STRATEGY STUDIO / PUBLIC DATA EXPLORER

DESSH DESANTO-SHINAWI SYNDROME CORPORATION

Cite this

Plain text DESSH DESANTO-SHINAWI SYNDROME CORPORATION. Strategy Studio, nonprofit organization profile, tax years 2023–2025. https://strategystudio.org/org/834603164. Retrieved 2026-10-19.

APA Strategy Studio. (n.d.). DESSH DESANTO-SHINAWI SYNDROME CORPORATION [Nonprofit organization profile; tax years 2023–2025]. Retrieved October 19, 2026, from https://strategystudio.org/org/834603164

MLA “DESSH DESANTO-SHINAWI SYNDROME CORPORATION.” Strategy Studio, tax years 2023–2025, https://strategystudio.org/org/834603164. Accessed 19 Oct. 2026.

Retrieved 2026-10-19; covers tax years 2023–2025. Data: Strategy Studio, CC BY 4.0.

2025 · Form 990EZ · revenue $106K · expenses $63K · assets $230K

EIN
83-4603164
Address
3 HIGGINS DR, VERNON, NJ 07462-3024
Website
www.dessh.org
NTEE code
G20
Subsection
501(c)(3)
Ruling year
2020
Cross-check
ProPublica Nonprofit Explorer

Mission

Research for

Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).

People paid by the organization

1 person paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.

NameLatest titleYearsLatest year payTotal pay from hereOrganizations
Caitlin Piccirillo Executive Director2023-2025 $14,400$14,400 1

Officers and directors, no compensation reported

3 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.

NameLatest titleYearsHrs/wk (latest)CompensationOrganizations
Amanda Piccirillo Secretary2025 0 $0 reported 1
Stephen Piccirillo Treasurer2025 0 $0 reported 1
Joseph Piccirillo (former) Vice President2023-2024 0 $0 reported 1

People by year

2025 · 3 people listed · 1 paid, $14K
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
CAITLIN PICCIRILLO Executive Director10 $14,400-$0 $14,4001
AMANDA PICCIRILLO Secretary0 $0-$0 $01
STEPHEN PICCIRILLO Treasurer0 $0-$0 $01
2024 · 2 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
CAITLIN PICCIRILLO President0 $0-$0 $01
JOSEPH PICCIRILLO Vice President0 $0-$0 $01
2023 · 2 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
CAITLIN PICCIRILLO President5 $0-$0 $01
JOSEPH PICCIRILLO Vice President5 $0-$0 $01

Highest-paid independent contractors

No independent contractors reported.

Who gave

Contributor names are not public for this form type.

Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.

Finances

Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.

RevenueExpensesAssetsNet assetsContributionsProgram revenueOfficer payEmployeesVolunteers
2025 · Form 990EZ period ending 2025-12-31 · view filing · original 990 ↗
$106,303$62,695 $230,095$230,095 $105,152- ---
2024 · Form 990EZ period ending 2024-12-31 · view filing · original 990 ↗
$112,403$40,953 $204,487$208,287 $112,403- ---
2023 · Form 990EZ period ending 2023-12-31 · view filing · original 990 ↗
$82,183$29,483 $134,784$134,784 $82,183- ---

Funders of this organization

3 grantors reported grants to this organization, $124,429 in all, tax years 2020 to 2024. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV

GrantorTypeMatchYears givenGrantsTotalLatest yearLatest year's amountGrants
FORGOOD INC DAF sponsor Exact 2020-2024 5$113,229 2024$21,097
show
DONOR ADVISED CHARITABLE GIVING DAF sponsor Exact 2022 1$10,000 2022$10,000
show
AMAZONSMILE FOUNDATION Private foundation Fuzzy filed as “DESSH DESANTO-SHINAWI SYNDROME CORPORATION” 2020-2023 4$1,200 2023$356
show

Similar organizations

Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)

OrganizationStateNTEELatest revenueLatest expensesTop-paid titleTop payWhy similar
BOBBY SCHOLL FOUNDATION INCNJG20 $57,660$54,423 EXECUTIVE DIRECTOR$0 Same NTEE code G20, revenue within 2x, same state
SMILE BANGLADESHNJG20 $185,434$169,118 PRESIDENT/CH$0 Same NTEE code G20, revenue within 2x, same state
PRADER-WILLI SYNDROME ASSOCIATION OF COLORADOCOG20 $139,310$105,125 TREASURER$0 Same NTEE code G20, revenue within 2x
MIRACLE 4 MANDY INCPAG20 $54,836$659 PRESIDENT$0 Same NTEE code G20, revenue within 2x, similar mission
DADA2 FOUNDATIONTNG20 $124,320$150,165 President$0 Same NTEE code G20, revenue within 2x
COFFIN-SIRIS SYNDROME FOUNDATIONWAG20 $151,428$119,879 Chair$0 Same NTEE code G20, revenue within 2x
SMA-PME RESEARCHSCG20 $70,455$76,015 President$0 Same NTEE code G20, revenue within 2x, similar mission
SKRABAN-DEARDORFF SYNDROME FOUNDATIONNCG20 $149,207$13,242 OFFICER$0 Same NTEE code G20, revenue within 2x
CURE FINDERS INCTNG20 $184,012$155,181 DIRECTOR$0 Same NTEE code G20, revenue within 2x, similar mission
INTERNATIONAL WAGR SYNDROME ASSOCIATIONMDG20 $73,819$73,600 EXECUTIVE DIRECTOR$25,935 Same NTEE code G20, revenue within 2x
SHWACHMAN-DIAMOND SYNDROME ALLIANCE INCMAG20 $133,392$356,884 CEO$212,500 Same NTEE code G20, revenue within 2x
PACS1 SYNDROME RESEARCH FOUNDATIONCTG20 $162,460$367,382 TRUSTEE$0 Same NTEE code G20, revenue within 2x
CURE SPG4 FOUNDATION INCTXG20 $100,598$111,733 President$0 Same NTEE code G20, revenue within 2x
CHESTNUT HILL COMMUNITY DEVELOPMENT CORPORATIONPAG20 $101,700$133,738 Executive Dir.$40,766 Same NTEE code G20, revenue within 2x
IQSEC2 RESEARCH AND ADVOCACYFOUNDATIONTXG20 $84,528$29,984 President$0 Same NTEE code G20, revenue within 2x
SOMALI CHILDRENS HEALTHCARE RELIEF FOUNDATIONGAG20 $65,000$78,786 DIRECTOR$41,000 Same NTEE code G20, revenue within 2x
TIMOTHY SYNDROME ALLIANCE INCUTG20 $88,663$91,259 Director$3,697 Same NTEE code G20, revenue within 2x
MITCHELL AND FRIENDS FOUNDATIONMOG20 $55,534$52,858 President$0 Same NTEE code G20, revenue within 2x
EBF3 HADDS FOUNDATIONMOG20 $60,541$85,462 President$0 Same NTEE code G20, revenue within 2x
SCID FOUNDATIONVAG20 $106,522$58,823 President$25,908 Same NTEE code G20, revenue within 2x
SCACURE NETWORKS INCING20 $118,829$87,494 Executive Director$0 Same NTEE code G20, revenue within 2x
CEREBRAL PALSY SCHOOL OF LOUISVILLE FOUNDATION INCKYG20 $136,001$10,972 DIRECTOR$0 Same NTEE code G20, revenue within 2x
SPRINGER FAMILY FOUNDATION INCTXG20 $97,608$82,943 Director/ Operations Manager$3,858 Same NTEE code G20, revenue within 2x
HNRNP FAMILY FOUNDATIONWAG20 $185,732$184,673 DIRECTOR & PRESIDENT$0 Same NTEE code G20, revenue within 2x
UNIS - STAFF ASSOCIATIONNYG20 $172,092$99,027 VICE PRESIDENT$0 Same NTEE code G20, revenue within 2x

Who funds organizations like this

Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).

GrantorTypeTotal givenGrantsOrganizations fundedYearsWhich ones
VANGUARD CHARITABLE ENDOWMENT PROGRAM DAF sponsor$3,332,50013 62020–2024 UTAH SMILES FOUNDATION; NF NORTH CENTRAL; NF2 BIOSOLUTIONS; LENN FOUNDATION and 2 more
SILICON VALLEY COMMUNITY FOUNDATION DAF sponsor$3,215,0006 52020–2024 SALLA TREATMENT AND RESEARCH FOUNDATION INC; DADA2 FOUNDATION; TATTON BROWN RAHMAN SYNDROME COMMUNITY INC; PACS1 SYNDROME RESEARCH FOUNDATION and 1 more
FORGOOD INC funds this one DAF sponsor$752,17152 192011–2024 LUCKY FIN PROJECT; COFFIN-SIRIS SYNDROME FOUNDATION; SALLA TREATMENT AND RESEARCH FOUNDATION INC; SMILE BANGLADESH and 15 more
BLUE SKY FOUNDATION INC Private foundation$600,0002 12020–2023 NF2 BIOSOLUTIONS
FIDELITY INVESTMENTS CHARITABLE GIFT FUND DAF sponsor$527,33030 172016–2024 NF2 BIOSOLUTIONS; BOW FOUNDATION; CUREFA FOUNDATION INC; R BABY FOUNDATION INC and 13 more
AMERICAN ONLINE GIVING FOUNDATION INC DAF sponsor$470,75141 162019–2024 NF2 BIOSOLUTIONS; UTAH CHAPTER NATIONAL HEMOPHILIA FOUNDATION; GRIN2B FOUNDATION; DADA2 FOUNDATION and 12 more
KAU JONES FOUNDATION Private foundation$397,0007 12018–2024 GROUP B STREP INTERNATIONAL
PAYPAL CHARITABLE GIVING FUND DAF sponsor$345,99222 122018–2024 NF2 BIOSOLUTIONS; MITCHELL AND FRIENDS FOUNDATION; EBF3 HADDS FOUNDATION; GRIN2B FOUNDATION and 8 more
DONOR ADVISED CHARITABLE GIVING funds this one DAF sponsor$322,98721 132016–2024 ABBYS ARMY; CUREFA FOUNDATION INC; TATTON BROWN RAHMAN SYNDROME COMMUNITY INC; DADA2 FOUNDATION and 9 more
WASHINGTON UNIVERSITY DAF sponsor$289,6219 12015–2024 SICKLE CELL ASSOCIATION
CASCADE HEMOPHILIA CONSORTIUM Private foundation$272,04911 12013–2024 NORTHWEST OHIO HEMOPHILIA FOUNDATION
GLOBAL IMPACT DAF sponsor$249,9439 22017–2021 UTAH CHAPTER NATIONAL HEMOPHILIA FOUNDATION; TENNESEE PKU FOUNDATION
JEWISH COMMUNAL FUND DAF sponsor$170,67810 32009–2023 R BABY FOUNDATION INC; CUREFA FOUNDATION INC; LD RESOURCES FOUNDATION INC
ESTES FAMILY FOUNDATION Private foundation$164,80010 12014–2024 PRADER-WILLI SYNDROME ASSOCIATION OF COLORADO
AMERICAN ENDOWMENT FOUNDATION DAF sponsor$161,4287 32016–2024 VIVIAN LEE FOUNDATION; LUCKY FIN PROJECT; MINUTES MATTER - MCADD

The full list · all similar organizations

Where the money went

Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.

2025 · Form 990EZ · $62,695 spent · pay $14,400 · grants $0 · events $0
LineAs describedTotalShare
Other expenses (detail on Schedule O) $48,295 77.0%
Salaries, other pay and benefits $14,400 23.0%
Total$62,695100%

View the filing

2024 · Form 990EZ · $40,953 spent · pay $0 · grants $27,867 · events $0
LineAs describedTotalShare
Grants and similar amounts paid $27,867 68.0%
Other expenses (detail on Schedule O) $10,118 24.7%
Printing, publications, postage $2,968 7.2%
Total$40,953100%

View the filing

2023 · Form 990EZ · $29,483 spent · pay $0 · grants $0 · events $0
LineAs describedTotalShare
Other expenses (detail on Schedule O) $29,483 100.0%
Total$29,483100%

View the filing