STRATEGY STUDIO / PUBLIC DATA EXPLORER

XERODERMA PIGMENTOSUM FAMILY SUPPORT GROUP

Cite this

Plain text XERODERMA PIGMENTOSUM FAMILY SUPPORT GROUP. Strategy Studio, nonprofit organization profile, tax years 2010–2024. https://strategystudio.org/org/593824809. Retrieved 2026-10-19.

APA Strategy Studio. (n.d.). XERODERMA PIGMENTOSUM FAMILY SUPPORT GROUP [Nonprofit organization profile; tax years 2010–2024]. Retrieved October 19, 2026, from https://strategystudio.org/org/593824809

MLA “XERODERMA PIGMENTOSUM FAMILY SUPPORT GROUP.” Strategy Studio, tax years 2010–2024, https://strategystudio.org/org/593824809. Accessed 19 Oct. 2026.

Retrieved 2026-10-19; covers tax years 2010–2024. Data: Strategy Studio, CC BY 4.0.

2024 · Form 990 · revenue $85K · expenses $147K · assets $126K

Also known as
GROUP
EIN
59-3824809
Address
3006 NOTRE DAME DR, SACRAMENTO, CA 95826-3512
Website
XPFAMILYSUPPORT.ORG
NTEE code
H80
Subsection
501(c)(3)
Ruling year
2006
Cross-check
ProPublica Nonprofit Explorer

Mission

TO IMPROVE THE QUALITY OF LIFE OF THOSE PERSONS WITH XERODERMA PIGMENTOSUM AND OTHER DIAGNOSED ULTRAVIOLET LIGHT SENSITIVE CONDITIONS BY PROVIDING SUPPORT, ULTRAVIOLET PROTECTIVE EQUIPMENT AND OTHER ASSISTANCE.

Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).

People paid by the organization

2 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.

NameLatest titleYearsLatest year payTotal pay from hereOrganizations
Michele Milota CO-EXECUTIVE DIRECTOR2010-2024 $25,000$309,767 1
Kelley Piccione (former) DIRECTOR2010-2012 $3,600$11,600 1

Officers and directors, no compensation reported

27 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.

NameLatest titleYearsHrs/wk (latest)CompensationOrganizations
Todd Feltner CHAIR2010-2024 2 $0 reported 1
Jennifer Feltner TRUSTEE2010-2024 2 $0 reported 1
Sarah Madden TREASURER2011-2024 2 $0 reported 1
Kyle Madden TRUSTEE2016-2024 2 $0 reported 1
Johanna Sweet TRUSTEE2022-2024 2 $0 reported 1
Jeff Lester TRUSTEE2022-2024 2 $0 reported 1
Cindy Cassinat TRUSTEE2019-2024 2 $0 reported 1
Laura Niedernhofer TRUSTEE2019-2024 2 $0 reported 1
Hal Paldrmann TRUSTEE2023-2024 2 $0 reported 1
Aimee Milota TRUSTEE2023-2024 2 $0 reported 1
Alan Jakovac (former) TRUSTEE2011-2021 2 $0 reported 1
Amanda Davis (former) TRUSTEE2019-2021 2 $0 reported 1
Erich James (former) TRUSTEE2019-2020 2 $0 reported 1
Kittie Tenney (former) TRUSTEE2018 2 $0 reported 1
Rossi Byrne (former) TRUSTEE2014-2018 2 $0 reported 1
Cathy Hancock (former) TRUSTEE2016-2018 2 $0 reported 1
Miranda Murphy (former) SECRETARY2017-2018 4 $0 reported 1
Noelle Kei (former) TRUSTEE2014-2017 2 $0 reported 1
Kim Beardslee (former) TRUSTEE2010-2016 2 $0 reported 1
Richard Bricker (former) TRUSTEE2010-2015 2 $0 reported 1
Kim Deguzman (former) TRUSTEE2013-2015 2 $0 reported 1
Candus Tibbitts (former) TREASURER2010-2013 2 $0 reported 1
Bary Cunningham (former) TRUSTEE2010-2013 2 $0 reported 1
Robert Mccabe (former) TRUSTEE2013 2 $0 reported 1
Gail Behrndt (former) TRUSTEE2010-2012 2 $0 reported 1
Connie Dyer (former) TRUSTEE2010-2012 2 $0 reported 1
Michelle Williams (former) TRUSTEE2010 2 $0 reported 1

People by year

2024 · 11 people listed · 1 paid, $25K · 1 employee · 50 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
MICHELE MILOTA CO-EXECUTIVE DIRECTOR30 $25,000$0$0 $25,0001
TODD FELTNER CHAIR2 $0$0$0 $01
JENNIFER FELTNER TRUSTEE2 $0$0$0 $01
SARAH MADDEN TREASURER2 $0$0$0 $01
KYLE MADDEN TRUSTEE2 $0$0$0 $01
JOHANNA SWEET TRUSTEE2 $0$0$0 $01
JEFF LESTER TRUSTEE2 $0$0$0 $01
CINDY CASSINAT TRUSTEE2 $0$0$0 $01
LAURA NIEDERNHOFER TRUSTEE2 $0$0$0 $01
HAL PALDRMANN TRUSTEE2 $0$0$0 $01
AIMEE MILOTA TRUSTEE2 $0$0$0 $01
2023 · 11 people listed · 1 paid, $25K · 1 employee · 50 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
MICHELE MILOTA EXECUTIVE DIRECTOR30 $25,000$0$0 $25,0001
TODD FELTNER CHAIR2 $0$0$0 $01
JENNIFER FELTNER TRUSTEE2 $0$0$0 $01
SARAH MADDEN TREASURER2 $0$0$0 $01
KYLE MADDEN TRUSTEE2 $0$0$0 $01
JOHANNA SWEET TRUSTEE2 $0$0$0 $01
JEFF LESTER TRUSTEE2 $0$0$0 $01
CINDY CASSINAT TRUSTEE2 $0$0$0 $01
LAURA NIEDERNHOFER TRUSTEE2 $0$0$0 $01
HAL PALDRMANN TRUSTEE2 $0$0$0 $01
AIMEE MILOTA TRUSTEE2 $0$0$0 $01
2022 · 9 people listed · 1 paid, $15K · 1 employee · 50 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
MICHELE MILOTA EXECUTIVE DI30 $14,726$0$0 $14,7261
TODD FELTNER CHAIR2 $0$0$0 $01
JENNIFER FELTNER TRUSTEE2 $0$0$0 $01
SARAH MADDEN TREASURER2 $0$0$0 $01
KYLE MADDEN TRUSTEE2 $0$0$0 $01
JOHANNA SWEET TRUSTEE2 $0$0$0 $01
JEFF LESTER TRUSTEE2 $0$0$0 $01
CINDY CASSINAT TRUSTEE2 $0$0$0 $01
LAURA NIEDERNHOFER TRUSTEE2 $0$0$0 $01
2021 · 8 people listed · 1 paid, $24K · 1 employee · 50 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
MICHELE MILOTA EXECUTIVE DI30 $23,500$0$0 $23,5001
TODD FELTNER CHAIR2 $0$0$0 $01
JENNIFER FELTNER TRUSTEE2 $0$0$0 $01
SARAH MADDEN TREASURER2 $0$0$0 $01
ALAN JAKOVAC TRUSTEE2 $0$0$0 $01
AMANDA DAVIS TRUSTEE2 $0$0$0 $01
CINDY CASSINAT TRUSTEE2 $0$0$0 $01
LAURA NIEDERNHOFER TRUSTEE2 $0$0$0 $01
2020 · 10 people listed · 1 paid, $24K · 1 employee · 50 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
MICHELE MILOTA EXECUTIVE DI30 $24,415$0$0 $24,4151
TODD FELTNER CHAIR2 $0$0$0 $01
JENNIFER FELTNER TRUSTEE2 $0$0$0 $01
SARAH MADDEN TREASURER2 $0$0$0 $01
KYLE MADDEN TRUSTEE2 $0$0$0 $01
ALAN JAKOVAC TRUSTEE2 $0$0$0 $01
AMANDA DAVIS TRUSTEE2 $0$0$0 $01
CINDY CASSINAT TRUSTEE2 $0$0$0 $01
LAURA NIEDERNHOFER TRUSTEE2 $0$0$0 $01
ERICH JAMES TRUSTEE2 $0$0$0 $01
2019 · 10 people listed · 1 paid, $23K · 1 employee · 50 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
MICHELE MILOTA EXECUTIVE DI30 $22,625$0$0 $22,6251
CINDY CASSINAT TRUSTEE2 $0$0$0 $01
AMANDA DAVIS TRUSTEE2 $0$0$0 $01
JENNIFER FELTNER TRUSTEE2 $0$0$0 $01
TODD FELTNER CHAIR2 $0$0$0 $01
ALAN JAKOVAC TRUSTEE2 $0$0$0 $01
ERICH JAMES TRUSTEE2 $0$0$0 $01
KYLE MADDEN TRUSTEE2 $0$0$0 $01
SARAH MADDEN TRUSTEE2 $0$0$0 $01
LAURA NIEDERNHOFER SECRETARY4 $0$0$0 $01
2018 · 10 people listed · 1 paid, $22K · 1 employee · 50 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
MICHELE MILOTA EXECUTIVE DI30 $22,037$0$0 $22,0371
TODD FELTNER CHAIR2 $0$0$0 $01
JENNIFER FELTNER TRUSTEE2 $0$0$0 $01
SARAH MADDEN TRUSTEE2 $0$0$0 $01
ALAN JAKOVAC TRUSTEE2 $0$0$0 $01
KITTIE TENNEY TRUSTEE2 $0$0$0 $01
ROSSI BYRNE TRUSTEE2 $0$0$0 $01
CATHY HANCOCK TRUSTEE2 $0$0$0 $01
KYLE MADDEN TRUSTEE2 $0$0$0 $01
MIRANDA MURPHY SECRETARY4 $0$0$0 $01
2017 · 10 people listed · 1 paid, $23K · 1 employee · 50 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
MICHELE MILOTA EXECUTIVE DI30 $22,569$0$0 $22,5691
TODD FELTNER CHAIR2 $0$0$0 $01
JENNIFER FELTNER TRUSTEE2 $0$0$0 $01
SARAH MADDEN TRUSTEE2 $0$0$0 $01
ALAN JAKOVAC TRUSTEE2 $0$0$0 $01
NOELLE KEI TRUSTEE2 $0$0$0 $01
ROSSI BYRNE TRUSTEE2 $0$0$0 $01
CATHY HANCOCK TRUSTEE2 $0$0$0 $01
KYLE MADDEN TRUSTEE2 $0$0$0 $01
MIRANDA MURPHY SECRETARY4 $0$0$0 $01
2016 · 10 people listed · 1 paid, $21K · 1 employee · 50 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
MICHELE MILOTA EXECUTIVE DI30 $20,790$0$0 $20,7901
TODD FELTNER CHAIR2 $0$0$0 $01
JENNIFER FELTNER TRUSTEE2 $0$0$0 $01
KIM BEARDSLEE TRUSTEE2 $0$0$0 $01
SARAH MADDEN TRUSTEE2 $0$0$0 $01
ALAN JAKOVAC TRUSTEE2 $0$0$0 $01
NOELLE KEI SECRETARY4 $0$0$0 $01
ROSSI BYRNE TRUSTEE2 $0$0$0 $01
CATHY HANCOCK TRUSTEE2 $0$0$0 $01
KYLE MADDEN TRUSTEE2 $0$0$0 $01
2015 · 10 people listed · 1 paid, $21K
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
MICHELE MILOTA EXECUTIVE DI30 $20,633-- $20,6331
TODD FELTNER CHAIR10 $0-- $01
JENNIFER FELTNER SECRETARY10 $0-- $01
KIM BEARDSLEE TRUSTEE2 $0-- $01
RICHARD BRICKER TRUSTEE2 $0-- $01
SARAH MADDEN TRUSTEE15 $0-- $01
ALAN JAKOVAC TRUSTEE2 $0-- $01
KIM DEGUZMAN TRUSTEE2 $0-- $01
NOELLE KEI TRUSTEE2 $0-- $01
ROSSI BYRNE TRUSTEE2 $0-- $01
2014 · 10 people listed · 1 paid, $19K · 2 employees · 100 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
MICHELE MILOTA EXECUTIVE DI20 $18,647$0$0 $18,6471
TODD FELTNER CHAIR2 $0$0$0 $01
JENNIFER FELTNER SECRETARY2 $0$0$0 $01
KIM BEARDSLEE TRUSTEE2 $0$0$0 $01
RICHARD BRICKER TRUSTEE2 $0$0$0 $01
SARAH MADDEN TRUSTEE2 $0$0$0 $01
ALAN JAKOVAC TRUSTEE2 $0$0$0 $01
KIM DEGUZMAN TRUSTEE2 $0$0$0 $01
NOELLE KEI TRUSTEE2 $0$0$0 $01
ROSSI BYRNE TRUSTEE2 $0$0$0 $01
2013 · 11 people listed · 1 paid, $19K · 2 employees · 40 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
MICHELE MILOTA EXECUTIVE DI20 $18,825$0$0 $18,8251
TODD FELTNER CHAIR2 $0$0$0 $01
JENNIFER FELTNER SECRETARY2 $0$0$0 $01
CANDUS TIBBITTS TREASURER2 $0$0$0 $01
BARY CUNNINGHAM TRUSTEE2 $0$0$0 $01
KIM BEARDSLEE TRUSTEE2 $0$0$0 $01
RICHARD BRICKER TRUSTEE2 $0$0$0 $01
SARAH MADDEN TRUSTEE2 $0$0$0 $01
ALAN JAKOVAC TRUSTEE2 $0$0$0 $01
KIM DEGUZMAN TRUSTEE2 $0$0$0 $01
ROBERT MCCABE TRUSTEE2 $0$0$0 $01
2012 · 12 people listed · 2 paid, $22K · 3 employees · 20 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
MICHELE MILOTA EXECUTIVE DI20 $18,000$0$0 $18,0001
KELLEY PICCIONE DIRECTOR20 $3,600$0$0 $3,6001
TODD FELTNER CHAIR2 $0$0$0 $01
GAIL BEHRNDT TRUSTEE2 $0$0$0 $01
JENNIFER FELTNER SECRETARY2 $0$0$0 $01
CANDUS TIBBITTS TREASURER2 $0$0$0 $01
BARY CUNNINGHAM TRUSTEE2 $0$0$0 $01
CONNIE DYER TRUSTEE2 $0$0$0 $01
KIM BEARDSLEE TRUSTEE2 $0$0$0 $01
RICHARD BRICKER TRUSTEE2 $0$0$0 $01
SARAH MADDEN TRUSTEE2 $0$0$0 $01
ALAN JAKOVAC TRUSTEE2 $0$0$0 $01
2011 · 12 people listed · 2 paid, $23K · 2 employees · 20 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
MICHELE MILOTA EXECUTIVE DI20 $18,000$0$0 $18,0001
KELLEY PICCIONE DIRECTOR20 $4,800$0$0 $4,8001
TODD FELTNER CHAIR2 $0$0$0 $01
GAIL BEHRNDT TRUSTEE2 $0$0$0 $01
JENNIFER FELTNER SECRETARY2 $0$0$0 $01
CANDUS TIBBITTS TREASURER2 $0$0$0 $01
BARY CUNNINGHAM TRUSTEE2 $0$0$0 $01
CONNIE DYER TRUSTEE2 $0$0$0 $01
KIM BEARDSLEE TRUSTEE2 $0$0$0 $01
RICHARD BRICKER TRUSTEE2 $0$0$0 $01
SARAH MADDEN TRUSTEE2 $0$0$0 $01
ALAN JAKOVAC TRUSTEE2 $0$0$0 $01
2010 · 11 people listed · 2 paid, $18K · 2 employees · 175 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
MICHELE MILOTA EXECUTIVE DI20 $15,000$0$0 $15,0001
KELLEY PICCIONE DIRECTOR20 $3,200$0$0 $3,2001
TODD FELTNER CHAIR2 $0$0$0 $01
GAIL BEHRNDT TRUSTEE2 $0$0$0 $01
JENNIFER FELTNER SECRETARY2 $0$0$0 $01
CANDUS TIBBITTS TREASURER2 $0$0$0 $01
MICHELLE WILLIAMS TRUSTEE2 $0$0$0 $01
BARY CUNNINGHAM TRUSTEE2 $0$0$0 $01
CONNIE DYER TRUSTEE2 $0$0$0 $01
KIM BEARDSLEE TRUSTEE2 $0$0$0 $01
RICHARD BRICKER TRUSTEE2 $0$0$0 $01

Highest-paid independent contractors

No independent contractors reported.

Who the money went to

Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.

2010 · 1 grant to organizations · $10K

Listed grants add up to $10,000; the return's “grants paid” expense line says $11,560. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.

Who gave

Contributor names are not public for this form type.

Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.

Finances

Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.

RevenueExpensesAssetsNet assetsContributionsProgram revenueOfficer payEmployeesVolunteers
2024 · Form 990 period ending 2024-12-31 · view filing · original 990 ↗
$85,358$146,798 $125,571$124,494 $71,481$0 $25,000150
2023 · Form 990 period ending 2023-12-31 · view filing · original 990 ↗
$78,470$50,199 $187,794$185,934 $37,974$0 $25,000150
2022 · Form 990 period ending 2022-12-31 · view filing · original 990 ↗
$59,106$50,575 $160,291$157,663 $28,884$0 $14,726150
2021 · Form 990 period ending 2021-12-31 · view filing · original 990 ↗
$70,556$50,127 $150,865$149,132 $35,445$0 $23,500150
2020 · Form 990 period ending 2020-12-31 · view filing · original 990 ↗
$45,563$46,788 $133,716$128,703 $22,094$0 $24,416150
2019 · Form 990 period ending 2019-12-31 · view filing · original 990 ↗
$70,570$57,723 $134,214$129,928 $32,583$0 $22,624150
2018 · Form 990 period ending 2018-12-31 · view filing · original 990 ↗
$95,948$102,865 $123,727$117,081 $28,689$14,592 $22,037150
2017 · Form 990 period ending 2017-12-31 · view filing · original 990 ↗
$70,397$60,393 $132,119$123,998 $19,406$5,631 $22,569150
2016 · Form 990 period ending 2016-12-31 · view filing · original 990 ↗
$190,583$126,077 $119,485$113,994 $103,547$0 $20,790150
2015 · Form 990EZ period ending 2015-12-31 · view filing · original 990 ↗
$46,466$69,795 $60,982$49,488 $20,874- ---
2014 · Form 990 period ending 2014-12-31 · view filing · original 990 ↗
$74,191$119,321 $77,279$72,817 $34,310$0 $18,6472100
2013 · Form 990 period ending 2013-12-31 · view filing · original 990 ↗
$93,647$95,221 $124,116$117,947 $33,224$0 $18,825240
2012 · Form 990 period ending 2012-12-31 · view filing · original 990 ↗
$113,322$127,348 $123,778$119,521 $49,155$0 $21,600320
2011 · Form 990 period ending 2011-12-31 · view filing · original 990 ↗
$142,879$129,101 $144,986$133,547 $100,823$0 $22,800220
2010 · Form 990 period ending 2010-12-31 · view filing · original 990 ↗
$146,676$190,413 $119,769$119,769 $94,833$0 $18,2002175

Funders of this organization

9 grantors reported grants to this organization, $158,704 in all, tax years 2010 to 2023. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV

GrantorTypeMatchYears givenGrantsTotalLatest yearLatest year's amountGrants
MIDLAND AREA COMMUNITY FOUNDATION DAF sponsor Exact 2010-2012, 2016 4$103,000 2016$60,000
show
AMERICAN ONLINE GIVING FOUNDATION INC DAF sponsor Exact 2020, 2023 2$21,308 2023$15,616
show
ARTHUR VINING DAVIS FOUNDATION 2 Private foundation Fuzzy filed as “Xeroderma Pigmentosum Family Support Group” 2015, 2017-2018 3$13,500 2018$3,000
show
FIDELITY INVESTMENTS CHARITABLE GIFT FUND DAF sponsor Exact 2022 1$6,500 2022$6,500
show
FORGOOD INC DAF sponsor Exact 2018 1$5,431 2018$5,431
show
HOMETOWN FOUNDATION INC Public charity Exact 2018 1$5,000 2018$5,000
show
AMAZONSMILE FOUNDATION Private foundation Fuzzy filed as “XERODERMA PIGMENTOSUM FAMILY SUPPORT GROUP” 2020-2023 4$2,715 2023$509
show
ARTHUR V DAVIS FOUNDATION PF 3 Private foundation Fuzzy filed as “Xeroderma Pigmentosum Family Support Group” 2016 1$1,000 2016$1,000
show
WILLIAM & FLORA HEWLETT FOUNDATION Private foundation Fuzzy filed as “Xeroderma Pigmentosum Family Support Group”, “XERODERMA PIGMENTOSUM FAMILY SUPPORT GROUP” 2010, 2012 2$250 2012$150
show

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Who funds organizations like this

Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).

GrantorTypeTotal givenGrantsOrganizations fundedYearsWhich ones
SILICON VALLEY COMMUNITY FOUNDATION DAF sponsor$3,577,0016 42020–2024 OXFENDAZOLE DEVELOPMENT GROUP; MILAS MIRACLE FOUNDATION INC; CDG CARE; SLC6A1 CONNECT
DONOR ADVISED CHARITABLE GIVING DAF sponsor$1,883,62540 142014–2024 MONOAMINE OXIDASE DEFICIENCY FOUNDATION; AMERICAN FOUNDATION FOR ADDICTION RESEARCH; DYSLEXIC ADVANTAGE; SLC6A1 CONNECT and 10 more
PAYPAL CHARITABLE GIVING FUND DAF sponsor$963,28928 132018–2024 SLC6A1 CONNECT; A LONG SWIM; MILAS MIRACLE FOUNDATION INC; CDG CARE and 9 more
FIDELITY INVESTMENTS CHARITABLE GIFT FUND funds this one DAF sponsor$860,64443 222016–2024 CENTER FOR NEW DATA; SLC6A1 CONNECT; A LONG SWIM; ALL GREATER GOOD FOUNDATION and 18 more
JOHNS HOPKINS UNIVERSITY DAF sponsor$821,8158 22010–2017 ORTHOPAEDIC ASSOCIATES OF GRAND RAPIDS RESEARCH & EDUCATION INST; OXFENDAZOLE DEVELOPMENT GROUP
CAPITAL ONE FOUNDATION INC Private foundation$660,0001 12022–2022 CENTER FOR NEW DATA
JOHN AND JACOLYN BUCKSBAUM FAMILYFOUNDATION Private foundation$650,0003 12022–2024 THE FOCUS FOUNDATION INC
AMERICAN ONLINE GIVING FOUNDATION INC funds this one DAF sponsor$637,66332 142019–2024 SLC6A1 CONNECT; CDG CARE; 1J FOUNDATION; CELIAC COMMUNITY FOUNDATION OF NORTHERN CALIFORNIA and 10 more
FORGOOD INC funds this one DAF sponsor$635,67345 152010–2023 KAWASAKI DISEASE FOUNDATION INC; PKS KIDS; INTERNATIONAL RESEARCH FOUNDATION FOR RSD-CRPS INC; CDG CARE and 11 more
MOTHER CABRINI HEALTH FOUNDATION Private foundation$600,0005 12020–2023 CENTRAL NEW YORK LYME AND TICK-BORNE DISEASE ALLIANCE INC
MIGHTYCAUSE CHARITABLE FOUNDATION DAF sponsor$447,7366 22013–2022 ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC; APFED
LEONA M & HARRY B HELMSLEY CHARITABLE TRUST Private foundation$346,9801 12022–2022 BEHAVIORAL DIABETES INSTITUTE
THE POCONO CHARITABLE FOUNDATION Private foundation$270,0002 12017–2019 MILAS MIRACLE FOUNDATION INC
VANGUARD CHARITABLE ENDOWMENT PROGRAM DAF sponsor$258,12017 72020–2024 MIND FIRST FOUNDATION; KLEINE LEVIN SYNDROME FOUNDATION INC; ELLYN SATTER INSTITUTE INC; INSTITUTE FOR BLADDER AND PROSTATE RESEARCH INC and 3 more
NATIONAL CHRISTIAN CHARITABLE FOUNDATION DAF sponsor$210,2002 22018–2019 SLC6A1 CONNECT; DEFEAT MSA ALLIANCE DEFEAT MULTIPLE SYSTEM ATROPHY ALLIANCE

The full list · all similar organizations

Where the money went

Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.

2024 · Form 990 · $146,798 spent · pay $27,024 · grants $0 · events $95,035
LineAs describedTotalProgramManagementFundraisingShare
Conferences, conventions and meetings $93,711$93,711-- 63.8%
Pay: officers, directors, trustees, key employees $25,000$22,500$2,500- 17.0%
Other (as described)FAMILY SUPPORT EXPENSES $8,009$8,009-- 5.5%
Other (as described)BANK CHARGES $6,969$6,273$696- 4.7%
Fees: accounting $5,645-$5,645- 3.8%
Other (as described)WEBSITE $2,209$2,209-- 1.5%
Office expenses $2,075$1,867$208- 1.4%
Payroll taxes $2,024$1,822$202- 1.4%
Other (as described)TELEPHONE $642$578$64- 0.4%
Insurance $477-$477- 0.3%
All other expenses $37$33$4- 0.0%
Fundraising events Eventdirect expenses; gross income $15,187$1,324reported apart
Total$146,798100%

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2023 · Form 990 · $50,199 spent · pay $27,024 · grants $0 · events $13,794
LineAs describedTotalProgramManagementFundraisingShare
Pay: officers, directors, trustees, key employees $25,000$25,000-- 49.8%
Office expenses $8,326$6,961$1,365- 16.6%
Conferences, conventions and meetings $5,277$5,277-- 10.5%
Fees: accounting $4,885-$4,885- 9.7%
Other (as described)FAMILY SUPPORT ACTIVITI $2,717$2,717-- 5.4%
Payroll taxes $2,024$2,024-- 4.0%
Other (as described)TELEPHONE $642$642-- 1.3%
Other (as described)WEBSITE $621$621-- 1.2%
Insurance $477-$477- 1.0%
Advertising and promotion $230$230-- 0.5%
Fundraising events Eventdirect expenses; gross income $48,954$8,517reported apart
Total$50,199100%

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2022 · Form 990 · $50,575 spent · pay $16,669 · grants $0 · events $4,809
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)FAMILY SUPPORT ACTIVITIES $17,237$17,237-- 34.1%
Pay: officers, directors, trustees, key employees $14,726$13,253$1,473- 29.1%
Office expenses $8,956$8,310$646- 17.7%
Fees: accounting $3,182-$3,182- 6.3%
Conferences, conventions and meetings $2,017$2,017-- 4.0%
Payroll taxes $1,943$1,749$194- 3.8%
Other (as described)WEBSITE $1,395$1,395-- 2.8%
Other (as described)TELEPHONE $642$642-- 1.3%
Insurance $477-$477- 0.9%
Fundraising events Eventdirect expenses; gross income $17,664$2,792reported apart
Total$50,575100%

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2021 · Form 990 · $50,127 spent · pay $25,410 · grants $0 · events $21,396
LineAs describedTotalProgramManagementFundraisingShare
Pay: officers, directors, trustees, key employees $23,500$21,150$2,350- 46.9%
Fees: accounting $5,518-$5,518- 11.0%
Office expenses $5,410$5,084$326- 10.8%
Other (as described)WEBSITE $5,319$5,319-- 10.6%
Conferences, conventions and meetings $4,642$4,642-- 9.3%
Other (as described)FAMILY SUPPORT ACTIVITIES $2,471$2,471-- 4.9%
Payroll taxes $1,910$1,719$191- 3.8%
Other (as described)TELEPHONE $857$685$172- 1.7%
Insurance $500-$500- 1.0%
Fundraising events Eventdirect expenses; gross income $51,826$16,754reported apart
Total$50,127100%

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2020 · Form 990 · $46,788 spent · pay $26,396 · grants $0 · events $24,105
LineAs describedTotalProgramManagementFundraisingShare
Pay: officers, directors, trustees, key employees $24,416$21,974$2,442- 52.2%
Fees: accounting $4,789-$4,789- 10.2%
Other (as described)BANK CHARGES $3,187-$3,187- 6.8%
Conferences, conventions and meetings $2,952$2,952-- 6.3%
Payroll taxes $1,980$1,782$198- 4.2%
Office expenses $1,795$25$1,770- 3.8%
Advertising and promotion $1,681$1,681-- 3.6%
Other (as described)WEBSITE $1,472$1,472-- 3.1%
Insurance $1,425-$1,425- 3.0%
Other (as described)TELEPHONE $1,289$1,289-- 2.8%
Travel $515$515-- 1.1%
Other (as described)FAMILY SUPPORT ACTIVITIES $510$510-- 1.1%
Interest $431-$431- 0.9%
All other expenses $346$96$250- 0.7%
Fundraising events Eventdirect expenses; gross income $43,930$21,153reported apart
Total$46,788100%

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2019 · Form 990 · $57,723 spent · pay $26,744 · grants $0 · events $26,121
LineAs describedTotalProgramManagementFundraisingShare
Pay: officers, directors, trustees, key employees $22,624$20,362$2,262- 39.2%
Other (as described)FAMILY SUPPORT ACTIVITIES $6,151$6,151-- 10.7%
Office expenses $5,047-$5,047- 8.7%
Advertising and promotion $4,982$4,982-- 8.6%
Other (as described)WEBSITE $4,646$4,646-- 8.0%
Payroll taxes $4,120$3,708$412- 7.1%
Fees: accounting $3,162-$3,162- 5.5%
Other (as described)TELEPHONE $2,245-$2,245- 3.9%
Insurance $1,730-$1,730- 3.0%
Conferences, conventions and meetings $1,695$1,695-- 2.9%
Other (as described)BANK CHARGES $1,321-$1,321- 2.3%
Fundraising events Eventdirect expenses; gross income $62,360$24,426reported apart
Total$57,723100%

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2018 · Form 990 · $102,865 spent · pay $23,634 · grants $0 · events $80,528
LineAs describedTotalProgramManagementFundraisingShare
Conferences, conventions and meetings $54,850$54,850-- 53.3%
Pay: officers, directors, trustees, key employees $22,037$19,833$2,204- 21.4%
Other (as described)FAMILY SUPPORT ACTIVITIES $6,384$6,384-- 6.2%
Fees: accounting $4,705-$4,705- 4.6%
Office expenses $4,225-$4,225- 4.1%
Other (as described)WEBSITE $3,040$3,040-- 3.0%
Other (as described)TELEPHONE $2,380-$2,380- 2.3%
Advertising and promotion $1,724$1,724-- 1.7%
Payroll taxes $1,597$1,437$160- 1.6%
Insurance $1,133-$1,133- 1.1%
Other (as described)BANK CHARGES $790-$790- 0.8%
Fundraising events Eventdirect expenses; gross income $78,272$25,678reported apart
Total$102,865100%

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2017 · Form 990 · $60,393 spent · pay $24,495 · grants $0 · events $37,771
LineAs describedTotalProgramManagementFundraisingShare
Pay: officers, directors, trustees, key employees $22,569$20,312$2,257- 37.4%
Conferences, conventions and meetings $10,850$10,850-- 18.0%
Other (as described)BANK CHARGES $9,514-$9,514- 15.8%
Fees: accounting $4,380-$4,380- 7.3%
Office expenses $3,124-$3,124- 5.2%
Other (as described)TELEPHONE $2,590-$2,590- 4.3%
Other (as described)WEBSITE $2,447$2,447-- 4.1%
Payroll taxes $1,926$1,733$193- 3.2%
Insurance $1,505-$1,505- 2.5%
Other (as described)FAMILY SUPPORT ACTIVITIES $1,112$1,112-- 1.8%
Interest $214-$214- 0.4%
Advertising and promotion $162$162-- 0.3%
Fundraising events Eventdirect expenses; gross income $72,220$26,921reported apart
Total$60,393100%

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2016 · Form 990 · $126,077 spent · pay $22,051 · grants $0 · events $44,338
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)FAMILY SUPPORT ACTIVITIES $69,136$69,136-- 54.8%
Pay: officers, directors, trustees, key employees $20,790$18,711$2,079- 16.5%
Conferences, conventions and meetings $14,554$14,554-- 11.5%
Other (as described)BANK CHARGES $5,008-$5,008- 4.0%
Fees: accounting $4,462$2,231$2,231- 3.5%
Office expenses $4,421$3,212$1,209- 3.5%
Other (as described)TELEPHONE $2,644-$2,644- 2.1%
Other (as described)WEBSITE $2,465$2,465-- 2.0%
Insurance $1,336-$1,336- 1.1%
Payroll taxes $1,261$1,135$126- 1.0%
Fundraising events Eventdirect expenses; gross income $116,767$29,784reported apart
Total$126,077100%

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2015 · Form 990EZ · $69,795 spent · pay $23,038 · grants $0 · events $20,676
LineAs describedTotalShare
Other expenses (detail on Schedule O) $42,784 61.3%
Salaries, other pay and benefits $23,038 33.0%
Fees to independent contractors $3,595 5.2%
Printing, publications, postage $378 0.5%
Fundraising events Eventdirect expenses; gross income -$20,676reported apart
Total$69,795100%

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2014 · Form 990 · $119,321 spent · pay $27,403 · grants $0 · events $42,518
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)FAMILY SUPPORT ACTIVITIES $54,414$54,414-- 45.6%
Pay: officers, directors, trustees, key employees $18,647$13,985$4,662- 15.6%
Conferences, conventions and meetings $10,780$10,780-- 9.0%
Office expenses $10,388$1,990$8,398- 8.7%
Other salaries and wages $6,350$4,762$1,588- 5.3%
Occupancy $5,198$5,198-- 4.4%
Other (as described)TELEPHONE $3,778$3,778-- 3.2%
Fees: accounting $3,686-$3,686- 3.1%
Payroll taxes $2,406$1,804$602- 2.0%
Other (as described)BANK CHARGES $1,423-$1,423- 1.2%
Other (as described)WEB SITE $1,288$1,288-- 1.1%
Insurance $604-$604- 0.5%
Advertising and promotion $299$299-- 0.3%
Depreciation and depletion $60-$60- 0.1%
Fundraising events Eventdirect expenses; gross income $71,559$31,738reported apart
Total$119,321100%

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2013 · Form 990 · $95,221 spent · pay $27,415 · grants $0 · events $43,688
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)FAMILY SUPPORT ACTIVITIES $21,271$21,271-- 22.3%
Pay: officers, directors, trustees, key employees $18,825$14,119$4,706- 19.8%
Conferences, conventions and meetings $13,256$13,256-- 13.9%
Occupancy $12,555$12,555-- 13.2%
Office expenses $7,653$3,675$3,978- 8.0%
Other salaries and wages $6,165$4,624$1,541- 6.5%
Other (as described)TELEPHONE $4,756$4,756-- 5.0%
Fees: accounting $3,511-$3,511- 3.7%
Payroll taxes $2,425$1,819$606- 2.5%
Other (as described)WEB SITE $2,385$2,385-- 2.5%
Other (as described)BANK CHARGES $1,638-$1,638- 1.7%
Insurance $500-$500- 0.5%
Depreciation and depletion $234-$234- 0.2%
Advertising and promotion $47$47-- 0.0%
Fundraising events Eventdirect expenses; gross income $74,838$30,432reported apart
Total$95,221100%

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2012 · Form 990 · $127,348 spent · pay $25,948 · grants $0 · events $50,903
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)FAMILY SUPPORT ACTIVITIES $57,816$57,816-- 45.4%
Pay: officers, directors, trustees, key employees $21,600$16,200$5,400- 17.0%
Occupancy $13,334$13,334-- 10.5%
Office expenses $8,083$2,815$5,268- 6.3%
Conferences, conventions and meetings $6,531$6,531-- 5.1%
Fees: accounting $4,824-$4,824- 3.8%
Other (as described)TELEPHONE $4,240$4,240-- 3.3%
Insurance $3,500-$3,500- 2.7%
Payroll taxes $2,348$1,761$587- 1.8%
Other salaries and wages $2,000$1,500$500- 1.6%
Other (as described)WEB SITE $1,292$1,292-- 1.0%
Other (as described)BANK CHARGES $1,243-$1,243- 1.0%
Depreciation and depletion $419-$419- 0.3%
Advertising and promotion $118$118-- 0.1%
Fundraising events Eventdirect expenses; gross income -$44,372reported apart
Total$127,348100%

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2011 · Form 990 · $129,101 spent · pay $25,193 · grants $0 · events $46,698
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)FAMILY SUPPORT ACTIVITIES $55,962$55,962-- 43.3%
Pay: officers, directors, trustees, key employees $22,800$17,100$5,700- 17.7%
Occupancy $11,600$11,600-- 9.0%
Office expenses $10,501$10,501-- 8.1%
Conferences, conventions and meetings $6,958$6,958-- 5.4%
Other (as described)WEB SITE $4,529$4,529-- 3.5%
Other (as described)TELEPHONE $3,954$3,954-- 3.1%
Fees: accounting $3,675-$3,675- 2.8%
Payroll taxes $2,393$1,795$598- 1.9%
Other (as described)INSURANCE $1,945-$1,945- 1.5%
Advertising and promotion $1,935$1,935-- 1.5%
Fees: other services $1,048-$1,048- 0.8%
All other expenses $911$911-- 0.7%
Depreciation and depletion $872$872-- 0.7%
Information technology $18-$18- 0.0%
Fundraising events Eventdirect expenses; gross income -$39,740reported apart
Total$129,101100%

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2010 · Form 990 · $190,413 spent · pay $20,102 · grants $11,560 · events $44,564
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)FAMILY SUPPORT ACTIVITIES $80,356$80,356-- 42.2%
Other (as described)REFUND GRANT MONEY $22,400-$22,400- 11.8%
Pay: officers, directors, trustees, key employees $18,200$13,650$4,550- 9.6%
Grants to US organizations and governments $11,560$11,560-- 6.1%
Occupancy $11,000$11,000-- 5.8%
Office expenses $10,564$10,564-- 5.5%
Conferences, conventions and meetings $10,008$10,008-- 5.3%
Advertising and promotion $8,249$8,249-- 4.3%
Other (as described)TELEPHONE $3,558$3,558-- 1.9%
Fees: accounting $3,471-$3,471- 1.8%
All other expenses $2,343$493$1,850- 1.2%
Other (as described)WEB SITE $2,246$2,246-- 1.2%
Fees: other services $2,150-$2,150- 1.1%
Payroll taxes $1,902$1,427$475- 1.0%
Other (as described)BANK CHARGES $1,364$1,364-- 0.7%
Depreciation and depletion $1,042$1,042-- 0.5%
Fundraising events Eventdirect expenses; gross income -$34,556reported apart
Total$190,413100%

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