RECURRENT RESPIRATORY PAPILLOMATOSIS FOUNDATION
Cite this
Plain text RECURRENT RESPIRATORY PAPILLOMATOSIS FOUNDATION. Strategy Studio, nonprofit organization profile, tax years 2020–2024. https://strategystudio.org/org/521798693. Retrieved 2026-10-19.
APA Strategy Studio. (n.d.). RECURRENT RESPIRATORY PAPILLOMATOSIS FOUNDATION [Nonprofit organization profile; tax years 2020–2024]. Retrieved October 19, 2026, from https://strategystudio.org/org/521798693
MLA “RECURRENT RESPIRATORY PAPILLOMATOSIS FOUNDATION.” Strategy Studio, tax years 2020–2024, https://strategystudio.org/org/521798693. Accessed 19 Oct. 2026.
Retrieved 2026-10-19; covers tax years 2020–2024. Data: Strategy Studio, CC BY 4.0.
2024 · Form 990 · revenue $142K · expenses $367K · assets $366K
- Also known as
- PAPILLOMATOSIS FOUNDATION
- EIN
- 52-1798693
- Address
- PO BOX 6643, LAWRENCE TWP, NJ 08648-0643
- Website
- www.rrpf.org
- NTEE code
- Z99Z
- Subsection
- 501(c)(3)
- Ruling year
- 1993
- Cross-check
- ProPublica Nonprofit Explorer
Mission
The Recurrent Respiratory Papillomatosis Foundation (RRPF) was created to provide patient/family support, serve as an information resource for patients an practitioners, promote public awareness, and aid in the prevention, treatment, and cure of RRP.
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
None of the 10 people listed on these returns reported compensation from the organization. They are listed below.
Officers and directors, no compensation reported
10 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.
| Name | Latest title | Years | Hrs/wk (latest) | Compensation | Organizations |
|---|---|---|---|---|---|
| Kim McClellan | President | 2020-2024 | 0 | $0 reported | 1 |
| Chris Neuberger | Treasurer | 2020-2024 | 0 | $0 reported | 1 |
| Bill Stern | Director CFO | 2020-2024 | 0 | $0 reported | 1 |
| Jim Tansey | Vice President | 2024 | 0 | $0 reported | 1 |
| Heather DeGortari | Secretary | 2024 | 0 | $0 reported | 1 |
| Amy Tichgelaar | Director | 2024 | 0 | $0 reported | 1 |
| Geoff Young | Director | 2024 | 0 | $0 reported | 1 |
| Heather DE Gortari (former) | Secretary | 2020 | 5 | $0 reported | 1 |
| Elizabeth Volz (former) | Co Director Patient Advocacy | 2020 | 10 | $0 reported | 1 |
| Lisa Tansey (former) | Director of Donor Engagement | 2020 | 15 | $0 reported | 1 |
People by year
2024 · 7 people listed · none paid · 0 employees
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Kim McClellan | President | 0 | $0 | $0 | $0 | $0 | 1 |
| Chris Neuberger | Treasurer | 0 | $0 | $0 | $0 | $0 | 1 |
| Bill Stern | Director CFO | 0 | $0 | $0 | $0 | $0 | 1 |
| Jim Tansey | Vice President | 0 | $0 | $0 | $0 | $0 | 1 |
| Heather DeGortari | Secretary | 0 | $0 | $0 | $0 | $0 | 1 |
| Amy Tichgelaar | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Geoff Young | Director | 0 | $0 | $0 | $0 | $0 | 1 |
2023 · 3 people listed · none paid · 0 employees
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| KIM MCCLELLAN | PRESIDENT | - | $0 | $0 | $0 | $0 | 1 |
| CHRIS NEUBERGER | TREASURER | - | $0 | $0 | $0 | $0 | 1 |
| BILL STERN | DIRECTOR CFO | - | $0 | $0 | $0 | $0 | 1 |
2022 · 3 people listed · none paid · 0 employees
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| KIM MCCLELLAN | PRESIDENT | - | $0 | $0 | $0 | $0 | 1 |
| CHRIS NEUBERGER | TREASURER | - | $0 | $0 | $0 | $0 | 1 |
| BILL STERN | DIRECTOR CFO | - | $0 | $0 | $0 | $0 | 1 |
2021 · 3 people listed · none paid · 0 employees
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| KIM MCCLELLAN | PRESIDENT | 10 | $0 | $0 | $0 | $0 | 1 |
| CHRIS NEUBERGER | TREASURER | 15 | $0 | $0 | $0 | $0 | 1 |
| BILL STERN | DIRECTOR CFO | 10 | $0 | $0 | $0 | $0 | 1 |
2020 · 6 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Kim McClellan | President | 10 | $0 | - | $0 | $0 | 1 |
| Bill Stern | CFO - Director of Research | 10 | $0 | - | $0 | $0 | 1 |
| Heather DE Gortari | Secretary | 5 | $0 | - | $0 | $0 | 1 |
| Chris Neuberger | Treasurer | 15 | $0 | - | $0 | $0 | 1 |
| Elizabeth Volz | Co Director Patient Advocacy | 10 | $0 | - | $0 | $0 | 1 |
| Lisa Tansey | Director of Donor Engagement | 15 | $0 | - | $0 | $0 | 1 |
Highest-paid independent contractors
No independent contractors reported.
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2024 · Form 990 | ||||||||
| $142,341 | $367,381 | $366,451 | $362,532 | $142,341 | $0 | $0 | 0 | - |
| 2023 · Form 990 | ||||||||
| $486,204 | $453,791 | $589,878 | $587,572 | $486,204 | $0 | - | 0 | - |
| 2022 · Form 990 | ||||||||
| $399,839 | $303,662 | $548,475 | $555,159 | $399,839 | $0 | - | 0 | - |
| 2021 · Form 990 | ||||||||
| $305,788 | $104,085 | $459,924 | $458,982 | $296,784 | $8,500 | - | 0 | - |
| 2020 · Form 990EZ | ||||||||
| $89,386 | $26,211 | $257,279 | $257,279 | $89,386 | $0 | - | - | - |
| 2020 · Form 990EZ | ||||||||
| $89,386 | $26,211 | $257,279 | $257,279 | $89,386 | $0 | - | - | - |
Funders of this organization
6 grantors reported grants to this organization, $721,182 in all, tax years 2017 to 2024. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV
| Grantor | Type | Match | Years given | Grants | Total | Latest year | Latest year's amount | Grants |
|---|---|---|---|---|---|---|---|---|
| SILICON VALLEY COMMUNITY FOUNDATION | DAF sponsor | Exact | 2021 | 1 | $600,000 | 2021 | $600,000 | show |
| FORGOOD INC | DAF sponsor | Exact | 2018-2024 | 7 | $87,971 | 2024 | $8,555 | show |
| PURE INC | DAF sponsor | Exact | 2021 | 1 | $22,354 | 2021 | $22,354 | show |
| AMERICAN ONLINE GIVING FOUNDATION INC | DAF sponsor | Exact | 2021 | 1 | $7,191 | 2021 | $7,191 | show |
| AMAZONSMILE FOUNDATION | Private foundation | Fuzzy filed as “RECURRENT RESPIRATORY PAPILLOMATOSIS FOUNDATION” | 2020-2023 | 4 | $3,591 | 2023 | $917 | show |
| HANNON FAMILY FOUNDATION INC | Private foundation | Fuzzy filed as “RECURRENT RESPIRATORY PAPILLOMATOSIS FOUNDATION” | 2017 | 1 | $75 | 2017 | $75 | show |
Similar organizations
Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)
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|---|---|---|---|---|---|---|---|
| COTTAGE 1886 FOUNDATION INC | NJ | Z99 | $106,177 | $262,556 | CHAIRMAN | $0 | Same NTEE code Z99, revenue within 2x, same state |
| BASILONE MEMORIAL FOUNDATION INC | NJ | Z99 | $119,001 | $81,887 | Director | $0 | Same NTEE code Z99, revenue within 2x, same state |
| FAMILY ASSOCIATION OF NORTHFIELD INC | NJ | Z99 | $154,513 | $156,021 | Sergeant at Arm | $0 | Same NTEE code Z99, revenue within 2x, same state |
| PTOS OF PEMBERTON | NJ | Z99 | $108,111 | $119,017 | TRUSTEE | $0 | Same NTEE code Z99, revenue within 2x, same state |
| HOPE WITH HEART A NON-PROFIT CORPORATION | NJ | Z99 | $185,672 | $148,749 | President | $0 | Same NTEE code Z99, revenue within 2x, same state |
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| NAVESINK FOUNDATION | NJ | Z99 | $106,358 | $207,358 | TRUSTEE | $0 | Same NTEE code Z99, revenue within 2x, same state |
| FRIENDS OF AKIM U S A INC | NJ | Z99 | $115,965 | $161,808 | DIRECTOR | $140,000 | Same NTEE code Z99, revenue within 2x, same state |
| PASSAIC-CLIFTON GEMACH INC | NJ | Z99 | $153,564 | $54,584 | Chairman | $0 | Same NTEE code Z99, revenue within 2x, same state |
| FRANK J GUARINI FOUNDATION | NJ | Z99 | $126,711 | $166,748 | Trustee | $13,194 | Same NTEE code Z99, revenue within 2x, same state |
| HARTNETT FAMILY FOUNDATION INC | NJ | Z99 | $119,579 | $114,139 | PRESIDENT/TRUSTEE | $0 | Same NTEE code Z99, revenue within 2x, same state |
| HEBREW FREE LOAN OF NEW JERSEY INC | NJ | Z99 | $176,915 | $96,864 | PRESIDENT/TRUSTEE | $0 | Same NTEE code Z99, revenue within 2x, same state |
| MASTERWORKS INC | NJ | Z99 | $106,390 | $83,762 | PRESIDENT | $0 | Same NTEE code Z99, revenue within 2x, same state |
| O-IA-DA INTL INC | NJ | Z99 | $137,144 | $152,645 | President | $0 | Same NTEE code Z99, revenue within 2x, same state |
| COOKSTOVE PROJECT INC | NJ | Z99 | $127,079 | $113,874 | Board Member & President | $0 | Same NTEE code Z99, revenue within 2x, same state |
| ATLANTIC HIGHLANDS FIRE DEPARTMENT INC | NJ | Z99 | $120,454 | $110,000 | SECRETARY | $1,900 | Same NTEE code Z99, revenue within 2x, same state |
| BIKE JC | NJ | Z99 | $105,558 | $73,035 | Trustee | $0 | Same NTEE code Z99, revenue within 2x, same state |
| HIJOS DEL EXILIO INC | NJ | Z99 | $150,574 | $81,275 | PRESIDENT | $0 | Same NTEE code Z99, revenue within 2x, same state |
| E A N J INC | NJ | Z99 | $144,952 | $70,808 | PRESIDENT | $0 | Same NTEE code Z99, revenue within 2x, same state |
| COLUMBIA ARMS INC | NJ | Z99 | $109,494 | $258,899 | CHAIRMAN | $66,600 | Same NTEE code Z99, revenue within 2x, same state |
| PETER ELLIS VAN DOREN SCHOLARSHIP FUND | NJ | Z99 | $122,211 | $65,317 | TRUSTEE | $11,366 | Same NTEE code Z99, revenue within 2x, same state |
| MAITREE ASSOCIATION OF AMERICA | NJ | Z99 | $157,627 | $149,060 | PRESIDENT | $0 | Same NTEE code Z99, revenue within 2x, same state |
| WILLIAM B MAWHINNEY MEMORIAL AMBULANCE CORP | NJ | Z99 | $106,798 | $111,391 | President | $0 | Same NTEE code Z99, revenue within 2x, same state |
| SPA FOUNDATION INC | FL | Z99 | $199,654 | $216,051 | EXECUTIVE DIRECTOR | $0 | Same NTEE code Z99, revenue within 2x |
Who funds organizations like this
Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).
The full list · all similar organizations
Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2024 · Form 990 · $367,381 spent · pay $0 · grants $0 · events $0
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Payments to affiliates | $301,791 | $301,791 | - | - | 82.1% | |
| Other (as described) | Contract Labor | $38,371 | - | $38,371 | - | 10.4% |
| Fees: accounting | $9,784 | - | $9,784 | - | 2.7% | |
| Advertising and promotion | $6,457 | $6,457 | - | - | 1.8% | |
| Fees: other services | $4,672 | $4,385 | $287 | - | 1.3% | |
| Information technology | $4,622 | $4,622 | - | - | 1.3% | |
| Insurance | $949 | - | $949 | - | 0.3% | |
| Office expenses | $381 | - | $381 | - | 0.1% | |
| Fees: management | $248 | - | $248 | - | 0.1% | |
| Fees: legal | $106 | - | $106 | - | 0.0% | |
| Total | $367,381 | 100% |
2023 · Form 990 · $453,791 spent · pay $0 · grants $0 · events $0
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Payments to affiliates | $427,247 | $427,247 | - | - | 94.2% | |
| Fees: accounting | $10,041 | - | $10,041 | - | 2.2% | |
| Fees: other services | $5,320 | $4,807 | $513 | - | 1.2% | |
| Information technology | $4,820 | $4,820 | - | - | 1.1% | |
| Advertising and promotion | $2,939 | $2,939 | - | - | 0.6% | |
| Insurance | $2,295 | - | $2,295 | - | 0.5% | |
| Fees: legal | $531 | - | $531 | - | 0.1% | |
| Office expenses | $303 | - | $303 | - | 0.1% | |
| Travel | $295 | $295 | - | - | 0.1% | |
| Total | $453,791 | 100% |
2022 · Form 990 · $303,662 spent · pay $0 · grants $0 · events $0
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Payments to affiliates | $285,231 | $285,231 | - | - | 93.9% | |
| Fees: accounting | $8,128 | - | $8,128 | - | 2.7% | |
| Fees: legal | $3,119 | - | $3,119 | - | 1.0% | |
| Advertising and promotion | $2,692 | $2,692 | - | - | 0.9% | |
| Fees: other services | $2,602 | $1,800 | $802 | - | 0.9% | |
| Insurance | $936 | - | $936 | - | 0.3% | |
| Travel | $827 | $827 | - | - | 0.3% | |
| Office expenses | $127 | - | $127 | - | 0.0% | |
| Total | $303,662 | 100% |
2021 · Form 990 · $104,085 spent · pay $0 · grants $0 · events $0
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Payments to affiliates | $83,055 | $83,055 | - | - | 79.8% | |
| Fees: other services | $7,777 | $6,840 | $937 | - | 7.5% | |
| Advertising and promotion | $6,801 | $6,801 | - | - | 6.5% | |
| Fees: accounting | $2,572 | - | $2,572 | - | 2.5% | |
| Insurance | $1,604 | - | $1,604 | - | 1.5% | |
| Travel | $1,581 | $1,581 | - | - | 1.5% | |
| Fees: legal | $695 | - | $695 | - | 0.7% | |
| Total | $104,085 | 100% |
2020 · Form 990EZ · $26,211 spent · pay $0 · grants $15,000 · events $0
| Line | As described | Total | Share |
|---|---|---|---|
| Grants and similar amounts paid | $15,000 | 57.2% | |
| Other expenses (detail on Schedule O) | $8,506 | 32.5% | |
| Fees to independent contractors | $2,705 | 10.3% | |
| Total | $26,211 | 100% |