMENT INCNJZ99 $120,454$110,000 SECRETARY$1,900 Same NTEE code Z99, revenue within 2x, same state
BIKE JCNJZ99 $105,558$73,035 Trustee$0 Same NTEE code Z99, revenue within 2x, same state
HIJOS DEL EXILIO INCNJZ99 $150,574$81,275 PRESIDENT$0 Same NTEE code Z99, revenue within 2x, same state
E A N J INCNJZ99 $144,952$70,808 PRESIDENT$0 Same NTEE code Z99, revenue within 2x, same state
COLUMBIA ARMS INCNJZ99 $109,494$258,899 CHAIRMAN$66,600 Same NTEE code Z99, revenue within 2x, same state
PETER ELLIS VAN DOREN SCHOLARSHIP FUNDNJZ99 $122,211$65,317 TRUSTEE$11,366 Same NTEE code Z99, revenue within 2x, same state
MAITREE ASSOCIATION OF AMERICANJZ99 $157,627$149,060 PRESIDENT$0 Same NTEE code Z99, revenue within 2x, same state
WILLIAM B MAWHINNEY MEMORIAL AMBULANCE CORPNJZ99 $106,798$111,391 President$0 Same NTEE code Z99, revenue within 2x, same state
SPA FOUNDATION INCFLZ99 $199,654$216,051 EXECUTIVE DIRECTOR$0 Same NTEE code Z99, revenue within 2x

Who funds organizations like this

Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).

GrantorTypeTotal givenGrantsOrganizations fundedYearsWhich ones
FIDELITY INVESTMENTS CHARITABLE GIFT FUND DAF sponsor$1,460,92662 202016–2024 BOWEN FAMILY FOUNDATION; HAWLEY SCHOLARSHIP FOUNDATION; CALVARY CHRISTIAN SCHOOL FOUNDATION; MAD RIVER PATH ASSOCIATION and 16 more
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC DAF sponsor$775,16014 62016–2024 FRIENDS OF 400 FOUNDATION; CALVARY CHRISTIAN SCHOOL FOUNDATION; ACORNS TO OAKS FOUNDATION INC; MAD RIVER PATH ASSOCIATION and 2 more
PERLMAN FAMILY FOUNDATION Private foundation$584,0007 12014–2024 ALL WAYS UP FOUNDATION
PFIZER FOUNDATION INC Private foundation$553,75413 42020–2024 ESSIE B & WILLIAM EARL GLENN FOUNDATION FOR BETTER LIVING; PARENT FACULTY ASSOCIATION OF RED OAK ELEMENTARY SCHOOL; HOPE WITH HEART A NON-PROFIT CORPORATION; BIKE JC
COMMUNITY FOUNDATION OF HOWARD COUNTY INC DAF sponsor$533,75314 12011–2024 KOKOMO PUBLIC SCHOOLS EDUCATION FOUNDATION INC
THE ROTARY FOUNDATION OF ROTARY INTERNATIONAL DAF sponsor$500,0001 12023–2023 KATIE & THOMAS HAYNES MEMORIAL EDUCATIONAL FUND
OREGON COMMUNITY FOUNDATION DAF sponsor$355,7886 22015–2023 THE DALLES-WASCO COUNTY LIBRARY FOUNDATION; WORLD ARTS FOUNDATION INC
AMERICAN ONLINE GIVING FOUNDATION INC funds this one DAF sponsor$345,55223 72019–2024 CIRCLE OF CHANGE FOUNDATION INC; HIJOS DEL EXILIO INC; GENESEE HILL SCHOOL PTA; ACORNS TO OAKS FOUNDATION INC and 3 more
DONOR ADVISED CHARITABLE GIVING DAF sponsor$258,93014 112017–2024 KATIE & THOMAS HAYNES MEMORIAL EDUCATIONAL FUND; ORGANIC ACIDEMIA ASSOCIATION CORPORATION; NIKKEI FOR CIVIL RIGHTS AND REDRESS; CALVARY CHRISTIAN SCHOOL FOUNDATION and 7 more
JEWISH COMMUNITY FOUNDATION OF GREATER METROWEST NJ DAF sponsor$255,4776 22011–2024 HEBREW FREE LOAN OF NEW JERSEY INC; FRIENDS OF AKIM U S A INC
DANHAKL FAM FOUNDATION Private foundation$250,0002 12019–2020 CALVARY CHRISTIAN SCHOOL FOUNDATION
MEYER MEMORIAL TRUST Private foundation$250,0001 12015–2015 THE DALLES-WASCO COUNTY LIBRARY FOUNDATION
JEWISH COMMUNAL FUND DAF sponsor$196,66015 42012–2024 AVNEI KODESH INC; PASSAIC-CLIFTON GEMACH INC; FRIENDS OF AKIM U S A INC; YOU ARE NEVER ALONE FOUNDATION LTD
MARK C LEMONS FOUNDATION Private foundation$191,2003 12010–2012 CALVARY CHRISTIAN SCHOOL FOUNDATION
NATIONAL PHILANTHROPIC TR DAF sponsor$164,7505 32019–2024 AVNEI KODESH INC; CHELSEA EDUCATION FOUNDATION; ALL WAYS UP FOUNDATION

The full list · all similar organizations

Where the money went

Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.

2024 · Form 990 · $367,381 spent · pay $0 · grants $0 · events $0
LineAs describedTotalProgramManagementFundraisingShare
Payments to affiliates $301,791$301,791-- 82.1%
Other (as described)Contract Labor $38,371-$38,371- 10.4%
Fees: accounting $9,784-$9,784- 2.7%
Advertising and promotion $6,457$6,457-- 1.8%
Fees: other services $4,672$4,385$287- 1.3%
Information technology $4,622$4,622-- 1.3%
Insurance $949-$949- 0.3%
Office expenses $381-$381- 0.1%
Fees: management $248-$248- 0.1%
Fees: legal $106-$106- 0.0%
Total$367,381100%

View the filing

2023 · Form 990 · $453,791 spent · pay $0 · grants $0 · events $0
LineAs describedTotalProgramManagementFundraisingShare
Payments to affiliates $427,247$427,247-- 94.2%
Fees: accounting $10,041-$10,041- 2.2%
Fees: other services $5,320$4,807$513- 1.2%
Information technology $4,820$4,820-- 1.1%
Advertising and promotion $2,939$2,939-- 0.6%
Insurance $2,295-$2,295- 0.5%
Fees: legal $531-$531- 0.1%
Office expenses $303-$303- 0.1%
Travel $295$295-- 0.1%
Total$453,791100%

View the filing

2022 · Form 990 · $303,662 spent · pay $0 · grants $0 · events $0
LineAs describedTotalProgramManagementFundraisingShare
Payments to affiliates $285,231$285,231-- 93.9%
Fees: accounting $8,128-$8,128- 2.7%
Fees: legal $3,119-$3,119- 1.0%
Advertising and promotion $2,692$2,692-- 0.9%
Fees: other services $2,602$1,800$802- 0.9%
Insurance $936-$936- 0.3%
Travel $827$827-- 0.3%
Office expenses $127-$127- 0.0%
Total$303,662100%

View the filing

2021 · Form 990 · $104,085 spent · pay $0 · grants $0 · events $0
LineAs describedTotalProgramManagementFundraisingShare
Payments to affiliates $83,055$83,055-- 79.8%
Fees: other services $7,777$6,840$937- 7.5%
Advertising and promotion $6,801$6,801-- 6.5%
Fees: accounting $2,572-$2,572- 2.5%
Insurance $1,604-$1,604- 1.5%
Travel $1,581$1,581-- 1.5%
Fees: legal $695-$695- 0.7%
Total$104,085100%

View the filing

2020 · Form 990EZ · $26,211 spent · pay $0 · grants $15,000 · events $0
LineAs describedTotalShare
Grants and similar amounts paid $15,000 57.2%
Other expenses (detail on Schedule O) $8,506 32.5%
Fees to independent contractors $2,705 10.3%
Total$26,211100%

View the filing