DESSH DESANTO-SHINAWI SYNDROME CORPORATION
Cite this
Plain text DESSH DESANTO-SHINAWI SYNDROME CORPORATION. Strategy Studio, nonprofit organization profile, tax years 2023–2025. https://strategystudio.org/org/834603164. Retrieved 2026-10-19.
APA Strategy Studio. (n.d.). DESSH DESANTO-SHINAWI SYNDROME CORPORATION [Nonprofit organization profile; tax years 2023–2025]. Retrieved October 19, 2026, from https://strategystudio.org/org/834603164
MLA “DESSH DESANTO-SHINAWI SYNDROME CORPORATION.” Strategy Studio, tax years 2023–2025, https://strategystudio.org/org/834603164. Accessed 19 Oct. 2026.
Retrieved 2026-10-19; covers tax years 2023–2025. Data: Strategy Studio, CC BY 4.0.
2025 · Form 990EZ · revenue $106K · expenses $63K · assets $230K
- EIN
- 83-4603164
- Address
- 3 HIGGINS DR, VERNON, NJ 07462-3024
- Website
- www.dessh.org
- NTEE code
- G20
- Subsection
- 501(c)(3)
- Ruling year
- 2020
- Cross-check
- ProPublica Nonprofit Explorer
Mission
Research for
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
1 person paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.
| Name | Latest title | Years | Latest year pay | Total pay from here | Organizations |
|---|---|---|---|---|---|
| Caitlin Piccirillo | Executive Director | 2023-2025 | $14,400 | $14,400 | 1 |
Officers and directors, no compensation reported
3 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.
| Name | Latest title | Years | Hrs/wk (latest) | Compensation | Organizations |
|---|---|---|---|---|---|
| Amanda Piccirillo | Secretary | 2025 | 0 | $0 reported | 1 |
| Stephen Piccirillo | Treasurer | 2025 | 0 | $0 reported | 1 |
| Joseph Piccirillo (former) | Vice President | 2023-2024 | 0 | $0 reported | 1 |
People by year
2025 · 3 people listed · 1 paid, $14K
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| CAITLIN PICCIRILLO | Executive Director | 10 | $14,400 | - | $0 | $14,400 | 1 |
| AMANDA PICCIRILLO | Secretary | 0 | $0 | - | $0 | $0 | 1 |
| STEPHEN PICCIRILLO | Treasurer | 0 | $0 | - | $0 | $0 | 1 |
2024 · 2 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| CAITLIN PICCIRILLO | President | 0 | $0 | - | $0 | $0 | 1 |
| JOSEPH PICCIRILLO | Vice President | 0 | $0 | - | $0 | $0 | 1 |
2023 · 2 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| CAITLIN PICCIRILLO | President | 5 | $0 | - | $0 | $0 | 1 |
| JOSEPH PICCIRILLO | Vice President | 5 | $0 | - | $0 | $0 | 1 |
Highest-paid independent contractors
No independent contractors reported.
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2025 · Form 990EZ | ||||||||
| $106,303 | $62,695 | $230,095 | $230,095 | $105,152 | - | - | - | - |
| 2024 · Form 990EZ | ||||||||
| $112,403 | $40,953 | $204,487 | $208,287 | $112,403 | - | - | - | - |
| 2023 · Form 990EZ | ||||||||
| $82,183 | $29,483 | $134,784 | $134,784 | $82,183 | - | - | - | - |
Funders of this organization
3 grantors reported grants to this organization, $124,429 in all, tax years 2020 to 2024. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV
| Grantor | Type | Match | Years given | Grants | Total | Latest year | Latest year's amount | Grants |
|---|---|---|---|---|---|---|---|---|
| FORGOOD INC | DAF sponsor | Exact | 2020-2024 | 5 | $113,229 | 2024 | $21,097 | show |
| DONOR ADVISED CHARITABLE GIVING | DAF sponsor | Exact | 2022 | 1 | $10,000 | 2022 | $10,000 | show |
| AMAZONSMILE FOUNDATION | Private foundation | Fuzzy filed as “DESSH DESANTO-SHINAWI SYNDROME CORPORATION” | 2020-2023 | 4 | $1,200 | 2023 | $356 | show |
Similar organizations
Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)
| Organization | State | NTEE | Latest revenue | Latest expenses | Top-paid title | Top pay | Why similar |
|---|---|---|---|---|---|---|---|
| BOBBY SCHOLL FOUNDATION INC | NJ | G20 | $57,660 | $54,423 | EXECUTIVE DIRECTOR | $0 | Same NTEE code G20, revenue within 2x, same state |
| SMILE BANGLADESH | NJ | G20 | $185,434 | $169,118 | PRESIDENT/CH | $0 | Same NTEE code G20, revenue within 2x, same state |
| PRADER-WILLI SYNDROME ASSOCIATION OF COLORADO | CO | G20 | $139,310 | $105,125 | TREASURER | $0 | Same NTEE code G20, revenue within 2x |
| MIRACLE 4 MANDY INC | PA | G20 | $54,836 | $659 | PRESIDENT | $0 | Same NTEE code G20, revenue within 2x, similar mission |
| DADA2 FOUNDATION | TN | G20 | $124,320 | $150,165 | President | $0 | Same NTEE code G20, revenue within 2x |
| COFFIN-SIRIS SYNDROME FOUNDATION | WA | G20 | $151,428 | $119,879 | Chair | $0 | Same NTEE code G20, revenue within 2x |
| SMA-PME RESEARCH | SC | G20 | $70,455 | $76,015 | President | $0 | Same NTEE code G20, revenue within 2x, similar mission |
| SKRABAN-DEARDORFF SYNDROME FOUNDATION | NC | G20 | $149,207 | $13,242 | OFFICER | $0 | Same NTEE code G20, revenue within 2x |
| CURE FINDERS INC | TN | G20 | $184,012 | $155,181 | DIRECTOR | $0 | Same NTEE code G20, revenue within 2x, similar mission |
| INTERNATIONAL WAGR SYNDROME ASSOCIATION | MD | G20 | $73,819 | $73,600 | EXECUTIVE DIRECTOR | $25,935 | Same NTEE code G20, revenue within 2x |
| SHWACHMAN-DIAMOND SYNDROME ALLIANCE INC | MA | G20 | $133,392 | $356,884 | CEO | $212,500 | Same NTEE code G20, revenue within 2x |
| PACS1 SYNDROME RESEARCH FOUNDATION | CT | G20 | $162,460 | $367,382 | TRUSTEE | $0 | Same NTEE code G20, revenue within 2x |
| CURE SPG4 FOUNDATION INC | TX | G20 | $100,598 | $111,733 | President | $0 | Same NTEE code G20, revenue within 2x |
| CHESTNUT HILL COMMUNITY DEVELOPMENT CORPORATION | PA | G20 | $101,700 | $133,738 | Executive Dir. | $40,766 | Same NTEE code G20, revenue within 2x |
| IQSEC2 RESEARCH AND ADVOCACYFOUNDATION | TX | G20 | $84,528 | $29,984 | President | $0 | Same NTEE code G20, revenue within 2x |
| SOMALI CHILDRENS HEALTHCARE RELIEF FOUNDATION | GA | G20 | $65,000 | $78,786 | DIRECTOR | $41,000 | Same NTEE code G20, revenue within 2x |
| TIMOTHY SYNDROME ALLIANCE INC | UT | G20 | $88,663 | $91,259 | Director | $3,697 | Same NTEE code G20, revenue within 2x |
| MITCHELL AND FRIENDS FOUNDATION | MO | G20 | $55,534 | $52,858 | President | $0 | Same NTEE code G20, revenue within 2x |
| EBF3 HADDS FOUNDATION | MO | G20 | $60,541 | $85,462 | President | $0 | Same NTEE code G20, revenue within 2x |
| SCID FOUNDATION | VA | G20 | $106,522 | $58,823 | President | $25,908 | Same NTEE code G20, revenue within 2x |
| SCACURE NETWORKS INC | IN | G20 | $118,829 | $87,494 | Executive Director | $0 | Same NTEE code G20, revenue within 2x |
| CEREBRAL PALSY SCHOOL OF LOUISVILLE FOUNDATION INC | KY | G20 | $136,001 | $10,972 | DIRECTOR | $0 | Same NTEE code G20, revenue within 2x |
| SPRINGER FAMILY FOUNDATION INC | TX | G20 | $97,608 | $82,943 | Director/ Operations Manager | $3,858 | Same NTEE code G20, revenue within 2x |
| HNRNP FAMILY FOUNDATION | WA | G20 | $185,732 | $184,673 | DIRECTOR & PRESIDENT | $0 | Same NTEE code G20, revenue within 2x |
| UNIS - STAFF ASSOCIATION | NY | G20 | $172,092 | $99,027 | VICE PRESIDENT | $0 | Same NTEE code G20, revenue within 2x |
Who funds organizations like this
Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).
The full list · all similar organizations
Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2025 · Form 990EZ · $62,695 spent · pay $14,400 · grants $0 · events $0
| Line | As described | Total | Share |
|---|---|---|---|
| Other expenses (detail on Schedule O) | $48,295 | 77.0% | |
| Salaries, other pay and benefits | $14,400 | 23.0% | |
| Total | $62,695 | 100% |
2024 · Form 990EZ · $40,953 spent · pay $0 · grants $27,867 · events $0
| Line | As described | Total | Share |
|---|---|---|---|
| Grants and similar amounts paid | $27,867 | 68.0% | |
| Other expenses (detail on Schedule O) | $10,118 | 24.7% | |
| Printing, publications, postage | $2,968 | 7.2% | |
| Total | $40,953 | 100% |
2023 · Form 990EZ · $29,483 spent · pay $0 · grants $0 · events $0
| Line | As described | Total | Share |
|---|---|---|---|
| Other expenses (detail on Schedule O) | $29,483 | 100.0% | |
| Total | $29,483 | 100% |