STRATEGY STUDIO / PUBLIC DATA EXPLORER

TBX4LIFE

Cite this

Plain text TBX4LIFE. Strategy Studio, nonprofit organization profile, tax years 2024. https://strategystudio.org/org/874583041. Retrieved 2026-10-19.

APA Strategy Studio. (n.d.). TBX4LIFE [Nonprofit organization profile; tax years 2024]. Retrieved October 19, 2026, from https://strategystudio.org/org/874583041

MLA “TBX4LIFE.” Strategy Studio, tax years 2024, https://strategystudio.org/org/874583041. Accessed 19 Oct. 2026.

Retrieved 2026-10-19; covers tax years 2024. Data: Strategy Studio, CC BY 4.0.

2024 · Form 990EZ · revenue $98K · expenses $7K · assets $115K

EIN
87-4583041
Address
4233 WALLACE LN, NASHVILLE, TN 37215-3231
Website
tbx4.org
NTEE code
G20
Subsection
501(c)(3)
Ruling year
2023
Cross-check
ProPublica Nonprofit Explorer

Mission

Nonprofit dedicated to raising awareness about TBX4 Syndrome, supporting families affected by this ultra?rare genetic disorder, and accelerating international medical research toward a cure

Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).

People paid by the organization

None of the 5 people listed on these returns reported compensation from the organization. They are listed below.

Officers and directors, no compensation reported

5 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.

NameLatest titleYearsHrs/wk (latest)CompensationOrganizations
Anton Morkin CEO2024 15 $0 reported 1
Dr Eric Austin President and Scientific Lead2024 5 $0 reported 1
LaRae Hacker Treasurer, Director of Communications2024 8 $0 reported 1
Tatiana Morkina Secretary2024 1 $0 reported 1
Luke Stockdale Director, Strategy and Program Management2024 2 $0 reported 1

People by year

2024 · 5 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Anton Morkin CEO15 $0-$0 $01
Dr Eric Austin President and Scientific Lead5 $0-$0 $01
LaRae Hacker Treasurer, Director of Communications8 $0-$0 $01
Tatiana Morkina Secretary1 $0-$0 $01
Luke Stockdale Director, Strategy and Program Management2 $0-$0 $01

Highest-paid independent contractors

No independent contractors reported.

Who gave

Contributor names are not public for this form type.

Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.

Finances

Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.

RevenueExpensesAssetsNet assetsContributionsProgram revenueOfficer payEmployeesVolunteers
2024 · Form 990EZ period ending 2024-12-31 · view filing · original 990 ↗
$98,330$6,987 $114,513$114,513 $19,788- ---

Funders of this organization

2 grantors reported grants to this organization, $24,979 in all, tax years 2023 to 2024. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV

GrantorTypeMatchYears givenGrantsTotalLatest yearLatest year's amountGrants
AMERICAN ONLINE GIVING FOUNDATION INC DAF sponsor Exact 2023-2024 2$14,493 2024$7,999
show
PAYPAL CHARITABLE GIVING FUND DAF sponsor Exact 2023 1$10,486 2023$10,486
show

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CURE FINDERS INCTNG20 $184,012$155,181 DIRECTOR$0 Same NTEE code G20, revenue within 2x, same state
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EBF3 HADDS FOUNDATIONMOG20 $60,541$85,462 President$0 Same NTEE code G20, revenue within 2x, similar mission
INTERNATIONAL WAGR SYNDROME ASSOCIATIONMDG20 $73,819$73,600 EXECUTIVE DIRECTOR$25,935 Same NTEE code G20, revenue within 2x
SKRABAN-DEARDORFF SYNDROME FOUNDATIONNCG20 $149,207$13,242 OFFICER$0 Same NTEE code G20, revenue within 2x
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TEAM TRACE INCMDG20 $111,956$127,947 PRESIDENT$0 Same NTEE code G20, revenue within 2x
FOUNDATION HOPE & LIFE USAFLG20 $165,997$165,997 PRESIDENT$0 Same NTEE code G20, revenue within 2x
SHWACHMAN-DIAMOND SYNDROME ALLIANCE INCMAG20 $133,392$356,884 CEO$212,500 Same NTEE code G20, revenue within 2x
HAWAII FETAL ALCOHOL SPECTRUM DISORDERS FASD ACTION GROUPHIG20 $152,564$210,655 EXECUTIVE DIRECTOR$93,462 Same NTEE code G20, revenue within 2x
THINKGENETIC FOUNDATION INCMAG20 $145,893$131,833 PRESIDENT/CLERK$0 Same NTEE code G20, revenue within 2x
SICKLE CELL WARRIORS OF WISCONSINWIG20 $63,447$47,460 President & CEO$0 Same NTEE code G20, revenue within 2x
HNRNP FAMILY FOUNDATIONWAG20 $185,732$184,673 DIRECTOR & PRESIDENT$0 Same NTEE code G20, revenue within 2x
NF NORTH CENTRALMNG20 $52,000$77,735 PRESIDENT/TREASURER$0 Same NTEE code G20, revenue within 2x
TIMOTHY SYNDROME ALLIANCE INCUTG20 $88,663$91,259 Director$3,697 Same NTEE code G20, revenue within 2x
HUNTERS HOPE FOR DUCHENNE AND DEGS1 LEUKODYSTROPHY INCNEG20 $60,833$9,171 DIRECTOR$0 Same NTEE code G20, revenue within 2x
MILLERS KIDS FUNDMSG20 $115,552$11,770 President (Thru 08/2025)$0 Same NTEE code G20, revenue within 2x
CURE SPG4 FOUNDATION INCTXG20 $100,598$111,733 President$0 Same NTEE code G20, revenue within 2x
MY XXYAZG20 $114,604$268,537 CEO$32,000 Same NTEE code G20, revenue within 2x
SCID FOUNDATIONVAG20 $106,522$58,823 President$25,908 Same NTEE code G20, revenue within 2x
COFFIN-SIRIS SYNDROME FOUNDATIONWAG20 $151,428$119,879 Chair$0 Same NTEE code G20, revenue within 2x
PRADER-WILLI SYNDROME ASSOCIATION OF COLORADOCOG20 $139,310$105,125 TREASURER$0 Same NTEE code G20, revenue within 2x
NORTHWEST OHIO HEMOPHILIA FOUNDATIONOHG20 $146,780$138,297 Executive Director$56,792 Same NTEE code G20, revenue within 2x
PMG AWARENESS ORGANIZATION INCCAG20 $52,637$96,973 PRESIDENT/CEO$0 Same NTEE code G20, revenue within 2x

Who funds organizations like this

Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).

GrantorTypeTotal givenGrantsOrganizations fundedYearsWhich ones
SILICON VALLEY COMMUNITY FOUNDATION DAF sponsor$4,015,0007 62020–2024 KCNQ2 CURE ALLIANCE INC; SALLA TREATMENT AND RESEARCH FOUNDATION INC; DADA2 FOUNDATION; TATTON BROWN RAHMAN SYNDROME COMMUNITY INC and 2 more
VANGUARD CHARITABLE ENDOWMENT PROGRAM DAF sponsor$3,354,50014 72020–2024 UTAH SMILES FOUNDATION; NF NORTH CENTRAL; NF2 BIOSOLUTIONS; LENN FOUNDATION and 3 more
FORGOOD INC DAF sponsor$1,213,40270 222011–2024 ELLIES ARMY INC; LUCKY FIN PROJECT; XLH NETWORK INC; DESSH DESANTO-SHINAWI SYNDROME CORPORATION and 18 more
FIDELITY INVESTMENTS CHARITABLE GIFT FUND DAF sponsor$784,82041 212016–2024 THERAPIES FOR INHERITED NEUROPATHIES INC; NF2 BIOSOLUTIONS; BOW FOUNDATION; CUREFA FOUNDATION INC and 17 more
BLUE SKY FOUNDATION INC Private foundation$600,0002 12020–2023 NF2 BIOSOLUTIONS
JEWISH COMMUNAL FUND DAF sponsor$500,67815 42009–2023 KCNQ2 CURE ALLIANCE INC; R BABY FOUNDATION INC; CUREFA FOUNDATION INC; LD RESOURCES FOUNDATION INC
AMERICAN ONLINE GIVING FOUNDATION INC funds this one DAF sponsor$476,69142 172019–2024 NF2 BIOSOLUTIONS; UTAH CHAPTER NATIONAL HEMOPHILIA FOUNDATION; GRIN2B FOUNDATION; DADA2 FOUNDATION and 13 more
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PAYPAL CHARITABLE GIVING FUND funds this one DAF sponsor$401,66224 132018–2024 NF2 BIOSOLUTIONS; MITCHELL AND FRIENDS FOUNDATION; PRISMS INC; EBF3 HADDS FOUNDATION and 9 more
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Where the money went

Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.

2024 · Form 990EZ · $6,987 spent · pay $0 · grants $0 · events $20,065
LineAs describedTotalShare
Other expenses (detail on Schedule O) $6,462 92.5%
Printing, publications, postage $525 7.5%
Fundraising events Eventdirect expenses; gross income -$20,065reported apart
Total$6,987100%

View the filing