HANNAHS HOPE FOR GIANT AXONAL NEUROPATHY INC
Cite this
Plain text HANNAHS HOPE FOR GIANT AXONAL NEUROPATHY INC. Strategy Studio, nonprofit organization profile, tax years 2010–2024. https://strategystudio.org/org/450593226. Retrieved 2026-10-19.
APA Strategy Studio. (n.d.). HANNAHS HOPE FOR GIANT AXONAL NEUROPATHY INC [Nonprofit organization profile; tax years 2010–2024]. Retrieved October 19, 2026, from https://strategystudio.org/org/450593226
MLA “HANNAHS HOPE FOR GIANT AXONAL NEUROPATHY INC.” Strategy Studio, tax years 2010–2024, https://strategystudio.org/org/450593226. Accessed 19 Oct. 2026.
Retrieved 2026-10-19; covers tax years 2010–2024. Data: Strategy Studio, CC BY 4.0.
2024 · Form 990 · revenue $198K · expenses $538K · assets $2.9M
- Also known as
- NEUROPATHY INC
- EIN
- 45-0593226
- Address
- 19 BLUE JAY WAY, REXFORD, NY 12148-1333
- Website
- HANNAHSHOPEFUND.COM
- NTEE code
- H12
- Subsection
- 501(c)(3)
- Ruling year
- 2008
- Cross-check
- ProPublica Nonprofit Explorer
Mission
DEDICATED TO FUNDING RESEARCH FOR A TREATMENT AND/OR A CURE FOR GIANT AXONAL NEUROPATHY.
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
2 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.
| Name | Latest title | Years | Latest year pay | Total pay from here | Organizations |
|---|---|---|---|---|---|
| Lori Sames | EXECUTIVE DI | 2010-2024 | $210,279 | $1,180,458 | 1 |
| Lagenia Clark (former) | DIRECTOR | 2014-2020 | $0 | $83,323 | 1 |
Officers and directors, no compensation reported
24 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.
| Name | Latest title | Years | Hrs/wk (latest) | Compensation | Organizations |
|---|---|---|---|---|---|
| Allison T Moore | PRESIDENT | 2021-2024 | Not reported | $0 reported | 1 |
| Katie Hogan | SECRETARY | 2021-2024 | Not reported | $0 reported | 1 |
| Kathy Buckley | TREASURER | 2021-2024 | Not reported | $0 reported | 1 |
| Joseph Gerard Hacia Phd | DIRECTOR | 2021-2024 | Not reported | $0 reported | 1 |
| Christa Gagnon | DIRECTOR | 2023-2024 | Not reported | $0 reported | 1 |
| Amber N Freed | DIRECTOR | 2021-2024 | Not reported | $0 reported | 1 |
| Christa Gognon (former) | DIRECTOR | 2021-2022 | Not reported | $0 reported | 1 |
| Jeffrey Wade Harper Phd (former) | DIRECTOR | 2021 | Not reported | $0 reported | 1 |
| Carrie Favaro (former) | PRESIDENT | 2010-2020 | Not reported | $0 reported | 1 |
| Elizabeth Haig (former) | SECRETARY | 2017-2020 | Not reported | $0 reported | 1 |
| Matt Sames (former) | DIRECTOR | 2010-2020 | Not reported | $0 reported | 1 |
| Todd Silaika (former) | DIRECTOR | 2012-2020 | Not reported | $0 reported | 1 |
| Erika Liguori (former) | DIRECTOR | 2010-2020 | Not reported | $0 reported | 1 |
| Mike Ellis (former) | DIRECTOR | 2010-2020 | Not reported | $0 reported | 1 |
| Steve Eichorn (former) | TREASURER | 2016-2020 | Not reported | $0 reported | 1 |
| Beth Haig (former) | SECRETARY | 2010-2016 | 0 | $0 reported | 1 |
| Sandy Harding (former) | TREASURER | 2014-2015 | 0 | $0 reported | 1 |
| Alex Tronco (former) | DIRECTOR | 2014-2015 | 0 | $0 reported | 1 |
| Joseph Kakaty (former) | DIRECTOR | 2010-2015 | 0 | $0 reported | 1 |
| Scott Davidoff Esq (former) | Director | 2010-2013 | 0 | $0 reported | 1 |
| Karen Armstrong (former) | Treasurer | 2010-2012 | 0 | $0 reported | 1 |
| John Burke (former) | Vice President | 2010-2011 | 0 | $0 reported | 1 |
| Ritch Anthony (former) | Director | 2010 | 0 | $0 reported | 1 |
| Michael Durand (former) | Director | 2010 | 0 | $0 reported | 1 |
People by year
2024 · 7 people listed · 1 paid, $210K · 1 employee
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| LORI SAMES | EXECUTIVE DI | - | $190,500 | $0 | $19,779 | $210,279 | 1 |
| ALLISON T MOORE | PRESIDENT | - | $0 | $0 | $0 | $0 | 1 |
| KATIE HOGAN | SECRETARY | - | $0 | $0 | $0 | $0 | 1 |
| KATHY BUCKLEY | TREASURER | - | $0 | $0 | $0 | $0 | 1 |
| JOSEPH GERARD HACIA PHD | DIRECTOR | - | $0 | $0 | $0 | $0 | 1 |
| CHRISTA GAGNON | DIRECTOR | - | $0 | $0 | $0 | $0 | 1 |
| AMBER N FREED | DIRECTOR | - | $0 | $0 | $0 | $0 | 1 |
2023 · 7 people listed · 1 paid, $216K · 1 employee
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| LORI SAMES | EXECUTIVE DI | - | $190,500 | $0 | $25,953 | $216,453 | 1 |
| ALLISON T MOORE | PRESIDENT | - | $0 | $0 | $0 | $0 | 1 |
| KATIE HOGAN | SECRETARY | - | $0 | $0 | $0 | $0 | 1 |
| KATHY BUCKLEY | TREASURER | - | $0 | $0 | $0 | $0 | 1 |
| JOSEPH GERARD HACIA PHD | DIRECTOR | - | $0 | $0 | $0 | $0 | 1 |
| CHRISTA GAGNON | DIRECTOR | - | $0 | $0 | $0 | $0 | 1 |
| AMBER N FREED | DIRECTOR | - | $0 | $0 | $0 | $0 | 1 |
2022 · 7 people listed · 1 paid, $222K · 2 employees
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| LORI SAMES | EXECUTIVE DI | - | $190,600 | $0 | $31,553 | $222,153 | 1 |
| ALLISON T MOORE | PRESIDENT | - | $0 | $0 | $0 | $0 | 1 |
| KATIE HOGAN | SECRETARY | - | $0 | $0 | $0 | $0 | 1 |
| KATHY BUCKLEY | TREASURER | - | $0 | $0 | $0 | $0 | 1 |
| JOSEPH GERARD HACIA PHD | DIRECTOR | - | $0 | $0 | $0 | $0 | 1 |
| CHRISTA GOGNON | DIRECTOR | - | $0 | $0 | $0 | $0 | 1 |
| AMBER N FREED | DIRECTOR | - | $0 | $0 | $0 | $0 | 1 |
2021 · 8 people listed · none paid · 2 employees
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| ALLISON T MOORE | PRESIDENT | - | $0 | $0 | $0 | $0 | 1 |
| KATIE HOGAN | SECRETARY | - | $0 | $0 | $0 | $0 | 1 |
| KATHY BUCKLEY | TREASURER | - | $0 | $0 | $0 | $0 | 1 |
| JOSEPH GERARD HACIA PHD | DIRECTOR | - | $0 | $0 | $0 | $0 | 1 |
| CHRISTA GOGNON | DIRECTOR | - | $0 | $0 | $0 | $0 | 1 |
| JEFFREY WADE HARPER PHD | DIRECTOR | - | $0 | $0 | $0 | $0 | 1 |
| AMBER N FREED | DIRECTOR | - | $0 | $0 | $0 | $0 | 1 |
| LORI SAMES | EXECUTIVE DI | - | $0 | $0 | $0 | $0 | 1 |
2020 · 9 people listed · none paid · 2 employees
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| CARRIE FAVARO | PRESIDENT | - | $0 | $0 | $0 | $0 | 1 |
| ELIZABETH HAIG | SECRETARY | - | $0 | $0 | $0 | $0 | 1 |
| MATT SAMES | DIRECTOR | - | $0 | $0 | $0 | $0 | 1 |
| LAGENIA CLARK | DIRECTOR | - | $0 | $0 | $0 | $0 | 1 |
| TODD SILAIKA | DIRECTOR | - | $0 | $0 | $0 | $0 | 1 |
| ERIKA LIGUORI | DIRECTOR | - | $0 | $0 | $0 | $0 | 1 |
| MIKE ELLIS | DIRECTOR | - | $0 | $0 | $0 | $0 | 1 |
| STEVE EICHORN | TREASURER | - | $0 | $0 | $0 | $0 | 1 |
| LORI SAMES | EXECUTIVE DI | - | $0 | $0 | $0 | $0 | 1 |
2019 · 9 people listed · 2 paid, $107K · 2 employees
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| LORI SAMES | EXECUTIVE DI | 40 | $77,250 | $0 | $0 | $77,250 | 1 |
| LAGENIA CLARK | DIRECTOR | 20 | $29,750 | $0 | $0 | $29,750 | 1 |
| CARRIE FAVARO | PRESIDENT | 0 | $0 | $0 | $0 | $0 | 1 |
| ELIZABETH HAIG | SECRETARY | - | $0 | $0 | $0 | $0 | 1 |
| MATT SAMES | DIRECTOR | - | $0 | $0 | $0 | $0 | 1 |
| TODD SILAIKA | DIRECTOR | - | $0 | $0 | $0 | $0 | 1 |
| ERIKA LIGUORI | DIRECTOR | - | $0 | $0 | $0 | $0 | 1 |
| MIKE ELLIS | DIRECTOR | - | $0 | $0 | $0 | $0 | 1 |
| STEVE EICHORN | TREASURER | - | $0 | $0 | $0 | $0 | 1 |
2018 · 9 people listed · 2 paid, $129K · 2 employees · 150 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| LORI SAMES | EXECUTIVE DIRECTOR | 40 | $58,765 | $0 | $30,494 | $89,259 | 1 |
| LAGENIA CLARK | DIRECTOR | 20 | $17,500 | $0 | $22,371 | $39,871 | 1 |
| CARRIE FAVARO | PRESIDENT | 0 | $0 | $0 | $0 | $0 | 1 |
| ELIZABETH HAIG | SECRETARY | 0 | $0 | $0 | $0 | $0 | 1 |
| MATT SAMES | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| TODD SILAIKA | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| ERIKA LIGUORI | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| MIKE ELLIS | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| STEVE EICHORN | TREASURER | 0 | $0 | $0 | $0 | $0 | 1 |
2017 · 9 people listed · 2 paid, $79K · 1 employee · 75 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| LORI SAMES | EXECUTIVE DIRECTOR | 40 | $36,036 | $0 | $29,217 | $65,253 | 1 |
| LAGENIA CLARK | DIRECTOR | 1 | $0 | $0 | $13,702 | $13,702 | 1 |
| CARRIE FAVARO | PRESIDENT | 0 | $0 | $0 | $0 | $0 | 1 |
| ELIZABETH HAIG | SECRETARY | 0 | $0 | $0 | $0 | $0 | 1 |
| MATT SAMES | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| TODD SILAIKA | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| ERIKA LIGUORI | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| MIKE ELLIS | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| STEVE EICHORN | TREASURER | 0 | $0 | $0 | $0 | $0 | 1 |
2016 · 9 people listed · 1 paid, $58K · 1 employee · 75 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| LORI SAMES | EXECUTIVE DIRECTOR | 40 | $36,036 | $0 | $22,148 | $58,184 | 1 |
| CARRIE FAVARO | PRESIDENT | 0 | $0 | $0 | $0 | $0 | 1 |
| BETH HAIG | SECRETARY | 0 | $0 | $0 | $0 | $0 | 1 |
| MATT SAMES | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| LAGENIA CLARK | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| TODD SILAIKA | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| ERIKA LIGUORI | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| MIKE ELLIS | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| STEVE EICHORN | TREASURER | 0 | $0 | $0 | $0 | $0 | 1 |
2015 · 11 people listed · 1 paid, $55K · 1 employee · 75 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| LORI SAMES | EXECUTIVE DIRECTOR | 40 | $36,036 | $0 | $18,654 | $54,690 | 1 |
| CARRIE FAVARO | PRESIDENT | 0 | $0 | $0 | $0 | $0 | 1 |
| SANDY HARDING | TREASURER | 0 | $0 | $0 | $0 | $0 | 1 |
| BETH HAIG | SECRETARY | 0 | $0 | $0 | $0 | $0 | 1 |
| MATT SAMES | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| LAGENIA CLARK | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| ALEX TRONCO | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| TODD SILAIKA | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| ERIKA LIGUORI | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JOSEPH KAKATY | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| MIKE ELLIS | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
2014 · 11 people listed · 1 paid, $52K · 2 employees · 75 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| LORI SAMES | Executive Direc | 40 | $36,036 | $0 | $15,714 | $51,750 | 1 |
| MATT SAMES | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| CARRIE FAVARO | President | 0 | $0 | $0 | $0 | $0 | 1 |
| LAGENIA CLARK | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| ALEX TRONCO | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| TODD SILAIKA | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| SANDY HARDING | Treasurer | 0 | $0 | $0 | $0 | $0 | 1 |
| BETH HAIG | Secretary | 0 | $0 | $0 | $0 | $0 | 1 |
| ERIKA LIGUORI | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| JOSEPH KAKATY | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| MIKE ELLIS | Director | 0 | $0 | $0 | $0 | $0 | 1 |
2013 · 9 people listed · 1 paid, $47K · 2 employees · 75 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| LORI SAMES | Executive Direc | 40 | $46,801 | $0 | $0 | $46,801 | 1 |
| TODD SILAIKA | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| MATT SAMES | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| CARRIE FAVARO | President | 0 | $0 | $0 | $0 | $0 | 1 |
| SCOTT DAVIDOFF ESQ | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| MIKE ELLIS | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| BETH HAIG | Secretary | 0 | $0 | $0 | $0 | $0 | 1 |
| JOSEPH KAKATY | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| ERIKA LIGUORI | Director | 0 | $0 | $0 | $0 | $0 | 1 |
2012 · 10 people listed · 1 paid, $47K · 2 employees · 75 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| LORI SAMES | Executive Direc | 40 | $47,376 | $0 | $0 | $47,376 | 1 |
| TODD SILAIKA | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| ERIKA LIGUORI | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| JOSEPH KAKATY | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| BETH HAIG | Secretary | 0 | $0 | $0 | $0 | $0 | 1 |
| MIKE ELLIS | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| SCOTT DAVIDOFF ESQ | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| KAREN ARMSTRONG | Treasurer | 0 | $0 | $0 | $0 | $0 | 1 |
| CARRIE FAVARO | President | 0 | $0 | $0 | $0 | $0 | 1 |
| MATT SAMES | Director | 0 | $0 | $0 | $0 | $0 | 1 |
2011 · 10 people listed · 1 paid, $41K · 2 employees · 75 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| LORI SAMES | Executive Direc | 40 | $41,010 | $0 | $0 | $41,010 | 1 |
| ERIKA LIGUORI | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| JOSEPH KAKATY | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| BETH HAIG | Secretary | 0 | $0 | $0 | $0 | $0 | 1 |
| MIKE ELLIS | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| JOHN BURKE | Vice President | 0 | $0 | $0 | $0 | $0 | 1 |
| SCOTT DAVIDOFF ESQ | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| KAREN ARMSTRONG | Treasurer | 0 | $0 | $0 | $0 | $0 | 1 |
| CARRIE FAVARO | President | 0 | $0 | $0 | $0 | $0 | 1 |
| MATT SAMES | Director | 0 | $0 | $0 | $0 | $0 | 1 |
2010 · 12 people listed · none paid · 0 employees · 75 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| SCOTT DAVIDOFF ESQ | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| RITCH ANTHONY | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| MIKE ELLIS | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL DURAND | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| MATT SAMES | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| LORI SAMES | Executive Direc | 0 | $0 | $0 | $0 | $0 | 1 |
| KAREN ARMSTRONG | Treasurer | 0 | $0 | $0 | $0 | $0 | 1 |
| JOSEPH KAKATY | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| JOHN BURKE | Vice President | 0 | $0 | $0 | $0 | $0 | 1 |
| ERIKA LIGUORI | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| CARRIE FAVARO | President | 0 | $0 | $0 | $0 | $0 | 1 |
| BETH HAIG | Secretary | 0 | $0 | $0 | $0 | $0 | 1 |
Highest-paid independent contractors
No independent contractors reported.
Who the money went to
Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.
2024 · 2 grants to organizations · $84K
Listed grants add up to $83,640; the return's “grants paid” expense line says $232,248. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2023 · 5 grants to organizations · $2.7M
Listed grants add up to $2,654,298; the return's “grants paid” expense line says $5,688,811. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2022 · 1 grant to organizations · $258K
Listed grants add up to $257,904; the return's “grants paid” expense line says $273,958. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2021 · 3 grants to organizations · $110K
Listed grants add up to $109,755; the return's “grants paid” expense line says $162,778. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2020 · 3 grants to organizations · $625K
Listed grants add up to $625,102; the return's “grants paid” expense line says $635,992. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2019 · 4 grants to organizations · $225K
2018 · 3 grants to organizations · $303K
2017 · 4 grants to organizations · $254K
2016 · 4 grants to organizations · $161K
2015 · 6 grants to organizations · $844K
2014 · 5 grants to organizations · $900K
2013 · 8 grants to organizations · $806K
2012 · 5 grants to organizations · $1.4M
Listed grants add up to $1,352,553; the return's “grants paid” expense line says $1,381,693. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2011 · 2 grants to organizations · $309K
Listed grants add up to $308,941; the return's “grants paid” expense line says $357,001. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2010 · 5 grants to organizations · $560K
Listed grants add up to $560,138; the return's “grants paid” expense line says $634,738. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2024 · Form 990 | ||||||||
| $198,405 | $538,454 | $2,879,947 | $2,659,914 | $12,283 | $0 | $190,500 | 1 | - |
| 2023 · Form 990 | ||||||||
| $97,225 | $6,029,768 | $4,672,730 | $2,850,626 | $38,430 | $0 | $190,500 | 1 | - |
| 2022 · Form 990 | ||||||||
| -$717,738 | $620,035 | $8,206,230 | $8,205,137 | $30,198 | $0 | $190,600 | 2 | - |
| 2021 · Form 990 | ||||||||
| $6,718,842 | $368,597 | $9,892,144 | $9,889,851 | $118,640 | $0 | - | 2 | - |
| 2020 · Form 990 | ||||||||
| $2,147,919 | $848,319 | $3,509,536 | $3,504,552 | $135,681 | $0 | - | 2 | - |
| 2019 · Form 990 | ||||||||
| $170,920 | $437,301 | $2,205,057 | $2,204,952 | $167,078 | $0 | $107,000 | 2 | - |
| 2018 · Form 990 | ||||||||
| $1,227,266 | $468,257 | $2,483,866 | $2,475,288 | $292,829 | $0 | $76,265 | 2 | 150 |
| 2017 · Form 990 | ||||||||
| $1,378,678 | $376,562 | $1,716,279 | $1,716,279 | $349,078 | $0 | $36,036 | 1 | 75 |
| 2016 · Form 990 | ||||||||
| $322,127 | $253,667 | $714,163 | $714,163 | $321,836 | $0 | $36,036 | 1 | 75 |
| 2015 · Form 990 | ||||||||
| $908,500 | $1,004,348 | $645,703 | $645,703 | $507,886 | $0 | $36,036 | 1 | 75 |
| 2014 · Form 990 | ||||||||
| $649,001 | $1,018,387 | $741,550 | $170,116 | $710,579 | $0 | $51,750 | 2 | 75 |
| 2013 · Form 990 | ||||||||
| $1,013,768 | $1,020,222 | $1,035,803 | $539,502 | $1,040,917 | $0 | $46,801 | 2 | 75 |
| 2012 · Form 990 | ||||||||
| $599,811 | $1,545,976 | $1,297,783 | $545,956 | $628,350 | $0 | $47,376 | 2 | 75 |
| 2011 · Form 990 | ||||||||
| $540,783 | $485,219 | $1,690,681 | $1,469,171 | $335,546 | $0 | $41,010 | 2 | 75 |
| 2010 · Form 990 | ||||||||
| $1,643,798 | $687,664 | $1,503,529 | $1,413,606 | $1,452,053 | $0 | $0 | 0 | 75 |
Funders of this organization
14 grantors reported grants to this organization, $242,917 in all, tax years 2009 to 2023. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV
| Grantor | Type | Match | Years given | Grants | Total | Latest year | Latest year's amount | Grants |
|---|---|---|---|---|---|---|---|---|
| BANK OF AMERICA CHARITABLE FOUNDATION INC | Private foundation | Fuzzy filed as “HANNAHS HOPE FOR GIANT AXONAL NEUROPATHY INC” | 2012-2015, 2020 | 22 | $47,430 | 2020 | $1,200 | show |
| DENVER FOUNDATION | DAF sponsor | Exact | 2019 | 1 | $40,000 | 2019 | $40,000 | show |
| PAYPAL CHARITABLE GIVING FUND | DAF sponsor | Exact | 2019-2022 | 4 | $33,772 | 2022 | $11,594 | show |
| FORGOOD INC | DAF sponsor | Exact | 2013, 2017, 2019 | 3 | $28,776 | 2019 | $5,000 | show |
| JEWISH COMMUNAL FUND | DAF sponsor | Exact | 2009 | 1 | $25,000 | 2009 | $25,000 | show |
| DONOR ADVISED CHARITABLE GIVING | DAF sponsor | Exact | 2016-2017, 2019-2020 | 4 | $22,080 | 2020 | $5,000 | show |
| TISBEST PHILANTHROPY | DAF sponsor | Exact | 2017 | 1 | $10,000 | 2017 | $10,000 | show |
| CHARITY BRIDGE FUND | DAF sponsor | Exact | 2016 | 1 | $10,000 | 2016 | $10,000 | show |
| FIDELITY INVESTMENTS CHARITABLE GIFT FUND | DAF sponsor | Exact | 2017 | 1 | $9,500 | 2017 | $9,500 | show |
| SHELL USA COMPANY FOUNDATION | Private foundation | Fuzzy filed as “Hannahs Hope for Giant Axonal Neuropathy Inc”, “HANNAHS HOPE FOR GIANT AXONAL NEUROPATHY INC” | 2014, 2016, 2019, 2021-2022 | 5 | $5,529 | 2022 | $1,000 | show |
| MILLION DOLLAR ROUND TABLE FOUNDATION | Public charity | Exact | 2012 | 1 | $5,000 | 2012 | $5,000 | show |
| AMAZONSMILE FOUNDATION | Private foundation | Fuzzy filed as “HANNAHS HOPE FOR GIANT AXONAL NEUROPATHY INC” | 2020-2023 | 4 | $3,630 | 2023 | $708 | show |
| NATIONAL CHRISTIAN CHARITABLE FOUNDATION | DAF sponsor | Exact | 2015 | 1 | $2,000 | 2015 | $2,000 | show |
| JPMORGAN CHASE FOUNDATION | Private foundation | Fuzzy filed as “HANNAHS HOPE FOR GIANT AXONAL NEUROPATHY INC” | 2021 | 1 | $200 | 2021 | $200 | show |
Similar organizations
Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)
| Organization | State | NTEE | Latest revenue | Latest expenses | Top-paid title | Top pay | Why similar |
|---|---|---|---|---|---|---|---|
| JACKS TOMORROW INC | NY | H12 | $257,637 | $257,427 | CO-FOUNDER & PRESIDENT | $0 | Same NTEE code H12, revenue within 2x, same state, similar mission |
| FOSTER FOUNDATION INC | NY | H12 | $144,886 | $15,360 | PRES/DIR | $0 | Same NTEE code H12, revenue within 2x, same state |
| RETIRED PROFESSIONAL FIRE FIGHTERSCANCER FOUNDATION INC | NY | H12 | $150,053 | $7,065 | President | $0 | Same NTEE code H12, revenue within 2x, same state |
| CHILDRENS RARE DISORDERS FUND | NY | H12 | $126,208 | $42,555 | CEO, CO-FOUNDER | $0 | Same NTEE code H12, revenue within 2x, same state |
| MARISA FUND INC | NY | H12 | $148,251 | $137,440 | Chairman | $0 | Same NTEE code H12, revenue within 2x, same state |
| SPNY FOUNDATION INC | NY | H12 | $150,398 | $163,526 | SECRETARY | $0 | Same NTEE code H12, revenue within 2x, same state |
| EARLY DIAGNOSIS AND TREATMENT RESEARCH FOUNDATION INC | NY | H12 | $210,704 | $174,346 | PRESIDENT, TREASURER | $0 | Same NTEE code H12, revenue within 2x, same state |
| TREEN CHARITABLE EVENTS INC | NY | H12 | $116,719 | $111,301 | DIRECTORS | $0 | Same NTEE code H12, revenue within 2x, same state |
| GWEN L KOSINSKI FOUNDATION INC | NY | H12 | $211,091 | $116,972 | DIRECTOR | $0 | Same NTEE code H12, revenue within 2x, same state |
| SOLVING KIDS CANCER INC | NY | H12 | $333,401 | $649,223 | FORMER EXEC | $157,018 | Same NTEE code H12, revenue within 2x, same state |
| ENDOMETRIOSIS COLLECTIVE | NY | H12 | $344,906 | $296,957 | DIRECTOR | $0 | Same NTEE code H12, revenue within 2x, same state |
| AMERICAN FRIENDS OF IMFA INC | NY | H12 | $227,923 | $193,000 | PRESIDENT/ DIRECTOR | $0 | Same NTEE code H12, revenue within 2x, same state |
| SHIFRAH CARE INC | NY | H12 | $353,226 | $147,007 | Director | $0 | Same NTEE code H12, revenue within 2x, same state |
| GREGGS WINGS INC | NY | H12 | $117,314 | $118,108 | PRESIDENT | $0 | Same NTEE code H12, revenue within 2x, same state |
| BLAS FRANGIONE FOUNDATION | NY | H12 | $144,714 | $123,416 | Secretary | $10,000 | Same NTEE code H12, revenue within 2x, same state |
| RITA ALEXANDER IRRV LIVING TR | NY | H12 | $99,886 | $51,503 | Trustee | $20,168 | Same NTEE code H12, revenue within 2x, same state |
| HOPE FOR HARVEY FOUNDATION INC | TX | H12 | $153,271 | $125,457 | TREASURER | $0 | Same NTEE code H12, revenue within 2x |
| MACY EASOM CANCER RESEARCH FOUNDATION INC | GA | H12 | $110,186 | $101,917 | TREASURER | $0 | Same NTEE code H12, revenue within 2x, similar mission |
| INTERNATIONAL ASSOCIATION FOR FOOD PROTEIN ENTEROCOLITIS A NJ NONPROF | FL | H12 | $189,728 | $154,182 | President | $0 | Same NTEE code H12, revenue within 2x |
| TRACTORS FOR A CURE INC | IL | H12 | $121,095 | $113,451 | PRESIDENT | $0 | Same NTEE code H12, revenue within 2x |
| JOANN B FICKE CANCER FOUNDATION | CO | H12 | $171,853 | $170,172 | President, Director | $0 | Same NTEE code H12, revenue within 2x, similar mission |
| SOPHIES HOPE FOUNDATION INC | MA | H12 | $346,140 | $337,548 | PRESIDENT | $0 | Same NTEE code H12, revenue within 2x |
| FIGHT 4 DIABETES CURE INC | MD | H12 | $132,435 | $93,970 | President | $0 | Same NTEE code H12, revenue within 2x |
| RAISING HOPE FOR A CURE | MN | H12 | $128,455 | $125,945 | Secretary | $0 | Same NTEE code H12, revenue within 2x |
| MN LIONS CHILDHOOD CANCER FOUNDATION INC | MN | H12 | $207,129 | $214,721 | PRESIDENT | $0 | Same NTEE code H12, revenue within 2x |
Who funds organizations like this
Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).
The full list · all similar organizations
Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2024 · Form 990 · $538,454 spent · pay $223,424 · grants $232,248 · events $200
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $190,500 | $157,734 | $32,766 | - | 35.4% | |
| Grants outside the US | $144,327 | $144,327 | - | - | 26.8% | |
| Grants to US organizations and governments | $87,921 | $87,921 | - | - | 16.3% | |
| Fees: legal | $24,106 | $24,106 | - | - | 4.5% | |
| Fees: investment management | $20,985 | - | $20,985 | - | 3.9% | |
| Other employee benefits | $19,779 | $16,377 | $3,402 | - | 3.7% | |
| Payroll taxes | $13,145 | $10,884 | $2,261 | - | 2.4% | |
| Fees: other services | $13,030 | $13,030 | - | - | 2.4% | |
| Travel | $7,929 | $7,929 | - | - | 1.5% | |
| Other (as described) | RESEARCH RELATED COSTS | $4,559 | $4,559 | - | - | 0.8% |
| All other expenses | $3,284 | $2,501 | $783 | - | 0.6% | |
| Insurance | $2,405 | - | $2,405 | - | 0.4% | |
| Other (as described) | BANK & CREDIT CARD CHARGE | $1,978 | - | $1,978 | - | 0.4% |
| Other (as described) | PAYROLL PROCESSING | $1,570 | - | $1,570 | - | 0.3% |
| Fees: accounting | $1,497 | - | $1,497 | - | 0.3% | |
| Other (as described) | BOOKS, SUBSCRIPTIONS | $1,216 | $1,216 | - | - | 0.2% |
| Conferences, conventions and meetings | $200 | $200 | - | - | 0.0% | |
| Office expenses | $23 | - | $23 | - | 0.0% | |
| Total | $538,454 | 100% |
2023 · Form 990 · $6,029,768 spent · pay $229,007 · grants $5,688,811 · events $0
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants outside the US | $3,031,476 | $3,031,476 | - | - | 50.3% | |
| Grants to US organizations and governments | $2,654,298 | $2,654,298 | - | - | 44.0% | |
| Other salaries and wages | $190,500 | $157,000 | $33,500 | - | 3.2% | |
| Fees: legal | $45,422 | $45,422 | - | - | 0.8% | |
| Fees: investment management | $36,257 | - | $36,257 | - | 0.6% | |
| Other employee benefits | $25,953 | $21,489 | $4,464 | - | 0.4% | |
| Payroll taxes | $12,554 | $10,395 | $2,159 | - | 0.2% | |
| Travel | $8,377 | $8,377 | - | - | 0.1% | |
| Other (as described) | FUNDRAISING PAYMENTS | $6,751 | - | - | $6,751 | 0.1% |
| Insurance | $3,282 | - | $3,282 | - | 0.1% | |
| Grants to US individuals | $3,037 | $3,037 | - | - | 0.1% | |
| Fees: accounting | $3,005 | - | $3,005 | - | 0.0% | |
| Fees: other services | $2,724 | $2,724 | - | - | 0.0% | |
| Other (as described) | TELEPHONE | $2,283 | $2,283 | - | - | 0.0% |
| Other (as described) | PAYROLL PROCESSING | $1,544 | - | $1,544 | - | 0.0% |
| All other expenses | $1,253 | $806 | $447 | - | 0.0% | |
| Other (as described) | BOOKS, SUBSCRIPTIONS | $861 | $861 | - | - | 0.0% |
| Office expenses | $191 | $150 | $41 | - | 0.0% | |
| Total | $6,029,768 | 100% |
2022 · Form 990 · $620,035 spent · pay $245,158 · grants $273,958 · events $2,505
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $257,904 | $257,904 | - | - | 41.6% | |
| Pay: disqualified persons | $190,600 | $157,100 | $33,500 | - | 30.7% | |
| Fees: investment management | $38,333 | - | $38,333 | - | 6.2% | |
| Other employee benefits | $38,254 | $31,674 | $6,580 | - | 6.2% | |
| Fees: legal | $25,699 | $25,699 | - | - | 4.1% | |
| Grants to US individuals | $16,054 | $16,054 | - | - | 2.6% | |
| Payroll taxes | $13,554 | $11,223 | $2,331 | - | 2.2% | |
| Fees: other services | $11,575 | $11,575 | - | - | 1.9% | |
| Fees: accounting | $7,241 | - | $7,241 | - | 1.2% | |
| Other (as described) | PATIENT TESTING | $5,039 | $5,039 | - | - | 0.8% |
| Other (as described) | FUNDRAISING PAYMENTS | $2,942 | - | - | $2,942 | 0.5% |
| Other salaries and wages | $2,750 | $2,750 | - | - | 0.4% | |
| Conferences, conventions and meetings | $2,505 | $2,505 | - | - | 0.4% | |
| All other expenses | $2,259 | $1,601 | $658 | - | 0.4% | |
| Insurance | $2,175 | - | $2,175 | - | 0.4% | |
| Other (as described) | PAYROLL PROCESSING | $1,745 | - | $1,745 | - | 0.3% |
| Other (as described) | BANK & CREDIT CARD CHARGE | $736 | - | $736 | - | 0.1% |
| Travel | $670 | $670 | - | - | 0.1% | |
| Total | $620,035 | 100% |
2021 · Form 990 · $368,597 spent · pay $158,951 · grants $162,778 · events $2,332
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $111,954 | $81,954 | $30,000 | - | 30.4% | |
| Grants to US organizations and governments | $109,755 | $109,755 | - | - | 29.8% | |
| Grants to US individuals | $53,023 | $53,023 | - | - | 14.4% | |
| Other employee benefits | $38,103 | $27,893 | $10,210 | - | 10.3% | |
| Fees: legal | $29,574 | $29,574 | - | - | 8.0% | |
| Payroll taxes | $8,894 | $6,511 | $2,383 | - | 2.4% | |
| Fees: accounting | $6,000 | - | $6,000 | - | 1.6% | |
| Fees: other services | $2,350 | $2,350 | - | - | 0.6% | |
| Conferences, conventions and meetings | $2,332 | $2,332 | - | - | 0.6% | |
| Fees: investment management | $2,310 | - | $2,310 | - | 0.6% | |
| Office expenses | $1,786 | $1,786 | - | - | 0.5% | |
| Other (as described) | FUNDRAISING PAYMENTS | $1,118 | - | - | $1,118 | 0.3% |
| Other (as described) | TELEPHONE | $674 | $674 | - | - | 0.2% |
| Other (as described) | BOOKS, SUBSCRIPTIONS | $442 | $442 | - | - | 0.1% |
| Other (as described) | SUPPLIES | $168 | $168 | - | - | 0.0% |
| All other expenses | $114 | - | $114 | - | 0.0% | |
| Total | $368,597 | 100% |
2020 · Form 990 · $848,319 spent · pay $184,066 · grants $635,992 · events $480
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $625,102 | $625,102 | - | - | 73.7% | |
| Other salaries and wages | $109,567 | $65,740 | $43,827 | - | 12.9% | |
| Other employee benefits | $66,244 | $39,746 | $26,498 | - | 7.8% | |
| Grants to US individuals | $10,890 | $10,890 | - | - | 1.3% | |
| Fees: accounting | $9,150 | - | $9,150 | - | 1.1% | |
| Payroll taxes | $8,255 | $4,953 | $3,302 | - | 1.0% | |
| Fees: legal | $8,122 | $8,122 | - | - | 1.0% | |
| Information technology | $3,433 | - | $3,433 | - | 0.4% | |
| Other (as described) | BANK & CREDIT CARD CHARGE | $2,086 | - | $2,086 | - | 0.2% |
| Fees: other services | $1,745 | $1,093 | $652 | - | 0.2% | |
| Other (as described) | FUNDRAISING PAYMENTS | $1,330 | - | - | $1,330 | 0.2% |
| Insurance | $967 | - | $967 | - | 0.1% | |
| Other (as described) | TELEPHONE | $546 | $546 | - | - | 0.1% |
| Conferences, conventions and meetings | $480 | $480 | - | - | 0.1% | |
| Office expenses | $314 | - | $314 | - | 0.0% | |
| Other (as described) | BOOKS, SUBSCRIPTIONS | $88 | - | $88 | - | 0.0% |
| Total | $848,319 | 100% |
2019 · Form 990 · $437,301 spent · pay $156,465 · grants $225,000 · events $14,661
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $225,000 | $225,000 | - | - | 51.5% | |
| Other salaries and wages | $107,000 | $64,200 | $42,800 | - | 24.5% | |
| Other employee benefits | $41,015 | $24,609 | $16,406 | - | 9.4% | |
| Fees: legal | $28,467 | $28,467 | - | - | 6.5% | |
| Conferences, conventions and meetings | $14,661 | $14,661 | - | - | 3.4% | |
| Payroll taxes | $8,450 | $5,070 | $3,380 | - | 1.9% | |
| Other (as described) | FUNDRAISING PAYMENTS | $4,389 | - | - | $4,389 | 1.0% |
| Other (as described) | RESEARCH SUPPLIES | $2,452 | $2,452 | - | - | 0.6% |
| Insurance | $1,451 | - | $1,451 | - | 0.3% | |
| Fees: other services | $1,441 | - | $1,441 | - | 0.3% | |
| All other expenses | $962 | $349 | $613 | - | 0.2% | |
| Other (as described) | TELEPHONE | $760 | - | $760 | - | 0.2% |
| Other (as described) | BOOKS, SUBSCRIPTIONS | $739 | - | $739 | - | 0.2% |
| Office expenses | $393 | - | $393 | - | 0.1% | |
| Information technology | $121 | - | $121 | - | 0.0% | |
| Total | $437,301 | 100% |
2018 · Form 990 · $468,257 spent · pay $135,220 · grants $302,768 · events $33,070
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $302,768 | $302,768 | - | - | 64.7% | |
| Pay: officers, directors, trustees, key employees | $76,265 | $45,824 | $30,441 | - | 16.3% | |
| Other employee benefits | $52,865 | $31,719 | $21,146 | - | 11.3% | |
| Fees: accounting | $8,500 | - | $8,500 | - | 1.8% | |
| Information technology | $6,609 | - | $6,609 | - | 1.4% | |
| Payroll taxes | $6,090 | $3,654 | $2,436 | - | 1.3% | |
| Conferences, conventions and meetings | $4,705 | $4,705 | - | - | 1.0% | |
| Other (as described) | PATIENT TESTING | $2,415 | $2,415 | - | - | 0.5% |
| Other (as described) | RESEARCH SUPPLIES | $2,000 | $2,000 | - | - | 0.4% |
| Fees: other services | $1,665 | - | $1,665 | - | 0.4% | |
| Insurance | $1,597 | - | $1,597 | - | 0.3% | |
| Office expenses | $1,284 | - | $1,284 | - | 0.3% | |
| Other (as described) | BANK AND CREDIT CARD CH | $648 | - | $648 | - | 0.1% |
| Other (as described) | TELEPHONE | $491 | - | $491 | - | 0.1% |
| All other expenses | $355 | - | $355 | - | 0.1% | |
| Fundraising events Event | direct expenses; gross income $28,365 | $28,365 | reported apart | |||
| Total | $468,257 | 100% |
2017 · Form 990 · $376,562 spent · pay $82,104 · grants $253,950 · events $38,912
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $253,950 | $253,950 | - | - | 67.4% | |
| Other employee benefits | $42,919 | - | $42,919 | - | 11.4% | |
| Pay: officers, directors, trustees, key employees | $36,036 | - | $36,036 | - | 9.6% | |
| Other (as described) | PATIENT TESTING | $8,801 | $8,801 | - | - | 2.3% |
| Other (as described) | RESEARCH SUPPLIES + GRA | $7,435 | $7,435 | - | - | 2.0% |
| Fees: accounting | $6,250 | $5,312 | $938 | - | 1.7% | |
| Conferences, conventions and meetings | $5,608 | $4,768 | $840 | - | 1.5% | |
| Payroll taxes | $3,149 | - | $3,149 | - | 0.8% | |
| Information technology | $2,975 | $2,529 | $446 | - | 0.8% | |
| Other (as described) | BANK FEES | $2,955 | $2,513 | $442 | - | 0.8% |
| All other expenses | $1,718 | $1,462 | $256 | - | 0.5% | |
| Office expenses | $1,697 | $1,442 | $255 | - | 0.5% | |
| Insurance | $1,118 | $950 | $168 | - | 0.3% | |
| Fees: other services | $961 | - | $961 | - | 0.3% | |
| Other (as described) | SUPPLIES | $827 | $703 | $124 | - | 0.2% |
| Depreciation and depletion | $163 | $139 | $24 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $33,304 | $33,304 | reported apart | |||
| Total | $376,562 | 100% |
2016 · Form 990 · $253,667 spent · pay $61,401 · grants $160,817 · events $32,713
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $160,817 | $160,817 | - | - | 63.4% | |
| Pay: officers, directors, trustees, key employees | $36,036 | - | $36,036 | - | 14.2% | |
| Other employee benefits | $22,148 | - | $22,148 | - | 8.7% | |
| Fees: accounting | $7,500 | $6,375 | $1,125 | - | 3.0% | |
| Other (as described) | BUSINESS REGISTRATION F | $6,751 | $5,738 | $1,013 | - | 2.7% |
| Other (as described) | RESEARCH WAGES AND SUPP | $4,025 | $4,025 | - | - | 1.6% |
| Conferences, conventions and meetings | $3,371 | $2,865 | $506 | - | 1.3% | |
| Payroll taxes | $3,217 | - | $3,217 | - | 1.3% | |
| Information technology | $2,715 | $2,308 | $407 | - | 1.1% | |
| Other (as described) | BANK FEES | $1,911 | $1,624 | $287 | - | 0.8% |
| Fees: other services | $1,463 | - | $1,463 | - | 0.6% | |
| All other expenses | $1,276 | $1,087 | $189 | - | 0.5% | |
| Insurance | $1,060 | $901 | $159 | - | 0.4% | |
| Other (as described) | SUPPLIES | $735 | $625 | $110 | - | 0.3% |
| Depreciation and depletion | $322 | $274 | $48 | - | 0.1% | |
| Office expenses | $320 | $273 | $47 | - | 0.1% | |
| Fundraising events Event | direct expenses; gross income $29,342 | $29,342 | reported apart | |||
| Total | $253,667 | 100% |
2015 · Form 990 · $1,004,348 spent · pay $58,129 · grants $844,218 · events $84,983
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $844,218 | $844,218 | - | - | 84.1% | |
| Pay: officers, directors, trustees, key employees | $36,036 | - | $36,036 | - | 3.6% | |
| Conferences, conventions and meetings | $34,677 | $29,475 | $5,202 | - | 3.5% | |
| Other (as described) | PATIENT TESTING | $19,036 | $19,036 | - | - | 1.9% |
| Other employee benefits | $18,654 | - | $18,654 | - | 1.9% | |
| Other (as described) | BUSINESS REGISTRATION F | $13,946 | $11,854 | $2,092 | - | 1.4% |
| Fees: legal | $8,895 | $7,561 | $1,334 | - | 0.9% | |
| Fees: accounting | $8,500 | $7,225 | $1,275 | - | 0.8% | |
| Other (as described) | BANK FEES | $5,654 | $4,806 | $848 | - | 0.6% |
| Payroll taxes | $3,439 | - | $3,439 | - | 0.3% | |
| Other (as described) | MISCELLANEOUS | $2,801 | $2,381 | $420 | - | 0.3% |
| Information technology | $2,562 | $2,178 | $384 | - | 0.3% | |
| All other expenses | $2,375 | $2,019 | $356 | - | 0.2% | |
| Fees: other services | $1,424 | - | $1,424 | - | 0.1% | |
| Office expenses | $1,001 | $851 | $150 | - | 0.1% | |
| Insurance | $808 | $687 | $121 | - | 0.1% | |
| Depreciation and depletion | $322 | $274 | $48 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $50,306 | $50,306 | reported apart | |||
| Total | $1,004,348 | 100% |
2014 · Form 990 · $1,018,387 spent · pay $59,832 · grants $903,584 · events $71,334
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $903,584 | $903,584 | - | - | 88.7% | |
| Pay: officers, directors, trustees, key employees | $51,750 | $51,750 | - | - | 5.1% | |
| Other (as described) | PATIENT TESTING | $11,020 | $9,367 | $1,653 | - | 1.1% |
| Conferences, conventions and meetings | $8,811 | $7,489 | $1,322 | - | 0.9% | |
| Fees: accounting | $8,500 | $7,225 | $1,275 | - | 0.8% | |
| Other (as described) | BANK CHARGES | $7,598 | $6,458 | $1,140 | - | 0.7% |
| Other (as described) | BUSINESS REGISTRATION FEES | $6,750 | $5,738 | $1,012 | - | 0.7% |
| All other expenses | $5,900 | $5,015 | $885 | - | 0.6% | |
| Other salaries and wages | $5,200 | $4,420 | $780 | - | 0.5% | |
| Other (as described) | COMPUTER EXPENSES | $4,985 | $4,237 | $748 | - | 0.5% |
| Payroll taxes | $2,882 | $2,450 | $432 | - | 0.3% | |
| Insurance | $1,085 | $922 | $163 | - | 0.1% | |
| Depreciation and depletion | $322 | $274 | $48 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income - | $62,523 | reported apart | |||
| Total | $1,018,387 | 100% |
2013 · Form 990 · $1,020,222 spent · pay $81,323 · grants $806,194 · events $46,057
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $806,194 | $806,194 | - | - | 79.0% | |
| Other (as described) | UNCOLLECTIBLE GRANTS | $51,000 | $43,350 | $7,650 | - | 5.0% |
| Pay: officers, directors, trustees, key employees | $46,801 | $46,801 | - | - | 4.6% | |
| All other expenses | $21,668 | $18,419 | $3,249 | - | 2.1% | |
| Other salaries and wages | $19,240 | $16,354 | $2,886 | - | 1.9% | |
| Other (as described) | PATIENT TESTING | $15,366 | $13,061 | $2,305 | - | 1.5% |
| Conferences, conventions and meetings | $14,728 | $12,519 | $2,209 | - | 1.4% | |
| Other (as described) | BUSINESS REGISTRATION FEES | $12,453 | $10,585 | $1,868 | - | 1.2% |
| Other employee benefits | $10,765 | $9,150 | $1,615 | - | 1.1% | |
| Other (as described) | PATIENT TRAVEL | $8,928 | $7,589 | $1,339 | - | 0.9% |
| Fees: accounting | $7,000 | $5,950 | $1,050 | - | 0.7% | |
| Payroll taxes | $4,517 | $3,839 | $678 | - | 0.4% | |
| Insurance | $1,108 | $942 | $166 | - | 0.1% | |
| Depreciation and depletion | $454 | $386 | $68 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income - | $31,329 | reported apart | |||
| Total | $1,020,222 | 100% |
2012 · Form 990 · $1,545,976 spent · pay $77,760 · grants $1,381,693 · events $90,318
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $1,352,553 | $1,352,553 | - | - | 87.5% | |
| Conferences, conventions and meetings | $56,280 | $47,838 | $8,442 | - | 3.6% | |
| Pay: officers, directors, trustees, key employees | $47,376 | $47,376 | - | - | 3.1% | |
| Grants outside the US | $29,140 | $29,140 | - | - | 1.9% | |
| Other salaries and wages | $24,960 | $21,216 | $3,744 | - | 1.6% | |
| Fees: accounting | $6,000 | $5,100 | $900 | - | 0.4% | |
| All other expenses | $5,551 | $4,719 | $832 | - | 0.4% | |
| Payroll taxes | $5,424 | $4,610 | $814 | - | 0.4% | |
| Insurance | $4,259 | $3,620 | $639 | - | 0.3% | |
| Other (as described) | DONATED GIFTS | $4,010 | - | - | $4,010 | 0.3% |
| Other (as described) | COMPUTER EXPENSES | $2,797 | $2,377 | $420 | - | 0.2% |
| Other (as described) | BANK CHARGES | $2,703 | $2,298 | $405 | - | 0.2% |
| Other (as described) | SUPPLIES | $2,153 | $1,981 | - | $172 | 0.1% |
| Fees: management | $1,800 | $1,530 | $270 | - | 0.1% | |
| Depreciation and depletion | $370 | $315 | $55 | - | 0.0% | |
| Advertising and promotion | $330 | - | - | $330 | 0.0% | |
| Interest | $270 | $230 | $40 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income - | $34,038 | reported apart | |||
| Total | $1,545,976 | 100% |
2011 · Form 990 · $485,219 spent · pay $51,473 · grants $357,001 · events $98,041
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $315,801 | $315,801 | - | - | 65.1% | |
| Grants outside the US | $41,200 | $41,200 | - | - | 8.5% | |
| Pay: officers, directors, trustees, key employees | $41,010 | $41,010 | - | - | 8.5% | |
| Conferences, conventions and meetings | $23,457 | $23,457 | - | - | 4.8% | |
| Other (as described) | DONATED GIFTS | $11,957 | - | - | $11,957 | 2.5% |
| Other (as described) | SUPPLIES | $11,559 | $10,645 | - | $914 | 2.4% |
| Fees: management | $7,650 | $7,650 | - | - | 1.6% | |
| Other salaries and wages | $7,280 | - | $7,280 | - | 1.5% | |
| Fees: other services | $5,740 | - | $545 | $5,195 | 1.2% | |
| Other (as described) | BANK CHARGES | $3,205 | - | $3,205 | - | 0.7% |
| Payroll taxes | $3,183 | $2,484 | $699 | - | 0.7% | |
| All other expenses | $3,067 | - | $3,067 | - | 0.6% | |
| Advertising and promotion | $2,515 | - | - | $2,515 | 0.5% | |
| Other (as described) | COMPUTER EXPENSES | $2,284 | - | $2,284 | - | 0.5% |
| Fees: accounting | $1,500 | - | $1,500 | - | 0.3% | |
| Other (as described) | TELEPHONE | $1,397 | - | $1,397 | - | 0.3% |
| Depreciation and depletion | $1,285 | - | $1,285 | - | 0.3% | |
| Insurance | $1,024 | - | $1,024 | - | 0.2% | |
| Interest | $105 | - | $105 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income - | $74,584 | reported apart | |||
| Total | $485,219 | 100% |
2010 · Form 990 · $687,664 spent · pay $0 · grants $634,738 · events $86,802
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $562,738 | $562,738 | - | - | 81.8% | |
| Grants outside the US | $72,000 | $72,000 | - | - | 10.5% | |
| Other (as described) | DONATED GIFTS | $11,628 | - | - | $11,628 | 1.7% |
| Fees: other services | $9,202 | - | - | $9,202 | 1.3% | |
| Other (as described) | SUPPLIES | $7,960 | - | - | $7,960 | 1.2% |
| Advertising and promotion | $4,424 | - | - | $4,424 | 0.6% | |
| Conferences, conventions and meetings | $4,272 | $4,272 | - | - | 0.6% | |
| Other (as described) | BANK CHARGES | $3,625 | - | $3,625 | - | 0.5% |
| Travel | $3,348 | - | $3,348 | - | 0.5% | |
| Other (as described) | COMPUTER EXPENSES | $2,238 | - | $2,238 | - | 0.3% |
| Fees: accounting | $1,500 | - | $1,500 | - | 0.2% | |
| Depreciation and depletion | $1,442 | - | $1,442 | - | 0.2% | |
| All other expenses | $1,395 | - | $1,395 | - | 0.2% | |
| Other (as described) | MEMBERSHIPS & DUES | $1,385 | - | $1,385 | - | 0.2% |
| Insurance | $507 | - | $507 | - | 0.1% | |
| Fundraising events Event | direct expenses; gross income - | $82,530 | reported apart | |||
| Total | $687,664 | 100% |