HANNAHS HOPE FOR GIANT AXONAL NEUROPATHY INC: Form 990, tax year 2012

View the entire original 990 at ProPublica ↗

Organization: HANNAHS HOPE FOR GIANT AXONAL NEUROPATHY INC (EIN 45-0593226)
Tax period: 2012-01-01 to 2012-12-31
Filed: 2013-11-15
IRS object ID: 201333199349303058
Schema version: 2012v2.0
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule D
Schedule F
Schedule G
Schedule I
Schedule O

Return header ReturnHeader

Field	Value	IRS element (for citing)
Timestamp	2013-11-15T07:52:01-08:00	Timestamp
Tax Period End Date	2012-12-31	TaxPeriodEndDate

Preparer Firm PreparerFirm

Preparer Firm Business Name PreparerFirmBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	Abbott Frenyea & Russell	BusinessNameLine1

Preparer Firm US Address PreparerFirmUSAddress

Field	Value	IRS element (for citing)
Address Line1	134 Boynton Ave	AddressLine1
City	Plattsburgh	City
State	NY	State
ZIP Code	129011237	ZIPCode

Field	Value	IRS element (for citing)
Return Type	990	ReturnType
Tax Period Begin Date	2012-01-01	TaxPeriodBeginDate

Filer Filer

Field	Value	IRS element (for citing)
EIN	450593226	EIN

Name Name

Field	Value	IRS element (for citing)
Business Name Line1	HANNAHS HOPE FOR GIANT AXONAL	BusinessNameLine1
Business Name Line2	NEUROPATHY INC	BusinessNameLine2

Field	Value	IRS element (for citing)
Name Control	HANN	NameControl
Phone	5185635008	Phone

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	PO BOX 206	AddressLine1
City	MORRISONVILLE	City
State	NY	State
ZIP Code	12962	ZIPCode

Officer Officer

Field	Value	IRS element (for citing)
Name	CARRIE FAVARO	Name
Title	President	Title
Date Signed	2013-11-15	DateSigned
Authorize Third Party	true	AuthorizeThirdParty

Preparer Preparer

Field	Value	IRS element (for citing)
Name	HOLLY A MORROW	Name
PTIN	P00067534	PTIN
Phone	5185617030	Phone

Field	Value	IRS element (for citing)
Tax Year	2012	TaxYear
Build TS	2016-02-25 16:41:14Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Gross Receipts	633849	GrossReceipts
Group Return For Affiliates	false	GroupReturnForAffiliates
All Affiliates Included	false	AllAffiliatesIncluded
Organization501c3	X	Organization501c3
Web Site	HANNAHSHOPEFUND.ORG	WebSite
Type Of Organization Corporation	X	TypeOfOrganizationCorporation
Year Formation	2008	YearFormation
State Legal Domicile	NY	StateLegalDomicile
Activity Or Mission Description	DEDICATED TO FUNDING RESEARCH FOR A TREATMENT AND/OR A CURE FOR GIANT AXONAL NEUROPATHY.	ActivityOrMissionDescription
Nbr Voting Members Governing Body	10	NbrVotingMembersGoverningBody
Nbr Independent Voting Members	8	NbrIndependentVotingMembers
Total Nbr Employees	2	TotalNbrEmployees
Total Nbr Volunteers	75	TotalNbrVolunteers
Total Gross UBI	0	TotalGrossUBI
Contributions Grants Prior Year	335546	ContributionsGrantsPriorYear
Contributions Grants Current Year	628350	ContributionsGrantsCurrentYear
Program Service Revenue CY	0	ProgramServiceRevenueCY
Investment Income Prior Year	3878	InvestmentIncomePriorYear
Investment Income Current Year	3182	InvestmentIncomeCurrentYear
Other Revenue Prior Year	201359	OtherRevenuePriorYear
Other Revenue Current Year	-31721	OtherRevenueCurrentYear
Total Revenue Prior Year	540783	TotalRevenuePriorYear
Total Revenue Current Year	599811	TotalRevenueCurrentYear
Grants And Similar Amnts Prior Year	357001	GrantsAndSimilarAmntsPriorYear
Grants And Similar Amnts CY	1381693	GrantsAndSimilarAmntsCY
Benefits Paid To Members CY	0	BenefitsPaidToMembersCY
Salaries Etc Prior Year	51473	SalariesEtcPriorYear
Salaries Etc Current Year	77760	SalariesEtcCurrentYear
Total Prof Fundrsng Exp CY	0	TotalProfFundrsngExpCY
Total Fundrsng Exp Current Year	4512	TotalFundrsngExpCurrentYear
Other Expense Prior Year	76745	OtherExpensePriorYear
Other Expenses Current Year	86523	OtherExpensesCurrentYear
Total Expenses Prior Year	485219	TotalExpensesPriorYear
Total Expenses Current Year	1545976	TotalExpensesCurrentYear
Revenues Less Expenses Prior Year	55564	RevenuesLessExpensesPriorYear
Revenues Less Expenses CY	-946165	RevenuesLessExpensesCY
Total Assets BOY	1690681	TotalAssetsBOY
Total Assets EOY	1297783	TotalAssetsEOY
Total Liabilities BOY	221510	TotalLiabilitiesBOY
Total Liabilities EOY	751827	TotalLiabilitiesEOY
Net Assets Or Fund Balances BOY	1469171	NetAssetsOrFundBalancesBOY
Net Assets Or Fund Balances EOY	545956	NetAssetsOrFundBalancesEOY
Mission Description	DEDICATED TO FUNDING RESEARCH FOR A TREATMENT AND/OR A CURE FOR GIANT AXONAL NEUROPATHY.	MissionDescription
Significant New Program Services	false	SignificantNewProgramServices
Significant Change	false	SignificantChange
Expense	1524903	Expense
Description	GRANTS TO FUND GAN GENE THERAPY TRANSDUCTION TO NEURONS RESEARCH TO IMPACT DISEASE PROGRESSION.	Description
Total Program Service Expense	1524903	TotalProgramServiceExpense
Described In501 C3	true	DescribedIn501C3
Schedule B Required	true	ScheduleBRequired
Political Activities	false	PoliticalActivities
Lobbying Activities	false	LobbyingActivities
Subject To Proxy Tax	false	SubjectToProxyTax
Donor Advised Funds	false	DonorAdvisedFunds
Conservation Easements	false	ConservationEasements
Collections Of Art	false	CollectionsOfArt
Credit Counseling	false	CreditCounseling
Term Or Permanent Endowments	false	TermOrPermanentEndowments
Report Land Bldg Equip	true	ReportLandBldgEquip
Report Invest Oth Securities	false	ReportInvestOthSecurities
Report Prog Rel Invest	false	ReportProgRelInvest
Report Other Assets	false	ReportOtherAssets
Report Other Liabilities	false	ReportOtherLiabilities
Report Fin48 Footnote	false	ReportFin48Footnote
Independent Audit Financial Stmt	true	IndependentAuditFinancialStmt
Consolidated Audit Financial Stmt	false	ConsolidatedAuditFinancialStmt
School	false	School
Foreign Office	false	ForeignOffice
Foreign Activities	false	ForeignActivities
More Than5000 K To Organizations	true	MoreThan5000KToOrganizations
More Than5000 K To Individuals	false	MoreThan5000KToIndividuals
Professional Fundraising	false	ProfessionalFundraising
Fundraising Activities	true	FundraisingActivities
Gaming	false	Gaming
Hospital	false	Hospital
Grants To Organizations	true	GrantsToOrganizations
Grants To Individuals	false	GrantsToIndividuals
Schedule J Required	false	ScheduleJRequired
Tax Exempt Bonds	false	TaxExemptBonds
Invest Tax Exempt Bonds	false	InvestTaxExemptBonds
Escrow Account	false	EscrowAccount
On Behalf Of Issuer	false	OnBehalfOfIssuer
Excess Benefit Transaction	false	ExcessBenefitTransaction
Prior Excess Benefit Transaction	false	PriorExcessBenefitTransaction
Loan To Officer Or DQP	false	LoanToOfficerOrDQP
Grant To Related Person	false	GrantToRelatedPerson
Bsnss Rltnshp With Organization	false	BsnssRltnshpWithOrganization
Bsnss Rltnshp Thru Family Member	false	BsnssRltnshpThruFamilyMember
Officer Entity With Bsnss Rltnshp	false	OfficerEntityWithBsnssRltnshp
Deductible Non Cash Contributions	false	DeductibleNonCashContributions
Deductible Contributions Of Art	false	DeductibleContributionsOfArt
Terminated	false	Terminated
Partial Liquidation	false	PartialLiquidation
Disregarded Entity	false	DisregardedEntity
Related Entity	false	RelatedEntity
Related Org Controlled Entity	false	RelatedOrgControlledEntity
Transaction Related Entity	false	TransactionRelatedEntity
Transfers To Exempt Non Chrtbl Org	false	TransfersToExemptNonChrtblOrg
Activities Conducted Partnership	false	ActivitiesConductedPartnership
Schedule O Required	true	ScheduleORequired
Number Forms Transmitted With1096	1	NumberFormsTransmittedWith1096
Number W2 G Included	0	NumberW2GIncluded
Compliance With Backup Witholding	true	ComplianceWithBackupWitholding
Number Of Employees	2	NumberOfEmployees
Employment Tax Returns Filed	true	EmploymentTaxReturnsFiled
Unrelated Business Income	false	UnrelatedBusinessIncome
Form990-T Filed	false	Form990-TFiled
Foreign Financial Account	false	ForeignFinancialAccount
Prohibited Tax Shelter Trans	false	ProhibitedTaxShelterTrans
Taxable Party Notification	false	TaxablePartyNotification
Non Deductible Contributions	false	NonDeductibleContributions
Quid Pro Quo Contributions	false	QuidProQuoContributions
Form8282 Property Disposed Of	false	Form8282PropertyDisposedOf
Number Of8282 Filed	0	NumberOf8282Filed
Funds To Pay Premiums	false	FundsToPayPremiums
Premiums Paid	false	PremiumsPaid
Form8899 Filed	false	Form8899Filed
Form1098 C Filed	false	Form1098CFiled
Excess Business Holdings	false	ExcessBusinessHoldings
Taxable Distributions	false	TaxableDistributions
Distribution To Donor	false	DistributionToDonor
Filed Lieu1041	false	FiledLieu1041
Licensed More Than One State	false	LicensedMoreThanOneState
Indoor Tanning Services	false	IndoorTanningServices
Info In Schedule O Part VI	X	InfoInScheduleOPartVI
Nbr Voting Governing Body Members	10	NbrVotingGoverningBodyMembers
Number Independent Voting Members	8	NumberIndependentVotingMembers
Family Or Business Relationship	true	FamilyOrBusinessRelationship
Delegation Of Management Duties	false	DelegationOfManagementDuties
Changes To Organizing Docs	false	ChangesToOrganizingDocs
Material Diversion Or Misuse	false	MaterialDiversionOrMisuse
Members Or Stockholders	false	MembersOrStockholders
Election Of Board Members	false	ElectionOfBoardMembers
Decisions Subject To Approval	false	DecisionsSubjectToApproval
Minutes Of Governing Body	true	MinutesOfGoverningBody
Minutes Of Committees	true	MinutesOfCommittees
Officer Mailing Address	true	OfficerMailingAddress
Local Chapters	false	LocalChapters
Form990 Provided To Governing Body	true	Form990ProvidedToGoverningBody
Conflict Of Interest Policy	true	ConflictOfInterestPolicy
Annual Disclosure Covered Persons	true	AnnualDisclosureCoveredPersons
Regular Monitoring Enforcement	true	RegularMonitoringEnforcement
Whistleblower Policy	false	WhistleblowerPolicy
Document Retention Policy	false	DocumentRetentionPolicy
Compensation Process CEO	false	CompensationProcessCEO
Compensation Process Other	false	CompensationProcessOther
Investment In Joint Venture	false	InvestmentInJointVenture
States Where Copy Of Return Is Filed	NY	StatesWhereCopyOfReturnIsFiled
Upon Request	X	UponRequest

The Books Are In Care Of TheBooksAreInCareOf

Field	Value	IRS element (for citing)
Name Person	LORI SAMES	NamePerson
Telephone Number	5182755359	TelephoneNumber

Address US AddressUS

Field	Value	IRS element (for citing)
Address Line1	19 BLUE JAY WAY	AddressLine1
City	REXFORD	City
State	NY	State
ZIP Code	12148	ZIPCode

Form990 Part VII Section A Form990PartVIISectionA (10 entries)

TitleTitle	Average Hours Per WeekAverageHoursPerWeek	Average Hours Per Week RelatedAverageHoursPerWeekRelated	Reportable Comp From OrganizationReportableCompFromOrganization	Reportable Comp From Related OrgsReportableCompFromRelatedOrgs	Other CompensationOtherCompensation	Individual Trustee Or DirectorIndividualTrusteeOrDirector	OfficerOfficer
TODD SILAIKA
Director	0.00	0.00	0	0	0
ERIKA LIGUORI
Director	0.00	0.00	0	0	0	X
LORI SAMES
Executive Direc	40.00	0.00	47376	0	0	X
JOSEPH KAKATY
Director	0.00	0.00	0	0	0	X
BETH HAIG
Secretary	0.00	0.00	0	0	0	X	X
MIKE ELLIS
Director	0.00	0.00	0	0	0	X
SCOTT DAVIDOFF ESQ
Director	0.00	0.00	0	0	0	X
KAREN ARMSTRONG
Treasurer	0.00	0.00	0	0	0	X	X
CARRIE FAVARO
President	0.00	0.00	0	0	0	X	X
MATT SAMES
Director	0.00	0.00	0	0	0	X

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	47376	TotalReportableCompFromOrg
Number Individuals GT100 K	0	NumberIndividualsGT100K
Formers Listed	false	FormersListed
Total Comp GT150 K	false	TotalCompGT150K
Compensation From Other Sources	false	CompensationFromOtherSources
Number Of Contractors GT100 K	0	NumberOfContractorsGT100K
Fundraising Events	234591	FundraisingEvents
All Other Contributions	393759	AllOtherContributions
Total Contributions	628350	TotalContributions
Total Program Service Revenue	0	TotalProgramServiceRevenue

Investment Income InvestmentIncome

Field	Value	IRS element (for citing)
Total Revenue Column	3182	TotalRevenueColumn
Exclusion	$3,182	ExclusionAmount

Income From Invest Bond Proceeds IncomeFromInvestBondProceeds

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Royalties Revenue RoyaltiesRevenue

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Net Rental Income Or Loss NetRentalIncomeOrLoss

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Net Gain Or Loss Investments NetGainOrLossInvestments

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Field	Value	IRS element (for citing)
Cntrbtns Rprtd Fundraising Events	234591	CntrbtnsRprtdFundraisingEvents
Fundraising Direct Expenses	34038	FundraisingDirectExpenses

Net Income From Fundraising Events NetIncomeFromFundraisingEvents

Field	Value	IRS element (for citing)
Total Revenue Column	-34038	TotalRevenueColumn
Exclusion	-$34,038	ExclusionAmount

Net Income From Gaming NetIncomeFromGaming

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Net Income Or Loss NetIncomeOrLoss

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Other Revenue Misc OtherRevenueMisc

Field	Value	IRS element (for citing)
Description	OTHER INCOME	Description
Total Revenue Column	2317	TotalRevenueColumn
Related Or Exempt Function Income	2317	RelatedOrExemptFunctionIncome

Field	Value	IRS element (for citing)
Total Other Revenue	2317	TotalOtherRevenue

Total Revenue TotalRevenue

Field	Value	IRS element (for citing)
Total Revenue Column	599811	TotalRevenueColumn
Related Or Exempt Function Income	2317	RelatedOrExemptFunctionIncome
Exclusion	-$30,856	ExclusionAmount

Grants To Domestic Orgs GrantsToDomesticOrgs

Field	Value	IRS element (for citing)
Total	1352553	Total
Program Services	1352553	ProgramServices

Grants To Domestic Individuals GrantsToDomesticIndividuals

Field	Value	IRS element (for citing)
Total	0	Total

Foreign Grants ForeignGrants

Field	Value	IRS element (for citing)
Total	29140	Total
Program Services	29140	ProgramServices

Benefits To Members BenefitsToMembers

Field	Value	IRS element (for citing)
Total	0	Total

Comp Current Officers Directors CompCurrentOfficersDirectors

Field	Value	IRS element (for citing)
Total	47376	Total
Program Services	47376	ProgramServices

Comp Disqual Persons CompDisqualPersons

Field	Value	IRS element (for citing)
Total	0	Total

Other Salaries And Wages OtherSalariesAndWages

Field	Value	IRS element (for citing)
Total	24960	Total
Program Services	21216	ProgramServices
Management And General	3744	ManagementAndGeneral

Pension Plan Contributions PensionPlanContributions

Field	Value	IRS element (for citing)
Total	0	Total

Other Employee Benefits OtherEmployeeBenefits

Field	Value	IRS element (for citing)
Total	0	Total

Payroll Taxes PayrollTaxes

Field	Value	IRS element (for citing)
Total	5424	Total
Program Services	4610	ProgramServices
Management And General	814	ManagementAndGeneral

Fees For Services Management FeesForServicesManagement

Field	Value	IRS element (for citing)
Total	1800	Total
Program Services	1530	ProgramServices
Management And General	270	ManagementAndGeneral

Fees For Services Legal FeesForServicesLegal

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Accounting FeesForServicesAccounting

Field	Value	IRS element (for citing)
Total	6000	Total
Program Services	5100	ProgramServices
Management And General	900	ManagementAndGeneral

Fees For Services Lobbying FeesForServicesLobbying

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Invst Mgmnt Fees FeesForServicesInvstMgmntFees

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Other FeesForServicesOther

Field	Value	IRS element (for citing)
Total	0	Total

Advertising Advertising

Field	Value	IRS element (for citing)
Total	330	Total
Fundraising	330	Fundraising

Office Expenses OfficeExpenses

Field	Value	IRS element (for citing)
Total	0	Total

Information Technology InformationTechnology

Field	Value	IRS element (for citing)
Total	0	Total

Royalties Royalties

Field	Value	IRS element (for citing)
Total	0	Total

Occupancy Occupancy

Field	Value	IRS element (for citing)
Total	0	Total

Travel Travel

Field	Value	IRS element (for citing)
Total	0	Total

Travel Entrtnmnt Public Officials TravelEntrtnmntPublicOfficials

Field	Value	IRS element (for citing)
Total	0	Total

Conferences Meetings ConferencesMeetings

Field	Value	IRS element (for citing)
Total	56280	Total
Program Services	47838	ProgramServices
Management And General	8442	ManagementAndGeneral

Interest Interest

Field	Value	IRS element (for citing)
Total	270	Total
Program Services	230	ProgramServices
Management And General	40	ManagementAndGeneral

Payments To Affiliates PaymentsToAffiliates

Field	Value	IRS element (for citing)
Total	0	Total

Depreciation Depletion DepreciationDepletion

Field	Value	IRS element (for citing)
Total	370	Total
Program Services	315	ProgramServices
Management And General	55	ManagementAndGeneral

Insurance Insurance

Field	Value	IRS element (for citing)
Total	4259	Total
Program Services	3620	ProgramServices
Management And General	639	ManagementAndGeneral

Other Expenses OtherExpenses (4 entries)

DescriptionDescription	TotalTotal	Program ServicesProgramServices	FundraisingFundraising	Management And GeneralManagementAndGeneral
SUPPLIES	2153	1981	172
BANK CHARGES	2703	2298		405
COMPUTER EXPENSES	2797	2377		420
DONATED GIFTS	4010		4010

All Other Expenses AllOtherExpenses

Field	Value	IRS element (for citing)
Total	5551	Total
Program Services	4719	ProgramServices
Management And General	832	ManagementAndGeneral

Total Functional Expenses TotalFunctionalExpenses

Field	Value	IRS element (for citing)
Total	1545976	Total
Program Services	1524903	ProgramServices
Management And General	16561	ManagementAndGeneral
Fundraising	4512	Fundraising

Cash Non Interest Bearing CashNonInterestBearing

Field	Value	IRS element (for citing)
BOY	146455	BOY
EOY	405362	EOY

Savings And Temp Cash Investments SavingsAndTempCashInvestments

Field	Value	IRS element (for citing)
BOY	1484575	BOY
EOY	840838	EOY

Pledges And Grants Receivable PledgesAndGrantsReceivable

Field	Value	IRS element (for citing)
BOY	55300	BOY
EOY	50000	EOY

Accounts Receivable AccountsReceivable

Field	Value	IRS element (for citing)
EOY	0	EOY

Receivables From Officers Etc ReceivablesFromOfficersEtc

Field	Value	IRS element (for citing)
EOY	0	EOY

Receivables From Disqual Persons ReceivablesFromDisqualPersons

Field	Value	IRS element (for citing)
EOY	0	EOY

Other Notes Loans Receivable Net OtherNotesLoansReceivableNet

Field	Value	IRS element (for citing)
EOY	0	EOY

Inventories For Sale Or Use InventoriesForSaleOrUse

Field	Value	IRS element (for citing)
EOY	0	EOY

Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges

Field	Value	IRS element (for citing)
EOY	0	EOY

Field	Value	IRS element (for citing)
Land Buildings Equipment Basis	6356	LandBuildingsEquipmentBasis
Land Bldg Equipment Accum Deprec	4773	LandBldgEquipmentAccumDeprec

Land Buildings Equipment Basis Net LandBuildingsEquipmentBasisNet

Field	Value	IRS element (for citing)
BOY	341	BOY
EOY	1583	EOY

Investments Pub Traded Securities InvestmentsPubTradedSecurities

Field	Value	IRS element (for citing)
EOY	0	EOY

Investments Other Securities InvestmentsOtherSecurities

Field	Value	IRS element (for citing)
EOY	0	EOY

Investments Program Related InvestmentsProgramRelated

Field	Value	IRS element (for citing)
EOY	0	EOY

Intangible Assets IntangibleAssets

Field	Value	IRS element (for citing)
EOY	0	EOY

Other Assets Total OtherAssetsTotal

Field	Value	IRS element (for citing)
BOY	4010	BOY
EOY	0	EOY

Total Assets TotalAssets

Field	Value	IRS element (for citing)
BOY	1690681	BOY
EOY	1297783	EOY

Grants Payable GrantsPayable

Field	Value	IRS element (for citing)
BOY	221510	BOY
EOY	751827	EOY

Total Liabilities TotalLiabilities

Field	Value	IRS element (for citing)
BOY	221510	BOY
EOY	751827	EOY

Field	Value	IRS element (for citing)
Follow SFAS117	X	FollowSFAS117

Unrestricted Net Assets UnrestrictedNetAssets

Field	Value	IRS element (for citing)
BOY	1469171	BOY
EOY	545956	EOY

Total Net Assets Fund Balances TotalNetAssetsFundBalances

Field	Value	IRS element (for citing)
BOY	1469171	BOY
EOY	545956	EOY

Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances

Field	Value	IRS element (for citing)
BOY	1690681	BOY
EOY	1297783	EOY

Field	Value	IRS element (for citing)
Reconcilation Revenue Expenses	-946165	ReconcilationRevenueExpenses
Reconcilation Prior Adjustment	22950	ReconcilationPriorAdjustment
Method Of Accounting Accrual	X	MethodOfAccountingAccrual
Accountant Compile Or Review	false	AccountantCompileOrReview
FS Audited	true	FSAudited

FS Audited Basis FSAuditedBasis

Field	Value	IRS element (for citing)
Financial Statement Separate	X	FinancialStatementSeparate

Field	Value	IRS element (for citing)
Audit Committee	false	AuditCommittee
Federal Grant Audit Required	false	FederalGrantAuditRequired

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Publicly Supported Org509a2	X	PubliclySupportedOrg509a2

Gifts Grants Contrib Received509 GiftsGrantsContribReceived509

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	511661	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	671680	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	1735534	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	405599	CurrentTaxYearMinus1Year
Current Tax Year	628350	CurrentTaxYear
Total	3952824	Total

Gross Receipts From Admissions GrossReceiptsFromAdmissions

Field	Value	IRS element (for citing)
Total	0	Total

Gross Receipts From Non UBI GrossReceiptsFromNonUBI

Field	Value	IRS element (for citing)
Total	0	Total

Tax Rev Levied For Org Benefit509 TaxRevLeviedForOrgBenefit509

Field	Value	IRS element (for citing)
Total	0	Total

Value Of Svcs Fclts Furnishd By Govt ValueOfSvcsFcltsFurnishdByGovt

Field	Value	IRS element (for citing)
Total	0	Total

Total509 Total509

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	511661	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	671680	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	1735534	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	405599	CurrentTaxYearMinus1Year
Current Tax Year	628350	CurrentTaxYear
Total	3952824	Total

Amts Recd From Disqual Persons AmtsRecdFromDisqualPersons

Field	Value	IRS element (for citing)
Total	0	Total

Amts From Subst Contributors AmtsFromSubstContributors

Field	Value	IRS element (for citing)
Total	0	Total

Field	Value	IRS element (for citing)
Public Support Total509	3952824	PublicSupportTotal509

Gross Investment Income509 GrossInvestmentIncome509

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	259	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	1617	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	3430	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	3878	CurrentTaxYearMinus1Year
Current Tax Year	3182	CurrentTaxYear
Total	12366	Total

Post1975 UBTI Post1975UBTI

Field	Value	IRS element (for citing)
Total	0	Total

Investment Income And UBTI InvestmentIncomeAndUBTI

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	259	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	1617	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	3430	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	3878	CurrentTaxYearMinus1Year
Current Tax Year	3182	CurrentTaxYear
Total	12366	Total

Net Income From Other UBI NetIncomeFromOtherUBI

Field	Value	IRS element (for citing)
Total	0	Total

Other Income509 OtherIncome509

Field	Value	IRS element (for citing)
Current Tax Year Minus1 Year	205890	CurrentTaxYearMinus1Year
Current Tax Year	2317	CurrentTaxYear
Total	208207	Total

Total Support Total TotalSupportTotal

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	511920	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	673297	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	1738964	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	615367	CurrentTaxYearMinus1Year
Current Tax Year	633849	CurrentTaxYear
Total	4173397	Total

Field	Value	IRS element (for citing)
Public Support Percentage509	0.94710	PublicSupportPercentage509
Investment Income Percentage	0.00300	InvestmentIncomePercentage
Thirty Three Percnt Tests CY509	X	ThirtyThreePercntTestsCY509

Schedule B IRS990ScheduleB

Contributor Info ContributorInfo

Field	Value	IRS element (for citing)
Contributor Number	RESTRICTED	ContributorNumber

Contributor Name Business ContributorNameBusiness

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor Address US ContributorAddressUS

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Aggregate Contributions	RESTRICTED	AggregateContributions

Schedule D IRS990ScheduleD

Equipment Equipment

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	6356	OtherCostOrOtherBasis
Depreciation	4773	Depreciation
Book Value	1583	BookValue

Field	Value	IRS element (for citing)
Total Of Book Value Land Buildings	1583	TotalOfBookValueLandBuildings
Tot Revenue Etc Audited Fincl Stmt	599811	TotRevenueEtcAuditedFinclStmt
Revenue Subtotal	599811	RevenueSubtotal
Total Revenue Per Form990	599811	TotalRevenuePerForm990
Tot Expenses Etc Audited Fincl Stmt	1545976	TotExpensesEtcAuditedFinclStmt
Expenses Subtotal	1545976	ExpensesSubtotal
Total Expenses Per Form990	1545976	TotalExpensesPerForm990

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	true	GrantRecordsMaintained

Grants To Orgs Outside US GrantsToOrgsOutsideUS

Field	Value	IRS element (for citing)
Region	FRANCE	Region
Purpose Of Grant	RESEARCH	PurposeOfGrant
Amount Of Cash Grant	29140	AmountOfCashGrant
Manner Of Cash Disbursement	WIRE TRANSFE	MannerOfCashDisbursement
Method Of Valuation	FMV	MethodOfValuation

Field	Value	IRS element (for citing)
Total Number Of501c3 Orgs	1	TotalNumberOf501c3Orgs
Transfer To Foreign Corp	false	TransferToForeignCorp
Interest In Foreign Trust	false	InterestInForeignTrust
Own Foreign Corp	false	OwnForeignCorp
Passive Foreign Invest Co	false	PassiveForeignInvestCo
Foreign Partnership	false	ForeignPartnership
Boycott Countries	false	BoycottCountries

Form990 Schedule F Part V Form990ScheduleFPartV

Field	Value	IRS element (for citing)
Identifier	Grantmaker's Description of How Grants are Used in Foreign Country	Identifier
Explanation	THE ORGANIZATION RECEIVES STATUS REPORTS FROM THE INSTITUTION WHICH OUTLINE WHAT THEY WERE ABLE TO ACCOMPLISH WITH FUNDING DURING THE YEAR.	Explanation

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Agreement Ref Fundraising	false	AgreementRefFundraising

Events Information EventsInformation

Field	Value	IRS element (for citing)
Name Of Event1	HOPE AND LOVE BALL	NameOfEvent1
Gross Receipts Event1	62746	GrossReceiptsEvent1
Charitable Contributions Event1	62746	CharitableContributionsEvent1
Other Direct Expenses Event1	25817	OtherDirectExpensesEvent1
Name Of Event2	MONTANA	NameOfEvent2
Gross Receipts Event2	56651	GrossReceiptsEvent2
Charitable Contributions Event2	56651	CharitableContributionsEvent2
Total Number Of Other Events	5	TotalNumberOfOtherEvents
Gross Receipts Other Events	110557	GrossReceiptsOtherEvents
Charitable Contrib Other Events	110557	CharitableContribOtherEvents
Other Direct Expenses Other Events	8221	OtherDirectExpensesOtherEvents
Gross Receipts Total	229954	GrossReceiptsTotal
Charitable Contributions Total	229954	CharitableContributionsTotal
Other Direct Expenses Total Events	34038	OtherDirectExpensesTotalEvents
Direct Expense Summary Events	34038	DirectExpenseSummaryEvents
Net Income Summary	-34038	NetIncomeSummary

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Records Maintained	true	RecordsMaintained

Recipient Table RecipientTable (5 entries)

Address Line1AddressUS/AddressLine1	CityAddressUS/City	StateAddressUS/State	ZIP CodeAddressUS/ZIPCode	EIN Of RecipientEINOfRecipient	IRC SectionIRCSection	Amount Of Cash GrantAmountOfCashGrant	Amount Of Non Cash AssistanceAmountOfNonCashAssistance	Method Of ValuationMethodOfValuation	Purpose Of GrantPurposeOfGrant
UNIVERSITY OF NORTH CAROLINA
104 AIRPORT DRIVE SUITE 2200	CHAPEL HILL	NC	27599	566001393	501 (c) (3)	320653	0	FMV	RESEARCH
PROJECT ALS
3960 BROADWAY 4TH FLOOR	NEW YORK	NY	10032	134019464	501 (C) (3)	22800	0	FMV	RESEARCH
NORTHWESTERN UNIVERSITY
633 CLARK ST	EVANSTON	IL	60208	362167817	501 (C) (3)	80000	0	FMV	RESEARCH
MPI RESEARCH
54943 NORTH MAIN ST	MATTAWAN	MI	49071			854600	0	FMV	RESEARCH
COLUMBIA UNIVERSITY
PO BOX 29789	NEW YORK	NY	10087	135598093	501 (C) (3)	74500	0	FMV	RESEARCH

Field	Value	IRS element (for citing)
Total Nbr Of501 C3 And Govt Grants	3	TotalNbrOf501C3AndGovtGrants
Total Nbr Of Other Organizations	2	TotalNbrOfOtherOrganizations

Form990 Schedule I Part IV Form990ScheduleIPartIV

Field	Value	IRS element (for citing)
Identifier	Grantmaker's Description of How Grants are Used	Identifier
Explanation	THE TAXPAYER RECEIVES PROGRESS REPORTS AND IS ABLE TO MONITOR PROGRESS THROUGH WEBSITES.	Explanation

Schedule O IRS990ScheduleO

General Explanation GeneralExplanation (5 entries)

IdentifierIdentifier	Return ReferenceReturnReference	ExplanationExplanation
Form 990, Part VI, Line 19	Form 990, Part VI, Line 19: Other Organization Documents Publicly Available	THE FINANCIAL STATEMENTS AND FORM 990 ARE AVAILABLE FROM THE ORGANIZATION UPON REQUEST.
Form 990, Part VI, Line 12c	Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of Conflicts	THE BY-LAWS CLEARLY STATE THAT ALL DIRECTORS AND OFFICERS MUST DISCLOSE ANY POTENTIAL CONFLICTS. THE BY-LAWS STATE THAT SUCH CONFLICTS DO NOT PRECLUDE THE ORGANIZATION FROM CONTRACTING WITH RELATED COMPANIES, BUT THAT CONFLICTED BOARD MEMBERS MUST RECUSE THEMSELVES FROM DISCUSSIONS INVOLVING THEIR INTERESTS.
Form 990, Part VI, Line 11b	Form 990, Part VI, Line 11b: Form 990 Review Process	FORM 990 IS REVIEWED BY THE EXECUTIVE DIRECTOR BEFORE IT IS ELECTRONICALLY FILED.
Form 990, Part VI, Line 9	Form 990, Part VI, Line 9: Officer, Director, Trustee, Key Employee Mailing Address	KELLY OBERMEYER15 MAPLEWOOD DRIVEQUEENSBURY, NY 12804
Form 990, Part VI, Line 2	Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, Et	Director Matt Sames is married to Executive Director Lori Sames. Board President Carrie Favro is sister to Executive Director Lori Sames. Treasurer Karen Armstrong is aunt to Executive Director Lori Sames.