CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC: Form 990, tax year 2014

View the entire original 990 at ProPublica ↗

Organization: CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC (EIN 91-2059167)
Tax period: 2014-01-01 to 2014-12-31
Filed: 2015-08-13
IRS object ID: 201522259349301297
Schema version: 2014v5.0
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule D
Schedule F
Schedule I
Schedule J
Schedule O
Schedule R

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2015-08-13T10:39:17-05:00	ReturnTs
Tax Period End	2014-12-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	BDO USA LLP	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	8405 GREENSBORO DRIVE 7TH FLOOR	AddressLine1Txt
City	MCLEAN	CityNm
State Abbreviation	VA	StateAbbreviationCd
ZIP	22102	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2014-01-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	912059167	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
In Care Of	% THE ORGANIZATION	InCareOfNm
Business Name Control	CYST	BusinessNameControlTxt
Phone	3019514422	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	6931 ARLINGTON ROAD	AddressLine1Txt
Address Line2	Suite 200	AddressLine2Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	ROBERT J BEALL PHD	PersonNm
Person Title	president and ceo	PersonTitleTxt
Phone	7038930600	PhoneNum
Signature	2015-07-21	SignatureDt
Discuss With Paid Preparer	Yes (true)	DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	Jeffrey J Schragg	PreparerPersonNm
PTIN	P00234543	PTIN
Phone	7038930600	PhoneNum

Field	Value	IRS element (for citing)
Tax	2014	TaxYr
Build TS	2016-03-07 17:11:31Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Principal Officer	ROBERT J BEALL PHD	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	6931 ARLINGTON ROAD STE 200	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$3,274,880,997	GrossReceiptsAmt
Group Return For Affiliates	false	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	www.CFF.ORG/RESEARCH/CFFT/	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	2000	FormationYr
Legal Domicile State	MD	LegalDomicileStateCd
Activity Or Mission	THE MISSION IS TO CURE CYSTIC FIBROSIS AND TO PROVIDE ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES.	ActivityOrMissionDesc
Voting Members Governing Body	6	VotingMembersGoverningBodyCnt
Voting Members Independent	5	VotingMembersIndependentCnt
Total Employee	29	TotalEmployeeCnt
Total Volunteers	0	TotalVolunteersCnt
Total Gross UBI	$0	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	$0	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$0	PYContributionsGrantsAmt
CY Contributions Grants	$0	CYContributionsGrantsAmt
PY Program Service Revenue	$223,471	PYProgramServiceRevenueAmt
CY Program Service Revenue	$3,274,846,429	CYProgramServiceRevenueAmt
PY Investment Income	$0	PYInvestmentIncomeAmt
CY Investment Income	$25,502	CYInvestmentIncomeAmt
PY Other Revenue	$257,190,808	PYOtherRevenueAmt
CY Other Revenue	$9,066	CYOtherRevenueAmt
PY Total Revenue	$257,414,279	PYTotalRevenueAmt
CY Total Revenue	$3,274,880,997	CYTotalRevenueAmt
PY Grants And Similar Paid	$210,196,981	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$3,231,024,082	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$4,951,732	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$6,801,253	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$0	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$0	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$0	CYTotalFundraisingExpenseAmt
PY Other Expenses	$42,265,566	PYOtherExpensesAmt
CY Other Expenses	$37,055,662	CYOtherExpensesAmt
PY Total Expenses	$257,414,279	PYTotalExpensesAmt
CY Total Expenses	$3,274,880,997	CYTotalExpensesAmt
CY Revenues Less Expenses	$0	CYRevenuesLessExpensesAmt
Total Assets BOY	$55,984,395	TotalAssetsBOYAmt
Total Assets EOY	$63,052,423	TotalAssetsEOYAmt
Total Liabilities BOY	$55,984,395	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$63,052,423	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$0	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$0	NetAssetsOrFundBalancesEOYAmt
Mission	The mission of the Cystic Fibrosis Foundation Therapeutics is to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development and promoting individualized treatment. A life-shortening genetic disease, CF affects the lungs and digestive systems of nearly 30,000 children and young adults in the U.S. Currently, there is no cure.	MissionDesc
Significant New Program Srvc	false	SignificantNewProgramSrvcInd
Significant Change	false	SignificantChangeInd
Expense	$39,866,688	ExpenseAmt
Grant	$0	GrantAmt
Revenue	$3,274,431,963	RevenueAmt
Desc	Investments by Cystic Fibrosis Foundation Therapeutics (CFFT) in state-of-the-art research have accelerated progress toward developing new CF treatments and finding a cure for the disease. By funding CF drug discovery and development research conducted by biotechnology companies and providing matching awards to CF drug developers for CF research, and with a specialized CF clinical trials network, CFFT has attracted significant industry involvement in the fight against CF. CFFT accomplishes its mission by funding life-saving research to develop effective therapies for people with CF. CFFT has funded hundreds of millions of dollars of research costs to help develop CF drugs and therapies. Through CFFT's efforts, the life expectancy of people with CF has doubled in the last 30 years, and research to find a cure is more promising than ever before.	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$3,234,094,781	ExpenseAmt
Grant	$50,652,025	GrantAmt
Revenue	$414,466	RevenueAmt
Desc	CFFT supports a national clinical research network of nearly 80 Foundation-accredited care centers that collaborate to conduct clinical trials, allowing potential new CF therapies to move to larger, late-stage studies more quickly. Medical programs in 2014 consisted of costs to support scientific study and investigations. 205 grants were awarded in 2014.	Desc

Field	Value	IRS element (for citing)
Total Program Service Expenses	$3,273,961,469	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (true)	DescribedInSection501c3Ind
Schedule B Required	false	ScheduleBRequiredInd
Political Campaign Acty	false	PoliticalCampaignActyInd
Lobbying Activities	false	LobbyingActivitiesInd
Donor Advised Fund	false	DonorAdvisedFundInd
Conservation Easements	false	ConservationEasementsInd
Collections Of Art	false	CollectionsOfArtInd
Credit Counseling	false	CreditCounselingInd
Temp Or Permanent Endowments	false	TempOrPermanentEndowmentsInd
Report Land Building Equipment	Yes (true)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	false	ReportInvestmentsOtherSecInd
Report Program Related Invst	false	ReportProgramRelatedInvstInd
Report Other Assets	Yes (true)	ReportOtherAssetsInd
Report Other Liabilities	false	ReportOtherLiabilitiesInd
Include FIN48 Footnote	false	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	false	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	Yes (true)	ConsolidatedAuditFinclStmtInd
School Operating	false	SchoolOperatingInd
Foreign Office	false	ForeignOfficeInd
Foreign Activities	Yes (true)	ForeignActivitiesInd
More Than5000 K To Org	Yes (true)	MoreThan5000KToOrgInd
More Than5000 K To Individuals	false	MoreThan5000KToIndividualsInd
Professional Fundraising	false	ProfessionalFundraisingInd
Fundraising Activities	false	FundraisingActivitiesInd
Gaming Activities	false	GamingActivitiesInd
Operate Hospital	false	OperateHospitalInd
Grants To Organizations	Yes (true)	GrantsToOrganizationsInd
Grants To Individuals	false	GrantsToIndividualsInd
Schedule J Required	Yes (true)	ScheduleJRequiredInd
Tax Exempt Bonds	false	TaxExemptBondsInd
Engaged In Excess Benefit Trans	false	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	false	PYExcessBenefitTransInd
Loan Outstanding	false	LoanOutstandingInd
Grant To Related Person	false	GrantToRelatedPersonInd
Business Rln With Org Mem	false	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	false	BusinessRlnWithFamMemInd
Business Rln With Officer Ent	false	BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri	false	DeductibleNonCashContriInd
Deductible Art Contribution	false	DeductibleArtContributionInd
Terminate Operations	false	TerminateOperationsInd
Partial Liquidation	false	PartialLiquidationInd
Disregarded Entity	false	DisregardedEntityInd
Related Entity	Yes (true)	RelatedEntityInd
Related Organization Ctrl Ent	false	RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	false	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	false	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (true)	ScheduleORequiredInd
IRP Document	89	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (true)	BackupWthldComplianceInd
Employee	29	EmployeeCnt
Employment Tax Returns Filed	Yes (true)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	false	UnrelatedBusIncmOverLimitInd
Foreign Financial Account	false	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	false	ProhibitedTaxShelterTransInd
Taxable Party Notification	false	TaxablePartyNotificationInd
Nondeductible Contributions	false	NondeductibleContributionsInd
Quid Pro Quo Contributions	false	QuidProQuoContributionsInd
Form8282 Property Disposed Of	false	Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct	false	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	false	PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services	false	IndoorTanningServicesInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	6	GoverningBodyVotingMembersCnt
Independent Voting Member	5	IndependentVotingMemberCnt
Family Or Business Rln	false	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	false	DelegationOfMgmtDutiesInd
Change To Org Documents	false	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	false	MaterialDiversionOrMisuseInd
Members Or Stockholders	false	MembersOrStockholdersInd
Election Of Board Members	Yes (true)	ElectionOfBoardMembersInd
Decisions Subject To Approva	false	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (true)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (true)	MinutesOfCommitteesInd
Officer Mailing Address	false	OfficerMailingAddressInd
Local Chapters	false	LocalChaptersInd
Form990 Provided To Gvrn Body	Yes (true)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (true)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (true)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (true)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (true)	WhistleblowerPolicyInd
Document Retention Policy	Yes (true)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (true)	CompensationProcessCEOInd
Compensation Process Other	Yes (true)	CompensationProcessOtherInd
Investment In Joint Venture	false	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Field	Value	IRS element (for citing)
Person	THE ORGANIZATION	PersonNm
Phone	3019514422	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	6931 ARLINGTON ROAD STE 200	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (14 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt	OfficerOfficerInd	Highest Compensated EmployeeHighestCompensatedEmployeeInd
JASON M ARYEH
DIRECTOR	3.0	Yes (X)	$0	$0	$0
JONATHAN COHN MD
DIRECTOR	3.0	Yes (X)	$0	$0	$0
CATHRINE C MCLOUD
DIRECTOR	3.0	Yes (X)	$0	$0	$0	11.0
D PAUL FLESSNER
DIRECTOR	3.0	Yes (X)	$0	$0	$0
STEVEN SHAK MD
DIRECTOR	3.0	Yes (X)	$0	$0	$0	6.0
ROBERT J BEALL PHD
PRESIDENT AND CEO	20.0	Yes (X)	$323,554	$650,137	$224,033	40.0	Yes (X)
PRESTON W CAMPBELL MD
EXEC VP OF MEDICAL AFFAIRS	20.0		$213,925	$432,875	$174,822	40.0	Yes (X)
C RICHARD MATTINGLY
EXEC VP AND COO	5.0		$0	$645,755	$189,266	55.0	Yes (X)
VERA H TWIGG
EXEC VP & CFO	5.0		$0	$461,903	$85,449	55.0	Yes (X)
BRUCE MARSHALL MD
SR. VP OF CLINICAL AFFAIRS	50.0		$407,821	$0	$32,120			Yes (X)
MARTIN MENSE PHD
PRINCIPAL SCIENTIST DRUG DISC	50.0		$209,016	$0	$46,258			Yes (X)
THEODORE TORPHY PHD
HEAD OF RESEARCH STRATEGY	16.0		$228,800	$0	$0			Yes (X)
HERMANN BIHLER PHD
SENIOR SCIENTIST	50.0		$151,229	$0	$13,417			Yes (X)
FENG LIANG PHD
SENIOR SCIENTIST	50.0		$137,177	$0	$37,936			Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$1,671,522	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$2,190,670	TotReportableCompRltdOrgAmt
Total Other Compensation	$803,301	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	16	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	false	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (true)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	false	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1Txt	CityContractorAddress/USAddress/CityNm	State AbbreviationContractorAddress/USAddress/StateAbbreviationCd	ZIPContractorAddress/USAddress/ZIPCd	ServicesServicesDesc	CompensationCompensationAmt
MORGAN STANLEY CO LLC
1 PIERREPONT PLAZA 7TH FL	BROOKLYN	NY	11201	TRANSACTION ADVISORY	$24,773,304
PFIZER INC
200 CAMBRIDGEPARK DR	CAMBRIDGE	MA	02140	contracted research	$17,637,626
GENZYME CORPORATION
FIVE THE MOUNTAIN RD	FRAMINGHAM	MA	01701	CONTRACTED RESEARCH	$5,250,029
PARION SCIENCES INC
2525 MERIDIAN PARKWAY SUITE 260	DURHAM	SC	27713	CONTRACTED RESEARCH	$4,703,246
VERTEX PHARMACEUTICALS LLC
50 NORTHERN AVENUE	BOSTON	MA	02210	CONTRACTED RESEARCH	$3,928,582

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	20	CntrctRcvdGreaterThan100KCnt
Info In Schedule O Part VIII	Yes (X)	InfoInScheduleOPartVIIIInd
Total Contributions	$0	TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (3 entries)

DescDesc	BusinessBusinessCd	Total Revenue ColumnTotalRevenueColumnAmt	Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
CLINICAL STUDY	541900	$136,293	$136,293
REFUNDED OR CANCELLED GRANTS	900099	$278,173	$278,173
PROCEEDS OF SALE OF INTANGIBLE	541700	$3,274,431,963	$3,274,431,963

Field	Value	IRS element (for citing)
Total Program Service Revenue	$3,274,846,429	TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$25,502	TotalRevenueColumnAmt
Exclusion	$25,502	ExclusionAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$9,066	TotalRevenueColumnAmt
Exclusion	$9,066	ExclusionAmt

Rental Income Or Loss RentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Real	$0	RealAmt
Personal	$0	PersonalAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Net Income From Gaming NetIncomeFromGamingGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Net Income Or Loss NetIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Field	Value	IRS element (for citing)
Other Revenue Total	$0	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$3,274,880,997	TotalRevenueColumnAmt
Related Or Exempt Func Income	$3,274,846,429	RelatedOrExemptFuncIncomeAmt
Exclusion	$34,568	ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$3,227,374,435	TotalAmt
Program Services	$3,227,374,435	ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$3,649,647	TotalAmt
Program Services	$3,649,647	ProgramServicesAmt

Benefits To Members BenefitsToMembersGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$537,479	TotalAmt
Program Services	$484,813	ProgramServicesAmt
Management And General	$52,666	ManagementAndGeneralAmt
Fundraising	$0	FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$5,184,553	TotalAmt
Program Services	$4,676,536	ProgramServicesAmt
Management And General	$508,017	ManagementAndGeneralAmt
Fundraising	$0	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$371,702	TotalAmt
Program Services	$335,280	ProgramServicesAmt
Management And General	$36,422	ManagementAndGeneralAmt
Fundraising	$0	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$331,237	TotalAmt
Program Services	$298,781	ProgramServicesAmt
Management And General	$32,456	ManagementAndGeneralAmt
Fundraising	$0	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$376,282	TotalAmt
Program Services	$335,658	ProgramServicesAmt
Management And General	$40,624	ManagementAndGeneralAmt

Fees For Services Management FeesForServicesManagementGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$425,730	TotalAmt
Program Services	$425,730	ProgramServicesAmt
Management And General	$0	ManagementAndGeneralAmt
Fundraising	$0	FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$3,850	TotalAmt
Program Services	$0	ProgramServicesAmt
Management And General	$3,850	ManagementAndGeneralAmt
Fundraising	$0	FundraisingAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$181,207	TotalAmt
Program Services	$181,207	ProgramServicesAmt
Management And General	$0	ManagementAndGeneralAmt
Fundraising	$0	FundraisingAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$1,173,448	TotalAmt
Program Services	$1,084,858	ProgramServicesAmt
Management And General	$88,590	ManagementAndGeneralAmt
Fundraising	$0	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$817,658	TotalAmt
Program Services	$756,099	ProgramServicesAmt
Management And General	$61,559	ManagementAndGeneralAmt
Fundraising	$0	FundraisingAmt

Royalties RoyaltiesGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$813,699	TotalAmt
Program Services	$758,019	ProgramServicesAmt
Management And General	$55,680	ManagementAndGeneralAmt
Fundraising	$0	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$236,645	TotalAmt
Program Services	$220,818	ProgramServicesAmt
Management And General	$15,827	ManagementAndGeneralAmt
Fundraising	$0	FundraisingAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$174,600	TotalAmt
Program Services	$164,518	ProgramServicesAmt
Management And General	$10,082	ManagementAndGeneralAmt
Fundraising	$0	FundraisingAmt

Interest InterestGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$422,094	TotalAmt
Program Services	$408,339	ProgramServicesAmt
Management And General	$13,755	ManagementAndGeneralAmt
Fundraising	$0	FundraisingAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$192,740	TotalAmt
Program Services	$192,740	ProgramServicesAmt
Management And General	$0	ManagementAndGeneralAmt
Fundraising	$0	FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	Management And GeneralManagementAndGeneralAmt	FundraisingFundraisingAmt
CONTRACTED RESEARCH	$32,071,504	$32,071,504	$0	$0
CHEMISTRY	$110,478	$110,478	$0	$0
MEDICAL ADVISORY FEES	$349,644	$349,644	$0	$0
MISCELLANEOUS	$82,365	$82,365	$0	$0

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$3,274,880,997	TotalAmt
Program Services	$3,273,961,469	ProgramServicesAmt
Management And General	$919,528	ManagementAndGeneralAmt
Fundraising	$0	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$4,019,774	BOYAmt
EOY	$2,026,003	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Accounts Receivable AccountsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$412,310	BOYAmt
EOY	$261,700	EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$278,678	BOYAmt
EOY	$404,036	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$1,848,914	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$914,587	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$1,053,796	BOYAmt
EOY	$934,327	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Intangible Assets IntangibleAssetsGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$50,219,837	BOYAmt
EOY	$59,426,357	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$55,984,395	BOYAmt
EOY	$63,052,423	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$1,148,106	BOYAmt
EOY	$1,129,462	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$54,836,289	BOYAmt
EOY	$61,922,961	EOYAmt

Deferred Revenue DeferredRevenueGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Tax Exempt Bond Liabilities TaxExemptBondLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Escrow Account Liability EscrowAccountLiabilityGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Loans From Officers Directors LoansFromOfficersDirectorsGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$55,984,395	BOYAmt
EOY	$63,052,423	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows SFAS117	Yes (X)	OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$55,984,395	BOYAmt
EOY	$63,052,423	EOYAmt

Field	Value	IRS element (for citing)
Reconcilation Revenue Expnss	$0	ReconcilationRevenueExpnssAmt
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	false	AccountantCompileOrReviewInd
FS Audited	Yes (true)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Consolidated Basis Fincl Stmt	Yes (X)	ConsolidatedBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (true)	AuditCommitteeInd
Federal Grant Audit Required	false	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Supporting Organization509a3	Yes (X)	SupportingOrganization509a3Ind
Supporting Org Type1	Yes (X)	SupportingOrgType1Ind
Supported Organizations	1	SupportedOrganizationsCnt

Supported Org Information SupportedOrgInformationGrp

Supported Organization Name SupportedOrganizationName

Field	Value	IRS element (for citing)
Business Name Line1	CYSTIC FIBROSIS FOUNDATION	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
EIN	131930701	EIN
Organization Type	07	OrganizationTypeDesc
Governing Document Listed	Yes (true)	GoverningDocumentListedInd
Support	$3,180,372,057	SupportAmt
Other Support	$0	OtherSupportAmt

Field	Value	IRS element (for citing)
Supported Organizations Total	1	SupportedOrganizationsTotalCnt
Support Sum	$3,180,372,057	SupportSumAmt

Form990 Sch A Supporting Org Form990SchASupportingOrgGrp

Field	Value	IRS element (for citing)
Listed By Name Governing Doc	Yes (true)	ListedByNameGoverningDocInd
Suprt Org No IRS Determination	false	SuprtOrgNoIRSDeterminationInd
Supported Org Section C456	false	SupportedOrgSectionC456Ind
Supported Org Not Organized US	false	SupportedOrgNotOrganizedUSInd
Organization Change Suprt Org	false	OrganizationChangeSuprtOrgInd
Support Non Supported Org	false	SupportNonSupportedOrgInd
Payment Substantial Contribtr	false	PaymentSubstantialContribtrInd
Loan Disqualified Person	false	LoanDisqualifiedPersonInd
Controlled Disqualified Prsn	false	ControlledDisqualifiedPrsnInd
Disqualified Prsn Controll Int	false	DisqualifiedPrsnControllIntInd
Disqualified Prsn Ownr Int	false	DisqualifiedPrsnOwnrIntInd
Excess Business Holdings Rules	false	ExcessBusinessHoldingsRulesInd
Contribution Controller	false	ContributionControllerInd
Contribution Family	false	ContributionFamilyInd
Contribution35 Controlled	false	Contribution35ControlledInd

Form990 Sch A Type1 Suprt Org Form990SchAType1SuprtOrgGrp

Field	Value	IRS element (for citing)
Power Appoint Majority Dir Trst	Yes (true)	PowerAppointMajorityDirTrstInd
Operate Benefit Non Suprt Org	false	OperateBenefitNonSuprtOrgInd

Schedule D IRS990ScheduleD

Field	Value	IRS element (for citing)
Art Public Exhibition Amounts		ArtPublicExhibitionAmountsGrp
Held Works Art		HeldWorksArtGrp
CY Minus3 Yr Endwmt Fund		CYMinus3YrEndwmtFundGrp
CY Minus4 Yr Endwmt Fund		CYMinus4YrEndwmtFundGrp
Land		LandGrp
Buildings		BuildingsGrp

Leasehold Improvements LeaseholdImprovementsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$4,914	OtherCostOrOtherBasisAmt
Depreciation	$4,914	DepreciationAmt
Book Value	$0	BookValueAmt

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$1,844,000	OtherCostOrOtherBasisAmt
Depreciation	$909,673	DepreciationAmt
Book Value	$934,327	BookValueAmt

Field	Value	IRS element (for citing)
Other Land Buildings		OtherLandBuildingsGrp
Total Book Value Land Buildings	$934,327	TotalBookValueLandBuildingsAmt

Other Assets Org OtherAssetsOrgGrp

Field	Value	IRS element (for citing)
Desc	INTERCOMPANY RECEIVABLE	Desc
Book Value	$59,426,357	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Other Assets	$59,426,357	TotalBookValueOtherAssetsAmt

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (true)	GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (4 entries)

RegionRegionTxt	Type Of Activities ConductedTypeOfActivitiesConductedTxt	Specific Services ProvidedSpecificServicesProvidedTxt	Region Total ExpendituresRegionTotalExpendituresAmt
North America	Grantmaking	NONE	$860,726
Europe (Including Iceland and Greenland)	Grantmaking	none	$1,320,875
East Asia and the Pacific	Grantmaking	none	$1,236,008
Middle East and North Africa	Grantmaking	none	$232,038

Field	Value	IRS element (for citing)
Subtotal Spent	$3,649,647	SubtotalSpentAmt
Total Spent	$3,649,647	TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (18 entries)

RegionRegionTxt	Purpose Of GrantPurposeOfGrantTxt	Cash GrantCashGrantAmt	Manner Of Cash DisbursementMannerOfCashDisbursementTxt
North America	DRUG DISCOVERY	$216,000	CHECK
North America	DRUG DISCOVERY	$262,660	CHECK
North America	DRUG DISCOVERY	$50,000	CHECK
North America	CLINICAL RESEARCH	$206,488	CHECK
North America	CLINICAL RESEARCH	$15,660	CHECK
North America	CLINICAL RESEARCH	$109,918	CHECK
Europe (Including Iceland and Greenland)	DRUG DISCOVERY	$193,482	WIRE
Europe (Including Iceland and Greenland)	DRUG DISCOVERY	$467,602	WIRE
Europe (Including Iceland and Greenland)	DRUG DISCOVERY	$116,640	WIRE
Europe (Including Iceland and Greenland)	DRUG DISCOVERY	$50,286	WIRE
Europe (Including Iceland and Greenland)	DRUG DISCOVERY	$109,624	WIRE
Europe (Including Iceland and Greenland)	DRUG DISCOVERY	$142,689	WIRE
Europe (Including Iceland and Greenland)	CLINICAL RESEARCH	$120,552	WIRE
Europe (Including Iceland and Greenland)	CLINICAL RESEARCH	$120,000	WIRE
East Asia and the Pacific	CLINICAL RESEARCH	$1,128,021	WIRE
East Asia and the Pacific	CLINICAL RESEARCH	$107,987	WIRE
Middle East and North Africa	DRUG DISCOVERY	$149,040	WIRE
Middle East and North Africa	DRUG DISCOVERY	$82,998	WIRE

Field	Value	IRS element (for citing)
Total501c3 Org	17	Total501c3OrgCnt
Total Other Org	0	TotalOtherOrgCnt
Transfer To Foreign Corp	false	TransferToForeignCorpInd
Interest In Foreign Trust	false	InterestInForeignTrustInd
Foreign Corp Ownership	false	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	false	PassiveForeignInvestmestCoInd
Foreign Partnership	false	ForeignPartnershipInd
Boycott Countries	false	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	Procedures for monitoring grant funds outside of the U.S.	FormAndLineReferenceDesc
Explanation	SCHEDULE F, PART 1, LINE 2 THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANTS AWARDED TO ENTITIES OUTSIDE OF THE UNITED STATES. THE ORGANIZATION FOLLOWS THE U.S. DEPARTMENT OF TREASURY ANTI-TERRORIST FINANCING VOLUNTARY BEST PRACTICES GUIDELINES FOR CHARITIES. IN COMPLIANCE WITH THE BEST PRACTICES, THE ORGANIZATION COLLECTS AND REVIEWS INFORMATION ABOUT THE PROSPECTIVE GRANTEES AND CONDUCTS A VETTING PROCESS TO ENSURE THEY ARE NOT SUSPECTED OF ACTIVITIES RELATED TO TERRORISM. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE. FUNDING IS INCREMENTAL AND SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO DETERMINE PROGRESS. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLES OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTIONS. THE GRANTS IN THE MIDDLE EAST/NORTH AFRICA REGION WERE MADE TO BAR-ILAN UNIVERSITY AND HEBREW UNIVERSITY OF JERUSALEM, UNIVERSITIES IN ISRAEL.	ExplanationTxt

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (true)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (179 entries)

Address Line1USAddress/AddressLine1Txt	Address Line2USAddress/AddressLine2Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Purpose Of GrantPurposeOfGrantTxt
Albany Medical College
47 New Scotland Ave	Mail Code 88	Albany	NY	12208	141338310	501c(3)	$80,395	CLINICAL RESEARCH CENTER
All Children's Hospital
Dept 9010	PO Box 31020	St Petersburg	FL	33731	590683252	501c(3)	$121,921	CLINICAL RESEARCH CENTER
Ann and Robert H Lurie Children's Hospital of Chi
2300 Childrens Plaza - Box 205		Chicago	IL	60614	362170833	501c(3)	$50,658	CLINICAL RESEARCH
Ann and Robert H Lurie Children's Hospital of Chi
2300 Childrens Plaza		Chicago	IL	60614	363357006	501c(3)	$12,350	ACADEMIC ADVISORY AWARD
Ann and Robert H Lurie Children's Hospital of Chi
2300 Childrens Plaza	Box 43	Chicago	IL	60614	363357006	501c(3)	$61,697	CLINICAL RESEARCH CENTER
Arizona Board of Regents University of Arizona
Sponsored Projects Services	Box 43	Tucson	AZ	85722	742652689	IRC 115	$27,000	ADHERENCE
Arizona Board of Regents University of Arizona
Sponsored Projects Services	888 N Euclid Room 510	Tucson	AZ	85722	742652689	IRC 115	$184,383	CLINICAL RESEARCH CENTER
Arizona Board of Regents University of Arizona
Sponsored Projects Services	888 N Euclid Room 510	Tucson	AZ	85722	742652689	IRC 115	$266,463	CLINICAL RESEARCH STUDY
Atlantic Health System
100 Madison Avenue	888 N Euclid Room 510	Morristown	NJ	07962	521958352	501c(3)	$72,581	CLINICAL RESEARCH CENTER
Baylor College of Medicine
PO Box 1		Houston	TX	77212	741613878	501c(3)	$257,664	CLINICAL RESEARCH CENTER
Beth Israel Medical Center
Office of Grants Contracts		New York	NY	10038	135564934	501c(3)	$74,768	CLINICAL RESEARCH CENTER
Board of Regents of the University of Wisconsin Sy
Research and Sponsored Programs	160 Water Street 24th Floor	Madison	WI	537151218	396006492	501c(3)	$106,389	CLINICAL RESEARCH CENTER
Board of Regents of the University of Wisconsin Sy
Research and Sponsored Programs	21 N Park St Suite 6401	Madison	WI	537151218	396006492	501c(3)	$129,693	CLINICAL RESEARCH STUDY
Board of Trustees of the Leland Stanford Junior Un
Stanford University	21 N Park St Suite 6401	Stanford	CA	943056215	941156365	501c(3)	$27,000	ADHERENCE
Board of Trustees of the Leland Stanford Junior Un
Stanford University	651 Serra Street Suite 220	Stanford	CA	943056215	941156365	501c(3)	$194,399	DRUG DISCOVERY AWARD
Board of Trustees of the Leland Stanford Junior Un
Stanford University	651 Serra Street Suite 220	Stanford	CA	943056215	941156365	501c(3)	$218,111	CLINICAL RESEARCH CENTER
Board of Trustees of the Leland Stanford Junior Un
Stanford University	651 Serra Street Suite 220	Stanford	CA	943056215	941156365	501c(3)	$38,326	CLINICAL RESEARCH
Board of Trustees of the Leland Stanford Junior Un
Stanford University	651 Serra Street Suite 220	Stanford	CA	943056215	941156365	501c(3)	$28,070	CLINICAL RESEARCH STUDY
Case Western Reserve University
10900 Euclid Avenue	651 Serra Street Suite 220	Cleveland	OH	441067015	341018992	501c(3)	$35,846	ACADEMIC ADVISORY AWARD
Case Western Reserve University
10900 Euclid Avenue		Cleveland	OH	441067015	341018992	501c(3)	$114,156	DRUG DISCOVERY AWARD
Case Western Reserve University
10900 Euclid Avenue		Cleveland	OH	441067015	341018992	501c(3)	$441,236	CLINICAL RESEARCH CENTER
Case Western Reserve University
10900 Euclid Avenue		Cleveland	OH	441067015	341018992	501c(3)	$68,250	CLINICAL RESEARCH STUDY
Central Florida Pulmonary Group
326 North Mills Avenue		Orlando	FL	32803	591760017	C CORP	$5,681	CLINICAL RESEARCH CENTER
Children's & Women's Physicians of Westchester LL
Pediatrics Department		Valhalla	NY	10595	133940462	LLP	$192,699	CLINICAL RESEARCH CENTER
Children's Health Care
2525 Chicago Avenue South	Munger Pavilion Room 123	Minneapolis	MN	554041844	411754276	501c(3)	$173,404	CLINICAL RESEARCH CENTER
Children's Health Care
2525 Chicago Avenue South		Minneapolis	MN	554041844	411754276	501c(3)	$31,315	CLINICAL RESEARCH
Children's Hospital Corporation
300 Longwood Avenue		Boston	MA	02115	042774441	501c(3)	$443,273	ADHERENCE
Children's Hospital Corporation
300 Longwood Avenue		Boston	MA	02115	042774441	501c(3)	$53,079	ACADEMIC ADVISORY AWARD
Children's Hospital Corporation
300 Longwood Avenue		Boston	MA	02115	042774441	501c(3)	$277,019	CLINICAL RESEARCH CENTER
Children's Hospital Corporation
300 Longwood Avenue		Boston	MA	02115	042774441	501c(3)	$34,907	CLINICAL RESEARCH
Children's Hospital Medical Center
Cincinnati Childrens Hospital Med		Cincinnati	OH	45229	310833936	501c(3)	$27,000	ADHERENCE
Children's Hospital Medical Center
Cincinnati Childrens Hospital Med	3333 Burnet Avenue	Cincinnati	OH	45229	310833936	501c(3)	$23,232	ACADEMIC ADVISORY AWARD
Children's Hospital Medical Center
Cincinnati Childrens Hospital Med	3333 Burnet Avenue	Cincinnati	OH	45229	310833936	501c(3)	$325,475	DRUG DISCOVERY AWARD
Children's Hospital Medical Center
Cincinnati Childrens Hospital Med	3333 Burnet Avenue	Cincinnati	OH	45229	310833936	501c(3)	$263,586	CLINICAL RESEARCH CENTER
Children's Hospital Medical Center
Cincinnati Childrens Hospital Med	3333 Burnet Avenue	Cincinnati	OH	45229	310833936	501c(3)	$53,067	CLINICAL RESEARCH
Children's Hospital Medical Center
Cincinnati Childrens Hospital Med	3333 Burnet Avenue	Cincinnati	OH	45229	310833936	501c(3)	$540,058	CLINICAL RESEARCH STUDY
Children's Hospital Medical Center of Akron
1 Perkins Square	3333 Burnet Avenue	Akron	OH	44308	340714357	501c(3)	$79,556	CLINICAL RESEARCH CENTER
Children's Hospital Los Angeles
4650 Sunset Blvd		Los Angeles	CA	90027	951690977	501c(3)	$151,798	CLINICAL RESEARCH CENTER
Children's Medical Center
One Childrens Plaza		Dayton	OH	45404	310672132	501c(3)	$157,605	CLINICAL RESEARCH CENTER
Connecticut Children's Medical Center
282 Washington Street		Hartford	CT	06106	060646755	501c(3)	$63,245	CLINICAL RESEARCH CENTER
Cook Children's Medical Center
801 Seventh Avenue		Ft Worth	TX	76104	752051646	501c(3)	$185,399	CLINICAL RESEARCH CENTER
Emory University
1784 N Decatur Road		Atlanta	GA	30322	580566256	501c(3)	$236,933	CLINICAL RESEARCH CENTER
Emory University
1784 N Decatur Road	Suite 510	Atlanta	GA	30322	580566256	501c(3)	$410,521	CLINICAL RESEARCH STUDY
Georgia Health Sciences University Research Instit
1120 15th Street	Suite 510	Augusta	GA	309124810	581418202	501c(3)	$115,888	CLINICAL RESEARCH STUDY
Institute for Applied Gerontology Inc
39 Broadway Suite 1210	CJ 3301	New York	NY	10006	113135751	C CORP	$134,035	CLINICAL RESEARCH STUDY
Kaiser Foundation Research Institute
1800 Harrison Street		Oakland	CA	94612	941105628	501c(3)	$166,936	CLINICAL RESEARCH CENTER
Maine Medical Center
22 Bramhall Street	16th Floor	Portland	ME	041023175	010238552	501c(3)	$142,457	CLINICAL RESEARCH CENTER
Medical University of South Carolina
PO Box 997		Charleston	SC	29402	576000722	501c(3)	$200,340	CLINICAL RESEARCH CENTER
Medical University of South Carolina
PO Box 997		Charleston	SC	29402	576000722	501c(3)	$116,783	CLINICAL RESEARCH STUDY
Memorial Children's Hospital
2801 Atlantic Avenue		Long Beach	CA	90806	953527031	501c(3)	$193,342	CLINICAL RESEARCH CENTER
Monmouth Medical Center Foundation
300 Second Avenue	ATTN Childrens Administration	Long Branch	NJ	07740	222456079	501c(3)	$65,351	CLINICAL RESEARCH CENTER
National Jewish Medical and Research Center
1400 Jackson Street		Denver	CO	80206	742044647	501c(3)	$27,000	ADHERENCE
National Jewish Medical and Research Center
1400 Jackson Street		Denver	CO	80206	742044647	501c(3)	$127,741	CLINICAL RESEARCH CENTER
National Jewish Medical and Research Center
1400 Jackson Street		Denver	CO	80206	742044647	501c(3)	$214,886	CLINICAL RESEARCH STUDY
Nemours Children's Clinic Orlando
10140 Centurion Parkway North		Jacksonville	FL	32256	590634433	501c(3)	$177,188	CLINICAL RESEARCH CENTER
Northwestern University
633 Clark Street		Evanston	IL	60208	362167817	501c(3)	$27,000	ADHERENCE
Northwestern University
633 Clark Street	Crown G-547	Evanston	IL	60208	362167817	501c(3)	$177,350	CLINICAL RESEARCH CENTER
Oregon Health & Science University
Sponsored Projects Administration O	Crown G-547	Portland	OR	97239	237083114	501c(3)	$703,051	DRUG DISCOVERY AWARD
Oregon Health & Science University
Sponsored Projects Administration O	0690 SW Bancroft Street	Portland	OR	97239	237083114	501c(3)	$279,048	CLINICAL RESEARCH CENTER
Oregon Health & Science University
Sponsored Projects Administration O	0690 SW Bancroft Street	Portland	OR	97239	237083114	501c(3)	$32,000	CLINICAL RESEARCH
OSF Saint Francis Medical Center
420 NE Glen Oak Avenue	0690 SW Bancroft Street	Peoria	IL	61637	370662569	501c(3)	$60,901	CLINICAL RESEARCH CENTER
Pennsylvania State University
College of Medicine		Hershey	PA	17033	246000376	IRC 115	$95,008	CLINICAL RESEARCH CENTER
Philadelphia Health & Education Corp (Drexel Unive
3201 Arch Street	Office of Research Affairs H138	Philadelphia	PA	19104	232979433	501c(3)	$75,574	CLINICAL RESEARCH CENTER
Providence Alaska Medical Center
4045 Lake Otis Pkwy 209	Suite 420	Anchorage	AK	99508	920016429	501c(3)	$64,282	CLINICAL RESEARCH CENTER
Rainbow Babies & Children's Hospital
11100 Euclid Avenue		Cleveland	OH	441066006	341567805	501c(3)	$35,073	CLINICAL RESEARCH
Regents of the University of Colorado at Denver
Grants and Contracts Mail Stop F42		Aurora	CO	80045	846000555	501c(3)	$26,002	ADHERENCE
Regents of the University of Colorado at Denver
Grants and Contracts Mail Stop F42	Anschutz Medical Campus Bldg 500	Aurora	CO	80045	846000555	501c(3)	$23,201	ACADEMIC ADVISORY AWARD
Regents of the University of Colorado at Denver
Grants and Contracts Mail Stop F42	Anschutz Medical Campus Bldg 500	Aurora	CO	80045	846000555	501c(3)	$270,879	CLINICAL RESEARCH CENTER
Regents of the University of Colorado at Denver
Grants and Contracts Mail Stop F42	Anschutz Medical Campus Bldg 500	Aurora	CO	80045	846000555	501c(3)	$550,454	CLINICAL RESEARCH
Regents of the University of Colorado at Denver
Grants and Contracts Mail Stop F42	Anschutz Medical Campus Bldg 500	Aurora	CO	80045	846000555	501c(3)	$1,436,711	CLINICAL RESEARCH STUDY
Research Foundation of SUNY on behalf of Univ at
402 Crofts Hall	Anschutz Medical Campus Bldg 500	Buffalo	NY	142607016	141368361	501c(3)	$27,000	ADHERENCE
Research Foundation of SUNY on behalf of Univ at
402 Crofts Hall	University at Buffalo	Buffalo	NY	142607016	141368361	501c(3)	$116,524	CLINICAL RESEARCH
Research Foundation of SUNY on behalf of Upstate M
PO Box 9	University at Buffalo	Albany	NY	122010009	141368361	501c(3)	$288,463	CLINICAL RESEARCH CENTER
Rosalind Franklin University of Medicine and Scien
Green Bay Road		North Chicago	IL	60064	362181973	501c(3)	$398,400	DRUG DISCOVERY AWARD
Rutgers The State University of New Jersey
3 Rutgers Plaza		New Brunswick	NJ	08901	462354111	501c(3)	$68,974	CLINICAL RESEARCH CENTER
Sanford Children's Specialty Clinic
1305 W 18th Street		Sioux Falls	SD	571175039	460447693	501c(3)	$73,759	CLINICAL RESEARCH CENTER
Seattle Children's Hospital
4800 Sand Point Way NE		Seattle	WA	98105	910564748	501c(3)	$4,285,469	CLINICAL RESEARCH CENTER
Seattle Children's Hospital
4800 Sand Point Way NE		Seattle	WA	98105	910564748	501c(3)	$7,783,869	CLINICAL RESEARCH
Seattle Children's Hospital
4800 Sand Point Way NE		Seattle	WA	98105	910564748	501c(3)	$1,497,699	CLINICAL RESEARCH STUDY
Seton Healthcare Dell Children's
4900 Mueller Blvd		Austin	TX	78723	741109643	501c(3)	$163,188	CLINICAL RESEARCH CENTER
Spectrum Health Foundation
100 Michigan Street NE MC004	DCMC Administration 3rd Floor	Grand Rapids	MI	49503	382752328	501c(3)	$142,872	CLINICAL RESEARCH CENTER
St Louis University
3500 Lindell Blvd		St Louis	MO	63103	430654872	501c(3)	$20,143	ACADEMIC ADVISORY AWARD
St Louis University
3500 Lindell Blvd		St Louis	MO	63103	430654872	501c(3)	$170,656	CLINICAL RESEARCH CENTER
St Luke's Regional Medical Center
100 East Idaho		Boise	ID	83712	820161600	501c(3)	$92,092	CLINICAL RESEARCH CENTER
Texas Tech University Health Sciences Center
3601 4th Street Stop 6540	Suite 200	Lubbock	TX	79430	752668014	IRC 115	$137,265	DRUG DISCOVERY AWARD
The Children's Hospital of Philadelphia
3516 Civic Center Blvd		Philadelphia	PA	191044318	231352166	501c(3)	$228,868	CLINICAL RESEARCH CENTER
The Children's Hospital of Philadelphia
34th and Civic Center Boulevard		Philadelphia	PA	19104	231352166	501c(3)	$296,930	CLINICAL RESEARCH STUDY
The Children's Mercy Hospital
2401 Gillham Road		Kansas City	MO	61408	440605373	501c(3)	$190,902	CLINICAL RESEARCH CENTER
The Feinstein Institute for Medical Research
350 Community Drive		Manhasset	NY	11030	112673595	501c(3)	$162,227	CLINICAL RESEARCH CENTER
The General Hospital Corporation (Massachusetts Ge
PO Box 414876		Boston	MA	022414876	042697983	501c(3)	$170,542	DRUG DISCOVERY AWARD
The General Hospital Corporation (Massachusetts Ge
PO Box 414876		Boston	MA	022414876	042697983	501c(3)	$93,517	CLINICAL RESEARCH CENTER
The General Hospital Corporation (Massachusetts Ge
PO Box 414876		Boston	MA	022414876	042697983	501c(3)	$230,250	CLINICAL RESEARCH STUDY
The Hitchcock Foundation
One Medical Center Drive		Lebanon	NH	03756	020222139	501c(3)	$209,644	CLINICAL RESEARCH CENTER
The Johns Hopkins University
600 N Wolfe Street Park 316		Baltimore	MD	21205	520595110	501c(3)	$26,549	ADHERENCE
The Johns Hopkins University
600 N Wolfe Street Park 316		Baltimore	MD	21205	520595110	501c(3)	$23,092	ACADEMIC ADVISORY AWARD
The Johns Hopkins University
600 N Wolfe Street Park 316		Baltimore	MD	21205	520595110	501c(3)	$291,600	DRUG DISCOVERY AWARD
The Johns Hopkins University
600 N Wolfe Street Park 316		Baltimore	MD	21205	520595110	501c(3)	$520,010	CLINICAL RESEARCH CENTER
The Johns Hopkins University
600 N Wolfe Street Park 316		Baltimore	MD	21205	520595110	501c(3)	$115,277	CLINICAL RESEARCH
The Johns Hopkins University
600 N Wolfe Street Park 316		Baltimore	MD	21205	520595110	501c(3)	$1,137,963	CLINICAL RESEARCH STUDY
The Medical College of Wisconsin
8701 Watertown Plk Rd		Milwaukee	WI	53226	390806261	501c(3)	$165,493	CLINICAL RESEARCH CENTER
The Rector and Visitors of the University of Virgi
Office of Sponsored Programs		Charlottesville	VA	229044195	546001796	501c(3)	$171,796	CLINICAL RESEARCH CENTER
The Regents of the University of California San D
9500 Gilman Drive	PO Box 400195	La Jolla	CA	920930984	956006144	501c(3)	$366,735	DRUG DISCOVERY AWARD
The Regents of the University of California San D
9500 Gilman Drive		La Jolla	CA	920930984	956006144	501c(3)	$81,729	CLINICAL RESEARCH CENTER
The Regents of The University of Michigan
3003 South State Street		Ann Arbor	MI	481091274	386006309	501c(3)	$25,450	ADHERENCE
The Regents of The University of Michigan
3003 South State Street	Room 1044	Ann Arbor	MI	481091274	386006309	501c(3)	$199,417	CLINICAL RESEARCH CENTER
The Regents of The University of Michigan
3003 South State Street	Room 1044	Ann Arbor	MI	481091274	386006309	501c(3)	$457,074	CLINICAL RESEARCH STUDY
The Regents of the University of Minnesota
Sponsored Projects Administration	Room 1044	Minneapolis	MN	554552070	416007513	501c(3)	$30,460	ACADEMIC ADVISORY AWARD
The Regents of the University of Minnesota
Sponsored Projects Administration	200 Oak Street SE Suite 450	Minneapolis	MN	554552070	416007513	501c(3)	$221,785	CLINICAL RESEARCH CENTER
The Regents of the University of Minnesota
Sponsored Projects Administration	200 Oak Street SE Suite 450	Minneapolis	MN	554552070	416007513	501c(3)	$49,441	CLINICAL RESEARCH
The Research Institute at Nationwide Children's Ho
700 Childrens Drive	200 Oak Street SE Suite 450	Columbus	OH	43205	316056230	501c(3)	$37,594	DRUG DISCOVERY AWARD
The Research Institute at Nationwide Children's Ho
700 Childrens Drive		Columbus	OH	43205	316056230	501c(3)	$149,792	CLINICAL RESEARCH CENTER
The Research Institute at Nationwide Children's Ho
700 Childrens Drive		Columbus	OH	43205	316056230	501c(3)	$43,806	CLINICAL RESEARCH
The Scripps Research Institute
10666 North Torrey Pines Road		La Jolla	CA	92037	330435954	501c(3)	$318,042	DRUG DISCOVERY AWARD
The Toledo Hospital
2142 N Cove Blvd		Toledo	OH	43606	344428256	501c(3)	$114,507	CLINICAL RESEARCH CENTER
The Trustees of Columbia University in the City of
PO Box 29789		New York	NY	100879789	135598093	501c(3)	$123,239	DRUG DISCOVERY AWARD
The Trustees of Columbia University in the City of
PO Box 29789	General Post Office	New York	NY	100879789	135598093	501c(3)	$130,075	CLINICAL RESEARCH CENTER
The University of Alabama at Birmingham
1530 3rd Ave S THT422	General Post Office	Birmingham	AL	352940006	636005396	501c(3)	$27,000	ADHERENCE
The University of Alabama at Birmingham
1530 3rd Ave S THT422		Birmingham	AL	352940006	636005396	501c(3)	$56,760	ACADEMIC ADVISORY AWARD
The University of Alabama at Birmingham
1530 3rd Ave S THT422		Birmingham	AL	352940006	636005396	501c(3)	$2,127,390	DRUG DISCOVERY AWARD
The University of Alabama at Birmingham
1530 3rd Ave S THT422		Birmingham	AL	352940006	636005396	501c(3)	$361,573	CLINICAL RESEARCH CENTER
The University of Alabama at Birmingham
1530 3rd Ave S THT422		Birmingham	AL	352940006	636005396	501c(3)	$100,769	CLINICAL RESEARCH
The University of Chicago
University Research Administration		Chicago	IL	60637	362177139	501c(3)	$25,772	ACADEMIC ADVISORY AWARD
The University of Iowa
Office of Vice President for Resear	970 E 58th Street	Iowa City	IA	52242	426004813	501c(3)	$1,199,848	DRUG DISCOVERY AWARD
The University of Iowa
Office of Vice President for Resear	Division of Sponsored Programs	Iowa City	IA	52242	426004813	501c(3)	$218,284	CLINICAL RESEARCH CENTER
The University of Iowa
Office of Vice President for Resear	Division of Sponsored Programs	Iowa City	IA	52242	426004813	501c(3)	$8,592	CLINICAL RESEARCH
The University of North Carolina at Chapel Hill
300 Bynum Hall	Division of Sponsored Programs	Chapel Hill	NC	275994100	566001393	501c(3)	$23,929	ACADEMIC ADVISORY AWARD
The University of North Carolina at Chapel Hill
300 Bynum Hall	CB 4100	Chapel Hill	NC	275994100	566001393	501c(3)	$1,844,892	DRUG DISCOVERY AWARD
The University of North Carolina at Chapel Hill
300 Bynum Hall	CB 4100	Chapel Hill	NC	275994100	566001393	501c(3)	$411,549	CLINICAL RESEARCH CENTER
The University of North Carolina at Chapel Hill
300 Bynum Hall	CB 4100	Chapel Hill	NC	275994100	566001393	501c(3)	$269,128	CLINICAL RESEARCH
The University of North Carolina at Chapel Hill
300 Bynum Hall	CB 4100	Chapel Hill	NC	275994100	566001393	501c(3)	$111,721	CLINICAL RESEARCH STUDY
The University of Utah
201 S Presidents Circle	CB 4100	Salt Lake City	UT	84112	876000525	501c(3)	$191,981	CLINICAL RESEARCH CENTER
The University of Utah
201 S Presidents Circle	Room 406	Salt Lake City	UT	84112	876000525	501c(3)	$573,237	CLINICAL RESEARCH STUDY
The University of Vermont and State Agricultural C
Grant and Contract Administrative S	Room 406	Burlington	VT	05405	030179440	501c(3)	$154,787	CLINICAL RESEARCH CENTER
Trustees of Dartmouth College
Dartmouth Medical School	223 Waterman Bldg	Hanover	NH	037551404	020222111	501c(3)	$91,000	CLINICAL RESEARCH STUDY
Trustees of Indiana University
Financial Management Services	Dept of Microbiology and Immunolog	Indianapolis	IN	462666057	356001673	501c(3)	$373,377	CLINICAL RESEARCH CENTER
Trustees of Indiana University
Financial Management Services	PO Box 66057	Indianapolis	IN	462666057	356001673	501c(3)	$33,857	CLINICAL RESEARCH
Trustees of the University of Pennsylvania
133 South 36th Street Mezzanine	PO Box 66057	Philadelphia	PA	191043246	231352685	501c(3)	$59,477	CLINICAL RESEARCH CENTER
University at Buffalo Pediatric Associates
239 Bryant Street		Buffalo	NY	14222	161238821	501c(3)	$27,000	ADHERENCE
University at Buffalo Pediatric Associates
239 Bryant Street	2nd Floor	Buffalo	NY	14222	161238821	501c(3)	$213,200	ACADEMIC ADVISORY AWARD
University at Buffalo Pediatric Associates
239 Bryant Street	2nd Floor	Buffalo	NY	14222	161238821	501c(3)	$10,815	CLINICAL RESEARCH
University Hospitals of Cleveland
2074 Abingdon Road	2nd Floor	Cleveland	OH	44106	340714775	501c(3)	$54,000	ADHERENCE
University of Arkansas for Medical Sciences
4301 West Markham Street		Little Rock	AR	72205	716046242	501c(3)	$87,674	CLINICAL RESEARCH CENTER
University of Florida
123 Grinter Hall	Mail Slot 555	Gainesville	FL	32611	596002052	IRC 115	$138,168	CLINICAL RESEARCH CENTER
University of Kansas Medical Center Research Insti
3901 Rainbow Boulevard		Kansas City	KS	661607702	481108830	501c(3)	$27,000	ADHERENCE
University of Kansas Medical Center Research Insti
3901 Rainbow Boulevard		Kansas City	KS	661607702	481108830	501c(3)	$73,953	CLINICAL RESEARCH CENTER
University of Kentucky Research Foundation
337 Peterson		Lexington	KY	405060005	616033693	501c(3)	$157,518	CLINICAL RESEARCH CENTER
University of Massachusetts Medical School
55 Lake Avenue North		Worcester	MA	01655	043167352	IRC 115	$72,598	CLINICAL RESEARCH CENTER
University of Miami
PO Box 025405		Miami	FL	331025405	590624458	501c(3)	$32,400	ADHERENCE
University of Miami
PO Box 025405		Miami	FL	331025405	590624458	501c(3)	$166,919	CLINICAL RESEARCH CENTER
University of Nebraska Medical Center
985100 Nebraska Medical Center		Omaha	NE	681985190	470491233	501c(3)	$101,698	CLINICAL RESEARCH CENTER
University of Oklahoma Health Sciences Center
PO Box 26901		Oklahoma City	OK	73190	736017987	501c(3)	$90,995	CLINICAL RESEARCH CENTER
University of Pittsburgh
350 Thackeray Hall		Pittsburgh	PA	15260	250965591	501c(3)	$391,062	DRUG DISCOVERY AWARD
University of Pittsburgh
350 Thackeray Hall		Pittsburgh	PA	15260	250965591	501c(3)	$282,751	CLINICAL RESEARCH CENTER
University of Pittsburgh
350 Thackeray Hall		Pittsburgh	PA	15260	250965591	501c(3)	$229,288	CLINICAL RESEARCH
University of Puerto Rico Medical Sciences Campus
201 Boulevard Del Valle		San Juan	PR	00901	660433762	N/A	$94,880	DRUG DISCOVERY AWARD
University of Rochester
Box 649		Rochester	NY	14642	160743209	501c(3)	$164,456	CLINICAL RESEARCH CENTER
University of Rochester- Department of Pediatrics
166 Washington Avenue	601 Elmwood Avenue	Batavia	NY	14020	160743209	501c(3)	$40,888	CLINICAL RESEARCH
University of South Alabama
Admin Bldg 362		Mobile	AL	36688	630477348	501c(3)	$108,000	DRUG DISCOVERY AWARD
University of Southern California
Department of Contracts Grants		Los Angeles	CA	90033	951642394	501c(3)	$44,670	CLINICAL RESEARCH CENTER
University of Tennessee
62 S Dunlap	1540 Alcazar Street CHP-100	Memphis	TN	38163	626001636	IRC 115	$131,270	CLINICAL RESEARCH CENTER
University of Washington
Office of Sponsored Programs		Seattle	WA	981056692	916001537	IRC 115	$89,465	ACADEMIC ADVISORY AWARD
University of Washington
4333 Brooklyn Avenue NE Box 359472	4333 Brooklyn Avenue NE	Seattle	WA	981959472	916001537	IRC 115	$133,549	DRUG DISCOVERY AWARD
University of Washington
Office of Sponsored Programs		Seattle	WA	981056692	916001537	IRC 115	$184,585	CLINICAL RESEARCH CENTER
University of Washington
Office of Sponsored Programs	4333 Brooklyn Avenue NE	Seattle	WA	981056692	916001537	IRC 115	$38,130	CLINICAL RESEARCH STUDY
UT Southwestern Medical Center at Dallas
5323 Harry Hines Boulevard	4333 Brooklyn Avenue NE	Dallas	TX	753909105	756002868	IRC 115	$620,392	DRUG DISCOVERY AWARD
UT Southwestern Medical Center at Dallas
5323 Harry Hines Boulevard		Dallas	TX	753909105	756002868	IRC 115	$231,735	CLINICAL RESEARCH CENTER
Vanderbilt University
PO Box 30195		Nashville	TN	372410195	620476822	501c(3)	$183,591	CLINICAL RESEARCH CENTER
Via Christi Regional Medical Center Inc
707 N Emporia		Wichita	KS	67214	481172106	501c(3)	$58,644	CLINICAL RESEARCH CENTER
Virginia Commonwealth University
Box 2506 - VCU Station		Richmond	VA	232842506	546001758	501c(3)	$32,400	ADHERENCE
Virginia Commonwealth University
Box 2506 - VCU Station		Richmond	VA	232842506	546001758	501c(3)	$71,950	CLINICAL RESEARCH CENTER
Virginia Commonwealth University
Box 2506 - VCU Station		Richmond	VA	232842506	546001758	501c(3)	$37,800	CLINICAL RESEARCH STUDY
Wake Forest University Health Sciences
Medical Center Blvd		WinstonSalem	NC	271571064	223849199	501c(3)	$54,000	CLINICAL RESEARCH CENTER
Washington University
660 S Euclid Avenue		St Louis	MO	63110	430653611	501c(3)	$274,447	CLINICAL RESEARCH CENTER
Washington University
660 S Euclid Avenue		St Louis	MO	63110	430653611	501c(3)	$14,407	CLINICAL RESEARCH
Wayne State University
Grants Contracts Office III		Detroit	MI	48201	383028425	501c(3)	$190,901	CLINICAL RESEARCH CENTER
West Virginia University Research Corporation
WVU	Research and Sponsored Programs	Morgantown	WV	265066001	550665758	501c(3)	$26,987	ADHERENCE
West Virginia University Research Corporation
WVU	One Waterfront Place	Morgantown	WV	265066001	550665758	501c(3)	$151,540	CLINICAL RESEARCH CENTER
Yale University
47 College Street Suite 203	One Waterfront Place	New Haven	CT	065208047	060646973	501c(3)	$62,786	CLINICAL RESEARCH CENTER
Cystic Fibrosis Foundation - Headquarters
6931 Arlington Road Suite 200	PO Box 208047	Bethesda	MD	20814	131930701	501c(3)	$3,180,372,057	GENERAL SUPPORT

Field	Value	IRS element (for citing)
Total501c3 Org	96	Total501c3OrgCnt
Total Other Org	4	TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PROCEDURES FOR MONITORING GRANT FUNDS INSIDE OF THE U.S.	FormAndLineReferenceDesc
Explanation	PART 1, LINE 2 THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANT FUNDS AWARDED TO ENTITIES INSIDE OF THE US. SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO ENSURE PROGRESS HAS BEEN ATTAINED. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLES OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTIONS.	ExplanationTxt

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Compensation Committee	Yes (X)	CompensationCommitteeInd
Independent Consultant	Yes (X)	IndependentConsultantInd
Form990 Of Other Organizations	Yes (X)	Form990OfOtherOrganizationsInd
Written Employment Contract	Yes (X)	WrittenEmploymentContractInd
Compensation Survey	Yes (X)	CompensationSurveyInd
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	false	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	Yes (true)	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	false	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	false	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	false	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	false	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	false	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	Yes (true)	AnyNonFixedPaymentsInd
Initial Contract Exception	false	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (9 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Bonus Related OrganizationsBonusRelatedOrganizationsAmt	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
ROBERT J BEALL PHD
PRESIDENT AND CEO	$200,570	$399,993	$114,924	$233,330	$8,060	$16,814	$58,825	$145,953	$0	$19,255	$382,379	$815,345	$32,057	$65,086
PRESTON W CAMPBELL MD
EXEC VP OF MEDICAL AFFAIRS	$133,626	$261,919	$74,524	$151,307	$5,775	$19,649	$40,216	$108,170	$0	$26,436	$254,141	$567,481	$23,599	$47,912
C RICHARD MATTINGLY
EXEC VP AND COO	$0	$399,981	$0	$222,762	$0	$23,012	$0	$173,105	$0	$16,161	$0	$835,021	$0	$72,377
VERA H TWIGG
EXEC VP & CFO	$0	$300,886	$0	$139,087	$0	$21,930	$0	$59,013	$0	$26,436	$0	$547,352	$0	$30,185
BRUCE MARSHALL MD
SR. VP OF CLINICAL AFFAIRS	$321,697	$0	$82,560	$0	$3,564	$0	$31,520	$0	$600	$0	$439,941	$0	$0	$0
MARTIN MENSE PHD
PRINCIPAL SCIENTIST DRUG DISC	$175,295	$0	$33,165	$0	$556	$0	$21,028	$0	$25,230	$0	$255,274	$0	$0	$0
THEODORE TORPHY PHD
HEAD OF RESEARCH STRATEGY	$228,800	$0	$0	$0	$0	$0	$0	$0	$0	$0	$228,800	$0	$0	$0
HERMANN BIHLER PHD
SENIOR SCIENTIST	$141,837	$0	$8,973	$0	$419	$0	$13,417	$0	$0	$0	$164,646	$0	$0	$0
FENG LIANG PHD
SENIOR SCIENTIST	$125,364	$0	$11,433	$0	$380	$0	$12,458	$0	$25,478	$0	$175,113	$0	$0	$0

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc

ExplanationExplanationTxt

SUPPLEMENTAL NONQUALIFIED RETIREMENT PLAN

Part I, Line 4b: Certain persons listed in Form 990, Part VII, Section A participate in a nonqualified deferred compensation plan, under which interests are forfeited by the participant if the participant voluntarily terminates employment prior to the designated vesting date. Further information about the nonqualified deferred compensation plan in which those persons participate is provided in the additional information for Schedule J, Part II, below. Part I, Line 7: Several individuals listed in Form 990, Part VII, Section A, line 1a, (who are identified in Part II, below) participated in an Incentive Compensation Plan, from which non-fixed payments not described in lines 5 and 6 were paid. The Plan is sponsored by CFF, a related organization. The individuals participate by virtue of being officers of CFF. However, if an individual also is an officer of CFFT and receives compensation from CFFT, a portion of the individual's award is paid by CFFT. The Incentive Compensation Plan pays non-fixed payments subject to, and based on, the achievement of annual performance objectives established in advance by the Compensation Committee. In addition, the Incentive Compensation Plan pays non-fixed payments that relate to a three-year performance period, subject to, and based on, the achievement of long-term performance objectives established in advance by the Compensation Committee. Any financial performance objectives established under the Incentive Compensation Plan do not include program-related revenues (such as royalty streams, lump-sum payments, other program-related income, and sales proceeds from transfer of the foregoing to third parties) related to the development and approval of CF drugs.

COMPENSATION

Part II: Cystic Fibrosis Foundation Therapeutics, Inc. (A) Name: R. Beall, Ph.D.; (B)(i) Base Compensation: base salary - $192,980, 401(k) bonus - $7,590; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $59,767, long-term incentive plan payment, which was previously reported (6) - $32,057, long-term incentive plan treatment award (3) - $23,100; (B)(iii) Other Reportable Compensation: health insurance benefit - $1,559, automobile allowance - $2,376, other benefits - $4,125 (C) Deferred Compensation: long-term incentive plan benefit (6) - $26,485, SERP (4) - $32,340; (D) Nontaxable Benefits: $0 Cystic Fibrosis Foundation - Headquarters. EIN 13-1930701. (A) Name: R. Beall, Ph.D.; (B)(i) Base Compensation: base salary - $384,583, 401(k) bonus - $15,410; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $121,344, long-term incentive plan payment, which was previously reported (6) - $65,086, long-term incentive plan treatment award (3) - $46,900; (B)(iii) Other Reportable Compensation: health insurance benefit - $3,165, automobile allowance - $4,824, other benefits - $8,825; (C) Deferred Compensation: retirement benefit (2) - $26,520, long-term incentive plan benefit (6) - $53,773, SERP (4) - $65,660; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $12,031, employee contribution to flexible spending account benefit - $2,500, employee contribution to general organization health plan benefit - $4,724 Cystic Fibrosis Foundation Therapeutics, Inc. EIN 91-2059167. (A) Name: P. Campbell, M.D.; (B)(i) Base Compensation: base salary - $133,626; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $34,426, long-term incentive plan payment, which was previously reported (6) - $23,599, long-term incentive plan treatment award (3) - $16,500; (B)(iii) Other Reportable Compensation: Section 457(b) Plan (5) - $5,775; (C) Deferred Compensation: long-term incentive plan benefit (6) - $19,258, SERP (4) - $20,958; (D) Nontaxable Benefits: $0 Cystic Fibrosis Foundation - Headquarters. EIN 13-1930701. (A) Name: P. Campbell, M.D.; (B)(i) Base Compensation: base salary - $261,919; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $69,894, long-term incentive plan payment, which was previously reported (6) - $47,912, long-term incentive plan treatment award (3) - $33,500; (B)(iii) Other Reportable Compensation: other benefits including taxable general organization group term life insurance premium - $7,924, Section 457(b) Plan (5) - $11,725; (C) Deferred Compensation: retirement benefit (2) - $26,520, long-term incentive plan benefit (6) - $39,099, SERP (4) - $42,551; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $17,053, employee contribution to flexible spending account benefit - $2,500, employee contribution to general organization health plan benefit - $6,883 Cystic Fibrosis Foundation - Headquarters. EIN 13-1930701. (A) Name: R. Mattingly; (B)(i) Base Compensation: base salary - $399,981; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $100,385, long-term incentive plan payment, which was previously reported (6) - $72,377, long-term incentive plan treatment award (3) - $50,000; (B)(iii) Other Reportable Compensation: Section 457(b) Plan (5) - $17,500; other benefits including taxable general organization group term life insurance premium - $5,512; (C) Deferred Compensation: retirement benefit (2) - $26,520, long-term incentive plan benefit (6) - $58,531, SERP (4) - $88,054; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $10,760, employee contribution to flexible spending account benefit - $1,600, employee contribution to general organization health plan benefit - $3,801 Cystic Fibrosis Foundation - Headquarters. EIN 13-1930701. (A) Name: V. Twigg; (B)(i) Base Compensation: base salary - $300,886; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $73,902, long-term incentive plan payment, which was previously reported (6) - $30,185, long-term incentive plan treatment award (3) - $35,000; (B)(iii) Other Reportable Compensation: other benefits including taxable general organization group term life insurance premium - $4,430, Section 457(b) Plan (5) - $17,500; (C) Deferred Compensation: retirement benefit (2) - $26,520, long-term incentive plan benefit (6) - $27,386, SERP (4) - $5,107; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $17,053, employee contribution to flexible spending account benefit - $2,500, employee contribution to general organization health plan benefit - $6,883 (1) This is an award subject to, and based on, achievement of annual performance standards established in advance by the Compensation Committee of the CFF Board. Any financial performance objectives established under the Incentive Compensation Plan do not include program-related revenues (such as royalty streams, lump-sum payments, other program-related income, and sales proceeds from transfer of the foregoing to third parties) related to the development and approval of CF drugs. (2) This is the employer contribution made under the Cystic Fibrosis Foundation 401(k) Plan for the 2014 Plan Year. (3) This is an award under a plan sponsored by CFF, a related organization, which pays a specified dollar amount only if and when the FDA approves certain pre-specified types of therapies. In the event the employee terminates employment prior to FDA approval of the specified therapy type and payment of the award, the employee will forfeit his or her right to receive payment, unless termination is due to retirement or disability. The plan will terminate on December 31, 2018 unless CFF determines to extend the plan. (4) The SERP is sponsored by CFF, a related organization. The executive participates by virtue of being an officer of CFF. However, both CFFT and CFF make contributions on the executive's behalf if the executive receives compensation from CFFT (as an officer of CFFT) and from CFF (as an officer of CFF). A. This is an unvested employer contribution to the SERP. B. SERP interests are forfeited by the participant if the participant voluntarily terminates employment prior to attaining the vesting date designated by CFF (which is either a specified age or date, depending on the participant). C. SERP interests are held in a trust subject to the claims of CFF's bankruptcy creditors. In the event of a CFF bankruptcy, participants would become general unsecured creditors of CFF. D. The SERP is a nonqualified deferred compensation plan. This means that participants do not receive the tax benefits available to participants in tax qualified retirement plans. For example, under current law, interests under SERPs are reportable as taxable compensation when they become vested, even if those amounts are not yet payable to the participant (and even if those amounts are never paid to the participant). E. The SERP's design was reviewed and opined upon as reasonable by an independent compensation consultant. SERP contribution amounts were determined by an independent actuary. F. CFF retains the right to amend or terminate the SERP at any time. (5) The 457(b) Plan is sponsored by CFF, a related organization. The executive participates by virtue of being an officer of CFF. However, both CFFT and CFF make contributions on the executive's behalf if the executive receives compensation from CFFT (as an officer of CFFT) and from CFF (as an officer of CFF). A. This is a vested contribution to the 457(b) Plan for the reporting period. B. In the event of a CFF bankruptcy, participants are general unsecured creditors of CFF. C. Distributions from the 457(b) Plan may not be rolled-over to an IRA or qualified plan (but may only be rolled-over to another 457(b) plan). D. The 457(b) Plan's design was reviewed and opined upon as reasonable by an independent compensation consultant. An independent actuary developed the contribution formula pursuant to which 457(b) contribution amounts are determined. Contributions to the 457(b) Plan are subject to annual IRS limits (currently $17,500). E. CFF retains the right to amend or terminate the 457(b) Plan at any time. (6) This Plan provides for awards that relate to a three-year performance period, subject to, and based on, achievement of performance objectives established in advance by the Compensation Committee of the Board of Trustees of CFF, a related entity. The individuals participate by virtue of being officers of CFF. However, if an individual also is an officer of CFFT and receives compensation from CFFT, a portion of the individual's award is paid by CFFT. Any financial performance objectives established under the Incentive Compensation Plan do not include program-related revenues (such as royalty streams, lump-sum payments, other

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (7 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
GOVERNING BODY APPOINTMENTS	Part VI, Section A, Line 7a (Page 6 Core Form) The majority of the Organization's board members are designated by the Board of Trustees of the Cystic Fibrosis Foundation. The others are ex_officio, appointed to the Board by the Bylaws.
REVIEW OF 990 BY GOVERNING BODY	Part VI, Section B, Line 11b (Page 6 Core Form) The Organization's Board of Directors receives a draft of the Form 990 prior to its being filed, with sufficient time for review and comment allowed. The Organization's ERISA attorneys review the executive compensation sections of the Form 990 to ensure completeness and accuracy. The Audit Committee also reviews the Form 990 as part of its chartered responsibilities. In all cases the Cystic Fibrosis Foundation Therapeutics Board of Directors received a complete copy of the final Form 990 before it is filed.
CONFLICT OF INTEREST MONITORING	Part VI, Section B, Line 12c (Page 6 Core Form) A conflict of interest disclosure statement is completed annually by each Board member and officer. As required within the bylaws, any potential conflicts of interest must be reported to the Board as they arise. When any matter is deemed a potential conflict of interest and requires action by the Board of Directors, the interested director or officer is required to retire from the room in which the Board is meeting, may not participate in the final deliberation of the matter, and may not vote on the matter. The Organization enforced the policy during 2014 and had no conflicts of interest as defined by the policy.
DETERMINING COMPENSATION	Part VI - Section B - Line 15a and 15b The total compensation of executives at the Organization is specifically designed to attract and retain the highest qualified executive and medical talent to fulfill the critically important mission of curing cystic fibrosis and providing all people with the disease the opportunity to lead full, productive lives. Cystic Fibrosis Foundation Therapeutics, Inc. shares officers with Cystic Fibrosis Foundation, a related organization. The independent Compensation Committee of the CF Foundation's Board of Trustees follows the process described in the IRS intermediate sanctions rules when determining compensation for executives of the Organization. Specifically, the Committee: (1)Is composed entirely of non-employee volunteer directors who have no familial, business or significant personal relationships with the Organization or its executives. (2)Assesses the short-term and long-term contribution and performance of each executive in meeting very definitive and quantifiable objectives focused on the Organization's mission success. (3)Engages an independent compensation consulting firm to compile appropriate comparability data (including compensation market information for peers with whom the Organization competes for executive talent) for Committee reliance. The Committee meets with representatives of the consulting firm to review this data in detail. (4)Reviews all elements of each executive's total compensation, including but not limited to base salary, bonuses, perquisites, fringe benefits, and incentive and deferred compensation arrangements. Upon the executive's hire, and at each point in time thereafter at which a new or revised compensation arrangement is under consideration with respect to the executive, the Committee meets with its independent compensation consulting firm before the arrangement is implemented to evaluate the reasonableness of the arrangement by comparing both the arrangement itself and the executive's entire compensation package to compensation packages paid by similarly situated organizations for functionally comparable positions. (5)Documents, concurrently with its determination, the basis for its determination in the minutes of its meeting. These minutes are reviewed, revised if necessary and approved at the following meeting of the Committee. (6)Obtains a written legal opinion concerning the Committee's compliance with the IRS intermediate sanctions rules. The process described above was used to establish compensation for the following officers of the organization: President & CEO Executive Vice President, COO and Secretary Executive Vice President for Medical Affairs Executive Vice President & CFO The process was last undertaken in 2014.
PUBLIC INSPECTION	Part VI, Section C, Line 19 (Page 6 Core Form) The Form 1023 for the Organization was available on its website, CFF.org, and the Organization's website provides a direct link to its Form 990 on Guidestar.org. CFFT's governing documents (Bylaws and Articles of Incorporation) are available upon request by contacting the Organization in writing or by phone. Information on how to obtain the governing documents is available on the website, www.cff.org/Research/CFFT. The Board and Officer Conflict of Interest Policy and the audited consolidated financial statements are available on the website, www.cff.org/Research/CFFT/financialstatements.
COMPENSATION OF OFFICERS, DIRECTORS, TRUSTEES, ETC	PART VII, SECTION A NAME AND TITLE JASON M. ARYEH, DIRECTOR AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED NOT APPLICABLE POSITION INDIVIDUAL DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE JONATHAN COHN, M.D., DIRECTOR AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED NOT APPLICABLE POSITION INDIVIDUAL DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE CATHERINE C. MCLOUD, DIRECTOR AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 11 HRS POSITION INDIVIDUAL DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE D. PAUL FLESSNER, DIRECTOR AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED NOT APPLICABLE POSITION INDIVIDUAL DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE STEVEN SHAK, M.D., DIRECTOR AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 6 HRS POSITION INDIVIDUAL DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE ROBERT J. BEALL, PH.D., PRES/CEO AVG HRS WORKED 20 HRS AVG HRS WORKED - RELATED 40 HRS POSITION INDIVIDUAL DIRECTOR & OFFICER REPORTABLE COMP FROM THE ORG 323,554 REPORTABLE COMP FROM RELATED ORG 650,137 EST. AMT OF OTHER COMP FROM THE ORG 224,033 NAME AND TITLE PRESTON W. CAMPBELL, M.D., EXEC VP OF MEDICAL AFFAIRS AVG HRS WORKED 20 HRS AVG HRS WORKED - RELATED 40 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG 213,925 REPORTABLE COMP FROM RELATED ORG 432,875 EST. AMT OF OTHER COMP FROM THE ORG 174,822 NAME AND TITLE C. RICHARD MATTINGLY EXEC VP, COO AND SECRETARY AVG HRS WORKED 5 HRS AVG HRS WORKED - RELATED 55 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG 645,755 EST. AMT OF OTHER COMP FROM THE ORG 189,266 NAME AND TITLE VERA H. TWIGG, EXEC VP & CFO AVG HRS WORKED 5 HRS AVG HRS WORKED - RELATED 55 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG 461,903 EST. AMT OF OTHER COMP FROM THE ORG 85,449 NAME AND TITLE BRUCE MARSHALL, M.D., SR. VP OF CLINICAL AFFAIRS AVG HRS WORKED 50 HRS AVG HRS WORKED - RELATED NOT APPLICABLE POSITION HIGHEST COMPENSATED EMPLOYEE REPORTABLE COMP FROM THE ORG 407,821 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 32,120 NAME AND TITLE MARTIN MENSE, PH.D., PRINCIPAL SCIENTIST DRUG DISCOVERY AVG HRS WORKED 50 HRS AVG HRS WORKED - RELATED NOT APPLICABLE POSITION HIGHEST COMPENSATED EMPLOYEE REPORTABLE COMP FROM THE ORG 209,016 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 46,258 NAME AND TITLE THEODORE TORPHY, PH.D. HEAD OF RESEARCH STRATEGY AVG HRS WORKED 16 HRS AVG HRS WORKED - RELATED NOT APPLICABLE POSITION HIGHEST COMPENSATED EMPLOYEE REPORTABLE COMP FROM THE ORG 228,800 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE HERMANN BIHLER, PH.D., SENIOR SCIENTIST AVG HRS WORKED 50 HRS AVG HRS WORKED - RELATED NOT APPLICABLE POSITION HIGHEST COMPENSATED EMPLOYEE REPORTABLE COMP FROM THE ORG 151,229 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 13,417 NAME AND TITLE FENG LIANG, PH.D., SR SCIENTIST AVG HRS WORKED 50 HRS AVG HRS WORKED - RELATED NOT APPLICABLE POSITION HIGHEST COMPENSATED EMPLOYEE REPORTABLE COMP FROM THE ORG 137,177 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 37,936 TOTAL REPORTABLE COMP FROM THE ORG 1,671,522 TOTAL REPORTABLE COMP FROM RELATED ORG 2,190,670 TOTAL EST. AMT OF OTHER COMP FROM THE ORG 803,301
PROCEEDS OF SALE OF INTANGIBLE RIGHTS UNDER DRUG DISCOVERY AGREEMENT	PART VIII, LINE 2C In its research program, CFFT retains legal and beneficial rights to intellectual property developed under certain scientific grants and drug discovery agreements. Program revenues received under these agreements are recorded when earned. In addition, at times CFFT may transfer intangible rights under certain of these agreements in exchange for a lump sum. Amounts received under these agreements are recorded when rights are forfeited and proceeds are due to CFFT. In November 2014, CFFT entered into an agreement to transfer its intangible rights to future revenues under a drug discovery agreement. Net program revenue from the transaction was $3,274,431,963.

Schedule R IRS990ScheduleR

Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp (2 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	EINEIN	Primary ActivitiesPrimaryActivitiesTxt	Legal Domicile StateLegalDomicileStateCd	Exempt Code SectionExemptCodeSectionTxt	Public Charity StatusPublicCharityStatusTxt	Business Name Line1DirectControllingEntityName/BusinessNameLine1Txt	Controlled OrganizationControlledOrganizationInd
CYSTIC FIBROSIS FOUNDATION-HEADQUARTERS
6931 ARLINGTON RD	bethesda	MD	20814	131930701	research	DE	501(c)(3)	7	na	false
CYSTIC FIBROSIS FOUNDATION - GROUP
6931 ARLINGTON RD	BETHESDA	MD	20814	136161105	EDUCATION	DE	501(c)(3)	7	CFF-HQ	false

Field	Value	IRS element (for citing)
Receipt Of Int Annts Rnts Rylts	false	ReceiptOfIntAnntsRntsRyltsInd
Gift Grnt Or Cap Contri To Oth Org	Yes (true)	GiftGrntOrCapContriToOthOrgInd
Gift Grnt Cap Contri From Oth Org	false	GiftGrntCapContriFromOthOrgInd
Loans Or Guarantees To Other Org	false	LoansOrGuaranteesToOtherOrgInd
Loans Or Guarantees From Oth Org	false	LoansOrGuaranteesFromOthOrgInd
Div Related Organization	false	DivRelatedOrganizationInd
Asset Sale To Other Org	false	AssetSaleToOtherOrgInd
Asset Purchase From Other Org	false	AssetPurchaseFromOtherOrgInd
Asset Exchange	false	AssetExchangeInd
Rental Of Facilities To Oth Org	false	RentalOfFacilitiesToOthOrgInd
Rental Of Fclts From Oth Org	false	RentalOfFcltsFromOthOrgInd
Perform Of Services For Oth Org	false	PerformOfServicesForOthOrgInd
Perform Of Services By Other Org	false	PerformOfServicesByOtherOrgInd
Sharing Of Facilities	Yes (true)	SharingOfFacilitiesInd
Paid Employees Sharing	Yes (true)	PaidEmployeesSharingInd
Reimbursement Paid To Other Org	false	ReimbursementPaidToOtherOrgInd
Reimbursement Paid By Other Org	false	ReimbursementPaidByOtherOrgInd
Transfer To Other Org	false	TransferToOtherOrgInd
Transfer From Other Org	false	TransferFromOtherOrgInd

Transactions Related Org TransactionsRelatedOrgGrp (3 entries)

Transaction TypeTransactionTypeTxt	InvolvedInvolvedAmt	Method Of Amount DeterminationMethodOfAmountDeterminationTxt
Cystic fibrosis foundation - headquarters
B	$3,180,372,057	FMV
Cystic fibrosis foundation - headquarters
N	$1,330,603	COST
Cystic fibrosis foundation - headquarters
O	$3,615,373	COST