STRATEGY STUDIO / PUBLIC DATA EXPLORER

PRADER-WILLI SYNDROME ASSOCIATION OF COLORADO

Cite this

Plain text PRADER-WILLI SYNDROME ASSOCIATION OF COLORADO. Strategy Studio, nonprofit organization profile, tax years 2011–2024. https://strategystudio.org/org/201913724. Retrieved 2026-10-19.

APA Strategy Studio. (n.d.). PRADER-WILLI SYNDROME ASSOCIATION OF COLORADO [Nonprofit organization profile; tax years 2011–2024]. Retrieved October 19, 2026, from https://strategystudio.org/org/201913724

MLA “PRADER-WILLI SYNDROME ASSOCIATION OF COLORADO.” Strategy Studio, tax years 2011–2024, https://strategystudio.org/org/201913724. Accessed 19 Oct. 2026.

Retrieved 2026-10-19; covers tax years 2011–2024. Data: Strategy Studio, CC BY 4.0.

2024 · Form 990EZ · revenue $139K · expenses $105K · assets $375K

Also known as
OF COLORADO
EIN
20-1913724
Address
8290 S YUKON WAY, LITTLETON, CO 80128-5514
Website
WWW.PWSACO.ORG
NTEE code
G20
Subsection
501(c)(3)
Ruling year
2005
Cross-check
ProPublica Nonprofit Explorer

Mission

INCREASE AWARENESS AND EDUCATION, SUPPORT RESEARCH

Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).

People paid by the organization

None of the 15 people listed on these returns reported compensation from the organization. They are listed below.

Officers and directors, no compensation reported

15 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.

NameLatest titleYearsHrs/wk (latest)CompensationOrganizations
Karolyn Porter TREASURER2016-2024 0 $0 reported 1
Lynette Hosler PRESIDENT2011-2024 0 $0 reported 1
Gary Hosler SECRETARY2011-2024 0 $0 reported 1
Robin Fleishman VP2016-2024 0 $0 reported 1
Jeff Porter CHAIRMAN2011-2024 0 $0 reported 1
Mark Greenberg DIRECTOR2017-2024 0 $0 reported 1
Crystal Redner DIRECTOR2017-2024 0 $0 reported 1
Charlotte Peterson DIRECTOR2017-2024 0 $0 reported 1
Rachael Fischer (former) DIRECTOR2016 1 $0 reported 1
Kari Porter (former) Treasurer2011-2015 1 $0 reported 1
Robin Grey (former) VP2011-2015 1 $0 reported 1
Robin Fleischman (former) VP2012-2015 1 $0 reported 1
Todd Porter (former) VP2011-2015 1 $0 reported 1
Lori Harry (former) DIRECTOR2011 1 $0 reported 1
Kathleen King (former) DIRECTOR2011 1 $0 reported 1

People by year

2024 · 8 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
KAROLYN PORTER TREASURER0 $0-- $01
LYNETTE HOSLER PRESIDENT0 $0-- $01
GARY HOSLER SECRETARY0 $0-- $01
ROBIN FLEISHMAN VP0 $0-- $01
JEFF PORTER CHAIRMAN0 $0-- $01
MARK GREENBERG DIRECTOR0 $0-- $01
CRYSTAL REDNER DIRECTOR0 $0-- $01
CHARLOTTE PETERSON DIRECTOR0 $0-- $01
2023 · 8 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
KAROLYN PORTER TREASURER0 $0-- $01
LYNETTE HOSLER PRESIDENT0 $0-- $01
GARY HOSLER SECRETARY0 $0-- $01
ROBIN FLEISHMAN VP0 $0-- $01
JEFF PORTER CHAIRMAN0 $0-- $01
MARK GREENBERG DIRECTOR0 $0-- $01
CRYSTAL REDNER DIRECTOR0 $0-- $01
CHARLOTTE PETERSON DIRECTOR0 $0-- $01
2022 · 8 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
KAROLYN PORTER TREASURER0 $0-- $01
LYNETTE HOSLER PRESIDENT0 $0-- $01
GARY HOSLER SECRETARY0 $0-- $01
ROBIN FLEISHMAN VP0 $0-- $01
JEFF PORTER CHAIRMAN0 $0-- $01
MARK GREENBERG DIRECTOR0 $0-- $01
CRYSTAL REDNER DIRECTOR0 $0-- $01
CHARLOTTE PETERSON DIRECTOR0 $0-- $01
2021 · 8 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
KAROLYN PORTER TREASURER0 $0-- $01
LYNETTE HOSLER PRESIDENT0 $0-- $01
GARY HOSLER SECRETARY0 $0-- $01
ROBIN FLEISHMAN VP0 $0-- $01
JEFF PORTER CHAIRMAN0 $0-- $01
MARK GREENBERG DIRECTOR0 $0-- $01
CRYSTAL REDNER DIRECTOR0 $0-- $01
CHARLOTTE PETERSON DIRECTOR0 $0-- $01
2020 · 8 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
KAROLYN PORTER TREASURER0 $0-- $01
LYNETTE HOSLER PRESIDENT0 $0-- $01
GARY HOSLER SECRETARY0 $0-- $01
ROBIN FLEISHMAN VP0 $0-- $01
JEFF PORTER CHAIRMAN0 $0-- $01
MARK GREENBERG DIRECTOR0 $0-- $01
CRYSTAL REDNER DIRECTOR0 $0-- $01
CHARLOTTE PETERSON DIRECTOR0 $0-- $01
2019 · 8 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
KAROLYN PORTER TREASURER1 $0-- $01
LYNETTE HOSLER PRESIDENT1 $0-- $01
GARY HOSLER SECRETARY1 $0-- $01
ROBIN FLEISHMAN VP1 $0-- $01
JEFF PORTER CHAIRMAN1 $0-- $01
MARK GREENBERG DIRECTOR1 $0-- $01
CRYSTAL REDNER DIRECTOR1 $0-- $01
CHARLOTTE PETERSON DIRECTOR1 $0-- $01
2018 · 8 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
KAROLYN PORTER TREASURER1 $0-- $01
LYNETTE HOSLER PRESIDENT1 $0-- $01
GARY HOSLER SECRETARY1 $0-- $01
ROBIN FLEISHMAN VP1 $0-- $01
JEFF PORTER CHAIRMAN1 $0-- $01
MARK GREENBERG DIRECTOR1 $0-- $01
CRYSTAL REDNER DIRECTOR1 $0-- $01
CHARLOTTE PETERSON DIRECTOR1 $0-- $01
2017 · 8 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
KAROLYN PORTER TREASURER1 $0-- $01
LYNETTE HOSLER PRESIDENT1 $0-- $01
GARY HOSLER SECRETARY1 $0-- $01
ROBIN FLEISHMAN VP1 $0-- $01
JEFF PORTER CHAIRMAN1 $0-- $01
MARK GREENBERG DIRECTOR1 $0-- $01
CRYSTAL REDNER DIRECTOR1 $0-- $01
CHARLOTTE PETERSON DIRECTOR1 $0-- $01
2016 · 6 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
KAROLYN PORTER TREASURER1 $0-- $01
LYNETTE HOSLER PRESIDENT1 $0-- $01
GARY HOSLER SECRETARY1 $0-- $01
ROBIN FLEISHMAN VP1 $0-- $01
JEFF PORTER CHAIRMAN1 $0-- $01
RACHAEL FISCHER DIRECTOR1 $0-- $01
2015 · 7 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Lynette Hosler President1 $0-$0 $01
Gary Hosler Secretary1 $0-$0 $01
Jeff Porter Chairman1 $0-$0 $01
Kari Porter Treasurer1 $0-$0 $01
Robin Grey VP1 $0-$0 $01
Robin Fleischman VP1 $0-$0 $01
Todd Porter VP1 $0-$0 $01
2014 · 7 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
LYNETTE HOSLER PRESIDENT1 $0-$0 $01
GARY HOSLER SECRETARY1 $0-$0 $01
JEFF PORTER CHAIRMAN1 $0-$0 $01
KARI PORTER TREASURER1 $0-$0 $01
ROBIN GREY VP1 $0-$0 $01
ROBIN FLEISCHMAN VP1 $0-$0 $01
TODD PORTER VP1 $0-$0 $01
2013 · 7 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
LYNETTE HOSLER PRESIDENT1 $0-$0 $01
GARY HOSLER SECRETARY1 $0-$0 $01
JEFF PORTER CHAIRMAN1 $0-$0 $01
KARI PORTER TREASURER1 $0-$0 $01
ROBIN GREY VP1 $0-$0 $01
ROBIN FLEISCHMAN VP1 $0-$0 $01
TODD PORTER VP1 $0-$0 $01
2012 · 7 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
LYNETTE HOSLER PRESIDENT1 $0-$0 $01
GARY HOSLER SECRETARY1 $0-$0 $01
JEFF PORTER CHAIRMAN1 $0-$0 $01
KARI PORTER TREASURER1 $0-$0 $01
ROBIN GREY VP1 $0-$0 $01
ROBIN FLEISCHMAN VP1 $0-$0 $01
TODD PORTER VP1 $0-$0 $01
2011 · 8 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
LYNETTE HOSLER PRESIDENT1 $0-- $01
GARY HOSLER SECRETARY1 $0-- $01
JEFF PORTER CHAIRMAN1 $0-- $01
LORI HARRY DIRECTOR1 $0-- $01
TODD PORTER DIRECTOR1 $0-- $01
KARI PORTER TREASURER1 $0-- $01
ROBIN GREY DIRECTOR1 $0-- $01
KATHLEEN KING DIRECTOR1 $0-- $01

Highest-paid independent contractors

No independent contractors reported.

Who gave

Contributor names are not public for this form type.

Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.

Finances

Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.

RevenueExpensesAssetsNet assetsContributionsProgram revenueOfficer payEmployeesVolunteers
2024 · Form 990EZ period ending 2024-12-31 · view filing · original 990 ↗
$139,310$105,125 $374,989$374,574 -$670 ---
2023 · Form 990EZ period ending 2023-12-31 · view filing · original 990 ↗
$12,141$57,133 $340,803$340,388 $10,000$2,141 ---
2022 · Form 990EZ period ending 2022-12-31 · view filing · original 990 ↗
$107,145$54,281 $385,796$385,381 $35,000- ---
2021 · Form 990EZ period ending 2021-12-31 · view filing · original 990 ↗
$108,480$49,161 $331,517$331,517 $22,733- ---
2020 · Form 990EZ period ending 2020-12-31 · view filing · original 990 ↗
$77,562$34,425 $272,588$272,198 $20,540- ---
2019 · Form 990EZ period ending 2019-12-31 · view filing · original 990 ↗
$107,469$89,906 $229,810$229,810 $28,476- ---
2018 · Form 990EZ period ending 2018-12-31 · view filing · original 990 ↗
$107,386$112,921 $212,246$212,246 $15,167- ---
2017 · Form 990EZ period ending 2017-12-31 · view filing · original 990 ↗
$94,105$78,587 $217,784$217,784 $18,938- ---
2016 · Form 990EZ period ending 2016-12-31 · view filing · original 990 ↗
$82,555$164,502 $202,266$202,266 $17,461- ---
2015 · Form 990EZ period ending 2015-12-31 · view filing · original 990 ↗
$81,604$74,945 $284,213$284,213 $77,740- ---
2014 · Form 990EZ period ending 2014-12-31 · view filing · original 990 ↗
$85,559$96,556 $340,054$287,554 $85,210- ---
2013 · Form 990EZ period ending 2013-12-31 · view filing · original 990 ↗
$98,750$51,223 $298,551$298,551 $98,430- ---
2012 · Form 990EZ period ending 2012-12-31 · view filing · original 990 ↗
$97,023$103,521 $301,024$251,024 $96,686- ---
2011 · Form 990EZ period ending 2011-12-31 · view filing · original 990 ↗
$114,551$98,541 $257,522$257,522 $113,726- ---

Funders of this organization

7 grantors reported grants to this organization, $189,850 in all, tax years 2012 to 2025. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV

GrantorTypeMatchYears givenGrantsTotalLatest yearLatest year's amountGrants
ESTES FAMILY FOUNDATION Private foundation Fuzzy filed as “PRADER-WILLI SYNDROME ASSOCIATION OF COLORADO” 2014-2022, 2024 10$164,800 2024$4,250
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NATIONAL CHRISTIAN CHARITABLE FOUNDATION DAF sponsor Exact 2015, 2017-2019, 2023 5$18,830 2023$10,000
show
MCDOWELL FAMILY FOUNDATION Private foundation Fuzzy filed as “PRADER-WILLI SYNDROME ASSOCIATION OF COLORADO” 2016, 2018-2019, 2025 4$3,000 2025$500
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The Gentry Family Foundation Private foundation Fuzzy filed as “PRADER-WILLI SYNDROME ASSOCIATION OF COLORADO” 2019 1$2,000 2019$2,000
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BANK OF AMERICA CHARITABLE FOUNDATION INC Private foundation Fuzzy filed as “PRADER-WILLI SYNDROME ASSOCIATION OF COLORADO” 2012 2$500 2012$500
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AMAZONSMILE FOUNDATION Private foundation Fuzzy filed as “PRADER-WILLI SYNDROME ASSOCIATION OF COLORADO” 2020-2023 4$470 2023$124
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SYNCHRONY FOUNDATION Private foundation Fuzzy filed as “PRADER-WILLI SYNDROME ASSOCIATION OF COLORADO” 2022 1$250 2022$250
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BOW FOUNDATIONVAG20 $247,559$259,893 CHAIRMAN$0 Same NTEE code G20, revenue within 2x, similar mission
SKRABAN-DEARDORFF SYNDROME FOUNDATIONNCG20 $149,207$13,242 OFFICER$0 Same NTEE code G20, revenue within 2x
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TATTON BROWN RAHMAN SYNDROME COMMUNITY INCNYG20 $270,669$399,562 Executive Director$78,930 Same NTEE code G20, revenue within 2x
CURE SPG4 FOUNDATION INCTXG20 $100,598$111,733 President$0 Same NTEE code G20, revenue within 2x
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GROUP B STREP INTERNATIONALCAG20 $96,273$99,662 CEO/Cofounder, Director$44,955 Same NTEE code G20, revenue within 2x
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ORANGEBURG AREA SICKLE CELL ANEMIA FOUNDATIONSCG20 $107,986$104,899 EXECUTIVE DIRECTOR$28,782 Same NTEE code G20, revenue within 2x
GRIN2B FOUNDATIONILG20 $233,410$193,831 EXECUTIVE DIRECTOR$20,770 Same NTEE code G20, revenue within 2x
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UNITED CEREBRAL PALSY ASSOCIATION OF SAN FRANCISCOCAG20 $236,662$327,429 President$0 Same NTEE code G20, revenue within 2x
SHWACHMAN-DIAMOND SYNDROME ALLIANCE INCMAG20 $133,392$356,884 CEO$212,500 Same NTEE code G20, revenue within 2x
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Who funds organizations like this

Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).

GrantorTypeTotal givenGrantsOrganizations fundedYearsWhich ones
SILICON VALLEY COMMUNITY FOUNDATION DAF sponsor$4,015,0007 62020–2024 KCNQ2 CURE ALLIANCE INC; SALLA TREATMENT AND RESEARCH FOUNDATION INC; DADA2 FOUNDATION; TATTON BROWN RAHMAN SYNDROME COMMUNITY INC and 2 more
VANGUARD CHARITABLE ENDOWMENT PROGRAM DAF sponsor$3,307,00010 52020–2024 UTAH SMILES FOUNDATION; NF NORTH CENTRAL; NF2 BIOSOLUTIONS; XLH NETWORK INC and 1 more
FORGOOD INC DAF sponsor$1,181,49871 222011–2024 ELLIES ARMY INC; LUCKY FIN PROJECT; XLH NETWORK INC; DESSH DESANTO-SHINAWI SYNDROME CORPORATION and 18 more
FIDELITY INVESTMENTS CHARITABLE GIFT FUND DAF sponsor$1,039,46441 202016–2024 HELP 4 HD INTERNATIONAL; THERAPIES FOR INHERITED NEUROPATHIES INC; NF2 BIOSOLUTIONS; BOW FOUNDATION and 16 more
BLUE SKY FOUNDATION INC Private foundation$600,0002 12020–2023 NF2 BIOSOLUTIONS
AMERICAN ONLINE GIVING FOUNDATION INC DAF sponsor$516,73947 192019–2024 NF2 BIOSOLUTIONS; UTAH CHAPTER NATIONAL HEMOPHILIA FOUNDATION; GRIN2B FOUNDATION; DADA2 FOUNDATION and 15 more
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KAU JONES FOUNDATION Private foundation$397,0007 12018–2024 GROUP B STREP INTERNATIONAL
PAYPAL CHARITABLE GIVING FUND DAF sponsor$358,82724 142018–2024 NF2 BIOSOLUTIONS; MITCHELL AND FRIENDS FOUNDATION; EBF3 HADDS FOUNDATION; GRIN2B FOUNDATION and 10 more
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WASHINGTON UNIVERSITY DAF sponsor$289,6219 12015–2024 SICKLE CELL ASSOCIATION
CASCADE HEMOPHILIA CONSORTIUM Private foundation$272,04911 12013–2024 NORTHWEST OHIO HEMOPHILIA FOUNDATION
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The full list · all similar organizations

Where the money went

Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.

2024 · Form 990EZ · $105,125 spent · pay $0 · grants $0 · events $2,000
LineAs describedTotalShare
Fees to independent contractors $58,586 55.7%
Other expenses (detail on Schedule O) $46,539 44.3%
Fundraising events Eventdirect expenses; gross income -$2,000reported apart
Total$105,125100%

View the filing

2023 · Form 990EZ · $57,133 spent · pay $0 · grants $0 · events $0
LineAs describedTotalShare
Other expenses (detail on Schedule O) $54,683 95.7%
Fees to independent contractors $2,450 4.3%
Total$57,133100%

View the filing

2022 · Form 990EZ · $54,281 spent · pay $0 · grants $0 · events $49,742
LineAs describedTotalShare
Other expenses (detail on Schedule O) $35,715 65.8%
Fees to independent contractors $18,566 34.2%
Fundraising events Eventdirect expenses; gross income -$49,742reported apart
Total$54,281100%

View the filing

2021 · Form 990EZ · $49,161 spent · pay $0 · grants $0 · events $34,974
LineAs describedTotalShare
Other expenses (detail on Schedule O) $34,385 69.9%
Fees to independent contractors $14,776 30.1%
Fundraising events Eventdirect expenses; gross income -$34,974reported apart
Total$49,161100%

View the filing

2020 · Form 990EZ · $34,425 spent · pay $0 · grants $0 · events $15,068
LineAs describedTotalShare
Other expenses (detail on Schedule O) $31,880 92.6%
Fees to independent contractors $2,545 7.4%
Fundraising events Eventdirect expenses; gross income -$15,068reported apart
Total$34,425100%

View the filing

2019 · Form 990EZ · $89,906 spent · pay $0 · grants $0 · events $43,730
LineAs describedTotalShare
Other expenses (detail on Schedule O) $62,745 69.8%
Fees to independent contractors $27,161 30.2%
Fundraising events Eventdirect expenses; gross income -$43,730reported apart
Total$89,906100%

View the filing

2018 · Form 990EZ · $112,921 spent · pay $0 · grants $0 · events $29,109
LineAs describedTotalShare
Other expenses (detail on Schedule O) $75,115 66.5%
Fees to independent contractors $37,806 33.5%
Fundraising events Eventdirect expenses; gross income -$29,109reported apart
Total$112,921100%

View the filing

2017 · Form 990EZ · $78,587 spent · pay $0 · grants $0 · events $45,285
LineAs describedTotalShare
Other expenses (detail on Schedule O) $68,723 87.4%
Fees to independent contractors $9,864 12.6%
Fundraising events Eventdirect expenses; gross income -$45,285reported apart
Total$78,587100%

View the filing

2016 · Form 990EZ · $164,502 spent · pay $0 · grants $0 · events $47,163
LineAs describedTotalShare
Other expenses (detail on Schedule O) $164,217 99.8%
Fees to independent contractors $285 0.2%
Fundraising events Eventdirect expenses; gross income -$47,163reported apart
Total$164,502100%

View the filing

2015 · Form 990EZ · $74,945 spent · pay $0 · grants $0 · events $41,429
LineAs describedTotalShare
Other expenses (detail on Schedule O) $74,595 99.5%
Fees to independent contractors $350 0.5%
Fundraising events Eventdirect expenses; gross income -$41,429reported apart
Total$74,945100%

View the filing

2014 · Form 990EZ · $96,556 spent · pay $0 · grants $0 · events $37,040
LineAs describedTotalShare
Other expenses (detail on Schedule O) $96,231 99.7%
Fees to independent contractors $325 0.3%
Fundraising events Eventdirect expenses; gross income -$37,040reported apart
Total$96,556100%

View the filing

2013 · Form 990EZ · $51,223 spent · pay $0 · grants $0 · events $0
LineAs describedTotalShare
Other expenses (detail on Schedule O) $50,623 98.8%
Fees to independent contractors $600 1.2%
Total$51,223100%

View the filing

2012 · Form 990EZ · $103,521 spent · pay $0 · grants $0 · events $0
LineAs describedTotalShare
Other expenses (detail on Schedule O) $101,038 97.6%
Fees to independent contractors $2,483 2.4%
Total$103,521100%

View the filing

2011 · Form 990EZ · $98,541 spent · pay $0 · grants $0 · events $0
LineAs describedTotalShare
Other expenses (detail on Schedule O) $90,816 92.2%
Fees to independent contractors $7,725 7.8%
Total$98,541100%

View the filing